> ## Content Index > Fetch the complete content index at: https://smartjots.com/llms.txt > Use this file to discover other available public pages before exploring further. # The Most Painful Illnesses Ranked: Sufferers Share the Ailments That Shattered Their Pain Scale - URL: https://smartjots.com/the-most-painful-illnesses-ranked-by-those-who-survived-them/ - Published: 2026-08-19T23:54:22.000Z - Updated: 2026-09-04T18:11:26.000Z - Description: Analysis of over 2,500 patient accounts reveals the agonizing physiological conditions—from kidney stones and acute pancreatitis to cluster headaches—that consistently max out clinical pain scales. - Author: Smart Jots - Tags: Life Wisdom > [View the original Reddit discussion](https://www.reddit.com/r/AskReddit/comments/1vsq3tl/what%5Fis%5Fthe%5Fmost%5Fpainful%5Fillness%5Fyou%5Fhave%5Fever%5Fhad/?ref=smartjots.com) Reported experience, not a ranking # The illnesses people named as the most painful thing they have had — and what they said the pain was like Start here ## What people named, and what they said it was like Kidney stones (273 records) and gallbladder attacks (250) are the two answers this thread returns to most, with shingles (244), endometriosis and adenomyosis (154) and depression (151) close behind — and the commenters who have had two of them contradict each other flatly about which was worse. Everything below is one person's account of their own illness, grouped by condition: what they said they had, what they said it felt like, and what they said happened when they asked for help — not a severity ranking, not a diagnosis, and not advice. What you will find - Kidney stones — 273 records, the thread's largest group - Gallbladder attacks — 250 records, and the commenters who rank them against childbirth - Shingles — 244 records, and the nerve pain writers say it left behind - Endometriosis and adenomyosis — 154 records, and the years before a diagnosis - Depression — 151 records, the answer that argues with the question - The 36 records about not being believed - Why none of this is a ranking, a diagnosis or medical advice 63 answer cards Browse categories and subcategories - [Stones, and the organs that make them](#cv-category-stones-and-the-organs-that-make-them) - [Kidney stones](#rich-node-0-group-0-subgroup-0-kidney-stones) - [Gallbladder attacks and gallstones](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) - [Pancreatitis](#rich-node-0-group-0-subgroup-2-pancreatitis) - [The gut](#cv-category-the-gut) - [Appendicitis](#rich-node-0-group-1-subgroup-0-appendicitis) - [Crohn's disease and ulcerative colitis](#rich-node-0-group-1-subgroup-1-crohn-s-disease-and-ulcerative-colitis) - [Diverticulitis](#rich-node-0-group-1-subgroup-2-diverticulitis) - [Bowel obstruction, twisting and perforation](#rich-node-0-group-1-subgroup-3-bowel-obstruction-twisting-and-perforation) - [Stomach ulcers, gastritis and reflux](#rich-node-0-group-1-subgroup-4-stomach-ulcers-gastritis-and-reflux) - [Norovirus, food poisoning and stomach bugs](#rich-node-0-group-1-subgroup-5-norovirus-food-poisoning-and-stomach-bugs) - [Gastroparesis, cyclic vomiting and guts nobody could name](#rich-node-0-group-1-subgroup-6-gastroparesis-cyclic-vomiting-and-guts-nobody-could-name) - [C. difficile, and what the antibiotics left behind](#rich-node-0-group-1-subgroup-7-c-difficile-and-what-the-antibiotics-left-behind) - [Hernias](#rich-node-0-group-1-subgroup-8-hernias) - [The head, the face and the mouth](#cv-category-the-head-the-face-and-the-mouth) - [Cluster headaches](#rich-node-0-group-2-subgroup-0-cluster-headaches) - [Migraines and headaches that would not end](#rich-node-0-group-2-subgroup-1-migraines-and-headaches-that-would-not-end) - [Trigeminal neuralgia](#rich-node-0-group-2-subgroup-2-trigeminal-neuralgia) - [Ears and sinuses](#rich-node-0-group-2-subgroup-3-ears-and-sinuses) - [Teeth, jaws and mouths](#rich-node-0-group-2-subgroup-4-teeth-jaws-and-mouths) - [Eyes](#rich-node-0-group-2-subgroup-5-eyes) - [Nerves, the spine and the back](#cv-category-nerves-the-spine-and-the-back) - [Shingles, and the nerve pain it leaves behind](#rich-node-0-group-3-subgroup-0-shingles-and-the-nerve-pain-it-leaves-behind) - [Sciatica, discs and the spine](#rich-node-0-group-3-subgroup-1-sciatica-discs-and-the-spine) - [Complex regional pain syndrome](#rich-node-0-group-3-subgroup-2-complex-regional-pain-syndrome) - [Pinched nerves and neuropathy](#rich-node-0-group-3-subgroup-3-pinched-nerves-and-neuropathy) - [Epilepsy, MS, strokes and palsies](#rich-node-0-group-3-subgroup-4-epilepsy-ms-strokes-and-palsies) - [The reproductive and urinary tract](#cv-category-the-reproductive-and-urinary-tract) - [Endometriosis and adenomyosis](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis) - [Ovarian cysts, torsion and fibroids](#rich-node-0-group-4-subgroup-1-ovarian-cysts-torsion-and-fibroids) - [Periods, cramps and PMDD](#rich-node-0-group-4-subgroup-2-periods-cramps-and-pmdd) - [Childbirth, caesareans and what came after](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) - [Miscarriage, ectopic pregnancy and abortion](#rich-node-0-group-4-subgroup-4-miscarriage-ectopic-pregnancy-and-abortion) - [Gynaecological procedures, infections and everything else](#rich-node-0-group-4-subgroup-5-gynaecological-procedures-infections-and-everything-else) - [Bladder, kidney infections and the prostate](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) - [Testicular torsion and groin injury](#rich-node-0-group-4-subgroup-7-testicular-torsion-and-groin-injury) - [Bones, joints and muscles](#cv-category-bones-joints-and-muscles) - [Arthritis, lupus and autoimmune disease](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease) - [Gout](#rich-node-0-group-5-subgroup-1-gout) - [Broken bones and crush injuries](#rich-node-0-group-5-subgroup-2-broken-bones-and-crush-injuries) - [Fibromyalgia](#rich-node-0-group-5-subgroup-3-fibromyalgia) - [Tendons, joints and the bones that gave way](#rich-node-0-group-5-subgroup-4-tendons-joints-and-the-bones-that-gave-way) - [Infections](#cv-category-infections) - [Meningitis and encephalitis](#rich-node-0-group-6-subgroup-0-meningitis-and-encephalitis) - [Sepsis and septic shock](#rich-node-0-group-6-subgroup-1-sepsis-and-septic-shock) - [Flu, COVID and high fevers](#rich-node-0-group-6-subgroup-2-flu-covid-and-high-fevers) - [Throats: strep, tonsillitis and abscesses](#rich-node-0-group-6-subgroup-3-throats-strep-tonsillitis-and-abscesses) - [Cellulitis, abscesses and bone infections](#rich-node-0-group-6-subgroup-4-cellulitis-abscesses-and-bone-infections) - [Dengue, chikungunya, malaria and typhoid](#rich-node-0-group-6-subgroup-5-dengue-chikungunya-malaria-and-typhoid) - [Mono and glandular fever](#rich-node-0-group-6-subgroup-6-mono-and-glandular-fever) - [The childhood illnesses, caught late](#rich-node-0-group-6-subgroup-7-the-childhood-illnesses-caught-late) - [Lyme disease and the infections that took years to name](#rich-node-0-group-6-subgroup-8-lyme-disease-and-the-infections-that-took-years-to-name) - [Herpes, cold sores and mouth ulcers](#rich-node-0-group-6-subgroup-9-herpes-cold-sores-and-mouth-ulcers) - [The chest, the lungs and the heart](#cv-category-the-chest-the-lungs-and-the-heart) - [Lungs, pleura and clots](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots) - [Heart attacks and heart disease](#rich-node-0-group-7-subgroup-1-heart-attacks-and-heart-disease) - [Cancer, and its treatment](#cv-category-cancer-and-its-treatment) - [Cancer](#rich-node-0-group-8-subgroup-0-cancer) - [What the cancer treatment felt like](#rich-node-0-group-8-subgroup-1-what-the-cancer-treatment-felt-like) - [Skin and soft tissue](#cv-category-skin-and-soft-tissue) - [Fissures, abscesses and haemorrhoids](#rich-node-0-group-9-subgroup-0-fissures-abscesses-and-haemorrhoids) - [Hidradenitis suppurativa](#rich-node-0-group-9-subgroup-1-hidradenitis-suppurativa) - [Skin, hives and the itch](#rich-node-0-group-9-subgroup-2-skin-hives-and-the-itch) - [Surgery, procedures and recovery](#cv-category-surgery-procedures-and-recovery) - [Surgery, and what came after](#rich-node-0-group-10-subgroup-0-surgery-and-what-came-after) - [Spinal taps, epidurals and spinal-fluid leaks](#rich-node-0-group-10-subgroup-1-spinal-taps-epidurals-and-spinal-fluid-leaks) - [The body's chemistry, its scaffolding, and the long tail](#cv-category-the-body-s-chemistry-its-scaffolding-and-the-long-tail) - [Diabetes, hormones and organ failure](#rich-node-0-group-11-subgroup-0-diabetes-hormones-and-organ-failure) - [Ehlers-Danlos and hypermobility](#rich-node-0-group-11-subgroup-1-ehlers-danlos-and-hypermobility) - [The one-off answers](#rich-node-0-group-11-subgroup-2-the-one-off-answers) - [The answers that were not a physical illness at all](#cv-category-the-answers-that-were-not-a-physical-illness-at-all) - [Depression and mental illness](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness) - [Addiction and withdrawal](#rich-node-0-group-12-subgroup-1-addiction-and-withdrawal) - [Grief and heartbreak](#rich-node-0-group-12-subgroup-2-grief-and-heartbreak) - [What the pain did, and what happened when they asked for help](#cv-category-what-the-pain-did-and-what-happened-when-they-asked-for-help) - [Chronic pain, and the illnesses nobody could name](#rich-node-0-group-13-subgroup-0-chronic-pain-and-the-illnesses-nobody-could-name) - [Not being believed](#rich-node-0-group-13-subgroup-1-not-being-believed) **Evidence status:** Stones, and the organs that make them604 records · 3 sub-topicsThe thread's two largest answers by a wide margin, and the organ inflammation that repeatedly follows one of them. 604 records. Kidney stones273 index entriesThe largest group of classified records in the thread, and the one commenters most often measure everything else against. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Kidney stones Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Kidney stones 273 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 523 **Appears when:** Kidney stones **What the pattern means:** The largest group in the corpus and the most internally consistent. The pain arrives without warning, frequently out of sleep; no position relieves it; and vomiting recurs as the thing that convinced people this was not a stomach ache. A detail these records keep correcting is which part hurts — several writers expected the stone leaving the body to be the worst of it and report it was painless after days or weeks of colic beforehand. The group is also the thread's reference point: commenters filed under other conditions reach for it to explain their own, in both directions. **What commenters described:** Here I was thinking when hearing about kidney stones all my life that the painfull part of kidney stones is when you pee them out - like when the stone is bigger than your urethra. Little did know that the most painfull part is when the little fella starts moving out of the kidney. I woke up at 1am with an upset intestine, thought I ate something wrong and went to the toilet. Shortly after the pain started at the left side of my back and continued for the whole night - didn't know how to move or lie down to make it stop simply nothing seemed to help. Drove to the ER in the morning and they quickly said that's a kidney stone but because they did not have an urologist at hand they send me home with antibiotics and pain meds. During the next night the pain was so bad that I had to call an ambulance and the pain meds they gave me in the ER did not work initially - they kept proceeding to stronger and stronger ones and it wasn't until they pushed piritramide for the third time that my pain finally stopped - which I learned came from a renal colic... got to stay at the hospital for a few days which basically consisted of sleeping during the day and calling for pain meds the whole night. then they did eswl shock wave therapy and send me home again. Had to come back twice I think into the ER so they could give me stronger pain meds than they send me home with. All in all a pretty exhausting and painfull experience. Pissing the stone out itself in the end after 1+ week of pain did not hurt at all but fuck kidney stones **Limit:** Stone size, whether anything was blocked and whether an infection followed vary enormously inside this group, and so do the outcomes — some passed a stone unaided, some needed surgery, several report becoming septic. These are individual accounts of what people say happened to them, not a way to recognise a kidney stone or to decide what to do about one. What replies pushed back on5 Be careful. I took omeprazole for 20 years and now am missing several teeth, due to side effects I was totally unaware of. Pushback♥ 18 Ditto. Had four babies, three without pain meds or epidurals, and kidney stone pain was way worse. Worse than when my colon perforated too. Pushback♥ 1 I thought I had a very high pain tolerance, broken bones etc in the past - until I had my first kidney stone. Was vomiting and curled up on the ground for hours from the pain, is absolutely the worst. Reported failure♥ 2 I had a very large stone, too big to pass and I ended up with 3 surgeries to rid me of it. The first Lithotripsy only broke it up, and all the small pieces got stuck and I had to back in to the ER and have another surgery to have them removed AND then, there was still a large piece stuck and so I had to go back in and have that one removed! That was a nasty stone. I had stones several times before that as well over the years! Thanks Dad, I inherited it from you...LOL! He had them too. I remember as a child the ambulance taking him away in the middle of the night, back in the 1960s. He had kidney stones! The other most painful condition I had was a kidney infection, no stones....holey moley...that hurt really bad too! 😱😱 Reported failure♥ 1 Kidney stones. I’ve broken my back twice and the kidney stones still win. Especially since those tickets wouldn’t pass on their own and required intervention under anesthesia. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint I had a kidney stone at 32 weeks pregnant. I would honestly take childbirth over kidney stones again. Unfortunately for me I have two more hanging out in my right kidney and nothing I can do about it until I give birth except hope they don’t decide to pass before then source record 18♥ 5 Explicit limit or counterpoint Yes Kidney Stones I'm 49 and they started at the age of 12 years old, it's been like 5 years since I've had an episode..but the pain can be so crucial that it will literally take yr breath away!!! And no unfortunately my middle daughter started getting them a few years ago but I pray neither of my other two girls get them!! source record 1592♥ 2 #### Source-record spotlights Most engaged source This should be higher on the list. Extremely painful! I’ve had several. source record 7♥ 135 Later-arriving source I have given birth by being induced without pain meds, had a gallbladder attack (and removal) and had kidney stones. Ill take anything over kidney stones. posted about 34.7 hours after the source♥ 1 Low-like source Kidney stones! Much worse pain than being induced. posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 273 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 273index entries 273distinct source records 45.2%of parent category 7.3%of the complete index 202top-level comments 71replies #### What commenters explicitly report 0explicitly reports a benefit 6explicitly reports a limit or failure 11asks a question 1says they intend to try it 255other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments273 preserved records · 273 of 273 source records accounted for **Kidney stone**♥ 965source record 0 **I tend to downplay pain and/or have a decent tolerance. When I went into the ER for I didn't know what (turned out kidney stone) and they ask on the pain scale (1-10), I said, if it hurt anymore I'm gonna pass out.... They moved real quick after that...**♥ 104source record 1 **I have had an unmedicated c section (had to happen fast, couldn’t get me to numb), and my kidney stones are still 10x more painful than the birth of my child.**♥ 69source record 2 **Yep, had a few kidney stones before ever having a kid and I was ready for kidney stone level pain… c-section was a breeze.**♥ 6source record 5 **This should be higher on the list. Extremely painful! I’ve had several.**♥ 135source record 7 **Kidney stones too, its so bad our society just ignores it til it happens. Even my work leave paperwork, basically all I had to say was "kidney stones" and everything was instantly approved. Worst experience of my life.**♥ 116source record 8 **When I went to the ER with stones, there were 3 other women in there for the same thing! So we were collectively having the most awful day**♥ 63source record 9 **Kidney stones gang yeaaa ✋ . ( Go and drink a glass of water right now )**♥ 60source record 11 **I’ve had two kidney stones. Both were made completely out of the ingredients in Tums. I switched to omeprazole and haven’t had a stone since.**♥ 35source record 14 **I had a kidney stone at 32 weeks pregnant. I would honestly take childbirth over kidney stones again. Unfortunately for me I have two more hanging out in my right kidney and nothing I can do about it until I give birth except hope they don’t decide to pass before then**♥ 5source record 18 **Kidney stones while pregnant! They can’t give you the really good pain meds. You just have to take Tylenol and pray it passes soon. I did that for a week until doctors realized my kidney was blocked and not draining. Had to have a stent placed while 20 weeks pregnant. ☹️**♥ 4source record 19 **I wonder if the pains like having kidney stones , but just in different places ? I had kidney stones had to have an operation to remove 4 stones that caused blockages . Had a stent put in and was in hospital for weeks . It was so pain full . Would rather give birth again than have kidney stones again .**♥ 103source record 23 **I've had two kidney stones in my lifetime, both more painful than childbirth. Remember that scene from Terms of Endearment when Shirley MacLean is screaming for the nurses to give her daughter the shot of morphine? That was my husband...**♥ 6source record 31 **I’ve had gallbladder attack (surgically resolved) and I’ve had hydronephrosis (which is what causes kidney pain from stones). Hydronephrosis is much more painful. Both are morphine-worthy though.**♥ 4source record 69 **Currently wiaitng for a second operation on my left kidney to remove kidney stones - they are painful !!!. After that I have to have an operation to remove a tumour from my right kidney , which isnt painful (at the moment !)**♥ 11source record 356 **Kidney stone**♥ 3source record 421 **Kidney stone**♥ 5source record 425 **Kidney stone**♥ 5source record 435 **Kidney stones**♥ 3source record 464 **Just had my 3rd taken out 13mm wild wild pain**♥ 3source record 487 **I Am lucky I live in India tbh . The first time it happened it took me whole night to understand something is seriously wrong with my body in my stomach. I rode my bike crying with pain to my nearest hospital which is 5 mins away. It's a tiny private hospital. The doctor was asleep... In his home . So the night shift guy half asleep didn't give a fk and straight away went inside the medicine room ( still half asleep) and came back with a medicine bottle and injection and told me to lie down on the stretcher and then shoved the injection in my arse in milliseconds and removed it . I felt the injection pain later cuz kidney stone pain comes first ( It will hunt you in your dreams too ). The nurse told me go home and sleep bring tomorrow these these tests okay ?? I nodded and rode back to my home and straight away passed out on the sofa. I was totally numb for 2 days straight. Took the reports 2 days later to a kidney specialist and he congratulated me for Twins . 3.5 & 4 mm .**♥ 3source record 492 **I worked at an insurance broker as a licensed CSR, and I got a lot of static for having to be out to get lithotripsy done for my kidney stones. Like, they didn't believe that it was an actual surgery even though it wasn't invasive, and my doctor was \*furious\* when she wrote my excusal note. She gave me an extra 4 days off, she was so mad!**♥ 3source record 493 **I had to sort of ignore it while waiting a week for lithotripsy and it was this constant soreness. I could basically feel the shape of my kidney inside my body. Horrible.**♥ 3source record 494 **That's what doctors also say about kidney stones! Though I am childfree, I have had kidney stones several times and they are by far the most painful thing I have had. More than my back surgery, more than appendicitis and surgery to remove my appendix, (and that WAS painful too), but kidney stones are by far the worst! 😱😱**♥ 3source record 497 **Yeah honestly I think after your first two your pain tolerance just skyrockets. I have had 8, mostly smaller ones. My last one took 3 weeks to pass on its own and there were days I seriously thought about taking a knife and cutting them out myself. 😂**♥ 2source record 498 **I know what you mean. I though my time had come the first time I had one. BUT, is it a really an illness thought?**♥ 4source record 510 **It was worse for me than childbirth because, the first time I got them, I was actually pregnant and they didn't want to give me any drugs that might harm the fetus. At least I eventually got an epidural with the baby.**♥ 2source record 512 **The last time I had a kidney stone, I had to lie in bed all day so I needed a sitcom to watch. Decided to try the show "til death". The kidney stone was the second most painful thing that I experienced that day.**♥ 2source record 514 **I thought I had a very high pain tolerance, broken bones etc in the past - until I had my first kidney stone. Was vomiting and curled up on the ground for hours from the pain, is absolutely the worst.**♥ 2source record 515 **Had one recently not sure if its even passed to be honest. My pain was so specific in my left lower side of stomach. Woke me up at night and felt like a bad stomach cramp, thing is it didnt move. Arms and hands went numb tingling and I threw up a bit. Was yours similar feeling? I think mines now either gone or in bladder due to a weird sensation every once in awhile.**♥ 1source record 516 **(Screaming in the bathroom at work)…. “Ting !” I left the room, dripping in sweat, face flooded with tears. And the work EMT’s and a security guard were stacked up about to come in… they looked at me… “Kidney stone “. Every single person winced…. Patted me on the back as I tottered back to my desk.**♥ 2source record 517 **Went to the ER and got meds until it passed. Although my first kidney stone was too large to pass naturally and I had it for 21 days.**♥ 2source record 518 **More painful than my two unmedicated births. The absolute worst**♥ 2source record 520 **I just passed one last week! I've been battling a diabolical sinus infection and the doctor recommended electrolyte drinks...and I guess I overdid it lol. "Too much of a good thing" etc etc The last time I'd had one was my first semester of college :')**♥ 2source record 521 **It’s indescribable how bad kidney stone pain is**♥ 2source record 522 **Here I was thinking when hearing about kidney stones all my life that the painfull part of kidney stones is when you pee them out - like when the stone is bigger than your urethra. Little did know that the most painfull part is when the little fella starts moving out of the kidney. I woke up at 1am with an upset intestine, thought I ate something wrong and went to the toilet. Shortly after the pain started at the left side of my back and continued for the whole night - didn't know how to move or lie down to make it stop simply nothing seemed to help. Drove to the ER in the morning and they quickly said that's a kidney stone but because they did not have an urologist at hand they send me home with antibiotics and pain meds. During the next night the pain was so bad that I had to call an ambulance and the pain meds they gave me in the ER did not work initially - they kept proceeding to stronger and stronger ones and it wasn't until they pushed piritramide for the third time that my pain finally stopped - which I learned came from a renal colic... got to stay at the hospital for a few days which basically consisted of sleeping during the day and calling for pain meds the whole night. then they did eswl shock wave therapy and send me home again. Had to come back twice I think into the ER so they could give me stronger pain meds than they send me home with. All in all a pretty exhausting and painfull experience. Pissing the stone out itself in the end after 1+ week of pain did not hurt at all but fuck kidney stones**♥ 2source record 523 **When I worked in emergency I could diagnose a kidney stone just by looking across the room based on the way the patient was writhing in pain. Never had one myself thank fuck, but had a few patients describe it as much worse than childbirth (who had experience with both!)**♥ 2source record 524 **Just joined the gang last month but I was so lucky I need to play the lotto. Just one stone, it was small and it took a couple days to pass but only had some pain for around 10 minutes that barely cracked a 5-6 on the scale. It also seemed to break up as it passed into tiny sediment. Getting a CT scan on Friday to make sure everything passed OK but no issues since the event.**♥ 2source record 526 **Kidney Stone. Pain in my groin was off the charts then can the vomiting. I passed out at the ER. Surgery followed quickly. The pain came on very quickly and was relieved quickly once addressed.**♥ 2source record 527 **I told the nurse my pain was a 10 without hesitation. Felt like someone was twisting a knife in my side.**♥ 2source record 528 **Not to one up you, but I had stones and a kidney cyst burst at the same time. Felt like I was pissing bloody, microscopic sand for a month. You shouldn't be pissing out tiny chunks of flesh, ever.**♥ 1source record 546 **My Marine husband can suffer any pain without so much as flinching. He has an extremely high tolerance and discipline to get through it. But I have watched a kidney stone make that man crumple and unable to speak.**♥ 1source record 547 **It'll wake you from a dead sleep just to make you curl up in a ball on the floor.**♥ 1source record 548 **Definitely kidney stones.**♥ 1source record 549 **I ran in the hospital, threw myself on the admissions desk and yelled “I’m dying!” I was 20 and had no idea what was happening. Kidney stones are the absolute worst.**♥ 1source record 550 **Had a few of these a couple of years ago, and they. Sucked. Ass. Unbelievably painful, couldn't even sleep to avoid the pain. I was sick a few times from pain in the waiting room of the local a&e before a passing doctor noticed me and got me a room and some heavy duty painkiller**♥ 1source record 551 **Yep, unfortunately I have them all the time and last year was in the hospital over a week on drugs that they give people in the last days of their lives for pain. I passed one during a stage 10 kidney infection and was praying to die.**♥ 1source record 552 **Yep, have passed 4 over the years. It's a nightmare.**♥ 1source record 553 **Had them once and it was the worst pain I've ever went through.**♥ 1source record 554 **sepsis from infected kidney stones in both kidneys lmao**♥ 1source record 555 **I feel like being stabbed in the kidneys would be less painful**♥ 1source record 556 **This was what I was going to comment. They wouldn’t operate to remove it, just have to tough it out with pain killers.**♥ 1source record 557 **I've been hospitalized for them twice this year. They were likely caused by my pregnancy, so hopefully that won't be happening again. They're fucking awful.**♥ 1source record 558 **Can confirm. Just passed my third one in 16 months yesterday. One more to go if I don’t make anymore.**♥ 1source record 559 **Had several times, one I was 37 weeks pregnant! Having these in the USA is a joke, they don’t do anything for you other than give you painkillers and ask to come back in 7 days.**♥ 1source record 561 **The worst pain ever. Worse than birthing children**♥ 1source record 562 **I threw up and passed out from kidney stone pain on a Christmas Eve once. Unfortunately, three different doctors misdiagnosed me for two months prior so I was pretty sick by the time I had surgery. Both ureters were clogged and my kidneys were swelling because I was struggling to pass urine.**♥ 1source record 564 **Never had one but I hear they're right up there with childbirth.**♥ 1source record 565 **Yeah, this sort of reconfigured my own personal pain scale where stuff that I thought was previously a 10 was now more like a 7\. And before they gave me painkillers I would just sort of randomly vomit due to the pain....**♥ 1source record 566 **I passed it on my own - it was 6-7mm. I think the biggest difference is that labour pain comes in waves, and you can generally find some sort of relief by changing positions/walking around (I’m currently 39 weeks pregnant with baby #3). With kidney stones, there was NOTHING I could do to get any kind of relief whatsoever. Every position I tried to move into came with the same level of pain, if not more, and it’s completely relentless until your body randomly decides to pass it. I laboured up to 9cm with my first before any sort of pain relief and I was still joking through contractions. With the kidney stones, I had full body shivering and vomiting just from the pain.**♥ 2source record 569 **Hydrate, hydrate, hydrate! I drink 96 oz of water a day! after kidney stones gave me sepsis and nearly killed me. I don’t drink sodas, or caffeine; I drink straight water for hydration. Never doing that again!!!**♥ 1source record 570 **I have taught with them many times because writing a sub plan while passing a stone is more painful than going in. I mention it to my boss when I think it might be an interference and they usually don’t care.**♥ 1source record 571 **I’ve had both gallbladder attacks and kidney stones. Both were incredibly painful but kidney stones slightly more. It actually made me vomit and I couldn’t walk. Gallbladder was removed so I don’t have to worry about that anymore but I’m keeping my fingers crossed kidney stones never find me again.**♥ 1source record 577 **Ditto. Had four babies, three without pain meds or epidurals, and kidney stone pain was way worse. Worse than when my colon perforated too.**♥ 1source record 578 **As someone who's had both, the pain is different. My kidney stone was a heck of a lot smaller than yours, I had to pass mine. Still hurt like hell. Gallstones are painful and more random. There was more throbbing and pressure to the pain as well. Kidney stone for me was just this stabbing pain that felt like a knife. If I have to say which is worse, even with my relatively simple kidney stone issue, I'd say that was far worse. When I had my gallbladder removed, I was released a couple days after the surgery.**♥ 1source record 579 **I had both separately. Both were horrific, but the kidney stones are worst. You can dial back the gallstone pain some with a clear liquid diet until they are removed. Kidney stones will curl you in a ball, weeping.**♥ 1source record 581 **Ok, not to one up you but I had kidney stones and gallbladder at the same time. They operated on my kidney stones (both sides) which was miserably painful after surgery. They kept saying that I should feel so much better but I didn't. About a month later I was in bed feeling like I was being stabbed when everything started moving, I didn't get out of bed in time and left a trail of throw up and stool all the way to the bathroom. I threw up like I'd been poisoned. After the waterfall ended in the morning I went to my gp and they finally did an ultrasound of my gallbladder. Because I work at a school i put the surgery off for 2 weeks so I could arrange coverage. After that surgery they wanted to give me stronger pain relief than the kidney stone surgery but I declined because I felt really good.**♥ 1source record 637 **I had a very large stone, too big to pass and I ended up with 3 surgeries to rid me of it. The first Lithotripsy only broke it up, and all the small pieces got stuck and I had to back in to the ER and have another surgery to have them removed AND then, there was still a large piece stuck and so I had to go back in and have that one removed! That was a nasty stone. I had stones several times before that as well over the years! Thanks Dad, I inherited it from you...LOL! He had them too. I remember as a child the ambulance taking him away in the middle of the night, back in the 1960s. He had kidney stones! The other most painful condition I had was a kidney infection, no stones....holey moley...that hurt really bad too! 😱😱**♥ 1source record 674 **I get then from my dad too! My sister actually has it worse than Dad or me, she’s the lucky one. When my kidney shut down it was after they went to get a stone the surgeon thought he could pull one out of my kidney. It wasn’t just in it, it was attached to it. I woke up in more pain than I had gone in with but they sent me home. I spent the next day puking, so drugged up I could barely stand. My husband drove me back about 36 hours after and they admitted me. I don’t remember much but I was there for about a week.**♥ 2source record 675 **No way I could’ve gotten to 9, so props to you 100%. As far as the waves of pain thing goes, it makes sense. I might just be an intensity of pain person versus the amount of time I’m in pain. Peak kidney stone pain was equivalent to a medium intensity contraction. I’ve only had one kid and didn’t labor actively for very long, so I didn’t get to experiment with pain mitigation.**♥ 1source record 676 **I had both gallbladder stones and kidney stones (not at the same time). Kidney stones are worse. Even worse than an exploded gallbladder.**♥ 1source record 708 **They thought I was having a gallbladder attack when I went in for a kidney rupture due to a lodged kidney stone, worst pain I’ve ever felt**♥ 1source record 710 **Nope. From experience: Kidney stones.**♥ 1source record 833 **Do kidney stones count**♥ 2source record 1383 **Kidney stones**♥ 2source record 1385 **Kidney stone.**♥ 2source record 1387 **Kidney stone or abscessed tooth.**♥ 2source record 1388 **Same. I vividly remember crawling on the floor to get to my phone to call a relative to take me to the hospital.**♥ 1source record 1442 **Kidney stones.**♥ 2source record 1503 **Kidney stones. Not fun waking up at 3 AM, already doubled over in pain.**♥ 2source record 1504 **Kidney stone was brutal**♥ 2source record 1532 **A very spiky kidney stone. Potassium dropped dangerously low from some medication after a surgery. Kidney stone hurt for obvious reasons, the potassium drop......... imagine an 11yo laying on the floor unable to walk, sobbing like an infant begging to die. Was not a fun experience.**♥ 2source record 1546 **I had kidney stones. That is the only thing I ever cried with. Even child birth hurt, but not as much**♥ 2source record 1552 **Kidney stones**♥ 1source record 1560 **I think kidney stones are one of the worst.**♥ 1source record 1562 **Kidney stones**♥ 2source record 1565 **It's a draw between kidney stones and coughing so hard from Covid that I cracked 2 ribs.**♥ 2source record 1571 **Kidney stones**♥ 2source record 1581 **Yes Kidney Stones I'm 49 and they started at the age of 12 years old, it's been like 5 years since I've had an episode..but the pain can be so crucial that it will literally take yr breath away!!! And no unfortunately my middle daughter started getting them a few years ago but I pray neither of my other two girls get them!!**♥ 2source record 1592 **Kidney stone but then when they took the stint out a few days later I spiked a 104 degree fever, sepsis and almost died. Spent 12 days in the hospital. Not fun.**♥ 1source record 1618 **Kidney stones.**♥ 1source record 1629 **Kidney stone got stuck going into my bladder.**♥ 1source record 1647 **Probably the kidney stone, resultant surgery, then two weeks of having a stent in that made every moment not laying on my left or back painful the entire time it was in place. But a close second would be the time I got an injection in the heel of one foot. Searing pain until the numbing being injected kicked in, followed by a constant throb and burning sensation for the rest of the day after it wore off.**♥ 2source record 1664 **Renal colic and gallbladder attacks were worse than unmedicated child birth for me🥴**♥ 2source record 1679 **Kidney stone.**♥ 2source record 1682 **Kidney stone**♥ 1source record 1733 **I have degenerative disc's, arthritis, spinal stenosis and nerve pain and its not even close kidney stones is the worse pain I've ever felt**♥ 1source record 1734 **Kidney stones. They hurt as much as labor pains, but with no breaks in the pain.**♥ 1source record 1737 **It's a tie between kidney stones and shingles. Both are absolute nightmares.**♥ 1source record 1741 **Kidney stone the completely blocked the urethra.**♥ 1source record 1774 **Tossup between kidney stones (incredible pain for a day) or chicken pox as an adult skin itching agony for a week**♥ 1source record 1779 **Kidney stone**♥ 1source record 1782 **kidney stones 10 of 10 pain**♥ 1source record 1796 **I’ve had babies, kidney stones, gallstones/gallbladder attack, knee replacement surgery, and diverticulitis - and kidney stones win by a landslide. No fun at all!!!**♥ 1source record 1821 **Kidney stones!**♥ 2source record 1857 **Kidney stones**♥ 1source record 1884 **Kidney stones**♥ 1source record 1893 **Kidney stone. 0/10 would not recommend.**♥ 1source record 1896 **Cancer until the fucker was removed, but besides that damn kidney stones... Those MF's make you rethink purpose of life**♥ 1source record 1936 **Kidney stone.**♥ 1source record 1960 **Kidney stone— even ER fentanyl didn’t help. It was so weird to hear my sweat pouring off me and actually splashing on the floor as I suffered!**♥ 1source record 1967 **Kidney stones followed closely by diverticulitis.**♥ 1source record 1977 **Kidney stones**♥ 1source record 2027 **Kidney stones. Imagine breaking the sharp corner off of a razor blade, then slowly dragging it through your kidney as your body convulses and you dry heave.**♥ 1source record 2029 **Kidney stone- stuck in UVJ causing blockage causing hydronephrosis**♥ 1source record 2039 **Kidney stones**♥ 1source record 2076 **So far, kidney stone.**♥ 1source record 2081 **Kidney stones. Childbirth was extremely painful but I didn’t vomit from the pain but I did with kidneys stones.**♥ 1source record 2085 **Kidney stones. Pray for death like pain**♥ 1source record 2094 **Kidney stones 💯. I have had appendicitis, gall bladder attacks and 4 unmediated births. The kidney stones top them every one.**♥ 1source record 2098 **Kidney stone**♥ 1source record 2107 **Kidney stones. I’ve broken my back twice and the kidney stones still win. Especially since those tickets wouldn’t pass on their own and required intervention under anesthesia.**♥ 1source record 2119 **kidney colics 🥺🥺🥺**♥ 1source record 2162 **Kidney stone.**♥ 1source record 2178 **Kidney stone**♥ 1source record 2186 **Kidney stones. I wished I was dead. Like childbirth with no meds, but there’s no baby at the end.**♥ 1source record 2187 **Kidney stone or maybe shingles. Wasn’t drinking enough water, working long hours without breaks, and have never had a kidney stone since. The pain is said to be worse than childbirth because there are no contractions (I was throwing up from the pain). Shingles you can’t sleep (if you have had chicken pox you carry the virus for this). Uou can’t sleep because your skin feels like it is burning.**♥ 1source record 2219 **Sepsis and ecoli at the same time from an enormous kidney stone that got stuck.**♥ 1source record 2244 **Kidney stone at 6th grade.**♥ 1source record 2255 **Kidney stones**♥ 1source record 2283 **Kidney stone or blockage, unclear, while pregnant. Cause there’s nothing they can do about it. I would say my unmedicated 11 lb baby birth was more painful but it was shorter pain with a happy ending but kidney pain was longer.**♥ 1source record 2301 **Kidney stones so big I needed an operation.**♥ 1source record 2320 **Kidney stones**♥ 1source record 2336 **I have endometriosis, hEDS, chronic kidney stones, and had a failed epidural during the birth of my daughter. I live with chronic pain (I joke that on the VAS pain scale, it is pi - a relatively low number, but lasts forever) and have a pretty high tolerance for acute pain. I have 19ish tattoos and I fell asleep during 2 of them. That said, the most painful of the things I have experienced is, by \*far,\* kidney stones and/or acute kidney infection. I have only had an infection once, thankfully, and it was the first and only time I have ever vomited solely due to intense pain (being pregnant probably didn't help). Having a 17mm stone two summers ago was some of the worst pain I have ever experienced in my entire life, but regular-sized stones (like 1-2mm) are a bitch too. Stay hydrated, friends.**♥ 1source record 2338 **I had a kidney stone that caused a uti that caused sepsis. That was August and I’m still not 100%.**♥ 1source record 2341 **Kidney stone attack(s)... I've had 3 and they're not nice.**♥ 1source record 2373 **Kidney stones! Had an attack, go to ER, have xrays, shot up with demerol and sent home. Passed it about 3 days later. One month to the day another attack, go to ER, tell them of the previous stone. Doc sends nurse to retrieve previous xrays, looks them over and goes yep there it was. Wish I had a little forewarning lol. Needed lipsotripsy for that one. Had an attack of pleurosy about 30 years ago, was a close second to the stones. Hands down tho the stones were the worst I've ever experienced.**♥ 1source record 2375 **Kidney stone.**♥ 1source record 2391 **Kidney stones. The kind that can't come out. And when they do try, oh boy. I had to get them blasted like Asteroids so they'd come out. Then I pissed sand for days.**♥ 1source record 2401 **The top 2 answers in this sub are kidney stone and gallbladder attack. I’m one of the lucky few who has had both. They are both terrible with kidney stone being worse.**♥ 1source record 2446 **Kidney stone and trigeminal neuralgia.**♥ 1source record 2460 **Kidney stones. I am a male and I keep hearing that childbirth is less painful compared to having kidney stones.**♥ 1source record 2462 **Kidney stones. Stay hydrated lovely humans. Don’t go through it if you don’t have to**♥ 1source record 2465 **7mm kidney stone. Took me 5 months to wear it down to 6mm and passed it. I thought I would certainly die that day.**♥ 1source record 2479 **It's a tie. Either A) I had a large kidney stone that was mis-measured. I struggled to pass it on my own while pregnant and unable to take any medication. When I finally had it removed, they realized it was not 2mm. It was 11mm. Or B) Severe Mastitis (infection of the breast tissue) Right after delivering the baby. It landed me in the hospital for days, and it was absurdly painful.**♥ 1source record 2482 **Kidney stones worse than the meningitis**♥ 1source record 2493 **Kidney stones are beyond painful. I compare them with my wife giving birth except my pain lasted longer and shredded me when passed with only morphine to get by on occasion. They used an ultrasound machine after my 3rd attack to blow them apart, it was like my kidney detonated. Also migraines, nowhere to hide. Luckily only had them thrice when I was a teen. Trapped air in the upper abdomen can feel like a full blown heart attack. FML.**♥ 1source record 2517 **Acute kidney stone. Didn't know anything was wrong, until some moderate abdominal pain hit. Thought it was just a stomach ache, and then BOOM, crippling 10/10 pain. Luckily, I live close to a hospital and I told the ER nurse to get me some morphine STAT. Found out later that the kidney stone was obstructing my ureter causing me to become septic. That is why it was so painful so quick. I drink excessive amounts of water with lemon in hopes of preventing a similar incident in the future!**♥ 1source record 2525 **Kidney stones - got stuck in the ureter. Morphine did nothing for the pain.**♥ 1source record 2532 **Kidney stones. Unbelievably painful.**♥ 1source record 2568 **Kidney stones**♥ 1source record 2577 **✨kidney stones✨**♥ 1source record 2579 **Kidney stones**♥ 1source record 2592 **Kidney stones**♥ 1source record 2597 **Kidney stone. Everything else is no contest.**♥ 1source record 2598 **Gall stones, kidney stones, and mrsa at the same time.**♥ 1source record 2621 **Kidney Stones (2-3 per year). Some big, some small. Have passed out from the pain a few times (thankfully). Have had times where doctors/ER wont give me any pain medication. Also, not as painful, but close: frozen shoulder in my right side (I am right handed/dominant). Been going on for 2 years now and can only sleep on left side, but need a sleep aide to get to sleep. 3rd on the list (more gross than anything) is in the Navy \~2004, my entire boat got a SARS variant from overseas. It was a very rough ride back tot he US. Puke, snot, bodily fluids/solids everywhere. Other people have life far worse than mine, but thats my most painful.**♥ 1source record 2639 **Tie between kidney stones true burnout. Not the "I need a weekend on the beach" stuff. Moreso the "I was in bed for 2 years recovering" physically and mentally burnout. Second is an infected tear duct. It felt like sand in my eye. Third is pneumonia. I had coughed so much that it felt like someone was smacking me on the back with a pizza paddle. I couldn't move.**♥ 1source record 2648 **Kidney stones it weas worse than having 3 kids with no epidural**♥ 1source record 2659 **I've had several bouts with kindey stones (between 10-15), but the worst came on completely unexpectedly. I woke from a dead sleep at 2 am and thought I had been shot in the back. Of course it happened while my husband was out of town. I had to have a relative (who thankfully lived next door) come sit with my kids because I thought I could drive myself to the ER. (I wouldn't recommend that.) I made it 5 miles down the road before I had to pull over and call 911 because I was about to black out from pain. The last thing I remember is hearing the sirens approach. I woke up in the ER in a wonderful morphine haze and had surgery that morning.**♥ 1source record 2663 **Kidney stone**♥ 1source record 2681 **Kidney stones, bar none. Second, but much longer lasting (intermittently): sciatica.**♥ 1source record 2683 **Have to say kidney stone, but the recovery from gallbladder removal sucked hard for a few days.**♥ 1source record 2687 **Kidney stones, or ruptured ectopic pregnancy. Both horrible.**♥ 1source record 2693 **Kidney stones and a tonsillectomy at age 21.**♥ 1source record 2695 **Kidney stones hitting hard out of nowhere whilst 37 weeks pregnant! Cue spontaneous labour at the same time.**♥ 1source record 2703 **kidney stone. like a spear through my side.**♥ 1source record 2721 **Toss up between huge, stuck kidney stone;myocarditis and typhus(makes ever joint hurt)**♥ 1source record 2727 **Kidney stone**♥ 1source record 2729 **Kidney Stone**♥ 1source record 2730 **Kidney Stone**♥ 1source record 2731 **Kidney stones during pregnancy (twice)**♥ 1source record 2744 **Kidney stones 3 days before our wedding. Yes, we were virgins to....soooo..ouch. everything was fine on the wedding night.**♥ 1source record 2756 **Kidney stone, blockage + infection is a tie with C-diff. Diverticulitis in getting 14 inches of my colon jacked is a close third. Endometriosis weaving its way around my abdomen is a close fourth. I’m hella funny though!**♥ 1source record 2771 **Kidney stone + bladder infection**♥ 1source record 2785 **Kidney Stones**♥ 1source record 2794 **Had a Kidneystone about 8 years ago. Started out as a dull pain in my lower back which I thought was just a muscle ache. Worked the entire day with no issues. But as I got home the pain dialed up to 11\. Managed to get home and was rolling around on my bed like an invalid. Was lying on my bed for a good 2-3 hours before I decided to go to Hospital Somehow I managed to get into the car drive the 15 minutes to local ER. From there they poked and prodded me and then told me that I had a kidney stone and I had to stay until it passed. Thankfully they pumped me up with morphine and even then it was pretty painul. The stone finally passed at 2am and it was the greatest relief I've ever had. I've been told by friends and family who've have Kidneystones that the pain was worse than when they went through child labor.**♥ 2source record 2809 **Tossup between kidney stones and gallstones.**♥ 1source record 2825 **Kidney stones**♥ 1source record 2862 **It was shingles about 25 years ago until i got my 7mm kidney stone about a month ago. Drove myself to the ER.. they were surprised I made it.**♥ 1source record 2880 **Got to be a kidney stone. Couldn’t stand from the pain and genuinely thought it was my appendix going.**♥ 1source record 2923 **Kidney stone. Worse than childbirth. At least the pain from childbirth resulted in something cute. The kidney stone - not so much.**♥ 1source record 2927 **A kidney stone**♥ 1source record 2933 **Kidney stones, 3 freaking times with hydronephrosis.**♥ 1source record 2942 **Kidney stones.**♥ 1source record 2962 **Kidney stones, visit to the ER on Christmas Eve, begging them to knock me out.**♥ 1source record 2967 **Kidney stones, gallstones, migraines. All are horrendous!**♥ 1source record 2977 **I'm current dealing with my third kidney stone. The first two were the most intense pain I've ever felt, worse than childbirth.**♥ 1source record 2991 **Kidney stones. Pee was the color of Hawaiian Punch.**♥ 1source record 3011 **I've had kidney stones and gallbladder stones. Personally, I think kidney stones trump gallstones. They almost mimic each other during initial presentation. Gallstones didn't show up on a CT scan, only ultrasound picked them up. They were about to send me home on Tylenol before a friend suggested getting an US. Thank the lord she did.**♥ 1source record 3054 **Kidney stones**♥ 1source record 3060 **Kidney stone**♥ 1source record 3063 **Currently: Endometriosis and recurrent kidney stones In the past: I was born with kidney failure and recurrent kidney stones. Because my doctors where very good at ignoring symptoms the kidney stones grew to the size of golf balls and eventually blocked off my urinary tract. A few weeks later I had surgery to remove my kidney (they still didn’t know about the obstruction. The surgery was planned because of the kidney failure I already had). After surgery, the pathology report said my kidney had ruptured weeks prior, my kidney was severely necrotic and absolutely everything in my abdomen was inflamed bordering on sepsis.**♥ 1source record 3070 **Kidney stone for me. I never experienced pain like that before**♥ 1source record 3079 **Kidney stone. I went from canning tomatoes in my kitchen to in the hospital having it surgically removed in under 1 hours time. I vomitted all the way to the ER from the intensity of the pain. I have two children that didn't create that much pain giving birth. Definitely kidney stones.**♥ 1source record 3083 **I passed two kidney stones. The first one hurt more and I knew exactly what was happening for the second so I didn’t panic for that one.**♥ 1source record 3113 **12 mm kidney stone and second would be hand foot and mouth. I couldn’t walk because my feet were fully covered in sores. The skin on my hands felt like it was splitting open any time I bent my fingers. Then a lot of my nails had the audacity to fall off a few weeks after. All the skin on the bottom of my feet hardened like a shell and peeled off as soon as the virus passed and that took weeks to fully come off and the skin underneath was raw and pink like new baby skin 🫠 0/10**♥ 1source record 3131 **Kidney stones.**♥ 1source record 3137 **5mm kidney stone. I don't even want to talk much about it, it was the absolutely worst, and I thought I am going to die, had no idea what that excruciating pain in more than one way caused. Then - in the hospital - after the x-ray they said that I should pull my sweatpants down at the second x-ray, because there is something on the screen that does not belong there, possibly a button. Guess what it was... Morphine over night - it was already after midnight, next day fracturing via laser surgery. Since then, whenever somebody is really mean to me, I just say or think: "May you live in interesting times.." thinking about these few hours of pain.**♥ 1source record 3138 **Gall bladder and kidney stones, at same time, that was painful 😒**♥ 1source record 3151 **Kidney stone. That focker was only 2mm, but the pain made me wish i was never born.**♥ 1source record 3178 **Kidney stone at 8 months pregnant. 😭**♥ 1source record 3180 **Last May I had a kidney stone the size of a pea and it got stuck. I was literally screaming while on my bedroom floor. Then I got sepsis. Still recovering AND I have a new kidney stone. Ugh.**♥ 1source record 3182 **1\. Kidney stones Massive gap 2\. Arthritis 3\. Depression (acute phase thankfully)**♥ 1source record 3197 **Kidney stone, then Gout.**♥ 1source record 3204 **Kidney stones moving down the 2 ureters.**♥ 1source record 3206 **Two weeks ago I had a kidney stone that moved down into my bladder. That pain was intense. There was some blood when I took a leak. It then migrated down to the end of my urethra (I’m male) where it stuck. I could only pee in dribbles. Blood backed up into my bladder, so when I tried to pee, it came out all red for a minute then dribbled trine. Went to the ER and they scheduled me for emergency surgery the next day. Surgeon had me knocked out, then dilated me but it still wasn’t enough to pass the stone which measured 1.3 x 1 cm. I learned later that he had to push the stone back into my bladder and insert a Foley catheter. He then broke up the stone with a laser which then flushed out through the catheter. Sent me home with the catheter and said I could remove it the next day. Screw that - I deflated the 10cc balloon that held the catheter in (they instructed me on how to do this), then s l o w l y took the catheter out. I just wanted nothing inside me. Once out, the feeling was heaven. Urine was red/pink for a day and then back to normal. Pre-op attempts to pee was the worst pain I’ve ever felt. It was way worse than when I bloke my right pinky finger.**♥ 1source record 3239 **Kidney stones for me. My gallbladder didn’t hurt when I had cholecystitis but I was puking a lot. The kidney stones tho…the worst!**♥ 1source record 3245 **Kidney stones**♥ 1source record 3248 **Kidney stones**♥ 1source record 3259 **Kidney stone. Had my first one this past weekend. Oh wow that was definitely the 10/10 on that scale. Gallbladder stones come next. That one wasn’t as bad cause the pain stopped after a bit. My stomach ruptured. That really sucked mainly cause the healing after was awful. Then unmedicated child birth.**♥ 1source record 3268 **Physically, kidney stone Mentally, borderline personality disorder Personally, I'd take the kidney stone over the bpd if I had to choose**♥ 1source record 3277 **3cm kidney stone obstructing my only kidney from draining . I had to keep it in for 15 months, 8 of which I was pregnant, during Covid. 35 hospital admissions, nephrology tube placement while awake & pregnant, countless infections and ultimately sepsis**♥ 1source record 3288 **Passing kidney stones omg omg**♥ 1source record 3297 **Kidney stone. Worse than labor. Next is gallbladder attack.**♥ 1source record 3341 **Kidney stones**♥ 1source record 3354 **Kidney stones with almost 3 Months of DJ stent in my kidney/bladder**♥ 1source record 3368 **Kidney stones. I have a lot of chronic illnesses and have dealt with a lot of pain, but nothing touches that. The night I went to the hospital I was rolling around in my bed in agony. I finally got up and went to my roommates’ room to take me to the ER and when she opened the door I fell to the ground screaming. I screamed all the way to the hospital in the car and screamed when we got to the ER. I honestly could not do anything but scream and cry in pain. It was THAT BAD. They took me back immediately and after 3 doses of Dilaudid I was finally relieved enough to stop. I also had a really bad kidney infection (pyelonephritis) from the stone blocking my ureter. It took two surgeries, a week in the hospital and lots of antibiotics to recover. It still took a month or so after all that to return to 100%. 0/10 never get a kidney stone if you can avoid it**♥ 1source record 3373 **Kidney stones**♥ 1source record 3383 **Having had both kidney and gall stones…. Kidney stone. Even though gallstones required removal of the organ. Kidney stones were more painful.**♥ 1source record 3393 **1.1 cm kidney stone. I felt so sick, I vomited a lot--among other things--and was in so much pain. The kidney stone was so huge that they had to go in and blast it with a laser and remove all the pieces.**♥ 1source record 3394 **Kidney stones**♥ 1source record 3400 **Kidney stone. At one point I was in so much pain that my entire face (lips included) turned stark white.**♥ 1source record 3403 **Kidney stone**♥ 1source record 3422 **Kidney stones**♥ 1source record 3465 **Kidney stones**♥ 1source record 3495 **Kidney stone blockage**♥ 1source record 3498 **1\. Kidney Stones. 2\. Shingles.**♥ 1source record 3511 **Kidney stones**♥ 1source record 3534 **Kidney stones.**♥ 1source record 3537 **Kidney stones... thought i was dieing**♥ 1source record 3589 **Kidney stones, worse than child birth in my opinion.**♥ 1source record 3593 **The worst pain I’ve ever had was a 6mm kidney stone. Woke me up out of a dead sleep. The only thing that would touch it was morphine until I passed it. Do not recommend.**♥ 1source record 3602 **As far as the one I actually remember? Kidney stones. I've been in a terrible car accident where it took 3 hours to get me out of the car, the roof had to come off, 10 broken bones, broken femurs, tibias, fibulas, arms, ribs, pelvis, and that PROBABLY was worse... but I don't remember it. Recovery from the 9th orthopedic operation out of 10 after that accident is #2.**♥ 1source record 3608 **Kidney stones hands down and I went through a 36 hour labour without meds. Stones were worse**♥ 1source record 3652 **Kidney stones**♥ 1source record 3667 **Kidney stones**♥ 1source record 3678 **Kidney stone. One was enough. I hydrate like a fish now.**♥ 1source record 3686 **Kidney stones**♥ 1source record 3708 **I have had kidney stones 4 times. The 1st two were awful. The 2nd time they kept me in the hospital and, finally gave me morphine on day 2\. I was released on day 3\. The last 2 times have been very mild in comparison. The last time, I went on a 200 mile car trip a few hours after I passed the stone.**♥ 1source record 3710 **kidney stones! oh my god, kidney stones. i had one get stuck and kept having repeat episodes lasting 6-8 hours. it was once every few months, then every few weeks, then every few days. absolute nightmarish agony. the only relief i got was when i vomited from the pain, and that only lasted a few seconds. it was maddening.**♥ 1source record 3744 **Kidney stones were VERY painful!**♥ 1source record 3755 **Kidney stones**♥ 1source record 3778 **Kidney stones**♥ 1source record 3786 **Kidney stone, full stop. I’m 23 and I have had 3\. Hell on earth.**♥ 1source record 3798 **Kidney stones were bad. Spinal headaches after brain surgery sucked pond scum.**♥ 1source record 3824 **Kidney stones.**♥ 1source record 3869 **I had five or six kidney stones (maybe more) over a year and a half. My thyroid was not functioning well and the doctors said that was why. They were always too small to break up, I’d have to stay home each time with a bottle of hydrocodone, until they passed. Eventually my thyroid was removed and I only had one or two more.**♥ 1source record 3874 **Kidney stones**♥ 1source record 3879 **Kidney Stones.**♥ 1source record 3881 **Kidney stones**♥ 1source record 3885 **Kidney stones**♥ 1source record 3886 **Kidney stones......not passing them but them getting stuck in the ureter (tube from kidney to bladder)....I was literally writhing in pain..........worse than childbirth, and I have birth with zero meds or epidural (not by choice). Yeeeeikes it was awful.**♥ 1source record 3936 **Kidney stone 💯**♥ 1source record 3955 **Kidney stones were the worst. 2nd runner up was calcification on the tendon in my bicep. I had a double mastectomy, given birth 3 times and had rotator cuff surgery. They didn’t hold a candle to numbers 1 and 2.**♥ 1source record 3980 **Kidney stone.. i peed blood... Went immediately to hospital for ultrasound, found that my ureter blocked and swollen and it need urgent operation, can't find hospital that time because of covid surge. 😭**♥ 1source record 3981 **It's a tie between kidney stones and gallbladder attacks. Different types of pain. Both worse than childbirth.**♥ 1source record 3986 **Kidney stone. It was 15 mm and wasn't going anywhere. Surgeons cut into my back and kidney to get it out. I would rather have been in unmedicated labor with triplets. It was excruciating.**♥ 1source record 4017 **kidney stones**♥ 1source record 4034 **Kidney stones and appendicitis**♥ 1source record 4035 **Kidney stones! Much worse pain than being induced.**♥ 1source record 4078 **Kidney stones. All 3 or 4 times**♥ 1source record 4083 **Great, I have had kidney stones, gallbladder stones, gout, shingles and heavy headaches. I think I have had my share now.**♥ 1source record 4087 **Kidney stones or either diverticulitis, probably a toss up. I don’t care how tough a person thinks they are those two will put you in a fetal position.**♥ 1source record 4092 **Not really an illness but I get kidney stones about once every 2 years, and being an addict in recovery… this is the only time I will not refuse narcotic painkillers. I shattered my wrist once and had to have a plate and 6 screws put in it and I refused pain killers for reference**♥ 1source record 4107 **Hands down Kidneys Stones!!**♥ 1source record 4115 **Kidney stones while pregnant**♥ 1source record 4118 **Kidney stones**♥ 1source record 4127 **Kidney stone.**♥ 1source record 4129 **Tie between Kidney stones and shingles. Distant Third place is childbirth.**♥ 1source record 4134 **My fiance has an ill functioning gallbladder and has battled it his whole life and probably has kidney stones right now. He says the stones are worse.**♥ 1source record 4217 **Kidney stones suck. And it turns out they can kill you- blockages in both kidneys sent me into sepsis which they almost didn’t catch in time.**♥ 1source record 4218 **I have given birth by being induced without pain meds, had a gallbladder attack (and removal) and had kidney stones. Ill take anything over kidney stones.**♥ 1source record 4220 Archive: 273 index entries preserve 273 distinct source records · Every displayed synthesis count resolves to source-record IDs Gallbladder attacks and gallstones250 index entriesThe second largest, and the answer whose writers most often say they believed they were having a heart attack. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Gallbladder attacks and gallstones Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Gallbladder attacks and gallstones 250 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 24 **Appears when:** Gallbladder attacks and gallstones **What the pattern means:** The thread's second-largest group, and the one with the most distinctive shared vocabulary: writers repeatedly describe a sense of impending doom, believe they are having a heart attack, and end up on a bathroom floor. Two structural things recur. The first is delay — a large share of this group describes months or years of attacks written off as heartburn, reflux, stress or anxiety before a scan was ordered. The second is the comparison with the operation: writer after writer says the surgery was easier than the attacks that led to it, several of them adding that they felt better the following day. **What commenters described:** When I had my gallbladder attack, all I can describe it as is pain that feels like impending doom. Like I really thought I was going to die that night. It was also during Covid quarantine and ain’t no way I was going to the ER so I just curled up in the fetal position on the cold tile of my bathroom floor and made peace with my so thought fate. On top of that were other symptoms like my whole digestive system felt like it was cramping in synchrony, indigestion pressure that felt like an elephant was sitting on top of me, throwing up straight bile, and sweating uncontrollably. **Limit:** How long each writer waited for a diagnosis shapes these accounts as much as the condition does, and the group contains its own dissent — at least one commenter declines to rank the pain highly at all. Drugs, diets and operations named here are what individual people say was done in their case; none of it identifies a gallbladder attack or tells anyone else what to do about one. What replies pushed back on5 You're a woman! Have you tried not being so hysterical? Maybe finally try losing that baby weight?? Meditation??? I was the opposite, sitting in the lobby with two broken arms, calm but dirty after a fall. The male doctor told me I'd \*possibly\* sprained them because obviously I wasn't screaming in pain. Hey guess what? Two broken arms! I'm just super calm in an emergency but somehow react like I'm being hunted for sport if I have to make a phone call. Pushback♥ 256 I had it a few months ago and having it out was waaaay better than risking another attack. And the recovery was not bad at all. My hernia surgery a few weeks ago was way worse. But still ok. Pushback♥ 2 I had both gallbladder stones and kidney stones (not at the same time). Kidney stones are worse. Even worse than an exploded gallbladder. Pushback♥ 1 When I had mine, I was on vacation in another state and I thought I had food poisoning. The pain was not typical Upper right quadrant . My whole abdomen was in knots. I put it off for three days, the couldn’t stand it any more and went to the ED. It was about an hour from the time I walked into the ED till I was in the operating room. It was gangrenous and fell apart when they tried to remove it. Needless to say, I had to stay in the hospital longer than I wanted. W Moral of the story, don’t ignore the pain. Reported failure♥ 1 A broken gallbladder. Before that, I would have said a burst ovarian cyst, but no - a gallbladder that was actually broken, literally non-functioning, was the absolute worst. I remember being doubled over in my kitchen, wishing to just pass out, hoping to not throw up... recovery sucked horribly, but only half as horribly as the Broken Organ sucked. Oof. Childbirth labor and a c-section do not even compare! Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint i had mine removed one month after i had my first kid too! i was actually having gallbladder attacks while i was pregnant but i thought it was heart burn because i never had heart burn a day in my life. they told me i needed surgery the next day but declined because i had finals and didn’t want to miss them, that didn’t work lol i missed my finals source record 615♥ 2 Explicit limit or counterpoint Mine was bad but (unfortunately) not the worst for me source record 603♥ 2 #### Source-record spotlights Most engaged source Gallbladder attack source record 20♥ 1,519 Later-arriving source I’ve delivered 4 babies, one without meds. None of them compared, even remotely, to the pain of a gallbladder attack. posted about 5 days after the source♥ 1 Low-like source Gallbladder attack was followed in severity closely by a burst appendix. Both attacks were so painful that I almost passed out. posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [Shingles, and the nerve pain it leaves behindAttach it to an existing routine · 9 there](#rich-node-0-group-3-subgroup-0-shingles-and-the-nerve-pain-it-leaves-behind)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis) #### What the counts show Across 250 source records, the most common observable tactic structure is “Attach it to an existing routine” (21 records). This is a wording pattern, not a measured outcome. 250index entries 250distinct source records 41.4%of parent category 6.7%of the complete index 82top-level comments 168replies #### What commenters explicitly report 2explicitly reports a benefit 5explicitly reports a limit or failure 17asks a question 0says they intend to try it 226other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **21**Use a sensory reset **7**Turn it into a game **6**Create a default **5**Change the sentence **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments250 preserved records · 250 of 250 source records accounted for **Gallbladder attack**♥ 1,519source record 20 **My first one had me in the ER in tears, took multiple doses of morphine before I could talk coherently. It was my first and only attack as I decided to get mine removed because I was so scared of it happening again. The attack was 100x more painful than the surgery**♥ 511source record 21 **When I had my attack, I wanted to call the surgeon but it took half an hour before I could speak. I was on his surgery list due to a large gallstone they had found while doing an unrelated scan (I had no symptoms), and he said if I ever had an attack, to call him. When I called him, he said “It’s time, huh?” The surgery was a piece of cake.**♥ 307source record 22 **When I had my gallbladder attack, all I can describe it as is pain that feels like impending doom. Like I really thought I was going to die that night. It was also during Covid quarantine and ain’t no way I was going to the ER so I just curled up in the fetal position on the cold tile of my bathroom floor and made peace with my so thought fate. On top of that were other symptoms like my whole digestive system felt like it was cramping in synchrony, indigestion pressure that felt like an elephant was sitting on top of me, throwing up straight bile, and sweating uncontrollably.**♥ 133source record 24 **Yes that impending doom feeling and unrelenting chest pain made me think I was having a heart attack. But as others said, surgery was a piece of cake and no residual problems or dietary restrictions.**♥ 8source record 26 **it’s not even just that. when it’s really inflamed you can feel it pressing against your spine when you breathe. it’s really just a whole torso experience**♥ 11source record 28 **My wife had gallstones a few years ago. In under 6 hours she went from "feeling a little gassy and bloated" to an 8 on the pain scale and still rising.**♥ 4source record 29 **So weird because I did the same the first time, I made peace and curled up, thought my appendix had burst but for some reason it was too painful to do anything about it! Nearly 2 years gallbladder free, every woman in my family has had the op**♥ 7source record 30 **I felt the same way post gallbladder removal. I couldn’t believe what a breeze recovery was compared to the pain I was in. I didn’t even need the painkillers post-surgery. I was able to manage the pain with ice packs, Tylenol, and Ibuprofen. Gallbladder attacks are no fucking joke. The pain is unreal. Because I waited to get it out (at the advice of a terrible doctor) I also ended up with pancreatitis which was I thought was going to kill me, the pain was so intense. It put me in the hospital for 5 days on a constant IV drip. Don’t wait to get your gallbladder out. Get it out after the first attack - it is truly not worth waiting.**♥ 74source record 32 **Or if you are unlucky like me, get yours removed 4 years after your first gallbladder attack because of a misdiagnoisis! You get to turn yellow and piss orange fanta!**♥ 14source record 33 **I was told I had anxiety and stress I needed to learn how to manage. Took pancreatitis and an infection in my liver due to gallstones passing through them to finally diagnose me with gallbladder disease.**♥ 5source record 34 **On my wedding day our pianist graciously performed through our wedding ceremony, THEN excused himself to say he wasn’t feeling well and was going to see his doctor. Turned out it was his gallbladder, which he had to have removed and spent a week in the hospital for it! Sweet man prioritized our wedding over his own health. Happily he survived it!**♥ 3source record 36 **Just had mine out a couple of months ago. The post surgery pain was like a picnic. The nurses kept questioning how I felt so good literally just hours after surgery. Easy, because I had just felt the gall stones a day before.**♥ 84source record 37 **I had one a month after having a child and had no clue what was happening to me. I hate attention but I was doubled over and yelling in the ER waiting room so all eye were on me. A teen came in after me with a sprained finger. He was sitting there unbothered, laughing, playing a card game with his family, and they took him before me. I was so pissed.**♥ 157source record 41 **Had my gallbladder out 3 months PP after going into the ER puking stones up. The surgeon was giddy because apparently him and a nurse had a bet on how far PP I was when they saw my age/gender and gallbladder attack**♥ 44source record 46 **Samesies, it was genuinely the worst pain I’ve ever experienced. Again 3 months postpartum and I didn’t add it originally but I had a 2 hour labor start to finish completely unmedicated so that was so fresh in my mind too**♥ 10source record 48 **Passed numerous gallbladder stones before they removed it all together. It ranged from mild discomfort that I could anticipated and plan, to buckled over like there was a knife embedded in my gut. And there's not a damn thing you can do about it.**♥ 41source record 53 **I just had my first one two nights ago since being told I have gallstones earlier this year. Felt like I was dying.**♥ 35source record 54 **This. Had one at work, didn't know what it was, couldn't belive the pain. Couldn't talk, couldn't think, people around me got very concerned. Had it out a few months later, but lost 2 stone in between due to the very low fat diet. I have a friend who had a very difficult birth with her daughter and has also had gallstones and for her the gallstone attack pain was of a similar level/intensity Can't compare myself, wrong sex for giving birth.**♥ 22source record 56 **Same. Had my gallbladder out two years ago. It got so bad pain wise I genuinely considered offing myself.**♥ 19source record 57 **Gal bladder pain is the only thing that brought me to tears as an adult. And I’m a living train wreck.**♥ 6source record 58 **Literally sitting in hospital after an attack, opened this thread to see if I was being a coward or is it really as bad as I think it is. My latest attack was Saturday night and I still can barely move, lol. Get this shit outta me. First time I had an attack I hadn’t been diagnosed and I genuinely thought I was having a heart attack. Rang my mother and said “I’m so sorry but something is seriously wrong”, had the entire family in a panic. Oops 😅**♥ 42source record 61 **Is it really a breeze? I'm having gallbladder removal surgery tomorrow and I'm so anxious about recovery and post op pain. Edit: I also agree a gallbladder attack is the worst pain I've gone through, worse than labour imo.**♥ 13source record 63 **Same, ended up in surgery to remove my gallbladder with a 2” stone blocking my bile duct. 3 days in the hospital hooked up to an IV with antibiotics as my GB was toxic.**♥ 15source record 66 **same, mine ended up being infected and I had to go in for surgery. Its a blessing having that damn thing out of me.**♥ 8source record 67 **i remember when my mom had hers removed, she was in so much pain too. she missed seeing janet jackson in concert and was so sad. many years later i was able to take her to see janet! ♥️**♥ 7source record 68 **Everyone is different. I’ve had both and gallbladder was way more painful.**♥ 5source record 70 **Gallstone the size of my index finger. Was legit thinking I was dying from the pain. Couldn't do anything but froth at the mouth. Docs said it was "stress" for a year, then, when it happened two more times,they finally did a scan and were mortified by the number and sizes of the gallstones...**♥ 5source record 401 **When my gall went belly up**♥ 5source record 423 **Gallbladder attack which caused pancreatitis while I had a kidney stone.**♥ 3source record 456 **Gallstones**♥ 3source record 458 **Haha exactly, my surgery was finished 8 Pm, at 02am I was dancing to LA woman by the Doors in my Single-occupancy room at the hospital! But 2 Night before the surgery.. oh my i had one Night of the worst pain, the most uncomfortable feeling.. a Night in hell.. nothing less.. But after the surgery.. no problem**♥ 3source record 495 **Sorry to hear that, I got lucky and it was caught before anything catastrophic happened. I got told it was anxiety that first time and then I would get attacks about every 3 months. Some required urgent care visits while some went away if I did certain things. It was also diagnosed as GERD and other acid reflux type things. It seems like doctors just dont even know what gallbladder issues even look like.**♥ 3source record 505 **Mine was misdiagnosed as GERD, too, even though the ultrasound showed gallstones. When I asked about the stones, the doctor said, “Oh, everyone gets those. Don’t worry about it.” 🙄**♥ 2source record 506 **After this post today, I was actually wondering if I was experiencing a gallbladder attack. I can remember each of these instances because of how painful they were. Some of these were 20 years ago, I remember them. I thought maybe I experiencing a gallbladder attack. Would the symptoms improve completely after 20-30 minutes? None have put me in Emergency room, but still extremely painful. I try to look up my symptoms online, they felt like intestinal cramping that lead to sweat, nausea, about to pass out. Then it resolves and I am fine again.**♥ 3source record 507 **When I was having gallbladder attacks it would last for hours. I had problems for 8 years because I complained about feeling like I was giving birth from between my shoulder blades. Uncontrollable vomiting, sweating buckets, and just PAIN that left me curled up on the floor for the entire night. But because I had it radiating into my back docs kept telling me to do ab crunches to prevent back pain. Finally realised it might be my gallbladder and specifically asked about it, got checked, straight into hospital for surgery because it looked like a bag of marbles in the ultrasound. I don't know if gallbladder attacks can completely resolve after 20-30 mins. It's worth getting checked though, and if that's the problem you've been lucky to get that short!**♥ 10source record 508 **My gallbladder attacks would range from half an hour to full days so it certainly is possible. Edit: wasnt done yet. Your previous comment sounded very similar to how I experienced the attacks. I thought it was painful indigestion, my grandparents thought I ate too much. I would curl up on the bathroom floor with my back against the cold bathtub all night and prayed I would throw up and the pain would end. I wound up going to the urgent care and they poked my stomach and said “yep, thats your gallbladder.” If you poke the upper right quadrant of your stomach thats where it should be, the pain can radiate into your back but thats where it will concentrate.**♥ 2source record 509 **I was sad because as soon as the anasthetic wore off after my gallbladder removal, my "gallbladder" pain was still there in the exact same spot🥲 I don't get attacks anymore but still have that constant dull ache even 8 years later.**♥ 2source record 529 **My surgery to remove it was too! I finally got relief from the constant throwing up. I only had one attack but when my doctor finally sent me to have an ultrasound there were too many stones to count.**♥ 2source record 530 **Pretty horrible but the smaller stones are what usually cause bigger problems ( excuse the pun) due to the blockages in the capillaries, etc, which is why some people ( like myself) go yellow.**♥ 2source record 532 **That was me as well, essentially. One of my first worst attacks was on my wedding anniversary in 2023, and my hospitalization to remove it was on my anniversary in 2026 😅**♥ 2source record 535 **I also thought I was going to die each time. It happened to me at least 10-12x before I finally went to the doc for it, they had to give me injections of Dilaudid in my ass. On the way to the doc, I told my sister I knew I was dying. To me, there was absolutely no geting out of that alive.**♥ 2source record 536 **Holy hell you just quite literally described how I felt the night my gall bladder died and I thought I’d also die. I am as in hospital for a week after recovering because the dead gall bladder blocked the common bile duct which then backed up into my liver and that organ also decided it was time to jump ship. Fortunately my liver recovered post removal of said necrotic GB. Took me. few months to fully feel myself again Wild ride and man no one has ever described that feeling of doom quite as well.**♥ 2source record 537 **I also thought I was gonna die during my first attack! 😭**♥ 2source record 538 **Are you me? This was my exact experience. Also during the beginning of Covid lockdown.**♥ 2source record 539 **Ugh same, so many attacks that hit you like a freight train and drop you to the floor. I had retained stones after the gallbladder removal and ended up with Pancreatitis. It’s like having an anaconda squeeze you 24/7 + a gallbladder attack + having red hot knives driven under your shoulder blades all at the same time**♥ 2source record 540 **When I’d get biliary colic, I straight up wanted to die, the pain was so bad. Easily the worst pain I’ve ever had, and I’ve been through a lot of painful things!**♥ 2source record 541 **Yep same! Stress, anxiety, and period were the problem and not the 1.5” diameter stone blocking my bile duct. I guess I should have meditated the stone away 🙃**♥ 2source record 542 **Excellent explanation. Everything was one big crampy ache. The problem was that there was absolutely nothing I could do to alleviate it. meds didn't help. I couldn't get in a more comfortable position - there wasn't one. I just had to ride it out until it decided it was done. I lived with that for about 9mos because they "weren't sure" that's what it was. I wasn't sleeping, wasn't eating, I was just miserable. About 3mos after my surgery I remember crying to my mom because I felt so GOOD. I really didn't know just how bad I felt for so long, until it was over. I don't wish that on anyone.**♥ 2source record 544 **i cannot imagine. they had to take mine out immediately because i kept losing consciousness and couldn’t breathe. you’re a trooper seriously**♥ 2source record 545 **Due to insurance, I had to live with the pain for a month, until I went to the er and they found out it was starting to affect my liver. I was living off mashed potatoes and fat free pudding.**♥ 1source record 573 **It differs per person. I had two attacks. Both felt like a steel band tightening around my upper stomach and back. I stayed up all night because I couldn’t even breathe without pain. I took Vicodin and it didn’t even touch it. After the second attack happened, I got in for an ultrasound within 2 days.**♥ 1source record 576 **I've had both and gallbladder was astonishingly, blindingly so much worse than my kidney stones.**♥ 1source record 582 **Came here to say this. Nearly lost consciousness from the pain. I was too young for anyone to think of gallstones so I got to enjoy these attacks randomly and intermittently for nearly a year. I’ve had multiple mothers tell me they’d take childbirth over gallstones in a heartbeat, which seems wild to me but I guess there’s no epidural for this.**♥ 3source record 584 **I had no pain from my gallstone. It was not large, but it was sharp. It punched a hole through the gallbladder wall and up into my liver. Still no pain. But a gradually increasing fever drove me to the ER, where they brought in a surgeon in late Saturday night to put a drain in. They took a half liter of pus out of me. I was septic. Strong IV antibiotics. The post surgery abdominal spasms were excruciating. Went through 8 types of painkillers to give me relief. Surgery was Da Vinci ‘robotic’ VR procedure. I made the mistake of reading the surgery notes. “…used blunt and sharp techniques to relocate intestines to access the gallbladder.” Turns out your intestines Don’t Like That.**♥ 3source record 585 **Mine failed 4 months PP. I had no idea what was going on. Eating Burger King triggered the first attack and I’ve never eaten from there again, even though said child is now 17.**♥ 3source record 586 **My mom’s was also brought on by eating Burger King! Though this was many, many, many, many years after having children. She stopped eating there too, lol**♥ 1source record 587 **Ugh. The gut knife is so real. I've never been stabbed, but can't imagine it being worse that gall blockage.**♥ 3source record 589 **YES. I was sobbing and screaming on the floor doubled over onto my wheelchair and they were not just ignoring me but one nurse came over to tell me off about “making a fuss” and further antagonize me. 8+ hours of it. Ended up having the thing removed. Pain on par with child birth. But for that I got pain meds in a much kinder, more time sensitive manner.**♥ 3source record 591 **Of course, everyone's experience is different, but I had mine out a couple of months ago immediately after an attack. The attack started around mid-day on a Sunday and it wasn't until \\\~7 or 8 pm that evening that they finally had given me the right mix of painkillers to alleviate the pain even slightly. Comparing what I went through in that 7-8 hours to what I went through after surgery was in fact a complete breeze. This was the only surgery I've had as an adult, so I don't know what other surgery recovery might be like, but when I got out of surgery they told me I had to do 3 things to get discharged. One, consistently hit the mark on the lung sucker thing (sorry don't know what it's actually called), two, be able to get up and move around on my own and three, have a bowel movement. The day following surgery I was hitting 3/4 of the way up on the lung gauge, I did over 15k steps up and down the hall of the recovery floor and once they let me have solid food I got as much fiber as I could, salad, steamed broccoli, raisins (because I asked for prunes and they didn't have them), etc. from the kitchen and ate every last bite of that stuff because I was ready to go and needed to check those boxes. I also refused the opioids from the moment I could ask not to have them anymore. The pain was nothing compared to what I had just gone through and I felt better not having those. So, to answer your question, yes, the recovery felt like an absolute breeze.**♥ 3source record 592 **Pro tip- make sure you ask the surgeon if they will look for rogue stones in your ducts. I didn’t and, well, ended up in emergency surgery 2 weeks later. I thought I was losing my mind because it felt like a gallbladder attack again. The surgeon’s office told me to take Tylenol and I’d be fine. I ignored them and went to the ER. When I had my initial ultrasound after my 2nd attack, the tech said she had 3 babies with no drugs and would do that any day compared to a gallbladder attack. She then gave me permission to cry. Ha. Good luck!**♥ 3source record 596 **Mine was bad but (unfortunately) not the worst for me**♥ 2source record 603 **Literally in the ER right now for one I concur**♥ 2source record 604 **I came to say this!! I suffered from November 06-September 07 when I finally got surgery for the huge gallstones. I was 29 and had a 3 year old and I legit thought I was having a heart attack and going to die. And afterwards any time I ate something greasy...I wished I did🤣🤣**♥ 2source record 605 **My Mom had terribly painful gallbladder attacks when she was younger and got hers removed. Mine was only causing a rolling gas feeling in my chest and stomach, but because my Mom recognized the early symptoms I was having, I fortunately had mine removed before it was too painful. It was wild to see the difference between our scars, hers was about 6 inches long (done in the late 70s/early 80s). Mine was done laparoscopically and I only have one 2 inch scar and two 1 inch scars below it. Edited: done in 2008/09 or so.**♥ 2source record 606 **My first one was so bad I literally thought I was going to die. I had never felt pain that bad.. it hurt so much I could not even cry.**♥ 2source record 607 **Was going to write this too. Drove myself to the ER. should have called an ambulance. Had to stop and throw up half way there. I was shaking with pain. Couldn't talk.**♥ 2source record 610 **I was in the er for who knows how long because time was not something my brain could comprehend due to the pain.**♥ 2source record 611 **The pain after the surgery was lesser than the pain BEFORE the surgery!**♥ 2source record 612 **I got a whole ton of dilaudid for the pain. Released from the er after that and scheduled the surgery.**♥ 2source record 614 **i had mine removed one month after i had my first kid too! i was actually having gallbladder attacks while i was pregnant but i thought it was heart burn because i never had heart burn a day in my life. they told me i needed surgery the next day but declined because i had finals and didn’t want to miss them, that didn’t work lol i missed my finals**♥ 2source record 615 **Me too. Oxycodone didn’t even touch it.**♥ 2source record 616 **I wasn't even that bad and the ER was like, you want it out tonight or tomorrow morning? Neither, I had a trip planned that weekend! I scheduled for a month later.**♥ 2source record 617 **Late last year I was having consistent episodes of extreme abdominal pain almost every night for 2 weeks, vomiting, shaking, and crying from pain, but I couldn’t get help because my husband was deployed and I had two young children with no family or friends to take care of them within 1400 miles. My sister was planning a visit and I told her that if it happened after she got here then I was taking an uber to the ER no matter what time it was. I woke up at 1 in the morning on her first night here in so much pain that I couldn’t stand up straight and I could barely move my legs so I woke her up and ordered myself an uber. Got to the completely empty ER and projectile vomited 3 times and was still forced to wait almost an entire hour to be admitted. There was not a single other patient in the waiting room and only 4 other people who had been put into rooms after being triaged. Was finally helped and given fentanyl and given a CT scan. Turned out I had a gall stone stuck in my bile duct for probably almost those entire time I was in pain which caused it to be extremely inflamed. I had my gall bladder removed the next afternoon and then later in the night I woke up feeling sick and my blood pressure had dropped dangerously low. They got me all fixed and everything was good for a few hours. Later in the morning when my new nurse was trying to get me up and moving, and after standing for less than 10 seconds I almost passed out. My blood pressure had dropped even lower than before and it was so low that I could’ve died if they hadn’t gotten it back to normal so quickly. I was immediately moved to the ICU. I was stuck there for another 4 days before they self comfortable enough to let me go home, but my surgeon and the nurse who was there for me during my second drop in blood pressure must’ve told me how shocked they were and how lucky I was that my heart wasn’t affected or damaged at all during those episodes. It was a horrible, long recovery which was so so so much worse than recovering from either of my c-sections, but I’m all good now!**♥ 1source record 636 **My dad had his removed like 30 years ago. He said the stones were like nothing you could ever imagine.**♥ 1source record 638 **When to comment this and it was the first comment! So validating. I was 17 at the time and completely fainted in the ER from the pain.**♥ 1source record 640 **I had my first gallbladder attack when I was pregnant. First it was morning sickness, then heartburn and acid reflux to GERD. Finally got an ultrasound tech to look and my gallbladder was full of stones. I was in pain and sick for my entire pregnancy and they just swept it under the rug. I thought I was going to die I was in so much pain**♥ 1source record 641 **Man, my dad died from that.**♥ 1source record 642 **I started with gallstones at the age of 12\. Started off as ‘eggy burps’ and indegestion. Then at 13, turned into full blown gallbladder attacks. Due to my age, I wasn’t taken seriously. Was told it was indegestion, period pain or ‘stress’ and I rode it out. Over the years it got worse, to the point drinking water triggered an attack and it was daily. My GP was adament it was ‘in my head’ and I was over reacting. In the end, I went to A&E where the Dr insinuated that I was ‘probably pregnant’ which caused my dad to meltdown and kick off at me (was 16 at this point). When my pregnancy test was negative, he said it was ‘probably too early on’ despite me saying I was a virgin (I genuinely was!) and it had been happening for years, and at this point I vomited a lot of bile on his shoes. This got me a ultrasound and bloods done at last, which showed my liver to be very off and a gallbladder ‘full to the brim’ of gallstones. That’s when I started getting appropriate pain relief. Got it removed 4 months later and despite some bile salt malabsorption, it’s 100% been worth it! I would rather give birth (back to back) unmedicated again than have a gallbladder attack. 100%. The pain of birth didn’t touch the sides compared to my gallbladder attacks. Somehow I manned it out, and I do have a higher pain threshold now. But it’s the worst and most painful thing I have ever experienced.**♥ 1source record 643 **I had like 4 attacks before i was convinced that they should cut it out.**♥ 1source record 646 **Oh God my son had that, I couldn’t believe the pain he was in.**♥ 1source record 648 **They gave me some shot of pain meds, came back later to ask if I was still hurting. I said it's not pain it's BURNING MAKE IT STOP. Got dilaudid. That was the only thing that helped. Absolutely the worst pain - and I've had 2 kids.**♥ 1source record 649 **Agree, didn't know what the hell was happening and thought it was related to giving birth a month or so before as it felt like labour pains! Don't know how I managed to drive myself to the hospital 😵**♥ 1source record 654 **I honestly thought I was dying when I had my first attack 😭**♥ 1source record 655 **I came here to say this too. I woke up feeling hung over but had nothing to drink. Within 30 mins I couldn’t stand up, I was pouring sweat and so nauseous but I couldn’t vomit, even when I tried to force it. I thought I was having a heart attack.**♥ 1source record 656 **Same thing happened to me. I woke up for work, puked, felt horribly nauseated but went to work thinking it was a hangover (4th of July weekend). By 8:45 I couldn't stand up straight. Drove myself to the ER, which was miraculously empty, got some sweet sweet drugs, went off to surgery and my husband got dropped off at the hospital and drove me home. I was home by 5!**♥ 1source record 664 **I had my first attack while I was pregnant. I was in absolute agony! I had no idea what it was so I went to labor and delivery. After checking the baby and baby-making parts they go, “Well the baby is fine” and sent me home. It wasn’t until after I had the baby that someone suggested a scan of my gallbladder.**♥ 1source record 666 **Wow I just posted a similar comment, my first attack was a few weeks after giving birth. They didn't even diagnose it then though because they listened to me when I said I thought it could be related to the birth. I thought I might have retained part of the placenta or something. They are meant to be the experts though and I had all the risk factors 🤦‍♀️ That sucks they kept you waiting when you were in so much pain.**♥ 1source record 667 **Seriously though. I almost passed out when mine started. Tried not to panic as my family panicked lol. Couple of pain shots later and couple of trips to the bathroom was able to semi-function. Soooo sick for 2 days later and total zombie mode.**♥ 1source record 669 **When I had my attack the morphine didnt hardly touch the pain. Was so glad to be rid of it. Years later my wife had an attack, in the E.R. watching tests run...dawns on me she looked like I did when I had my attack...yup, gallbladder. We have both had them removed**♥ 1source record 670 **It is absolutely awful. It did let me try a variety of pain killers I'd never try otherwise in Ireland.**♥ 1source record 671 **My first attack felt like a crushing pain between my shoulders and also like constant contractions on my right side. The pain is relentless and intense and you pretty much just have to ride it out and be nauseated and pouring sweat and crying until it subsides. (Which could take up to an hour if not longer.) It definitely isn’t a good type of surprise! I was eating white chocolate when I had my first one and I can’t ever eat it again. Greasy, heavy, and sugary foods were always the trigger. I pretty much ate a bland diet until I got it out because I was terrified of having another attack. If it happens, demand help for it and don’t take no for an answer from your doctor. It legitimately will only get worse as time goes on.**♥ 1source record 679 **Same. And I have stage 4 breast cancer and barely feel a thing. That gallbladder was a bitch.**♥ 1source record 680 **I have birthed a child, I have been bleeding out on the inside post partum. Yet the worst thing I have ever experienced was an infection in my gallbladder due to a stone that was stuck. I'm happy I got that shit out of me so it can never happen again. Fuck you gallbladder!**♥ 1source record 684 **Honestly I don't know what was worse, the gallbladder attacks or the muscle spasms post-surgery! Either way, the whole gallbladder saga is the worst pain I have ever felt.**♥ 1source record 687 **I had that during a final exam in college. Just fell over mid exam. Thank goodness I was an exemplary student, because they let me finish that shit later without penalty or anything.**♥ 1source record 688 **Myv1st attack woke me in the middle of the night, I genuinely thought I was either in labour or about to die 😂**♥ 1source record 689 **There was a couple times where I was up all night lying on the bathroom floor so I could vomit bc I was in so much pain.**♥ 1source record 690 **Definitely the worst pain I’ve experienced. Started with milder attacks then at its worst I was doubled over in the ER with the doc recommending immediate surgery. The pain felt like someone was wringing my stomach with both hands while someone else was punching me in the back. It was constant unrelenting pain. 😩**♥ 1source record 691 **This. The last attack I had before getting it removed was the only time in my life that I've thought something might actually kill me. Even childbirth didn't do that to me.**♥ 1source record 692 **My husband had it, it was so painful to see him through it**♥ 1source record 693 **I was 8weeks pregnant when I went to the er with a gallbladder attack. I couldn’t have any pain meds. Had surgery when I was 15 weeks pregnant and same thing, couldn’t have any pain meds after the surgery. Baby boy is 4yrs now.**♥ 1source record 695 **Same. I thought I was dying. Got the little sucker removed, and I don't miss it one bit.**♥ 1source record 696 **I remember laying there on the gurney with my newborn (husband was off filling out paperwork) telling my baby to \\\*help daddy find a new mommy\\\*! I was in so much pain I was sure I was dying! FWIW, this was my third childbirth, all three unmedicated. Went on to have another four, only one with an epidural. I would rather have ten unmedicated births before I'd have a gallbladder attack again! That is the absolute worst pain I've ever had.**♥ 1source record 697 **I thought I was having a heart attack**♥ 1source record 698 **Came to say this very thing. I had my daughter natural and imo a gall bladder attack is worse.**♥ 1source record 699 **100% worst pain of my life bar none**♥ 1source record 700 **Gallbladder attacks are no joke, that pain is brutal**♥ 1source record 701 **Yep, I thought I was dying, only time I ever passed out from pain (in the ER parking lot). Before it happened to me I didn’t know what it was, but quickly learned it can be fatal. I had to have emergency surgery.**♥ 1source record 702 **It’s like someone stabbed you with a spear. Right under your sternum and out through your back between the shoulder blades. You’re sweating and feeling like you need to throw up, but nothing comes out. If you’re lucky to manage to dislodge the stone from the bile duct, the pain instantly goes away and life returns to normal.**♥ 1source record 703 **I had to have my gallbladder removed about 4 months after giving birth. The pain of the gallbladder attacks for the two months before surgery while I was going to A&E and coming out with no answers were horrible. Don't get me wrong childbirth is very painful, but I had gas and air and pethidine for that, I wasn't given anything until surgery for the gallbladder issues. Also not an illness, but dislocations, some more than others, are horribly painful. My shoulder, elbow and knee come to mind. I have had a partial dislocation if a hip that was so bad I really hope I don't have a full one.**♥ 1source record 704 **This awful shit hit me when I was 11 years old.**♥ 1source record 705 **At one point, I was kneeling by the toilet, wondering how hard i would have to slam my head against it to knock myself out. But then I had to hurl again. I was one of the last people in my town to have an open cholecystectomy. My scar is huge. When the nurses asked me if I needed pain meds, post operatively, I was, "This?!? This is a boo boo. Where were the drugs when I was passing a stone?!?"**♥ 1source record 709 **My entire world shrank down to a pinpoint of white hot pain. Nothing else existed. I could not walk. I could not talk. There was no past. There was no future. There was only pain. And the pain was eternal.**♥ 1source record 711 **By the time they took mine out it was haemorrhaging. Had some funky pre-cancerous cellular changes too, so was a relief to get that sucker out when I was 24\. A vaginal birth after induced labour on gas and air only, and an emergency caesarean for a partial placental abruption were nowhere near as painful.**♥ 1source record 717 **Agreed- I almost died from mine. I don't miss it.**♥ 1source record 720 **Yup. Had attacks for years that my docs chalked up as being bad acid reflux. I had two upper endoscopies and they said there was an excess of bile and gave me horse pills to lessen it. Then I had the worst attack of my life at 19\. Went to the ER and needed emergency surgery because my entire gallbladder was stones.**♥ 1source record 721 **I went down in a grocery store with a newborn in my shopping cart first bad attack. Absolute blinding pain, was so much worse than birthing the child.**♥ 1source record 722 **Was the worst pain I’ve ever experienced. I physically couldn’t straighten my body, I was bent over double and in pain for over 24 hours. Had to wait on a shitty plastic chair at A&E for around 10 hours before I was admitted. Having my gallbladder removed on Friday morning.**♥ 1source record 723 **Interesting. I wouldn't rank my pain from the gallbladder situation very high compared to other things I've dealt with. They kept offering me drugs and I turned them down most of the time. By then my pain tolerance had increased greatly from prior experiences. Like it was crampy for sure but I've had menstrual cramps worse.**♥ 1source record 725 **Going on a limb here and saying being forced to eat while having an attack was up there, too. Made me worse, and my spouse suggested I was faking. He suggested it until I had an attack so bad after he had surgery (he had abdominal surgery to remove a Nerf football sized tumor from his colon and appendix, he is fine now) that I ended up under the knife and then we shared recovery rooms. I don't miss having the pain, the nausea, the impending doom feeling, or the grey poo.**♥ 1source record 727 **Just had mine removed 3 weeks ago! No regerts!!!!**♥ 1source record 728 **Same man, I suffered through it on two occasions cause I was thinking it was gas cramps or some shit. Third one sent me to the ER**♥ 1source record 730 **My mom had a gallbladder attack - it was just the two of us, on a roadtrip, through an area with no cell service. We stopped at an abandoned gas station and she was yelling and crying from the pain. I was 8 years old and TERRIFIED**♥ 1source record 732 **I had like 3-4 attacks and I felt like my gallbladder was in a vise. The pain was horrible!!**♥ 1source record 733 **Yep. I went to the ER a few times convinced I was having a heart attack.**♥ 1source record 737 **Hell yeah. I didn't realise my pain was gallbladder related, but the surgeon took one look at the scan (for an unrelated issue that showed a chunky gallstone) and promptly booked me in for surgery. It's Just as well he did coz my gallbladder exploded as they were removing it. They had to wash out my guts, I had a drain in when I woke up and recovery was slow - but I'd probably have died if I hadn't already been in surgery when it happened!**♥ 1source record 739 **my first one happened a few days after my father had a heart attack. genuinely thought i was dying lmao**♥ 1source record 741 **Yep. Worse than unmedicated labour.**♥ 1source record 743 **I had an episode of biliary dyskinesia about 2 decades ago. I remember being curled up on the emergency room floor puking over the trash can and thinking this is how it ends for me. Morphine was GLORIOUS**♥ 1source record 745 **This!!! I legit thought i was dying. I writhed in pain on the floor for hours. I went to urgent care and they told me I had "gastritis". I went in to my primary and she said gallbladder. I had it taken out less than a week later.**♥ 1source record 747 **Agreed! Mine ruptured from stones, I thought I was going to die. I projectile vomited then passed out from the pain. I had it removed and woke up from surgery 100% pain free, didn’t even need meds from the surgery itself, I felt so good!**♥ 1source record 748 **100%. I had several before finally getting it out. Felt like I was dying, couldn’t get in any comfortable position, couldn’t think of anything but pain. My worst attack was when I couldn’t go to sleep or even lay down and told my husband to take me to the ER. They gave me something to swallow to numb my stomach and I threw it up immediately. Turned out my gallbladder was inflamed and had several gallstones. Worst pain of my life.**♥ 1source record 749 **This is exactly my first thought and I just knew someone else would have already replied. I just had my first attack a few weeks ago and it was by far the worst pain I've ever felt in my life. They kept me in the hospital for 5 days so they could do an ERCP and gallbladder removal. That was my 4th abdominal laproscopic surgery and probably 6th or 7th surgery overall and even the recovery was more painful. I would never wish that experience on anyone**♥ 1source record 750 **Same! I had 16 gallstones**♥ 1source record 752 **Yes, I thought I was having a heart attack. Intense pressure and pain in lower chest, projectile vomiting, sweating buckets and fainting. Had mine removed earlier this year. Feel so much better and no problems with diet so far!😊**♥ 1source record 753 **Nailed it. I was ready to gut myself to remove it if the hospital refused to admit me. Surgery was a breeze; the attacks had me questioning life (and this is after 2 drug-free natural child births).**♥ 1source record 754 **Pain so unbearable that when I tried to speak, I could only vomit. So thankful I only had to live with gallstones for 36 hours… Until my gallbladder ruptured and things got so much worse. I woke up from that surgery feeling like a million bucks.**♥ 1source record 755 **Had mine removed while I was pregnant it got so bad.**♥ 1source record 756 **I thought my kidney stones couldn’t be topped……until I had a gallbladder attack.**♥ 1source record 759 **I don't remember if the attack or recovery from surgery was worse. I have blocked it all out from memory.**♥ 1source record 760 **Had mine out this year, fuck those attacks werepainful.**♥ 1source record 761 **This for me. Called my mom a few days later and told her about it, she told me she had one once and compared the pain to childbirth. Which made me feel a bit better. This woman gave birth at least twice without epidural.**♥ 1source record 762 **I had to crawl to the living room to ask my husband for help…I couldn’t breathe from the pain**♥ 1source record 763 **Terrible, I thought for months it was just really really bad lactose intolerance and then it kept getting worse and I wasn’t putting it together til one night it was so bad it landed me in the hospital and I had the removal surgery within hours of arriving. It was also a lonely experience as visitors weren’t allowed past a certain time then I’d go right into surgery.**♥ 1source record 764 **Yes this hurt 10x more than either C section I had**♥ 1source record 765 **SO bad!!!! Got mine out and never felt better**♥ 1source record 766 **This. Having had two vaginal births and back labor versus dealing with my gallstones from age 15 - 22, Id rather just be in perpetual labor. The pain is un-fucking-real. Dissociating was the only way I could get away from it. They never opted for surgery each time i went to the ER until it ruptured my gallbladder when a stone got trapped in the bile duct.**♥ 1source record 768 **Yep. Gave birth to 3 kids but gall bladder was awful. I couldn’t lay down, sit, or stand without crying for weeks before I finally went in to the ER. Emergency gall bladder removal that night.**♥ 1source record 769 **The dread you get when you feel it starting.**♥ 1source record 770 **I went to the emergency room because I started to have pain that was suggestive of my gallbladder acting up. I had the upper right shoulder pain for a few days, and then one day after I eat breakfast, it went to the upper right stomach area. the pain was moderate, but I already knew that it was most likely my gallbladder so I said let me get checked out to make sure there’s not a blockage forming or a significant amount of gallstones. I was very fortunate that it wasn’t infected or blocked. I had the elective surgery to have it out about three weeks ago. But I’ve heard horror stories about how severely sick and painful people have gotten from gallbladder becoming infected or having a blockage. I’m really sorry that you had to deal with that. They said if mine were to get infected or a specific type of blockage from a stone, because I had gastric bypass, my anatomy is so different that the surgery could become very complicated. So I was very lucky that I was able to do this as an elective surgery and get it done while the gallbladder was quiet and calm.**♥ 1source record 772 **I’ve delivered 4 babies, one without meds. None of them compared, even remotely, to the pain of a gallbladder attack.**♥ 1source record 773 **Fucking. Same. I had 5 attacks. The first made me think I was having a heart attack. It was awful. After like 15 hour of agony it finally settled and they said surgery was optional but I should be okay. Then another attack happened and I was like yeah take it out. Had it scheduled aaaaaaand covid happened. Couldn't get it for a long time since it was considered "elective" and I had 3 more attacks. Mind you I never found what the trigger was. I was even eating healthier. My buddies mom said she'd rather give birth than have another gallstone attack. It's that bad.**♥ 1source record 826 **I've had several gallbladder attacks before I had the surgery to remove it. Then years later I started getting kidney stones. I've had to have 2 surgeries to remove several 11+ mm stones. Apparently once you get kidney stones, you are more prone to keep getting them. 🫠**♥ 1source record 832 **literally what i came here to say. gallstones are NOT a joke. i’m so happy the surgery to get gallbladders removed has become so simplified. i was a junior in hightschool and thought i was truly dying.**♥ 1source record 844 **I had 2 in a week. The first took me out for a day, the second had me screaming into a pillow for about 36 hours and took me out for a week. If felt like I was being stabbed. One minute I was eating tea 5 minutes later I was throwing up and lying in the foetal position on the bathroom floor. I didn't eat for 4 days. Surgery was easy enough. I did end up with A dodgy stomach afterwards because of bile acid malabsorption, but there are drugs for that.**♥ 1source record 845 **Oh God. This was so painful. I couldn't get comfortable in any position, so I was pacing, sitting in off positions...never for more than 5 seconds because it was so painful. My friend whose in the healthcare field helped me and he could tell right away I wasn't exaggerating. I told him my pain is an 8 because I didn't want to be overdramatic but it was easily a million out of 10\. They took me to the ER and they did scans and tests. Ultimately came back with take some OTC Tylenol and ask your doctor for zofran. My pain is still easily a 7 with fentanyl. Sent home and keep throwing up. A lot of pain still. Went to a different ER and they sent me to the main hospital for surgery because it was bad.**♥ 1source record 846 **When I had mine, I was on vacation in another state and I thought I had food poisoning. The pain was not typical Upper right quadrant . My whole abdomen was in knots. I put it off for three days, the couldn’t stand it any more and went to the ED. It was about an hour from the time I walked into the ED till I was in the operating room. It was gangrenous and fell apart when they tried to remove it. Needless to say, I had to stay in the hospital longer than I wanted. W Moral of the story, don’t ignore the pain.**♥ 1source record 847 **Yep. One attack of mine lasted 36 hours. I had no pain relief. It was awful and I wished for death. That’s how bad the pain was.**♥ 1source record 848 **Dang I’ve probably had 15+ attacks in my life. It’s basically a rite of passage in my family to get it removed. Mine is overactive. I’m still holding onto it because I worry about the bathroom issues**♥ 1source record 849 **Oh my gosh, that was horrific! It was in the middle of the night and I also have epilepsy so it caused a seizure. Had to take an ambulance. Goodbye gallbladder, I miss you.**♥ 1source record 850 **Currently waiting for surgery. 3 stones currently stuck in the duct and a whole bunch in the gallbladder. Unfortunately on the NHS that is still only urgent instead of emergency so I could have another few months wait 😭 I'm so done.**♥ 1source record 851 **Yes I have had a nurse who has had children and a gall bladder attack and tell me she would rather give birth?!? Wow. 😶😶😶**♥ 1source record 852 **When my gallbladder almost burst I thought I was having a heart attack and called an ambulance for myself as I was home alone.**♥ 2source record 1538 **Gallbladder attack**♥ 2source record 1547 **Gallbladder stones blocking duct. Very painful. Not even morphine would touch the pain.**♥ 2source record 1550 **Gall stones. Making it worse? Dumbass ER "doctor" who misdiagnosed it and refused to consider anything else.**♥ 1source record 1610 **Gallstones=pain. Bronchitis= thought I was dying.**♥ 1source record 1644 **I had a retained gallstone. That stone made the original stones look like a piece of cake. I did learn at the ER, if things are moving slowly in the waiting room, stagger up to the desk hunched over clutching your abdomen, and ask for a bucket. In a curtained room in seconds.**♥ 2source record 1671 **Gall stones. Had them for a year at age 14 before my mom believed me enough that I was actually in enough pain to warrant a trip to the ER. Fucking awful pain. I had my child with no epidural, I would do that again before I would ever want to pass another gall stone.**♥ 1source record 1695 **Biliary colic. Only time I've ever cried from physical pain. Two hours of agony and then it just stops like nothing happened and you're completely fine. So weird.**♥ 1source record 1698 **Gallbladder attacks before I had it removed. Last one I passed out and hit the floor after driving my self to the hospital and puking out the window on the way. I walked in and passed out cold. Next thing I remember is waking up with no gallbladder 😂😂😂**♥ 1source record 1723 **Gallstones**♥ 1source record 1786 **Cholecystitis (inflamed and enlarged gall bladder) I have given birth even but the gastro intenstinal pain felt before they removed it had me sweating and crying nearly daily 😩**♥ 1source record 1800 **Gallstones**♥ 1source record 1802 **Ruptured gallbladder that no one figured out! They thought it was just gall stones despite being in er for 12 hours. A month later, it was removed!**♥ 1source record 1838 **Gall stones. Man you can't breathe, feels like someone has parked a Mack truck on your chest, vomiting, can't eat anything. Its absolutely no fun**♥ 1source record 1861 **Undiagnosed Gallstones. It wasn't until I end up in the ER someone took me seriously. Had that sucker out 10 years ago and never forgot the pain.**♥ 1source record 1869 **Gallstones, worst thing ever and I wouldn’t wish it on my worst enemy!**♥ 1source record 1900 **Gallbladder attack**♥ 1source record 1921 **Gallstones 😭**♥ 1source record 1926 **Gallbladder, husband thought I had a kidney stone, then we had to get the surgery**♥ 1source record 1970 **Gallstones!!!!**♥ 1source record 1979 **Gallbladder attack. Thought I was having a heart attack that would neither kill me or stop hurting, ever.**♥ 1source record 2023 **Gallstones for sure. At least with 2 labours I knew that it would end.**♥ 1source record 2030 **Had gall stones. A few times the pain was so intense. That I was on the floor sweating.**♥ 1source record 2139 **Gallbladder. It took so long to find it I was deathly ill. Pain was bad**♥ 1source record 2206 **Gallstones. I would give birth again sooner than ensure another attack.**♥ 1source record 2237 **Gallstones**♥ 1source record 2256 **Gall stones. I thought I was going to die from the pain. I still have the stone in a jar. It is like a birds egg.**♥ 1source record 2335 **Most painful was Sphincter of Oddi Dysfunction, followed by gallbladder attack, followed by viral meningitis, followed by tonsillectomy, followed by migraines, then appendicitis. It’s been rough!**♥ 1source record 2376 **Gallbladder stones and tootache infection was both the worst! I can decide which tops between the two because both left le in excruciating and maddening pain😭😩**♥ 1source record 2386 **Gallstones**♥ 1source record 2420 **Gallbladder attacks for me**♥ 1source record 2431 **A gallbladder attack**♥ 1source record 2478 **Gallstones. A very very bad case.**♥ 1source record 2557 **Gallstones that triggered binary colic.**♥ 1source record 2590 **Sphincter of Oddi Dysfunction flare**♥ 1source record 2603 **Physically painful, whatever the hell was going on with my gallbladder. Got that thing taken out of me Mentally painful, alcoholism. Caused my worsening depression and anxiety to the point of suicide attempts. Also toss in PMDD and that got me self-harming again in my 30s. Definitely should’ve mentioned self-harm to my doctor with the PMDD, but didn’t want to be away from child and deal with a hiccup in work.**♥ 1source record 2613 **Gallstone that got stuck in my bile duct. My vitals went insane. I thought i was having a heart attack and had to remove the gallbladder. Bathroom time is never the same 🤦🏽‍♀️**♥ 1source record 2684 **Gallstone attack is horrific. Worse than labour**♥ 1source record 2733 **My gallbladder was attacking itself and full of enormous stones; some of them were the size of quarters.**♥ 1source record 2795 **Gallbladder attack + pancreatitis + endometriosis**♥ 1source record 2798 **Gallbladder or when I had a baseball sized labia hematoma after having my 2nd baby. Healing from that hurt more than giving birth**♥ 1source record 2842 **Gall stones. Hands down, it's not even close. Whenever anything else hurts, I compare the pain and nothing has ever been within 3 points on my internal pain scale. I give it a 9 out of 10 (because I am convinced that there must be worse pain I could experience) and nothing else has ever been above a 6, even for brief times. Just last week I had the worst sore throat I've had in my life. It was so bad that I could not eat any solid food for 5 days. Even when I was attempting to swallow something scratchy it didn't get above a 6.**♥ 1source record 2908 **Gallstones. Had to get surgery. It was horrible**♥ 1source record 2929 **Cholecystitis, which amounts to an infected gallbladder, with a gallstone stuck in a bile duct in my pancreas.**♥ 1source record 2934 **I passed out from a gallbladder attack and had to go via ambulance to the hospital because I whacked my head on the way down. Shingles was internally painful, plus I had to isolate from my elderly grandma that lived with us, so I was super-lonely. Now anytime I get an itch in the area I got shingles, I start thinking I have it again. Now living with fibromyalgia. I just got the diagnosis and a change of meds that’s been helpful, but previously I was taking 1200mg of Gabapentin every day and it was barely scratching the surface of the pain. It’s so fun feeling like everything under your skin is on fire and your skin doesn’t even want to be touched by a gentle breeze 🫠**♥ 1source record 2941 **A broken gallbladder. Before that, I would have said a burst ovarian cyst, but no - a gallbladder that was actually broken, literally non-functioning, was the absolute worst. I remember being doubled over in my kitchen, wishing to just pass out, hoping to not throw up... recovery sucked horribly, but only half as horribly as the Broken Organ sucked. Oof. Childbirth labor and a c-section do not even compare!**♥ 1source record 2955 **Gallbladder attack that caused pancreatitis. I’d rather have 15 babies, sideways, one after the other with no pain relief!**♥ 1source record 2958 **My gallbladder ruptured. Worse pain than kidney stone or childbirth. Had appendix out the next year and was a piece of cake**♥ 1source record 2992 **Just this past spring I had a 5 day gallbladder attack (just thought it was pain from something I did wrong cuz I'm old) which the stone was in such a way it gave me pancreatitis which lead to me not eating which led to having my potassium, magnesium & electrolytes be almost non existent which led to me falling & not being able to get (one fall leading to a severely sprained ankle) up which led to a month of being in & out of the hospital. And all that & more happened in about 6 weeks & 3 months later I am slowly recuperating. All that to say...a persistent burning pain for days is reason enough to get your butt to the hospital to get it checked out!**♥ 1source record 3148 **I’ve give birth three times. Gallbladder attacks are worse.**♥ 1source record 3258 **Gallstones and Hidradenitis Suppurativa flares. But I also recently have been dealing with a torn labrum in my hip and the pain from that can get just as debilitating**♥ 1source record 3281 **I’ve given birth, had gallstones (including septic gallstones stones in my bile duct,) and, kidney stones. I once got hand, foot, and, mouth disease from my niece. It’s a tie between gallstones, and, HFMD. At least with the gallstones, I got some good pain management right away. HFMD is a whole other pain. I had sores on my feet and hands. But, also, in my mouth and throat. I slept for like a week straight. I haven’t ever been that sick in my entire life.**♥ 1source record 3289 **i had gallstones, an infected gallbladder, and it was twisted. i thought that was the most painful until i had surgery complications. during surgery bc my gallbladder was so inflamed and hard to take out a gallstone dropped. it dropped into my bile ducts and blocked it. a blocked bile duct is a pain i can’t explain.**♥ 1source record 3308 **Hyperkinetic Gallbladder.**♥ 1source record 3361 **Gallstones**♥ 1source record 3387 **Gallstones**♥ 1source record 3406 **Gallbladder attack 1000%!!!!! And I’ve had 2 children- 1 vaginal and 1 c-section. I’d do both of those a million times over before I’d ever have another gallbladder attack !**♥ 1source record 3419 **Gallstones. Felt like a fire burning inside my chest, often for 10-20 hours straight**♥ 1source record 3463 **I had lots of gallbladder issues before I had gastic bypass surgery six years ago. That and plantar fasciitis.**♥ 1source record 3484 **Gallstones!!!!!!**♥ 1source record 3492 **Gallstones 100%. And I’ve been in labour for 19 hours and my answer is still gallstones**♥ 1source record 3504 **Gallstones. They passed through my bile duct. It was excruciating. I almost blacked out. The pain was so bad.**♥ 1source record 3541 **Gallstones, followed by sciatica, and then thirded by a disk issue in my lower back**♥ 1source record 3609 **Gallbladder - mine had a large stone blocking a duct and was gangrenous. I would rather birth a 10lb baby again.**♥ 1source record 3707 **Gall stones.**♥ 1source record 3781 **Gallstones/gallbladder attack. I thought I was going to die**♥ 1source record 3830 **Last year I had heart surgery to replace my aortic valve. That was pretty painful. But the worst moments of my gallbladder attacks were worse. So, so bad.**♥ 1source record 3863 **Gallbladder attack**♥ 1source record 3942 **It was a combination of gall stones, pancreatitis, sepsis, and a UTI, all at once. I didn't even know I was sick until I woke up from a nap in horrible pain. Called an ambulance. Good thing I did, I would've died that night if I hadn't. They had me in intensive care for 3 days, total hospital time was 2 weeks.**♥ 1source record 3948 **Gallbladder attack was followed in severity closely by a burst appendix. Both attacks were so painful that I almost passed out.**♥ 1source record 3963 **Gallbladder disease.**♥ 1source record 3995 **Gallbladder attack was worse than an unmedicated birth. 😭**♥ 1source record 4002 **Gallbladder infection**♥ 1source record 4042 **Gallbladder pain 2 months postpartum still healing from c section. Gone now phewee**♥ 1source record 4061 **Gallbladder attack & stones**♥ 1source record 4067 **Gallstones**♥ 1source record 4130 **Gallbladder attack. Worse. Than. Contractions**♥ 1source record 4142 **I have had both and gallbladder is significantly worse than kidney stones**♥ 1source record 4215 **I have had both. I’m sure it depends on the person and how big the stones are but my Gallbladder attacks were exponentially more painful than having kidney stones.**♥ 1source record 4216 **I’ve had both gallbladder attacks to the point my gallbladder was removed at age 26 and frequent kidney stones that caused kidney damage when I was 27 (I still get kidney stones about once a year). I would rather pass a stone every day than ever have another gallbladder attack.**♥ 1source record 4219 **I’ve had both…and my gallbladder out and kidney stone surgery. Yes, it is similar but in different places. Gallbladder was more a constant, sudden awful stab where I couldn’t move, barely breathe for a period of time intermittently, whereas kidney stones have been dig my kidney out of my body and the pain wraps around back and flank. My experiences anyway! Curious more on why you were in hospital for weeks, if you don’t mind sharing…did you become septic? I had that darn stent in six weeks and it was awful! Called surgeon and they said, well do less activity. I said if do any less I’ll be a corpse! I’ve had so many stones, my kidney blocked from working where I then waited two months for surgery…**♥ 1source record 4221 **I had one, gigantic stone with no symptoms until one terrible attack.**♥ 1source record 4222 **It’s cruel these attacks happen more postpartum. My first attack was 2 weeks after my C-section and man I was in pain, it hurt so bad throwing up while holding my incision for security… fuck gallbladders**♥ 1source record 4228 **And then I remember being able to get an ultrasound and the report said I was “full of stones” but I had to wait what felt like a year until surgeons were taking on elective surgeries again. I felt like a ticking time bomb.**♥ 1source record 4235 **I had attacks for 8 years because I said it felt like I was giving birth from between my shoulder blades. They kept telling me I had to improve my back pain by doing ab crunches. But it was horrendous uncontrollable vomiting and head to toe sweat. I'd just lay down on the floor and try to breathe through it till it decided to pass. The surgery was the best thing that happened. So easy.**♥ 1source record 4240 **Yep! Also had a bad ultrasound, they also denoted gallstones but because of the aforementioned jaundice and orange piss they thought it was my liver.**♥ 1source record 4242 **Same. I'd never had one until I was pregnant. Then I had three or four over the course of my pregnancy. At one point, I was vomiting in a bucket on the way to the ER. Let me tell you, the ER does NOT want to mess with pregnant women and they immediately got me to triage. I ended up having my gallbladder removed when my baby was about 18 months old. Apparently gallbladder issues and pregnancy are an unpleasant dynamic duo.**♥ 1source record 4243 Archive: 250 index entries preserve 250 distinct source records · Every displayed synthesis count resolves to source-record IDs Pancreatitis81 index entriesNamed both as the thing that followed a gallstone and, on its own, as the worst pain the writer could put into words. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Pancreatitis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Pancreatitis 81 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2245 **Appears when:** Pancreatitis **What the pattern means:** Two distinct routes into the same group. In one, pancreatitis follows a gallstone and is described as the sequel that turned out worse than the original. In the other it arrives alone and overnight. The accounts converge on duration rather than peak: writers describe days in hospital, nil by mouth, and pain that opioids reduced without removing. Several note in passing that they were asked repeatedly about alcohol. **What commenters described:** Pancreatitis. I tried to describe the pain to my husband—I had been throwing up all night and told him it was like there was a heavy, hot, very sharp rock embedded in the left side of my body. He asked if I needed to go to the hospital. I almost said, “no” Was in hospital for five days—painkillers and fluids. They wouldn’t release me because I kept getting a fever. I had a cyst on my pancreas and ended up having surgery to remove the cyst a few months later. **Limit:** Causes differ across these records — gallstones, medication, alcohol, a procedure, and several writers who say no cause was ever found — so the accounts are not describing one uniform illness. Nothing here identifies pancreatitis or indicates what should be done about it. What the replies added1 Pancreatitis!! It started out like a stomach ache and some diarrhea and vomiting. Then it progressively got worse as the night went on. I couldn’t keep anything in my body including water. I began to get a fever and started to think I just had a stomach flu. Then the vomiting and dry heaves were incredibly painful and so hard on my body. I started to throw up what looked like rubber bands and eventually coffee grounds. I begged someone to get me to emergency so my good friend picked me up to take me. She said “did you use self tanner?” Because I was yellow. My skin was yellow and I had jaundice. I don’t recall a lot after getting to emergency because they rushed me in right away and had me hooked up to some IV bags and some pain killers for the pain. They suspected my appendix at first but after bloodwork it seemed more serious. I vomitted once more at the hospital and it was again coffee grounds and a little bit of blood from my esophagus. They knocked me out to do the ultrasound because I was screaming in pain. I woke up hours later with my friend and my mom there and didn’t remember getting to the hospital. They said it was probably my gallbladder at first, according to the bloodwork, but after running tests and ultrasound they said it was my pancreas which was swollen and angry. They gave me some anti-inflammatory medication and some Zofran to stop the nausea and sent me home after 6 bags of saline and a stay overnight to get my hydration back to normal. Luckily I didn’t need any surgery. For days I had horrible muscle pain in my back and stomach from all the heaving and my throat and esophagus was sore and tender so I could only eat soft food and warm water. After a couple of days my skin went back to pink and I was okay but I’ve never had anything like this before. I have had babies without epidurals, I’ve had back injuries, I’ve had a broken foot and I’ve had other stomach issues but nothing like this ever in my life. I truly feel like I could have died (or came really close) if I didn’t get to the hospital that day. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Pancreatitis!! It started out like a stomach ache and some diarrhea and vomiting. Then it progressively got worse as the night went on. I couldn’t keep anything in my body including water. I began to get a fever and started to think I just had a stomach flu. Then the vomiting and dry heaves were incredibly painful and so hard on my body. I started to throw up what looked like rubber bands and eventually coffee grounds. I begged someone to get me to emergency so my good friend picked me up to take me. She said “did you use self tanner?” Because I was yellow. My skin was yellow and I had jaundice. I don’t recall a lot after getting to emergency because they rushed me in right away and had me hooked up to some IV bags and some pain killers for the pain. They suspected my appendix at first but after bloodwork it seemed more serious. I vomitted once more at the hospital and it was again coffee grounds and a little bit of blood from my esophagus. They knocked me out to do the ultrasound because I was screaming in pain. I woke up hours later with my friend and my mom there and didn’t remember getting to the hospital. They said it was probably my gallbladder at first, according to the bloodwork, but after running tests and ultrasound they said it was my pancreas which was swollen and angry. They gave me some anti-inflammatory medication and some Zofran to stop the nausea and sent me home after 6 bags of saline and a stay overnight to get my hydration back to normal. Luckily I didn’t need any surgery. For days I had horrible muscle pain in my back and stomach from all the heaving and my throat and esophagus was sore and tender so I could only eat soft food and warm water. After a couple of days my skin went back to pink and I was okay but I’ve never had anything like this before. I have had babies without epidurals, I’ve had back injuries, I’ve had a broken foot and I’ve had other stomach issues but nothing like this ever in my life. I truly feel like I could have died (or came really close) if I didn’t get to the hospital that day. source record 2990♥ 1 #### Source-record spotlights Most engaged source Pancreatitis that went necrotic because my ex made me wait hours before he believed that I needed to go to the ER. He said I was “just being dramatic”. In retrospect, I should have called for an ambulance, but I was in too much pain to think with any clarity. I couldn’t even see straight. source record 369♥ 10 Later-arriving source Severe Panreatitis.. Had an ERCP done to place a stent in my bile ductand was risk of severe pancreatitis was under 2%. Two hours after the procedure and the abdoninal pain was so bad I was screaming the ward down. I;d describe the pain as "You know that scene in Alien?". Spen two and a half months in hospital reovering from the range of infections that it caused and now have permanent, escessive scar tissue surronding my pancreas. posted about 2 days after the source♥ 1 Low-like source Pancreatitus felt like a hot knife was being stabbed into me very very slowly. Check your alcohol consumption kids posted about 4.1 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisUse a sensory reset · 2 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseUse a sensory reset · 2 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[CancerUse a sensory reset · 2 there](#rich-node-0-group-8-subgroup-0-cancer) #### What the counts show Across 81 source records, the most common observable tactic structure is “Use a sensory reset” (2 records). This is a wording pattern, not a measured outcome. 81index entries 81distinct source records 13.4%of parent category 2.2%of the complete index 75top-level comments 6replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 3asks a question 0says they intend to try it 77other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments81 preserved records · 81 of 81 source records accounted for **Same, also arrived in emergency with pancreatitis, 5 days in hospital and then surgery to remove a gallstone the size of a golf ball. Fuck that hurt!!**♥ 5source record 35 **Pancreatitis that went necrotic because my ex made me wait hours before he believed that I needed to go to the ER. He said I was “just being dramatic”. In retrospect, I should have called for an ambulance, but I was in too much pain to think with any clarity. I couldn’t even see straight.**♥ 10source record 369 **Pancreatitis and being septic**♥ 4source record 416 **This and Pancreatitis.**♥ 2source record 608 **I too was PP, gallstone pancreatitis 7 days after my c/s. Had to be npo for three days before they could safely operate and I lost my milk during that time. Thought I was legit having a heart attack.**♥ 1source record 673 **I only had pancreatitis a few times but it's up there with at home abortion and the spankings got as a kid. Glad you survived!**♥ 2source record 908 **I just posted about this same pain!! I was in such a stupor and the pain made me want to die. Luckily my friend brought me to the ER and got me some help. I truly felt like I could have died**♥ 2source record 1334 **Physically? Pancreatitis—it hurt so much that by the time I was hospitalized, they were a lot more worried about my sky-high blood pressure than they were about what was going on with my pancreas.**♥ 2source record 1536 **Physical pain? Pancreatitis— I never imagined it could hurt that bad and I’ve had 2 difficult deliveries and perforated appy with sepsis**♥ 1source record 1705 **Pancreatitis. No matter how you position yourself, there is this constant, throbbing, stabbing pain in your upper right abdomen. I have been hospitalized for it multiple times. Sometimes, strong pain medication doesn’t even touch it in my experience. I wouldn’t wish it on anyone.**♥ 1source record 1720 **Acute pancreas ontsteking. Heb pancreatic duct syndrome, chronische pancreas ontsteking en altijd pijn. De acute opflakkeringen zijn echter de ergste.**♥ 1source record 1747 **Acute pancreatitis with infected necrosis. Hospital for 2 1/2 weeks on fentanyl for pain.**♥ 1source record 1768 **Pancreatitis**♥ 1source record 1823 **It's a pretty close tie between pancreatitis with a lipase over 1000 (no alcohol involved - I'm sober), and when I had 8 bilateral and saddle blood clots in my lungs. Both sucked for different reasons. I did come much closer to dying though with the blood clots. That landed me in the ICU after repeatedly passing out and being found on the bathroom floor. 0/10: Do not recommend 🥴**♥ 1source record 1829 **pancreatitis**♥ 2source record 1855 **Pancreatitus**♥ 1source record 1907 **Pacereatitis. It felt like a brick of pain in my organs. I blame the cheesecake factory cheesecake i had after forgetting to drink water at an outdoor dog show**♥ 1source record 1915 **Pancreatitis. I thought I was dying. I woke up at maybe 1AM with the pain beginning. I got in the shower hoping that hot water would help the pain, but it kept growing. I ended up CRAWLING into my roommates room butt-ass naked and sobbing for them to take me to the ER. Each sob was in between me puking my empty guts up. Was so terrible**♥ 1source record 2000 **Pancreatitis! I have given birth (2 hours of pushing and an episiotomy) with no medication and pancreatitis rivals that.**♥ 1source record 2018 **I’ve had acute 4 times, 2 gallstone related , 2 medication induced . Thought I was dying the first time**♥ 1source record 2044 **Acute pancreatitis. And gallstones**♥ 1source record 2064 **Pancreatitis... would definitely wish it on my worst enemy**♥ 1source record 2134 **Alcohol induced acute pancreatitis. Felt like there was a knife in my side, and someone kept kicking it.**♥ 1source record 2233 **Pancreatitis**♥ 1source record 2239 **Pancreatitis. I tried to describe the pain to my husband—I had been throwing up all night and told him it was like there was a heavy, hot, very sharp rock embedded in the left side of my body. He asked if I needed to go to the hospital. I almost said, “no” Was in hospital for five days—painkillers and fluids. They wouldn’t release me because I kept getting a fever. I had a cyst on my pancreas and ended up having surgery to remove the cyst a few months later.**♥ 1source record 2245 **Acute Pancreatitis**♥ 1source record 2250 **Acute pancreatitis, hospitalized for weeks. Couldn’t eat, couldn’t drink, couldn’t brush my teeth and I didn’t even care. IV kept me nourished almost, dropped to 96 pounds. The pain was horrific even NPO and I’ve given birth and birth didn’t even come close to the pain.**♥ 1source record 2289 **Acute pancreatitis**♥ 1source record 2315 **Pancreatitis leading to emergency surgery. Although the burns from the radiation treatment for breast cancer kinda sucked too.**♥ 1source record 2359 **My wife: It would be a tossup between pancreatitus(caused by gallbladder attack) and radiation treatment for colorectal cancer. Me: hole in my colon, but honestly that's nothing compared to what my wife has been through.**♥ 1source record 2398 **Pancreatitus felt like a hot knife was being stabbed into me very very slowly. Check your alcohol consumption kids**♥ 1source record 2474 **Pancreatitis. Turns out my gall bladder, which was painful enough, had been spitting stones that somehow ended up lodged in my pancreas. I wouldn't wish that shit on anyone, it was indescribable and the only time I've ever feared I would die. Even kidney stones and child birth didn't come close**♥ 1source record 2624 **Pancreatitis**♥ 1source record 2637 **Acute Pancreatitis. Morphine brought the pain down from a 10 to a 7, if I was lucky.**♥ 1source record 2654 **Pancreatitis was the worst pain I've ever felt.**♥ 1source record 2682 **\*\*Acute pancreatitis\*\***♥ 1source record 2742 **Either Pancreatitis or Shingles. They both suck.**♥ 1source record 2800 **severe acute necrotizing pancreatitis. iykyk**♥ 1source record 2835 **Pancreatitis**♥ 1source record 2897 **Severe Panreatitis.. Had an ERCP done to place a stent in my bile ductand was risk of severe pancreatitis was under 2%. Two hours after the procedure and the abdoninal pain was so bad I was screaming the ward down. I;d describe the pain as "You know that scene in Alien?". Spen two and a half months in hospital reovering from the range of infections that it caused and now have permanent, escessive scar tissue surronding my pancreas.**♥ 1source record 2902 **Acute Pancreatitis. Happened once in the middle of the night, completely random, has never occurred again. Was throwing up constantly until I literally had no water left in me. You have no idea how painful it is to lose ALL of your fluids and still have your body dry heaving in response. And then I walked to the emergency room a mile away (because we live in America and not even an ambulance ride is free) and end up collapsing in the entryway, shaking and convulsing. Wouldn’t be surprised if I ended up getting appendicitis later or something.**♥ 1source record 2914 **Pancreatitis!! It started out like a stomach ache and some diarrhea and vomiting. Then it progressively got worse as the night went on. I couldn’t keep anything in my body including water. I began to get a fever and started to think I just had a stomach flu. Then the vomiting and dry heaves were incredibly painful and so hard on my body. I started to throw up what looked like rubber bands and eventually coffee grounds. I begged someone to get me to emergency so my good friend picked me up to take me. She said “did you use self tanner?” Because I was yellow. My skin was yellow and I had jaundice. I don’t recall a lot after getting to emergency because they rushed me in right away and had me hooked up to some IV bags and some pain killers for the pain. They suspected my appendix at first but after bloodwork it seemed more serious. I vomitted once more at the hospital and it was again coffee grounds and a little bit of blood from my esophagus. They knocked me out to do the ultrasound because I was screaming in pain. I woke up hours later with my friend and my mom there and didn’t remember getting to the hospital. They said it was probably my gallbladder at first, according to the bloodwork, but after running tests and ultrasound they said it was my pancreas which was swollen and angry. They gave me some anti-inflammatory medication and some Zofran to stop the nausea and sent me home after 6 bags of saline and a stay overnight to get my hydration back to normal. Luckily I didn’t need any surgery. For days I had horrible muscle pain in my back and stomach from all the heaving and my throat and esophagus was sore and tender so I could only eat soft food and warm water. After a couple of days my skin went back to pink and I was okay but I’ve never had anything like this before. I have had babies without epidurals, I’ve had back injuries, I’ve had a broken foot and I’ve had other stomach issues but nothing like this ever in my life. I truly feel like I could have died (or came really close) if I didn’t get to the hospital that day.**♥ 1source record 2990 **Pancreatitis**♥ 1source record 3017 **Pancreatitis**♥ 1source record 3055 **Pancreatitis Every time I inhaled, it felt like I was being punched in the stomach—even after a lot of morphine, which they kept administering every couple of hours. It went on for days, I thought I was done for.**♥ 1source record 3074 **Acute pancreatitis. Max Dilaudid on PCA pump barely touched it. Was in the ICU for 3 weeks.**♥ 1source record 3078 **Pancreatitis**♥ 1source record 3161 **Pancreatitis.**♥ 1source record 3173 **Pancreatitis**♥ 1source record 3223 **Pancreatitis.**♥ 1source record 3275 **Acute pancreatitis**♥ 1source record 3279 **Pancreatitis**♥ 1source record 3346 **Pancreatitis**♥ 1source record 3384 **Pancreatitis, no question**♥ 1source record 3427 **Pancreatitis while in labor, I thought for sure I was about to die**♥ 1source record 3441 **Pancreatitis… mine is autoimmune 😑**♥ 1source record 3459 **Pancreatitis**♥ 1source record 3485 **Pancreatitis**♥ 1source record 3487 **Acute Pancreatitis. Thought i was dying. Morphine didn’t touch it, ended up on Dilaudid for 4 days in the hospital.**♥ 1source record 3518 **Chronic Pancreatitis. Would rather give birth again fr**♥ 1source record 3607 **Pancreatitis**♥ 1source record 3639 **Gall stone attacks were really painful but for me the acute pancreatitis was the absolute worst! Hospitalized for weeks, an NG tube … it was just awful!**♥ 1source record 3655 **Pancreatitis!**♥ 1source record 3664 **1\. Acute pancreatitis 2\. Gall bladder & appendix nearing rupture on the same day**♥ 1source record 3689 **Acute pancreatitis and DTs. Glad I only did that the once**♥ 1source record 3700 **Pancreatitis that turned septic and almost killed me.**♥ 1source record 3716 **Pancreatitis**♥ 1source record 3719 **Chronic pancreatitis**♥ 1source record 3731 **Pancreatitis attacks😢 Evil pain!!**♥ 1source record 3750 **I had necrotizing pancreatitis. That was horrendous.**♥ 1source record 3765 **Pancreatitus**♥ 1source record 3774 **Acute Pancreatitis 😩 Pain began randomly whilst eating and less than 30 minutes later I was in A&E with excruciating pain and constant vomiting. The second the IV morphine hit though.. 😍**♥ 1source record 3860 **Haven't had many Illnesses just some really bad injuries. But pancreatitis and alcohol induced hepatitis at the same time really sucked. Arthritis sucks (from said injuries) if that counts**♥ 1source record 3922 **Pancreatitis**♥ 1source record 3926 **Pancreatitis**♥ 1source record 3940 **Pancreatitis**♥ 1source record 4066 **Pancreatic/gallbladder attack.**♥ 1source record 4084 **It’s a tie between pancreatitis and kidney stones.**♥ 1source record 4116 **Chronic Pancreatitis**♥ 1source record 4124 **pancreatitis and gastritis 🤮**♥ 1source record 4149 **Pancreatitis**♥ 1source record 4153 Archive: 81 index entries preserve 81 distinct source records · Every displayed synthesis count resolves to source-record IDs The gut398 records · 9 sub-topicsAnswers from the abdomen: the organ that bursts, the ones that inflame, and the ones that block. 398 records. Appendicitis82 index entriesThe organ that gives a few hours' notice, from people who reached surgery in time and people who did not. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Appendicitis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Appendicitis 82 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 324 **Appears when:** Appendicitis **What the pattern means:** The clearest before-and-after in the corpus: a short, escalating window that ends in an operating theatre. What separates these accounts from each other is timing. Writers who reached surgery describe hours of constant, stabbing pain that they could not stand upright through; writers who did not describe rupture, peritonitis, drains and weeks in hospital. A recurring sub-theme is being sent home first — for period cramps, for constipation, for a urinary infection. **What commenters described:** Appendicitis. I have a high pain threshold, childbirth without meds for example, but this doubled me over (don't get me wrong, childbirth is no walk in the park). The instant, stabbing pain, the inability to stand straight, takes your breath away. **Limit:** These records are written after the fact by people who know how their story ended, which is not the position anybody is in at the time. Nothing here is a way to tell appendicitis from anything else, and the delays described are reported experiences, not a claim about how often that happens. What the replies added1 Same here (the appendicitis part, being a bloke I won’t experience the childbirth comparison firsthand). Ruined a family holiday age 12 with it. Absolute agony until they gave me the morphine in A&E. Felt a bit better again later, turns out that was probably when my appendix exploded before they could get me to surgery. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint 1\. When my appendix almost burst; 2\. Close second was my c-section incision—something wasn’t right and I was in a lot of pain. The surgeon couldn’t figure out what was wrong and said I went off the painkillers too soon. Was discharged, went home, and my incision exploded. Happily, that relieved the pressure and the pain was gone. Unfortunately, my incision became infected and I needed a referral to wound care. source record 3363♥ 1 #### Source-record spotlights Most engaged source I said shingles (in my eye), until I got gangrene appendicitis. source record 96♥ 33 Later-arriving source Interesting. My appendicitis turned out to be chronic and recurrent for years. The last flare made me feel bad for weeks. Doc dismissed me. Carried on for a week. Then the ER sent me home the first time I went, and had me take a laxative cocktail that almost ended me. Second time in the ER they discovered the ruptured appendix and kept me a week after emergency surgery. Still, not the worst/most intense pain I've been in. I'd say that was what the doctors called lumbago. One wrong move and I couldn't sit, stand, lie or walk, could hardly breathe and had to manage crying and vomiting. It took like 12 hours, painkiller pills, injections and several IVs to get back to normal. posted about 6 days after the source♥ 2 Low-like source appendicitis. it felt as though i was getting punched in the stomach several times over for hours on end posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Cellulitis, abscesses and bone infectionsAttach it to an existing routine · 3 there](#rich-node-0-group-6-subgroup-4-cellulitis-abscesses-and-bone-infections) #### What the counts show Across 82 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 82index entries 82distinct source records 20.6%of parent category 2.2%of the complete index 71top-level comments 11replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 81other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3**Create a default **2**Turn it into a game **2**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments82 preserved records · 82 of 82 source records accounted for **I said shingles (in my eye), until I got gangrene appendicitis.**♥ 33source record 96 **My mom told my sister not to be dramatic about her period cramps. Turns out she had appendicitis; her intestines wrapped around her appendix which allowed it to slowly leak instead of bursting which saved her life since she was putting off getting seen because she thought it was cramps.**♥ 5source record 160 **Appendicitis. I have a high pain threshold, childbirth without meds for example, but this doubled me over (don't get me wrong, childbirth is no walk in the park). The instant, stabbing pain, the inability to stand straight, takes your breath away.**♥ 25source record 324 **Appendicitis**♥ 3source record 482 **Also had a baby without pain meds, and had appendicitis and an appendectomy two weeks ago. Was absolutely the worst pain I’ve ever been in. At least labor had breaks - this was just constant agony that IV morphine only took the edge off of for twenty or so minutes.**♥ 2source record 1197 **Interesting. My appendicitis turned out to be chronic and recurrent for years. The last flare made me feel bad for weeks. Doc dismissed me. Carried on for a week. Then the ER sent me home the first time I went, and had me take a laxative cocktail that almost ended me. Second time in the ER they discovered the ruptured appendix and kept me a week after emergency surgery. Still, not the worst/most intense pain I've been in. I'd say that was what the doctors called lumbago. One wrong move and I couldn't sit, stand, lie or walk, could hardly breathe and had to manage crying and vomiting. It took like 12 hours, painkiller pills, injections and several IVs to get back to normal.**♥ 2source record 1225 **Same. When I was brought into the ER with appendicitis, they actually thought I was having a heart attack. I still rank it the most painful thing that I've been through as a mom of 3 that also had 3rd degree burns from a kitchen accident.**♥ 1source record 1244 **Same here (the appendicitis part, being a bloke I won’t experience the childbirth comparison firsthand). Ruined a family holiday age 12 with it. Absolute agony until they gave me the morphine in A&E. Felt a bit better again later, turns out that was probably when my appendix exploded before they could get me to surgery.**♥ 1source record 1246 **Yes, same for me. That level of pain did make me realise my GPs diagnosis of IBS was probably not correct ...**♥ 1source record 1247 **Yes! Took them 2 days to decide to go in for a exploratory lap. By then it was perforated, gangrenous!**♥ 1source record 1249 **Had appendicitis when I was 15, couldn't eat for three days and it burst on the fourth. Hospitalised within two hours and had it out the same night. Horrible, horrible pain. I vividly remember my vision overlaid with this orange sheen during the worst of it. I got peritonitis within a week of it bursting. I didn't think anything would ever be as painful as appendicitis again, but I can tell you now it was really, really fucking bad. Nearly killed me. Felt like I was being clawed open. Took over a year to physically recover. Lovely stuff!**♥ 1source record 1250 **My appendix fully ruptured (I didn’t even know it, thought it was a hernia), that wasn’t the worst part of it. The worst part for me was when they had to switch out a drainage tube going into my guts, because the abscess that formed clogged it. Freaking excruciating!**♥ 1source record 1251 **yeah horrible the worst part was that they fucked up my surgery and I bleed internally for a day in Excruciating pain… fun week of transfusions in the hospital**♥ 1source record 1254 **Appendicitis**♥ 2source record 1471 **chronic appendicitis. essentially had appendicitis for almost two full weeks. at some points my body was physically convulsing from the pain. during the two weeks, doctors all dismissed me and said it couldn’t be appendicitis because it doesn’t last more than a couple days before bursting and i didn’t look like i was in enough pain. gotta love the american healthcare system :)**♥ 2source record 1551 **Chronic appendicitis attack, and I've had a lot of pain in my life!**♥ 1source record 1714 **Appendicitis.**♥ 1source record 1773 **Toss-up between appendicitis and torn ACL/meniscus**♥ 1source record 1795 **Appendicitis. I was writhing in pain for 5 hours on the emergency room floor. I was pressing my face to the tile trying to get some relief from the coolness.**♥ 1source record 1863 **It'd be a toss up between acute appendicitis (which apparently if I'd waited any longer, it would have burst) and multiple episodes of bilateral kidney stones being passed. If you were to ask injuries though, it'd easily be breaking my little toe 😭**♥ 1source record 1909 **Appendicitis 🥹**♥ 1source record 1942 **Appendicitis**♥ 1source record 1962 **Appendicitis.**♥ 1source record 1990 **It's a toss-up between appendicitis and the worst gout flare-up I've ever had.**♥ 1source record 2025 **Gangrenous appendicitis**♥ 1source record 2028 **Burst appendix**♥ 1source record 2155 **Appendicitis or strep throat. The strep just gave me the worst body aches; I couldn’t get comfortable in any position.**♥ 1source record 2182 **Appendicitis. Also, bronchitis and strep throat at the same time. Also, salmonella poisoning.**♥ 1source record 2189 **appendicitis. it felt as though i was getting punched in the stomach several times over for hours on end**♥ 1source record 2268 **Appendicitis - oooft..!! Followed by appendix rupturing on two occasions 2 months appart because surgeon who saw me in A&E when I initially had appendicitis refused to take it out and told me surgery was outdated and a mistake of the past and antibiotics was better.. Turns out the surgeon was a misguided clown - my appendecitis was caused by a tumour in the appendix - and antibiotics don’t cure cancer..!!**♥ 1source record 2332 **Appendicitis**♥ 1source record 2339 **Appendicitis, hands down. Morphine didn't even touch the pain, and I had to wait for hours for an emergency surgery slot to be made.**♥ 1source record 2381 **Appendicitis with gangrene.**♥ 1source record 2387 **Although it was brief, appendicitis**♥ 1source record 2484 **Appendicitis. Boo**♥ 1source record 2506 **Appendicitis short term Some kind of colitis long term**♥ 1source record 2511 **Appendicitus with a 7 hour wait in A+E before my mom kicked off and they saw me. Nearly died. I was in my 40s**♥ 1source record 2516 **Burst appendix and abcess for 3 months wouldn’t wish it on my worst enemy**♥ 1source record 2518 **Burst appendix on day two**♥ 1source record 2537 **Appendicitis first, second of a raging infection in y foot.**♥ 1source record 2541 **Appendix infection!**♥ 1source record 2571 **Recovering from appendicitis. It was wicked.**♥ 1source record 2600 **Appendicitis at 22 Started throwing up blood and the pain was so bad I could barely walk. Started the morning thinking I was just a little sick, ended the day on the operating table lol**♥ 1source record 2602 **Probably appendicitis, that one hurts like hell.**♥ 1source record 2616 **Appendicitis. Unable to stand nevermind walk**♥ 1source record 2631 **Appendicitis!**♥ 1source record 2670 **Burst appendix, and pinched nerve in my back. Thankfully not at the same time. Holy hell.**♥ 1source record 2720 **Appendicitis for sure. Honestly though I had a bad case of strep throat that was up there**♥ 1source record 2723 **appendectomy**♥ 1source record 2772 **I'm assuming you mean physical, appendicitis. I could barely breathe, I couldn't walk, I couldn't talk, it was just pain**♥ 1source record 2778 **appendicitis**♥ 1source record 2860 **I’ve had 3 Appendicitis Dislocated knee cap Cauda equina syndrome Edited to add not painful per se but during the first round of covid I had, I felt like I was dying and my oxygen was low. That was horrible and probably up there too. All were so painful it induced vomiting and severe nausea from the pain alone**♥ 1source record 2864 **Appendicitis.**♥ 1source record 2988 **Burst appendix**♥ 1source record 2997 **Appendicitis.**♥ 1source record 3118 **A perforated appendix. Luckily it didn't rupture and kill me, but unluckily it was leaking inside of me for 11 days trying to kill me**♥ 1source record 3120 **Appendix**♥ 1source record 3144 **Apendicitis. I had to drive myself to the hospital 35 minutes away and threw up 2 times before heading inside where it was less than 50 steps. I ended up blacking out when they took my blood too hahah my body couldn’t do anything anymore Second would have to have been what I suspected was COVID when it was barely starting. I had got it maybe a month before it started to get traction in news outlets.**♥ 1source record 3158 **Ruptured appendix surgery twice - they left a sponge in me! This was when I was in fifth grade. I was in the hospital for 37 days for all that. It was in the late 60s. Then coming in second was my gallbladder. It took them almost two years to figure that one out because I didn’t have any “stones” in it, but had a lot of “sand” in it, for which docs made me do all kinds of nasty tests, and then finally came back to the gallbladder. It was seriously painful for months on end because of this. I had gotten to the point where all I could eat without pain was grapes and lettuce, and lost a ton of weight (wouldn’t mind keeping that part!) But once they took my gallbladder out, everything turned back to normal and it was amazing!**♥ 1source record 3163 **Ruptured appendix**♥ 1source record 3241 **Chronic appendicitis. Attack happened every month for three years before getting diagnosed by my husband with an AI. Worst pain of my life. When they finally removed my appendix was like a miracle.**♥ 1source record 3256 **shunt failure combined with appendicitis**♥ 1source record 3261 **Ruptured appendix. Was during covid so couldn't get and ambulance or entry to the public hospital due to my triage level been low in comparison to those with respiratory issues. Went to private hospital by car, and was admitted. By the time the actual surgeon was in which was the next morning. My appendix had ruptured, i was completely delusional due to the fever. Worst pain ive experienced, as a guy. Im guessing it was on par to what women go through with period pain every month**♥ 1source record 3273 **Appendicitis. The 3 days of febrile hallucinations were the chef's kiss on top of the exquisite abdominal pain.**♥ 1source record 3290 **1\. When my appendix almost burst; 2\. Close second was my c-section incision—something wasn’t right and I was in a lot of pain. The surgeon couldn’t figure out what was wrong and said I went off the painkillers too soon. Was discharged, went home, and my incision exploded. Happily, that relieved the pressure and the pain was gone. Unfortunately, my incision became infected and I needed a referral to wound care.**♥ 1source record 3363 **Appendicitis physically and OCD mentally**♥ 1source record 3404 **Appendicitis that required 2 surgeries**♥ 1source record 3407 **Apendicil abscess**♥ 1source record 3466 **Appendicitis**♥ 1source record 3523 **Appendicitis at 26 weeks pregnant.**♥ 1source record 3548 **Appendicitis, but if gout counts, gout is pretty high up there**♥ 1source record 3736 **Appendicitis. Felt like I was slowly burning from the inside out.**♥ 1source record 3761 **apendicitis ovarian cysts pleurisy**♥ 1source record 3769 **Over the last 12-years, a burst appendix followed by diverticulitis 8-years years later. They were so bad, I passed out from the pain, but fortunately both times I was on the toilet and was able to get to the bathroom floor before I lost complete consciousness.**♥ 1source record 3809 **Appendicitis, and it had begun to rupture. I was in sooooo much pain and threw up from the pain. But the ER doctor told it was just an UTI and put me on antibiotics. A couple days later I went to my own doctor, and my CRP was so high the machine couldn’t read it. He sent me straight to the hospital and I had it removed later that day**♥ 1source record 3849 **For me either appendicitis or a super shitty abscessed tooth.**♥ 1source record 3915 **Appendicitis was pretty damn bad. Felt like a hot poker was being slowly turned in my innards every two minutes. So bad that it could feel it still pretty sharply even after being administered morphine. Almost passed out from it on the way to the hospital. 10/10 pain, do not recommend. Gout also runs in my family, and while I have medication to manage flare ups, sometimes you still get an especially bad one. I've had it in my feet and knees and holy shit, when they lock up and swell, its enough to make you want to amputate them. 8.5 to 9/10 pain, also not recommend.**♥ 1source record 3972 **Appendicitis Brutal**♥ 1source record 3983 **Appendicitis, which I was stupid enough to push through twice before I finally got it checked. I've been in 3/4-head on car accidents and crashed a motorcycle at \\\~50MPH but the appendicitis pain was exponentially worse**♥ 1source record 4019 **Toss up between appendicitis and gallstones that got my gallbladder taken out.**♥ 1source record 4022 **Ruptured appendix**♥ 1source record 4146 **Appendicitis that no one believed I had because I was young, female, and only had mild pain in lower right area.. he should have done blood work and a CT based on pain location.. he did a urine screen for pregnancy and sent me home.. a few hours later I'm calling an ambulance because my temp is 102.6 and climbing, I can't move without literally screaming in pain and also I'm hallucinating.. I almost died.. literally Got to the ER and my appendix gunk had leaked into my stomach and intestines were rotting and I was septic, the surgeons had to buy me like a fish 42 staples from tits to pubis when I woke up 2 days later**♥ 1source record 4157 Archive: 82 index entries preserve 82 distinct source records · Every displayed synthesis count resolves to source-record IDs Crohn's disease and ulcerative colitis54 index entriesA lifelong condition described by its flares rather than as a single event, and often by what it cost outside the pain. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Crohn's disease and ulcerative colitis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Crohn's disease and ulcerative colitis 54 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3356 **Appears when:** Crohn's disease and ulcerative colitis **What the pattern means:** Unlike most of this page, these records do not describe an event. They describe a condition measured in years, and the writers reach for what it removed rather than for a pain scale: food, work, a first year with a baby, a colon. Several rank it against acute conditions they have also had — one commenter with colon cancer says the Crohn's was worse — and several describe the humiliation of the symptoms as harder than the pain. **What commenters described:** Ulcerative colitis. By the time I was diagnosed I was .05 above the line for a required blood transfusion. Another week and I would have died. Every time I ate it felt like someone twisting and knifing the back of my belly button. I no longer feel organic hunger from the pain associated with my early illness. Spent most of my sons first year in a bathroom because every time he cried I would have a spasm and have to rush to the bathroom. That would drive me down to 100lbs and finally I would be approved for a last resort treatment. I’m 12 years in remission now. I’ll never forget the pain. **Limit:** Severity in this group ranges from managed remission to emergency surgery and cancer, so no single account represents the condition. Treatments, diets and surgical outcomes named here are individual reports and are not guidance for anyone else. What the replies added2 Yep. 18 years here. They've GOT to come up with a cure 😭 From the replies♥ 3 Omigosh, I'm sorry to hear that. My best wishes go out to you. You're braver than I would be, I think. 💜 From the replies♥ 3 #### Where commenters report limits Explicit limit or counterpoint I'm very grateful I've only ever had the one. I hope it stays that way. As for the kidney stones, I unfortunately have Crohn's disease, which increases my risk of getting kidney stones, and I have hyperparathyroidism, which means my calcium levels are super high and it makes calcium accumulate in my kidneys, causing stones. I get stones a lot. Womp womp I guess lol source record 132♥ 6 Explicit limit or counterpoint IBD flare that \*everyone\* (including myself, because I didn't know I had IBD at the time) thought was gallstones and kidney stones at the same time. Alongside the pain, I wasn't keeping anything in either end, so I was also severely dehydrated, and I've postulated that I actually had a partial bowel obstruction. I am, unfortunately, still in the same flare (with one more episode of hospital worthy symptoms), I get my type confirmation colonoscopy next month (my doctor and I are swaying towards Crohns due to other symptoms) and hopefully this will never happen again 🙃 Most painful experience I've ever had. Got admitted to the Surgical ward because of it. You can bet everyone was as equally confused as they were certain prior when the US showed no such stones. In fact showed nothing remarkable at all, everything intact, and just showed that my pancreas was obscured by excess bowel gas. The pain was so severe I couldn't even sit comfortably in my own wheelchair. The manual abdominal exam was dreadful and I nearly threw up on both doctors that did them. I almost passed out waiting for the CT scan (that never ended up happening), I looked so sick I had to have medical escort from the CT waiting room back to the ward 'just in case'. There was a very serious conversation about removing my gallbladder. Going on a liver shrinkage diet for 2 weeks then yanking that bitch out. To top it off, every time I get even a little stressed, my pancreas joins in. Yeah, my amylase is elevated, almost at 300 now. But this is a consistent upward track, not acute, so that one is just being a dick for the sake of it. It does worry me, though, that I may have gallstones or kidney stones in the future and chalk it up to my very angry-at-life gut. source record 3992♥ 1 #### Source-record spotlights Most engaged source Colitis with severe sepsis. source record 339♥ 19 Later-arriving source Simultaneous c diff colitis with diverticulitis...while recovering from abdominal surgery. It was so bad they discharged me with my own morphine. posted about 6 days after the source♥ 1 Low-like source Ulcerative colitis flares and whenever I pass a decidual cast. posted about 3.6 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 54 source records, the most common observable tactic structure is “Attach it to an existing routine” (4 records). This is a wording pattern, not a measured outcome. 54index entries 54distinct source records 13.6%of parent category 1.4%of the complete index 46top-level comments 8replies #### What commenters explicitly report 0explicitly reports a benefit 2explicitly reports a limit or failure 3asks a question 0says they intend to try it 49other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments54 preserved records · 54 of 54 source records accounted for **I'm very grateful I've only ever had the one. I hope it stays that way. As for the kidney stones, I unfortunately have Crohn's disease, which increases my risk of getting kidney stones, and I have hyperparathyroidism, which means my calcium levels are super high and it makes calcium accumulate in my kidneys, causing stones. I get stones a lot. Womp womp I guess lol**♥ 6source record 132 **I was about to just say Crohn's disease. I've had shingles, which makes me recoil thinking about it, but I could still talk and breathe with shingles. Knock on wood I haven't had an obstruction...yet.**♥ 6source record 266 **Colitis with severe sepsis.**♥ 19source record 339 **I'm currently a colon cancer patient. It sucks, but it does not begin to compare to my worst moments with Crohn's disease. My stomach would hurt so badly that I'd spend entire days curled up on the couch doing lamaze breathing. And constant, painful vomiting. Eventually, I had surgery to remove the last 18 inches of my small intestines, which were so riddled with scar tissue that the opening was than 1 CM. That was 12 years ago and I've been symptom free ever since. Then, because the World sucks, I got colon cancer that was traced through genetic testing as being caused by an extremely rare genetic mutation called PPAP. Thanks God!**♥ 12source record 387 **I’ve been living with Crohn’s disease for 29 years**♥ 6source record 407 **Yep. 18 years here. They've GOT to come up with a cure 😭**♥ 3source record 408 **Ulcerative colitis, almost passed out on the toilet cuz I also got a stomach virus at the same time and the two were duking it out in my intestines.**♥ 6source record 413 **It's interesting that you say that, because I also have Crohns disease (some serious GI issues) and somehow my neurologist, headache provider and GI have never put this possibility together... \*facepalm\* Edit: it didn't come off as a rant. I appreciate it!**♥ 2source record 1021 **Yeah the white hot butter knife supuku feeling my colitis gives me is enough to make my vision tunnel sometimes. 0/10**♥ 3source record 1081 **yeah it's insane how you lose all ability to speak when a flare up happens.**♥ 2source record 1124 **I am so sorry. My husband had colitis starting when he was a teen and it was debilitating. Did your colon become necrotic? That happened to my husband and he became septic as well. They ended up removing his colon and now he has an ileostomy. Turns out he had colon cancer. Not trying to scare you - just don't let your doctor brush off anything and demand regular colonoscopies. Thankfully, 17 years later, my husband is doing really well. His cancer was stage 3c and he has been cancer free. And, on the upside, removing his colon cured his colitis.**♥ 1source record 1345 **C.diff on top of a colitis flare. Almost killed me, instead it took my large intestine. Razor blades in your guts. They totally isolate you in the hospital and treat you like you have the plague. Docs told me they take large intestine or I die. Legit have PTSD from that.**♥ 2source record 1425 **Ulcerative colitis. It's not even the pain. I can tolerate the cramps, the tightness, the burning, and everything else... It's the disgust and sheer humiliation of soiling oneself in public with bloody poo.**♥ 1source record 1627 **Ulcerative Colitis**♥ 1source record 1814 **Colitis.**♥ 1source record 2135 **Ulcerative Colitis**♥ 1source record 2164 **Creative Colitis.**♥ 1source record 2194 **I’m late to the mark here, but so far: \\- appendix 2011\. \\- severe crohns 2011 with flares every so often. \\- currently 13cm cyst on right ovary; ovary has attached itself to the bowel wall 2026\. Pain daily for almost 2months straight from a 3/10 - 10/10\. More surgery coming up (TBC). This I don’t wish on anyone.**♥ 1source record 2201 **Severe colitis**♥ 1source record 2212 **Colitis (inflammation of the colon). Started with dull then severe abdominal pain, then came bloody diarrhea, and when I finally decided I needed the ER, I fainted from the pain just trying to get to the door to wait for the ambulance to arrive because I couldn’t drive myself to the hospital.**♥ 1source record 2226 **Ischemic colitis! I’m also blessed with chronic cluster headaches.**♥ 1source record 2275 **Colitis**♥ 1source record 2310 **Colitis, come second to even a cluster headache**♥ 1source record 2389 **Ulcerative colitis/IBS**♥ 1source record 2430 **Ulcerative colitis… wouldn’t have been so bad but I refused to go to the hospital until my body started shutting down. To be fair, an autoimmune disease at age 28 wasn’t on my bingo card**♥ 1source record 2471 **Ulcerative colitis, in a flare it feels like my large intestine is being wrung out like a wet towel and it just doesn’t stop. Not fun!!**♥ 1source record 2753 **Colitis**♥ 1source record 2834 **Perianal crohns**♥ 1source record 2840 **Ulcerative Colitis**♥ 1source record 2947 **Crohn’s disease — needed a bowel resection. The intensity of my pain was so bad that I thought I had kidney stones**♥ 1source record 3013 **Ulcerative colitis**♥ 1source record 3053 **I've been lucky that I haven't had anything too major happen but for me, an undiagnosed case of pancolitis. Had it for months and my PCP and Urgent Care kept saying I had gastritis. Puked everything I tried to eat or drink for a few months. My stomach was in constant stabbing like pain. Lost 25 lbs and was swimming in Size 1 pants. Started puking and shitting blood all the time. One day, I just collapsed. Was rushed to the ER and they admitted me because my potassium levels were so low, I was at high risk of cardiac arrest. Then they quarantined me because they suspected C Diff or whatever its called. They brought in a specialist who said I wasn't leaving the hospital until I was diagnosed, no longer bleeding and able to keep food down. I was there a week but they diagnosed and got me better. Had it again earlier this year when I was traveling back and forth, dealing with my dying mother. This time, I knew that pain so I went straight to the ER this time.**♥ 1source record 3059 **Full blown flare of my ulcerative colitis....was not well at all, and the pain was very bad.**♥ 1source record 3084 **Undiagnosed Ulcerative Colitis that I let carry on far longer than I should have before I went to a doctor.**♥ 1source record 3111 **IBD, colorectal cancer, anasomstic leak, small bowel obstruction**♥ 1source record 3242 **Colitis**♥ 1source record 3283 **Crohn’s Disease. It was one of the select few illnesses that NY allowed using medical marijuana for back in the day. To my recollection, also on that short list was cancer, ALS, Parkinsons, Huntington’s, HIV/AIDS, and MS. I use those as reference to give an idea of how horrible Crohn’s is, but most people just don’t understand at all how badly it can fuck you up and destroy your body and your mental health. Most people think it’s just some stomach pain. I lost my childhood, my colon, and some beloved friends to this disease.**♥ 1source record 3285 **Severe Ulcerative Colitis (IBD). Drinking water hurt. I spent 3 months laying on the floor sandwiched between 2 heating pads.**♥ 1source record 3332 **I have ulcerative colitis and it doesn’t go away. It will forever be the most painful thing I’ll ever have to deal with anytime I go into a flare up. I’ve never truly wanted to die in life other than during the months long flares Ive gone through.**♥ 1source record 3349 **Ulcerative colitis. By the time I was diagnosed I was .05 above the line for a required blood transfusion. Another week and I would have died. Every time I ate it felt like someone twisting and knifing the back of my belly button. I no longer feel organic hunger from the pain associated with my early illness. Spent most of my sons first year in a bathroom because every time he cried I would have a spasm and have to rush to the bathroom. That would drive me down to 100lbs and finally I would be approved for a last resort treatment. I’m 12 years in remission now. I’ll never forget the pain.**♥ 1source record 3356 **Simultaneous c diff colitis with diverticulitis...while recovering from abdominal surgery. It was so bad they discharged me with my own morphine.**♥ 1source record 3476 **Crohns and the associated fistula from it.**♥ 1source record 3529 **Crohns has been the only thing that has brought me to the ED due to pain**♥ 1source record 3542 **Crohn’s Disease. I (obviously) still have it. On the long path to remission!**♥ 1source record 3629 **Crohn’s It’s now in remission but when I was going through the diagnosis and treatment, it was absolute hell imagine razors going through your GI**♥ 1source record 3654 **Crohn’s Disease episodes. I walked around with appendicitis for 10 days because I thought it was my everyday Crohn’s pain. It occurred to me one day that it was unusual that I couldn’t stand up straight, after being seated, without a tugging sensation on my right side and recalled it being a hallmark of appendicitis, so I went in to have it checked. I was in surgery that morning and it ruptured right as they went in. I actually also developed two abscesses in my pelvis area post-op but didn’t actually have any pain, I just went to the ER because I felt incredibly weak.**♥ 1source record 3718 **Ulcerative colitis flares and whenever I pass a decidual cast.**♥ 1source record 3871 **Ulcerative colitis**♥ 1source record 3897 **Crohns disease, nerve damage.**♥ 1source record 3988 **IBD flare that \*everyone\* (including myself, because I didn't know I had IBD at the time) thought was gallstones and kidney stones at the same time. Alongside the pain, I wasn't keeping anything in either end, so I was also severely dehydrated, and I've postulated that I actually had a partial bowel obstruction. I am, unfortunately, still in the same flare (with one more episode of hospital worthy symptoms), I get my type confirmation colonoscopy next month (my doctor and I are swaying towards Crohns due to other symptoms) and hopefully this will never happen again 🙃 Most painful experience I've ever had. Got admitted to the Surgical ward because of it. You can bet everyone was as equally confused as they were certain prior when the US showed no such stones. In fact showed nothing remarkable at all, everything intact, and just showed that my pancreas was obscured by excess bowel gas. The pain was so severe I couldn't even sit comfortably in my own wheelchair. The manual abdominal exam was dreadful and I nearly threw up on both doctors that did them. I almost passed out waiting for the CT scan (that never ended up happening), I looked so sick I had to have medical escort from the CT waiting room back to the ward 'just in case'. There was a very serious conversation about removing my gallbladder. Going on a liver shrinkage diet for 2 weeks then yanking that bitch out. To top it off, every time I get even a little stressed, my pancreas joins in. Yeah, my amylase is elevated, almost at 300 now. But this is a consistent upward track, not acute, so that one is just being a dick for the sake of it. It does worry me, though, that I may have gallstones or kidney stones in the future and chalk it up to my very angry-at-life gut.**♥ 1source record 3992 **Ulcerative colitis. I had to get my whole colon removed**♥ 1source record 4023 **Infectious colitis Tonsillectomy as an adult - recovery (does that count?) Severe case of influenza, my hair literally hurt**♥ 1source record 4025 **ulcerative colitis? osteoporosis spine fractures that were caused by the iv prednisone to stop my intestines bleeding me to death?**♥ 1source record 4143 **Crohn’s disease**♥ 1source record 4224 Archive: 54 index entries preserve 54 distinct source records · Every displayed synthesis count resolves to source-record IDs Diverticulitis43 index entriesRepeatedly described as arriving without warning in writers who say they had never heard of it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Diverticulitis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Diverticulitis 43 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2655 **Appears when:** Diverticulitis **What the pattern means:** The recurring shape here is surprise: writers say they had not heard of the condition, several were told they were too young for it, and most describe waiting a day before going in because they assumed it was a normal flare-up. What follows is a localised stabbing pain, usually low on the left, that several say outranked a perforated appendix or a hernia they had also had. A number describe perforation, abscess, sepsis and, eventually, the loss of part of the colon. **What commenters described:** Most painful to date was diverticulitis. It felt like someone was stabbing me with a thin knife in the lower left part of my abdomen. It would stop and then come back full-force. I was panicked because I thought it was actually appendicitis at first, but thank god it was something I didn't have to have surgery for. **Limit:** This group skews towards the writers whose diverticulitis became severe enough to be worth posting about, which is not the whole range of the condition. Nothing here identifies diverticulitis or indicates when to seek care. What the replies added2 Had to scroll a bit before seeing this! I've been in a lot of pain before and live with chronic pain, but diverticulitis took the cake and then some. I was 23 and my ER doc said I was too young for it at first. I pushed for imaging and I'm glad I did, I came close to needing surgery. From the replies♥ 4 Agreed. I had diverticulitis with a perforation. The pain was the worst I had experienced. 7cm abscess was found, was septic when I went to hospital. Was hospitalized off and on for 6 months, and finally had my colon out 10 months after diagnosis, and 6 months after I had an ileostomy put in. Couple that with my first ever bout of depression which started in the hospital and then medical anxiety which began after a surgeon decided to dig in my side to get my abscess to drain better without pain meds on board. I was a mess for 7 months. An experience I never, ever want to repeat. Scares the hell out of me to think what I endured. From the replies♥ 2 #### Where commenters report limits Explicit limit or counterpoint I also waited a day! Maybe a little more, I have bad gastro problems in general and figured I was having some kind of flare at first and my pain tolerance is very high. But in the morning it was so incredibly bad, I was on call with my best friend and it just kept getting worse and they pushed me to get checked out. Called my roommate, they came to take me to the ER and it rapidly got worse. I could barely even talk to the nurse with all the pain, was just screaming and throwing up. I've had cluster headaches, severe suspected endometriosis complicated by being intersex, and an infected tooth among other things. Nothing compares. source record 4309♥ 1 #### Source-record spotlights Most engaged source Diverticulitis is pretty shitty. source record 335♥ 21 Later-arriving source Severe diverticulitis. posted about 5 days after the source♥ 1 Low-like source Diverticulitis infection that went septic posted about 11.3 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 43 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 43index entries 43distinct source records 10.8%of parent category 1.1%of the complete index 32top-level comments 11replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 42other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments43 preserved records · 43 of 43 source records accounted for **Diverticulitis is pretty shitty.**♥ 21source record 335 **Had to scroll a bit before seeing this! I've been in a lot of pain before and live with chronic pain, but diverticulitis took the cake and then some. I was 23 and my ER doc said I was too young for it at first. I pushed for imaging and I'm glad I did, I came close to needing surgery.**♥ 4source record 336 **Physically - Diverticulitis. Mentally- Depression and anxiety at the same time. One I don’t care about anything. The other I care about everything.**♥ 7source record 376 **Agreed. I had diverticulitis with a perforation. The pain was the worst I had experienced. 7cm abscess was found, was septic when I went to hospital. Was hospitalized off and on for 6 months, and finally had my colon out 10 months after diagnosis, and 6 months after I had an ileostomy put in. Couple that with my first ever bout of depression which started in the hospital and then medical anxiety which began after a surgeon decided to dig in my side to get my abscess to drain better without pain meds on board. I was a mess for 7 months. An experience I never, ever want to repeat. Scares the hell out of me to think what I endured.**♥ 2source record 1315 **Was surprised to see this so far down. Worst pain in my life, worse than a perforated appendix that they had to take out a liter of fluid with, and had to have a drain on top of it.**♥ 2source record 1332 **So did I. I woke up and my side was swollen and sore. I waited a day, and it was so much worse when I woke up. Awful. I've had a double hernia by impact, and would still take that over the big D. Sorry to hear you had to go through it. Rough.**♥ 2source record 1338 **Incredibly painful. They give you Dilaudid, that's how bad the pain is.**♥ 1source record 1364 **Tossup. Between diverticulitis and giardia**♥ 2source record 1422 **Yikes. I understand the being a mess part. 2011 was a rough year. From Jan-Jun I was in and out of the hospital. Had surgery. 18” of my colon removed. No C-bag. As my sister calls it. As of today, not a single flare-up. I do get flare ups, but they are from gluten and/or the Ozempic.**♥ 1source record 1464 **Diverticulitis**♥ 2source record 1566 **Diverticulitis**♥ 1source record 1783 **Diverticulitis infection/flare up. Didn't even know i had it until I wanted to cut my own guts out.....**♥ 1source record 1798 **Diverticulitis**♥ 1source record 1961 **Diverticulitis. I could barely answer the Nurse's questions because of how much pain I was in. They finally gave me morphine and INSTANTLY felt better. I had never had it before, but it felt like a warmth that spread from my arm to my whole body. I dodnt feel anything right away. I was so relieved**♥ 1source record 2142 **I controlled-Fd and haven't seen diverticulitis! Even women who've had babies will tell you that it can be as painful as childbirth.**♥ 1source record 2348 **Diverticulitis**♥ 1source record 2464 **diverticulitis. Look it up I had it when I was like 30\. inflammation of rhe colon when you eat seeds like sesame vor peanuts and it scars your colon coming out. gross I had an infection flat like I was dying can't eat you vomit forget pooping when you finally stop all you feel is intense pain when I finally went to the DR they didn't find out for a whole week I guess they thought I was a junkie needing pain meds and when they finally found out what it was they gave round the clock meds to keep the pain in check until the antibiotics started doing it's job like 3 days worst 2 weeks of my life I could have died**♥ 1source record 2487 **Diverticulitis.**♥ 1source record 2531 **Bowel perforation due to diverticulitis. Shingles and a caesarean wasn’t that bad in comparison.**♥ 1source record 2539 **Diverticulitis.**♥ 1source record 2551 **Diverticulitis. Pure hell. I came very close to losing part of my intestines. I was only 23 and my ER doctor said I was the youngest he'd ever seen with it. Yay me.**♥ 1source record 2615 **Most painful to date was diverticulitis. It felt like someone was stabbing me with a thin knife in the lower left part of my abdomen. It would stop and then come back full-force. I was panicked because I thought it was actually appendicitis at first, but thank god it was something I didn't have to have surgery for.**♥ 1source record 2655 **I've been there. It's the worst pain ever. I've read women say it's far worse than childbirth and kidneys stones are no where near as bad.**♥ 1source record 2709 **Diverticulitis**♥ 1source record 2752 **Diverticulitis**♥ 1source record 2781 **It sucked so bad and I dealt with it for a week before I literally felt my lower intestines tear while trying to lie down. If I would’ve waited another 24-36 hours, I would’ve died from sepsis.**♥ 1source record 2805 **Diverticulitis**♥ 1source record 2828 **Diverticulitis**♥ 1source record 3012 **Severe diverticulitis.**♥ 1source record 3098 **I second gallbladder. Until I had ruptured colon from diverticulitis. Pain so bad I passed out talking to the ambulance techs in my living room. I was wheeled right thru the ER to surgery. I had been in pain for days, but that last day was as bad as the gallbladder and my cluster headaches. Well, because I was dying of sepsis. 🤷‍♀️**♥ 1source record 3122 **Diverticulitis**♥ 1source record 3218 **Diverticulitis**♥ 1source record 3255 **Diverticulitis**♥ 1source record 3432 **Diverticulitis attack. I could barely walk and breathe. Spent a week at the hospital with hard antibiotics**♥ 1source record 3568 **Diverticulitis**♥ 1source record 3585 **Diverticulitis infection that went septic**♥ 1source record 3749 **Diverticuitis,i honestly felt like I was having a baby cause my pain was in crotch area omg soo painful!!**♥ 1source record 3859 **Diverticulitis hands down, the pain was excruciating, I thought something inside me was going to explode. Very scary.**♥ 1source record 3958 **Exploding diverticula**♥ 1source record 4108 **Diverticulitis with an abscess that led to sepsis all while being told it was "just an ovarian cyst" that had burst.**♥ 1source record 4164 **Yeah. I was very surprised by the pain level. I don't know what I thought it was, but waiting that extra day...... really would not want to do THAT again.**♥ 1source record 4288 **I also waited a day! Maybe a little more, I have bad gastro problems in general and figured I was having some kind of flare at first and my pain tolerance is very high. But in the morning it was so incredibly bad, I was on call with my best friend and it just kept getting worse and they pushed me to get checked out. Called my roommate, they came to take me to the ER and it rapidly got worse. I could barely even talk to the nurse with all the pain, was just screaming and throwing up. I've had cluster headaches, severe suspected endometriosis complicated by being intersex, and an infected tooth among other things. Nothing compares.**♥ 1source record 4309 **My worst was June 2022 to Jan. 2023\. Had my ostomy in Oct. 2022, that in itself was a lot to process. Reluctantly tarted some counseling in Jan. '23 which seemed to help. Was nervous earlier this year. Really bad pains in my gut, but I had a large hernia. Turns out I had a bowel adhesion, and since my hernia repair I've been good. My colon still has lot lots of diverticular sacks up through the transverse colon. I pray they never cause me issue.**♥ 1source record 4372 Archive: 43 index entries preserve 43 distinct source records · Every displayed synthesis count resolves to source-record IDs Bowel obstruction, twisting and perforation49 index entriesAnswers where the gut stopped, twisted or tore, most of them ending in emergency surgery. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Bowel obstruction, twisting and perforation Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Bowel obstruction, twisting and perforation 49 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 4119 **Appears when:** Bowel obstruction, twisting and perforation **What the pattern means:** The most mechanical answers in the corpus. Writers describe the gut stopping, telescoping into itself or twisting until the blood supply is cut off, and they reach for tearing and evisceration to describe it rather than for cramping. Morphine is mentioned repeatedly as having taken the edge off and no more. Almost every account ends in emergency surgery, several with a length of intestine removed; a number of writers report the obstructions recurring afterwards because of adhesions. **What commenters described:** Small bowel obstructions. It feels like I'm being evicerated. Searing pain that doesn't pause or stop. Just keeps up with a ripping and tearing sensation. I just had my 7th obstruction on July 1st. I can expect my next in 19 months. That seems like the frequency. Going to talk with my PCP, oncologist and ER surgeon if I can have a standing order for IV pain meds in my chart for the "next one". Good fun./s **Limit:** Several writers here describe being disbelieved or delayed and attribute gangrene to the wait; that is their account of their own case. Nothing in this group distinguishes an obstruction from anything else or says what should be done about one. What replies pushed back on2 I agree.. I’ve had shingles and the bowel obstruction was way worse. Pushback♥ 2 Aww yes! There is nothing more painful. I think I'd rather be stabbed with a dull knife over and over. I've had over a dozen small bowel obstructions due to Crohn's disease. 0/10 - would not recommend Pushback♥ 1 #### Source-record spotlights Most engaged source Bowel obstruction from Crohn’s disease. source record 264♥ 104 Later-arriving source Bauchfell Entzündung als Kind posted about 4 days after the source♥ 1 Low-like source Small bowel obstruction. I legitimately thought I was dying. I had emergency surgery to fix it. I wouldn’t wish that pain on anyone… posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [Fissures, abscesses and haemorrhoids“thought i was dying” · 2 there](#rich-node-0-group-9-subgroup-0-fissures-abscesses-and-haemorrhoids)[Lungs, pleura and clots“thought i was dying” · 3 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots)[Pancreatitis“thought i was dying” · 3 there](#rich-node-0-group-0-subgroup-2-pancreatitis) #### What the counts show The exact phrase “thought i was dying” recurs across 2 of the 49 source records in Bowel obstruction, twisting and perforation; the complete archive stays available below. 49index entries 49distinct source records 12.3%of parent category 1.3%of the complete index 43top-level comments 6replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 2asks a question 0says they intend to try it 47other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments49 preserved records · 49 of 49 source records accounted for **Bowel obstruction from Crohn’s disease.**♥ 104source record 264 **absolutely. bowel perforation and infection is right up there as well 🫠**♥ 13source record 265 **Prescribed laxatives when I had a bowel blockage on my cecum. I thought I was going to die naked on my floor. And I’ve had kidney stones. This didn’t compare. The ER doctor had the audacity to accuse me of seeking pain meds because “women don’t get 10/10 pain worse than childbirth”. It was later found out I had a blockage after I bled for 2 weeks straight.**♥ 54source record 267 **Total bowel obstruction from an intussuception that had twisted itself until it cut off blood flow. The morphine just barely took the edge off and it required surgery and cost me 18" of small intestine.**♥ 4source record 428 **This was up there for me. But my bowel strangulation was worse. I hope you are well now because gallbladder attack was definitely in my top two until the strangulation.**♥ 1source record 682 **I agree.. I’ve had shingles and the bowel obstruction was way worse.**♥ 2source record 1105 **Aww yes! There is nothing more painful. I think I'd rather be stabbed with a dull knife over and over. I've had over a dozen small bowel obstructions due to Crohn's disease. 0/10 - would not recommend**♥ 1source record 1147 **Same. I’ve had Crohn’s for about 22 years now. I used to get pretty bad obstructions every 5 or so years. Now I’m getting them every few months, even though my Crohn’s is pretty much in remission. Thanks adhesions 🙄**♥ 1source record 1157 **About 20 years ago I had a small bowel obstruction that was absolutely horrible. It was like a hot poker being stabbed in my abdomen-- required surgery. My second bout of covid I honestly wished I'd die because it was so bad (and I'm a healthy, happy, active person). That was back in 2023\. Fuuuuuuuuuuuuuuck that virus, man. So yeah, I'm now one of those folks who masks up on the subway and at indoor concerts. I never want to experience that again.**♥ 2source record 1397 **I had something very similar, with the same result/outcome. It had gone gangrenous because the hospital waited 5 days to operate. 'Oh, but you were hardly complaining!'. Bro, I had absolutely nothing left in the tank to complain with, I was in screaming pain for the first few days and you didnt do anything - I gave up.**♥ 1source record 1450 **Complete bowel obstruction after a colectomy. My small intestines were literally cutting off it's own circulation and my stoma wasn't producing anything into my ostomy bag. Morphine wasn't even touching the level of pain it caused. Had to have emergency surgery.**♥ 2source record 1486 **Bowel obstructions**♥ 1source record 1704 **Small bowel obstruction.**♥ 1source record 1706 **Total bowel obstruction after drinking Barium. Wouldn't give me pain relief because they were considering emergency surgery.**♥ 1source record 2126 **mental: OCD physical: intermittent bowel obstruction**♥ 1source record 2144 **Blocked bowel. Vomited my feces . The pain was unbearable. Rushed to surgery and saved my bowel from bursting. My bowel obstructions continued for another 20 years until my next bowel operation. I would not wish it on anyone.**♥ 1source record 2228 **Intussusception, hands down. Never heard of it before getting it, apparently somewhat common in babies, but pretty rare in adults. 11” of my intestines telescoped inside themselves… Only time I ever felt 10/10 pain, multiple doses of morphine didn’t touch it, only surgery finally relieved the pain. Horrendous.**♥ 1source record 2253 **Bowel strangulation.**♥ 1source record 2347 **Acute mesenteric infarction Complete small bowel obstruction**♥ 1source record 2368 **Bowel impaction.**♥ 1source record 2486 **Intussusception when I was in college, could have died from it. It felt like my insides were being ripped apart and exploding at the same time.**♥ 1source record 2694 **Small bowel obstruction**♥ 1source record 2702 **Bowel obstruction, pneumonia, ague, and sore throat ALL at the same damn time**♥ 1source record 2734 **Twisted bowel causing bowel obstruction. I’ve had a lot of very painful medical conditions, but that wins hands down.**♥ 1source record 2765 **I couldn't shit for a week and had to go to the ER**♥ 1source record 2766 **Small bowel obstruction. I legitimately thought I was dying. I had emergency surgery to fix it. I wouldn’t wish that pain on anyone…**♥ 1source record 2852 **Perforated colon. Extremely painful.**♥ 1source record 2974 **Small bowel obstruction, happened twice as a complication after having both of my native kidneys surgically removed(PKD) and receiving a transplant.**♥ 1source record 3029 **Small bowel blockage, but kidney stones run a close second.**♥ 1source record 3044 **Bowel obstruction. Thought I was dying for sure.**♥ 1source record 3069 **Severe constipation. I was in so much pain they thought it was my appendix and gallbladder both about to burst. I ended up hospitalized for 4 days as they treated it. Never found out what caused it, but I was in so much pain they had to give me morphine**♥ 1source record 3172 **When I was about 19 I didn’t shit for 4 weeks and was having some manageable pains each morning. Spoke to my friends about it who brought to my attention how concerning that was. So I went to the shops and bought some laxatives, came home and took them. They stated 12 hours to start working so I went to bed. I woke up in the most excruciating pain I have ever felt! I fell out of bed onto the floor and stripped off as I started to sweat. Rolled around on the floor crying at 5am. Tried to go to the toilet… nothing happened. I was opening at work that morning and it was too late to call in sick as I had to atleast be there when the other opener got there. So still crying and in the worst pain I got dressed, got in the car and was curled over the steering wheel crying. Pulled over thinking I can’t do this! Then got back on the road.. what choice did I have? Got to work and was curled on the chair still in pain. Started to feel better so started opening up, THEN I GOT REALLY FAINT! Rushed to the bathroom and literal liquid poured out. Instant pain relief 😅**♥ 1source record 3269 **Perforated bowel followed by sepsis AND pyoderma gangrenosum. I wouldn't wish pyoderma on anyone, ever.**♥ 1source record 3312 **Adhesions causing bowel obstructions and pancreatitis share the top spot for me. The first is more acutely painful but passes more quickly than the pancreatic pain, which wears you down.**♥ 1source record 3335 **Ileus**♥ 1source record 3364 **Complete bowel blockage.**♥ 1source record 3611 **Peritonitis**♥ 1source record 3727 **Perforated small intestine**♥ 1source record 3803 **Bowel blockage treated with that horrible soda. Magnesium citrate or something? Definitely worse than gallbladder and kidney stones.**♥ 1source record 3818 **In order… Ruptured Colon Trigeminal Neuralgia 13mm kidney stone and then about 15-20 smaller kidney stones all of which required surgery C-section for my twins**♥ 1source record 3838 **Bauchfell Entzündung als Kind**♥ 1source record 3866 **Twisted bowel, osteomyelitis of the jaw**♥ 1source record 3901 **I had an adult intussusception. It’s a condition where your intestines telescope in themselves. The blockage itself wasn’t the most painful part. I went in for emergency surgery because 90 percent of the time it’s caused by a tumor. However the surgeons couldn’t find a tumor. So they opened me up and ran the entirety of my intestines through their fingers to find a tumor. They never found one and the closed me back up. They kept me sedated for about 2 days and when I woke up, I experienced worse pain than both my child births. Truly horrific. I’ll never forget the doctor looking over me and telling me I was taking too long to recover. Wanted to scream at him but was in too much pain.**♥ 1source record 3907 **Peritonitis. It nearly killed me. Not fun. Felt like something was clawing at my insides.**♥ 1source record 3996 **Fecal impaction. Holy fucking Jesus**♥ 1source record 3998 **Bowel blockage due to Crohn’s Disease**♥ 1source record 4005 **Bowel obstruction**♥ 1source record 4036 **Small bowel obstructions. It feels like I'm being evicerated. Searing pain that doesn't pause or stop. Just keeps up with a ripping and tearing sensation. I just had my 7th obstruction on July 1st. I can expect my next in 19 months. That seems like the frequency. Going to talk with my PCP, oncologist and ER surgeon if I can have a standing order for IV pain meds in my chart for the "next one". Good fun./s**♥ 1source record 4119 **Hmm… probably a severely impacted bowel when I was younger. Unrelenting.**♥ 1source record 4125 Archive: 49 index entries preserve 49 distinct source records · Every displayed synthesis count resolves to source-record IDs Stomach ulcers, gastritis and reflux30 index entriesBurning described from the inside, including the ulcers that perforated. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Stomach ulcers, gastritis and reflux Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Stomach ulcers, gastritis and reflux 30 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3486 **Appears when:** Stomach ulcers, gastritis and reflux **What the pattern means:** Burning is the common thread, but the group splits by how it ended. The gastritis accounts describe weeks of vomiting everything, with writers noticing knock-on effects — potassium, weight, teeth — as much as the pain itself. The ulcer accounts describe something abrupt: a perforation, acid in the abdomen, and an emergency. Several writers mention H. pylori and the months it took to get to that answer. **What commenters described:** Gastritis is one of the worst things you can experience for weeks. Its inflammation of the lining of your stomach and intestine. It can last upto a couple weeks of just throwing up everything. The one time I had it, my potassium got so low it felt like if I threw up one more time my heart was going to stop. **Limit:** These accounts run from an unpleasant fortnight to a life-threatening perforation under the same headings, so the group is not describing one severity. Nothing here identifies an ulcer or gastritis, and the medications named are what individual writers were given. What the replies added1 I've had it once. I was vomiting for 16 days straight From the replies♥ 1 #### Where commenters report limits Explicit limit or counterpoint Gastritis attack- they thought it was pancreatitis. The pain was so horrifically intense that I went to the emergency room because I was literally yelling in pain and crying. They ended up doing a bunch of tests and my lipase level came back three times normal. So they assumed all of that that it was pancreatitis, but it actually was gastritis because the pain subsided significantly with a G.I. cocktail and a IV of Protonix and Pepcid. I think it was possibly. It was so odd though because I swear I had so many staff members coming in because they couldn’t believe that I didn’t drink at the time we believed it was pancreatitis, so they kept saying are you sure you don’t drink alcohol? I’m like yeah I’m pretty sure that I don’t drink lol. That pain was horrible though. One of the worst pain I’ve ever remember was having an abscessed tooth though. I used to get them a lot when I was a child, unfortunately genetics in my family is notorious for having dental issues. I remember the horrible pain of that as a child though. source record 2802♥ 1 #### Source-record spotlights Most engaged source Perforated ulcer 🫩 source record 1382♥ 2 Later-arriving source I have Fibromyalgia, hypermobility, ankylosing spondylitis. I suffer migraines, have had gallbladder done and even a spontaneous pneumotheoax. I also had kidney issues when younger as I Have two tubes from each kidney and it would back flow. I've also given birth with no meds. That was easy. The worst pain I've ever had and still do when it flares up is an excavated ulcer in my small intestine. Which has kick started off Inflammatory Bowel Disease. It's the most encompassing unrelenting pain I've ever experienced Wish it would fuck off posted about 18.4 hours after the source♥ 1 Low-like source Severe gastritis. I have GERD and recently ate chili too late at night. Woke up to 24 hours of the worst pain I've ever had in my life, worse than the runner-up of endometriosis on my bowel. posted about 3.6 hours after the source♥ 1 #### Related evidence elsewhere in the index [Bladder, kidney infections and the prostateChange the sentence · 6 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[CancerChange the sentence · 2 there](#rich-node-0-group-8-subgroup-0-cancer)[Depression and mental illnessChange the sentence · 4 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness) #### What the counts show Across 30 source records, the most common observable tactic structure is “Change the sentence” (2 records). This is a wording pattern, not a measured outcome. 30index entries 30distinct source records 7.5%of parent category 0.8%of the complete index 29top-level comments 1replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 3asks a question 0says they intend to try it 26other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Change the sentence **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments30 preserved records · 30 of 30 source records accounted for **Perforated ulcer 🫩**♥ 2source record 1382 **Gastritis sucked**♥ 1source record 1602 **Stomach ulcers**♥ 1source record 1750 **I've had it once. I was vomiting for 16 days straight**♥ 1source record 1752 **H. Pylori since it took a lot to get diagnosed so I was throwing up constantly, it was painful to eat, and I was shitting blood for several months. And of course this then sparked Crohn’s disease, which also took months to diagnose.**♥ 1source record 1784 **H. Pylori. Took 3 months to diagnose ( 32 years ago).**♥ 1source record 1858 **Gastritis and/or pancreatitis. Thought I was dying in both cases. 1 star, would not recommend.**♥ 1source record 1895 **Gastritis 100%**♥ 1source record 1941 **Burst stomach ulcer and bowel, alongside critical anaemia, sepsis, an opioid addiction and blood clots in the lungs at the same time. Combine that with icu delirium (for 2 and a half weeks) and you've got a recipe for pain and trauma. The mental stuff hurt worse actually**♥ 1source record 2364 **Perforated ulcer**♥ 1source record 2432 **Stomach ulcer when I was 10 or a fucked up tooth that made me bawl like a child as an adult from the pain**♥ 1source record 2498 **Idk what mine is, exactly. But imagine your whole stomach and esophagus just BURNING constantly for weeks on end, always feeling nauseous when you eat (even just crackers and water). Yeah, that.**♥ 1source record 2528 **Severe gastritis. I have GERD and recently ate chili too late at night. Woke up to 24 hours of the worst pain I've ever had in my life, worse than the runner-up of endometriosis on my bowel.**♥ 1source record 2556 **When I randomly get ulcers in my esophagus and cannot swallow. That and an abscessed tooth.**♥ 1source record 2751 **Perforated ulcer 5 days post csection.**♥ 1source record 2759 **Stomach ulcer**♥ 1source record 2784 **Gastritis attack- they thought it was pancreatitis. The pain was so horrifically intense that I went to the emergency room because I was literally yelling in pain and crying. They ended up doing a bunch of tests and my lipase level came back three times normal. So they assumed all of that that it was pancreatitis, but it actually was gastritis because the pain subsided significantly with a G.I. cocktail and a IV of Protonix and Pepcid. I think it was possibly. It was so odd though because I swear I had so many staff members coming in because they couldn’t believe that I didn’t drink at the time we believed it was pancreatitis, so they kept saying are you sure you don’t drink alcohol? I’m like yeah I’m pretty sure that I don’t drink lol. That pain was horrible though. One of the worst pain I’ve ever remember was having an abscessed tooth though. I used to get them a lot when I was a child, unfortunately genetics in my family is notorious for having dental issues. I remember the horrible pain of that as a child though.**♥ 1source record 2802 **GERD**♥ 1source record 2803 **Helicobacter pylori (H. pylori). Felt like I was constantly swallowing needles. The treatment? The biggest antibiotic pills I've ever seen. Could barely eat or drink.**♥ 1source record 2848 **Mustery abdominal pain that I still never learned what it was 🙃 got no help at all it may have been a stomach ulcer though but I was screaming in the ER felt like a hot knife twisting inside of my stomach and intestines**♥ 1source record 2879 **I have Fibromyalgia, hypermobility, ankylosing spondylitis. I suffer migraines, have had gallbladder done and even a spontaneous pneumotheoax. I also had kidney issues when younger as I Have two tubes from each kidney and it would back flow. I've also given birth with no meds. That was easy. The worst pain I've ever had and still do when it flares up is an excavated ulcer in my small intestine. Which has kick started off Inflammatory Bowel Disease. It's the most encompassing unrelenting pain I've ever experienced Wish it would fuck off**♥ 1source record 3080 **Stomach ulcer.**♥ 1source record 3286 **Gastritis**♥ 1source record 3416 **Gastritis is one of the worst things you can experience for weeks. Its inflammation of the lining of your stomach and intestine. It can last upto a couple weeks of just throwing up everything. The one time I had it, my potassium got so low it felt like if I threw up one more time my heart was going to stop.**♥ 1source record 3486 **Chronic gastritis. Horrific stomach pains until violent diarrhea would come out to relieve it, could take hours. Then repeat every single day.**♥ 1source record 3640 **Acute gastritis. Worse than a kidney stone, not as bad as unmedicated, horribly protracted childbirth.**♥ 1source record 3747 **GERD. Feels like my stomach acid was trying to burn right through my chest**♥ 1source record 3800 **H pylori**♥ 1source record 3829 **My stomach ulcer. Still have it.**♥ 1source record 3877 **\[A Perforated Stomach Ulcer\](\[link removed\] 😖 ..basically an ulcer had eaten a hole right through the wall of my stomach, stomach acid burst out into my abdomen. \*What does stomach acid whooshing around your insides feel like you ask?\* Well, imagine boiling hot liquid acid churning around burning your internal organs and even the slightest movement intensifies the pain. I’m incredibly lucky that today all I have to show for it is a tiny keyhole surgery scar hidden inside my belly button that you can barely even see. If the perforation had involved a different part of my bowel, or caused more extensive damage, I could potentially have needed a stoma. And if I hadn’t received medical attention as quickly as I did, I genuinely could have died from complications like peritonitis and sepsis. My surgeon put it into perspective for me: around 100 years ago, even with the best medical care available at the time, a perforation like this was fatal. Even 40–50 years ago, mortality was considerably higher than it is today about 20%.**♥ 1source record 3934 Archive: 30 index entries preserve 30 distinct source records · Every displayed synthesis count resolves to source-record IDs Norovirus, food poisoning and stomach bugs81 index entriesThe short, violent illnesses writers apologise for nominating and then nominate anyway. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Norovirus, food poisoning and stomach bugs Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Norovirus, food poisoning and stomach bugs 81 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1210 **Appears when:** Norovirus, food poisoning and stomach bugs **What the pattern means:** The group with the most self-deprecation attached to it: writers apologise for nominating something so ordinary, then describe cramping severe enough to make them consider an emergency department, hours on a bathroom floor, and abdominal muscles that stayed sore for weeks afterwards. Two things recur — the total loss of dignity, described almost cheerfully, and the fear that they were actually dying, which several attribute to how fast dehydration arrived. **What commenters described:** Agree. The pain was up there with childbirth. I had such bad cramps with food poisoning that I thought I was going to pass out from the pain. When it was over, my abdominal muscles were sore for weeks from all the cramping. **Limit:** These are short illnesses recalled at a distance and, in several cases, never diagnosed — writers use norovirus, food poisoning and stomach flu interchangeably. Nothing here identifies which infection anybody had or when a stomach bug needs medical attention. What the replies added1 Was gonna comment this. Had it almost a month ago. Ruined my holiday. Stomach was in agony, couldn’t eat literally anything, barely kept water down. Never again Reported failure♥ 2 #### Where commenters report limits Explicit limit or counterpoint 3 years ago I got food poisoning. Not that shit people say they have hen they get a little upset tummy and call out of work. I'm talking full blown side saddle on the toilet with my head in the bath tub. For 3 days non stop. Water was in and back out. Nothing was coming out of be beside stomach acid, which burned like hell. Stomach felt like it was turning into stone, any pipes leading to and from it were on the verge of melting. My teeth were so sensitive that room temp water hurt. It was like a light switch, pissed before going to bed, got in bed and exorcist vomited all over the room with zero warning. source record 4097♥ 1 #### Source-record spotlights Most engaged source Mine seems mild compared to everyone else, but food poisoning. Felt like my whole body was on fire the next day, the chills I had and aches in my legs made me seriously consider a&e source record 299♥ 31 Later-arriving source No, I get that 100%! So I ended up with a stomach virus, which I thought would be like you know one or two days kind of feeling like crap and then I’d get better. It ended up lasting over seven days and I was so sick. I was like on the bed just couldn’t eat kept going to the bathroom. I turned out. It was like actually an infection like a bacterial infection and I had to go to the emergency room and get put on antibiotics and it did work. Food poisoning can be deadly too especially depend depending on the type of bacteria that’s introduced so it doesn’t surprise me that you literally felt like you were probably gonna freaking fall over. I’m sorry you had to deal with that. posted about 4 days after the source♥ 1 Low-like source Blasting vomiting and diarrhea+ very bad fewer (39.5°C). And the feeling after circumcision (removing stitches at home was very NOT fun experience), when I was 10\. Last one though... I was awake and have seen everything what doctor done. Surprisingly, I wasn't scared at all. Just curious. But couple hours after... posted about 4.1 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 81 source records, the most common observable tactic structure is “Attach it to an existing routine” (4 records). This is a wording pattern, not a measured outcome. 81index entries 81distinct source records 20.4%of parent category 2.2%of the complete index 74top-level comments 7replies #### What commenters explicitly report 1explicitly reports a benefit 1explicitly reports a limit or failure 2asks a question 0says they intend to try it 77other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments81 preserved records · 81 of 81 source records accounted for **Mine seems mild compared to everyone else, but food poisoning. Felt like my whole body was on fire the next day, the chills I had and aches in my legs made me seriously consider a&e**♥ 31source record 299 **Norovirus. I’ll take Covid back to back before that again.**♥ 7source record 390 **Had food poisoning twice now and it’s AWFUL 😭 def the worst thing I’ve ever experienced. (ended up with chills, a 104 fever, and couldn’t keep water down)**♥ 3source record 1182 **Was gonna comment this. Had it almost a month ago. Ruined my holiday. Stomach was in agony, couldn’t eat literally anything, barely kept water down. Never again**♥ 2source record 1200 **Agree. The pain was up there with childbirth. I had such bad cramps with food poisoning that I thought I was going to pass out from the pain. When it was over, my abdominal muscles were sore for weeks from all the cramping.**♥ 2source record 1210 **Yeah food poisoning is awful. Had it one time where I threw up every few minutes for hours and hours. Literally shaking and shivering, unable to get up from the bathroom floor or form a coherent sentence. Terrible.**♥ 1source record 1260 **No, I get that 100%! So I ended up with a stomach virus, which I thought would be like you know one or two days kind of feeling like crap and then I’d get better. It ended up lasting over seven days and I was so sick. I was like on the bed just couldn’t eat kept going to the bathroom. I turned out. It was like actually an infection like a bacterial infection and I had to go to the emergency room and get put on antibiotics and it did work. Food poisoning can be deadly too especially depend depending on the type of bacteria that’s introduced so it doesn’t surprise me that you literally felt like you were probably gonna freaking fall over. I’m sorry you had to deal with that.**♥ 1source record 1268 **I had typhoid once. That plus Covid plus flu. Still would pick the combination over norovirus**♥ 1source record 1349 **Norovirus. Put me in the hospital.**♥ 2source record 1407 **I feel weak saying this as it’s something pretty much everyone will experience probably at least once in life, but food poisoning. I’ve gotten it a few times and it wasn’t even serious—the stomach cramps and diarrhea weren’t long. But man… the intensity of the pain… I think I just cannot handle visceral pain. It makes me think I’m dying and then I gotta stop myself from panicking whilst having burning liquid shooting outta my ass and sweat pouring out of every pore. If I could pick one thing to never experience again, it’d be food borne illness of any kind.**♥ 2source record 1411 **Food poisoning**♥ 1source record 1630 **Gastro**♥ 1source record 1696 **Norovirus.**♥ 1source record 1718 **The Cyclospora infection and seasonal IBS**♥ 1source record 1722 **Luckily not an illness really, but Norovirus gave me such a sense of impending doom I'd have quite happily chosen to end it all if offered whilst I was in agony shitting out my own insides**♥ 1source record 1748 **E-Coli!**♥ 1source record 1777 **Severe stomach flu 5 days postpartum**♥ 1source record 1778 **Aside from childbirth which isn’t an illness I guess an episode of the GI’s.**♥ 1source record 1793 **Salmonella**♥ 1source record 1883 **Norovirus**♥ 1source record 1919 **Food poisoning from accidentally eating moldy bread... I was so weak and couldn't eat or drink anything without throwing it up. I even remember asking my mom if I'm dying**♥ 1source record 1989 **Stomach virus**♥ 1source record 2035 **E-Coli**♥ 2source record 2047 **Norovirus**♥ 1source record 2073 **i giardia that made me vomit every day with constant stomach pain that didn’t go away for nearly a year!**♥ 1source record 2075 **Montezuma's revenge, this was enough for me.**♥ 1source record 2207 **Not pain per se, but it was the scariest. I was about 25, so 11 years ago. I went to bed feeling fine. Nothing strange or unusual. I woke up at about 3 am and I was freezing. I felt odd, but didn’t think much of it I just grabbed more blankets. About 30 minutes later I woke up again and I couldn’t move. My teeth were chattering, and I felt exhaustion far beyond anything I’ve ever felt before or since. I was so cold I couldn’t believe it. This was the middle of fall too, it was warm outside… and I love the cold. I love my temps colder than most people. Being cold isn’t uncomfortable to me. But it was then. My exhausted brain couldn’t understand what was happening. I lay there for a bit trying to process it. Eventually I figured something was wrong and, at the time I was staying with my mom while college was on break, and I tried to yell for her but I couldn’t get my voice to get loud enough. Eventually I put everything I had into crawling out of bed, literally crawling, to knock on her door until she woke up. She found me shivering on the floor. She said she could see my limbs shaking. Scared the shit out of her as you’d imagine. I just kept saying I was so cold. She helped me back into bed and brought her space heater out and turned it on full blast then took my temperature. I had a fever of 104.something. I eventually stopped shivering but the weakness didn’t go away for a few days. I’ve never been sick like that before or since. Nothing with those symptoms. Never found out what was wrong. Some kind of virus I suppose. The actual most painful sickness I’ve had was a couple years ago I caught the norovirus. And I’ve never been in more pain in my life. I’m someone who doesn’t tolerate nausea or stomach pain very well anyway, and this far exceeded any flu or stomach bug I’ve ever had. I called my doctor and they told me it was going around and it sounded exactly like that. standard sickness protocols, fluids bed rest, etc. but the pain was soo bad. That is not a memory that I cherish. I was sick for a few days then too.**♥ 1source record 2277 **Six weeks of undiagnosed Giardia. The stomach pain was insane! Mid 80's, couldn't afford a doctor bill.**♥ 1source record 2308 **I had some sort of stomach flu for about four days when I was 20\. I could barely keep water down let alone anything else. I had to sit perfectly still in the fetal position upright or I would throw up anything I ingested. Move to get a sip of water? Vomit. Slightly shift position? Vomit. Scratch my head? Vomit. I actually thought I was going to die. Didn't have health insurance at the time so didn't go to the hospital even though I probably should have.**♥ 1source record 2346 **When I was pregnant, about 15 weeks in on Halloween I woke up with the most intense pain gastrointestinal pain. I thought I was gonna miscarry. Woke up moaning in agony. Thankfully the ER was 2 seconds away. Was in there all night. I genuinely can’t explain how painful this was. Hours after the first shift started and their was an ultrasound tech they checked everything all my organs and the baby was okay…..it was fucking indigestion. Never been more embarrassed in my life but I’m also not kidding when I was contemplating death. Child birth was easier than what I was feeling that night.**♥ 1source record 2353 **Norovirus**♥ 1source record 2400 **I ate leftover ramen and had food poisoning for a week.**♥ 1source record 2434 **Dysentery**♥ 1source record 2452 **E Coli in Bali**♥ 1source record 2467 **Not me but my wife had shigella dysentery after a visit to Costa Rica, and she said it was worse than anything she has ever experienced including her entire pregnancy. I was so concerned she was going to die from it as well.**♥ 1source record 2477 **Salmonella poisoning**♥ 1source record 2546 **Food poisoning. We narrowed it down to mushroom risotto from Aldi. The most horrific 8+ hours my wife and I both have experienced. After the initial bouts both sitting on and bending over the toilet, all solid mass had left my body, and I was reduced to semi-dry heaves and yellowish liquid diarrhea. I eventually gave up, and spent over an hour standing in the shower and just let my body drain itself. Any semblance of dignity had long dissipated, and I basically stood in a constant-flow toilet while my guts refused to stop convulsing, attempting to push something….anything…through both bodily exits. Hours later it finally stopped, and I collapsed in bed. I’ve run marathons, triathlons, ridden a bike over 100 miles (many times)…and this was the most beat-up I’ve ever felt in my life. So yeah, it sucked. Oh, and my wife was sick too.**♥ 1source record 2564 **Norovirus 🤢**♥ 1source record 2574 **Food poisoning in Venice Italy. I don’t know how a bowel problem could Produce waves of pain and illness throughout the body that made me want to die to end it. All within hours of having to catch a flight.**♥ 1source record 2601 **Campylobacter infection.**♥ 1source record 2625 **I had a tummy ache that was so bad I had to go the hospital and they gave me morphine. All they said it was is “gastroenteritis,” which really is just the technical term for a tummy ache. It went away the next day and was probably caused by me eating expired baby carrots or something idk.**♥ 1source record 2640 **Norovirus**♥ 1source record 2666 **Salmonella ✌️🥀**♥ 1source record 2689 **Salmonella poisoning. Thought my husband and I were going to die 3 weeks after I gave birth. 😢**♥ 1source record 2754 **IBS / SIBO**♥ 1source record 2793 **Food poisoning in the hospital for 10 days**♥ 1source record 2796 **Salmonella poisoning which started on the morning of moving from Cali to Texas, mixed with an allergic reaction to the medication they gave me to cure it.**♥ 1source record 2815 **Cryptosporidium, worst 3 and a half weeks of my life**♥ 1source record 2857 **food poisoning during a 3 hour road trip through the mountains**♥ 1source record 2876 **Dysentery. I had excruciating abdominal pain and something I distinctly remember was my fever was so high that I felt freezing cold, like the only way I can describe it is the burning sensation you get if you put ice directly on your skin…all over my body.**♥ 1source record 2985 **Norovirus. I literally wanted to throw myself off my balcony on day 2**♥ 1source record 3006 **I started getting an intolerance to dairy randomly. I had a large helping on icecream. The pain, abdominal swelling from gas, diarrhea, sweating was so painful that I passed out on the toilet. I suffer from endo and pcos and this pain topped that.**♥ 1source record 3021 **Not sure what exactly I had I’m assuming some kind of food poisoning but I woke up one day so sick I was puking all day long and night puking in the shower not to mention I actually shit my pants twice it was so awful and humiliating the next day I woke up perfectly fine again.**♥ 1source record 3090 **Not necessarily pain, but I had an ecoli infection . I didn’t pee for 12 days. I was on the toilet every 90 minutes day or night . Couldn’t eat more than a few bites . Took me a month to get somewhat back to normal.**♥ 1source record 3130 **honestly run of the mill excess-fiber-related gas, probably. that stuff has had me literally contemplating going to the ER on multiple occasions when I didn't realize it was just death by Fiber One bar**♥ 1source record 3150 **Severe food poisoning that landed me in hospital. Honestly the pain was everywhere. My a\\\*se was raw, my stomach felt like someone had turned it inside out and played football with it, I pulled my diaphragm retching, cracked a rib and gave myself a concussion when I passed out from dehydration, the concussion caused a series of migraines and memory loss, the chapped, bleeding lips from the dehydration lasted ages, and it was weeks before I actually felt warm again. Also took forever for the skin on my face to return to normal, it was just sort of sagging and yellow looking for months afterwards because my kidneys were buggered.**♥ 1source record 3233 **Food poisoning**♥ 1source record 3274 **Listeria**♥ 1source record 3322 **Food poisoning.**♥ 1source record 3389 **Eating a bad oyster at happy hour in Los Angeles 🤢**♥ 1source record 3409 **Ecoli was the worst 2 weeks of my life followed by a colonoscopy a few months later to check for permanent damage 😅**♥ 1source record 3469 **Giardia. Never wanted to eat again. Got it from some bad water in Europe, then had a flight to Australia. Suffered with it through Australia. Took two treatments to kill the buggers when I got home. It’s essentially stabbing, rolling on the floor stomach cramps every time you eat anything, and immediate diarrhea. And my symptoms could have been worse, like blood. If you have \*one\* of them in your gut, you’re sick. I know there are worse things, like kidney stones, grateful I haven’t had those.**♥ 1source record 3490 **Food poisoning! Also vascular leg issues.**♥ 1source record 3543 **Some kind of bug that I was given Zithromax for and \*that\* gave synchronized vomiting and diarrhea, did not know which end to put over the toilet first.**♥ 1source record 3627 **The 24 hour stomach bug. Hunched over from absolutely agonising stomach cramps, whilst on the toilet, whilst vomiting and getting cold sweats. I remember thinking this was worse than being in labour because it was constant and zero respite**♥ 1source record 3649 **Diarrhea and Vomiting. I couldn't leave the bathroom.**♥ 1source record 3766 **Campylobacter food poisoning. Worse than childbirth. Nearly died from it, hospitalized etc. The stomach pains were horrifying. The coming out both ends at the same time. Not being able to keep down water. Losing 2 stone in 3 weeks. Brutal. Stay away from KFC.**♥ 1source record 3816 **food poisoning**♥ 1source record 3850 **Raw Oysters on my birthday. Ended up with the worst case of Vibrio food poisoning ever. Wife got it too. I’ve eaten raw oysters since I was a teen and had food poisoning prior…it was insanely bad. I had to make choices those 3 days no sane person should ever have to make. To this day (10 years later) I haven’t eaten a single raw or cooked oyster. I never will again.**♥ 1source record 3921 **IBS**♥ 1source record 3949 **Shigella**♥ 1source record 3959 **food poisioning**♥ 1source record 3977 **Food poisoning. Lost 10% of my boy weight in a little over 12 hours. Took me months to recover. Also when I learned to despise homeopathic doctors.**♥ 1source record 4014 **Food poisoning 💀**♥ 1source record 4033 **3 years ago I got food poisoning. Not that shit people say they have hen they get a little upset tummy and call out of work. I'm talking full blown side saddle on the toilet with my head in the bath tub. For 3 days non stop. Water was in and back out. Nothing was coming out of be beside stomach acid, which burned like hell. Stomach felt like it was turning into stone, any pipes leading to and from it were on the verge of melting. My teeth were so sensitive that room temp water hurt. It was like a light switch, pissed before going to bed, got in bed and exorcist vomited all over the room with zero warning.**♥ 1source record 4097 **E-coli**♥ 1source record 4136 **Got food poisoning in New Mexico and literally almost died. Throwing up every 10 mins and each time made the pain worse**♥ 1source record 4151 **Blasting vomiting and diarrhea+ very bad fewer (39.5°C). And the feeling after circumcision (removing stitches at home was very NOT fun experience), when I was 10\. Last one though... I was awake and have seen everything what doctor done. Surprisingly, I wasn't scared at all. Just curious. But couple hours after...**♥ 1source record 4161 **\*Shigella -\* had as a child and I never want to have again**♥ 1source record 4169 **IBS. Flareups feel like giving birth to a bunch of serrated knives**♥ 1source record 4176 **SAME! Got the food poisoning UTI double whammy**♥ 1source record 4321 Archive: 81 index entries preserve 81 distinct source records · Every displayed synthesis count resolves to source-record IDs Gastroparesis, cyclic vomiting and guts nobody could name27 index entriesRecurring vomiting and gut pain without a clean diagnosis attached to it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Gastroparesis, cyclic vomiting and guts nobody could name Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Gastroparesis, cyclic vomiting and guts nobody could name 27 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2419 **Appears when:** Gastroparesis, cyclic vomiting and guts nobody could name **What the pattern means:** What holds this group together is the absence of a clean diagnosis. Writers describe cycles rather than episodes — days of retching with nothing to bring up, dehydration, and the anticipation of the next bout — and several describe years of tests that found nothing. A recurring complication is that the coping strategy makes it worse: drinking to have something to vomit, or a medication that turned out to be the cause. **What commenters described:** I have cyclic vomiting syndrome. I vomit for 4-5 days at a time even if nothing is coming out, the heaving still happens. I get so dehydrated because of it and for some reason, it’s a common action of people with CVS to try and chug water or something to at least give something to vomit up but it only hinders you further. The exasperated pains I normally have, throbbing migraine from dehydration & severe muscle pain from all of the retching IS the worst thing I’ve ever dealt with. **Limit:** Several conditions with different causes are grouped here because their writers describe them the same way; that is an editorial grouping, not a medical one. Nothing here identifies any of them or indicates a treatment. What the replies added2 I commented above, thinking I might have been having a gallbladder attack. The way people were commenting, I knew my pain wasn’t what they were experiencing. Their stories sounded terrible, nightmarish. But I didn’t know what was happening. It was Vasovagal syncope. You just described everything I was experiencing. Sorry you have that, I have had it too. Luckily it isn’t gallbladder attack, but still sucks to get From the replies♥ 2 Gastritis? Crohn’s disease? Is there a particular trigger food? I finally realized my gastrointestinal issues are due to a food intolerance to alliums- onion, garlic, leeks, chives, scallions/green onions, shallots, etc. I’ve drastically reduced consumption, with the sole exception of garlic- I just don’t use a lot and it has to be well cooked. I’m feeling a lot better now. From the replies♥ 1 #### Source-record spotlights Most engaged source So sometimes when my insomnia flares up and I don't get enough sleep, my gut gets very angry and I get sudden, intense diarrhea with cramps that trigger vasovagal syncope. Basically I pass out from the pain while breaking out in a cold sweat on the toilet. It's miserable. source record 156♥ 7 Later-arriving source Unironically... lactose intolerance posted about 4 days after the source♥ 1 Low-like source Bile acid malabsorption posted about 4.0 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 27 source records, the most common observable tactic structure is “Use a sensory reset” (2 records). This is a wording pattern, not a measured outcome. 27index entries 27distinct source records 6.8%of parent category 0.7%of the complete index 24top-level comments 3replies #### What commenters explicitly report 1explicitly reports a benefit 0explicitly reports a limit or failure 2asks a question 0says they intend to try it 24other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments27 preserved records · 27 of 27 source records accounted for **So sometimes when my insomnia flares up and I don't get enough sleep, my gut gets very angry and I get sudden, intense diarrhea with cramps that trigger vasovagal syncope. Basically I pass out from the pain while breaking out in a cold sweat on the toilet. It's miserable.**♥ 7source record 156 **Cyclical Vomiting Syndrome. I had HG while pregnant, and CVS is literally that, but for the rest of my life. Constant migraines, struggling to not become dehydrated and end up at the hospital for fluids \*again.\* Vomiting several times a day, so you avoid eating but then you're just painfully dry heaving... Any given episode is painful and deteriorates my mental health, but even good days are tinged with the fear of knowing good days are few and far between when I'll have this illness until I die.**♥ 5source record 444 **When I was a child I had a case of intestinal colic- basically weird sharp cramps and constipation. I didn’t have a blockage, just idiopathic spasms. Very peculiar experience for a 1st grader.**♥ 2source record 543 **I commented above, thinking I might have been having a gallbladder attack. The way people were commenting, I knew my pain wasn’t what they were experiencing. Their stories sounded terrible, nightmarish. But I didn’t know what was happening. It was Vasovagal syncope. You just described everything I was experiencing. Sorry you have that, I have had it too. Luckily it isn’t gallbladder attack, but still sucks to get**♥ 2source record 939 **CHS (cannabinoid hyperemesis syndrome)**♥ 2source record 1395 **An illness that still doesn’t have a name to it I’m constantly in pain with my stomach Struggling to eat because of it Always either constipated or shitting my guts Doctors have no clue what to do**♥ 1source record 1557 **This will sound silly but it was lactose intolerance. I suddenly developed it without realising after years of being fine with dairy. One day I had some super spicy chicken and some ice cream for dinner. Stomach started hurting and I thought it might be the spice so I… drank a big glass of milk. 12 hours in ER. Even codeine didn’t help much.**♥ 1source record 1887 **Visceral hypersensitivity. I went down on my Zoloft from 100mg to 75mg at doctors suggestion and 2 weeks later I was in the ER and I thought I was dying or had Crohn’s disease or something. It started out normal- just a dull crampy lower belly pain you’d get if you ate something that didn’t agree with you. But it didn’t stop. I had to sleep with a heating pad on my stomach to lessen the spasms and then the next day it was still there. I thought it was because I had been taking iron for anemia so stopped that immediately. By Friday I was unable to eat, unable to work, and just pacing my house sobbing trying to see if I should see doctor or ER because I didn’t want to be told it was anxiety. It felt like my insides were full of molten sand. I thought I was dying. I was panicking and just trying to breathe in the car the whole way to the ER and then I was in so much pain I physically could not sit down I had to pace or I was going to start wailing. CT scan suggested colitis they said get a colonoscopy and endoscopy and go home. We were back in the ER at midnight the next night because I couldn’t sleep due to the pain, and I could suddenly feel my bowels inside me “pulling” like I was trying to poop but I wasn’t. I was convinced I had an obstruction or something. The ER doc at midnight was a no bullshit kind of dude and was like “what do you want me to do? You don’t have an obstruction you had a scan yesterday.” I was like “I can’t sleep I can’t eat I can FEEL my insides crawling and pulling and it scares me.” Dude wrote me a script for antispasmodics. Bentyl/dicylomine. I went home and took them and got the BEST SLEEP ID HAD IN DAYS. I’m normally treated terribly in the ER but that was the best darn doctor I’d had even my husband has said if he takes me back there he wants that doctor because he actually listened and helped me.**♥ 1source record 2024 **Cannabinoid hyperemesis syndrome so much pain i didnt sleep for 11 days**♥ 2source record 2051 **Constipation**♥ 1source record 2077 **Typhlitis**♥ 1source record 2133 **Lower somach / upper intestinal infection. It felt like the pain of really bad gas, period cramps with a cyst, and like i was being stabbed in my stomach (i assume) and i was so nauseous. Afterwards my entire digestive system basically shut down and had to be restarted. I lost so much weight and couldnt gain it back for years i was skeletal and kept getting referred for eating disorders when in reality apparently the spot i had the infection is where GLP1s are naturally created(?) and a common bacteria in kitchen sinks tried to kill me. Without medical intervention i would have died from that for sure but I probably should have been given more assistance than I had because it took me over 6 years to fully recover. Edit: adding that i have had an IUD perforating my uterus and even that didn't hurt as bad as this infection did.**♥ 1source record 2269 **I have cyclic vomiting syndrome. I vomit for 4-5 days at a time even if nothing is coming out, the heaving still happens. I get so dehydrated because of it and for some reason, it’s a common action of people with CVS to try and chug water or something to at least give something to vomit up but it only hinders you further. The exasperated pains I normally have, throbbing migraine from dehydration & severe muscle pain from all of the retching IS the worst thing I’ve ever dealt with.**♥ 1source record 2419 **I have Cyclic Vomiting Syndrome. Once a bout starts, my collar bones hurt like no other then after I am done it hurts to swallow for days after.**♥ 1source record 2578 **Stomach issues, still don't know what it is... But I had to go to the ER once, because it was too much, and blood came out down there. And the depression.**♥ 1source record 2706 **I wouldn't call it painful, but it is extremely miserable during an episode. Cyclic Vomiting Syndrome makes me feel like I would rather just be dead than be stuck in a cycle of nausea, vomiting, cold sweats, sleeplessness, etc. For a while I was having an episode every 6 weeks and they last a week or two each not counting the week or so of recovery. I'm much better now and identified one of my medications to help control it was actually making it worse. I haven't had an epidose since I stopped taking that back in May so here's hoping I can have some semblance of a life again. I was also denied disability because apparently constant nausea and vomitting every 15 minutes for days on end is not "severe enough" to prevent me from working.**♥ 1source record 2711 **Gastroparesis. My throat, chest and upper stomach start burning and hurting (also because of the vomit). Haven't had a flare up since April! I was a T1D for 25 years, battled chronic kidney disease, dialysis for a year and received my double transplant in 2020\. I'm very blessed to be alive today. My donor and their family are literal angels**♥ 1source record 2890 **Esophageal spasms. Felt like a heart attack.**♥ 1source record 2969 **Chronic illness - Celiac disease. I’ve had it for 20 years this year and wish it got easier with age. My symptoms after being exposed to gluten are very severe and often last for 2-3 weeks. I know I’ve been exposed to cross-contamination within 24 hours because my stomach becomes distended and hard, I have brain fog, I’m fatigued, my joints in my hands/feet and knees hurt so much that I can barely type on my keyboard, and I’m constipated. There are also stabbing abdomen pains that usually occur frequently throughout the weeks of recovery. Non-chronic illness - the original strain of Covid-19\. I caught it in March 2020 right before NYC shut down and started mandating PPE. I had the worst headaches of my life paired with a 100+ degree fever. I was told not to go to the hospital unless I couldn’t breathe because the hospital was the worst place to be at that time. I thought I was going to die because I was so sick. I became dehydrated, couldn’t eat regularly, hardly had energy to do anything, and experienced such intense brain fog that I thought I had developed memory loss for months afterwards.**♥ 1source record 3085 **Gastroperesis is def ruining my will to live atm**♥ 1source record 3112 **I remember getting really sick after some nuts and/or Chinese, which had me so under the weather I couldn’t post stuff online, but the exact pain level/intensity is lost to time for me. More recently I had a stomach bug or food poisoning, within the last year or two I think. I remember resisting the urge to puke (I received Communion earlier that evening and was scared) and thinking I was going to die. After reading the Host was most likely not distinguishable from its original form, I had a temperature, grew pale, and let it all out. It’s not my first introduction to vomiting. Due to stress and probably underlying conditions, I developed Cyclical Vomiting Syndrome. Imagine feeling ill and nauseous a day or two before work, having vomiting attacks, and then that vomiting interrupts your work, as you’re working. Fortunately, it eventually got treated but it’s still lurking around as I had a slight relapse when I ran out of meds for it.**♥ 1source record 3139 **Gastroparesis and I've had endometriosis. There's no comparison.**♥ 1source record 3157 **CHS**♥ 1source record 3267 **Median Arcuate ligament syndrome**♥ 1source record 3390 **Unironically... lactose intolerance**♥ 1source record 3772 **Not an illness really but I guess it is close enough.. Esophageal spasm. Holy. Fuck. I forever feel horrible my mom had to call 911 seeing me on the floor in pain as a 20 year old grabbing my chest...**♥ 1source record 3882 **Bile acid malabsorption**♥ 1source record 4081 Archive: 27 index entries preserve 27 distinct source records · Every displayed synthesis count resolves to source-record IDs C. difficile, and what the antibiotics left behind26 index entriesAn infection several writers say arrived after a course of antibiotics taken for something else. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: C. difficile, and what the antibiotics left behind Source-backed answers are shown before diagnostics; the complete source archive remains below. #### C. difficile, and what the antibiotics left behind 26 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 480 **Appears when:** C. difficile, and what the antibiotics left behind **What the pattern means:** A group defined by its cause rather than its site: writers took antibiotics for something minor — a sinus infection, an ear infection, a wound — and describe what followed as worse than what they were treating. The C. difficile accounts describe stabbing gut pain, months of recurrence, isolation rooms and, in several cases, near-death. Alongside them sit writers who attribute lasting damage to a specific drug class. **What commenters described:** C diff. Felt like someone was stabbing me over and over in the gut and twisting the knife. Dilaudid didn’t fully get rid of the pain but it did knock my ass out and give me nasty withdrawals for a month after I left the hospital. Before that though, c diff almost killed me. **Limit:** These are individual accounts of adverse outcomes, and they say nothing about how common such outcomes are or whether the drugs were the cause. This is not a reason to stop or avoid a prescribed medicine, and nothing here identifies C. difficile. What the replies added2 Horrific isn't it, took me best part of a year, all thanks to 3 days of augmentin for a dumb sinus infection.. It was 23 yrs ago and I've had antibiotics twice since then, other than prophylactic before surgery a few times. Only when absolutely vital, luckily where I live now they check bloods for bacterial vs viral every time. From the replies♥ 1 Three times is crazy, I’m sorry! I only just finished my steroid course (had this end of April). It’s awful! From the replies♥ 1 #### Source-record spotlights Most engaged source C diff. Felt like someone was stabbing me over and over in the gut and twisting the knife. Dilaudid didn’t fully get rid of the pain but it did knock my ass out and give me nasty withdrawals for a month after I left the hospital. Before that though, c diff almost killed me. source record 480♥ 3 Later-arriving source Fluoroquinolones toxicity. Devastating and painful disease caused by a rare reaction to an antibiotic. Caused full-body Tendinopathy, tendon rupture, neuropathy, dysautonomia, chronic fatigue and about 20-30 other symptoms for me. 12 months so far. posted about 30.2 hours after the source♥ 1 Low-like source C. difficile. Also chickenpox as an adult, never had it before and didn’t realize it can kill an adult without medication, you can’t just ride it out like you did when you were a kid lol, but the pain from the C Difficile was brutal as well posted about 9.8 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 26 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 26index entries 26distinct source records 6.5%of parent category 0.7%of the complete index 23top-level comments 3replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 3asks a question 0says they intend to try it 23other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments26 preserved records · 26 of 26 source records accounted for **C Diff**♥ 10source record 374 **C diff. Felt like someone was stabbing me over and over in the gut and twisting the knife. Dilaudid didn’t fully get rid of the pain but it did knock my ass out and give me nasty withdrawals for a month after I left the hospital. Before that though, c diff almost killed me.**♥ 3source record 480 **C Diff**♥ 2source record 1417 **Horrific isn't it, took me best part of a year, all thanks to 3 days of augmentin for a dumb sinus infection.. It was 23 yrs ago and I've had antibiotics twice since then, other than prophylactic before surgery a few times. Only when absolutely vital, luckily where I live now they check bloods for bacterial vs viral every time.**♥ 1source record 1447 **C. Diff**♥ 2source record 1476 **Got prescribed Cipro by my doctor and lost the ability to walk for 2 years… a lot of people never get to walk again. Turns out the tests were negative and I didn’t even need it.**♥ 2source record 1501 **C. Diff**♥ 2source record 1662 **C Difficle, it is a toxic, terroristic bacteria that invades your digestive system, reproduces 1000 times faster then bunnies and tries to kill you. It took me 8 months of fighting it to be all right again. It takes 3000 lives a year**♥ 1source record 1725 **C diff. Wanted to die**♥ 1source record 1803 **C diff**♥ 2source record 1854 **cdiff**♥ 1source record 1897 **Severe bacterial infection in the colon**♥ 1source record 1920 **Can't envy that.. I had C Diff when I was 25, it recurred 3 times, took 3 lots of vancomycin to get rid of it. Last course was double dose for 4 weeks. Still look an 8 week steroid course to settle down the inflammation it created.**♥ 1source record 2384 **stomach burns from an incorrect prescription. got told to take a high dose anti inflammatory painkiller in sets of 3, 3 times a day. it was supposed to be 1 painkiller for 3 days. mum and stepdad thought i was lying for days to get out of my gcse exams and also kept forcing me to take the medication. stepdad had enough and made my mum call the ambulance which she did to "prove me wrong" 30 minutes later im being doped up on morphine in the emergency room as they prep a theatre because they thought my appendix burst and gave me sepsis. nope! severe burns across my entire disgestive track, blood pressure though the roof, kidneys werent working, heart rate was fucked. pretty much on the verge of a heart attack and a stroke. only thing that saved me was the constant consumption of edibles lol, kept my blood pressure and heart rate just low enough that i didnt die. ate a lot of activated charcoal, lots of things in an IV that i dont remember because the morphine was pretty nice, 2 months off school, a life long ban of anti inflammatory medication. had to stay on codeine for about 18 months afterwards this was 16 years ago now. my kidneys dont work super well, i have GERD and i may have gastroparesis but all in all i think i got a pretty lucky escape considering i was essentially overdosing for over a week. and now im no contact with mum, and no i dont talk to that stepdad. it was pretty much the only good thing he did, he wasnt a kind or good person. so yeah, pretty painful physically and emotionally but hey ho**♥ 1source record 2437 **C diff was pretty bad but the osteoarthritis is a gift that keeps on giving**♥ 1source record 2660 **C. difficile. Also chickenpox as an adult, never had it before and didn’t realize it can kill an adult without medication, you can’t just ride it out like you did when you were a kid lol, but the pain from the C Difficile was brutal as well**♥ 1source record 2680 **Gastroparesis and C-Diff together 💔**♥ 1source record 2966 **Can I answer with a treatment? I got an infection a while back, nothing major and very little symptoms, but they put me on Ciprofloxacin and that drug beat the HELL out of me. I got severe headaches, acid reflux so bad I was waking up in the middle of the night to puke pure bile, all my joints hurt, old scars hurt like the day I got them, I could barely get off the couch for 6 weeks, I was so weak. A couple years later, a friend of mine put a drill through his hand, wound up getting prescribed Cipro too. I warned him of all the shit I went through and he just brushed it off. A week of no contact later and I just get a message from him: "you were right". Oh yeah, I didn't get this one but Cipro can also make your Achilles tendon explode! Fun times. Fuck that drug.**♥ 1source record 3089 **Fluoroquinolones toxicity. Devastating and painful disease caused by a rare reaction to an antibiotic. Caused full-body Tendinopathy, tendon rupture, neuropathy, dysautonomia, chronic fatigue and about 20-30 other symptoms for me. 12 months so far.**♥ 1source record 3282 **CDIFF**♥ 1source record 3301 **C Diff**♥ 1source record 3307 **Benzodiazepine-induced neurological dysfunction (BIND). It honestly needs more attention. It's one of a handful of diseases in which you can't visualize the damage. Pretty convenient for Big Pharma and the medical establishment to get away with since the damage happens at the cellular level and so conventional techniques like MRI, can't demonstrate the damage. Thus, as you can't visualize the damage sustained, you're going to have take the word of the patient. Well, since medical professionals like observing objective evidence, they don't. So, in a majority of the cases, they attribute the symptom(s) of patients as anxiety, depression, etc. Once the damage is done, there is no cure with conventional medicine (I suspect if we were to come up with a long-term cure it would be tied to changing the signalling of the GABA receptors, which is why TMS could reverse some kindling effects in some studies). The GABA receptors are sensitized for life, so it's an illusion when one becomes asymptomatic. It's worse than alcohol kindling since you don't only become sensitized to alcohol, but to things such as life-saving measures such as medicines/vaccines. This means that you could be at risk of having a return of symptom(s) should you get ill in the future. I say this is the most painful illness I ever had because I fractured my leg in the past and would be willing to fracture both legs, or even give up both legs just to reverse the damage. Cancer patients with BIND, even admit that this condition is worse than their cancer. I don't want to say that I'm lucky, but I am definitely luckier than BIND patients with akathisia, burning mouth syndrome, tinnitus, and brain zaps. I don't think that if I were to get a setback from this disease that I would get akathisia, as my GABA receptors responsible for akathisia weren't sensitized. My GABA receptors that are sensitized only affect sleep, muscle twitches, and appetite. It is pure insanity that this disease has not received more recognition. Michael Jackson had it and people like Stevie Nicks, Jordan Peterson, and Jonathan Davis have it. This poison has been on the market for decades and the term for this disease only came out in 2023\. Insanity.**♥ 1source record 3746 **When I was 16, I had an ear infection and was prescribed antibiotics. A few weeks later, I had what I thought was just an “off” day with my stomach. I was having a lot of cramping and didn’t feel well, so I stayed home from school. I deteriorated \*\*very quickly\*\*. By the time my mom came home from work, she immediately knew something was seriously wrong and raced me to the hospital. They couldn’t figure out what was happening at first. I was in and out of consciousness, and the pain was honestly unlike anything I had ever experienced. I genuinely felt like I was dying. \*\*10,000/10, would not recommend.\*\* After about two days, they finally figured out that the antibiotics had triggered a severe \*\*C. difficile (C. diff) infection\*\*. I ended up hospitalized for several days. By that time I had been in sepsis. The pain had me BEGGING for someone to knock me out. Heck, I was ready to pass away at that point. After that experience, I was absolutely terrified to take antibiotics. I did well for several years, until the C. diff came back. This time it turned into recurrent episodes that lasted \*\*months and months\*\*. I went to different hospitals literally begging someone to help me. I lost a significant amount of weight, could barely eat, and couldn’t function normally. I ended up dealing with back-to-back episodes and treatment for \*\*over six months\*\*. Thankfully, I’ve now been \*\*C. diff-free for about two years\*\*, and I am SO grateful. It’s hard to explain C. diff pain to someone who hasn’t experienced it. It wasn’t just “a bad stomachache.” It was the kind of pain where you genuinely wonder if your body is shutting down. It’s still the most physically painful experience I’ve ever been through.**♥ 1source record 3896 **C diff was pretty awful**♥ 1source record 4028 **C Diff**♥ 1source record 4069 **Three times is crazy, I’m sorry! I only just finished my steroid course (had this end of April). It’s awful!**♥ 1source record 4352 Archive: 26 index entries preserve 26 distinct source records · Every displayed synthesis count resolves to source-record IDs Hernias6 index entriesA small group, mostly concerned with the wait for the operation. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Hernias Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Hernias 6 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1886 **Appears when:** Hernias **What the pattern means:** Six records, and the subject of most of them is the wait rather than the hernia. Writers describe living with it for months while queued for repair, and one ranks a hernia beginning to incarcerate above a gallbladder attack and pancreatitis he had also had. **What commenters described:** Inguinal hernia, hurt like hell and had to wait a year for surgery **Limit:** Six records is a thin base, and most state the condition without describing the sensation, so little can be read into the group. Nothing here identifies a hernia or indicates urgency. #### Source-record spotlights Most engaged source Double groin hernia source record 3920♥ 1 Later-arriving source Gallbladder attack/pancreatitis was horrible, but I think my hernia that was starting to incarcerate may have been worse. The gallbladder was a long time ago though, so maybe the hernia is just fresher on my memory. posted about 40.3 hours after the source♥ 1 Low-like source Incarcerated umbilical hernia. Thought I was gonna die posted about 22.8 hours after the source♥ 1 #### What the counts show This report keeps all 6 source records for Hernias together and surfaces traceable examples without converting anecdotes into proof. 6index entries 6distinct source records 1.5%of parent category 0.2%of the complete index 6top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 6other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments6 preserved records · 6 of 6 source records accounted for **Double hernia**♥ 2source record 1375 **Inguinal hernia, hurt like hell and had to wait a year for surgery**♥ 1source record 1886 **Herniated lower intestine. I thought I was going to die.**♥ 1source record 3110 **Incarcerated umbilical hernia. Thought I was gonna die**♥ 1source record 3175 **Double groin hernia**♥ 1source record 3920 **Gallbladder attack/pancreatitis was horrible, but I think my hernia that was starting to incarcerate may have been worse. The gallbladder was a long time ago though, so maybe the hernia is just fresher on my memory.**♥ 1source record 4054 Archive: 6 index entries preserve 6 distinct source records · Every displayed synthesis count resolves to source-record IDs The head, the face and the mouth361 records · 6 sub-topicsPain inside the skull, and the teeth, ears and nerves that feed it. 361 records. Cluster headaches47 index entriesDescribed through the specific things writers say they did to their own heads to make it stop. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Cluster headaches Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Cluster headaches 47 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 122 **Appears when:** Cluster headaches **What the pattern means:** The most physically specific answers in the corpus. Writers do not reach for a scale; they describe what they did to their own heads — pressing into the eye socket hard enough to bruise, trying to open the skull, a mother restraining a twelve-year-old. The nickname commenters attach to the condition appears repeatedly and unprompted. The other recurring subject is the cycle: writers describe attacks arriving nightly, seasonally, or every few years, and orient their lives around the calendar rather than the attack. **What commenters described:** Cluster headaches. It feels like someone is driving a railway spike through your head with a sledgehammer and no anaesthetic. **Limit:** Records here name oxygen, injections, supplements and psychedelics as things writers tried; those are personal reports, not evidence that anything worked, and this page is not a route to any of them. Nothing here distinguishes a cluster headache from another headache. What the replies added2 Oh man, I've only had one, but it was insane. I was 12, my mom had to restrain me because I tried stabbing myself in the temple with a pen, I was convinced I needed to open up my skull to relieve the pressure or I was gonna die. I thought that was the worst pain I could ever feel until I had a kidney stone last year that required emergency surgery. Somehow that topped the cluster headache, I seriously didn't think anything could be worse than that. I was so, so wrong. From the replies♥ 135 The nickname "suicide headaches" is accurate. The only thing that helps me is intense pressure into my eye socket, which cannot be good. It often gives me black eyes. From the replies♥ 100 #### Where commenters report limits Explicit limit or counterpoint God that suuuucks! I have random migraines and cluster headaches too. Makes you want to ram your head into a wall. I also unfortunately get Ice Pick Headaches. I'll just be doing whatever and BAM! like someone put a nail gun straight to my brain. Then just like that gone. When it happens, I basically look like I'm stroking out because I make a face like I'm winking and screaming for my life but there's no sound. And then I have a panic attack because my biggest fear is an aneurysm. source record 133♥ 28 Explicit limit or counterpoint cluster headaches, every year unfortunately. source record 2575♥ 1 #### Source-record spotlights Most engaged source Cluster headaches. It feels like someone is driving a railway spike through your head with a sledgehammer and no anaesthetic. source record 122♥ 589 Later-arriving source Thankfully maybe 2-4 times a year but that was the only time it was that bad. 💜 I wouldn’t wish it on my worst enemy. posted about 25.5 hours after the source♥ 2 Zero-like source Cluster Headaches, COVID-19, Kicked In The Balls, GERD, Pleurisy Pains, Cavity With Exposed Nerve Endings, 2nd Degree Burns From Coil In Oven And Glue Gun, Ear Infection, Once Had A PlayStation Fall Onto My Head As A Baby And Sprayed Blood Everywhere Like A Saw Movie, Stubbing My Pinkie Toe, Dropping A Heavy Glass Lid Onto My Big Toe, And The Nail Turning Black/Purple, Migraine, UTI, And that's just a few of them. posted about 4.7 hours after the source #### What the counts show The exact phrase “to relieve the pressure or” recurs across 2 of the 47 source records in Cluster headaches; the complete archive stays available below. 47index entries 47distinct source records 13%of parent category 1.3%of the complete index 23top-level comments 24replies #### What commenters explicitly report 1explicitly reports a benefit 2explicitly reports a limit or failure 2asks a question 0says they intend to try it 42other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments47 preserved records · 47 of 47 source records accounted for **Cluster headaches. It feels like someone is driving a railway spike through your head with a sledgehammer and no anaesthetic.**♥ 589source record 122 **The nickname "suicide headaches" is accurate. The only thing that helps me is intense pressure into my eye socket, which cannot be good. It often gives me black eyes.**♥ 100source record 123 **Same. I damn near tore my eye out trying to get enough pressure to fight the pain during my first cluster headache.**♥ 5source record 129 **Oh man, I've only had one, but it was insane. I was 12, my mom had to restrain me because I tried stabbing myself in the temple with a pen, I was convinced I needed to open up my skull to relieve the pressure or I was gonna die. I thought that was the worst pain I could ever feel until I had a kidney stone last year that required emergency surgery. Somehow that topped the cluster headache, I seriously didn't think anything could be worse than that. I was so, so wrong.**♥ 135source record 130 **God that suuuucks! I have random migraines and cluster headaches too. Makes you want to ram your head into a wall. I also unfortunately get Ice Pick Headaches. I'll just be doing whatever and BAM! like someone put a nail gun straight to my brain. Then just like that gone. When it happens, I basically look like I'm stroking out because I make a face like I'm winking and screaming for my life but there's no sound. And then I have a panic attack because my biggest fear is an aneurysm.**♥ 28source record 133 **Been dealing with them for 24 years now. I get clusters every 2 to 3 years for 5 months or so. I wouldn't wish this shit on my worst enemy. And there's people who are chronic and get them every day. I just can't imagine. I still have oxygen at my house from my cluster that ended a month ago. Oxygen is amazing for them.**♥ 10source record 135 **I was losing my mind with the pain! I told my husband to get our kid and leave the bedroom because I am sealing myself in. I was turning into a raging beast because had indescribable pain while needing to take prednisone. I can't even remember what transpired during that week. All I remember is anger and pain lol**♥ 3source record 136 **cluster headaches and chronic joint pain, i’ve had to walk around like it’s fine on days where my pain is at a level 7 or 8 and just walking around town can put me out of action for days**♥ 3source record 484 **Had them recur every late winter for many years. The only thing I could compare it to is a kidney stone.**♥ 3source record 879 **Not me reading this through blurry eyes and half awake after one. Should I be on the phone right now? No not at all but alas**♥ 3source record 882 **Okay I thought I was nuts… mine got so bad I would press into my temples as hard as I could until they would stop. I, too, would bruise badly.**♥ 3source record 893 **I had them start about when i was 10ish, and i had them for about 5 years, almost WEEKLY, and then for next couple years from time to time. Thankfully they have gotten way rarer now, but i still have them every couple months. And because of them ive become resistant to pain meds (cause i was using them so often) and now i need usually over 800mg of ibuprofen to even feel it do anything**♥ 2source record 905 **I also suffer from these. I've been on disability for 3 years because I can't function**♥ 2source record 907 **I don't think what I had was a cluster headache, because it only happened once, but I've had a headache like that and literally could do nothing but roll on the bathroom floor incoherent. I nearly called an ambulance, I've never felt anything like it. The fact that people get them \*regularly\* is genuinely scary.**♥ 2source record 909 **My FIL has severe cluster migraines, and has lived with them for almost 40 years. The man never complains, but at least once per month he’s debilitated in bed the entire day.**♥ 2source record 911 **I have chronic cluster headaches. It’s so hard to explain to someone who doesn’t get them. And the fact that nothing helps (have had injections in my neck to numb the nerve endings after 9 straight days once) is enraging.**♥ 2source record 913 **Cluster headaches are awful. I will say that after going into menopause, I don’t have them no where near as often anymore. I also am on the estrogen patch and that could also be helping. I don’t care which one is making them better as long as they stay away.**♥ 2source record 914 **that is a very good and accurate description of what cluster and migraine headaches feel like. i feel like most people don't understand that we aren't exaggerating when we describe them that way because it really does actually feel like that.**♥ 2source record 916 **Those are maddening, my husband once had to drive me to the ER in the middle of the night because I was just incoherent on the floor from the pain.**♥ 2source record 919 **The WORST. I had my first headache day in months yesterday and I almost forgot how bad they truly are**♥ 2source record 929 **I was considering taking a hammer to the bones around my eye and my cheekbones to relieve the pressure or at least have a different type of pain to distract me from my cluster headaches. Glad you didn’t end up opening your skull!**♥ 2source record 931 **My partner, who has been with me through chronic illness, surgery, and other random accidents, says cluster headache/migraines are the ONLY pain I experience that changes my personality and makes me irritable :( You simply cannot control it.**♥ 2source record 934 **Oof, I feel you there. I've spent many a day clawing at my left eye as it attempts to crawl out of my head. My deepest sympathies! 💜**♥ 2source record 935 **OMG, my deepest sympathies. My clusters stopped a couple of years ago. I still have chronic migraines, which hurt like a bitch, but compared to clusters, they're a walk in the park. I was offered oxygen therapy, but I'm still waiting for that to happen.**♥ 1source record 976 **Cluster headaches. if you know, you know.**♥ 2source record 1549 **Hormonal (cluster?) headaches. Migraines are a walk in the park compared to them. If I don't take painkillers early enough there's not much i can do but cry.**♥ 1source record 1735 **Cluster headaches**♥ 1source record 1867 **Cluster headaches**♥ 1source record 2062 **Cluster headaches or chronic testicle pain. Definitely understand why people call it a suicide headache. And the chronic pain feels like someone lit my sack on fire**♥ 1source record 2122 **Cluster headaches. got it since a kid and still have it**♥ 1source record 2246 **cluster headache**♥ 1source record 2260 **cluster headaches, every year unfortunately.**♥ 1source record 2575 **Chronic paroxysmal hemicrania**♥ 1source record 2667 **Not an illness per se, but cluster headaches. Sooo painful, literally rocking myself and crying. I’d say more painful than unmedicated childbirth because of the frequency (nightly for me) and duration.**♥ 1source record 2827 **Cluster headache**♥ 1source record 2829 **Cluster migraines with neuralgia too**♥ 1source record 2871 **This is hard. Cluster headaches are by far the most painful But Ndph is a migraine that never fades. It isn't as bad but I find lower constant pain worse than acute high pain.**♥ 1source record 3200 **Cluster headaches and it's not even particularly close**♥ 1source record 3296 **Cluster migraines. Thought I was having a stroke**♥ 1source record 3395 **Cluster headaches. Nothing else has come even remotely close.**♥ 1source record 3460 **I have daily cluster headaches. I’ve a rare form of them and have suffered with this for more than seven years now. I’ve had minor brain surgery to try and help and everything in between. Nothing has helped. Cluster headaches are widely regarded as the most pain a human can feel. I can attest to this… 😢**♥ 1source record 3549 **Cluster headaches**♥ 1source record 3576 **Cluster headache. Still have them.**♥ 1source record 3780 **Cluster headaches**♥ 1source record 3883 **I relate to this too much; I picture stabbing myself through the temple with an ice pick.**♥ 1source record 4188 **Thankfully maybe 2-4 times a year but that was the only time it was that bad. 💜 I wouldn’t wish it on my worst enemy.**♥ 2source record 4195 **Cluster Headaches, COVID-19, Kicked In The Balls, GERD, Pleurisy Pains, Cavity With Exposed Nerve Endings, 2nd Degree Burns From Coil In Oven And Glue Gun, Ear Infection, Once Had A PlayStation Fall Onto My Head As A Baby And Sprayed Blood Everywhere Like A Saw Movie, Stubbing My Pinkie Toe, Dropping A Heavy Glass Lid Onto My Big Toe, And The Nail Turning Black/Purple, Migraine, UTI, And that's just a few of them.**♥ 0source record 4418 Archive: 47 index entries preserve 47 distinct source records · Every displayed synthesis count resolves to source-record IDs Migraines and headaches that would not end77 index entriesMigraine answers, including the ones measured in weeks and months rather than hours. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Migraines and headaches that would not end Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Migraines and headaches that would not end 77 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 4174 **Appears when:** Migraines and headaches that would not end **What the pattern means:** The distinguishing claim in this group is duration, not intensity. Writers describe migraines measured in days, weeks, six months and, in one account, twenty years of near-daily attacks, and several say explicitly that they would take worse acute pain over pain that does not stop. The vestibular and ocular variants recur, described by what they take away — vision, balance, speech — rather than by how much they hurt. A persistent complaint is being told it is 'just a headache'. **What commenters described:** Chronic intractable migraines. It's not the worst accute pain, it's that it goes on and on and on. And migraine isn't a headache, it's a neurological disorder, so there is other pain (e.g. nerve pain) plus multiple other symptoms. Currently considering getting 32-34 Botox injections in my head, despite the 50-70% likelihood of a reduction in symptoms. At this point, I'd have a microchip implanted in my brain if it was an available treatment option. I'd rather more severe acute pain than bad chronic pain because at least the acute pain ends. **Limit:** Writers here use migraine for several different diagnoses and, in a few cases, for headaches that were never diagnosed at all. Medications named are what individual people were prescribed; nothing here is a treatment recommendation or a way to tell one headache from another. What the replies added1 I still have no idea what happened, but I got the worst migraine I've ever had when I was 12\. We were at an agricultural show of some kind (common where I live) and it kept getting worse, so I went to the truck to lay down. I don't really remember it because I was asleep and also in a lot of pain, but I remember at some point it felt like a bucket of lava had been dumped on my head and said lava was slowly cascading down my head and face and burning me. I also felt the same sensation in my hands and fingers, but I was more focused on my head. Fast forward to the next day, and I have blisters on my face. I looked like I'd broken out, but I hadn't hit puberty yet, and they were like the blister you get when you burn yourself. I also ended up shedding my fingernails from the cuticle upward. My nails separated from the nailbed at my cuticles and gradually lifted as the new nail grew in. It took about a month for my fingers to be back to normal, and I had to wear bandaids on my fingers pretty much constantly. Still the strangest thing that's ever happened to my body. Nearly 10 years later and I have no explanation. Reported failure♥ 2 #### Source-record spotlights Most engaged source Vestibular migraines, truly debilitating. source record 214♥ 127 Later-arriving source Migraine pain in migraine with aura. After aura. posted about 4 days after the source♥ 1 Low-like source Oh, my god, I'm so sorry to hear that. I've applied for disability because of my constant migraines, and honestly, I would rather be able to work. But it's hard to predict when the headaches come. I feel for you; I'm so sorry you are going through this. My heart goes out to you. 💜 posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 77 source records, the most common observable tactic structure is “Attach it to an existing routine” (4 records). This is a wording pattern, not a measured outcome. 77index entries 77distinct source records 21.3%of parent category 2.1%of the complete index 63top-level comments 14replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 1asks a question 0says they intend to try it 76other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4**Create a default **3**Turn it into a game **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments77 preserved records · 77 of 77 source records accounted for **Omigosh, I get those kinds, too... I didn't know what to call them. And it's not like you can even take a painkiller for them, because they're so random, and just a stab in the head and then gone except for the aura. I am sending purrs and warm wishes in solidarity! 💜**♥ 4source record 134 **Vestibular migraines, truly debilitating.**♥ 127source record 214 **I used to only get regular ol’ migraines that give me headaches, nausea and sensitivity to light and sound. In 2020 I started getting ocular migraines where I lose vision in my right eye, but don’t really have any other symptoms. Then in 2024 I got my first vestibular migraine and OMG. Debilitating is an understatement. I couldn’t even sit up in bed, my husband had to help me to the bathroom because I couldn’t walk. I had to hold onto the sink while using the bathroom so I didn’t fall over. So far I’ve only had two of them and they’re awful. I hope you don’t suffer from them often.**♥ 47source record 215 **I get all those all 3 types, as well. I wasn't diagnosed until my 50s when I got a really great neurologist. I went to a neurologist when I was 19 or so. I kept having vertigo & dizziness. I was stumbling around & falling down in classes and stores. That neurologist asked me if I had a boyfriend. 😐 He prescribed a terrible antidepressant. (The late 80s, before Prozac). One of the last incidents, shortly before I saw the good neurologist, I fucking fell down on my street, managed to crawl over to the curb and started puking. I was so relieved to finally get answers AND MEDICATION!!! Almost 40 years of migraines...**♥ 6source record 216 **omg i have vestibular migraines too!! people never know what i'm talking about when i mention them**♥ 13source record 219 **Heyy I’m also a member of this horrific club. Currently in a 6 month long flare and my whole life has paused.**♥ 14source record 220 **I don’t get regular migraines and was taken completely aback and unawares when I got a vestibular migraine last year. I had to (try to) sleep upright on the couch because moving my head in either side to side direction would give me horrific spins and dizziness. It felt like I was on an amusement park ride for four days. It would take me half an hour to walk ten feet to the bathroom because I was so completely off kilter. I’ve never felt anything like that. I legitimately thought I was having some sort of brain injury but luckily my sister (who I was living with at the time) came home from her work as an audiologist and assured me that I wasn’t dying. Part of audiology is working with balance (bc inner ear) so she knew exactly what was happening to me.**♥ 4source record 222 **Migraine attacks**♥ 4source record 426 **i’ve had a migraine for 73 days straight 😃**♥ 3source record 442 **migraines. but my worst experience was.. a migraine with bronchitis + a sinus infection. ooooooh god it was misery 😣😣😣**♥ 3source record 471 **A six month long migraine it just never went away. I was getting maybe 2 hours of sleep a day had black eyes looked like death. Finally found a neurologist that could help me. It was hell. I have survived to many thing but what comes close was my breaking my trochanter area of my femur soon after my hip revision surgery.**♥ 3source record 485 **Wow I never heard of ice pick headaches but apparently that's what I call "shooting pains" in my head. At least they're super quick. But they do hurt bad and incapacitate you for that brief moment they're happening**♥ 3source record 890 **With the added aspect of losing touch with reality, my migraines also rate probably an 8-9 on the pain scale. It’s almost like the pain is so bad it carries on to the next day. I’m somewhat thankful for the aura that precedes my migraines.**♥ 3source record 892 **I feel your pain; literally. I have had chronic migraines for so long, that nothing touches them anymore. None of the standard opioids work; the only thing I can take is sumatriptan injections, and they only last for a couple of hours. I really feel for you. I hope that as time passes, your clusters become even rarer. You have my deepest sympathies. 💜**♥ 2source record 906 **This was one of the remaining diagnoses on the list when I was 18 for an extreme migraine I had for weeks with no discernible cause. Luckily for me, it ended up being a twisted vertebra in my neck that was resolved and the pain went with; however, if it had been cluster headaches and I’d had to deal with that kind of pain in a recurring way, I can almost guarantee I would have contributed to its nickname, either intentionally or accidentally because the only thing that touched the pain was Dilaudid.**♥ 2source record 921 **Same. They're terrible. I also have hemiplegic and ocular migraines. And they've become chronic intractable migraines. 24/7, I'm either in an attack, prodrome, or postdrome. Endless cycling through attacks. Trying different treatment options but no success so far.**♥ 3source record 986 **I've only had one and it was the most miserable week of my life**♥ 2source record 1005 **I feel you. I have chronic migraines too, it's no way to live. You end up puking your guts out and end up in the ER. The worst is that hardly anyone takes you seriously, "it's just a headache, you should drink more water".**♥ 2source record 1019 **Chronic migraines. I've spent an entire week crying non stop and puking everything I ate it drank because of the pain**♥ 2source record 1390 **Hemicrania continua ... constant migraine-type headache with severe pain spikes that feel like an icepick in the eye and face. 1000 mg each of ibuprofen and tylenol every 4 hours for 8 months before a doctor in the ER finally prescribed Indomethacin, and it went into remission. I've had bouts of it a couple of times in the years since then, but I keep a bottle of Indomethacin handy.**♥ 2source record 1554 **I was gonna say a migraine headache causing me to throw up 5-6 times the day I got home from my cruise. I had such a bad headache after breakfast and it followed me all the way to the bus back to our boarding spot. I threw up in the parking lot, got in the car, threw up like twice there. Then threw up a few more times at home. That was fucking vile. I thought that was bad until I had the most painful stomach pain and went to urgent care. They ruled out endometriosis and long story short it was just very nasty period symptoms…**♥ 2source record 1577 **Chronic migraine for a solid month. Every. Single. Day. I still don’t know to this day how I was functioning and it’s been over 20 years.**♥ 2source record 1591 **an 11 day long migraine**♥ 2source record 1597 **Cervical Spinal Headaches! The pain is unbearable.**♥ 1source record 1609 **Three day migraine. I was completely incapacitated. Extremely nauseous. On one of the days I dry heaved over 50 times.**♥ 1source record 1639 **Chronic migraine**♥ 1source record 1657 **I still have no idea what happened, but I got the worst migraine I've ever had when I was 12\. We were at an agricultural show of some kind (common where I live) and it kept getting worse, so I went to the truck to lay down. I don't really remember it because I was asleep and also in a lot of pain, but I remember at some point it felt like a bucket of lava had been dumped on my head and said lava was slowly cascading down my head and face and burning me. I also felt the same sensation in my hands and fingers, but I was more focused on my head. Fast forward to the next day, and I have blisters on my face. I looked like I'd broken out, but I hadn't hit puberty yet, and they were like the blister you get when you burn yourself. I also ended up shedding my fingernails from the cuticle upward. My nails separated from the nailbed at my cuticles and gradually lifted as the new nail grew in. It took about a month for my fingers to be back to normal, and I had to wear bandaids on my fingers pretty much constantly. Still the strangest thing that's ever happened to my body. Nearly 10 years later and I have no explanation.**♥ 2source record 1676 **Migrane**♥ 1source record 1702 **Depression is always a good one on this front, For the more exotic flavour: Hemicrania Continua (and im allergic to the one medicine that sort of helps) One-sided headache that never really goes away and spikes to the point where a migraine feels like a cool summer breeze....**♥ 1source record 1719 **Chronic Migraine**♥ 1source record 1911 **Migraines (which might really be cluster headaches), can’t sleep. Usually have to puke which just makes it worse. I have it isolate in a dark room with no sound and just wait till it goes away.**♥ 1source record 1934 **Debilitating Migraines and cluster headaches when I was younger. When the pain is so all consuming that you’re not capable of speaking or even moaning. I had them very often from 12-30 and it seriously impacted my life. Then I had a dozen acupuncture sessions and they 99% vanished. Like a light switched off. Pouf, gone. 🤯 I was in a study group paid by my public health insurance so I hope my results helped someone else getting relief.**♥ 1source record 1944 **Rare subtype of basilar migraine that’s essentially migraine x Horton’s. I’m one of the two people in my region to have it. Stage IV endometriosis takes second place; I haven’t had too many issues with it after I had a full hysterectomy and excision some years ago. I still get bloated as shit sometimes and my SI joint gives me attitude (it had spread there) occasionally, but I’m no longer in constant pain.**♥ 1source record 1976 **Chronic occipital neuralgia. Add a migraine attack on top of it & intermittent allodynia.**♥ 1source record 1984 **Chronic fucking migraine. Would not wish this on an enemy if I had one.**♥ 1source record 2007 **Migraines. I inherited them from my mother. Her speech center is affected when she has them, so she speaks gibberish. For me, I loose parts of my vision and can not think coherently.**♥ 1source record 2009 **Migraines. Which I've had for 20+ years. You really never get used to the pain tbh.**♥ 1source record 2013 **Physically? Either migraines or Lyme disease. Mentally? OCD**♥ 1source record 2020 **Untreatablr headache**♥ 1source record 2063 **Migraines, paired with unrelenting depression. Being alive literally hurts**♥ 1source record 2067 **Thunderclap migraines. I literally started screaming when I experienced the first one.**♥ 1source record 2188 **Thunder clap headache, shit rocked me and sent me to the hospital & now I have chronic migraines.. yay haha.**♥ 1source record 2230 **I’ve had shingles and I would have shingles again if I never had to have a migraine again.**♥ 1source record 2321 **Migraine. Next was CoViD. I’ve had dengue (break bone fever), shingles, ulcers, gout, etc. Procedurally was the removal of an impacted tooth when the anesthesia wore off.**♥ 1source record 2327 **In my late teens early 20s I used to get migraines so bad i would be out for days. Just days of insane pain that made me sweat through a mattress passing out screaming in pain. 3 times I was taken to hospital with super high temperature like 40C+ in agony with them thinking it was meningitis. Thankfully they stopped in my mid 20s when my hormones calmed down, they were so extreme I can see why people end up deliriously trying to dig the pain out.**♥ 1source record 2366 **Chronic migraines and cluster headaches since birth/ shingles/ adenomyosis/ sciatica/internal femoral artery bleed (the way to fix it was probably some of the worst pain one can endure) unmedicated labor/ delivery.. also a emergency c section on a different occasion with unmedicated labor.. and having to walk 15 miles a day and work while enduring almost all of this**♥ 1source record 2436 **Basilar migraine. Aside from feeling like somebody cracked a 2x4 against the back of my skull, the first one I had I went to the ER because I was scared I was having a stroke because my speech was slow and slurred and I was having trouble standing and walking.**♥ 1source record 2491 **Chronic migraines**♥ 1source record 2526 **Migraines 🎉**♥ 1source record 2533 **I literally have no idea what caused it, but I had a headache so bad I threw up and had to go to urgent care**♥ 1source record 2596 **Familial hemiplegic migraine lasting 24 hours. There is a reason migraines are called su/c/de headaches.**♥ 1source record 2622 **A random pressure headache that caused me to not be able to move without severe pain. Laying down was the only way to relieve it. It lasted 2 months and I went to multiple Dr's. No one knew what was wrong. Medicine didn't help either. I'd rather give birth again than experience that.**♥ 1source record 2629 **Occipital neuralgia is pretty awful. I have a herniated disc in my neck and I have had two episodes of occipital neuralgia as a result. I hope to never have a third. It feels like the most painful electric shock running from inside my ear down the side of my face.**♥ 1source record 2644 **Migraine sufferer. Proper migraines. Screaming agony where I want to claw my own eyeballs out.**♥ 1source record 2755 **Chronic migraines**♥ 1source record 2853 **The first time I got covid it came with an intractable migraine that made me suicidal. Ive had migraines my whole life but this one was truly awful. none of my medicine worked. It felt like someone took a hammer and bashed my head as hard as they could, but constantly. It lasted 2 days and it changed me.**♥ 1source record 2891 **I get menstrual migraines at least once or twice a month and would gladly take any amount of cramps instead. Also not exactly pain, but I caught some unknown respiratory virus last year (I didn't go to the doctor) and for a week and a half my nose was running so constantly that I felt like I was drowning. Every time I tried to sleep I would wake up startled, gasping for air from the drowning sensation. That was honestly worse than any pain I've experienced. I also had full body fatigue during that time that made my body feel like it weighed 10 times as much, and felt like I had someone sitting on my chest when laying down.**♥ 1source record 3061 **Migraines. For me the only thing that clears them up is giving into the nausea and vomiting...**♥ 1source record 3065 **Believe it or not, I was a 3 days migraine I had while on an international vacation. I have no idea what caused it and it’s never happened since, but even the slightest movement, like I mean, moving my head a millimeter caused searing pain. I was throwing up non stop**♥ 1source record 3072 **A hemoplegic migraine. due to the pain I literally start seeing weird patterns, half my body goes to sleep, and I puke a lot. Its the worst thing, in the worst one I lost the ability to talk and could barely walk for 4 days. Its like the preview of a stroke.**♥ 1source record 3145 **chronic migraine attacks. really love when my body decides i've been whacked in the eye with a crowbar and then inflicts 5 hour long psychic damage on me every week or two for no reason :'\\\]**♥ 1source record 3154 **chronic migraine 🥲**♥ 1source record 3359 **Migraine or UTI/kidney infection**♥ 1source record 3382 **Migraine. I had to call an ambulance once because the pain was so excruciating and it wouldn’t go away with meds. I’m convinced there is barely anything comparable for me, and I hadn’t experienced it yet.**♥ 1source record 3414 **Once every like 10ish years I get a hellish migraine where I’m in so much pain I literally want to die to make it stop. They last like 8-10 hours. Last time I had one was the day I was supposed to fly home from vacation. My family got 1 more day of vacation.**♥ 1source record 3445 **3 day migraine before there were good meds for them.**♥ 1source record 3491 **Migraine pain in migraine with aura. After aura.**♥ 1source record 3575 **I’ve had appendicitis that was close to bursting when they finally removed it, a gall bladder attack with a stone stuck in the bile duct, kidney stones, unmedicated child birth when I asked for pain meds so was wholly unprepared mentally to go without, profuse vomiting of my pain meds after a tonsillectomy, profuse vomiting of nothing after gastric sleeve surgery where I felt like my guts would actually fall out. All were horrifically painful, most especially the gallbladder and appendix. But by far the worst pain I’ve ever experienced were migraines that were caused by my mirena IUD. I called them suicide headaches because I would rather die than experience another. I had 11 over a 3 week period. They would always wake me from sleep. The first one made me think I was having an aneurysm and I told my husband to take good care of my babies as my mom drove me off to the ER. The heavy duty narcotics they gave me barely touched them. And now days they don’t give pain meds for hardly anything so I probably would just end it all if I had to have them again. It was the worst pain I’ve ever experienced by several orders of magnitude. And no thanks to any medical professional for figuring it out. My husband asked if it could be the IUD. I started digging on the interwebs and found a multiple accounts of women describing the same thing. So I called the doc to get it removed. They said make an appt but they couldn’t do it immediately. I was desperate so I removed it myself. That very day was the last one I had and it was not as bad as the others. I still get regular migraines but I never had one like that again. It’s been 14 years.**♥ 1source record 3578 **the migraine i get after a seizure. comes with nausea and everything being so intense as well.**♥ 1source record 3604 **Chronic migraines**♥ 1source record 3703 **Migraine**♥ 1source record 3711 **Migraine**♥ 1source record 3846 **Migraine**♥ 1source record 3865 **Migraines 😔 they are so painful I can’t eat or drink anything because all I can do is sleep and vomit until it fully goes.**♥ 1source record 3943 **A pinched occipital nerve that triggered a migraine. It was a week before I found a doctor who would give me a nerve block. I spent a week in a completely dark room and asked god to let me go multiple times.**♥ 1source record 4077 **Chronic intractable migraines. It's not the worst accute pain, it's that it goes on and on and on. And migraine isn't a headache, it's a neurological disorder, so there is other pain (e.g. nerve pain) plus multiple other symptoms. Currently considering getting 32-34 Botox injections in my head, despite the 50-70% likelihood of a reduction in symptoms. At this point, I'd have a microchip implanted in my brain if it was an available treatment option. I'd rather more severe acute pain than bad chronic pain because at least the acute pain ends.**♥ 1source record 4174 **Oh, my god, I'm so sorry to hear that. I've applied for disability because of my constant migraines, and honestly, I would rather be able to work. But it's hard to predict when the headaches come. I feel for you; I'm so sorry you are going through this. My heart goes out to you. 💜**♥ 1source record 4186 Archive: 77 index entries preserve 77 distinct source records · Every displayed synthesis count resolves to source-record IDs Trigeminal neuralgia49 index entriesThe condition most often accompanied in this thread by the nickname commenters attach to it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Trigeminal neuralgia Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Trigeminal neuralgia 49 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 307 **Appears when:** Trigeminal neuralgia **What the pattern means:** A small group with unusually uniform language: electric shocks, a face hit with a bat, a breeze that feels like razor blades. Two things recur that do not recur elsewhere. The first is unpredictability — writers describe never knowing when a flare starts, and organising their lives around that rather than around the pain. The second is the nickname, which appears in a majority of these records and which several writers say they found validating rather than frightening. **What commenters described:** I had that before and it was awful. The intensity and the fact that it just would not stop was insane. It felt like someone hit me in the face with a baseball bat and then set it on fire. The slightest breeze felt like razorblades. **Limit:** Several of these records describe suicidal thinking; they are one person's account of their own condition and are not a statement about what the condition does to anyone else. Surgeries and drugs named here are individual reports, not options being recommended. If you are struggling, contact a local crisis line or emergency service. What the replies added2 I had that before and it was awful. The intensity and the fact that it just would not stop was insane. It felt like someone hit me in the face with a baseball bat and then set it on fire. The slightest breeze felt like razorblades. From the replies♥ 4 Me too. Pretty well medicated at present but one never knows when it will raise its ugly head and have you crying on the floor. From the replies♥ 3 #### Where commenters report limits Explicit limit or counterpoint Trigeminal Neuralgia - aka the suicide disease (others also share this name). It started with constant, heat and pressure pain over my right maxillary sinus. It felt like a large c-clamp was heated in a 500 degree oven, then tightened with one end on the outside of my cheek and the other on the roof of my mouth. I had multiple sinus surgeries. Root canals on every tooth on the right side of my head and most on the left. I was misdiagnosed with everything from a chronic bone infection in my skull, to chronic migraine. Then the electrical shocks started. That felt like a 10” chef’s knife was attached to a 240 volt live line and I was stabbed with it over, and over, and over again. Shocking episodes would last from 1 minute to 10 and I was having as many as 100 per day. I had to stop driving after I had several back to back episodes while driving on 495 - the beltway around DC. It was one of those days it was moving at 80 MPH, but bumper to bumper. I slammed on the brakes in the middle lane, let go of the steering wheel and screamed while my husband was freaking out from the semi locking his brakes up behind us. I eventually had brain surgery (MVD), which saved my life but unfortunately the surgery (and likely the years of misdiagnosis) led to CRPS (yay, two suicide diseases for me) and I picked up a chronic, hospital-acquired, multi-drug resistant infection that I still carry 8 years later and it has hospitalized me 23 times, having been septic six of those times. The surgery saved my life, but transformed it forever. In 21, my now ex husband told me he could no longer handle all my medical issues. In 22 I spent 87 days in patient and realized I could no longer work. source record 2052♥ 2 #### Source-record spotlights Most engaged source Trigeminal neuralgia source record 306♥ 28 Later-arriving source Having a trigeminal neuralgia flare in the middle of getting an MRI for my MS. Head was in the cage and everything 😔 posted about 31.8 hours after the source♥ 2 Low-like source I have had trigeminal neuralgia, no remission for 19 years. posted about 3.8 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 49 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 49index entries 49distinct source records 13.6%of parent category 1.3%of the complete index 36top-level comments 13replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 48other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments49 preserved records · 49 of 49 source records accounted for **Trigeminal neuralgia**♥ 28source record 306 **I had that before and it was awful. The intensity and the fact that it just would not stop was insane. It felt like someone hit me in the face with a baseball bat and then set it on fire. The slightest breeze felt like razorblades.**♥ 4source record 307 **Me too. Pretty well medicated at present but one never knows when it will raise its ugly head and have you crying on the floor.**♥ 3source record 308 **I had a bout of transgeminal neuragala- and I thank god we were quickly able to discover what was setting it off because people live with that and i dont know how.**♥ 3source record 486 **My dad had that, and thankfully it went into remission during his later years. They don’t call it the suicide nerve for nothing.**♥ 2source record 1212 **Just had the surgery for it, but the majority of my pain from it is also atypical with constant burning/stinging. The nerve is really inflamed post-op right now as well and will be for the next 2-5 months for me. I’m scheduled for gamma knife radiation in November. When I say that this disease has robbed me of almost everything, I mean it: my career, future home, any ability to pay student loans, my social life, and more…My husband works 60+ hours a week to provide for us now and I’ve applied for disability. >!I don’t blame the medical community for calling it the suicide disease. If it weren’t for my sons and my husband, I legitimately would have chosen physician assisted suicide. I’m only 32 so thinking about the rest of my life with this gives me panic. I’ve developed PTSD and medical anxiety. My entire personality has changed after the pain began and continued. I wish this on no one and have developed the strongest reliance on God that I have ever had in my life.!<**♥ 2source record 1221 **It is awful! It started as popping sensations in my head and the most awful feeling of electric shocks going all over one side of my face. I’m on some medication to help the headaches so I haven’t had as many episodes in a few weeks thankfully. It takes along time to get diagnosed and I’m still in the process of getting a diagnosis. I’ve never met anyone else who has it**♥ 2source record 1229 **Oh jeez I’m sorry! My brother had that for a while and I remember how horrible the pain was for him even as a full grown man. Thankfully he eventually got a surgery for it but it was a long road.**♥ 1source record 1253 **I'm experiencing this as an accompaniment to my chronic intractable migraine. My nervous system is clearly not doing well.**♥ 1source record 1256 **Trigeminal Neuralgia, aka the suicide disease.**♥ 2source record 1406 **I had it for 4 months. I completely understand why it’s called the suicide disease.**♥ 2source record 1438 **I have Trigeminal Neuralgia. It is impossible to do anything when you are having a flare. The pain consumes everything. It's like a migraine in your face. Luckily, mine is now well controlled with meds.**♥ 2source record 1439 **Oh I might win this! I have Occipital and Trigeminal Neuralgia with a sprinkle of Migraine! Yay … my head hurts.**♥ 2source record 1502 **Trigeminal Neuralgia - literally referred to as the Suicide Disease.**♥ 2source record 1520 **Trijuminak neuralgia and spontaneous spleen rupture**♥ 1source record 1781 **I have Trigeminal Neuralgia.**♥ 1source record 1914 **Trigeminal Neuralgia - aka the suicide disease (others also share this name). It started with constant, heat and pressure pain over my right maxillary sinus. It felt like a large c-clamp was heated in a 500 degree oven, then tightened with one end on the outside of my cheek and the other on the roof of my mouth. I had multiple sinus surgeries. Root canals on every tooth on the right side of my head and most on the left. I was misdiagnosed with everything from a chronic bone infection in my skull, to chronic migraine. Then the electrical shocks started. That felt like a 10” chef’s knife was attached to a 240 volt live line and I was stabbed with it over, and over, and over again. Shocking episodes would last from 1 minute to 10 and I was having as many as 100 per day. I had to stop driving after I had several back to back episodes while driving on 495 - the beltway around DC. It was one of those days it was moving at 80 MPH, but bumper to bumper. I slammed on the brakes in the middle lane, let go of the steering wheel and screamed while my husband was freaking out from the semi locking his brakes up behind us. I eventually had brain surgery (MVD), which saved my life but unfortunately the surgery (and likely the years of misdiagnosis) led to CRPS (yay, two suicide diseases for me) and I picked up a chronic, hospital-acquired, multi-drug resistant infection that I still carry 8 years later and it has hospitalized me 23 times, having been septic six of those times. The surgery saved my life, but transformed it forever. In 21, my now ex husband told me he could no longer handle all my medical issues. In 22 I spent 87 days in patient and realized I could no longer work.**♥ 2source record 2052 **Trigeminal Neuralgia, which is a chronic illness. Considered the worst pain a human being can experience. More painful than unmedicated child birth, worse than a kidney stone, worse than shingles, worse than cutting off your finger, etc... Mine is caused by a missing meckels cave in the brain, which has only been documented in a few people (like around 12) and has caused my trigeminal nerve to go atrophic. It's a pain that brings me to my knees.**♥ 1source record 2089 **Trigeminal Neuralgia.**♥ 1source record 2105 **Trigeminal neuralgia**♥ 1source record 2168 **Trigeminal neuralgia - second most painful condition known to man 😔**♥ 1source record 2227 **Trigeminal Neuralgia (look it up) and cancer. Not a great combo. 0/10 on fun scale.**♥ 1source record 2287 **Trigeminal neuralgia.**♥ 1source record 2303 **Trigeminal neuralgia other wise known as suicide disease**♥ 1source record 2340 **Trigeminal neuralgia**♥ 1source record 2360 **Trigeminal Neuralgia with out a doubt**♥ 1source record 2679 **Trigeminal Neuralgia brought on by dental issues-grinding and clenching. The pain made me want to kill myself. In fact when I finally got to see a dentist and was diagnosed he said people who come into the ER with it are often put on suicide watch. Honestly, that made me feel sort of better because it validated how absolutely dreadful the pain was. The Percocet also went a long way.**♥ 1source record 2776 **Having a trigeminal neuralgia flare in the middle of getting an MRI for my MS. Head was in the cage and everything 😔**♥ 2source record 2810 **Trigeminal Neuralgia**♥ 1source record 2838 **Trigeminal Neuralgia**♥ 1source record 2851 **I have had trigeminal neuralgia, no remission for 19 years.**♥ 1source record 2855 **Trigeminal Neuralgia**♥ 1source record 2921 **Trigeminal neuralgia and migraine.**♥ 1source record 2968 **Trigeminal neuralgia**♥ 1source record 3105 **Trigeminal neuralgia**♥ 1source record 3162 **Trigeminal Neuralgia**♥ 1source record 3311 **Trigeminal neuralgia flare. Ive had children, gallbladder attacks and kidney stones, nothing compared to being hit in the face with a bat FOR HOURS!**♥ 1source record 3350 **It’s a toss up between trigeminal neuralgia, endometriosis, Ehlers-Danlos syndrome, and the multilevel spinal fusion I earned by breaking my back**♥ 1source record 3452 **Trigeminal Neuralgia onset in late pregnancy with complications. Had debilitating attacks for three years after. They wanted to do an MVD. Glad I went with conservative treatment. Horrible disease.**♥ 1source record 3522 **Currently sitting in a neurologists office for the worst flare of trigeminal neuralgia (and I’m sure other neuralgias of the face and head) I’ve had in quite awhile. It does in fact suck ass. I’m gonna go with any nerve pain, as I’ve had multiple herniated discs and brainstem compression, and they all feel like garbage.**♥ 1source record 3594 **Atypical Trigeminal Neuralgia on both sides.**♥ 1source record 3601 **Trigeminal neuralgia.**♥ 1source record 3615 **Trigeminal Neuralgia… it’s a beast**♥ 1source record 3626 **Trigeminal and occipital neuralgia. Both on the left side, which is also where I have a tumor. The pain is so bad I can't sleep most nights. It doesn't help that I can no longer lay on my left side, which is how I slept for 40 years. Nothing really touches nerve pain.**♥ 1source record 3679 **Trigeminal neuralgia**♥ 1source record 4056 **Im glad your brother is doing better!! Yeah it’s such a hard disease to diagnose but i think it will get better. Neurology is so fascinating though. I know that in severe cases they do surgery so I’m not at that point thankfully. Mine just likes to be casual and when they aren’t consistent, it’s hard to treat**♥ 1source record 4270 **I had it happen once and I literally screamed out loud. I couldn't figure out what was happening, if my face was somehow electrocuted while I sat on the sofa.**♥ 1source record 4311 **It’s seriously one of the most painful things ever especially because you won’t know when a flare up will happen**♥ 3source record 4312 **No. But my flare ups usually last a few days til I can pound it back down with the Tegretol. Once I have done that I’m usually good. It I’m a mess during the flare up.**♥ 1source record 4319 Archive: 49 index entries preserve 49 distinct source records · Every displayed synthesis count resolves to source-record IDs Ears and sinuses55 index entriesEar and sinus pain, and the eardrums that burst — usually followed in the same sentence by relief. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Ears and sinuses Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Ears and sinuses 55 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 282 **Appears when:** Ears and sinuses **What the pattern means:** The only group in the corpus with a shared happy ending, and it is a disturbing one: writers describe pressure building to the point of screaming, the eardrum bursting, and immediate relief. Several describe the warmth of the discharge as soothing. Where the drum does not burst, the accounts are of sleeplessness and painkillers that did nothing; several writers who have had children rank an adult ear infection above the birth. **What commenters described:** I had an ear infection on a flight from Austin to Denver. Shortly before landing in Denver my ear was pounding with pain so bad, it made me nauseous. Right when we landed my ear drum burst and I went from the worst pain I’ve ever experienced to soothing bliss. The pain was gone and the blood from the burst ear drum felt warm and soothing. I can’t describe the relief I experienced but it was so unexpected. 10/10 for worst pain ever. I would not wish this kind of pain on my worst enemies. **Limit:** The relief these writers describe follows a perforation, and one commenter in the group points out what that means for the ear. Nothing here should be read as a reason to wait for one, and nothing here identifies an ear or sinus infection. What the replies added2 Had kidney stones 5 children naturally Numerous broken bones Fibromyalgia Hip labrum tears Covid 3 times and NOTHING brought to me knees like an out of control ear infection. I was laying on the flooring bawling and could not raise my head off the floor due to pain. Husband called our physician (who we knew both personally and professionally) who heard me screaming and crying in the background and he ordered ATBs and pain medication sight unseen. God bless that man! Reported failure♥ 1 I had an ear infection that developed over months and got so bad my ear canal was too swollen for fluid to get out and the pressure eventually built up so much it ruptured my eustachian tube and broke the bone at the top of my jaw too. My jaw is still off centre to this day. The earache, broken jaw, ruptured tube combo was not an experience I’d ever recommend. Reported failure #### Where commenters report limits Explicit limit or counterpoint Had this happen in my 30's. The pain was so intense I screamed for my mom at one point and right when I did that the eardrum burst and the relief was incredible. Unfortunately, the hole never healed (I'm in my 40's now) and need to have surgery to repair it. source record 285♥ 4 #### Source-record spotlights Most engaged source I had an ear infection on a flight from Austin to Denver. Shortly before landing in Denver my ear was pounding with pain so bad, it made me nauseous. Right when we landed my ear drum burst and I went from the worst pain I’ve ever experienced to soothing bliss. The pain was gone and the blood from the burst ear drum felt warm and soothing. I can’t describe the relief I experienced but it was so unexpected. 10/10 for worst pain ever. I would not wish this kind of pain on my worst enemies. source record 282♥ 44 Later-arriving source I had an ear drum rupture once because of an infection, lord the relief! posted about 24.7 hours after the source♥ 1 Zero-like source I had an ear infection that developed over months and got so bad my ear canal was too swollen for fluid to get out and the pressure eventually built up so much it ruptured my eustachian tube and broke the bone at the top of my jaw too. My jaw is still off centre to this day. The earache, broken jaw, ruptured tube combo was not an experience I’d ever recommend. posted about 3.4 hours after the source #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 55 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 55index entries 55distinct source records 15.2%of parent category 1.5%of the complete index 47top-level comments 8replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 2asks a question 0says they intend to try it 52other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3**Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments55 preserved records · 55 of 55 source records accounted for **I had an ear infection on a flight from Austin to Denver. Shortly before landing in Denver my ear was pounding with pain so bad, it made me nauseous. Right when we landed my ear drum burst and I went from the worst pain I’ve ever experienced to soothing bliss. The pain was gone and the blood from the burst ear drum felt warm and soothing. I can’t describe the relief I experienced but it was so unexpected. 10/10 for worst pain ever. I would not wish this kind of pain on my worst enemies.**♥ 44source record 282 **This happened to me standing in my living room in my 30s. I had been sick with a cold, and I started to get an earache. Within 30 minutes the pressure in my right ear shot up until it got so bad that I screamed and fell to my knees, then it popped and I felt relief (as pus & blood came out of my ear). I headed to the ER, and while I was in the waiting room my left ear started hurting and eventually burst as well. Just as excruciating. Funny part: I am a librarian. At the time I worked at the reference desk in an academic library. Which is quiet. I went to work the next week and couldn't hear a damn thing to help anyone. 😂 Had to work behind the scenes for a few weeks. Fortunately my eardrums healed up fine.**♥ 7source record 284 **Had this happen in my 30's. The pain was so intense I screamed for my mom at one point and right when I did that the eardrum burst and the relief was incredible. Unfortunately, the hole never healed (I'm in my 40's now) and need to have surgery to repair it.**♥ 4source record 285 **ear infection**♥ 38source record 340 **Ear infections as an adult are no joke. The only things more painful for me were childbirth and gallbladder.**♥ 3source record 341 **I’ve given birth and was in labour for four days. A severe ear infection and subsequent perforated ear drum was genuinely worse (or… at least as bad, but with no compensatory baby at the end). I’ve never experienced anything like it. I was taking high-strength codeine and it wasn’t even touching it**♥ 2source record 1223 **I had an ear drum rupture once because of an infection, lord the relief!**♥ 1source record 1263 **Yes! Middle ear infection that led to permanent partial hearing loss. The pain was exquisite. So so painful.**♥ 2source record 1328 **Agh I had one last year and my eardrum ruptured!!**♥ 1source record 1341 **The only time I had morphine. Ear infections are no jokes.**♥ 1source record 1348 **A headache. Couldn't eat, Couldn't think. Never really had headaches. Took a CT scan to diagnose a sinus infection. Thought that was bad until I woke up at 3am one morning with both ears screaming in pain. Went to the ER, double ear infection and nothing they could give me beyond antibiotics bc I was pregnant. Drove home wailing and applied hot cloths until they burst, sweet, momentary relief. But they kept healing and breaking over the next few weeks. Doc said I had a head full of concrete. Every move sent shooting pain through my skull. Took percoset around the clock until it all drained finally. Worst weeks ever, still went to work etc. Just kept up the pain killers. Pregnancy can cause some strange sinus stuff.**♥ 2source record 1491 **Ruptured eardrum**♥ 2source record 1506 **I had an ear infection that was so bad it ended up being the most painful thing I ever experienced and I’ve had a spinal fusion.**♥ 2source record 1545 **Had kidney stones 5 children naturally Numerous broken bones Fibromyalgia Hip labrum tears Covid 3 times and NOTHING brought to me knees like an out of control ear infection. I was laying on the flooring bawling and could not raise my head off the floor due to pain. Husband called our physician (who we knew both personally and professionally) who heard me screaming and crying in the background and he ordered ATBs and pain medication sight unseen. God bless that man!**♥ 1source record 1563 **Ear infection 💀 Sounds harmless but I actually overdosed painkillers until I felt floating one meter above ground because of this shit.**♥ 2source record 1569 **Ear infection as an adult.**♥ 1source record 1604 **Ear infection.. came out of nowhere and the throbbing pain was the worst pain I’ve ever felt. A shot of dilauded didn’t touch it. This was 4 weeks after a c-section. I was so surprised an ear infection was THAT painful**♥ 1source record 1636 **Double ear infection**♥ 1source record 1709 **Sinusitis**♥ 1source record 1716 **Surprisingly swimmers ear. I was a very young kid (maybe around 12 or 13). Me and my mom moved into a new house that had a hot tub. Turns out I'm super sensitive to germs in hot water. I couldn't sleep. I cannot even begin to describe the pain. It felt like someone took a knife and scraped it deeply through the inside of my ear. It was sensitive 24/7, and it felt like at any moment my ears would violently explode out of my head. I'd cry a lot. The only sense of relief I got was my mom cupping her hands around my ears. Looking back, it's really strange how badly it hurt. I wouldn't wise it on anyone. Internal ear infections feel WAY better to deal with than external ones. Stay safe folks.**♥ 1source record 1736 **Inner ear infection. Like a rusty nail being slowly pushed into your brain, while you are being spun around and around and around in an office chair for a week or two.**♥ 1source record 1766 **Ruptured Ear Drum. Underwater.**♥ 1source record 1862 **Ear infection. Needed a mastoidectomy. Basically they went in and cleaned all the bone fragments and peices. 25 yrs later give or take five years and I've continual migraines. 24/7 actually. I took two teeth out trying to get rid of the pain before I went to the emergency room. I had bad teeth so I thought it was that. Nope. I've had kidney and gallbladder stones. This was worse. Dental? this was worse. The closest I've come to that pain in 25-30 yrs? Adhesions on my womb. It's kicking my ass. Had the hysterectomy and thought I was done. Nope. I can't get off dylaudid cause the pain is so bad. I'd still take this over the ear exploding**♥ 2source record 1949 **Turk fever. Nah but seriously, I had a bad ear infection once that lasted for several weeks. For a lot of it, it felt like being poked in the brain with a skewer every minute or even more. I was physically and involuntarily in pain each time. Every minute 24x 7 for over two weeks. It was awful.**♥ 1source record 1956 **Ear infection.**♥ 1source record 1965 **I had a severe sinus infection in the 80s. Couldn’t lift my head off the pillow.**♥ 1source record 1985 **Swimmers ear**♥ 1source record 2088 **A bad outer ear infection. From my ear to my eye was swollen and red, moving hurt, not moving hurt, chewing hurt, I couldn’t fully open my mouth, had a fever. Even with ibuprofen 800 there was nearly no relief. In order to sleep, I was taking 8hr Tylenol on top of the ibuprofen 800\. When I wasn’t sleeping I was rocking back and forth or sitting as still as possible, and putting a heating pad to it. Got antibiotics and antibiotic ear drops, finished it, and still had another week before I could fully open my jaw and little to no pain. Altogether it was a month long from start to finish. It was worse than my gall bladder attacks, and my two births without pain meds.**♥ 1source record 2114 **ear infection**♥ 1source record 2235 **Swimmers ear, I don’t even swim I don’t know how I contracted it but it hurt to even lift my head off the pillow**♥ 1source record 2311 **Bilateral ear infection as an adult. Ties with gout on the pain scale.**♥ 1source record 2393 **Severe inner ear infection**♥ 1source record 2399 **It’s a toss up between severe ear infection and an abscessed tooth**♥ 1source record 2538 **Middle ear infection probably**♥ 1source record 2586 **Ear infection**♥ 1source record 2797 **Geniculate neuralgia (severe pain in my ear). Insanely painful!**♥ 2source record 2807 **Ear ache brought on by the flu. I swear to you I could’ve screamed so loud . I felt like my ear was being stabbed**♥ 1source record 2945 **Ear infection and/or covid-19\. Both kicked my ass**♥ 1source record 2964 **Chronic sinusitis that causes the most painful, face shattering migraines. Normal migraines are just annoying at this point.**♥ 1source record 3004 **Mastoiditis**♥ 1source record 3087 **I had an ear infection that ruptured my ear drum. That was SO bad.**♥ 1source record 3215 **sinusitis felt like my eyes, head, and face was gonna explode**♥ 1source record 3365 **Ear infection, im still fairly young but i havent had them since i was a kid, and its something im thankful for**♥ 1source record 3415 **Sinus infection lowkey**♥ 1source record 3428 **Ear infection when I was 10\. Had a boil basically develop in my ear. It hurt worse than being repeatedly kicked in the balls.**♥ 1source record 3430 **For long term consistent pain I’d say fibromyalgia but for short term I’d say rupturing my eardrum from an inner ear infection. That messed me up so bad!**♥ 1source record 3436 **Ear infection**♥ 1source record 3454 **Horrible double ear infection**♥ 1source record 3493 **A triple sinus infection in my eyes, ears, nose. Woke up with my eyes sealed shut, could barely breath or hear and I am hard of hearing. It was awful. Second was probably bronchitis.**♥ 1source record 3530 **Ear infections are torture, and i have a bunch of disabilities including fibro, fibro pain aint shit compared to an ear infection**♥ 1source record 3730 **Ear infection**♥ 1source record 3793 **Double ear infection**♥ 1source record 4043 **Sinus infection. Wrong antibiotic prescribed around Dec 29\. Spent NYE-NYD screaming into a pillow. Should have gone to ER?... saw primary care provider Jan 2.... antibiotic shot in butt, better oral antibiotics prescribed, maybe steroid shot, sent home with steroid inhaler and steroid pills. Couldn't tolerate hot shower or scented soap or shampoo for about a week.**♥ 1source record 4103 **Having an ear infection sucked**♥ 1source record 4112 **I had an ear infection that developed over months and got so bad my ear canal was too swollen for fluid to get out and the pressure eventually built up so much it ruptured my eustachian tube and broke the bone at the top of my jaw too. My jaw is still off centre to this day. The earache, broken jaw, ruptured tube combo was not an experience I’d ever recommend.**♥ 0source record 4411 Archive: 55 index entries preserve 55 distinct source records · Every displayed synthesis count resolves to source-record IDs Teeth, jaws and mouths106 index entriesThe answer people most often apologise for giving before they give it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Teeth, jaws and mouths Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Teeth, jaws and mouths 106 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 193 **Appears when:** Teeth, jaws and mouths **What the pattern means:** The answer people apologise for before giving it, and then describe in terms nothing else on this page uses: pain that reaches the brain, that makes vision unreliable, that cannot be escaped by any position or distraction. Two structural features recur. Painkillers are described as useless — writers list ibuprofen, paracetamol, codeine and tramadol failing in sequence. And delay is nearly always self-imposed: fear of the dentist, no money, no appointment, in accounts running from days to ten months. **What commenters described:** A tooth infection that rocked my skull for 3 days. Never did I think pain could feel that bad. I've injured myself in so many dumb ways, but that kind of pain tore into my brain. Ibuprofen nor acetaminophen didn't touch the pain on their own or combined Eating hurt, breathing hurt, sleeping was impossible, getting work done was impossible since it affected my vision. Day 3 I finally got in to my dentist who confirmed what I already knew and gave me an antibiotic. In a last ditch effort I took 4 extra strength Tylenol and at that dose, it dulled the pain enough to let me fall asleep while the antibiotic kick in. About 6 hours after I took the antibiotic, the pain had subsided to a very manageable point. After three-ish days, chewing food didn't hurt with every bite. But yeah, that was probably the worst physical pain I've ever felt Though not an illness and not my pain, one of my best friends used to get period cramps so bad they put her out of work for the first two days. She would just lay on the floor or her bed and cry. I forget what the condition she had was called. She was 28 at the time and said that the pain like this started around the age of 19\. She was not internet savvy, nor did she have money to see a doctor, so I spent hours digging online to try and find anything to help her and there was one specific brand of birth control that seemed like it could and after another year of the pain, she finally decided to give it a shot and according to her "it was like magic." The first month was more tolerable and it just dropped off after that. I think about that whenever I get a pain. Yeah, I might be in pain now, but at least it's not a recurring, near lifetime issue. That takes some real strength to deal with **Limit:** Several records here describe taking more than the labelled dose of over-the-counter painkillers, and the thread's own replies dispute that; reported here, recommended nowhere. Nothing in this group identifies a dental infection or indicates how to treat one. What the replies added3 Those are fucking horrible, I lived with a broken tooth for 2 years (NHS dentists were in shortage because Covid related violence had made a lot of Chinese dentists go back to China, and my area had lots of Chinese dentists) Reported failure♥ 3 My dentist thought I had a tooth infection and prescribed antibiotics and Tylenol 2 or whatever the Tylenol with codeine is. Told me to go the office after the antibiotics did their thing to have a root canal done. Turns out that Tylenol makes me puke violently. The utter amount of pain that radiated from my jaw all the way up to my brain behind my eye made me want to shoot myself. I couldn’t even think straight. It was feeling like a red hot dagger was shoved up under my jaw all the way to my brain. Absolutely the worst physical pain I have ever felt and I’ve broke 8 bones, torn ligaments, and numerous other stupid injuries. Turns out my tooth wasn’t infected. It was shattered below the gum line and my nerve was completely exposed. And that’s how I learned I grind and clench my teeth in my sleep! Reported failure♥ 2 Had a horribly infected wisdom tooth they wouldn't pull. Put me on antibiotics which didn't work. I went septic. I went in the Monday after Thanksgiving. It was pulled January 3rd. It was a month of no sleep agonizing pain and thoughts of suicide. It was when opioids were easier to get and I went through an astronomical amount, which barely touched the pain. And I'm not exaggerating I nearly killed myself the pain was so brutal. I've passed a kidney stone, popped a few discs in my lower back, had a contusion to my spinal cord, broken bones, and nothing was even half of that damn wisdom tooth. Reported failure♥ 2 #### Where commenters report limits Explicit limit or counterpoint Had a horribly infected wisdom tooth they wouldn't pull. Put me on antibiotics which didn't work. I went septic. I went in the Monday after Thanksgiving. It was pulled January 3rd. It was a month of no sleep agonizing pain and thoughts of suicide. It was when opioids were easier to get and I went through an astronomical amount, which barely touched the pain. And I'm not exaggerating I nearly killed myself the pain was so brutal. I've passed a kidney stone, popped a few discs in my lower back, had a contusion to my spinal cord, broken bones, and nothing was even half of that damn wisdom tooth. source record 1537♥ 2 Explicit limit or counterpoint I have had 3 children where the epidural didn’t work but still the worst pain I ever had was when I was 11 weeks pregnant and got an abscess in my top back right tooth that also needed a root canal. The pain was like nothing I have experienced in my life. It was like pain in my jaw, cheek and brain. It’s hard to explain. I hope to never experience it ever again. source record 3339♥ 1 #### Source-record spotlights Most engaged source In order: 1\. Tooth abcess - when it was happening I was too afraid of the dentist to go. I let it go on for 8 months until the pain was so bad i was throwing up over it. Went in. Found an \*\*amazing\*\* dentist. My teeth are perfect now. 2\. Idiopathic anaphylaxis - this one hurts in a way that is so much more than physical. I have no triggers - which means no way to stay safe. I have to constantly think about what my plan in if I start going into anaphylaxis. It means never traveling solo, because I may die. source record 315♥ 27 Later-arriving source Hard tie between dry socket that turned into a jawbone infection or the year of c diff that came after the antibiotics I had to take for the infection. posted about 3 days after the source♥ 1 Zero-like source Dry socket was unbelievably painful. Inflamed bowel following a bad reaction to medication, than god for morphine. posted about 3.5 hours after the source #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 106 source records, the most common observable tactic structure is “Swap instead of subtract” (4 records). This is a wording pattern, not a measured outcome. 106index entries 106distinct source records 29.4%of parent category 2.8%of the complete index 84top-level comments 22replies #### What commenters explicitly report 1explicitly reports a benefit 3explicitly reports a limit or failure 8asks a question 0says they intend to try it 94other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4**Swap instead of subtract **4**Turn it into a game **3**Create a default **2**Give attention a neutral target **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments106 preserved records · 106 of 106 source records accounted for **Tooth pain**♥ 10source record 6 **A tooth infection that rocked my skull for 3 days. Never did I think pain could feel that bad. I've injured myself in so many dumb ways, but that kind of pain tore into my brain. Ibuprofen nor acetaminophen didn't touch the pain on their own or combined Eating hurt, breathing hurt, sleeping was impossible, getting work done was impossible since it affected my vision. Day 3 I finally got in to my dentist who confirmed what I already knew and gave me an antibiotic. In a last ditch effort I took 4 extra strength Tylenol and at that dose, it dulled the pain enough to let me fall asleep while the antibiotic kick in. About 6 hours after I took the antibiotic, the pain had subsided to a very manageable point. After three-ish days, chewing food didn't hurt with every bite. But yeah, that was probably the worst physical pain I've ever felt Though not an illness and not my pain, one of my best friends used to get period cramps so bad they put her out of work for the first two days. She would just lay on the floor or her bed and cry. I forget what the condition she had was called. She was 28 at the time and said that the pain like this started around the age of 19\. She was not internet savvy, nor did she have money to see a doctor, so I spent hours digging online to try and find anything to help her and there was one specific brand of birth control that seemed like it could and after another year of the pain, she finally decided to give it a shot and according to her "it was like magic." The first month was more tolerable and it just dropped off after that. I think about that whenever I get a pain. Yeah, I might be in pain now, but at least it's not a recurring, near lifetime issue. That takes some real strength to deal with**♥ 205source record 193 **Came here to say tooth infection. I might have been clinically psychotic by the time I could get intervention. Terrifying for everyone involved.**♥ 6source record 198 **I almost ripped my own tooth out of my head when I had an infection!**♥ 5source record 199 **In order: 1\. Tooth abcess - when it was happening I was too afraid of the dentist to go. I let it go on for 8 months until the pain was so bad i was throwing up over it. Went in. Found an \*\*amazing\*\* dentist. My teeth are perfect now. 2\. Idiopathic anaphylaxis - this one hurts in a way that is so much more than physical. I have no triggers - which means no way to stay safe. I have to constantly think about what my plan in if I start going into anaphylaxis. It means never traveling solo, because I may die.**♥ 27source record 315 **Tooth infection**♥ 25source record 338 **Wisdom tooth pain. Even tramadol couldn't help.**♥ 6source record 389 **It's not an illness, but I had a root canal where the pain killers would not take because the tooth was too infected. So yeah,.that was the worst physical pain I've ever felt.**♥ 3source record 469 **Persisting toothache due to an infected root/needing a root canal.**♥ 3source record 470 **I feel ya. I had an abscess once that was so bad I couldn’t even eat because my face was so swollen. Horrible pain I wouldn’t wish on my worst enemy.**♥ 3source record 977 **Agreed thousand fold! I had an abcess in the roof of my mouth(hard palate), that had to be drained not once, but twice. The shots they gave to numb the area were just as bad as the actual draining, since they relieved nothing.**♥ 5source record 978 **I always say tooth infection when this question comes up. There is no way of escaping it and you can feel it in your head pulsing. It's truly awful.**♥ 3source record 985 **My dentist thought I had a tooth infection and prescribed antibiotics and Tylenol 2 or whatever the Tylenol with codeine is. Told me to go the office after the antibiotics did their thing to have a root canal done. Turns out that Tylenol makes me puke violently. The utter amount of pain that radiated from my jaw all the way up to my brain behind my eye made me want to shoot myself. I couldn’t even think straight. It was feeling like a red hot dagger was shoved up under my jaw all the way to my brain. Absolutely the worst physical pain I have ever felt and I’ve broke 8 bones, torn ligaments, and numerous other stupid injuries. Turns out my tooth wasn’t infected. It was shattered below the gum line and my nerve was completely exposed. And that’s how I learned I grind and clench my teeth in my sleep!**♥ 2source record 1015 **That was a great description of the pain I felt! But damn was that ordeal so much worse. I can't imagine having to vomit while enduring all of that. My issue is still that I need a root canal, but a temporary filling is helping, for now. Did you get the tooth pulled and replaced, or are you just missing a tooth?**♥ 2source record 1016 **Impacted wisdom teeth. Had to be cut out and removed 😅**♥ 1source record 1058 **I had abscessed teeth when I was young because my parents neglected dental hygiene. So much pain, I would cry for hours. When my face would finally swell up they would take me to the doctor. He would put me on antibiotics and then I would go back in a couple of days so he could drain the infection. I was around 9, 10 years old. My older brother’s wife started taking me to the dentist regularly.**♥ 1source record 1061 **I agree. I had to take Vicodin for two days to get some relief until the antibiotics kicked in. After the infection cleared I had to have a root canal. I’m at the dentist every six months now. I never want to deal with that pain again.**♥ 1source record 1062 **An abscessed tooth was definitely the worst pain I've experienced. I think the fact that it's right in your head makes it worse. 50 years later I can still remember the relief when the dentist drilled a hole in the tooth and the pressure was released.**♥ 1source record 1063 **So I had some tooth pain, but it was manageable as long as I didn't chew on that side of my mouth. Then my dog jumped up when I was leaning down and her head smacked my lower jaw sending it up to smack the infected molar. It was a pure pain explosion. Knocked me straight down. Apparently the tooth nerves are attached directly to the brain, whereas any pain that occurs below your neck has to travel through your spinal column and get dampened somewhat.**♥ 1source record 1064 **I know this pain! My tooth was destroyed from night-time clenching. I didn't even know night guards existed at the time. Worst pain I've ever felt in my life. They ended up having to pull the tooth.**♥ 1source record 1074 **oh man, i feel you! dental pain is the worst i've ever had too and i've had my fair share of injuries and illnesses. my tooth infection turned into a bone infection. i didn't eat or sleep for three days. i couldn't talk, couldn't move. i had thoughts of unaliving myself because the pain was that severe and absolutely nothing touched the pain and i couldn't see it ever ending. finally got to my dentist who gave me a strong dose of anaesthetic to numb the area and a lot of antibiotics. even now toothaches give me massive anxiety because i never ever want to feel that level of pain again.**♥ 1source record 1076 **I got an abscess underneath a wisdom tooth that came in a bit funky and the pain was horrific.**♥ 3source record 1276 **Those are fucking horrible, I lived with a broken tooth for 2 years (NHS dentists were in shortage because Covid related violence had made a lot of Chinese dentists go back to China, and my area had lots of Chinese dentists)**♥ 3source record 1277 **Tooth infections are no joke. That deep, throbbing pain that somehow feels like its taking over your entire face is brutal. And the worst part is you cant just sleep it off**♥ 2source record 1304 **I had 2(?) dry sockets so that was fun!**♥ 1source record 1344 **Deffo tooth infection. Beats kidney infection and childbirth. I would pulled it myself if I could. Codeine didn't touch it.**♥ 2source record 1374 **Has a dry socket after getting my wisdom teeth removed. Drove myself bawling, to the dental college where I’d had the procedure done, and the instant relief of the clove oil thread they packed into the hole was heavenly. 0/10 - do not recommend dry sockets**♥ 2source record 1419 **I've given birth 4 times. I've had kidney stone and gallbladder surgery. The most painful thing I've ever endured was a rotten molar.**♥ 2source record 1490 **Either a dental abscess that made my whole face swell like the elephant man? Or a pilonidal cyst maybe?**♥ 2source record 1517 **Toothache, twice where I had to have root canal. First time was the worst, had an abscess trapped inside the tooth creating pressure directly on the nerve that couldn’t escape. Finally made it to a dentist who just drilled a hole in it and straight away felt better, then had root canal a couple of days later. The next time I started getting similar toothache I didn’t leave it so long.**♥ 2source record 1518 **Had a horribly infected wisdom tooth they wouldn't pull. Put me on antibiotics which didn't work. I went septic. I went in the Monday after Thanksgiving. It was pulled January 3rd. It was a month of no sleep agonizing pain and thoughts of suicide. It was when opioids were easier to get and I went through an astronomical amount, which barely touched the pain. And I'm not exaggerating I nearly killed myself the pain was so brutal. I've passed a kidney stone, popped a few discs in my lower back, had a contusion to my spinal cord, broken bones, and nothing was even half of that damn wisdom tooth.**♥ 2source record 1537 **I don’t know how you did an abscessed tooth for that long. Within 3 days my face was swollen. It was pure torture.**♥ 2source record 1681 **Dry socket after getting my wisdom teeth pulled out**♥ 1source record 1844 **I had a tooth abscess that was antibiotic resistant. My face was unrecognizable. I had to have surgery to remove it. It was absolutely awful. The most pain I've ever felt because nothing soothes it.**♥ 2source record 1856 **Tooth infection**♥ 1source record 1916 **Tooth Abscess Sciatica Kidney Stones**♥ 1source record 1925 **Toothache. Way worse than giving birth imo**♥ 1source record 1943 **Dry socket on a back tooth, molder I think. Nerve was exposed to air and this was most pain I ever experienced in 60+ years.**♥ 1source record 1988 **I never, ever, ever want to have the abscess on my jaw ever again. Absolutely unrelenting pain, shoots up into your head and down your neck, and you have to put up with it for a week while the antibiotics work before the dentist will even touch it, all the while looking like I had a golfball stuffed under the skin of my cheek like a chipmunk.**♥ 1source record 2015 **Pregnancy. And I voluntarily did it. Twice. But in all seriousness an infected wisdom tooth or when I had shingles on my head and down my spine. I also didn’t know what it was and the emergency doctor told me I had a bad reaction to shampoo. I thought I should be fine and tried going for a run in a heatwave. Had mass regrets. Found out next day it was shingles from my GP but by then I missed the window for the meds.**♥ 1source record 2034 **Not an illness, but a shattered infected wisdom tooth. Passion was so bad I wanted to bash my soul in to a brick wall or anything that would make it go away. Was worse than gallstones.**♥ 1source record 2082 **Infected tooth. Holy hell that was the worst pain I've ever experienced.**♥ 1source record 2090 **Nasal infection or Tooth Infection. Those cavities made me want to break my jaw myself**♥ 1source record 2103 **I’ve had wires drilled through my skull, into my brain, and left there for week to see what’s going on. And still I’d say my wisdom teeth being removed. In the time between the stuff the oral surgeon gave me wore off and the prescription pain killers kicked in.**♥ 1source record 2183 **Tooth root abscess**♥ 1source record 2210 **Dolor de muela por una caries tomando en cuenta que pase por dos cesarías, fue horrible**♥ 1source record 2229 **mandibular osteomyelitis**♥ 1source record 2314 **Abscess in my head at age 16 - originated from a tooth. I have a crown on my front tooth, when my braces were taken off it pulled the crown off, some germs got in the the part of my tooth I still had, and when they replaced the crown the following day, there was nowhere for the germs to go, so they just multiplied, and multiplied, and multiplied. They just sealed the infection in my head. The infection spread up in to the roof of my mouth, and was pressing on all the nerves in my soft palate/jaw/nasal area, the whole right side of my head. Painkillers didn't touch it, antibiotics didn't touch it - they had to drill a hole in the back of my tooth and told me to suck the poison out. Suck, and spit it out until I see blood in the stuff that I was spitting. On the Xrays they took, the infection was the size of one of those big white gobstoppers, and was dangerously close to spreading to my brain.**♥ 1source record 2330 **Had all four wisdom teeth out while recovering from whooping cough because I was cleared for surgery, symptoms were improving, I and didn’t wanna put it off. Symptoms came back in full force after surgery and I ended up dislodging the blood clot in the left side of my jaw which led to dry socket. Stopped eating and drinking because I couldn’t open my mouth at all, but was also still managing a horrendous chest-deep throat-shredding cough every 3-5 minutes. Everything about it was awful.**♥ 1source record 2342 **Ive had many teeth abscesses in my life and theyre definitely the worst pain ive been in. Nothing can stop it until the root canal busts it loose.**♥ 1source record 2361 **Split molar**♥ 1source record 2402 **No one beats toothache**♥ 1source record 2425 **Cancer sucked but I had a toothache that was worse.**♥ 1source record 2439 **Dental infection that needed a root canal… I understood why in cartoons people pulled out teeth with a wrench**♥ 1source record 2470 **Tie between an infected tooth and having my appendix burst and almost dying from sepsis. The toothache was probably more intensely painful, with no way of alleviating it for even a split second. The appendix made everything between my rib cage to my bladder feel like it was both on fire and being stabbed with knives. But with the appendix stuff I could squeeze for a few seconds and feel a tiny bit of relief so maybe because of that it takes second place.**♥ 1source record 2476 **Neighbouring dental abscesses, one of which punched into my sinus. It felt like something was burrowing through the roof of my mouth and at its worst I can remember thinking that whatever this was might kill me. Took close to 10 months, multiple courses of antibiotics from a dismissive doctor before a referral from my dentist and a CT scan at an endodontist who said "...well I can see what's wrong immediately". He said he was surprised it hadn't put me in hospital or worse. Pain from the flare-ups aside, I felt so ill for most of that year because the infections smashed my immune system. Root canals fixed me up but they had to schedule the two stages 3 months apart to let the holes in my jaw (from the abscesses) grow back :( That said, the endodontist was an absolutely lovely man and probably the best in my city, who made a pretty awful procedure surprisingly easy. But I have a different doctor now.**♥ 1source record 2489 **Infected tooth. I could feel the inside of my tooth shaking when I coughed. Thankfully I had a wonderful root canal experience (actually, no pain or discomfort at all. The steroid they gave me made me super anxious, though).**♥ 1source record 2502 **Physically: Tooth pain or an ear infection. Mentally: Addiction**♥ 1source record 2529 **Returning infection above a root canal I had 8 years prior. It had been redone 2 yrs ago and an infection (caused by the original dentist drilling 2 post holes and only putting 1 post in and leaving the second empty, which bacteria got into) had been cleared, but I guess some of it survived because one Friday evening this February (so I couldn't go in til Monday) the infection just exploded to life and ate tf out of my upper right mouth. I took an antibiotic and if the infection retaliated cause it made it 10x worse, my whole right side of my face blew up and hurt soooo bad I had to sleep sitting up with pillows propping up my head cause my heartbeat when I laid down would pulse and hurt incredibly intense. So i went in and they did an emergency apicoectomy. They couldn't see the infection on x ray or anything and planned to only do an apicoectomy on #4 but it ended up being from #2,#3,#4,#5 and I almost overdosed on the epinephrine in the mara(I think that's how it's spelt)caine cause painkillers wear off super fast with me so they had to suture me up (they were out of biocompatible suture so had to use the ones that you need to have manually removed weeks later) without painkiller. They removed a ton of infected tissue and some rotten bone and had to fill what they took out with bone putty. It was the worst pain I've ever experienced and no amount of brushing and flossing (except if I had done better as a child 🤦‍♀️) could have prevented it which drives me insane because I fear it happening again.**♥ 1source record 2553 **Paradontitis.**♥ 1source record 2619 **Gum infection 😭**♥ 1source record 2669 **Infected root canal. I would wake up crying. Terrible.**♥ 1source record 2697 **Wisdom tooth infection and gout**♥ 1source record 2699 **Tooth cavity**♥ 1source record 2713 **Abcessed tooth. Ruptured appendix didn't have anything on my infected tooth. Wow, never had a pain that made me vomit and want to pass out before.**♥ 1source record 2856 **Would you consider having a tooth die in your mouth an illness?**♥ 1source record 2884 **Dry socket after having a tooth out, agony for 3 days😖 prolapsed discs in my back, indescribable 😖**♥ 1source record 2926 **Dry socket after wisdom teeth extraction. I had mine taken out two teeth at a time. Got dry socket on both top & bottom, both times. I’m not saying liquid cherry codeine should regularly be frozen into an ice pop, but occasionally it’s the only answer.**♥ 1source record 2959 **Dry socket was unbelievably painful. Inflamed bowel following a bad reaction to medication, than god for morphine.**♥ 0source record 2999 **Abscessed tooth**♥ 1source record 3014 **Wisdom teeth. Job at the time kept fucking over my hours so I never qualified for benefits (you have to work 160hrs/month (40 a week) to qualify. I was getting 40hrs every 3 weeks, then 37 on the last week). I kept putting it off because I knew I couldn’t afford getting them done out of pocket. One of my managers told me about a program, by time I got in all 4 of my back molars were crushed beyond repair. So in total, I had 8 teeth pulled and the stress of it all made me nearly code on the table (I also have a MASSIVE fear of the dentist, the entire time I was there my heart rate was in the 190s which was fun /sarcasm) Edit: forgot to add but I had all 8 teeth pulled while awake, because nobody in my town offers KO sedation (they did give me a “calming” gas that very clearly was not working)**♥ 1source record 3025 **Well, I needed an emergency root canal, I’m not sure if that’s really an illness. Very likely saved my life though, along with antibiotics. Worse pain ever, I would say.**♥ 1source record 3035 **I had an infected tooth that had me crying in pain. This knee I just replaced doesn’t even touch that.**♥ 1source record 3108 **Physically? A tooth infection. Mentally? Alopecia.**♥ 1source record 3124 **Abscessed tooth.**♥ 1source record 3159 **Tooth infection thought about ripping it out on my own**♥ 1source record 3167 **The fallout from a wisdom tooth removal. Lucky I didn't have two out as my neck blew up like a balloon for a week and my jaw locked to a finger's width. Miserable. After that I strained my back at the gym and just lost all core strength. Could barely step up tiny steps. That was a miserable fortnight too. Reading these comments I've had it quite easy really 🤣**♥ 1source record 3185 **Does it count as an illness? I had an infection going on in my gums due to an impacted wisdom tooth. It sounds so silly, but the PAIN. Every little facial movement hurt, I couldn’t sleep and laid awake for days. It reminded me of getting some weird kind of implants in my jaw. To me, facial and dental pain is one of the worst pains considering the problems are often quite minor. I used to have loads of ear infections as a kid and I vividly remember that pain. There’s also pretty much nothing you can do about it. I understand these things sound so silly, because I agree, but it’s a really shitty type of pain and feels like it shouldn’t be hurting that much lmao. I’d rather have another episode of severe bronchitis or tear my ankle ligaments.**♥ 1source record 3295 **Not an illness exactly, but a complication from a root canal. It was done on an upper second molar, which as it turns out, had an anatomic variant with an extra rootlet that didn't show up on the x-rays (it lined up exactly with one of the normal roots). So they did the root canal, but left a live nerve in my tooth. Once the local wore off, it was like someone was sticking an ice pick in my brain through my mouth. It was over 35 years ago, and I remember it like it was yesterday.**♥ 1source record 3324 **I have had 3 children where the epidural didn’t work but still the worst pain I ever had was when I was 11 weeks pregnant and got an abscess in my top back right tooth that also needed a root canal. The pain was like nothing I have experienced in my life. It was like pain in my jaw, cheek and brain. It’s hard to explain. I hope to never experience it ever again.**♥ 1source record 3339 **TMJ**♥ 1source record 3367 **Toss up between dry sockets after wisdom teeth were removed or interstitial cystitis. Both were way worse than kidney stones, childbirth, abdominal surgery, endometriosis, broken bones, migraines, etc. for me.**♥ 1source record 3375 **not illness, injury. I had a toothache hit while sitting in the dentist chair. it was so painful I couldn’t even breath I couldn’t say I was in pain. it was instant tears running down my face. luckily dentist saw and put laughing gas mask on me. I’ll never forget what REAL pain is.**♥ 1source record 3451 **Wisdom teeth**♥ 1source record 3547 **Periaphical cyst at my tooth root. It took my breath away**♥ 1source record 3560 **Dry rot after tooth surgery**♥ 1source record 3653 **Hard tie between dry socket that turned into a jawbone infection or the year of c diff that came after the antibiotics I had to take for the infection.**♥ 1source record 3671 **Abscessed tooth**♥ 1source record 3680 **Dying tooth.**♥ 1source record 3696 **Not an illness per se, but dry socket after wisdom tooth surgery. Incredibly painful. Dental pain is on another level.**♥ 1source record 3743 **wisdom teeth, never again**♥ 1source record 3745 **Having my wisdom teeth pulled, the anesthesia wore off and hubby wasn't home with pain meds yet. I ended up not being able to take the meds (made me vomit), so I had to do without proper meds and developed dry socket. It lasted weeks. Would not recommend.**♥ 1source record 3762 **Compared to a lot of these answers these aren’t too bad, I guess I’ve been lucky in the pain department so far. First one was a bad toothache when I was a kid. I remember sitting in my classroom not being able to focus on anything but the pain, and at recess I would just sit by myself at a picnic table instead of running around with my friends. I didn’t tell my parents right away because I was scared of the dentist but after like three days it got so bad that I was quite happy to go to the dentist and get a root canal to make it stop hurting. Second, strep throat pain. I never had it as a kid and randomly got it for the first time as an adult just a few years ago. I didn’t know it was THAT painful. Third, not really bad physical pain but just… a horrible experience. Got really badly sick one night seemingly out of nowhere, like food poisoning times a thousand. Spent HOURS in the bathroom with stuff coming out of both ends, had to hold a garbage can while I sat on the toilet. I would get, at most, five minutes between puking, and it lasted for a good five or so hours before it slowed down. I was finally able to turn the shower on, crawl inside to sit in the tub just long enough to rinse the sweat off me, and then get out without actually washing anything because I was so exhausted at that point and just needed to lay in bed. The next day my entire abdomen/back was sore from the strain of throwing up so much in such a short time period. I thought I’d just eaten something very bad but this happened to me TWO more times only a few months apart before I \*finally\* figured out that it was an allergic reaction to cashews, which I’d eaten just fine since I was a kid. My grandmother always bought me cashews in bulk so I was happily eating them whenever she gave them to me, not realizing my body had suddenly decided I could absolutely NOT have them anymore. 😑**♥ 1source record 3806 **Not an illness, but I once had an exposed nerve in a tooth that I had accidentally cracked. If food ever touched it, it felt like someone was sticking a fine needle inside of my tooth and was digging around in there. My whole entire left side of my face would begin to throb and gradually just get worse and worse for about 10/15 mins until my codeine kicked in. Had to wait a couple months for it to be removed, so now I just have a gap where they extracted my tooth. Worst pain of my life.**♥ 1source record 3827 **Toothache with possible exposed nerve. I started with paracetamol and then two endones which didn’t hit the sides. I’ve given birth, had gallbladder pain but honestly this toothache brought me to my knees. Ended up at hospital on a drip with morphine, steroids and antibiotics. Finally pain subsided.**♥ 1source record 3854 **Dry socket. Did you ever want to run head first into something to knock yourself out? Yeah. Eugenol packing from the dentist granted instant relief.**♥ 1source record 3889 **second worse—unmedicated root canals a few months before on my two front teeth because I faceplanted and broke them in half. Dentist said he wasn’t comfortable using pain killer while I was pregnant (which now I know is a total lie and he totally could of it he cared to look it up)**♥ 1source record 3904 **root canal infection. the pain is unbearable once it happens, it took a single day to go from just a little toothache after eating hot foods to crying from the pain so hard Im almost throwing up. At one point I was just hitting/pinching myself so my brain could focus on another pain. Also during the cleaning you can feel them literally digging inside your tooth so deep you can feel the scraping in your jawbone.**♥ 1source record 3941 **Four simultaneous dry sockets after my wisdom teeth were taken out. For reference, I've also cut off a finger. Way less painful.**♥ 1source record 4029 **Impacted wisdom tooth. Worse than my crumbling spine.**♥ 1source record 4079 **dry socket after wisdom teeth removal**♥ 1source record 4085 **Covid + tooth abscess. I couldn’t scream in pain because I couldn’t breathe, and any time I moved my head it felt like my jaw exploded, so I just dug my nails into my thighs until bloody. Then one of the punctures got infected.**♥ 1source record 4088 **Failed root canal. Absolutely the worse Ive been through 1\. child birth without the happy drugs 2\. all bladder / stones for 4 months before I got surgery 3\. Spinal injury- lumbar / compressed discs 4\. Cervical disc injury with nerve burning as a treatment without numbing The failed root canal brought me to my knees in pain.**♥ 1source record 4137 **Cavities > root canal**♥ 1source record 4138 **A tooth abscess was the worst pain I have ever had too. I’ve had a ruptured ovarian cyst and I have given birth and the tooth abscess was worse. At least you get a small break between contractions when in labour, although arguably peak contraction labour pain is worse. The tooth abscess doesn’t let up and there are no breaks. Just constant agony.**♥ 1source record 4246 **I had to have it pulled. No saving it. Was told I should get a bridge or implant but honestly, all that pain was so traumatic I can’t stand for even my toothbrush to rub my gum there wrong and the thought of having to go through more pain for that spot doesn’t sound like something I want to go through. Not yet anyways. I also suffer from tmj so dental appts really take a huge toll on me.**♥ 1source record 4320 Archive: 106 index entries preserve 106 distinct source records · Every displayed synthesis count resolves to source-record IDs Eyes27 index entriesCorneas, retinas and eye infections, from people who did not know an eye could hurt like that. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Eyes Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Eyes 27 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2886 **Appears when:** Eyes **What the pattern means:** A small group whose writers share one reaction: surprise that an eye could produce pain on this scale. The specifics differ — a scratched cornea, an ulcer, an amoeba, iritis, a retina — but the descriptions converge on the impossibility of blinking, light as an active source of pain, and, in the chronic accounts, the relentlessness of something that recurs every morning on waking. **What commenters described:** Dry eye disease. Imagine having a searing hot needle piercing your cornea, every day, for ten years. Or the feeling of a fresh papercut opening up on the surface of your eye, every ten seconds. That's dry eye disease. **Limit:** Most of these conditions appear once or twice, so the group is a collection of individual cases rather than a pattern. Nothing here identifies an eye condition, and eye symptoms are not something this page can help anyone assess. What the replies added1 I had corneal abrasions in both eyes at the same time. It is not something I ever want to experience again. From the replies♥ 1 #### Where commenters report limits Explicit limit or counterpoint Iritis. Attacked typically in the spring, with no warning and with no obvious known causes. That until I discovered that I do have the HLA-B27 marker, which explained everything. Luckily, I dont have those month-plus long episodes anymore that were so cripling. source record 3115♥ 1 #### Source-record spotlights Most engaged source Ocular rosacea: imagine being not only allergic to sunlight, but basically getting sunburn on your eyes that takes weeks to recover from after only being out without protective sunglasses for like five minutes. source record 1516♥ 2 Later-arriving source Reoccurring corneal abrasion. Your eyelid sticks to a scar on your eyeball and as you wake up and open your eye you rip open the wound. Your tears then feel like acid. posted about 4 days after the source♥ 1 Low-like source Acanthamoeba keratitis. There's a reason why that eye pain is rated worse than childbirth. posted about 4.1 hours after the source♥ 1 #### Related evidence elsewhere in the index [Bladder, kidney infections and the prostateChange the sentence · 6 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[CancerChange the sentence · 2 there](#rich-node-0-group-8-subgroup-0-cancer)[Depression and mental illnessChange the sentence · 4 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness) #### What the counts show Across 27 source records, the most common observable tactic structure is “Change the sentence” (2 records). This is a wording pattern, not a measured outcome. 27index entries 27distinct source records 7.5%of parent category 0.7%of the complete index 26top-level comments 1replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 26other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Change the sentence **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments27 preserved records · 27 of 27 source records accounted for **Detached retina**♥ 2source record 1376 **Ocular rosacea: imagine being not only allergic to sunlight, but basically getting sunburn on your eyes that takes weeks to recover from after only being out without protective sunglasses for like five minutes.**♥ 2source record 1516 **A scratched cornea**♥ 1source record 1743 **Not an illness but I got temporarily blinded by a chemical burn, the pain wasn’t in my eyes like it should have been but directly behind them and all across the top of my head, like Barry Bonds in peak steroid use had wound up and smashed an axe into the top of my head, caused me to black out on a number of occasions when sitting in the A&E dept waiting to be seen, I think it was exacerbated by the lighting there and the hyper sensitivity of the eyes in that condition, I have ADHD and as a result have an extremely high pain tolerance so I knew something was really bad**♥ 1source record 1780 **I contracted an ear infection on holiday, and i must've scratched my ear and taken my contact lenses out without washing my hands. The next day my eyes were on fire. Light was so painful that I went and sat in the airing cupboard for some dark relief. Absolutely the worst pain I've felt, the ear pain was nothing compared to my eyes.**♥ 1source record 1904 **Acanthamoeba in my right eye. Though I suppose it was the treatment(scraping my cornea off every 3 days for 2 months) that was the really painful part. Especially here in Japan where they don't prescribe painkillers.**♥ 1source record 2160 **Corneal ulcer. It’s amazing how much pain one little eyeball can cause. All I wanted to do was sleep…or at least BLINK, but that was too painful.**♥ 1source record 2270 **Acanthamoeba keratitis. There's a reason why that eye pain is rated worse than childbirth.**♥ 1source record 2377 **cornea pulled out while fully conscious. Didn’t know eyes could hurt like that**♥ 1source record 2515 **Severe and untreated dry eye disease**♥ 1source record 2626 **Epithelial Basement Membrane Syndrome- my corneas would blister and fold. My god the pain was unbelievable!**♥ 1source record 2791 **Dry eye disease. Imagine having a searing hot needle piercing your cornea, every day, for ten years. Or the feeling of a fresh papercut opening up on the surface of your eye, every ten seconds. That's dry eye disease.**♥ 1source record 2886 **optic neuritis**♥ 1source record 3047 **Iritis. Attacked typically in the spring, with no warning and with no obvious known causes. That until I discovered that I do have the HLA-B27 marker, which explained everything. Luckily, I dont have those month-plus long episodes anymore that were so cripling.**♥ 1source record 3115 **Chemical conjunctivitis**♥ 1source record 3263 **cornea pulled out while fully conscious. Didn’t know eyes could hurt like that**♥ 1source record 3358 **Corneal ulcer**♥ 1source record 3843 **Technically not an illness, but a bad scratch on my eyeball. Painful, uncomfortable, impossible to function for nearly two days.**♥ 1source record 3928 **Reoccurring corneal abrasion. Your eyelid sticks to a scar on your eyeball and as you wake up and open your eye you rip open the wound. Your tears then feel like acid.**♥ 1source record 3960 **Blepharitis**♥ 1source record 3971 **Cornea scratch hands down**♥ 1source record 4053 **Any kind of eye pain**♥ 1source record 4089 **I had corneal abrasions in both eyes at the same time. It is not something I ever want to experience again.**♥ 1source record 4090 **Detached retina from uvitis infection**♥ 1source record 4105 **Dry eye**♥ 1source record 4126 **Welding flash**♥ 1source record 4131 **Conjunctivitis**♥ 1source record 4163 Archive: 27 index entries preserve 27 distinct source records · Every displayed synthesis count resolves to source-record IDs Nerves, the spine and the back486 records · 5 sub-topicsThe thread's third-largest answer and the nerve conditions filed beside it. 486 records. Shingles, and the nerve pain it leaves behind244 index entriesThe third-largest group, and the one whose writers most often bring up their age and the vaccine unprompted. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Shingles, and the nerve pain it leaves behind Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Shingles, and the nerve pain it leaves behind 244 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 962 **Appears when:** Shingles, and the nerve pain it leaves behind **What the pattern means:** The third-largest group, and the one where the writers' age is part of almost every account: commenters in their twenties and thirties report being told they were too young, and several say that cost them the window for antiviral treatment. The pain is described as nerve pain rather than skin pain — burning, electrocution, a hand under the ribcage — and touch is the recurring trigger, with clothing, a bra strap, a seatbelt and moving air all named. The group's distinctive feature is what happens afterwards: writers describe postherpetic pain lasting months or years, and a specific dread of any twinge in the same place. **What commenters described:** Came here to say this! Neuralgic pain from shingles feels like someone running you through with a red hot sword, then electrocuting you and kicking you in the back, all at the same time. **Limit:** This group is a self-selected set of severe cases, and it contains its own counter-examples — several writers report mild episodes. Vaccination is raised constantly by commenters, both for and against, and none of that is verified or endorsed here; eligibility and advice are matters for a clinician, not a comment thread. What replies pushed back on6 Shingles on my fucking face 😭 left scars too because I thought it was acne when it first popped up and put treatments on that made it way worse. Awful experience, just awful. Pushback♥ 6 I describe my 33 year old shingles bout as if someone jammed an ice pick into my skull and then lit my head on fire. No sleep 72 hours straight, sheer pain, and a male doctor who didn’t believe me and did nothing for me. I have Adenomyosis, and issues with that monthly but jeebus the shingles pain was the worst non-relenting pain and ibuprofen/naproxen didn’t scratch the surface. Pushback♥ 2 Nope. From experience: Kidney stones. Pushback♥ 1 Shingles is pretty high on the list.. I also got to discover that the deeply painful sores can hurt BEFORE the rash shows up. I had what felt like a very deep tissue, large bruise for like a week before the first hint of a rash. There was nothing there so I kept assuming I was sitting wrong or somehow hurting it in my sleep or something. The first bits of rash showed up exactly where the pain was. Went to the urgent care and got anti-viral medication at the first suspicion of shingles and that painful shit still lasted a month. Was right where my bra sits too so it was constantly being irritated. Reported failure♥ 17 I had it when I was 4 and 46\. I've nerve pain in both sites. Extremely painful. Tops broken bones, gallstones, endometriosis, strep throat, root canal. It is brutal. Reported failure♥ 14 I've had kidney infections and stones, had an embolism in my lung due to covid 19, gave birth, broke my pelvis, has stitches without anesthetic, had a burn that required a skin graft - shingles, hands down, is the worst thing I have ever experienced. I thought I was going to die and I was ready to if it ment the pain would stop. Reported failure♥ 5 #### Where commenters report limits Explicit limit or counterpoint I describe my 33 year old shingles bout as if someone jammed an ice pick into my skull and then lit my head on fire. No sleep 72 hours straight, sheer pain, and a male doctor who didn’t believe me and did nothing for me. I have Adenomyosis, and issues with that monthly but jeebus the shingles pain was the worst non-relenting pain and ibuprofen/naproxen didn’t scratch the surface. source record 816♥ 2 Explicit limit or counterpoint I was right on the cusp timewise my first infection. I'm 'too young' to have shingles, so the first 3 health professionals I spoke to about the pain (shooting out my ear), then rash (was told irritation due to heat/oils etc I was trying in my sore ear) dismissed any concerns. It was the headache that wouldn't quit. I saw the doctor, and before I'd even say down he told me it was shingles. The second time, I was in a foreign country. I woke up with a rash, and that pain - no advanced warning (though - I guess I had been favouring my face the week prior), and sought emergency treatment on day 1\. This was when I asked for a treatment to keep on hand for if it happened again The third time, no blisters appeared, but that same zinger of pain plus prolonged headache. The headache stopped the second day of my antivirals, and I restocked my to have on hand supply. I have definitely thought about asking for an ongoing daily dose. I'd wondered if that would help. I'd rather try that than to increase my gabapentin and/or amitriptyline (I take both to combat the shingle tingle that's been left behind) again. I'll have to make sure I ask for some. source record 822♥ 2 #### Source-record spotlights Most engaged source I had a shingles lesion near my clit. I woke up one morning and it fucking hurt. I can’t even express how much it hurt and I’ve had kidney stones and given birth unmedicated. I went to the walk in clinic and I had shingles and a UTI. Happy 30th birthday to me. source record 72♥ 583 Later-arriving source Shingles made me pass out from the pain, but then I also had a tear in my sciatic nerve and when the nerve began to heal and the pathways reconnected to my spine I scream so loud for hours and hours it was agony and I sure passed out posted about 7 days after the source♥ 1 Low-like source Same on all accounts. It's like a million needles that are on fire being stabbed into your back. 🥴 I was in high school and I still recoil at the thought of it. Luckily I got the vaccine so hopefully I'm good now. posted about 3.9 hours after the source♥ 1 #### Related evidence elsewhere in the index [Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis) #### What the counts show Across 244 source records, the most common observable tactic structure is “Attach it to an existing routine” (9 records). This is a wording pattern, not a measured outcome. 244index entries 244distinct source records 50.2%of parent category 6.5%of the complete index 121top-level comments 123replies #### What commenters explicitly report 0explicitly reports a benefit 3explicitly reports a limit or failure 6asks a question 0says they intend to try it 235other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **9**Change the sentence **7** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments244 preserved records · 244 of 244 source records accounted for **Shingles**♥ 637source record 71 **I had a shingles lesion near my clit. I woke up one morning and it fucking hurt. I can’t even express how much it hurt and I’ve had kidney stones and given birth unmedicated. I went to the walk in clinic and I had shingles and a UTI. Happy 30th birthday to me.**♥ 583source record 72 **I’m sorry you had to deal with that, when I was dealing with it, one of the top posts on r/shingles was ‘Shingles on my dingle’ and that caused my body to physically recoil in horror. I can’t even fathom. I’ve dealt with chronic headaches on par with migraines for 25 years and shingles ranks right up there on my ‘fuck that’ scale**♥ 139source record 73 **One of my friends had this exact thing happen to her. She called me at like 1 AM to ask if I could drive her to the ER. When I picked her up, she could barely walk and she was shaking and sweating, and when I finally asked her what was up, she didn't even tell me, she just pulled down the front of her shorts and I don't think I have ever had a heavier lead foot than I did that night because oh my fucking God.**♥ 40source record 77 **That’s wild. I can’t imagine how bad her hurt. I couldn’t even see it on myself it was small. The pain was like nothing else.**♥ 10source record 78 **At first I didn't see anything either, I had thought maybe she had gotten something stuck in her (I was like 20 at the time, my knowledge wasn't that great lol), but then when I hit the cab lights it looked like she had poured hot oil on herself it was blistering so badly.**♥ 12source record 79 **I had shingles just after birthing my son. Around the torso. The pain was stratospheric. Worse is 39 years later i get flare ups on my vulva. Confirmed as shingles. Mostly when I’m stressed. I’m stressed from being afraid that they will come back!**♥ 4source record 82 **1,000% period. I know everyone is different, but the top comment right now is endometriosis (corrected) and as someone who had a hysterectomy at 26 due to Endo, the shingles literally made me suicidal. Every once in a while I'll get a twinge in my shoulder and get a full blown panic attack because it feels like it's coming back AGAIN and I absolutely refuckingfuse.**♥ 73source record 84 **Every. Fucking. Time. I’m like ‘don’t be shingles don’t be shingles don’t be shingles’**♥ 30source record 85 **Literal PTSD. I've had to work with therapist to try to calm the fuck down. Random itchy bump? Shingles. Random twinge? Shingles. Straight to jail**♥ 27source record 86 **Any time I say "owe" my kid asks if it's shingles. I've had 3(!!) shingles infections in the past 3(!!) years. On my face. It feels like someone is putting a cigarette out on those spots, on my face. I'm extra super medicated still, due to the PHN. And, I still randomly get that tickle. The one that made me chop my hair off. From lower back length to cropped pixie. The wind touching my face was unbearable. Shingles suck.**♥ 7source record 87 **Yessss. I panic when I feel the 'Shingles Tingle.'**♥ 5source record 88 **I get the twinge too and the anxiety is so intense. It was one of the worst experiences of my life.**♥ 4source record 89 **I was going to say this. It wasn't me, but my sister's boyfriend had horrible shingles earlier this year, on his head. He said it was the absolute worst pain he has ever experienced.**♥ 29source record 91 **Hey! I have shingles right now! It goes in waves for how painful it is. Shit sucks. Currently on day 10.**♥ 27source record 92 **Shingles is pretty high on the list.. I also got to discover that the deeply painful sores can hurt BEFORE the rash shows up. I had what felt like a very deep tissue, large bruise for like a week before the first hint of a rash. There was nothing there so I kept assuming I was sitting wrong or somehow hurting it in my sleep or something. The first bits of rash showed up exactly where the pain was. Went to the urgent care and got anti-viral medication at the first suspicion of shingles and that painful shit still lasted a month. Was right where my bra sits too so it was constantly being irritated.**♥ 17source record 93 **This is how mine presented! I thought I had a bruise on my back, it was killing me. I couldn’t lean back in chairs or sleep on my back. And then the rash started to show and I thought it was a spider bite. Went to urgent care and diagnosed with shingles. I was also newly pregnant and wanted to barf all the time…**♥ 6source record 94 **A year ago I had pain under my rib front and back, and I suspected kidney stones. Dr referred me for an ultrasound,but the rash came out before the scan appointment. I’d had shingles 30 years ago, but the nerve pain this time was unreal. It lasted for about 6 months. Ironically the scan showed gallstones and I’ve since spent 10 days in hospital after a pancreatitis attack. My gallbladder is being removed in two weeks, but the shingles was more painful than the pancreatitis or gallbladder attacks.**♥ 4source record 95 **Hey eye shingles buddy! I had it in my right eye and the right side of my face! Super fun.**♥ 4source record 97 **So I caught shingles whilst taking medication that suppressed my immune system. The doctors at the hospital were CONCERNED.**♥ 12source record 98 **Shingles and it's not even close. I was 24 lmao**♥ 50source record 99 **I was also in my 20’s and it was awful!**♥ 19source record 100 **I had shingles when I was about 9 years old. My doctor had never seen a kid with them before. Leave it to me to defy the odds lol. It was very very painful. I just turned 50\. I think I should get that vaccine now!**♥ 4source record 106 **I had it when I was 4 and 46\. I've nerve pain in both sites. Extremely painful. Tops broken bones, gallstones, endometriosis, strep throat, root canal. It is brutal.**♥ 14source record 108 **I had it all over my back and it lasted over a week. This was over 20 years ago before the vaccine existed. It was very painful for me**♥ 5source record 109 **For me, its a toss up between shingles and pinched sciatic nerve from a herniated disc.**♥ 6source record 110 **Shingles on my fucking face 😭 left scars too because I thought it was acne when it first popped up and put treatments on that made it way worse. Awful experience, just awful.**♥ 6source record 111 **I just had shingles a few months ago. It felt like my torso was being torn apart. Late 40s. CoViD actually hurt more. So did a really powerful migraine. I lost consciousness.**♥ 5source record 112 **Really? I had it once and it wasn't that bad. Like definitely not like taking a crap while having 3 anal fissures at the same time kinda bad. I guess I gotta lucky :/**♥ 12source record 113 **Been through multiple kidney stones, plantar fasciitis, but shingles was the absolute worst and it lasted for fucking ever.**♥ 4source record 114 **That shit hurts. I had a severe case of it. I was in bed for weeks having to take all kinds of medications several times a day. It was all over my face**♥ 3source record 115 **Shingles. I’ve had it three times and I still can’t get the vaccine because I’m not old enough. I was 7 the first bout, 17 the second and 23ish the third. I’m only 4 years away from being able to get vaccinated but I still can’t feel the spots on my face and leg when I touch them. However, they do some really fun random stabby/zappy pain at random intervals!**♥ 3source record 116 **My former MIL was in so much pain the hospital almost removed her appendix! I’ve been terrified ever since!**♥ 3source record 117 **Exactly. The oxycodone didn't help AT ALL so on my 4th night without sleep I was so desperate I doubled up on the oxy and chugged whisky from the bottle to make myself pass out. Incredibly foolish in hindsight, but at the time I was grateful to get a handful of hours away from the pain. 19 years later and the scars still get phantom pain sometimes.**♥ 3source record 118 **Yep. Shingles. No contest. I was 33 and still nursing twins, too. Got bad medical advice from my LPN initially that I couldn't take the anti-viral due to nursing. Pediatrician cleared that up two days later ("It's FINE for you to take. It's the same medication we give to babies who get viral meningitis!"), but I remember telling my sister at the time that it was far worse than the post-c-section pain nine months earlier. Then I got really lucky and got it again at 61, though it was much milder, maybe because I recognized it immediately and jumped right on the anti-viral. I've had Shingrix since then so hopefully that second time was the last.**♥ 3source record 119 **Got shingles at 31\. Didn’t know because I only had 1 lesion on my chest. Thought it was pimple or clogged pore. Went to the Doctor because of the burning chest pain that wrapped on one side all the way down to my lumbar. It was too late to take the medicine, so I dealt with postherpetic neuralgia for several months. It was hell. Couldn’t get comfortable, couldn’t sleep on the affected side. Really affects you mentally and physically.**♥ 3source record 120 **OMFG YES! I just turned 41 and had shingles on my birthday for the first time. I'm just now starting to feel normal again, but still jave some lingering nerve pain. Total fucking bullshit.**♥ 3source record 121 **Shingles**♥ 11source record 353 **Shingles. I would weep in the hours leading up to my next dose of pain meds, counting the minutes. Get the vaccine, friends! You \*do not\* want to risk it. It felt like my ear was being held against a red hot stove element.**♥ 9source record 378 **Shingles on my forehead and eye.**♥ 4source record 411 **shingles**♥ 4source record 430 **So far… shingles**♥ 4source record 434 **Shingles - nope**♥ 2source record 443 **Shingles**♥ 3source record 466 **I've had kidney infections and stones, had an embolism in my lung due to covid 19, gave birth, broke my pelvis, has stitches without anesthetic, had a burn that required a skin graft - shingles, hands down, is the worst thing I have ever experienced. I thought I was going to die and I was ready to if it ment the pain would stop.**♥ 5source record 467 **It took about a month for mine to clear up completely. The pain gradually got better but lasted most of that month. Hopefully you never get it.**♥ 3source record 780 **Are you me? The sciatica was bad (couldn’t stand or walk for more than 1-2 minutes), but shingles takes the cake for pure misery. Also, shingles is just f’ing gross in addition to being painful. Weeping sores like something out of a Cronenberg movie. Ugh.**♥ 3source record 783 **Nope. I got the chicken pox when I was around 3 months old and here I am 40+ years later. No one has ever inquired about it either. Just diagnosed and dosed. I keep asking about the vaccine every year and keep getting told that I can’t get it until I’m 50.**♥ 2source record 786 **Yes! I had this on my shoulder going down to the top part of one of my boobs. It felt like my boob was being ripped off. The only thing the hospital could do was give me lidocaine patches. I’ve been T-boned by a semi carrying lumber and I’d rather go thru that pain again than shingles.**♥ 2source record 791 **I had it recently (mid 30s) on my thigh. It was definitely painful but manageable. I’m glad I got lucky.**♥ 2source record 792 **I’ve had shingles twice. First time in my teens and second time in my 30’s. Do not recommend.**♥ 2source record 793 **Yep. Had it a couple years ago on my face/head and eye. Worst pain I've experienced. After a couple days I went to urgent care. Felt like a hot needle jammed in the back of my eyeball. Have some scarring on my forehead. My eyelid droops a bit and my eye bothers me and my vision is affected. I had been going to an ophthalmologist which helped quite a bit, then my health coverage servicer changed and that doctor doesn't take the new coverage. Guess I need to find a new one.**♥ 2source record 794 **Had it starting the end of May. Still dealing with issues it caused.**♥ 2source record 795 **Shingles by a mile and I have migraines and herniated discs in my back. The pain from shingles is something else entirely**♥ 2source record 800 **Shingles are miserable! I had a horrific case when I was 12 & have had 3 cases since. When I learned of the studies showing a lowered dementia risk in those who have received the vaccine, I once again began my push to receive it early. All it took was a prescription from my doctor. They sent it to my local CVS, who called the next day and scheduled the first dose at age 40\. Had my second/final dose 4 months later.**♥ 2source record 801 **I had it when I was 16\. Couldn’t sleep for days**♥ 2source record 802 **Before I knew I had shingles I thought id somehow broke a couple of ribs ,I remember asking my husband if you could get an infection in your bones to which he looked at me bemused and then the rash came**♥ 2source record 803 **I’m 72\. Just getting over shingles. Lasted a week. Terrible pain.**♥ 2source record 808 **oh my god! i had it across my back, I cant even imagine how uncomfortable that must have been.**♥ 2source record 809 **I woke up, felt it and immediately went to the doctors.**♥ 3source record 810 **also got it on my head in my early 20s. was NOT a good time.**♥ 2source record 811 **My mother lost some eyesight from having it on the face.**♥ 2source record 813 **Same, I had it on my temple beside my eye a couple of years ago, and yes the nervey headachey pain wasn’t great and my face was swollen but it wasnt unbearable. Childbirth on the other hand 😅**♥ 2source record 814 **I describe my 33 year old shingles bout as if someone jammed an ice pick into my skull and then lit my head on fire. No sleep 72 hours straight, sheer pain, and a male doctor who didn’t believe me and did nothing for me. I have Adenomyosis, and issues with that monthly but jeebus the shingles pain was the worst non-relenting pain and ibuprofen/naproxen didn’t scratch the surface.**♥ 2source record 816 **I’m dealing with Shingles right now for the first time. I have so much regret for not getting the vaccine.**♥ 2source record 820 **I’ve had Shingles twice. The first time I didn’t know what it was until a week after the rash (and pain) started. The second time I knew what it was straight away and got myself to the doctor for antivirals. My husband had chronic shingles in his optic nerve. His specialist put him on the antivirals that are used for genital herpes, he had to take them for a couple of years. It might be worthwhile asking if you can be prescribed antivirals.**♥ 2source record 821 **I was right on the cusp timewise my first infection. I'm 'too young' to have shingles, so the first 3 health professionals I spoke to about the pain (shooting out my ear), then rash (was told irritation due to heat/oils etc I was trying in my sore ear) dismissed any concerns. It was the headache that wouldn't quit. I saw the doctor, and before I'd even say down he told me it was shingles. The second time, I was in a foreign country. I woke up with a rash, and that pain - no advanced warning (though - I guess I had been favouring my face the week prior), and sought emergency treatment on day 1\. This was when I asked for a treatment to keep on hand for if it happened again The third time, no blisters appeared, but that same zinger of pain plus prolonged headache. The headache stopped the second day of my antivirals, and I restocked my to have on hand supply. I have definitely thought about asking for an ongoing daily dose. I'd wondered if that would help. I'd rather try that than to increase my gabapentin and/or amitriptyline (I take both to combat the shingle tingle that's been left behind) again. I'll have to make sure I ask for some.**♥ 2source record 822 **Same same, but different! I had mine at 8 years old. Still have a scar on my back from one of the horrible bits bursting 🤙🏼 (34 now).**♥ 2source record 824 **Same. I got them for my 32nd birthday. It was horrible.**♥ 1source record 825 **Snap. I had shingles on my face, near my eye. Absolute agony and now I have a scar on my eyebrow.**♥ 1source record 827 **Had shingles a few weeks ago, felt like someone was holding a lighter to my skin**♥ 1source record 828 **My partner had shingles and it spread to his eye. Luckily he started the meds early since I pushed him to go to the doctor, but for a while we were worried he gets permanent eye damage.**♥ 1source record 829 **I had shingles on my sack and ass about a month ago and that was pure torture. The pain was a 10/10 but the itching after the fact… holy shit. I cried because it wouldn’t stop and I’m a 30 year old man.**♥ 1source record 830 **I feel incredibly blessed mine was mild. It was uncomfortable but that was it, not super painful.**♥ 1source record 831 **I got shingles about 15 years ago. Worst pain ever. This was the only time I ever wished I died in my sleep. I had this weird shape-shifting (so hard to describe) pain from my right hip to the bottom of my foot. I went to four different doctors in two different states (including two ERs) to try and figure out what was going on (I had just a few red bumps on my leg — no rash. So medical providers were clueless). I figured out what was happening when I was at home and saw a TV commercial for the shingles vaccine. Lightbulb moment! By then, it was too late to take the antiviral meds. It took me nine months to fully heal. Acupuncture and light yoga (and Gabapentin) brought me back to life. I definitely struggled with PTSD for quite a while afterwards.**♥ 1source record 835 **Very intense nerve pain, in addition to skin pain. Mine was on my face, from my cheekbone across my nose and down to my upper lip, and it swelled up so bad I was unrecognizable. I could hardly eat or talk. Lasted weeks. Excruciating.**♥ 2source record 837 **I got shingles when I was 7 months pregnant. A 6-inch wide band stretching around my body from my mid-torso to my mid-back. Took over a year to fully clear up. I couldn't take anything for it. Absolute painful hell.**♥ 1source record 838 **I've had it three times. It's fucking agony.**♥ 1source record 839 **I've had shingles threes times, once a year after I got the vaccine. Fortunately, each time I managed to get treatment the day it started so it never got too bad.**♥ 1source record 840 **I'm going to be the absolute outlier here. Shingles for me was fine but was on my hip so fairly easy to ignore... However mine came with a side of staph infection. THAT was unpleasant. The fact shingles can hit anywhere including the eyes though, that's horrendous 🫠 also concerning it definitely seems to be hitting people younger. I was early 30s.**♥ 1source record 841 **The worst. I felt like I was being electrocuted every ten seconds.**♥ 1source record 843 **i got shingles when i was 20 due to stress. i literally thought i’d somehow broken a rib because of how intense the pain was. crazy shit**♥ 1source record 854 **Yah it’s actually brutal that’s why we don’t like anyone pulling back the hood, pinching it, or any other weird experimental move that stimulates it full on. It’s not pleasant, though I won’t speak for all. One time I was cutting jalapeños and went pee after. I wiped and I guess had jalapeño juice down there and lemme tell ya. I’ve had shingles on my abdomen and I had a physical reaction to this**♥ 3source record 856 **I couldn’t even see it. I just knew something was very off.**♥ 2source record 859 **Same. Early twenties. On my forehead. That was not fun**♥ 1source record 860 **Same. When you‘d rather be dead you know it’s bad.**♥ 1source record 861 **Holy shit! I thought my ear canal shingles were bad…you poor soul 😭**♥ 1source record 862 **Yeah. I had no idea that was possible. I couldn’t even see anything. I just woke up and felt this nerve pain by my clit and went right in.**♥ 2source record 864 **Omg you poor woman, I had them on my head and fave and couldn't stand my hair touching them, how did you even walk**♥ 1source record 865 **I’m on day 5\. Total regret for not getting the vaccine when I turned 50.**♥ 1source record 870 **Yep, shingles hurts pretty bad! I was just a kid when I got them on the side of my face! They were nasty oozing things and the pain was horrible!**♥ 1source record 873 **I somehow got it as a kid, maybe 8-9 years old.**♥ 1source record 874 **Ouch! My Mum had Shingles in her groin too and she said it was the most excruciating pain she had ever experienced and she gave birth to 4 babies without epidurals. I’ve had Shingles too but mine was on my ribs which fucking hurt but I can’t imagine the pain of being near the clit!**♥ 1source record 875 **I had Shingles twice in the same area (front of my rib cage where the bra band sits). The second time I knew what it was straight away and got prescribed antiviral and within a couple of days the symptoms went away. Thankfully that was 14 years ago now and I’ve not had another episode. I’m sorry to hear that the antivirals didn’t work for you.**♥ 1source record 876 **I know someone who had shingles in her perineum and she couldn’t sit, she said it hurt to use the washroom and she had nerve pain for months afterward. How it gets in those places is weird to me. Like it decides “hey let’s pop up in the most tender and obscure area ever and cause this person hell on earth”**♥ 1source record 877 **Never had shingles, but my husband had. I swear he almost changed his personality because of the pain. Every day with that damn disease, he had this particular look on his face, like he just grimaced and moved his eyes like he was losing his mind or hallucinating or something. He looked and talked like he was going through a mental crisis. It scared me so much. Now he swears he wasn't in that much pain and that I'm overreacting when I tell people how he was acting when he got shingles, but he was definitely NOT OK.**♥ 1source record 946 **I had shingles and cellulitis in my face at the same time. I looked like sloth from the goonies it was awful.**♥ 1source record 947 **Ramsay-Hunt syndrome. Medieval disease. Imagine that shingles pain in your ear and your face is paralyzed and you could go both blind and deaf.**♥ 1source record 948 **J'en ai eu un à 12 ans 😕 apparemment très rare et oui c'était un peu horrible mais pas ma pire maladie. La pire maladie c'était 41⁰ de fièvre**♥ 1source record 949 **I had shingles down my arm in my 20s. I'm nearly 40 and still have faint scars. Worst two weeks of my life**♥ 1source record 951 **Absolute worst. More painful than childbirth!**♥ 1source record 953 **Same. Got them at 35\. It was rough!**♥ 1source record 954 **Had to find my shingles people. Had it in my eye.**♥ 1source record 955 **Me too!!!! And it recurred quickly even after treatment. All over my face and in my mouth :(**♥ 1source record 958 **Yes!!! Shingles in the trigeminal nerves. It was in my mouth down my tongue and then down inside my ear. My vestibular nerve was damaged. 8 years later and I have 40% hearing loss and occasional vertigo. I went on a cruise last year and wound up with severe vertigo for 8 months because of the vestibular nerve damage. I also still get stabing pain in that ear. SHINGLES-THE GIFT THAT KEEPS ON GIVING.**♥ 1source record 959 **I developed epilepsy right after widespread shingles that lasted a month. My neuro thinks that the virus triggered it.**♥ 1source record 961 **Came here to say this! Neuralgic pain from shingles feels like someone running you through with a red hot sword, then electrocuting you and kicking you in the back, all at the same time.**♥ 1source record 962 **I've had shingles 10 times in 7 years... 3 times AFTER I had the shot....**♥ 1source record 963 **I got shingles while 37 weeks pregnant 🫠**♥ 1source record 964 **I got shingles when I was ten. It really sucked.**♥ 1source record 966 **Oof. I had shingles as a kid (weird, I know), and to this day it’s still the only pain that’s ever made me pass out. The rash was just on my back, but my mom said you could see the outline of my nerves by following the open blisters, and anything more than a light tshirt would legit make me scream. Absolutely brutal.**♥ 1source record 967 **Just had Shingles a few months ago, I'm in my 30s, and it was the second most painful thing I've ever experience.**♥ 1source record 968 **Last time I had shingles I could barely move for days. Those were the worst 3 days of my life. Also I never had chickenpox, I was vaccinated as a kid.**♥ 1source record 970 **My grandma had that, Greek, born in 1923, grew up by herself among cows because her mom died at childbirth and she was a girl. She didn't take a single painkiller. She said it it wasn't going to make it go away faster, she didn't see the point.**♥ 1source record 972 **Same. Way more painful than the kidney stone or Trigeminal Neuropathy I’ve had. Opiate painkillers only dulled the pain of Shingles enough so I could actually sleep. For 2 weeks I couldn’t stand having a bra on nor could I let any fabric touch my skin where the rash was (front of my ribs). I had to cover the area with a wound pad.**♥ 1source record 973 **My dad had it and after seeing the pain that he endured… I gladly went and took the shingle shots.**♥ 1source record 1152 **Oooph, i thought mine was bad. I get shingles in one nostril…… who TF gets shingles in a nostril. AND I’m only in my thirties. The universe is just rude sometimes. But the ear?! My god. I am so sorry, that sounds excruciating. That’s past rude into cruel.**♥ 1source record 1369 **Shingles**♥ 2source record 1409 **I agree wholeheartedly after a terrible experience with shingles in 2023.**♥ 1source record 1446 **Shingles or COVID.**♥ 2source record 1482 **Shingles - get the vaccine if you are over 50!!!**♥ 2source record 1488 **Shingles. I wouldn't wish it on anyone.**♥ 2source record 1505 **Shingles. Wouldn’t wish it on my worst enemy**♥ 2source record 1529 **I got shingles in my 20s, rare, but it happens. So much nerve pain!**♥ 2source record 1541 **Shingles. In the eye**♥ 2source record 1544 **Shingles.**♥ 2source record 1564 **Shingles (at 38 YO)**♥ 2source record 1570 **Shingles. My god it was so painful I couldn’t get out of bed**♥ 1source record 1651 **Shingles**♥ 2source record 1669 **Shingles**♥ 2source record 1690 **Shingles**♥ 1source record 1699 **Shingles. Felt like someone stabbed me in the ribcage with a knife and left it in.**♥ 1source record 1772 **Shingles. Closely followed by impetigo/ecthyma.**♥ 1source record 1788 **Shingles.**♥ 1source record 1804 **Shingles, without a doubt. Thought I was on FIRE.**♥ 1source record 1910 **Shingles!**♥ 1source record 1927 **Shingles. Do not recommend.**♥ 1source record 1940 **Shingles.**♥ 2source record 1948 **Shingles.**♥ 1source record 1973 **Shingles (shudder)**♥ 1source record 1991 **Shingles while 7 mo pregnant.**♥ 1source record 2003 **Shingles. Right near my eye. Had no freakin clue what it was until a work friend said it might be shingles!**♥ 2source record 2053 **Shingles in my scalp, eyelid, and eyeball. I did not know my head could hurt that badly. I was hospitalized with IV opiates for five days.**♥ 2source record 2054 **Shingles**♥ 1source record 2056 **Shingles on my larynx**♥ 1source record 2084 **Nothing too severe except when I was 8 and had appendicitis but fuck Shingles**♥ 1source record 2121 **Shingles**♥ 1source record 2123 **Shingles in my late 20’s. Followed closely by cellulitis when I was 20\. Shingles hurt so bad, but was at least at home. Cellulitis was brutal, less pain but a 10 day stay in the hospital with an erythromycin IV drip was no fun either.**♥ 1source record 2154 **Shingles on my face/scalp/neck**♥ 1source record 2190 **Shigles on my scalp..**♥ 1source record 2223 **Shingles. While pregnant.**♥ 1source record 2251 **Shingles was only a little less awful than childbirth but glad I caught it early. Diverticulosis was also awful for a few days but not as bad as the other two.**♥ 1source record 2307 **Shingles in my eyebrows. The nerve pain went into my jaw and half of my left eyebrow fell out**♥ 1source record 2354 **Omg Tie -Shingles when I was about 20 and an impacted infected to the max wisdom tooth**♥ 1source record 2372 **Shingles. For the 2-3days before it erupted and the first 2-3 days after I the rash started. Three people I knew scheduled their shingles vaccination because if watching what I went through.**♥ 1source record 2378 **Shingles. Was worse than any cancer treatment I went through.**♥ 1source record 2379 **Shingles sucks**♥ 1source record 2397 **Shingles. I had it on my scalp, face and eye. Worst pain ever.**♥ 1source record 2405 **Shingles**♥ 1source record 2413 **Shingles.**♥ 1source record 2453 **shingles**♥ 1source record 2456 **Shingles**♥ 1source record 2475 **Herpes Zoster when I was doing chemotherapy. My back was hurting in the muscles and in the skin. Doctors in the ER pumped up morphine on me to make me sleep. Nothing else worked, and I can’t explain the pain I felt. I already broke bones in my arms, legs and two ribs, had big kidney stones, but nothing compares to that.**♥ 1source record 2499 **Shingles. On my ass.**♥ 1source record 2500 **Shingles followed by kidney stones followed by migraines**♥ 1source record 2576 **Shingles**♥ 1source record 2580 **shingles was hell**♥ 1source record 2608 **Shingles🥲**♥ 1source record 2652 **Shingles. Never wanted to scratch my skin off before, so horrible!**♥ 1source record 2743 **Pregnancy JK it was shingles, that sucked man**♥ 1source record 2768 **For me shingles was terrible. Could hardly get out of bed to get to doctor. Had to have my son drive me. Everything hurt, completely drained of any energy or will to move, rash was awful and oddly on my face. It was weeks of being miserable not moving out of bed.**♥ 1source record 2777 **Shingles**♥ 1source record 2830 **Singles. In 2008, it took over my life. I would lie in bed and pray for unconsciousness. I would think about people I liked, people I disliked, and people I couldn't stand, yet I could not come up with anyone I detested enough to wish shingles on them. I cried every day. My case was severe and I ended up with post-herpetic neuralgia that lasted for years. As soon as I was eligible, I got the Shinrix vaccine. It served me well for six years, but I'm now in the 10 percent of patients for whom the vaccine fails. I just endured a return of shingles three months ago, and my back is still sore in that spot. My doctor says I need to go on daily valacyclovir as a prophylaxis. I'm not pleased about it, but yeah, shingles is horrible.**♥ 1source record 2836 **Shingles. Nothing could touch my skin. I laid in bed naked for 4 days. It was excruciating.**♥ 1source record 2843 **Shingles. Hands down. Worse than childbirth. Worse than kidney stones.**♥ 1source record 2847 **Shingles in my ear**♥ 1source record 2875 **Shingles, in my ear. Blisters ruptured my eardrum, hearing was damaged. Couldn't walk on my own due to equilibrium being jacked. Couldn't eat because of the associated nausea. Sucked.**♥ 1source record 2916 **Shingles!!!!**♥ 1source record 2928 **Shingles**♥ 1source record 2952 **Shingles. No question about it.**♥ 1source record 2954 **Shingles and Gout**♥ 1source record 2973 **Shingles. It felt like a constant friction burn but spread for a few days as well. Gallbladder attacks were also really bad and involved a lot of cold sweats and writhing in pain in the ER.**♥ 1source record 2975 **Shingles**♥ 1source record 2984 **Shingles is absolutely awful. Prescription Opiate painkillers helped somewhat but holy heck I still remember the pain 15 years later. It was worse than the Trigeminal Neuropathy I had after jaw surgery.**♥ 1source record 2989 **I had shingles at the same time I threw my back out. That sucked.**♥ 1source record 3000 **Shingles!!**♥ 1source record 3015 **Within the past couple months I’ve had shingles (in June) and last week I had a gallbladder attack. Sigh, I’m getting it removed in September. It’s been rough.**♥ 1source record 3034 **Shingles**♥ 1source record 3039 **Shingles.**♥ 1source record 3066 **These I have experienced all three and they are tied... Shingles, sciatica, and Gallbladder attack. All are awfully and horribly painful, but very different kinds of pain. The Gallbladder for me was like a wire around my middle that was getting tighter and tighter. The pain was absolutely unrelenting. I ended up in the ER on a Friday night. I was hooked up a machine that pumped morphine into my bloodstream and it did little to numb the pain. Out went my Gallbladder on Monday morning. It was nearly full with sludge and sand. Shingles can impact people differently. I got Shingles in my early 40s after an emotionally stressful event. The nerve pain was on my trunk and left arm/shoulder. It was a very deep pain. It was made for worse due to having to drive daily. The seat belt across my shoulder my agony. The pain lasted for months. A third was a sciatica flare up in my lower back running down my left leg. Again no ability to take time off from work. Driving was hell. I really thought I was having a blood clot in my leg and my leg was going to dye due to lack of blood flow. Not much doctors can do. The inability to sleep for more than an hour at a time was absolute torture. The sleep deprivation alone was horrific.**♥ 1source record 3068 **Shingles. I felt like I’d been hit by a car and broke all the ribs on my left side.**♥ 1source record 3116 **Shingles. Nerve pain 10 years later still.**♥ 1source record 3140 **Shingles. Inside my mouth.**♥ 1source record 3205 **Shingles**♥ 1source record 3226 **Shingles 6 weeks of intense pain and one year of random electric shock pain. Awful**♥ 1source record 3228 **Shingles, and before that I had a gallbladder go pop while waiting for the seton in the er. Shingles. It’s insanely painful. I wanted to die.**♥ 1source record 3231 **My sister had shingles going out one side of her asshole. She went to the ER unable to walk and in agony. The doctor said he had never seen it there before. He expressed many heartfelt sympathies**♥ 1source record 3235 **Shingles**♥ 1source record 3304 **Shingles. Imagine someone sticking their whole hand under your rib cage and trying to pull it off. I was lucky I didn’t get it on my face. Was also in my late 20s.**♥ 1source record 3357 **Shingles on my face. It caused temporary facial paralysis but permanent nerve damage. The blisters also got infected below my eye. I also continued working bc I was a florist during Valentine's Week. Someone asked if a dog had mauled me.**♥ 1source record 3377 **Physical- shingles in the eyes Mental - Cptsd with a side dose of depression and suicidal ideation**♥ 1source record 3391 **Shingles up on my inner thigh close to my junk. Had to walk bow legged until it healed. lol.**♥ 1source record 3411 **A toss up between shingles and an ovarian cyst.**♥ 1source record 3481 **Shingles at 41**♥ 1source record 3499 **Have to agree, Shingles. Still feel it 10 years later.**♥ 1source record 3513 **Widespread Shingles. It was pretty much the left side of ny entire torso, boobs and all. So miserable, painful, and itchy I had to tape socks on my hands at night to keep me from tearing up my skin in my sleep. And I was allergic to the antivirals so I had to ride it out for a month. One month after that I started having seizures and developed epilepsy probably as a post viral response. Fun stuff.**♥ 1source record 3531 **Shingles**♥ 1source record 3535 **Shingles without a doubt. Worse than gout.**♥ 1source record 3539 **Shingles.**♥ 1source record 3559 **Shingles**♥ 1source record 3569 **Trigeminal and ophthalmic Shingles - it’s been 20 years and I still get shooting pain down my forehead and into my eyeball. 👁️**♥ 1source record 3572 **Shingles**♥ 1source record 3586 **I’ve heard this was painful. My husband had shingles as an adult (44 years old) and I kept waiting for the pain and he said it hurt but it was not bad. He used ice packs and as long as he took Tylenol he was fine.**♥ 1source record 3587 **Shingles while 6 month pregnant with my third child. Nineteen days later, babies #1 & #2 broke out with chicken pox. Not a great time in my life.**♥ 1source record 3624 **Shingles. I had my gallbladder removed, survived a battle with breast cancer, had a hysterectomy and the worst pain was shingles.**♥ 1source record 3666 **Shingles**♥ 1source record 3742 **Shingles behind left eye was kinda painful while eye swelled shut 4 yrs later still have numbness on brain and scarring at back of eye was in bed for almost 4 months woke up screaming most nights , kidney stones and stent down there was pretty average but I still feel pretty lucky compared to what others have gone thru**♥ 1source record 3783 **Ramsay-Hunt syndrome. Medieval disease. Imagine that shingles pain in your ear and your face is paralyzed and you could go both blind and deaf.**♥ 1source record 3796 **Shingles**♥ 1source record 3802 **Shingles wasn't very fun.**♥ 1source record 3852 **Toss up between shingles on my face/scalp, and a ruptured ovarian cyst. Shingles was longer lasting but the ruptured cyst was more acute and sharp pain. Had me on my hands and knees trying to yell for my husband but couldn’t get the breath to even make a sound**♥ 1source record 3855 **Shingles and typhoid fever. Typhoid fever didn’t hurt per se but I had to get 10 shots in my butt, one every day for 10 days and those were painful. I was 10 years old and my arm was too skinny to handle a needle that large.**♥ 1source record 3857 **Shingles**♥ 1source record 3878 **Shingles.**♥ 1source record 3919 **Shingles, in my early 20s. I was very interesting to the doctors, since I got it so young. They gave me an anti-viral pretty quickly, but it still was SO painful and took so long to recover. I'm getting the Shingrix vaccine as soon as my insurance will allow.**♥ 1source record 3969 **shingles**♥ 1source record 4006 **Shingles were painful**♥ 1source record 4026 **Shingles**♥ 1source record 4045 **Shingles made me pass out from the pain, but then I also had a tear in my sciatic nerve and when the nerve began to heal and the pathways reconnected to my spine I scream so loud for hours and hours it was agony and I sure passed out**♥ 1source record 4057 **Shingles in my eye scalp and nose, traveled the optic nerve to the brain. Still have daily nerve pain in my eye and scalp more than a decade later. The other most painful was hand foot and mouth as an adult. Pneumonia was awful too but I was mostly unconscious.**♥ 1source record 4128 **Hands down!!! SHINGLES! 100X more painful than childbirth!**♥ 1source record 4145 **Bilateral shingles + MRSA**♥ 1source record 4175 **If you have the ability to, I would. I had to sleep on my stomach for over a week and wearing a shirt was so painful with the lesions on my back. It’s awful**♥ 1source record 4189 **It felt like razor blades on my skin and painful to wear clothes. Mine was on my back**♥ 1source record 4190 **Mine was about 2 weeks. The rash started at my breatbone, around my left side and ended at my middle back- right where my bra strap was. It was hell. I would rather give birth than go through that again.**♥ 1source record 4196 **Same on all accounts. It's like a million needles that are on fire being stabbed into your back. 🥴 I was in high school and I still recoil at the thought of it. Luckily I got the vaccine so hopefully I'm good now.**♥ 1source record 4197 **Thankfully I got meds the first day I felt pain. It’s honestly a miracle because I left for a trip the next day.**♥ 1source record 4199 **That's so terrible! Mine got pretty close to my eye and I was terrified that it would spread into my eye. It was so stressful and painful.**♥ 1source record 4201 **jesus on your forehead? That's crazy. lucky me it was just all over my back but it made sleeping for a couple weeks impossible.**♥ 1source record 4210 **Yeah it wasn’t fun and because it was on my face, had to go get my eyes checked because it’s near the nerves there and can cause blindness. That was probably 12 years ago and still randomly get the brain zaps as I call it from some nerve damage because it took forever to get into my dr for meds**♥ 1source record 4211 **Yes! The nerve pain. I had never experienced anything like it before. Mine stuck around for a while but not as severe.**♥ 1source record 4212 **Oh you poor thing, that’s awful. It was actually a Pharmacist who told me with my first round that it looked like Shingles and I then went and saw a GP who confirmed that yes it was Shingles but since I’d had the rash for about a week it was too late for antivirals. He did give me a prescription for opiates though. I would have been around 24 at the time. The next time was 2 years later when I was on holidays in another state and I had started feeling a bit rundown, feverish, started getting pain in the spot where I’d had the rash before and then I could feel that the rash was becoming raised so got myself off to a doctor the next day and they gave me the antivirals straight away. It took years for eye specialists to work out what was going on with my husband’s eye. They thought he had uveitis. He would have a pain flare for several weeks at a time every year or so. Eventually his specialist figured it out and prescribed the long term antivirals. He hasn’t had a flare up in years since he finished the antivirals so it’s worth a shot.**♥ 1source record 4237 **I’ve had it twice, but I’m not eligible for the vaccine either.**♥ 1source record 4346 **Oof, I think a nostril would be absolutely awful, too. I'm sorry you had to go through that. I got shingles at 42, which is also pretty young to get it. Life just stinks sometimes. 😆/😭**♥ 1source record 4371 Archive: 244 index entries preserve 244 distinct source records · Every displayed synthesis count resolves to source-record IDs Sciatica, discs and the spine129 index entriesBack and nerve pain described mainly through the absence of any position that helped. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Sciatica, discs and the spine Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Sciatica, discs and the spine 129 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 256 **Appears when:** Sciatica, discs and the spine **What the pattern means:** Defined less by intensity than by the absence of relief: writers repeatedly say there was no position, sitting, standing or lying, that helped, and several describe sleeplessness rather than pain as the thing that broke them. The comparisons are unusually specific — one commenter who has had both shingles and sciatica ranks them by whether he could finish a sentence on the telephone. Timescales are long: months, sometimes years, and several writers describe surgery as the point where it stopped. **What commenters described:** Was shingles, until new record set by second onset of sciatica. Added: I just realized the scale after pondering this question. I could talk on the phone with shingles, barely, while I couldn't talk with sciatica, couldn't finish a sentence without groaning. Sciatica further onsets may be worse, I've learned. **Limit:** Sciatica here covers several different underlying causes, and one commenter in the group warns that persistent sciatic pain can turn out to be something else entirely. That is one person's account of a relative's case, not a diagnostic rule, and nothing here indicates what any individual's back pain is. What the replies added3 Herniated lumbar disc. Never felt such a severe, instantaneous pain. It’s the only pain I’ve had that made me nearly unable to walk. I actually had to use a walker on the first day it happened because I could barely weight bear. And I’ve had kidney stones, two unmedicated IUD insertions AND attempted expulsions via literal uterine contractions, a broken ankle, a concussion, a torn rotator cuff, torn meniscus, multiple ankle and wrist sprains, damn near chronic migraines for several years, a herniated thoracic disc, and all sorts of other random injuries throughout my life. Herniated lumbar disc fucked me up for weeks and still occasionally causes me issues but is mostly better now 🙏 it’s the only injury I’ve ever had that immediately immobilized me. Normally I can walk and talk through pain but not for that. Reported failure♥ 7 Back injury (L4/L5). I have had countless dislocations, I've broken bones, gotten 3rd degree burns, recovered from abdominal surgery and nothing has even been so defeating and painful as my back injury. I got better though :) Reported failure♥ 2 Back pain for me. I’ve had back pain since I was 16 but a few years ago it cranked up. Full seizing and locking up. It was 3 months or so before I had any relief. I was living on the couch because we didn’t have a bathroom upstairs and I couldn’t physically make it downstairs to pee if I had to. I remember crumpling in a ball at the top and bottom of the stairs crying in pain at 3am trying to get to the bathroom. Had relief for a month then it came back for another stint. Then it kicked up to 11 with sciatic pain and piriformis syndrome. Nerve pain was no joke. I was on opiates, nerve meds, and relaxants and nothing touched it. I couldn’t stand for more than 2 minutes without crumpling to the ground. I was using a cane at age 34\. 4 months of some of the most intense pain between January and April before it finally let up. Total was about 9 months of some of the worst pain. Still going to physio years later because I don’t want to go through that again. It mentally broke me Reported failure♥ 1 #### Source-record spotlights Most engaged source Was shingles, until new record set by second onset of sciatica. Added: I just realized the scale after pondering this question. I could talk on the phone with shingles, barely, while I couldn't talk with sciatica, couldn't finish a sentence without groaning. Sciatica further onsets may be worse, I've learned. source record 256♥ 160 Later-arriving source Back injury with a screw left on a nerve during surgery has been worse than endometriosis for me. posted about 6 days after the source♥ 1 Low-like source Hi, thanks for the information, I appreciate it. It has definitely been longer than 6 weeks - currently going on 4.5 months but I have had an MRI done and two disc bulges is the cause of this. Pain has definitely gotten better but it's very up and down and my main issue is sitting as of now. posted about 3.9 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 129 source records, the most common observable tactic structure is “Attach it to an existing routine” (8 records). This is a wording pattern, not a measured outcome. 129index entries 129distinct source records 26.5%of parent category 3.4%of the complete index 96top-level comments 33replies #### What commenters explicitly report 2explicitly reports a benefit 0explicitly reports a limit or failure 7asks a question 0says they intend to try it 120other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **8**Change the sentence **2**Swap instead of subtract **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments129 preserved records · 129 of 129 source records accounted for **Last year I had a back injury that caused indescribable pain. When I told my primary what otc pain meds I had taken that morning he immediately told me go directly to the ER for a toxicology check.**♥ 3source record 197 **Was shingles, until new record set by second onset of sciatica. Added: I just realized the scale after pondering this question. I could talk on the phone with shingles, barely, while I couldn't talk with sciatica, couldn't finish a sentence without groaning. Sciatica further onsets may be worse, I've learned.**♥ 160source record 256 **I've had terrible - but fortunately intermittent - sciatica since I was a kid. I completely empathize with people who are dealing with it.**♥ 24source record 257 **My husband has had 2 bouts of sciatica, left leg then right. His surgery for the right leg lasted 11 hours and he had a 2” cyst up against his nerve/spine. He would drag himself across the room going to and from the bathroom. And scream in pain. I lost 30 pounds just from the stress of it all**♥ 4source record 260 **Sciatica, hands down.**♥ 61source record 261 **Sciatica**♥ 79source record 286 **Yes. Only had one attack but the pain felt almost electrical even!**♥ 13source record 287 **I have passed well over 100 kidney stones. Herniated discs & the sciatica has been way more painful.**♥ 8source record 288 **Herniated lumbar disc. Never felt such a severe, instantaneous pain. It’s the only pain I’ve had that made me nearly unable to walk. I actually had to use a walker on the first day it happened because I could barely weight bear. And I’ve had kidney stones, two unmedicated IUD insertions AND attempted expulsions via literal uterine contractions, a broken ankle, a concussion, a torn rotator cuff, torn meniscus, multiple ankle and wrist sprains, damn near chronic migraines for several years, a herniated thoracic disc, and all sorts of other random injuries throughout my life. Herniated lumbar disc fucked me up for weeks and still occasionally causes me issues but is mostly better now 🙏 it’s the only injury I’ve ever had that immediately immobilized me. Normally I can walk and talk through pain but not for that.**♥ 7source record 385 **Sciatica**♥ 8source record 391 **Sciatica**♥ 6source record 394 **A herniated L-4 disc in my back 25 years ago when I was 39\. The most searing pain ever but thankfully it slowly got better over time with no surgery! I’m still super careful tho to this day.**♥ 4source record 409 **Deteriorating vertabrae, knees , hip and cervical spine. It's not just painful. Spinal cord injuries also cause nerve pain throughout your body. Nerve pain is untreatable by any pain medication currently available. It causes you to become bedridden which causes depression, weight gain, and social isolation.**♥ 2source record 432 **Don’t know if this counts as an illness but I had a bad bulging disc in my lower back during college. Every time I got out of a car I had to stop for 10+ seconds to get through the initial pain shooting down my leg. Laying flat on the floor was my best friend for a few years before I got a pain block!**♥ 3source record 461 **Bulging disc that would "flick" my sciatic nerve every 90 seconds or so. That surgery was a godsend. Would never wish nerve pain on anyone**♥ 3source record 472 **Thanks! I hope not to either. It was a freak thing that I worked out to having been caused by horseback riding and the horse I had been on slammed to stop after we tore across a field. I jammed my whole spine and my neck apparently got the worst of it. I had to get it checked/adjusted a couple times after just to keep it in line but so far we’re still good! I just wish a xray had been taken to see if it was that visible. It was a chiropractor of all people to find it and resolve it, not 3 ER trips. The last one was when it was suggested because they didn’t know what else to run for diagnostics (again, an xray may have helped here but I am not shocked because of my existing familiarity with that hospital). Uh yeah I guess we could? Idk how much worse it can get (obviously there’s a list of things that could get worse but I guess if I died I died lol). He asked if I’d been in a severe car accident recently because that was the only other times he’s seen cervical vertebrae that whacked. Nope. He was not shocked, however, by the horse comment. But one crack with the loudest sound and I’m pretty sure I yelled holy shit because the relief was immediate. I almost couldn’t carry myself into the clinic and walked out just fine. It was wild. Alas, I still maintain a healthy wariness of that field lol**♥ 2source record 923 **Yep. First time I had an episode, I got out of bed, stood up, and instantly passed out from the pain when I put weight onto my left leg.**♥ 3source record 1085 **Sciatica sufferer here. Neuropathic pain, man, that is something else. I (literally) feel you.**♥ 2source record 1101 **the nerve pain i had caused my partner saying I need to go to the ER, while I was like "no no this is level 6 pain its nothing" (level 10 pain is passing out from pain or losing an arm or leg) then my doctor went "what, what happened to your spine?!" so oops.**♥ 2source record 1102 **Just had a microdiskectomy back in May - the nerve was essentially nearly entirely compressed. I’ve experienced intermittent sciatica for years, but this constant pain level was over the period of about eight months. I have never in my life felt such pain - and the sort that there was NO relief from. This is coming from someone that has had seven shoulder surgeries, recipient of the worlds first 3d printed clavicle, tonsillectomy at 26 (which everyone was DYING to tell me how bad it was gunna be - piece of cake), knee surgery at 14…. Yeah. Sciatica is no bueno**♥ 2source record 1103 **Same, I first got it when I was 12**♥ 2source record 1117 **i’ve had sciatica since i was 15\. i had a few years with no occurrence until i got pregnant and it’s much worse than i remember**♥ 2source record 1119 **With mine, it kept me from sleeping much at all. I was on an (US) ACA plan and couldn't find a doctor at all. It sounds like the most common advice is wait it out and medicate. It took about 8 months for it to finally die down, but I will still have a flare up for a few days from time to time. This year I managed to pinch a nerve in my neck that caused about the same issue in my shoulder down to my fingers. That one is mostly gone now too, but I definitely seem to have issues with how easy it is to mess up my nerves.**♥ 2source record 1128 **Confirmed. Shingles didn’t hold a candle.**♥ 2source record 1133 **For me it took 2 and a half YEARS.**♥ 2source record 1136 **I was lucky(?), I got shingles after my sciatica, it was comparatively much less painful.**♥ 1source record 1137 **I think this is what’s happening to me. A few weeks ago I was moving out of state and got rid of my bed, slept on an uncomfortable air mattress, then moved to an uncomfortable couch. When I got up there was pain down my tailbone and legs like I’ve never felt before. I just started a new job and don’t have insurance until the 1st. Plus I have to move fairly quickly at the new job at certain points. I’ve made some mildly embarrassing noises around my brand new coworkers because I just can’t help it. I’m not able to do much of anything without pain right now**♥ 1source record 1138 **Amen. When the neurosurgeon asked me what the pain was on a scale from 1-10 I told her that it was 42, and I wasn’t lying or being facetious.**♥ 1source record 1139 **I got spina bifida occulta with intense episodes of sciatica pain. I'm literally in the bed writhing and crying and dry heaving and holding my breath and silent screaming and trying not to pass out the whole time. It's atrocious 😫**♥ 1source record 1143 **Ooooh..sciatica! I had it and ended up in a wheelchair cause I just could not walk anymore! I had spine surgery to get a prosthetic disk and they found my sciatic nerve was being crushed between 2 vertebrae and there was no disk left in there. That had me crying every night and on meds which did not help much! That pain is so excruciating. A giant nerve smashed between two bones is NOT a good time! I had had shingles earlier in my life and that was bad and also have had kidney stones several times! I think the kidney stones were the worst, but they all really hurt! 😱😱**♥ 1source record 1154 **13 months of unrelenting, mind breaking agony before a single injection that took about 15 minutes to administer fixed it within a few hours. I had put my affairs in order, if the injection hadn't worked I was going to put an end to it myself. I honestly couldn't imagine going on like that.**♥ 2source record 1208 **Seconded. Mine was Piriformis syndrome (which is sciatica caused by inflammation of the piriformis) Nerve flossing fixed mine after 9 months**♥ 1source record 1262 **Severe back pain makes one VERRRRRY cautious even when it's been inactive for a while. It's torture when it flares up.**♥ 2source record 1296 **Most physically painful was sciatica. And I'm saying that as someone who's given birth twice.**♥ 2source record 1410 **Sciatica**♥ 2source record 1430 **Sciatica from a herniated disc. In second place is kidney stones.**♥ 2source record 1469 **Sciatica, constant pain in the nerves running from low back to the foot. Often flares from a terrible deep aching to electric shocks to constant on fire, burning pain. Won’t go away, just lessens a little bit. Life is hell with it.**♥ 2source record 1484 **herniates lumbar disc**♥ 2source record 1509 **I ripped all the nerve endings out of my back and legs which gave me hyper sensitivity and had a perforated ulcer. Ulcer was bad, but would do perforated ulcer pain for the rest of my life instead of a week with the nerve endings again.**♥ 2source record 1527 **Severe sciatica. Having to structure your day around 20 second bursts of standing that need two hours recovery was frustrating and soul draining and constant pain**♥ 2source record 1531 **Sciatica for a year until I had surgery to fix it.**♥ 2source record 1580 **Compressed nerves in my spine resulting in five spinal surgeries. Horrific pain.**♥ 1source record 1653 **My SI joint will occasionally destabilize during my period and cause my piriformis to spasm which will hit my sciatic nerve. It's hell.**♥ 1source record 1656 **Herniated disk in spine**♥ 2source record 1661 **Scoliosis. I have a 48° inoperable curve in my spine and I have been dealing with extreme pain since I was 10 years old. Im now 31.**♥ 2source record 1684 **Lumbago, pain was so bad I couldnt breathe.**♥ 1source record 1703 **Herniated disc. If I could have cut off my leg to get rid of the nerve pain coursing up and down it I would have. I was on Percocet and it didn’t even touch the pain. 2 days after my surgery I stopped the pain meds, as I didn’t need them anymore.**♥ 1source record 1825 **L5/S1 disc extrusion pressing on my nerve roots. 5 days of hell until neurosurgery with no relief even from narcotics.**♥ 1source record 1918 **A torn intervertebral disk between L4-L5! 😭 but I also agree with the ones who say depression. Cuz that’s a pain on a whole other level!**♥ 1source record 1939 **Herniated disc popped, got surgery, it popped again.**♥ 2source record 1951 **Herniated disc with sciatica**♥ 1source record 1999 **Sciatica on my L side is/was excruciating!**♥ 1source record 2040 **Herniated disc...I was doubled over in pain, crying from the pain shooting everywhere. Got to the ER and that morphine never felt so good. Facet injections are my friend.**♥ 2source record 2050 **Back injury (L4/L5). I have had countless dislocations, I've broken bones, gotten 3rd degree burns, recovered from abdominal surgery and nothing has even been so defeating and painful as my back injury. I got better though :)**♥ 2source record 2055 **Herniated disc causing sciatica and radiculopathy**♥ 1source record 2059 **Herniated disc**♥ 1source record 2078 **Herniated disc**♥ 1source record 2148 **Herniated disc**♥ 1source record 2151 **After over 4 years of visiting every doctor under the sun for debilitating back pain (sharp shocks that went everywhere in my body that could happen at any moment) it turned out that I had a hole in my disc at L4-L5\. The disc material leaked out and got stuck on nerve endings. They had to fix the hole and also scrape out the disc material where it stuck. That, my friends, was the worse pain I had ever experienced.**♥ 1source record 2156 **Low back pain - disc gone caput**♥ 1source record 2174 **Really bad sciatica. Obstructing gallstone was a close second.**♥ 1source record 2199 **I had thrown my back out so badly that I was bawling. They gave me morphine, I kept telling them they were absolute angels, I could finally move an inch without screaming. PS I know why people get addicted to morphine. I only had it that one time in my life and it was heaven.**♥ 1source record 2261 **Back pain for me. I’ve had back pain since I was 16 but a few years ago it cranked up. Full seizing and locking up. It was 3 months or so before I had any relief. I was living on the couch because we didn’t have a bathroom upstairs and I couldn’t physically make it downstairs to pee if I had to. I remember crumpling in a ball at the top and bottom of the stairs crying in pain at 3am trying to get to the bathroom. Had relief for a month then it came back for another stint. Then it kicked up to 11 with sciatic pain and piriformis syndrome. Nerve pain was no joke. I was on opiates, nerve meds, and relaxants and nothing touched it. I couldn’t stand for more than 2 minutes without crumpling to the ground. I was using a cane at age 34\. 4 months of some of the most intense pain between January and April before it finally let up. Total was about 9 months of some of the worst pain. Still going to physio years later because I don’t want to go through that again. It mentally broke me**♥ 1source record 2272 **2 herniated discs in my lower back which caused sciatic pain. Don't know how anyone could live with that kind of pain very long. Luckily mine only lasted a few weeks, worst time of my life.**♥ 1source record 2273 **Herniated disk. Spasm would put me on the ground. Constant pain in lower back and leg. After years of living with pain, one begins to understand certain perspectives.**♥ 1source record 2306 **Herniated disc most painful But Worst was vertigo (not painful but v v v upsetting. Couldn’t stand up without falling over and throwing up. So bad. Felt like I was dying. I’ve had 2 births, 4 or 5 surgeries. None compared to how bad vertigo was for me.**♥ 1source record 2309 **Degenerative disc disease in my neck caused by hEDS. Basically my connective tissue is too loose and along with my neck muscles they struggle to hold my head up so my spine slips around. Also costochondritis. Feels like a heart attack.**♥ 1source record 2337 **Sciatica**♥ 1source record 2345 **Acute? Slipped disk in my back. Chronic: fibromyalgia \[HERE\](\[link removed\] is the pain scale used by doctors.**♥ 1source record 2406 **Cervical stenosis of the spine. Felt like I had dipped my whole arm in acid from neck to thump and 1st finger. Immediate relief after spinal fusion.**♥ 1source record 2410 **Herniated disc. I truly understand how chronic pain patients become addicts. It was horrific, terrifying.**♥ 1source record 2411 **Herniated disc and very very bad migraine (I'm still struggling with the second one 🤕)**♥ 1source record 2444 **Cervical Spondylosis. There's no effective drugs that stop the nerve pain and loss of functioning limbs. You live in constant searing pain. Sleep only comes from exhaustion and lasts until the next muscle spasms.**♥ 1source record 2450 **Two immediately come to mind - and both resolved themselves. First - I was walking my dog on ice and fell, landing straight on my tail bone. It didn't hurt for a day, but then it was excruciating and debilitating. Basically, it compressed a disk by a quarter-inch, so it was (as the doc said) "decades of compression in a split second." A few months of PT and I was fine. But that was awful. A bout with sciatic was no walk in the park, but wasn't as bad as this. Second - and this was a really weird one. I have had a few bouts with kidney stones in my life. I can sense them coming on and drink lots of water until they pass. But this one time, there was a blockage caused by the stone which caused everything to back up. So my blood-tests went haywire and the toxins built up in my blood. I thought I was going to die! Sent to the ER and for an MRI. My GF took me home, I sat on the toilet, had a long piss, stood up, and the pain was gone. An hour later the doctor called and I beat him to the call.**♥ 1source record 2455 **C5-C6 bulging disc pressing on the peripheral nerve going across the shoulder. Feels like someone had a dull knife in my shoulder joint and was wrenching it. At all times. No arm position alleviated it**♥ 1source record 2466 **I had a trapped nerve in my back. Physically couldn't get out of bed for 5 days.**♥ 1source record 2483 **I’ve had both kidney stones and 2 burst discs in my back and the 2 burst discs were way worse. The doctor said the level of pain I was experiencing is worse than natural childbirth.**♥ 1source record 2509 **Spinal stenosis with degeneration but its a disease.**♥ 1source record 2513 **I don’t know if this counts an an illness, but I ruptured a disc in my back and nothing has ever hurt so badly.**♥ 1source record 2519 **Cauda Equina Syndrome**♥ 1source record 2523 **Sciatica with brain zaps. The steroids induced psychosis.**♥ 1source record 2547 **Stenosis of the Cervical spine. The osteophyte that around my nerve root causes pain that is constant. You can’t sleep in any position that offers comfort and I’d be awake for hours in the middle of the night pacing because I needed to get so tired that the pain wouldn’t matter. Physical therapy has helped and a recent steroid injection has helped.**♥ 1source record 2617 **Sciatica nerve attacks... absolutely crazy levels of pain!**♥ 1source record 2628 **herniated disc, lower Back, two times already. I’m 31 years old and this was YEARS ago**♥ 1source record 2662 **Sciatica. Though one time as a teen I woke up in the worst pain I've ever felt, even fainted for like 30 seconds due to it according to my mom, but we never figured out what it was as it got better while I was waiting in the ER and they ruled out appendicitis. After mentionning the incident in another subreddit a couple months back people said it might've been ovarian torsion that resolved itself without intervention. Whatever it was I hope it never happens again. Sciatica can be excruciating and debilitating but that pain? It was \*a lot\* worse**♥ 1source record 2685 **Back injury with a screw left on a nerve during surgery has been worse than endometriosis for me.**♥ 1source record 2707 **Stenosis**♥ 1source record 2812 **I have spinal stenosis and I have been “sleeping” on a hardwood floor for 6 months now.**♥ 2source record 2904 **Trying to lay on a mattress for me feels like being twisted in half. It’s less a matter of what helps and more about coping.**♥ 1source record 2906 **Slipped disc in my lower back**♥ 1source record 2944 **Slipped discs**♥ 1source record 3010 **Double ruptured disc in my lower back**♥ 1source record 3057 **Sciatica caused by femoral retroversion and piriformis syndrome**♥ 1source record 3109 **Right before my back surgery. I wanted to die. Literally. I told the ER doctor that my body will give out from the pain.**♥ 1source record 3133 **Herniated disc with significant sciatic nerve damage**♥ 1source record 3134 **Top 2 for me in no particular order: 1\. Sciatica. I had one emergency surgery and then another surgery 5 years later. Dr told me if the same spot goes out again they'll have to fuse it. 13 years and 2 kids later I'm doing ok 2\. Multiple Myeloma cancer. There's layers of pain with cancer. It's not just physical pain. I watched my mom fo through 15 years of cancer treatments for 2 different kinds of cancer. Then I got diagnosed. The way your world stops when you hear "cancer" and you have no idea what else they said after that. The anxiety that comes with every test, every scan, every Dr appointment. The fear that you won't see your kids grow up. Every ache and pain sends you into a panic. Is it the cancer? Did I sleep wrong? The way people disappear because they don't know what to say to you, so they say nothing! Seriously, what's wrong with that!? Knowing that the life you planned for yourself is now permanently gone. Loosing your hair, even though you told yourself it doesn't matter, it's just hair. The ptsd that comes from all the pokes and misses. Thank modern medicine for ports! Cancer is physically, emotionally, and mentally painful.**♥ 1source record 3156 **I slipped a disc. I don't know if that counts as an illness but goddamn was it painful. I was screaming being carried to the toliet**♥ 1source record 3169 **Severely herniated disc. Felt like actual fire burning the right side of my body. My arm and hands became so weak that I could hold a pen. Unbearable, unrelenting, horrifying pain. Thank goodness for surgery.**♥ 1source record 3344 **Sciatica**♥ 1source record 3443 **Herniated disc on my spine.**♥ 1source record 3475 **Either edema in my bone marrow or herniated disc. Anything nerve pain related just sucks.**♥ 1source record 3538 **Cervical Stanosis**♥ 1source record 3567 **Not an illness, but condition. Slipped disc. It hurts physically, but it also takes a toll mentally.**♥ 1source record 3584 **Disc herniation. Debilitating radiating nerve pain for over a year before I got surgery. Had to brush my teeth in the shower because I couldn't bend enough to spit over the sink.**♥ 1source record 3597 **Cauda equina syndrome. It was worse than a kidney stone, gallbladder attack, shingles, endometriosis, spinal cord fluid leak, polycystic ovaries, enema while I still had a Foley catheter in, bleed on my spinal cord, and waking up during surgery**♥ 1source record 3622 **Sequestered l5 s1 disc shot out and up my spinal canal.**♥ 1source record 3662 **Ruptured discs, life long problems and pain**♥ 1source record 3683 **ongoing: DDD with arthritis, sciatica, and sacroiliitis. bonus entry: interstitial cystitis**♥ 1source record 3725 **Cervical stenosis. Narrowing of the spinal canal so the nerves are compressed. Neck pain and pain down my shoulder and arm. It's about an 8/10 all the time and nothing helps. I have steroids and muscle relaxers - nothing touches the pain and it's relentless. I don't have insurance until October 1 so there's nothing I can do. I honestly don't know how much longer I can take the pain. The only fix is a very scary major surgery that doesn't always resolve the problem, and I can't take the months of recovery time off from my new job.**♥ 1source record 3794 **Sciatica and spinal stone. Ye gods, for over 3 years**♥ 1source record 3833 **Sciatica from a massive herniated disc**♥ 1source record 3835 **Mine was when my back went completely, I can’t describe it properly but it was like these waves of pain so bad I couldn’t speak, normally you can get in a comfortable position but this was like above and below so it was just constant waves of pain with no let up, I was soaked in sweat and I honestly thought I was dying, I have a VERY high pain threshold but this was beyond anything I could have imagined**♥ 1source record 3864 **Herniated disk in my neck, followed by childbirth.**♥ 1source record 3968 **Sciatica 😭**♥ 1source record 3975 **L3/L4 spinal stenosis. 2 1/2 months of pain that far exceeded my worst nightmare and brought me into realms I’d never imagined existed and which I sincerely hope I’ll never experience again.**♥ 1source record 3976 **Definitely sciatica. Holy F. It hurt. I was in so much pain I couldn't walk, sit or at down. First and only time I called an ambulance. A gallbladder attack was a close second**♥ 1source record 3994 **Can chronic sciatica be considered an illness? Because there’s no escaping that Insidious pain. It’s a nightmare.**♥ 1source record 3997 **Sciatica from a very large disc herniation. Made me want to quit life it was terrible.**♥ 1source record 4041 **A herniated disc in my lower back and the associated extreme sciatica that went with it. Fussed around with injections, PT and other non invasive methods before getting a surgery that literally changed my life. Wish I had gotten it sooner.**♥ 1source record 4060 **Probably sciatica due to a slipped disc that required surgery. Unlike things like muscle injuries there was just no position that gave any relief whatsoever. The pain was relentless. The only thing that helped was when they put me on OxyContin.**♥ 1source record 4074 **Spinal stenosis that led to an internal cyst on my spine after surgery to put in an implant. Was rushed into hospital to have the implant removed; Was promised morphine before MRI to get pictures before the removal, but MRI nurse refused it. Also wouldn’t help me get onto or off MRI bed, and refused to get help. I have never experienced pain like it.**♥ 1source record 4106 **Yeah I don’t know if it was just less severe or less instantaneous but I was never immobilized from the thoracic herniation. It caused me chronic upper/mid back pain for years and still flares up here and there but it’s mostly fine now. it was mild compared to the lumbar herniation for sure.**♥ 1source record 4278 **I have 3 herniated disks in lumber. I’m pain free from lumber I used to have very bad pain like 17yrs ago. Thoracic stenosis is mild but the pain can get very severe.**♥ 1source record 4279 **Yeah. I still can’t get over just how bad nerve pain is.**♥ 1source record 4280 **Hi, thanks for the information, I appreciate it. It has definitely been longer than 6 weeks - currently going on 4.5 months but I have had an MRI done and two disc bulges is the cause of this. Pain has definitely gotten better but it's very up and down and my main issue is sitting as of now.**♥ 1source record 4307 **That's one of the reasons pregnancy scares me. My sciatica already has flare ups so bad that I cry my eyes out and can barely sit up in bed in the morning cause the pain is too intense, I don't even want to imagine how bad it would be if I were to get pregnant**♥ 1source record 4318 **It’s horrible. I ended up in a pain clinic and even with the max cortisone spinal shots, physical therapy and Vicodin, it was excruciating.**♥ 1source record 4378 **Compared to the pain I’ve had it was not bad. And it provided relief. Procedure was done very quickly.**♥ 1source record 4387 **For me it took 2 years too, sadly. It depends from person to person**♥ 1source record 4394 Archive: 129 index entries preserve 129 distinct source records · Every displayed synthesis count resolves to source-record IDs Complex regional pain syndrome25 index entriesA small group whose members describe the condition as permanent rather than as an episode. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Complex regional pain syndrome Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Complex regional pain syndrome 25 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 358 **Appears when:** Complex regional pain syndrome **What the pattern means:** The distinguishing claim in this small group is permanence. Writers explicitly separate their condition from the acute answers around it — a kidney stone ends, this does not — and several describe it starting from an unremarkable injury years earlier. The recurring detail is that the affected limb cannot be touched at all. Several writers use the condition's nickname and one adds a statistic to it. **What commenters described:** Complex regional pain syndrome It really Fing sucks. There is a reason it’s nicknamed the $ucide syndrome. I’ve had kidney stones and gallstones, both are horrible please let me pass out pain but it ends. CRPS never ends 😖 **Limit:** The figure one commenter attaches to the condition's nickname is that commenter's own assertion and is not checked or endorsed here. These records describe suicidal thinking; they are personal accounts, not a statement about what the condition does to anyone else. If you are struggling, contact a local crisis line or emergency service. What the replies added4 My husband had this. And other painful conditions so all together it was just about unbearable able for him. I swear the painful conditions are the reason he died at 65 of a massive heart attack. The stress it puts in you body will take years off your life. His “pain management” doctor did nothing to help him all. Pushback♥ 8 My best friend has this. She broke her foot 8 years ago and still uses a knee scooter to get around. Her entire foot is black now and she can’t have anything touch it. She’s so positive about everything, but I know it must be hard. We need to bring more awareness to this condition as it’s definitely becoming more common (at least from what I’ve noticed). Reported failure♥ 3 Complex Regional Pain Syndrome AKA Suicide Diease (because something like 80% of those diagnosed kill themselves after 11 years. I imagine they hit the 10 year anniversary of the injury and cant go on. I'm on year 8 and I fucking get it.) OR Emdometriosis Trigeminal neuralgia Back spasm following a spinal tap Cluster head aches Migraines Broken teeth (from clenching through the pain. ) Reported failure♥ 1 Chronic regional pain syndrome crps from 11-17\. Ruined my life and because of it happening at such a vital developmental age I have trouble fitting in as an adult now despite having a decade of counseling sessions Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint My husband had this. And other painful conditions so all together it was just about unbearable able for him. I swear the painful conditions are the reason he died at 65 of a massive heart attack. The stress it puts in you body will take years off your life. His “pain management” doctor did nothing to help him all. source record 359♥ 8 #### Source-record spotlights Most engaged source Complex regional pain syndrome It really Fing sucks. There is a reason it’s nicknamed the $ucide syndrome. I’ve had kidney stones and gallstones, both are horrible please let me pass out pain but it ends. CRPS never ends 😖 source record 358♥ 38 Later-arriving source Complex regional pain syndrome is definitely up there or when there was CSF leak and I had to lay completely flat as possible until they could fix it. That headache man. A couple open fractures. waking up from my hip replacement. Dude I cannot pick one. posted about 22.2 hours after the source♥ 1 Low-like source Ladies and gentlemen, read in depth about CRPS. I’ve had it for 12 years. Most days you don’t want to live. Other than that, I’m hanging in there with various meds. posted about 9.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Trigeminal neuralgia“the suicide disease” · 5 there](#rich-node-0-group-2-subgroup-2-trigeminal-neuralgia) #### What the counts show The exact phrase “the suicide disease” recurs across 2 of the 25 source records in Complex regional pain syndrome; the complete archive stays available below. 25index entries 25distinct source records 5.1%of parent category 0.7%of the complete index 21top-level comments 4replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 24other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments25 preserved records · 25 of 25 source records accounted for **Complex regional pain syndrome It really Fing sucks. There is a reason it’s nicknamed the $ucide syndrome. I’ve had kidney stones and gallstones, both are horrible please let me pass out pain but it ends. CRPS never ends 😖**♥ 38source record 358 **My husband had this. And other painful conditions so all together it was just about unbearable able for him. I swear the painful conditions are the reason he died at 65 of a massive heart attack. The stress it puts in you body will take years off your life. His “pain management” doctor did nothing to help him all.**♥ 8source record 359 **Yes! Unremitting constant excruciating pain. It really does suck so much. All of us with it completely understand its other name-because there is no cure and currently at least in the US it is so very hard to get pain meds and/or affordable and effective treatments besides pain meds.**♥ 6source record 360 **Omg i had CRPS as a kid and literally nothing will EVER compare to that pain, I got very lucky and mine went into remission but i will say that every surgery/illness/injury Ive had since has nothing on that**♥ 5source record 1292 **My best friend has this. She broke her foot 8 years ago and still uses a knee scooter to get around. Her entire foot is black now and she can’t have anything touch it. She’s so positive about everything, but I know it must be hard. We need to bring more awareness to this condition as it’s definitely becoming more common (at least from what I’ve noticed).**♥ 3source record 1340 **CRPS**♥ 2source record 1412 **CRPS**♥ 2source record 1473 **Crps and full body neuropathy**♥ 2source record 1474 **Complex Regional Pain Syndrome AKA Suicide Diease (because something like 80% of those diagnosed kill themselves after 11 years. I imagine they hit the 10 year anniversary of the injury and cant go on. I'm on year 8 and I fucking get it.) OR Emdometriosis Trigeminal neuralgia Back spasm following a spinal tap Cluster head aches Migraines Broken teeth (from clenching through the pain. )**♥ 1source record 1923 **Complex Regional Pain Syndrome (CRPS). They don’t just call it the suicide disease for funsies. The pain is extreme.**♥ 2source record 1950 **I have a condition called RSD/CRPS in my legs. It started in my right foot and now has spread to both legs from foot to hip. The best was to describe the pain during a flare up is like getting your leg cut off with no anesthesia. I was in the E.R. kept once with a flare up, screaming because the pain was so bad and a nurse told me to SHUT UP there's no need me screaming if I continued screaming she wasn't going to deal with me! The doctor happen to hear this because she was yelling and he actually came in and let her have it. I got another more compassionate nurse. I was admitted to ICU for 5 days to get the pain under control**♥ 2source record 2048 **CRPS. It fucking sucks.**♥ 1source record 2140 **Chronic regional pain syndrome crps from 11-17\. Ruined my life and because of it happening at such a vital developmental age I have trouble fitting in as an adult now despite having a decade of counseling sessions**♥ 1source record 2218 **Complex regional pain syndrome**♥ 1source record 2382 **Complex regional pain syndrome affecting my sciatic nerve down left leg.**♥ 1source record 2385 **CRPS - which is literally ranked as one of the most painful conditions in the world**♥ 1source record 2583 **CRPS and IBD**♥ 1source record 2658 **Complex Regional Pain Syndrome by far. It’s chronic and lifelong. Luckily I have a spinal cord stimulator now that makes life livable again but I will never have a pain free day again.**♥ 1source record 2882 **Late stage Complex Regional Pain Syndrome- at the point where irreversible damage begins to set in, and treatment options become very limited**♥ 1source record 3058 **Complex regional pain syndrome is definitely up there or when there was CSF leak and I had to lay completely flat as possible until they could fix it. That headache man. A couple open fractures. waking up from my hip replacement. Dude I cannot pick one.**♥ 1source record 3372 **nerve pain...suspected CRPS. either that or the 15/10 migraine that made me suicidal**♥ 1source record 3412 **Complex regional pain syndrome. It’s literally nicknamed the suicide disease. I’m only 37\. I had so many dreams. I’m terrified I’ll have to end my life one day.**♥ 1source record 3606 **Complex Regional Pain Syndrome (the most painful disease known to man, literally)**♥ 1source record 3695 **Ladies and gentlemen, read in depth about CRPS. I’ve had it for 12 years. Most days you don’t want to live. Other than that, I’m hanging in there with various meds.**♥ 1source record 3726 **Complex Regional Pain Syndrome**♥ 1source record 3807 Archive: 25 index entries preserve 25 distinct source records · Every displayed synthesis count resolves to source-record IDs Pinched nerves and neuropathy26 index entriesNerve pain without a disc or a diagnosis named alongside it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Pinched nerves and neuropathy Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Pinched nerves and neuropathy 26 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3712 **Appears when:** Pinched nerves and neuropathy **What the pattern means:** Nerve pain without a disc, a diagnosis or an event attached to it. The descriptions are electrical and positional — no posture helps, movement is what triggers it — and several writers report losing the use of an arm or a leg alongside the pain. What separates this group from the spine group is that its members often cannot say where it came from: an old workout injury, a night's sleep, nothing at all. **What commenters described:** I am currently dealing with a pinched nerve between cervical and thoracic spine and it is absolutely the worst agony I have ever experienced. There is literally no position I can be in that offers any relief. After a month it’s just starting to ease… right in time for the epidural steroid injection. Not recommended. **Limit:** These records collect several different nerve conditions whose only common feature is how their writers describe them. Nothing here identifies a pinched nerve or neuropathy, or indicates what should be done about one. What the replies added2 Not sure if this technically counts as an illness, but \*really badly\* pinching a nerve in my neck. It started as some pain down my side to my kidney, and down my arm. Then it got worse, and worse, and worse, and worse until I had to wake up my wife and tell her I needed to go to the ER. Once there the doctor, he looks at my x-rays and goes "Oh yeah, yeah, I know this one. Yeah, lets get you some \*really\* good pain meds". I've cut my finger off, been hit by a car, broken my foot, split open my head, had tooth infections, ear infections, I once infected my knee so badly I couldn't stand, had sciatica, damaged by hamstrings, damaged my rotator cuff, nothing was like this. This was literally the pain center of my nervous system going "3 ALARM FIRE". Fortunately it started getting better that day, and was all better within a week. Reported failure♥ 2 1: pudendal neuralgia flare while also having a severe untreated UTI At the same time 2: pudendal neuralgia flare (nerve pain in layman’s terms but that is oversimplifying the condition) 3: dry socket while also having severe infection after tooth extraction These are in order of severity, I am unfortunately a woman and I only say that because of the gaslighting i received over 1 and 2 as it’s a rare enough condition and I overheard a nurse accuse me of drug seeing behaviour and being overly dramatic. The man beside me who broke his finger (this is a less painful thing I have also experienced) was given morphine while I was told to stop crying and given ineffective paracetamol lV. Sigh. I have great doctors and stable treatment and pain relief now which I’m so grateful for. We women really go through a lot when it comes to being listened to and believed with healthcare. I have faced so much contempt. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Not sure if this technically counts as an illness, but \*really badly\* pinching a nerve in my neck. It started as some pain down my side to my kidney, and down my arm. Then it got worse, and worse, and worse, and worse until I had to wake up my wife and tell her I needed to go to the ER. Once there the doctor, he looks at my x-rays and goes "Oh yeah, yeah, I know this one. Yeah, lets get you some \*really\* good pain meds". I've cut my finger off, been hit by a car, broken my foot, split open my head, had tooth infections, ear infections, I once infected my knee so badly I couldn't stand, had sciatica, damaged by hamstrings, damaged my rotator cuff, nothing was like this. This was literally the pain center of my nervous system going "3 ALARM FIRE". Fortunately it started getting better that day, and was all better within a week. source record 2049♥ 2 Explicit limit or counterpoint 1: pudendal neuralgia flare while also having a severe untreated UTI At the same time 2: pudendal neuralgia flare (nerve pain in layman’s terms but that is oversimplifying the condition) 3: dry socket while also having severe infection after tooth extraction These are in order of severity, I am unfortunately a woman and I only say that because of the gaslighting i received over 1 and 2 as it’s a rare enough condition and I overheard a nurse accuse me of drug seeing behaviour and being overly dramatic. The man beside me who broke his finger (this is a less painful thing I have also experienced) was given morphine while I was told to stop crying and given ineffective paracetamol lV. Sigh. I have great doctors and stable treatment and pain relief now which I’m so grateful for. We women really go through a lot when it comes to being listened to and believed with healthcare. I have faced so much contempt. source record 3698♥ 1 #### Source-record spotlights Most engaged source Erythromelalgia. During a flare up it feels like the affected body part is on fire. A newspaper reporter dubbed it "Man on Fire Syndrome ". Imagine the pain of walking barefoot across a hot pool deck but affecting more than just the soles of your feet and you start to fet the idea. I have flare ups every day. source record 1535♥ 2 Later-arriving source Thoracic outlet syndrome posted about 21.2 hours after the source♥ 1 Low-like source Pinched nerve in my neck which caused me to lose function of my arm. Hurt every single day, every second. It felt like someone was trying to rip my nerves out of the back of my neck, pulling on them as hard as they could. posted about 3.5 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 26 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 26index entries 26distinct source records 5.3%of parent category 0.7%of the complete index 24top-level comments 2replies #### What commenters explicitly report 0explicitly reports a benefit 2explicitly reports a limit or failure 1asks a question 0says they intend to try it 23other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments26 preserved records · 26 of 26 source records accounted for **Erythromelalgia. During a flare up it feels like the affected body part is on fire. A newspaper reporter dubbed it "Man on Fire Syndrome ". Imagine the pain of walking barefoot across a hot pool deck but affecting more than just the soles of your feet and you start to fet the idea. I have flare ups every day.**♥ 2source record 1535 **Nerve injury in my leg.**♥ 2source record 1576 **Nerve pain.**♥ 2source record 1593 **Neuropathy**♥ 1source record 1697 **Diabetic neuropathy. The pins and needles are for real. Can barely walk on my feet anymore**♥ 1source record 1713 **C5 and C6 nerve inflammation from a decades old workout injury (inflammation happened during an exercise routine) ony left side. I wouldn't wish it on my worst enemy. The pain was so excruciating that I wanted to get my arm removed which wasn't an option but, I guess you get it. 3 months of no movement. Heavy opioids, pain killers and steroids. Down to 2% left which gives an uncomfortable feeling if I rest too long or workout too much (mostly rehab and strength training). Can't lift overhead. Can't sleep on my left side w/o being numb.**♥ 1source record 1880 **Neuropathy, in all four limbs. They’re all racing to Central to have a party.**♥ 1source record 1917 **Not sure if this technically counts as an illness, but \*really badly\* pinching a nerve in my neck. It started as some pain down my side to my kidney, and down my arm. Then it got worse, and worse, and worse, and worse until I had to wake up my wife and tell her I needed to go to the ER. Once there the doctor, he looks at my x-rays and goes "Oh yeah, yeah, I know this one. Yeah, lets get you some \*really\* good pain meds". I've cut my finger off, been hit by a car, broken my foot, split open my head, had tooth infections, ear infections, I once infected my knee so badly I couldn't stand, had sciatica, damaged by hamstrings, damaged my rotator cuff, nothing was like this. This was literally the pain center of my nervous system going "3 ALARM FIRE". Fortunately it started getting better that day, and was all better within a week.**♥ 2source record 2049 **Nerve damage in my skull that hurts everytime I breathe or smile or talk. The severe pain comes in. Right now a blink causes pain. I have delt with this since I was born.**♥ 1source record 2312 **Pinched nerve in my neck which caused me to lose function of my arm. Hurt every single day, every second. It felt like someone was trying to rip my nerves out of the back of my neck, pulling on them as hard as they could.**♥ 1source record 2370 **Nerve impingement at C5.**♥ 1source record 2530 **Peripheral neuropathy that also affects my tmj. I'd take kidney stones over this.**♥ 1source record 2760 **Cervical Radiculopathy… all over neck. 10/10 awful. Worst pain ever. Nerve pain sucks!!! Wouldn’t even wish it on worst enemy.**♥ 1source record 2770 **Not an “illness” per se but brachial plexus neuritis. Literal torture.**♥ 1source record 2949 **Pinched nerve, intense period pain and a gas’s attack.**♥ 1source record 3132 **\[Parsonage Turner Syndrome\](\[link removed\]**♥ 1source record 3136 **i think for me it's intercostal neuralgia. the first time had it, i left it untreated and waited for it to pass. it felt like being stabbed every single second of the day. couldn't breathe properly at all. it was terrifying and hurt so bad. also don't get me started on my period cramps, they're diabolical**♥ 1source record 3219 **Small Fiber Neuropathy and Synovitis. Rough combo for two different kinds of pain stacking.**♥ 1source record 3221 **Thoracic outlet syndrome**♥ 1source record 3371 **Chronic inflammatory demyelating polyneuropathy**♥ 1source record 3433 **1: pudendal neuralgia flare while also having a severe untreated UTI At the same time 2: pudendal neuralgia flare (nerve pain in layman’s terms but that is oversimplifying the condition) 3: dry socket while also having severe infection after tooth extraction These are in order of severity, I am unfortunately a woman and I only say that because of the gaslighting i received over 1 and 2 as it’s a rare enough condition and I overheard a nurse accuse me of drug seeing behaviour and being overly dramatic. The man beside me who broke his finger (this is a less painful thing I have also experienced) was given morphine while I was told to stop crying and given ineffective paracetamol lV. Sigh. I have great doctors and stable treatment and pain relief now which I’m so grateful for. We women really go through a lot when it comes to being listened to and believed with healthcare. I have faced so much contempt.**♥ 1source record 3698 **I am currently dealing with a pinched nerve between cervical and thoracic spine and it is absolutely the worst agony I have ever experienced. There is literally no position I can be in that offers any relief. After a month it’s just starting to ease… right in time for the epidural steroid injection. Not recommended.**♥ 1source record 3712 **Neuropathy. Some days I can barely walk.**♥ 1source record 3790 **It's a toss up, but on the brief of 'illness', I once had a trapped nerve in my neck and with any imperceptable movement I got the most intense pain imaginable. This meant that for several days I was just lying in bed doing nothing but bracing myself and trying not to move at all (and frequently failing). For those days I couldn't sleep either because every time I'd fall asleep I'd move my neck and get woken by the intense pain again. Wasn't fun.**♥ 1source record 3974 **I have this too. It’s definitely the most finicky, pain in the ass syndrome my body deals with, and I’ve got a number of comorbidities that run in tandem with it. Explaining the feeling to someone is near impossible- like a deep heat radiating outward from my bones.**♥ 1source record 4341 **Probably hypermobile spectrum disorder (possible hEDS)? Not diagnosed with anything more specific, trying to get a functional neurologist and hEDS genetic testing.**♥ 1source record 4350 Archive: 26 index entries preserve 26 distinct source records · Every displayed synthesis count resolves to source-record IDs Epilepsy, MS, strokes and palsies62 index entriesNeurological conditions offered as the most painful thing the writer has had. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Epilepsy, MS, strokes and palsies Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Epilepsy, MS, strokes and palsies 62 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3081 **Appears when:** Epilepsy, MS, strokes and palsies **What the pattern means:** Neurological conditions offered as the most painful thing the writer has had, and the group where the answer is least often about a sensation. Writers describe what the condition removed — driving, working, memory, the ability to bathe their own child — and several say the psychological component outweighed the physical one. Where pain is described it is usually pressure inside the skull or the aftermath of a seizure rather than the condition itself. **What commenters described:** Idiopathic intracranial hypertension - aka "we don't know why inside your skull there's too much pressure" Imagine the worst headache you've ever had, only it never goes away (\*...and you have constant tinnitus, dizziness and sometimes nausea, but the doctor thinks it's just stress / tension, but then your vision starts getting distorted like there's wavy lines where there should be straight lines so you go to see the eye doctor and suddenly everything is a lot more serious and it's not "just stress" and you have to have an MRI scan and a lumbar puncture and luckily there's no brain tumour, but instead of your opening pressure on your spinal fluid being around 18 it's 43, and there's no cure\*) **Limit:** This group holds a wide range of unrelated diagnoses whose writers reached for the same framing, so it describes a way of answering rather than a family of illnesses. Nothing here identifies any of them. What the replies added3 Eithet broken neck or stroke. But o recovered from both Reported failure♥ 6 Cerebellar ectopia. The base of my brain has slipped into the hole at the bottom of my skull. It tends to not cause too many issues, however, I can get headaches out of the blue that feels like my brain is going to burst like a balloon. I've even passed out from the pain. Kidney stones, and the recovery after operation is a close second. I was in so much pain the morphine I was given didn't work in the slightest, the nurse kept coming into my room stroking my hand, trying to comfort me. I felt like an old man, having a nurse ten years my junior being so concerned for me Reported failure♥ 1 I have intracranial hypertension, occipital neuralgia, trigeminal neuralgia, and have had low CSF headaches. I also have lichens schlerosis, and persistent genital arousal syndrome. And graves disease. And I've had upper pallet expansion surgery. I've have a tooth pushed into an nerve, and a ruptured ovarian cyst. A gallstone. And an IUD implanted and removed. My dad died. My DOG died. Broken bones. Glass shattered into my hand. Idk. Stuff. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Cerebellar ectopia. The base of my brain has slipped into the hole at the bottom of my skull. It tends to not cause too many issues, however, I can get headaches out of the blue that feels like my brain is going to burst like a balloon. I've even passed out from the pain. Kidney stones, and the recovery after operation is a close second. I was in so much pain the morphine I was given didn't work in the slightest, the nurse kept coming into my room stroking my hand, trying to comfort me. I felt like an old man, having a nurse ten years my junior being so concerned for me source record 1966♥ 1 #### Source-record spotlights Most engaged source post concussion syndrome source record 354♥ 13 Later-arriving source Guillain-Barré syndrome posted about 29.4 hours after the source♥ 1 Low-like source PPPD and nervous system dysfunction/ FND (not painful, but very much symptomatic and emotionally painful) posted about 3.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Bladder, kidney infections and the prostateChange the sentence · 6 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Depression and mental illnessChange the sentence · 4 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness)[Shingles, and the nerve pain it leaves behindChange the sentence · 7 there](#rich-node-0-group-3-subgroup-0-shingles-and-the-nerve-pain-it-leaves-behind) #### What the counts show Across 62 source records, the most common observable tactic structure is “Change the sentence” (4 records). This is a wording pattern, not a measured outcome. 62index entries 62distinct source records 12.8%of parent category 1.7%of the complete index 56top-level comments 6replies #### What commenters explicitly report 1explicitly reports a benefit 1explicitly reports a limit or failure 5asks a question 0says they intend to try it 55other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Change the sentence **4**Attach it to an existing routine **2**Swap instead of subtract **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments62 preserved records · 62 of 62 source records accounted for **post concussion syndrome**♥ 13source record 354 **I spent over 10k during my concussion on wild stuff I never remembered buying. It was bananas**♥ 3source record 355 **Eithet broken neck or stroke. But o recovered from both**♥ 6source record 392 **My first husband’s narcissistic traits? 😜 But for real, probably the MS and fibromyalgia that I’m sure the relationship had a part in. It was the icing on the cake of all the other trauma.**♥ 4source record 438 **Multiple Sclerosis**♥ 3source record 475 **Is that why I’ve discovered new hobbies since I had mine? It was pretty severe and resulted in a TBI due to being unconscious for over a minute. I know my cognition is very different and I’m exhausted all the time, but I never thought it might be behind my new obsession for buying houseplants!**♥ 3source record 1283 **I was thrown out of a jeep when I was 13 and hit my head on the roll bar on the way out. I don’t know how long I was unconscious, but it was a minimum of five minutes or more. When I got to college, I could not pass algebra after three semesters of trying it. I finally went to a neuropsychologist and had testing done. He told me where my damage was prevented me from my spatial memory working and I would never be able to pass algebra. Because of his report the college let me substitute statistics as my math credit so I could graduate.**♥ 5source record 1284 **Dealing with this right now. Had to fight insurance to get medicine for the migraines. Took the medicine and it made me severely ill. I’d have rather suffered through the headache. I’m so damn tired of the doctors visits, the numerous pills that don’t do anything, of the fear of bumping my head, of not being able to drive, of putting my life on pause for months and feeling useless. I think it’s a mentality change for me. The anxiety has been intense and I feel like it’s impeding my healing. I have to break that loop. I’m basically gaslighting myself lol.**♥ 2source record 1310 **Idiopathic intracranial hypertension. Brain tumor symptoms, no tumor.**♥ 2source record 1398 **Idiopathic intracranial hypertension. Literal brain tumor symptoms without you having a brain tumor.**♥ 2source record 1399 **Idiopathic intracranial hypertension. This is Head Pain not headaches. Without treatment there is a risk of blindness. Most folks try meds then opt for a shunt. Shunts often require multiple surgeries over the lifetime. I used rx route. Just over ten years later I’m ok. I always fear it comes back- especially when I have a headache.**♥ 2source record 1428 **Heh had a similar thing happen. Took some meds and ended up messing me up more than the headaches. I spent like 3 months in the void. Countless doctor visits with no end in sight 🫡**♥ 1source record 1461 **Multiple sclerosis!!! Everything hurts all the time!!!**♥ 2source record 1555 **Bells Palsy, when the nerves in my face and neck decided to start working again. Felt like I had been kicked in the head by a horse or something.**♥ 1source record 1613 **15 minute tonic-clonic seizure. My body hurt for so long.**♥ 1source record 1717 **I don't know if I'd call it an illness, but I had a vertebral artery dissection that led to a brain stem stroke. I'd had kids before this and labour didn't even come close to the pain. Imagine fireworks going off inside your head while you're unable to move. I thought I was going to die, seriously. 15 years later, hardly any lingering side effects.**♥ 1source record 1730 **Multiple sclerosis**♥ 1source record 1839 **Epilepsy**♥ 1source record 1882 **Lower limb dystonia**♥ 1source record 1929 **Fainting , Dizziness**♥ 1source record 1964 **Cerebellar ectopia. The base of my brain has slipped into the hole at the bottom of my skull. It tends to not cause too many issues, however, I can get headaches out of the blue that feels like my brain is going to burst like a balloon. I've even passed out from the pain. Kidney stones, and the recovery after operation is a close second. I was in so much pain the morphine I was given didn't work in the slightest, the nurse kept coming into my room stroking my hand, trying to comfort me. I felt like an old man, having a nurse ten years my junior being so concerned for me**♥ 1source record 1966 **Was a bulging disc in my lower spine. But ten days ago I had a stroke (at 36 years old) and damn, way worse lol.**♥ 1source record 2006 **I guess the pain from having a subarachnoid haemorrhage after a ruptured brain aneurysm**♥ 1source record 2091 **Vertigo. And the meds made me a zombie it was so depressing.**♥ 1source record 2109 **Spinal infarction**♥ 1source record 2192 **Guillian-Barre Syndrome**♥ 1source record 2224 **Have focal epilepsy so every moment was pain before meds**♥ 1source record 2266 **Guillain-Barre Syndrome**♥ 1source record 2294 **I have intracranial hypertension, occipital neuralgia, trigeminal neuralgia, and have had low CSF headaches. I also have lichens schlerosis, and persistent genital arousal syndrome. And graves disease. And I've had upper pallet expansion surgery. I've have a tooth pushed into an nerve, and a ruptured ovarian cyst. A gallstone. And an IUD implanted and removed. My dad died. My DOG died. Broken bones. Glass shattered into my hand. Idk. Stuff.**♥ 1source record 2442 **I had a seizure in 2021 that was so severe that death almost happened to me, and I don’t have a lot of memories for about 10 years. I was in the hospital for about a year from the broken bones I had from that seizure where I fell off my horse onto rocks, had multiple surgeries I needed, and had six weeks in a comma.**♥ 1source record 2490 **Short term? Kidney stones Long term? Cidp. I'd rather have kidney stones**♥ 1source record 2549 **ALS**♥ 1source record 2559 **Socially and physically - Tourette Syndrome.**♥ 1source record 2599 **I have POTS and Myasthenia gravis- among the myriad of other symptoms-i have a baseline pain level at about a 6\. Kind of a full-body ache- like when you have the flu- only 24-7/365.... it never stops. A 10/10 might make me wince at this point- the rest is just noise. This chronic pain is no joke. Tgfw....**♥ 1source record 2636 **Cavernous malformation rupture.**♥ 1source record 2647 **Dysautonomia. I was gaslit and abused by others for a long ass time when I was indeed battling an invisible disability. Sick part is someone with the same damn disability targeted me, abused me and continuously made fun of me and kept putting the “able bodied” label on me because I’m in a bigger body. Anyone with including people with different body shapes can have dysautonomia. I’ve been targeted, manipulated, abused, while feeling dizzy, nauseous, heart palpitations, fainting spells, etc. I know I’m sick, I know I’m in pain feeling chronic coat hanger pain isn’t normal. I no longer silence myself, I don’t pretend to feel well, I also don’t ruin others joy because I’m unwell.**♥ 1source record 2741 **Cervical dystonia. Imagine your neck muscles clamping down in a continuous, violent cramp that pulls your head sideways or backward, and you literally can't relax them. The relentless spasms, nerve pain down the shoulders, and constant headaches make it absolute misery to live with.**♥ 1source record 2764 **Does Bell's Palsy counts? It wasn't so much physically painful, but absolutely terrifying. Very thankful that its rarely permanent.**♥ 1source record 2849 **Transverse myelitis, by far the worst year of my life, it was like having a constant child birth pain in my back every day, no natural sleep, just excruciating pain. -And several infections in the gallbladder and pancreas, but that exact pain was a mouse drop in pain levels in comparison to the TM pain, so it took some time before I actually realised it wasn't normal to have pain right there, I had to get the gallbladder removed.**♥ 1source record 2912 **Cerebral Palsy when my legs were casted straight one summer and had to be bent all the way back repeatedly. That level of pain was beyond shocking. I will \*never\* understand why an 8 year old had to go through that.**♥ 1source record 2976 **Epilepsy. I was diagnosed as a child. The reasons for it being painful are occasionally physical (headaches, biting on tongue, injuries from falling or chipping teeth). The most painful however is psychological. I can’t drive which limits my independence (I also have a bone disorder so walking isn’t always achievable). I can’t wash my son alone, I have to change/feed him on the floor. I feel so completely defeated and feel like I’m not a capable parent. This crushes me.**♥ 1source record 2981 **Multiple Sclerosis with optic neuritis**♥ 1source record 3026 **Bells palsy**♥ 1source record 3076 **Idiopathic intracranial hypertension - aka "we don't know why inside your skull there's too much pressure" Imagine the worst headache you've ever had, only it never goes away (\*...and you have constant tinnitus, dizziness and sometimes nausea, but the doctor thinks it's just stress / tension, but then your vision starts getting distorted like there's wavy lines where there should be straight lines so you go to see the eye doctor and suddenly everything is a lot more serious and it's not "just stress" and you have to have an MRI scan and a lumbar puncture and luckily there's no brain tumour, but instead of your opening pressure on your spinal fluid being around 18 it's 43, and there's no cure\*)**♥ 1source record 3081 **Epilepsy! I flatlined during surgery after a car accident and my body hasn’t been the same since!**♥ 1source record 3091 **Very loud super high frequency tinnitus, still have it**♥ 1source record 3128 **Subdural Hematoma.**♥ 1source record 3160 **Strokes**♥ 1source record 3212 **Small lesion to the brain**♥ 1source record 3299 **PPPD and nervous system dysfunction/ FND (not painful, but very much symptomatic and emotionally painful)**♥ 1source record 3386 **Brain injury. Lol you cant get rid of it. Migraines. Headaches every day. For me, but i guess depends on each person. Also painful in the emotional way. Forgetting events. Unable to work. Lol the worst thing that ever happened to me. Brain injury doesnt sound painful, but it is.**♥ 1source record 3455 **Not painful as such, and there are so many people out there in worse situations than me I get it. But Ménière’s disease has rocked my world for the past 4 years.**♥ 1source record 3456 **I have Meniere's, too. How long do your episodes last? My attacks are fairly short, but the nausea and vomiting would last for hours. I'd be wiped out the rest of that day, and all of the next. My MIL had it, too, her episodes would last for days. She had the surgery to stop it. It destroyed her hearing in that ear, but if mine hung on like that, I'd get the surgery, too. I started taking meclizine, I can get it over the counter. I order it online because all of the drug stores only carry an artificially sweetened (aspartame, which gives me a terrible headache) raspberry tablet to dissolve under your tongue. They taste horrible, and are just about bad enough to make me puke, which is ironic. So I get ordinary non-flavored tablets you just swallow with water, like most grown up medications. It's supposed to last 24 hours, but I take it twice a day just to make sure. Now when I have an episode, I just hold still and wait for it to pass. It makes 3-5 minutes feel like an hour, but I don't feel nauseated or vomit anymore. I also found out the hard way not to try to stand up or walk for several minutes afterward. After the vertigo is gone, I still have no balance for a few minutes. Taking meclizine to stop the motion sickness I get from the vertigo, has been a life changer. I'm not stressed about it anymore, and have fewer episodes, because I have more when I feel stressed.**♥ 1source record 3457 **Guillain-Barré syndrome**♥ 1source record 3670 **Multiple Sclerosis… Oh ya, I still have it lol**♥ 1source record 3681 **Uncontrolled epilepsy.**♥ 1source record 3789 **Bell’s Palsy. Inflammation of the facial nerves is extremely painful.**♥ 1source record 3801 **Concussion. The pain is 12/10\. Because every sense is on fire.**♥ 1source record 3856 **Ruptured brain aneurysm**♥ 1source record 3953 **An Uncal (Brain) Herniation. It happened slowly over the course of months. No one knew exactly what was happening until imaging had shown the 4mm hernia. It presented daily as non-stop icepick migraines mixed with ocular migraine. Terrible brain fog. Unrelenting fatigue.**♥ 1source record 3973 **Idiopathic Intracranial Hypertension and bile acid malabsorption. One almost left me blind & made me high risk for a stroke and the other makes it excruciating to go to the bathroom sometimes.**♥ 1source record 4012 **Primary Progressive Multiple Sclerosis. But acute pain… KIDNEY STONES.**♥ 1source record 4018 Archive: 62 index entries preserve 62 distinct source records · Every displayed synthesis count resolves to source-record IDs The reproductive and urinary tract509 records · 8 sub-topicsThe answers that come round on a cycle, and the ones that arrive once and put somebody in an ambulance. 509 records. Endometriosis and adenomyosis154 index entriesThe largest answer from the reproductive tract, and one of the most repeated in the whole thread. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Endometriosis and adenomyosis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Endometriosis and adenomyosis 154 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 169 **Appears when:** Endometriosis and adenomyosis **What the pattern means:** The largest answer from the reproductive tract and one of the most consistent in the corpus. Three things recur in nearly every account. The first is that the pain recalibrated the writer's whole scale — commenters describe rating a kidney stone or sepsis lower afterwards, and one says her personal scale now runs to twelve. The second is the delay: writers repeatedly report years, and in several cases two decades, between the first episode and a diagnosis. The third is what happens after surgery, which splits — some describe learning to live without pain for the first time, others say the hysterectomy did not fix it. **What commenters described:** THIS! My personal pain scale used to be 1-10 like everyone else, but now goes 1-12 because 10 just wasnt enough to express the true, consuming agony of endo cramps and hemorrhaging. **Limit:** The outcomes described after surgery contradict each other inside this group, and several writers say explicitly that a hysterectomy did not help them; treat neither outcome as the expected one. Nothing here identifies endometriosis or indicates what any individual should do about pelvic pain. What replies pushed back on5 Came here to say the same! Specifically endo when I had an IUD. Made my symptoms way worse. Pushback♥ 25 I had mid-stage labor level contractions because of my endo. It happened during a road trip and my ex and I had to pull over and she helped me the rest of the night in a motel room like the classic spouse in the hospital room (bringing me ice and pain meds, rubbing my back, all sorts). We looked up labor positions and I figured out which ones helped the pain the most. For whatever reason squatting while hanging onto the back of a chair was the best. I was sobbing and screaming in the car and realized how bad (unmedicated) birth must be because imagine it gets even worse than that and you're actually giving birth to a baby and dealing with everything else on top of the pain alone. (Plus I downed homemade weed butter straight out of a ramekin for the pain and got high out of my mind, which you definitely can't do during birth.) The next day (and for several days after) I could feel soreness deep inside of my body, like I swear I could feel my uterus/surrounding muscles being super sore like a leg or arm muscle after a workout. Fully get why the human brain makes people forget how bad it is. Pushback♥ 2 Yep, Stage 4 endo here. I’ve broken bones, had appendicitis that would have ruptured if I hadn’t gotten to ER when I did, and have had horrific gallbladder attacks. Endo is the worst of it all, especially when my endo caused ovarian torsion. :D I had surgery for it and lost an ovary and my fertility—one ovary crushed by the grapefruit sized cyst, the other so damaged by the adhesions that it’s useless except for hormones. And everyone always talks about the sheer AGONY of it, but there’s so many other batshit symptoms that go with it—my chronic UTIs were cured by surgery. For the months leading up to my surgery, I also had horrific constipation because the endo was all around my bowels and adhering my rectum to my uterus. Instantly cured after surgery. Not to mention the chronic fatigue, the horrific anxiety and depression and having to pee all the time. I’m not cured, it does grow back, but it’s like night and fucking day. It was surreal learning how to live without pain. Reported failure♥ 6 100% this At one point I couldn't walk. I now have monthly injections which have put me in the menopause aged 37 and on the waiting list for a hysterectomy. I wouldn't be going through all of that if it wasn't awful. I've given birth twice, I've broken bones, I've slipped a disc. Endometriosis beats it all. Reported failure♥ 2 I’m so glad the IUD helped! I have stage IV and the IUD made it worse 😂🙄 can’t win Reported failure♥ 2 #### Where commenters report limits Explicit limit or counterpoint I’m so glad the IUD helped! I have stage IV and the IUD made it worse 😂🙄 can’t win source record 1188♥ 2 Explicit limit or counterpoint This. Unfortunately, my endometriosis is in my diaphragm so it mimics gallbladder attacks. I only know this because after the first real one I had that sombitch removed, three years later during a flare up another "attack" hit. The og attack had me projectile vomiting so hard I wet myself and ended up in tears writhing on the floor. Sis thought I was dying, so did I. source record 853♥ 1 #### Source-record spotlights Most engaged source Yes! I had endo and adeno and after my hysterectomy it literally took me months to get used to living without pain because I had been dealing with it so long I didn’t know what it felt like to be pain free. source record 163♥ 188 Later-arriving source This. Unfortunately, my endometriosis is in my diaphragm so it mimics gallbladder attacks. I only know this because after the first real one I had that sombitch removed, three years later during a flare up another "attack" hit. The og attack had me projectile vomiting so hard I wet myself and ended up in tears writhing on the floor. Sis thought I was dying, so did I. posted about 6 days after the source♥ 1 Low-like source Adenomyosis. Did you know sometimes your uterus can just decide to not stop bleeding for months? posted about 4.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Lungs, pleura and clotsAttach it to an existing routine · 8 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots) #### What the counts show Across 154 source records, the most common observable tactic structure is “Attach it to an existing routine” (8 records). This is a wording pattern, not a measured outcome. 154index entries 154distinct source records 30.3%of parent category 4.1%of the complete index 91top-level comments 63replies #### What commenters explicitly report 4explicitly reports a benefit 2explicitly reports a limit or failure 8asks a question 0says they intend to try it 140other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **8**Create a default **5**Change the sentence **3**Turn it into a game **3**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments154 preserved records · 154 of 154 source records accounted for **Endometriosis**♥ 1,044source record 161 **The only thing that’s ever been a 10 on the pain scale for me. For reference for other people: a couple years ago I was hospitalized because I was in sepsis from a kidney infection - that kidney was also essentially blocked off by a kidney stone that was lodged in my ureter (the tube that connects the kidney to the bladder), and also I had a “2-3 cm” (not a typo) staghorn kidney stone in that kidney. As you can imagine, it was really painful. I would say it got up to probably a 7 at the most on the pain scale - just at a few moments.**♥ 136source record 162 **Yes! I had endo and adeno and after my hysterectomy it literally took me months to get used to living without pain because I had been dealing with it so long I didn’t know what it felt like to be pain free.**♥ 188source record 163 **I'm so glad for you! My endo spread outside of my uterus a long time ago, so a hysterectomy wouldn't help me with the pain.**♥ 28source record 164 **It does! They remove it all when doing the hysterectomy. My bladder had adhered to my uterus and I had endo on my colon and abdomen. They removed it all and 6 years later nothing has returned.**♥ 18source record 165 **I was told taking my uterus out wouldn't help me with the pain. I guess it's a case by case scenario depending on one's state. They already removed all the lesions outside of my uterus like they did in your case the first time I had surgery, 20 years ago. I was told by the surgeon after my first surgery that it spread pretty much everywhere and they could only remove localized lesions, but the real trouble were lesions they couldn't see and microscopic lesions. He told me those lesions will still cause me pain because they react to the cycle/hormones. And he was right. I had more surgeries since. Even a 10 years long stretch of not visible lesions, but they ultimately came back. I know about cases when visible lesions would come back months after surgery so I guess I was lucky in that respect. Eventually I stopped with the surgeries since it brought me no real relief. I have visible cysts on my ovaries and uterus right now (again), but I just keep checking on them regularly. Having visible lesions or not, to me the pain is equal and every surgery was quite painful to me so I'm done with them at this point. Sadly, as long as I still have functional ovaries the problem of pain remains in my case. I don't want to take my ovaries out (nor was I advised to do so) because it would bring me other health complications. So all I can do now is wait for the menopause to hit me. I'm 47 so it shouldn't be that long. Others dread getting old and I'm looking forward to it.😅**♥ 6source record 166 **Yes...I also had a hysterectomy a year and a half ago. I had endo all over the place, my bladder had to be cut away from my uterus, along with huge fibroids, and I also had adeno. And I didn't even find any of this out (well, endo had been suspected in the past, but that was never fully investigated) until after I had gone into menopause and started HRT, which caused everything to go haywire.**♥ 6source record 167 **THIS! My personal pain scale used to be 1-10 like everyone else, but now goes 1-12 because 10 just wasnt enough to express the true, consuming agony of endo cramps and hemorrhaging.**♥ 74source record 169 **The hemorrhaging!!!! Omgggg 😭 I thought I was a goner.**♥ 22source record 170 **Yes, I’ve been there. It’s horrible. I had an ablation and never had a period or pain again!**♥ 12source record 171 **This. This absolutely. The pain index for endometriosis is on a whole different planet. And if you're unlucky enough to have it leave the uterine cul-de-sac then you are toast.**♥ 79source record 172 **I have to take care to take the maximum dosage of painkillers as soon as the pain starts, because if I give a chance to the pain to get stronger, it becomes a level of pain only medical grade pain killers given at the hospital can solve. It's not just the pelvic area that hurts at that point, it's literally my whole torso that's in flames. Once the pain was so crippling that I couldn't move so I just called emergency and they ended up having to break in because by the time they came I was on the floor, unable to move. The first time I had my laparoscopy the surgeon came to tell me that he did all he could, but that the surgery won't help with the pain. He was right.**♥ 6source record 173 **Came here to say the same! Specifically endo when I had an IUD. Made my symptoms way worse.**♥ 25source record 174 **This and adenomyosis can take me out for days**♥ 13source record 176 **I was looking for this comment, yes a million times over! The way it’s both physically and mentally taxing.**♥ 32source record 177 **100%. I had an endometrioma rupture and was rolling on the floor, sweating and vomiting. Was at my pre op for endo surgery and nurse called a doctor in, they just looked at me on the floor and walked out again -\\\_- surgery recovery was a breeze in comparison.**♥ 5source record 179 **Yep, Stage 4 endo here. I’ve broken bones, had appendicitis that would have ruptured if I hadn’t gotten to ER when I did, and have had horrific gallbladder attacks. Endo is the worst of it all, especially when my endo caused ovarian torsion. :D I had surgery for it and lost an ovary and my fertility—one ovary crushed by the grapefruit sized cyst, the other so damaged by the adhesions that it’s useless except for hormones. And everyone always talks about the sheer AGONY of it, but there’s so many other batshit symptoms that go with it—my chronic UTIs were cured by surgery. For the months leading up to my surgery, I also had horrific constipation because the endo was all around my bowels and adhering my rectum to my uterus. Instantly cured after surgery. Not to mention the chronic fatigue, the horrific anxiety and depression and having to pee all the time. I’m not cured, it does grow back, but it’s like night and fucking day. It was surreal learning how to live without pain.**♥ 6source record 180 **My entire pelvis is fused together, the dr couldn't even see my tubes and ovaries. Bladder and bowel involvement. My poor appendix is being pulled into the mess. Worst pain imaginable.**♥ 5source record 181 **I got a hysterectomy recently for unrelated reasons and had mentioned having painful periods in the original intake but we kinda glossed over that. So when I had the surgery apparently the surgeon was just aghast at it. Stage 4 Endometriosis, it was everywhere. The 2 hour surgery took 4 hours and another surgeon had to come help get it off my bladder and colon and ovaries, since they were leaving those. My surgeon came to me while I was staying overnight and was like, “How much pain were you in??!” Me just “😅 oh, a lot lol”. I’d been bringing up the worsening pain for over a decade and none of my doctors had ever even mentioned endo to me.**♥ 8source record 182 **Oh god yes. Stage 4 here, and it only took 20 years to be diagnosed! My pain tolerance is next level. Thanks, endo!**♥ 4source record 185 **I'm sorry. I have it for 30 years now. Numerous visits to the ER and laparoscopies because of the pain. I had to have a leave of absence for 2 weeks a month ago because I couldn't function at all. I think I could've bought a house by now with all the money I spent on hygiene products and pain killers. I'm so happy I'm in my late forties and having menopause to look forward to. Sick of the pain, feeling like shit and bleeding to the brink of death for years.**♥ 3source record 187 **Simple laproscopy solved it for me. Tiny incision, and inserted cutting tool. Snip snip..they cut out the endo tissue. No hysterectomy needed. I woke up with all the weird nausea pain gone.**♥ 5source record 188 **100% this. Have given birth to a sunny side up baby with zero pain relief and that was way less painful than an endo flare up**♥ 3source record 191 **On the couch with a flare up now. Day five. On top of the physical pain it’s so depressing. Hysterectomy is scheduled for early October. I’m single, 38\. No babies and now the chance to have them is gone too. Feeling all of the emotions and the physical pain at once is plain exhausting**♥ 3source record 192 **Endometriosis and adenomyosis. I had a hysterectomy in 2017 and it was an absolute life-changer.**♥ 103source record 223 **Same here! When they removed my uterus during the hysterectomy they realized I also had adenomyosis (I had already been diagnosed with endo for years) and that it was YUGE. They weighed it, it came in at 8 lbs. Getting it removed was literally like a weight lifted off me.**♥ 25source record 224 **My fab gynae came to see me afterwards and said she had no idea how I'd managed the pain, considering the state my yeeterus was in. It's incredible what women can stand, often for decades!**♥ 11source record 225 **Endometriosis**♥ 61source record 309 **Normal period cramps do not do that. If you continue to have this issue you should ask to be evaluated for endometriosis or adenomyosis. I dealt with this for years and chalked it up to just having a bad period….took me going to the hospital and losing organs in my late twenties to realize that it wasn’t normal to have that much period pain and I should have said something**♥ 6source record 313 **That’s me too. I have endometriosis**♥ 6source record 314 **Stage 4 endometriosis, by far.**♥ 9source record 397 **Endometriosis and pancreatitis**♥ 5source record 405 **Endometriosis also**♥ 4source record 424 **Endometriosis**♥ 3source record 427 **This. Unfortunately, my endometriosis is in my diaphragm so it mimics gallbladder attacks. I only know this because after the first real one I had that sombitch removed, three years later during a flare up another "attack" hit. The og attack had me projectile vomiting so hard I wet myself and ended up in tears writhing on the floor. Sis thought I was dying, so did I.**♥ 1source record 853 **A friend has it on the outside of her lungs and diaphragm. I have chronic pain but nothing compared Endo pain**♥ 2source record 940 **The saddest part is women with Stage IV endo won’t get much out of a hysterectomy. What a beast of a disease**♥ 3source record 979 **I wish this was more “advertised.” I thought my hysto would fix me. 3 years later and in worse shape than before.**♥ 3source record 980 **Same. The sad part is that I truly didn't realize how miserable I was and how much pain I was in until I had my hysterectomy and felt like a normal human again.**♥ 3source record 983 **Preach. I'm pretty much raw dogging the recovery from a C Section because of my fucked up pain tolerance. The nurses looked so confused when 10 hours after the surgery I told them I didnt think I needed the pain meds anymore.**♥ 2source record 1000 **I had mid-stage labor level contractions because of my endo. It happened during a road trip and my ex and I had to pull over and she helped me the rest of the night in a motel room like the classic spouse in the hospital room (bringing me ice and pain meds, rubbing my back, all sorts). We looked up labor positions and I figured out which ones helped the pain the most. For whatever reason squatting while hanging onto the back of a chair was the best. I was sobbing and screaming in the car and realized how bad (unmedicated) birth must be because imagine it gets even worse than that and you're actually giving birth to a baby and dealing with everything else on top of the pain alone. (Plus I downed homemade weed butter straight out of a ramekin for the pain and got high out of my mind, which you definitely can't do during birth.) The next day (and for several days after) I could feel soreness deep inside of my body, like I swear I could feel my uterus/surrounding muscles being super sore like a leg or arm muscle after a workout. Fully get why the human brain makes people forget how bad it is.**♥ 2source record 1003 **The second to last period before my surgery (endo through my bowel wall) was so bad, I called asking for narcotics for the next one so I wouldn’t risk my surgery with NSAIDS - they moved my surgery up 2 1/2 weeks**♥ 2source record 1004 **Yep, since my first period age 12\. Took 9 years for a diagnosis, and a further 6 years to be adequately medicated.**♥ 2source record 1006 **100% this At one point I couldn't walk. I now have monthly injections which have put me in the menopause aged 37 and on the waiting list for a hysterectomy. I wouldn't be going through all of that if it wasn't awful. I've given birth twice, I've broken bones, I've slipped a disc. Endometriosis beats it all.**♥ 2source record 1008 **I have ankylosing spondylitis, fibromyalgia chronic migraines and endometriosis. Endo and migraines are the ones that make me wanna die. I mean, they all make me wanna die but in different ways. And weirdly enough, it’s the little stuff that actually elicits a more dramatic response. Like a paper cut or a stubbed toe.**♥ 2source record 1018 **So much is missed with MRIs. I had one at a hospital and they only saw a small amount. A surgeon respected it. Then a month later I started having much worse issues. Was referred to the Mayo Clinic, had a specialty MRI that was reviewed at with a group of specialists….it was fucking everywhere**♥ 3source record 1025 **Once they diagnosed my endo with a laparoscopic surgery, I never had any other scans. They did do a sonogram when I first went to the doctor for the pain (around 19 years old) but apparently endo does not show on most scans. Who knew….**♥ 2source record 1026 **similar situation! lost my ovary and tube because of the torsion and wait time for surgery. My first consultation at a clinic, I was told by the NP "Oh, cysts don't cause pain. Come back in 6 months for another ultrasound." My surgery wasn't as successful as yours as I had ablation as opposed to excision (didn't know and wasnt given other options). Congrats on your relief though..wowzers.**♥ 2source record 1031 **I had one too and although I have a period it is so incredibly light. I had my surgery about 10 years ago and some of the pain is coming back. 10 out of 10 would do it again. Even now the pain is One Aleve and I'm fine.**♥ 2source record 1036 **I scale it on a 9.2 and childbirth being 10/10**♥ 1source record 1054 **Yeppppp. My ruptured endometrioma made me think I was dying. Later found out that my ovaries are fused together. Fun times.**♥ 1source record 1055 **I just want god to bless the surgeon who did my hysterectomy. Life changing surgery.**♥ 1source record 1056 **Yups I had endo + fibroids no fun**♥ 1source record 1057 **The pain of Endometriosis and Adenomyosis is so bad that I just want to sleep until I die and it's over.**♥ 1source record 1065 **Getting my first lap next week. It’s diagnostic but my doctor was like “I’m 98% you have endo and that it’s profound.” 😞 So an excision will also be taking place if/when endo is found.**♥ 1source record 1067 **Absolutely. I once had kidney stones and was stuck at the er for hours because when they asked me what’s my pain level I said 7, so they thought there’s no way it could be kidney stones. Endo completely messed up my perception of pain.**♥ 1source record 1068 **First pain episode when I was 23\. Too scared to say anything but it was off the charts and not even close to normal cramps. Tubes tied at 27 and formal diagnosis. Spots zapped and carry on. Spent 20 yrs trying to get a hysterectomy. But what if some man wants a child? TUBES ARE GONE BRO. Man doctors🤷🏼‍♀️ Finally got it and they took everything including cervix. 2 hr surgery took 5 cleaning me up in there. No HRT and no return of pain. I'm good**♥ 1source record 1069 **I’m a man, and have had extremely painful kidney stones, take-your-breath-away sciatica, and some terribly painful traumatic injuries. But I believe that my wife’s experience with moderate endometriosis trumps anything I’ve experienced. I had enormous sympathy for anyone who lives with it, before I read reports of how debilitating bad it can get.**♥ 1source record 1071 **I reached the age of 35 before I was diagnosed. I didn't know any better and thought it was normal to feel pain like that and end up on the floor. I've since had a hysterectomy and omg life is 100% better**♥ 1source record 1072 **I have a coworker who has endo, and it's insane, she's literally just....so filled with pain on a regular basis from it that she didn't even realise that something was wrong with her gallbladder until it got so bad she went to the ER and found out it had to be removed**♥ 1source record 1073 **I’m so glad the IUD helped! I have stage IV and the IUD made it worse 😂🙄 can’t win**♥ 2source record 1188 **Adenomyosis and Endometriosis. Debilitating pain during periods (6-7 days every month). Regular painkillers don't do much. I couldn't stand up and lay down by myself without hubby's help. Hard to fully straighten up or walk around. Or do anything that put pressure on my lower stomach. So I had to stay laying down with a hot compress over my lower stomach all day. It hurt so much if I am constipated or if the bladder is full. It hurts even more to go to toilet to pee or poo. Caused severe IBS (toggle between constipation and diarrhea) like symptoms that starts a few days before period and lasts until it ends. Nauseous all day and cannot eat anything on most days. If I manage to eat, I get bloated like a balloon (stomach circumference increases by a 6-7 inches) on top of the already bloated lower stomach. Luckily, I only had it this bad for only for 1 and half years. Now I am uterus free (only solution for Adeno) and Endo free. The removed uterus was the size of 14 week gestation because it had diffuse Adeno inside the muscle. I apparently have high pain tolerance which I didn't realise. Surgery recovery was a breeze. I was walking around as soon as they removed the catheter and IV on the next morning. And on the 3rd day when I was discharged, I was so happy I went shopping on the way home. 😅 I didn't take the Oxy I was given and mostly had paracetamol couple of times per day. Taking pregabalin when needed was useful to mitigate nerve pain (pinching, electric current, fluttering..etc) deep in pelvis however.**♥ 2source record 1400 **Endometriosis and adenomyosis**♥ 2source record 1522 **Hands down endometriosis. I would bleed for weeks. Had to get blood transfusion. The cramps in my back and legs were terrible, always felt fatigue.**♥ 2source record 1543 **Endometriosis**♥ 1source record 1628 **Endometriosis and Migraine headaches**♥ 2source record 1689 **endometriosis**♥ 1source record 1715 **Endometriosis**♥ 1source record 1817 **Endometriosis and adenomyosis**♥ 1source record 1865 **Endometriosis**♥ 1source record 1924 **Endometriosis. Think chronic pelvic pain 3 weeks out of every four. For years.**♥ 1source record 2016 **Endometriosis. Hideous**♥ 1source record 2026 **Adenomyosis**♥ 1source record 2058 **Endometriosis**♥ 1source record 2070 **endometriosis**♥ 1source record 2080 **Endometriosis chronic pain that felt like someone stabbed knives into my ovaries and twisted them. 🙃**♥ 1source record 2083 **Adenoymyosis. During my period. I’ve never had pain that dropped me to my knees and cry out.**♥ 1source record 2120 **Endometriosis.**♥ 1source record 2147 **I have severe endometriosis and it is literally so awful. Like, my entire abdomen feels like my organs are being squeezed with rusty kitchen tongs – and those are STANDARD cramps for me. When it's really bad, it can hurt so much that I can't fall asleep, can't really walk normally, and I've passed out from the blood loss multiple times. And to top it all off, my periods are extremely irregular and often longer than the usual week-long period, so this actual torture can last for weeks (or even months) on end every single day. On the bright side, sometimes I get lucky and I don't have my period at all for months – right after I got diagnosed at 15, I didn't get my period for an entire year and then it just reappeared one day with a vengeance😭**♥ 1source record 2208 **One more vote for Endometriosis**♥ 1source record 2217 **Endometriosis I didn’t know I had it. No one ever said that having your period only every four months was not normal. And the pain was insufferable. But like all my friends complained about cramps during their period, I never expected they were experiencing a pain scale of 5 while I was experiencing a 10 and bleeding so severely that I had to changed six or more times a day. Clumps and clots. But no one ever said anything. And having sex was so painful, but no one ever said it wasn’t normal. I’d always heard sex was painful. I never enjoyed it. And it took fifteen years for my husband and I to go to the gynecologist to see why we never got pregnant. That’s when I was told I had endometrial cancer and so they did a hysterectomy and took any chance of having children. That was more painful than the endometrial pain.**♥ 1source record 2241 **Endometriosis**♥ 1source record 2264 **My endometriosis pain is equivalent in intensity to when I passed 2 big kidney stones. Except it happens once a month, guaranteed**♥ 1source record 2299 **Endometriosis and adenomyosis, hellllllll on earth. But hey, at least we understand male pattern baldness, that shit is tragic.**♥ 1source record 2324 **Endometriosis**♥ 1source record 2358 **endometriosis**♥ 1source record 2362 **Chronic - endometriosis. Absolute shite. Acute - quinsy. Scary and painful as fuck.**♥ 1source record 2367 **Adenomyosis**♥ 1source record 2395 **Worst to least 1\. Endometriosis flares & cyst ruptures 2\. stroke 3\. Shingles 4\. Colon spasms 5\. Kidney stones**♥ 1source record 2408 **Endometriosis, both physically and emotionally painful. Second, IBS.**♥ 1source record 2429 **Endometriosis and adenomyosis**♥ 1source record 2457 **Endometriosis gave me a cyst on my ovary the size of an orange. Then it exploded. It felt like a firework went off inside of me. I'm not sure if pregnancy can count as it's not exactly an illness but my daughter was transverse (sideways like a hammock untill a week before she was born. Every time she kicked I felt my muscles literally ripping apart.**♥ 1source record 2463 **Endometriosis, having my third surgery tomorrow**♥ 1source record 2501 **Ruptured endometrioma (I suppose endometriosis is technically the illness)**♥ 1source record 2503 **Endometriosis, but I also had the flu a few years ago and I was so sick I puked blood. Went tto the ER and I ripped open my intestines in four places. Thankfully it was small, but they were worried I’d keep puking and rip it more which would need surgery. Thank you IV zofran 🫡**♥ 1source record 2507 **Endometriosis**♥ 1source record 2508 **Endometriosis.**♥ 1source record 2570 **Endometriosis wrapped around my gallbladder, appendix, bowel, deep into my peritoneum, into my anus and vaginal canal (fistulas were made), and now it’s on my spinal nerves from my sacrum. Yeah endometriosis 100%**♥ 1source record 2582 **Endometriosis**♥ 1source record 2623 **Endometriosis**♥ 1source record 2642 **Endometriosis.**♥ 1source record 2672 **Endometriosis and osteoarthritis.**♥ 1source record 2690 **Pleuritis secondary to pneumonia. Every breath is like two sheets of sandpaper rubbing together with your nerves sandwiched between. Coughing and sneezing can make you black out. Back spasms related to herniated disc. A spasm could drop me to my knees in pain. But both of these pale into insignificance compared to endometriosis. At best a deep, throbbing cramp, at worse curled in a ball with uncontrollable tears and incapable of speaking, sobbing or screaming.**♥ 1source record 2691 **Endometriosis.**♥ 1source record 2725 **Endometriosis and depression**♥ 1source record 2746 **Uterine Fibroids/ endometriosis**♥ 1source record 2769 **stage IV adeno and endometriosis that was left untreated for almost a decade 🥰🥰**♥ 1source record 2775 **Endometriosis stage 4\. I was having menstrual bleeding FROM MY COLON. Yeah**♥ 2source record 2811 **Endometriosis and adenomyosis flare simultaneously. Morphine doesn't even scratch it. And the bleeding is just so messy**♥ 1source record 2822 **Endo, or busting a disc in my back and hitting a nerve. Not a great feeling. Much worse than a broken bone, feels like you're being cut in half at the waist. Pain is weird though. Like giving birth also hurts quite a lot, but we rarely put it on these lists. Does fucking hurt though. OHSS is pretty fucked too. Abdomen fills up with fluid virtually overnight. The feeling of suffocating as it pushes against your diaphragm is fucking scary. Hard to say. All those years of endo kind of break your pain scale.**♥ 1source record 2889 **Endometriosis**♥ 1source record 2898 **Endometrial cyst rupture - I lost consciousness.**♥ 1source record 2935 **I have adenomyosis and endometriosis and it is more painful than my three childbirths. However short term illness- my daughter picked up hand foot and mouth disease from her Daycare. She only had a fever, but I had a fever (nothing else ever gives me a fever, even Covid, the flu, etc..), plus I had horrible ulcers all up and down my throat everywhere. The air hurt my throat, water hurt my throat, laying down to go to bed at night was excruciating. I couldn’t eat or talk. Nothing helped except I went through two bottles of that numbing throat spray. This lasted for almost a week, and I wouldn’t wish this on my worst enemy. Every parent at Daycare had different symptoms by the way – one had ulcers all over his hand, which I didn’t get. But getting it in my throat was debilitating.**♥ 1source record 2993 **My gallbladder was failing because it wrapped around it and I was shitting blood. Fuck endo**♥ 1source record 2998 **Endometriosis. I also had an ovarian cyst rupture and the pain I felt from that was insane.**♥ 1source record 3001 **Endometriosis**♥ 1source record 3002 **Endometriosis. Get to deal with it my whole life pretty much.**♥ 1source record 3027 **Adenomyosis, chronic pain that is allegedly worse than some women’s childbirth experiences. It started as period cramps, that over time became very similar to contractions, surging over a period of hours and hours, pinching my sciatic nerve so I could not use my leg, produced so much lactic acid that my entire legs to felt eternally bruised even though nothing had happened to them, extreme nausea, and decentralized pain throughout my entire body. Not just during my period either, about 75% of the time! Yeeted my uterus a couple years ago and all is well 🤷‍♀️**♥ 1source record 3033 **Endometriosis**♥ 1source record 3101 **Severe Adenomyosis Child birth level cramps.**♥ 1source record 3142 **Chocolate cysts**♥ 1source record 3238 **Endometriosis(that pain I always thought was what other women felt). Ruptured ovarian cyst. Torsed fallopian tube. Luckily, not all at the same time. With the cyst , I was in a small west Texas ER that thought I was a drug seeker. So to prove I wasn’t, I had a catheter inserted for a clean catch. I don’t even recall the pain of them inserting the catheter bc of the pain I was experiencing throughout my entire pelvic area.**♥ 1source record 3250 **Endometrioisis. No cure, no helping treatment at the moment. And doctors don’t want to remove my uterus because ”im too young and I don’t have any children.” I’m 34 years and I don’t even want kids. It’s not the pain that hurts the most, it’s the emotional trauma and pain that comes when nobody believes you or understands what you are going thru, that makes this 10 times worst.**♥ 1source record 3270 **Uterine Adenomyosis**♥ 1source record 3305 **Severe endometriosis. Used to pass out with the pain. Literally breathtaking. Dislocating my ankle and breaking it in 3 places was nothing in comparison**♥ 1source record 3352 **I’ve had many. Endometriosis, mastitis, ulcerative colitis, migraine. Of these, it’s a draw between endometriosis and mastitis.**♥ 1source record 3446 **I have endometriosis and adenomyosis, resistant to medication. No treatments have worked, I'll be getting a hysterectomy in a couple years**♥ 1source record 3458 **Endometriosis and the cysts that rupture**♥ 1source record 3505 **stage 4 endo, ehlers-danlos syndrome, and degenerative disc disease are all kinda comparable to me. my endo left me bedbound for the first 2 days of my cycle before i got a surgery for it, my ehlers-danlos syndrome causes me to have trouble walking due to the pain in my hips and knees, and my disc disease causes my back to feel like it's gonna snap in half idk which one i'd pick out of the 3, just bc the endo pain was super intense but only lasted 2 days a month, but my EDS and DDD are chronic and affect me constantly 🤷‍♀️**♥ 1source record 3507 **Adenomyosis**♥ 1source record 3510 **Endometriosis. Dad had to carry me into the ER.**♥ 1source record 3525 **Endometriosis But worse temporary illness was Hand Foot and Mouth in my early 30s. FUUUCK that shit! And shingles in the middle of summer.**♥ 1source record 3528 **Endometriosis**♥ 1source record 3581 **Short term; Ruptured appendix. Long term; Endometriosis. I got appendicitis when I was 7\. In enough pain that it was causing me to vomit. Ended up with emergency surgery and my appendix exploded while the surgeon was removing it. Had to stay in hospital for 7 days. When I was 14, my periods were suddenly painful. Very painful. Painful enough that I thought my appendix had grown back and was going to explode again. My grandmother took me seriously. My (single) father thought I was exaggerating and that periods aren't that bad. But Grandma put him in his place and took me to a doctor. She pushed hard and advocated for me. Hell hath no fury like a British grandmother. I was able to get a diagnosis in 3 months, instead of the average 7 years because of my grandmother. But still, doctors didn't take my pain seriously. My father didn't take my pain seriously. I was told to take ibuprofen and paracetamol (tylenol) and just go to school. Despite the pain being bad enough that at times I couldn't breathe. Eventually I got a doctor who took my pain seriously. In my 30s. Now I have a script for high dosage anti-inflamatories and codeine, and have a double dosage birth control to control the periods. I've heard from other people with endo that it's more painful than kidney stones (I haven't had them, so can't compare). When my partner was in the hospital with kidney stones, I pointed out that that was what I went through monthly. He'd always been sympathetic, but after that experience, he went out of his way to do whatever he could to make me feel better. Like 3x a day back rubs, gifts of chocolate and other treats, cooking my favorite meals so I'd still eat, keeping track of my hygiene products so I wouldn't have to etc. Sometimes I wish that doctors would experience the pain of endo. Then I realize that I wouldn't wish this on anyone.**♥ 1source record 3610 **Endometriosis**♥ 1source record 3693 **Endometriosis knocks me off my feet every month**♥ 1source record 3782 **Endometriosis. I've had wisdom tooth pain, dry socket, and kidney stones. Nothing has ever come close to the pain i get from Endo. I didn't even KNOW I had kidney stones until I passed the stones. I thought I was just having a bad Endo flare-up**♥ 1source record 3862 **Endometriosis**♥ 1source record 3891 **Endometriosis is pretty gnarly.**♥ 1source record 3911 **Endometriosis. Worse than serious burns I’ve had or bones I’ve broken by FAR.**♥ 1source record 3982 **Good god, how do I even answer this? Endometriosis has given me a different way of thinking about pain than those I know who don’t have it. I grow kidney stones and have had renal failure but that’s acute compared to chronic pain. I have migraines and have tried to knock myself unconscious just to find relief from them. I had my nose broken and a few days after the surgery to fix it and my cheek bone I sneezed and everything went white, not black like I was out of it from other pain but blinding, white, hot pain. It faded and about ten minutes later I was functioning again. I don’t have the vocabulary to describe what it felt like. I couldn’t cry, I could barely breathe. But like I said, it faded quickly. Edit: I totally forgot about the ectopic pregnancy and miscarriage. 😆 How I didn’t die is still unknown as I should have based on what doctors know. I thought it was a bad endo flare so I just laid on the floor in the bathroom so I could pass out without falling and get tot eh toilet to puke. I had spent time as teenager also laying on the floor from endo pain so it made sense to me at the time. I remember so clearly thinking this was a real doozy and maybe I needed to head to the ER in between the puking and passing out but also that there’s nothing they will do for me so I might as well stay home. I didn’t think I could drive myself there anyway. When I saw my pelvic pain specialist later she was very comforting but also pointed out that I had described it as a different sort of episode than a usual flare so she wanted to do some imaging of the ovary…she was so calm that I didn’t get that she was worried.**♥ 1source record 4031 **Adenomyosis and Endometriosis.**♥ 1source record 4040 **Adenomyosis. Did you know sometimes your uterus can just decide to not stop bleeding for months?**♥ 1source record 4082 **Endometriosis. I have 5 days a month where I’m a normal person**♥ 1source record 4091 **Endometriosis.**♥ 1source record 4109 **Endometriosis or adenomyosis. Hard to say which one is fucking with me**♥ 1source record 4147 **This 100%...and there's no "had," as there is no cure and it never goes away. Caused an endometrioma which caused ovarian torsion with pain levels off the charts. Absolute hell I went through just trying to get care. Had to get a salpingo oophrectomy because of it thanks to the 8 month wait for surgery. The horrors persist, but so do I..heh**♥ 1source record 4247 **It's also emotionally and financially draining. I'm in my fifties now, and I had a total hysterectomy years ago, but this disease continues on. It blocked one ureter, permanently damaging one kidney, then did the same thing on the other side, effectively killing that kidney (that happened a couple of years AFTER my hysterectomy). I had that kidney removed and am now stuck with 30% kidney function. I never had heart problems before, but I do now. I just wish the medical community actually cared about this disease.**♥ 1source record 4248 **100000000% Endo is the worst pain I've ever experienced. About 7 years ago it turned into daily pain. Its such a BRUTAL condition. Not to mention all the other fun things that come with it. It took years for me to accept that I need a walking stick, let alone buy one. I finally got one at 22 years old. I'm 30 now. I know I need to get surgery, but I am so terrified. I know its been spreading for a while. Plus i can feel the adhesions, the sensation of my organs being tugged is uhhh skin crawling. Endometriosis has basically stolen my life and mobility from me ((Side note: I want one one of those fancy canes that has a sword inside ))**♥ 1source record 4249 **I was taking an ungodly amount of ibprofen, idk how im not in liver failure lol But the first few months after my hysterectomy I kept waiting for the pain to come back. It was like I had a hard time relaxing or doing things because I didn’t trust the pain was really gone. Sometimes id even get little phantom pains or maybe that was just me healing. I didn’t realize just how much the pain was actually affecting my life until it was gone and was like oh people really just live like this without all the pain? WTF**♥ 5source record 4266 **I'm scheduled for a hysterectomy in October after 23 years of dealing with endo. Your comment gives me hope that I may be in, at least, less pain after it's done and healed. Any tips that helped you while healing? My doc isn't sure if it'll be open or laparoscopic until she gets in there, so I'm taking all the advice I can get from anyone who's had an version! I'm already in menopause at least so the hot flashes won't be new.**♥ 1source record 4268 **I hope you get a long amount of time of relief!!! I have stage IV and I have only gotten a few months post surgery. But I have met women that were pain free for years! I was more confused when you said the hysterectomy helped with no endo. One month out makes sense**♥ 1source record 4360 **Yeah, me too. I am doing fantastic for the moment. There is inflammation still and I am bloated but pain free. As I understand most of my pain could have been from Adeno and enlarged uterus. I might be one of those silent endo people. Have you looked into trying a GLP for Endo? Also, NAC helps as well.**♥ 2source record 4361 **For real. The amount of time I could have spent not curled into a writhing ball of pain, suffering pmdd flu, anemic, etc etc etc. sigh. Hindsight, right?**♥ 1source record 4407 Archive: 154 index entries preserve 154 distinct source records · Every displayed synthesis count resolves to source-record IDs Ovarian cysts, torsion and fibroids105 index entriesCysts that burst and ovaries that twisted, several of them initially treated as a suspected appendix. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Ovarian cysts, torsion and fibroids Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Ovarian cysts, torsion and fibroids 105 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 884 **Appears when:** Ovarian cysts, torsion and fibroids **What the pattern means:** Almost every account here is sudden. Writers describe collapsing where they stood, vision going black, and being unable to make a sound — and a striking number describe being assessed for appendicitis first, because that is what it looked like. The torsion accounts are the most severe and the most time-critical: several end with the ovary lost. Two recurring details are unexpected: pain referred to the collarbone from internal bleeding, and the number of writers who were sent home to rest. **What commenters described:** Oh my god I wouldn’t wish a ruptured ovarian cyst on my worst enemy. 10/10 pain. I was walking home at night when it happened to me and had to fight my body into staying conscious. My vision completely blacked out, it was like my brain went “yeah we don’t need to see right now, just go to sleep”. I had to find my way home completely blind. The second I got through the front door I collapsed and screamed bloody murder. My parents called an ambulance and I was admitted to the ER immediately because they suspected appendicitis. Thankfully didn’t need surgery but I was hospitalized for 3 days. I started high school a week after I got out and still felt so sore. At least I got a pretty early PCOS diagnosis. **Limit:** Ruptures, torsions and fibroids are grouped together here because their writers describe them together; they are not the same event. Nothing in these records distinguishes one from appendicitis or from each other. What the replies added3 I had a cyst the broke and led to inner bleeding (not the correct translation but you get the point). Gallbladder attack was a walk in the park in comparison to that day. 😳 Reported failure♥ 2 Cyste wrapped around my ovary. Happened 8/10 times over a few years, extremely painfill. Eventually the cyst exploded or something and I have never been in so much pain. Thank god a neighbour heard me screaming, broke into the house and called an ambulance 🙏 Reported failure♥ 1 I’ve had all the things: gall stones, kidney stones, shingles outbreaks, tuberculosis, pneumonia, pleurisy, bone spurs in both hips, spina bifida, etc. etc. The most painful thing I’ve ever experienced is a torsed ovary. I had a very large (9lb) ovarian tumor that surrounded my left ovary and then, while I was playing with my dog, it twisted (torsed). I’ve never in my life felt pain like that. I couldn’t stand up straight and I couldn’t stop vomiting. I was on daily doses of vicodin at the time and they gave me another dose at the hospital. It did nothing. It was after the ER doc took films and brought in a Dilaudid pain pump that I started to think maybe it wasn’t food poisoning. Worst. Pain. Ever. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Usually it’s from a cyst on your ovary causing it to become lopsided and twist. It is the worst pain I have experienced by far. My entire abdominal wall involuntarily seized up and was rock hard. I threw up from how much it hurt. Unfortunately my mom didn’t believe me and kept me at home for like 13 hours before taking me to the hospital (was a minor at the time). Ended up losing that ovary. source record 4264♥ 2 Explicit limit or counterpoint it's a tie between a burst ovarian cyst and a lipschültz ulcer (these can be pretty brutal to look at, also genital warning for if you look up pics) source record 1842♥ 1 #### Source-record spotlights Most engaged source An ovarian cyst. My mom thought it was appendicitis and took me to the ER and they sent me home with no pain killers and told me to bed rest. Flat on my back for 3 days. source record 153♥ 231 Later-arriving source Ruptured ovarian cyst posted about 6 days after the source♥ 1 Zero-like source Ovarian "torsion". That's in inverted commas because I actually pulled my own ovary off through a combination of an inability to fold collagen properly (EDS), an already attached blood supply, a blood-filled cyst, an abdominal adhesion, and getting up awkwardly from wrapping Xmas presents. posted about 4.6 hours after the source #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 105 source records, the most common observable tactic structure is “Attach it to an existing routine” (4 records). This is a wording pattern, not a measured outcome. 105index entries 105distinct source records 20.6%of parent category 2.8%of the complete index 78top-level comments 27replies #### What commenters explicitly report 2explicitly reports a benefit 4explicitly reports a limit or failure 6asks a question 0says they intend to try it 93other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4**Create a default **3**Turn it into a game **3**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments105 preserved records · 105 of 105 source records accounted for **An ovarian cyst. My mom thought it was appendicitis and took me to the ER and they sent me home with no pain killers and told me to bed rest. Flat on my back for 3 days.**♥ 231source record 153 **I had a ovarian cyst rupture with internal bleeding into my abdomen. It felt like the pain I get when I have a vasovagal diarrhea episode, but it didn't pass and I knew something was wrong and I just laid on the floor not knowing I was bleeding. I remember thinking maybe I was just being dramatic, but I called for help, was admitted. Thankfully it stopped on its own and I didn't need surgery, but it felt off for 3 weeks while the blood reabsorbed into my body. But it got me out of hosting Thanksgiving that year so ya know, silver lining.**♥ 81source record 154 **Ugh, same here. I thought I was having a heart attack because I had pain in my collar bone from having so much blood in my torso and I was dizzy from blood loss. Getting the CT scan to figure out what was going on was excruciating because I had to put my arms above my head. I did end up in emergency surgery and I wasn’t even nervous because I just needed the problem to be over asap.**♥ 4source record 157 **Yes the collar bone pain!! When mine ruptured, I didn’t know what was happening so when I would lay down it took sooo much effort to get up because I couldn’t move my shoulders due to the excruciating pain. Screamed in the hospital when I finally went because I continued to bleed (before anyone knew what was wrong), and the blood would irritate my lungs/ribs. I couldn’t breathe, it felt like an elephant was stepping on my chest. Nurse told me it was probably gas pains. Had surgery to drain the blood and had to get a transfusion.**♥ 4source record 158 **Ovarian torsion. And I’ve had 2 kids, this was worse.**♥ 33source record 295 **Ovarian torsion. Mimics appendicitis. Worse than childbirth**♥ 9source record 363 **Ruptured ovarian cyst**♥ 3source record 462 **This and a fibroid the size of a grapefruit outgrowing its blood supply and dying while inside me while 20 weeks pregnant.**♥ 1source record 758 **Dude. I had a 9cm ovarian cyst for about two weeks before my mom found me on the floor of my apartment and took me to urgent care. The dude took one look at me and sent me to the ER in a wheelchair. Never felt anything like it before or since.**♥ 3source record 881 **Oh my god I wouldn’t wish a ruptured ovarian cyst on my worst enemy. 10/10 pain. I was walking home at night when it happened to me and had to fight my body into staying conscious. My vision completely blacked out, it was like my brain went “yeah we don’t need to see right now, just go to sleep”. I had to find my way home completely blind. The second I got through the front door I collapsed and screamed bloody murder. My parents called an ambulance and I was admitted to the ER immediately because they suspected appendicitis. Thankfully didn’t need surgery but I was hospitalized for 3 days. I started high school a week after I got out and still felt so sore. At least I got a pretty early PCOS diagnosis.**♥ 3source record 884 **Similarly, I experienced ovarian torsion from a cyst that (luckily) corrected itself and didn't need surgery. I seriously almost passed out from the pain. I called 911 for an ambulance, left my apartment because I didn't want them breaking down my door with my dog inside, and passed out in front of my door. Kinda passed out, I was kinda conscious when they showed up.**♥ 3source record 885 **I was 18 when I had a cyst burst. I was driving home and had to pull over in a sketchy neighborhood because the pain was literally blinding. I was alert, but my vision was going dark from the pain. I just locked the doors, closed my eyes, and let the waves of pain pass over me until I could move again.**♥ 2source record 918 **I had that happen when at a sibling's award ceremony in school. I was sweating so profusely that I laid on the bathroom floor of a high school! I had to be carried to the car and taken to the ER it was crazy and I barfed.**♥ 2source record 933 **I had one that was the size of a quarter when I was younger. Then in my late 20’s I had another one. It wasn’t big at first and I figured my doctor wouldn’t do anything about it. They watched it and it kept getting bigger and bigger. By the time it was 10 centimeters I couldn’t do anything. The only time I felt okay was laying down. I actually tried to get it to burst or tort so they would take it out sooner. My job at the time got ticked off at me for taking a week off. I remember my doctor canceled the pre surgery appointment five minutes before it was supposed to happen. I went ballistic. So I didn’t know much about what was going on. The surgery took an hour and a half because the cyst was on top of my ovary and was tangled with it. I remember coming to and being freezing cold. I didn’t pay much attention to the nurse because I was so cold. When I woke up the next day, I had three incisions instead of the two and went to the doctor and said “what happened to me?”. This was maybe 24 hours later and I hadn’t had any pain medication. She was shocked I was able to stand. I ended up taking the pain meds just to stop myself from trying to clean the house. I also had a calcaneal osteotomy and fell on my surgery foot, breaking my cast and putting my bare toes on the hot pavement. I screamed the f word and my neighbor yelled at me. That really hurt, too.**♥ 1source record 945 **Just came to comment this. The first time I had one rupture it absolutely felt like I’d been stabbed.**♥ 1source record 952 **I've had 2 of them in the last 5 years, for some reason it's only the right ovary doing this but damn they hurt so bad. They are brutal. 😭 Both times I went to urgent care, they said if pain persisted or got worse then go to ER, they did both times, they ended up doing a CT scan for both to figure it out. This 2nd one I got this year has been lingering, its the size of an egg & they won't do anything cuz it's not causing any problems. 🫩 (I'm 90% sure it's attached to the ovary or something so if it ruptures I will very likely lose that whole ovary due to it, the ER has the CT & ultrasound so my other doctors had only notes & had to ask for imaging. I only know its size, not where it's located in relation to organs. I can only hope it goes away & doesn't rupture. 😅)**♥ 1source record 965 **Been there; done that. They did give me prescription strength Tylenol before they sent me home😡. Wound up having to have it surgically removed; the doctor said it was literally the size of a football (22 in).**♥ 1source record 969 **Oh yeah this was nasty!! I had them on both sides and they were twisting so emergency surgery it was. Swear it took my longer to recover from that than it did my emergency csection 😮‍💨😅**♥ 1source record 971 **Came here to say this one. I've had 4 rupture in the past 13 years and it's awful every time but the second was the worst. I was 16 and in so much pain I actually thought I was about to end up like one of those "I didn't know I was pregnant until I gave birth" women. Went to the ER, they did some scans, gave me morphine, and scheduled me for an outpatient ultrasound the next day. The ultrasound tech found a pocket of free fluid in my abdomen big enough to estimate the cyst at 8cm (about the size of a baseball.) She said if they'd caught it before it ruptured it would've warranted emergency surgery to remove it.**♥ 1source record 974 **I \*think\* I had an ovarian cyst rupture. I had just got done with sex with my husband and was all of a sudden keeled over by horrific pain. I knew immediately that something was wrong and that we would have to go to get care. Thought maybe my IUD had impacted on the side of my uterus. I was almost passing out from the pain in the car, and my husband carried me into urgent care because I couldn't walk. Urgent care almost denied me looking at me because they thought I should go to ER. They didn't deny me though, and they couldn't tell me what was wrong because they didn't have an ultrasound, only x-ray. All that they could tell me was that it didn't seem like my IUD was out of place. I felt mostly better by the end of being seen, and I felt stupid for even going since they couldn't tell me that anything was wrong. I was also mad because my insurance sucked and I had to pay for the doc AND the student doc and the one x-ray image was $500.**♥ 1source record 975 **Yeeterus wins the internet for the day. I have a fibroid the size of MY HEAD. Hysterectomy is scheduled for October.**♥ 3source record 1033 **God it’s brutal and out of nowhere**♥ 3source record 1204 **Definitely the worst pain I've ever experienced, it made me writhe and moan and it took doctors a long time to figure it out.**♥ 1source record 1245 **Worst pain I’ve ever had in my life!**♥ 1source record 1255 **Oh yes, terrible! Haven’t had children but the pain was unbearable**♥ 1source record 1368 **Tied between the consistent ruptured ovarian cysts I used to get every other month and Fibromyalgia.**♥ 2source record 1432 **Raptured ovarie for me... Because of the cyst. I went septic, but I had some "better and more important things to do" so I haven't got to the emergency right away. Ended up in ICU for weeks... And of course without right ovarie and falopian tube.**♥ 1source record 1444 **I had a cyst the broke and led to inner bleeding (not the correct translation but you get the point). Gallbladder attack was a walk in the park in comparison to that day. 😳**♥ 2source record 1475 **Ovarian cysts. Similar to childbirth.**♥ 2source record 1487 **fibroids. every month my body would try to expel them, but since it couldn’t it just felt like someone was stabbing me until i blacked out. my doctor had to prescribe me short term painkillers every month that are for people who just had surgery until i could have my uterus out for something unrelated. being told to just take tylenol and power through it my entire life made me lose so much time. days i would be bed ridden, missing holidays, missing work, missing school. women’s pain is not taken seriously enough.**♥ 2source record 1489 **Ovary torsion**♥ 2source record 1496 **Ovarian cysts**♥ 2source record 1514 **Ruptured ovarian cyst**♥ 2source record 1568 **I had a 6" ovarian tumor on my left ovary that caused the ovary to twist and cut off its own blood supply. I had to have the ovary and fallopian tube removed (as well as the tumor, obviously.)**♥ 1source record 1615 **Ovarian cyst**♥ 2source record 1668 **Ovarian cyst rupture. Worse than kidney stone. Worse than unmediated labor.**♥ 1source record 1742 **Abcessed ovary**♥ 1source record 1794 **Uterine fibroids. Non stop vaginal bleeding for 2 years straight, until I got a hysterectomy.**♥ 1source record 1830 **it's a tie between a burst ovarian cyst and a lipschültz ulcer (these can be pretty brutal to look at, also genital warning for if you look up pics)**♥ 1source record 1842 **Physically painful? Ovarian cysts bursting, beat out my my appendix by a long shot. I was maybe 100 pounds soaking wet when I had my last one and the first bag of IV morphine they gave me didn't even touch it. Mentally? My dysphoria before getting top surgery. I thought about just hacking them off with the nearest sharp object so many times**♥ 1source record 1908 **Ovarian cyst bursting**♥ 1source record 1922 **Not an illness but a ruptured ovary**♥ 1source record 2019 **Cyste wrapped around my ovary. Happened 8/10 times over a few years, extremely painfill. Eventually the cyst exploded or something and I have never been in so much pain. Thank god a neighbour heard me screaming, broke into the house and called an ambulance 🙏**♥ 1source record 2022 **Ovarian torsion.**♥ 2source record 2046 **OHSS - Ovarian hyper stimulation syndrome**♥ 1source record 2066 **Ovarian torsion while battling fibroids from endometriosis.**♥ 1source record 2104 **Ovarian torsion. 3 times…**♥ 1source record 2197 **Ovarian cysts or an exposed tooth root.**♥ 1source record 2200 **Ovarian torsion. I was left to sit for 17 hours in the worst pain I’ve ever felt because the OBGYN thought I was faking the sobbing and throwing up.**♥ 1source record 2292 **Ovarian torsion. Was not listened to for 3 days. I couldn’t stand. I couldn’t lay down. Everything position hurt so bad. I couldn’t eat. Water made me vomit My doc ran a couple tests which came back normal and told me to take laxatives and rest. I reported her I was so pissed at how I was treated. When I finally returned to the er they took one look at me and admitted me immediately. I didn’t even have to sit in the waiting room**♥ 1source record 2403 **I had an ovarian cyst rupture and it was so painful I thought my appendix was bursting. I was in the hospital in January for heart issues that were caused by a new medication, and I went into a hypertensive crisis. I got a thunderclap headache that was so severe and so sudden, I couldn’t turn my head, and I thought I was having a brain aneurysm and was about to die. That was the one and only time o genuinely felt like I was close to death. Fun times🙃**♥ 1source record 2415 **Ovarian cyst rupture**♥ 1source record 2473 **Ovarian torsion**♥ 1source record 2558 **Hemorrhagic ovarian cyst**♥ 1source record 2581 **My recent ovarian torsion surgery. The torsion was definitely more painful than the surgery, but 3 rounds of Dilaudid barely touched it & it was hell.**♥ 1source record 2591 **my ovarian cysts rupturing**♥ 1source record 2645 **I had what we believe was an ovarian cyst rupture and my god my stomach felt like it was in knots and I could hardly breathe and my abdomen was sore to the touch. They initially thought my appendix burst but after some tests it was ruled out. I still don’t know for sure but I’ve pretty much just gone with the ovarian cyst theory. I had to be on fentanyl to help ease the pain even slightly**♥ 1source record 2653 **17cm ovarian cyst with another ovarian cyst that caused my ovary to die due to torsion.**♥ 1source record 2686 **Ovarian torsion initially misdiagnosed as kidney stones. I was trying to instruct my mother on my last wishes/funeral/burial while dilaudid was being pumped into me (which just BARELY touched the pain) because I was sure I was dying. Was told I was dramatic by the nurses, that “kidney stones are painful but not uncommon.” Yeah, turns out I had an organ dying inside of me. Thank god for the OBGYN on call who finally came in and insisted we go to the OR for exploratory surgery - she was sure it was torsion and she was right. She managed to save my ovary.**♥ 1source record 2704 **Necrotic fibroids**♥ 1source record 2719 **Ruptured ovarian cyst**♥ 1source record 2804 **Fibroids. My tummy got the the point that it was big, and a lot of people thought I was pregnant. I never had peace untill surgery was done.**♥ 1source record 2816 **Ovarian Torsion. I had two children, induction, no epidural, and I’d rather do that than have OT again. I was 14, they left me have pics from during surgery! I’m pretty sure it was in a medical journal too! 🤠**♥ 1source record 2885 **Ovarian cysts rupturing during an endometriosis flareup🙃**♥ 1source record 2938 **Ovarian cyst ruptured. I didn't know what it was at the time though. Horrific pain. Didn't want to disrupt the weekend plans so I soldiered on, dosed up on double doses of period pain meds, went on the London underground and every bump and jolt was like knives. Can't remember what concert we saw (it was a long time ago, late 80s) but about a week later at a routine exam my GP felt something not right & referred me for a scan which 2 days later, showed the aftermath! Apparently I could have died...😳**♥ 1source record 2940 **Ovarian Cyst Rupture, or Ear Infections. The cyst after the first day mainly only hurt a ton if I moved but was pretty mild if I laid still. Meaning I could get pretty okay sleep. The ear infection was just relentless and didn’t stop hurting for days and kept me awake for multiple nights with only bare minimum sleep.**♥ 1source record 2961 **Ruptured 18cm ovarian cyst, kidney stones and childbirth.**♥ 1source record 3073 **Bursting ovarian cysts**♥ 1source record 3129 **Ovarian torsion**♥ 1source record 3164 **Multiple large ovarian cysts that led to me having to get one of my ovaries removed. Thankfully haven’t had any on the remaining ovary since then.**♥ 1source record 3168 **Ovarian torsion**♥ 1source record 3213 **When i was 15, my ovaries decided to do the tango with some of my other insides. Leading to me going to the e.r. on Christmas day, surgery the next day and a hospital stay past new years due to a massive infection they also found. Also, my stepdad was out in the boat (navy) and they wouldn't let him come back because i was only his stepdaughter. My mom wrote a letter to the president, Clinton i think, that lead to my stepdad being called in to the commanders office for a little conversation. Also, my mom got a letter back from the president about it. So, yeah. One health scare led to a bit of drama lol.**♥ 1source record 3224 **Ovarian cysts caused by birth control. They regularly ruptured, and I didn't have insurance, so just had to tough it out. It usually happened while I was at work as a 21-25 yr old. They stopped when I stopped taking my birth control.**♥ 1source record 3253 **Ovarian cysts & migraines, those are painful as hell. Especially since I've had one connected to my ovary since February that's the size of an egg that they won't do anything about because "well it's not doing anything" 🫩 brother if this ovarian cyst ruptured I'm 90% sure it's gonna take my whole right ovary with it. Had 2 ovarian cysts I thought were appendicitis, nope it's just ovarian cysts either about to rupture or that are infected 🫩 (it hasn't been infected since Feb, it's just lingering around cuz it can at this point) That or neuropathy & atrophied muscles cuz I laid in bed for nearly 2 months not eating/drinking well without getting up much other than bathroom & food because I was sick 2 times in that time which zapped my energy. 😅 my muscles ache constantly rn cuz i haven't figured out how to get back the muscles yet**♥ 1source record 3265 **fibroid**♥ 1source record 3315 **Ovarian Torsion**♥ 1source record 3325 **Ovarian cysts that burst**♥ 1source record 3331 **Ovarian cyst that burst**♥ 1source record 3334 **Ovarian "torsion". That's in inverted commas because I actually pulled my own ovary off through a combination of an inability to fold collagen properly (EDS), an already attached blood supply, a blood-filled cyst, an abdominal adhesion, and getting up awkwardly from wrapping Xmas presents.**♥ 0source record 3380 **Leaking 10cm ovarian cyst. I passed out repeatedly from the pain over about eight hours before it relented enough that I could drive to the ER.**♥ 1source record 3423 **Ovarian cyst rupture**♥ 1source record 3444 **An ovarian cyst that burst.**♥ 1source record 3448 **I’ve had all the things: gall stones, kidney stones, shingles outbreaks, tuberculosis, pneumonia, pleurisy, bone spurs in both hips, spina bifida, etc. etc. The most painful thing I’ve ever experienced is a torsed ovary. I had a very large (9lb) ovarian tumor that surrounded my left ovary and then, while I was playing with my dog, it twisted (torsed). I’ve never in my life felt pain like that. I couldn’t stand up straight and I couldn’t stop vomiting. I was on daily doses of vicodin at the time and they gave me another dose at the hospital. It did nothing. It was after the ER doc took films and brought in a Dilaudid pain pump that I started to think maybe it wasn’t food poisoning. Worst. Pain. Ever.**♥ 1source record 3468 **Ruptured ovarian cyst when I was thirteen. It was like an ice pick was stuck there. It hit in the middle of the night and my mother called her gynecologist and woke him up. She was in a panic, but he was very calm, told her to give me extra strength Tylenol and that if it didn't help to go to the ER, but that he was pretty sure it would work. It did. I actually fell back to sleep and was only a little sore in the morning, probably from muscles being tense. I had a sonogram and he pointed out the spot where he said the cyst had ruptured, said it was very common and generally not dangerous. He was a very nice older gentleman, and I wasn't even nervous about him being my first gynecologist.**♥ 1source record 3533 **Infection wise? Strep throat 😅 Condition wise? 6.8cm ovarian cyst that pressed on my ureter and squished my pelvic nerves. Backed urine into my kidneys and despite narcotics and wayyyy too much Advil (gave myself duodenitis and pancreatitis) I was still in so much pain and unable to go to the bathroom. Well worth the $3500 surgery to remove**♥ 1source record 3590 **A torsed ovarian cyst that required emergency surgery**♥ 1source record 3650 **Ovarian cyst rapture**♥ 1source record 3651 **Cyst on my ovary**♥ 1source record 3694 **Ovarian cyst burat by a long mile Broken tooth The one I'll ess that made me think I was actually about to die was when I got Giardia from raw milk in high school. I was laying on the couch home alone (no insurance, we had no idea what illness us kids had until the goat died and got a free necropsy), and was too weak to lift a cup of water. I thought, oh this is how I die, and passed out. Woke up to my mom washing me in the tub because she came home and I was covered in my own barf**♥ 1source record 3717 **Ovarian cyst that burst! I went to the ER because I thought my appendix exploded**♥ 1source record 3723 **Ovarian torsion**♥ 1source record 3754 **Ovarian cysts that burst.**♥ 1source record 3775 **Ovarian cyst torsion**♥ 1source record 3841 **Ovarian Cyst rupture and Endometriosis.**♥ 1source record 3876 **Ovarian torsion**♥ 1source record 3905 **Fibroids and pre-cancer in my uterus. Hysterectomy fixed it but it took years and literally disabled me.**♥ 1source record 3966 **Ovarian torsion ✨**♥ 1source record 3985 **Cyst torsion**♥ 1source record 3993 **Ovarian cyst**♥ 1source record 4132 **Ovarian torsion. Bulldozed right over my years of pain from endometriosis, made my knee dislocations feel like a walk in the park. My fiancée rushed me to the emergency room when I started screaming and getting sick from the pain. We sat in the waiting room for 2 hours, with me screaming, vomiting, and passing out twice. They finally got me back, and within an hour they told me they were going to do emergency surgery because my appendix looked inflamed, and with my extensive medical history, they wanted to get ahead of the game. While under, my surgeon took out my (slightly inflamed) appendix, then started looking around a bit… my right ovary was twisted and necrotic :’) if he hadn’t trusted his gut I would have gone septic by the time I woke up from my surgery. He immediately called in an OB, but there was no saving it. They think the ovary was affecting the surrounding organs I guess? Only 2 years after my hysterectomy, so my other ovary has been working overtime ever since 😅😅**♥ 1source record 4139 **Mine didn't rupture badly, it just leaked slowly. It was very painful, but at least I didn't need a surgery, just like you. It also wasn't big enough to need a surgery (it was 5,5 cm, so it was close, but luckily not quite big enough), so I only needed contraceptives to treat the cyst.**♥ 1source record 4187 **Damn this could have been me. I felt something was wrong, excused myself from the movie we were watching, walked into the bathroom and blacked out. I remember lying on the floor in the worst pain I'd ever felt, wanting to tell my friend to call an ambulance but I couldn't speak. Eventually the pain subsided enough for me to stand up, throw up again, wash my face and walk to the bed. I couldn't express that I thought I was dying, and since the pain was now a manageable 8/10 I figured I'd survive it. And I did! Only realised many years later what it must have been, and thankfully only had similar pains twice after, both only about 7/10\. But that feeling of lying on the tiles, wondering why I'm dying and not being able to make a sound, then feeling embarrassed about it since I could stand up... probably fixed my personality on always being aware I'm alone and not trusting anyone will help me ever. Which sounds dramatic but there it is.**♥ 1source record 4191 **I was in the fetal position on the bathroom floor writhing and moaning - so I totally feel ya. Once I got to the hospital I started vomiting from the pain so they rushed me back. They actually figured it out quick and rushed me back for emergency surgery to take out the traitorous ovary.**♥ 1source record 4261 **Usually it’s from a cyst on your ovary causing it to become lopsided and twist. It is the worst pain I have experienced by far. My entire abdominal wall involuntarily seized up and was rock hard. I threw up from how much it hurt. Unfortunately my mom didn’t believe me and kept me at home for like 13 hours before taking me to the hospital (was a minor at the time). Ended up losing that ovary.**♥ 2source record 4264 **Respectfully, wth is wrong with your Mom?’ You poor thing, enduring it for that long. I feel so bad for you. I lost my ovary too.**♥ 1source record 4404 Archive: 105 index entries preserve 105 distinct source records · Every displayed synthesis count resolves to source-record IDs Periods, cramps and PMDD25 index entriesPeriod pain nominated on its own, with no diagnosis attached to it. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Periods, cramps and PMDD Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Periods, cramps and PMDD 25 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 310 **Appears when:** Periods, cramps and PMDD **What the pattern means:** Period pain nominated on its own, with no diagnosis attached — and the group where the thread most visibly argues with itself. Writers describe passing out, vomiting and losing days every month; replies underneath insist that this is not normal and press for investigation, while other writers say they assumed for years that everyone felt this. Hormonal treatment is the most common turning point named, and PMDD records describe losing half of every month rather than a peak of pain. **What commenters described:** Period cramps that were so bad, they made me unconscious. **Limit:** By definition these writers have no diagnosis, so the group cannot say what any of them actually had — several replies inside it suspect endometriosis or adenomyosis. Contraceptives and devices named here are individual reports, not recommendations, and nothing here tells anyone whether their own period pain is normal. What replies pushed back on2 I’m so glad the IUD helped! I have stage IV and the IUD made it worse 😂🙄 can’t win Pushback♥ 2 Yep. Took me forever to realize what it actually was. Any "remedy" I try either doesn't work at all, or will work for a while before the symptoms creep back in. Getting an IUD has been the longest source of relief so far, but symptoms still came back after about a year. Pushback♥ 2 #### Where commenters report limits Explicit limit or counterpoint Yep. Took me forever to realize what it actually was. Any "remedy" I try either doesn't work at all, or will work for a while before the symptoms creep back in. Getting an IUD has been the longest source of relief so far, but symptoms still came back after about a year. source record 1211♥ 2 Explicit limit or counterpoint Cramps. Rarely It’s all consuming, withering in pain kind, delirious but apparently not enough to pass out, unfortunately. I beg my mom to hit me in the head with a baseball bat to knock me out to no avail. Gotta suffer while I wait for the two types of extra strength pain meds to kick in. This or extremely sharp gut pains from lactose intolerance- always happens like a day later after I eat dairy. So strange. source record 2443♥ 1 #### Source-record spotlights Most engaged source Period cramps that were so bad, they made me unconscious. source record 310♥ 104 Later-arriving source PMDD - not fun wanting to unalive yourself every month. posted about 24.0 hours after the source♥ 1 Low-like source It's a tie between horrible periods (I have fibroids, have had two surgeries already), migraines, and long covid. Long Covid made me "allergic" to heat, the sun, movement, etc. it was truly torture until I found meds that help. posted about 3.6 hours after the source♥ 1 #### What the counts show The exact phrase “period cramps that” recurs across 2 of the 25 source records in Periods, cramps and PMDD; the complete archive stays available below. 25index entries 25distinct source records 4.9%of parent category 0.7%of the complete index 13top-level comments 12replies #### What commenters explicitly report 2explicitly reports a benefit 2explicitly reports a limit or failure 1asks a question 0says they intend to try it 20other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments25 preserved records · 25 of 25 source records accounted for **I can’t do PMDD anymore. I’m tired of only having 2 good weeks a month. It is sacrificing half my life**♥ 34source record 304 **I went on birth control for this and it changed my life. Before pills, I would be curled up in fetal position, waiting for my ibuprofen to kick in.**♥ 4source record 305 **Period cramps that were so bad, they made me unconscious.**♥ 104source record 310 **Holy shit. The worst I’ve had woke me up in the middle of the night and made me vomit. I can’t fathom getting incapacitated by them.**♥ 30source record 311 **Ugh, I’ve been there, too. I used to be completely out of commission for at least one day every three weeks, until I got an IUD. It sucked**♥ 13source record 312 **I had a hysterectomy last week and it was the best thing that’s ever happened to me. I’ve passed out and puked and lost days upon days of my life to that stupid organ. I’m not going to miss it.**♥ 3source record 1181 **Yeah, I’m 40 and I have an IUD and it’s mostly better now. If it becomes an issue again, I’ll be removing all the offending organs lol**♥ 3source record 1187 **I used to hurl and dry heave from the pain. Dey heaving for hours with cramps had me praying for death.**♥ 2source record 1199 **Same, awful pain when I was a kid. Once I asked the p.e teacher if I could sit out, she punched me in the back as I was walking away. That’s going back a bit… hopefully they are more sympathetic now😔**♥ 2source record 1205 **I used to have to sleep in the bathroom floor so I was closer to the toilet to vomit.**♥ 2source record 1209 **Yep. Took me forever to realize what it actually was. Any "remedy" I try either doesn't work at all, or will work for a while before the symptoms creep back in. Getting an IUD has been the longest source of relief so far, but symptoms still came back after about a year.**♥ 2source record 1211 **I was the same. Also passed out from the pain. Thank goodness for birth control!**♥ 2source record 1239 **Yeah, the first day of my cycle would have me so nauseous. I needed to be near a constant source of fresh air because normal smells would bother me so much. And the cramps were out of control. I had fibroids.**♥ 1source record 1270 **if it counts, SEVERE dysmenorrhoea**♥ 2source record 1404 **Technically not an illness(but honestly it should be), but menstrual cramps so bad I’ve had to go to the ER**♥ 2source record 1578 **so far, a decidual cast. one almost the size of my palm. unimaginable pain for 2 whole days, was prescribed essentially ibuprofen and sent home. shaking, crying, and sweating all at once while not even being able to think or move**♥ 2source record 1594 **Period cramps that woke me up in the middle of the night and made me vomit. It took a good 20 minutes for the ibuprofen to kick in.**♥ 1source record 1620 **It's a tie between horrible periods (I have fibroids, have had two surgeries already), migraines, and long covid. Long Covid made me "allergic" to heat, the sun, movement, etc. it was truly torture until I found meds that help.**♥ 1source record 2017 **Cramps. Rarely It’s all consuming, withering in pain kind, delirious but apparently not enough to pass out, unfortunately. I beg my mom to hit me in the head with a baseball bat to knock me out to no avail. Gotta suffer while I wait for the two types of extra strength pain meds to kick in. This or extremely sharp gut pains from lactose intolerance- always happens like a day later after I eat dairy. So strange.**♥ 1source record 2443 **Living with PCOS, every single period is way too painful and I lose way too much blood and energy**♥ 1source record 2451 **Period pain (idk if endo but it’s most likely genetic). One of two things to put me in the hospital. The second was because I fell off a stage, hit my head, passed out, and bit my top lip open. Much less painful**♥ 1source record 2978 **PMDD - not fun wanting to unalive yourself every month.**♥ 1source record 2994 **When I was 17 I was in so much pain from slipped disks that I could barely walk, sometimes couldn't move without excruciating pain. I often experience attacks of peripheral neuropathy. It feels like someone pouring boiling hot oil on my legs. It's agony. But I honestly think that the worst pain I've experienced was period pain when I was a teenager. It used to have me curled up in a ball, sobbing, sometimes vomiting. It was a very different kind of pain to the other two. I live with chronic pain on a daily basis now. I'm on stupid high medication for it. But I still sometimes get breakthrough pain with my periods. Come on menopause already!**♥ 1source record 3757 **not an illness but a decidual cast is the most painful thing I've ever experienced and I don't think anything painful I experience in the future can top the pain I felt that day**♥ 1source record 3918 **told I was too young, been taking desogestrel since I was 14 ish after 3 years of begging for something to be done other than giving me painkillers that didn't scratch the surface. I've definitely considered it but I have no idea how I'd even go about being tested for either of those now**♥ 1source record 4355 Archive: 25 index entries preserve 25 distinct source records · Every displayed synthesis count resolves to source-record IDs Childbirth, caesareans and what came after48 index entriesGiven as an answer by writers who mostly note in the same breath that it is not an illness. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Childbirth, caesareans and what came after Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Childbirth, caesareans and what came after 48 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 4 **Appears when:** Childbirth, caesareans and what came after **What the pattern means:** Given as an answer by writers who mostly note in the same breath that it is not an illness, and the reference point the rest of the thread keeps reaching for. The accounts themselves are less about the peak than about the conditions: a failed epidural, an induction, hours without food, a cord prolapse. The group also holds what came afterwards — mastitis, described with unusual specificity, blood clots, HELLP syndrome and infected incisions — and several writers rank those above the birth. **What commenters described:** These women are brave. I did it, got to eight cm before I was begging for the epidural. It fucking \*hurts\* Like "yes please shove a needle into my spine if it'll stop this agony" hurts. And I didn't have a hard birth. Thought I had a high pain tolerance, can sit and be tattooed for hours, lived with endo my whole adult life, hockey goalkeeper who happily gets brutalized every week... But no. Childbirth humbled the fuck out of me. Gimme all the drugs. **Limit:** Roughly a third of this group is about complications rather than labour, so it is not a description of childbirth in general. Procedures and remedies described here are what individual people say was done or advised in their case, and nothing here is antenatal guidance. What the replies added3 Eating watermelon? They allowed you to eat? That’s honestly mindblowing 🤯. For my labor/delivery… I checked into the hospital for my routine normal run-of-the-mill induction on a Monday morning at 6am. I was immediately listed as NPO except for water and that restriction was held from the moment I got there, checked in, and was given the first pill of misoprostol in my cheek until I had the baby 42 hours later 😭. Apparently it’s so that if anything goes wrong and you need a c-section or emergency surgery where you’ll have to be under anesthesia, you won’t aspirate from having food in your stomach when they intubate you. But my labor was totally normal and low-risk so I was at the lowest possible risk of needing any type of c-section or interventional care (I’d had two previous totally normal pregnancies and labor/deliveries and this pregnancy had been entirely normal and boring as well lol). Around hour 38, shit was getting really really real and I still hadn’t gotten my epidural yet and I’d been having regular contractions on and off (depending on how high they had the pitocin flow- genuinely FUCK pitocin and the unnaturally horrific contractions it causes 😭) but I hadn’t eaten in 50hrs by that point. I had been told I couldn’t eat anything starting 12hrs before my check in time… so I checked in at 6am on Monday morning and had had to stop eating or drinking anything but water at 6pm the night before… so by the time I was 38hrs into my labor and things were getting really bad, it had been 50hrs since I’d eaten ANYTHING 😩. I was so drained. I hadn’t slept since we (my husband and I) woke up Monday morning… so I’d been awake for 38hrs straight, was in immense pain from hours and hours and hours of those evil pitocin contractions, hadn’t been allowed to eat the entire time, and was legitimately feeling so weak and tapped out. I was so exhausted, drained, pretty much useless physically. And I still had to do the hardest part of the whole process (which didn’t happen for another 4 hours) with my gas tank on E… running on literal fumes 😩. It was 8pm on a Tuesday night and things were pretty quiet outside of the room. By that point I was so exhausted, cranky, and honestly just completely and utterly fed up. And the reason wasn’t even really because of the pain or the miserable labor process in general- it was mostly because of the fact that I was just absolutely RAVENOUS, and had been throughout the entire 38hrs that I’d been in labor so far. I was so damn hungry and weak that I essentially broke, and begged my husband to find me some food. Literally ANY food. I would have eaten a half eaten cheeseburger out of the garbage at that point- I’m so serious too 😅. He snuck out to the sandwich cart and stole me 4 grape uncrustables and two apple juices because that’s all that was left on the cart. When he came back in to the room and pulled the loot out of his pockets I legit ugly cried from happiness and relief lol. Then I wolfed all four uncrustables down in like 2 minutes flat, washed them down with both apple juices, and within about 30 minutes I felt WORLDS better. Like… that food- albeit not the healthiest meal in the world- was probably the most instrumental thing in getting me through to the end, aside from the epidural I eventually finally got. That gave me the energy I needed to finally push our son into this world four more hours later. I understand I technically took a “risk”, but tbh… for low risk pregnancies, we should be allowed to fucking eat at least a little bit. Literally STARVING a woman in labor for DAYS is straight up cruelty and it makes the incredibly physically grueling process her body is going through a zillion times harder on her than it needs to be. Honest question- was your care team actually okay with you eating the watermelon/eating in general, or did you have to sneak it behind their backs? If they were cool with it- how did you manage to get them on board with you not having the NPO restriction? Regardless, I’m happy you were able to nourish your body during your labor/delivery. ♥️ Reported failure♥ 1 Mastitis. Infection of the milk duct. The fever is intense. I hit 41⁰c. Your legs cramp so bad you can hardly walk. The pain starts at your lower back, goes down your thighs then hits your calves. The headache is even worse. Then there's the breast. You can literally see a bright red triangle. Feed the baby from that side first, they tell you. Every time. The agony is indescribeable. Like its mouth is made of broken glass. And if you don't work the clots out, it doesn't heal. How do you work the clots out? You get in the shower. Get a hair comb. Run the comb through a bar of soap. And comb your literal flesh, from chest to nipple. Five times a day. The hottest water you can manage to help the milk flow. I got mastitis four times total Reported failure♥ 1 My personal rating of pain: 1#- birth of my first child--- 26 hours of labour until I caved and had an epidural. 2#- a gout attack in my wrist. Holy smokes! Huge gap in pain here 3#- unmedicated labour and birth of my second kiddo 4#- Gallbladder attack 5#- migraine 6#- broken ankle Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Migraines, before I got pregnant. After that, it was the sudden onset of HELLP syndrome. 8 hours of debilitating mid-section pain, never going away only getting worse. Everything between ribs and hips, excluding the uterus thankfully, felt as if it was packed with stones. I couldn't take a single deep breath in order to get some sort of "muscle reset", some sort of break. Nothing. Too many doses of morphine with little to no effect. Hooked on blood pressure medication. People say they dislike the magnesium you get, but to me it was such a nice muscle relief for 5 minutes, albeit did nothing for the pain. Couldn't stay still, couldn't move, couldn't find a single position that felt ok. Didn't even mind getting the catheter. All good at the morning tests, ready to be discharged, then liver failure by lunch. But yeah, let's instead fund more "studies" to find out if women with endometriosis are more attractive or not 🙃. source record 4013♥ 1 #### Source-record spotlights Most engaged source These women are brave. I did it, got to eight cm before I was begging for the epidural. It fucking \*hurts\* Like "yes please shove a needle into my spine if it'll stop this agony" hurts. And I didn't have a hard birth. Thought I had a high pain tolerance, can sit and be tattooed for hours, lived with endo my whole adult life, hockey goalkeeper who happily gets brutalized every week... But no. Childbirth humbled the fuck out of me. Gimme all the drugs. source record 4♥ 15 Later-arriving source Children. And birthing those children. posted about 24.9 hours after the source♥ 1 Zero-like source Pregnancy - besides the childbirth there was gas pains, round ligament pain, constant heartburn, back pain, nausea, etc. posted about 2.1 hours after the source #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 48 source records, the most common observable tactic structure is “Attach it to an existing routine” (6 records). This is a wording pattern, not a measured outcome. 48index entries 48distinct source records 9.4%of parent category 1.3%of the complete index 39top-level comments 9replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 5asks a question 0says they intend to try it 42other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **6** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments48 preserved records · 48 of 48 source records accounted for **These women are brave. I did it, got to eight cm before I was begging for the epidural. It fucking \*hurts\* Like "yes please shove a needle into my spine if it'll stop this agony" hurts. And I didn't have a hard birth. Thought I had a high pain tolerance, can sit and be tattooed for hours, lived with endo my whole adult life, hockey goalkeeper who happily gets brutalized every week... But no. Childbirth humbled the fuck out of me. Gimme all the drugs.**♥ 15source record 4 **mastitis**♥ 10source record 371 **Childbirth Lol**♥ 9source record 399 **Yeah but tbf my daughter was literally dying so it’s a small price to pay. (She’s fine now just decided that she was gonna end it all if she didnt come out right then and there I guess, kind if dramatic but ok) I’m realllllly hard to put to sleep so they finally got me out right before she came out but had a hard time staying asleep.**♥ 3source record 500 **Yes! When labor was going well prior they kept checking on me because I was having “really big strong contractions” and I was like I am? As I’m just bouncing on the ball eating watermelon. 😂**♥ 3source record 503 **I’m so intrigued by this. Was your stone too big to pass on your own? I had a kidney stone (small enough that I could pass it naturally)and had read so many comments like yours that when I went into labor, I thought it’d be small potatoes. I made it 4.5 cm no drugs before I had a C-section (baby was breech) and was HUMBLED. I thought for sure it couldn’t be worse than the stone.**♥ 1source record 568 **I've given birth 3 times with no pain medication. I always hear women saying that kidney stones hurt worse than childbirth and that TERRIFIES ME.**♥ 1source record 580 **Mastitis was HELL**♥ 2source record 1322 **Literally thought I was dying. The convulsions were the worst. I got it 2 weeks PP and in the trenches. I was so confused.**♥ 1source record 1355 **More a complication than an illness, but my daughter's cord prolapsed during labour and the c-section couldn't be performed until we were transported to a different hospital, so I had to lie on my back with my pelvis elevated and a doctor's hand up my vagina to keep her cord from coming back out through the cervix, all the while fighting the urge to push, for 40ish minutes while moving towards transitional labour. I couldn't have any pain meds, either. That's the only time since childhood I've literally screamed in pain. It was bad enough that I came dangerously close to passing out a few times. Thankfully, we made it in time and my daughter is now a healthy preschooler, but it was incredibly traumatic.**♥ 2source record 1426 **Everything to do with the failed induction which ended in an emergency Csection. I hallucinated, thought we was going to die and then had a long, slow and painful recovery.**♥ 2source record 1688 **Pregnancy**♥ 1source record 1770 **The infection that made me throw up the week after I had a c section. I thought I had ripped myself in half and was afraid my guts were on the bathroom floor**♥ 1source record 1812 **Blood clots in my uterus post-partum. Felt like being stabbed. Excruciating.**♥ 1source record 1994 **Pregnancy**♥ 1source record 2449 **Mastitis. Infection of the milk duct. The fever is intense. I hit 41⁰c. Your legs cramp so bad you can hardly walk. The pain starts at your lower back, goes down your thighs then hits your calves. The headache is even worse. Then there's the breast. You can literally see a bright red triangle. Feed the baby from that side first, they tell you. Every time. The agony is indescribeable. Like its mouth is made of broken glass. And if you don't work the clots out, it doesn't heal. How do you work the clots out? You get in the shower. Get a hair comb. Run the comb through a bar of soap. And comb your literal flesh, from chest to nipple. Five times a day. The hottest water you can manage to help the milk flow. I got mastitis four times total**♥ 1source record 2485 **HELLP syndrome when I was 37 weeks pregnant.**♥ 1source record 2494 **Giving birth without any medication because I wanted to havve a baby undamaged by drugs. She was born looking around at surroundingzs and has extraordinary intelligence. It was worth the agony.**♥ 1source record 2550 **74hr labour where the contractions weren’t 20, or 10, but 2 mins apart. for 74hrs straight… that was horrific. i am one and done now 😂**♥ 1source record 2610 **Mastitis postpartum**♥ 1source record 2632 **Pregnancy. 😃**♥ 1source record 2649 **My personal rating of pain: 1#- birth of my first child--- 26 hours of labour until I caved and had an epidural. 2#- a gout attack in my wrist. Holy smokes! Huge gap in pain here 3#- unmedicated labour and birth of my second kiddo 4#- Gallbladder attack 5#- migraine 6#- broken ankle**♥ 1source record 2657 **Complicated childbirth. Second by miles herniated lumbar disk**♥ 1source record 2701 **Mastitis. Migraines, HEDS.**♥ 1source record 2712 **I had a spontaneous placental abruption that felt like my uterus had been viciously ripped open. I passed out on the bus in a pool of blood. It was so massive both my baby and I would've died, they said, if we were home alone. I woke up in the hospital the next day no longer pregnant. It was terrifying. I got to meet my son in NICU a few days later.**♥ 1source record 2714 **Mastitis. Back labor and a bowel obstruction were up there on the pain scale too, but mastitis was the worst.**♥ 1source record 2823 **53 hours of labor**♥ 1source record 3097 **Children. And birthing those children.**♥ 1source record 3181 **HELLP syndrome**♥ 1source record 3187 **Mastitis**♥ 1source record 3210 **Pregnancy / labour**♥ 1source record 3252 **Pregnancy**♥ 1source record 3405 **Mastitis**♥ 1source record 3472 **Hellp syndrome. The liver pain was worse than labour for me**♥ 1source record 3502 **Pregnancy**♥ 1source record 3558 **Class 1 HELLP Syndrome at 29w0d pregnant with our oldest. My liver was very swollen and my blood vessels were leaking at the same time my blood pressure was 220/189\. Definitely some really bad shit. My obgyn told us later that we were the very first mom and baby that he had with class 1 to both survive. The next worse was foot surgeries to repair bunions, remove excess bone growth, and to repair my Achilles tendons. Both feet (5 separate surgeries) for some reason foot surgery pain is crazy intense. Most surgical pain I respond well to 5-10 mg of norco or the equivalent with Percocet. Feet on the other hand… that shit takes 8 mg of dilaudid around the clock just to get some relief. Foot surgeries I’d take spine surgery unmedicated for healing from the feet.**♥ 1source record 3636 **Polyhydramnios during pregnancy that lead to anterior cutaneous nerve entrapment.**♥ 1source record 3638 **Not necessarily illness, but follow up to pushing a kid out… Uterus Fundal Massage. My god. Either I’m a baby, or my nurse was the roughest nurse on earth. 36 hours of labor, then 3 hours of pushing, ripping holes, and the gal comes in and starts putting all her wait on my belly to shrink my uterus. Worse than giving birth. I was coming off the bed, and they handed me my child on my chest to hold to “distract me”**♥ 1source record 3685 **Childbirth**♥ 1source record 3756 **Labor**♥ 1source record 3813 **Mastitis**♥ 1source record 3917 **HELLP syndrome**♥ 1source record 3945 **Migraines, before I got pregnant. After that, it was the sudden onset of HELLP syndrome. 8 hours of debilitating mid-section pain, never going away only getting worse. Everything between ribs and hips, excluding the uterus thankfully, felt as if it was packed with stones. I couldn't take a single deep breath in order to get some sort of "muscle reset", some sort of break. Nothing. Too many doses of morphine with little to no effect. Hooked on blood pressure medication. People say they dislike the magnesium you get, but to me it was such a nice muscle relief for 5 minutes, albeit did nothing for the pain. Couldn't stay still, couldn't move, couldn't find a single position that felt ok. Didn't even mind getting the catheter. All good at the morning tests, ready to be discharged, then liver failure by lunch. But yeah, let's instead fund more "studies" to find out if women with endometriosis are more attractive or not 🙃.**♥ 1source record 4013 **HELLP Syndrome. Pain was off the charts from the contractions it caused. The swelling was very painful. Then the magnesium drip they used to help treat made me feel so so bad. It felt like I was hit by a bus. 10/10 do not recommend**♥ 1source record 4030 **If we’re going with illnesses… mastitis**♥ 1source record 4172 **Eating watermelon? They allowed you to eat? That’s honestly mindblowing 🤯. For my labor/delivery… I checked into the hospital for my routine normal run-of-the-mill induction on a Monday morning at 6am. I was immediately listed as NPO except for water and that restriction was held from the moment I got there, checked in, and was given the first pill of misoprostol in my cheek until I had the baby 42 hours later 😭. Apparently it’s so that if anything goes wrong and you need a c-section or emergency surgery where you’ll have to be under anesthesia, you won’t aspirate from having food in your stomach when they intubate you. But my labor was totally normal and low-risk so I was at the lowest possible risk of needing any type of c-section or interventional care (I’d had two previous totally normal pregnancies and labor/deliveries and this pregnancy had been entirely normal and boring as well lol). Around hour 38, shit was getting really really real and I still hadn’t gotten my epidural yet and I’d been having regular contractions on and off (depending on how high they had the pitocin flow- genuinely FUCK pitocin and the unnaturally horrific contractions it causes 😭) but I hadn’t eaten in 50hrs by that point. I had been told I couldn’t eat anything starting 12hrs before my check in time… so I checked in at 6am on Monday morning and had had to stop eating or drinking anything but water at 6pm the night before… so by the time I was 38hrs into my labor and things were getting really bad, it had been 50hrs since I’d eaten ANYTHING 😩. I was so drained. I hadn’t slept since we (my husband and I) woke up Monday morning… so I’d been awake for 38hrs straight, was in immense pain from hours and hours and hours of those evil pitocin contractions, hadn’t been allowed to eat the entire time, and was legitimately feeling so weak and tapped out. I was so exhausted, drained, pretty much useless physically. And I still had to do the hardest part of the whole process (which didn’t happen for another 4 hours) with my gas tank on E… running on literal fumes 😩. It was 8pm on a Tuesday night and things were pretty quiet outside of the room. By that point I was so exhausted, cranky, and honestly just completely and utterly fed up. And the reason wasn’t even really because of the pain or the miserable labor process in general- it was mostly because of the fact that I was just absolutely RAVENOUS, and had been throughout the entire 38hrs that I’d been in labor so far. I was so damn hungry and weak that I essentially broke, and begged my husband to find me some food. Literally ANY food. I would have eaten a half eaten cheeseburger out of the garbage at that point- I’m so serious too 😅. He snuck out to the sandwich cart and stole me 4 grape uncrustables and two apple juices because that’s all that was left on the cart. When he came back in to the room and pulled the loot out of his pockets I legit ugly cried from happiness and relief lol. Then I wolfed all four uncrustables down in like 2 minutes flat, washed them down with both apple juices, and within about 30 minutes I felt WORLDS better. Like… that food- albeit not the healthiest meal in the world- was probably the most instrumental thing in getting me through to the end, aside from the epidural I eventually finally got. That gave me the energy I needed to finally push our son into this world four more hours later. I understand I technically took a “risk”, but tbh… for low risk pregnancies, we should be allowed to fucking eat at least a little bit. Literally STARVING a woman in labor for DAYS is straight up cruelty and it makes the incredibly physically grueling process her body is going through a zillion times harder on her than it needs to be. Honest question- was your care team actually okay with you eating the watermelon/eating in general, or did you have to sneak it behind their backs? If they were cool with it- how did you manage to get them on board with you not having the NPO restriction? Regardless, I’m happy you were able to nourish your body during your labor/delivery. ♥️**♥ 1source record 4226 **WHAT!? That’s crazy!! I was HIGH risk for c-section because my daughter had hydrocephalus and they had no idea if her head was going to be too big (it wasn’t, my placenta was the issue) and they were constantly trying to get me to eat!! They offered me fruits, burgers, sandwiches like every time I denied food they would keep coming back. My nurse was like girl you need to eat! I only went NPO when I asked for an epidural, I wasn’t in pain yet but there was only one anesthesiologist in the hospital and I wasn’t scared I wouldn’t get it in time. It wasn’t working but they still couldn’t give me food after since I couldn’t get to the bathroom. But my labor was short, I was induced and only got to “labor” for 8 hours before they called the c section. I’m so sorry you went through that!! I can’t imagine being hungry and your body so tired!**♥ 1source record 4227 **Pregnancy - besides the childbirth there was gas pains, round ligament pain, constant heartburn, back pain, nausea, etc.**♥ 0source record 4409 Archive: 48 index entries preserve 48 distinct source records · Every displayed synthesis count resolves to source-record IDs Miscarriage, ectopic pregnancy and abortion21 index entriesAnswers about pregnancy loss, several describing internal bleeding the writer did not recognise at the time. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Miscarriage, ectopic pregnancy and abortion Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Miscarriage, ectopic pregnancy and abortion 21 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 4104 **Appears when:** Miscarriage, ectopic pregnancy and abortion **What the pattern means:** Short, consistent and frightening. The ectopic accounts share a structure: the pain does not present where the writer expects it, several describe shoulder pain as the symptom that sent them in, and the phrase that recurs is nearly bleeding to death without knowing it. Several writers say they almost did not go to hospital because the pain eased. **What commenters described:** Ruptured tube / ectopic pregnancy. No stomach pain , only went to hospital because I had this horrendous pain in my shoulder. Every breath felt like a struggle that resulted in me being stabbed in the shoulder. Never experienced anything like it and hope to never again. **Limit:** This is a small group describing emergencies, written by the people who survived them, so it is not a picture of how such pregnancies usually present. Nothing here identifies an ectopic pregnancy or a miscarriage. What the replies added2 In-clinic Abortion. Never again. Reported failure♥ 1 Ruptured tube / ectopic pregnancy. No stomach pain , only went to hospital because I had this horrendous pain in my shoulder. Every breath felt like a struggle that resulted in me being stabbed in the shoulder. Never experienced anything like it and hope to never again. Reported failure♥ 1 #### Source-record spotlights Most engaged source Not illness but ectopic pregnancy, almost died on my 21st birthday source record 441♥ 4 Later-arriving source miscarriage oh my gosh. type 1 diabetes is pretty painful emotionally though posted about 20.6 hours after the source♥ 1 Low-like source I had an ectopic pregnancy throwing up from the pain posted about 3.7 hours after the source♥ 1 #### What the counts show This report keeps all 21 source records for Miscarriage, ectopic pregnancy and abortion together and surfaces traceable examples without converting anecdotes into proof. 21index entries 21distinct source records 4.1%of parent category 0.6%of the complete index 19top-level comments 2replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 21other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments21 preserved records · 21 of 21 source records accounted for **Not illness but ectopic pregnancy, almost died on my 21st birthday**♥ 4source record 441 **Ruptured ectopic pregnancy hands down worst pain for me. I could t get to the or fast enough**♥ 3source record 473 **Same for me. Seconded only by an medication abortion.**♥ 2source record 609 **Ruptured ectopic preagnancy. I was crawling on the floor, because I could not get up. The pain was gone by the morning, I almost didn't go to the ER.**♥ 2source record 1408 **Ectopic pregnancies nearly bursting. Three times**♥ 2source record 1853 **ectopic pregnancy**♥ 1source record 1931 **I had an ectopic pregnancy throwing up from the pain**♥ 1source record 1937 **Mine actually did rupture. Made childbirth without pain meds seem like a walk in the park.**♥ 1source record 2043 **Ruptured ectopic pregnancy and/or meningitis**♥ 1source record 2112 **Ruptured tubal pregnancy in my early 20s. I’m 68 now and still have trouble thinking about it.**♥ 1source record 2166 **In-clinic Abortion. Never again.**♥ 1source record 2203 **ectopic rupture x 2**♥ 1source record 2595 **Ectopic pregnancy/ovarian rupture**♥ 1source record 2675 **Ectopic pregnancy.**♥ 1source record 2773 **miscarriage oh my gosh. type 1 diabetes is pretty painful emotionally though**♥ 1source record 2896 **Ruptured fallopian tube from ectopic pregnancy.**♥ 1source record 3236 **Septic Ectopic Pregnancy.**♥ 1source record 3398 **Ectopic pregnancy. Symptoms went from 0-100 in a matter of hours. Nearly bled to death internally from the rupture. 0/10 do not recommend.**♥ 1source record 3840 **Several miscarriages were more painful than birthing my kid was.**♥ 1source record 3892 **Ruptured tube / ectopic pregnancy. No stomach pain , only went to hospital because I had this horrendous pain in my shoulder. Every breath felt like a struggle that resulted in me being stabbed in the shoulder. Never experienced anything like it and hope to never again.**♥ 1source record 4104 **Ectopic pregnancy**♥ 1source record 4158 Archive: 21 index entries preserve 21 distinct source records · Every displayed synthesis count resolves to source-record IDs Gynaecological procedures, infections and everything else62 index entriesInsertions, biopsies, sweeps and infections — the answers where a procedure, not a disease, is what the writer is describing. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Gynaecological procedures, infections and everything else Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Gynaecological procedures, infections and everything else 62 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 326 **Appears when:** Gynaecological procedures, infections and everything else **What the pattern means:** The group where the subject is the procedure, not the disease, and it is the angriest set of records in the corpus. Writers describe IUD insertions, biopsies, membrane sweeps and cervical procedures done with no anaesthesia and, in several accounts, no warning or consent, after being told to take an over-the-counter painkiller beforehand. The recurring detail is not the pain but the framing around it: being told it would be a pinch, and being moved out of the room for the next patient. Alongside the procedures sit Bartholin cysts and other infections, described in similar terms. **What commenters described:** not an illness but as a tatted, pierced, high pain tolerance person: an IUD is the worst pain I've felt. You ever have so much pain that all air is sucked out of your lungs and can't catch a breathe to make any noise? And they told you to 'just take Tylenol beforehand'? Then after the procedure, youre faint because you weren't breathing and you were too young to know what to do with so much pain and a nurse comes in to ask you "are you ready to leave yet? We have another patient waiting for theirs"? Then when you tell anyone they dismiss the pain as not that bad but when you tell anyone who has also had the procedure and they validate you, tell you to watch what it is, only to see your CERVIX GETS PIERCED? Then you try to be an activist for IUD anesthesia or numbing because you never want another AFAB, ESPECIALLY minor, to feel such frightening pain but hear absurd bullshit as to why not? I still have it in & im so so so scared to have it removed because I'm scared of the pain/being dismissed ;; **Limit:** These are the accounts of people motivated to write about a bad experience, and other commenters in the same group report insertions that barely hurt; both are here. Nothing on this page indicates what pain relief is available for any procedure — that is a conversation with a clinician. What the replies added2 That’s why I didn’t go that route. Too much pain that could easily be avoided if women’s pain was taken seriously! It’s 2026, why has this issue not been resolved? From the replies♥ 25 "Without your consent" and "medical procedure" should never be in the same sentence :(( makes me so happy to read they put you under where you are, FINALLY From the replies♥ 20 #### Where commenters report limits Explicit limit or counterpoint Endometritrus and endometriosis is not the same thing, just as a warning. I've had both shingles and Endometritrus, and I think the endo was worse but the shingles lasted so much longer (once I got the right antibiotics). Endometritrus is an infection in the living of your uterus, I got mine after an emergency c-section. source record 90♥ 4 #### Source-record spotlights Most engaged source That’s why I didn’t go that route. Too much pain that could easily be avoided if women’s pain was taken seriously! It’s 2026, why has this issue not been resolved? source record 327♥ 25 Later-arriving source Bartholin’s gland infections and abscesses: chronic migraine; trigeminal neuralgia; and psychotic depression are all pretty much neck neck and neck for me. posted about 7 days after the source♥ 1 Low-like source Not an illness but: a doc doing a careless IUD insertion. I've previously had appendicitis that burst and needed immediate surgery, but that was nothing in comparison. posted about 3.4 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 62 source records, the most common observable tactic structure is “Attach it to an existing routine” (7 records). This is a wording pattern, not a measured outcome. 62index entries 62distinct source records 12.2%of parent category 1.7%of the complete index 33top-level comments 29replies #### What commenters explicitly report 2explicitly reports a benefit 1explicitly reports a limit or failure 3asks a question 0says they intend to try it 56other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **7**Change the sentence **3**Swap instead of subtract **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments62 preserved records · 62 of 62 source records accounted for **Endometritrus and endometriosis is not the same thing, just as a warning. I've had both shingles and Endometritrus, and I think the endo was worse but the shingles lasted so much longer (once I got the right antibiotics). Endometritrus is an infection in the living of your uterus, I got mine after an emergency c-section.**♥ 4source record 90 **IUDs are the worst! I tried for a month finally ended up in the ER for it to get removed. I was vomiting from the pain.**♥ 5source record 175 **not an illness but as a tatted, pierced, high pain tolerance person: an IUD is the worst pain I've felt. You ever have so much pain that all air is sucked out of your lungs and can't catch a breathe to make any noise? And they told you to 'just take Tylenol beforehand'? Then after the procedure, youre faint because you weren't breathing and you were too young to know what to do with so much pain and a nurse comes in to ask you "are you ready to leave yet? We have another patient waiting for theirs"? Then when you tell anyone they dismiss the pain as not that bad but when you tell anyone who has also had the procedure and they validate you, tell you to watch what it is, only to see your CERVIX GETS PIERCED? Then you try to be an activist for IUD anesthesia or numbing because you never want another AFAB, ESPECIALLY minor, to feel such frightening pain but hear absurd bullshit as to why not? I still have it in & im so so so scared to have it removed because I'm scared of the pain/being dismissed ;;**♥ 74source record 326 **That’s why I didn’t go that route. Too much pain that could easily be avoided if women’s pain was taken seriously! It’s 2026, why has this issue not been resolved?**♥ 25source record 327 **I wasn't prepared when they did a membrane sweep without consent and my husband said it looked like the most pain he'd ever seen me in. It was up there in my top 5\. Here they put you under for IUD**♥ 19source record 328 **Oof. When I was at the hospital getting induced they came in and said lets break your water to help progress you further, not thinking anything of it because I've never heard anyone say it hurt.... one of the worst pains I've ever experienced. She got done and said "I guess we should have ordered your epidural first".**♥ 7source record 330 **Oof yeah insertion pain SUCKS. Getting it taken out is 100 times easier, no cervix piercing they just whip it out and some of them have you cough while they do it (I've had 4 insertions now and 3 removals). Still worth it to me because it makes the periods so much better, I just tell myself I'm getting my next 5 years of period pains over with in the next 5 seconds and grit my teeth!**♥ 5source record 332 **Why did I have to scroll so much to find this!? Getting an IUD is the fucking worst!! I’m due for one next year and I’m going to a different facility that will give me better pain management.**♥ 5source record 333 **Endometritis**♥ 20source record 334 **Related experience: I had my IUD put in six weeks after giving birth. I'd heard everyone saying how much the insertion sucked, so I was bracing for intense pain. While I was still preparing mentally, they told me it was already done! Way, way easier than labor and delivery.**♥ 1source record 583 **Totally agree! I had mine put in during my lunch break lol! Luckily I hadn’t heard any nightmare stories beforehand! And after labor and a gallstone attack, it was a piece of cake!**♥ 2source record 630 **Completely agree. I had to have a cervical conization (cuts away part of cervix and cervical canal) 6 years ago. They did not offer anesthesia or pain meds with the procedure (nor after, told me to take advil) I have never screamed so loud from the pain! And they said it would just be a pinch. I have a high pain tolerance and can handle my shit, that was no fucking pinch!**♥ 2source record 938 **Same! IUD made everything so much worse and my dr refused to remove it until I'd tried it for 6 months!!**♥ 3source record 992 **i'm in my GP's hall of fame as the only woman not under the influence of substances to remove her own IUD (in desperation, due to it not gibing with my endometriosis/adenomyosis). For all my trials and tribulations i'm at least proud of that**♥ 2source record 1009 **I went with the IUD because I wasn’t 100% sure I was done having kids, but if I’d known how long it would take for it to settle in to my uterus…omg the pain. And the irony that it sped my cycle up as opposed to slowing it down and stopping the bleeding. But I didn’t want to do an oophorectomy, and I’ve heard that keeping your ovaries when you have endometriosis has chances that you still suffer from it. What I’ve discovered is that the doctor I had at the time was an ass and a bad gyno.**♥ 2source record 1027 **I tried the IUD too. Worked well for about a year and then I had non stop bleeding or “breakthrough bleeding” as the gyn called it. That was fun bleeding all the time anywhere from light spotting to super heavy.**♥ 2source record 1028 **Yep, thats kinda how it went for me. They came in , said they were gonna do one and started immediately. With my other kid they never did one so I didnt even get a chance to think about it or look into it first. The least they could have done was warn me it hurt**♥ 3source record 1191 **Same for IUD. Although I would do it again. I’ve loved having it.**♥ 2source record 1219 **It’s so short lived though. My uterus started contracting to try to dislodge it and when my dr checked a month later it was moved. But iud pain is horrible for such a short time compared to other injuries/procedures/processes.**♥ 2source record 1226 **mine just got rid of my period completely, which is quite nice! the pain of insertion is worth it to me just for that edit: the pain level depended upon who was inserting my IUD... I'm on my third and the second was bad enough that i nearly threw up but the first and third were much better, but still not fun!**♥ 2source record 1232 **My OBGYN is the one who recommended the place I will go to next year. She was up front that in her office she doesn’t have pain management options and I should absolutely go elsewhere to get it placed.**♥ 3source record 1286 **I just got mine replaced a few months ago and passed out in the lobby from cervical shock.**♥ 2source record 1301 **It is agonising I agree. But then after having 3 children realised, at least it was over fairly quickly. I did get horrible cramps from it though.**♥ 2source record 1313 **My current Dr is a saint and (before I even asked about it) assured me that she always does local anesthesia for IUD insertions, compared to my first one it was a breeze**♥ 2source record 1326 **I’m on my third. The IUD was a saving grace for the severe pain and hemorrhaging from having periods. The arms of my second one did embed into my uterus and it was in my cervix. I have a very high pain tolerance and she removed it in the office by ripping it out, like getting a tooth pulled without anesthesia. Then I asked her to put a new one in right after because the temporary pain is worth it over the long term. I think mine was embedded for a long time but I started having non-specific symptoms like increased discharge and frequent urination. I went to the doctor when I was getting shooting stabbing pains from my groin into the mons pubis area. The doctor I saw (not my pcp) wanted me worked up for appendicitis but I knew it was the IUD. Fortunately Im an OR nurse and work with GYN surgeons who instructed me to get the transvaginal u/s. Yes they hurt like hell to get inserted, but the IUD did treat my anemia and got rid of the debilitating back and hip pain I experienced during my period. I have inflammatory arthritis in those areas so it was that much worse. I know some people who had nothing but problems with it, but it helped me a lot. So much so that I went with another after the whole embedding nonsense.**♥ 2source record 1330 **I had an endometrial biopsy and it was horrendous. I could never imagine going through that same type of pain regularly.**♥ 2source record 1336 **I got Pelvic Inflammatory Disease from an IUD. I was fine one day and the next day I was on the floor crying and had to be carried out of my apartment.**♥ 2source record 1391 **I had my first IUD removed and my second one inserted at the same appointment! I imagine that if you only had it removed you may also have some differences in hormones in your body afterwards**♥ 2source record 1467 **Imperforate hymen. I was getting my period for over a year and was misdiagnosed the whole time. My uterus got so full it kinked my urethra and I stopped peeing. Dr thought it was a kidney stone cause I had back pain and filled me up with diuretics. I didn't pee for 36 hrs. Had to get a cathoder and they drained like 7 liters of urine then when I got emergency surgery for the imperforate hymen they drained like 10 liters of blood. I was 13\. It was scary and horrible. Now im a man lol**♥ 2source record 1513 **Infection of the Bartholins glands was a nightmare, so painful**♥ 2source record 1674 **Infected Bartholin gland cyst. It appeared overnight and quickly grew before I could get into the doctor. When it became inflamed it was so incredibly painful that I couldn’t pee, sit, or walk without sobbing because it was touching the clitoris. I gingerly drove myself to urgent care and they started draining it but the numbing didn’t take. The PA told me I could continue in pain or go to the ER and I told him I couldn’t drive in that condition and I was so tired of the pain so just finish the job please. The nurse held my hand while the PA drained several syringes worth of fluid. It was excruciating. But the relief I felt walking out of that office was incredible.**♥ 1source record 2031 **A golf ball size bartholin cyst and then swine flu during recovery from drainage surgery.**♥ 1source record 2193 **chlamydia that turned in to pelvic inflammatory disease. ignored it for ages cos i thought it was a UTI until i couldn’t walk anymore and collapsed on the way to a 6am shift.**♥ 1source record 2331 **Endometritis. Not to be confused with endometriosis.**♥ 1source record 2333 **Bartholin’s cyst and gallstones. Still not sure which one was worst but at least the cyst hurt for couple of days and gallstones took 3 years of attacks until they have finally removed the freaking thing**♥ 1source record 2363 **Bartholin abscess. Iykyk**♥ 1source record 2390 **Bartholin’s cyst**♥ 1source record 2428 **the worst ‘acute’ ailment i’ve had was a bartholjn cyst turned abscess, ended up being a 7cm x 2cm big lump of infected blood in a place where no woman wants to have that… i genuinely cannot remember most of the time that i actually had it, i was in so much pain that i think i completely blocked it out. now every time i get the slightest pain down there im convinced it’s time again!!!! even the nurses in A and E winced when they read my notes from urgent care. ended up on bed rest for a week because the risk of sepsis if it burst was so high. scary times.**♥ 1source record 2445 **Getting my first IUD without any pain killers or numbing agents**♥ 1source record 2609 **Vulvar hematoma**♥ 1source record 2671 **Vaginal abscess. Was sitting in a hot bath for nearly 24 hours, finally went to the hospital with a baseball between my legs. It burst while I was getting into the bed and I thought I would cry from how good it felt.**♥ 1source record 2783 **Tied fallopian tubes omg**♥ 1source record 2965 **Colposcopy. It’s borderline torture.**♥ 1source record 3008 **Post endometrial ablation pain syndrome.**♥ 1source record 3020 **Vestibulodynia**♥ 1source record 3046 **Two things Constant pelvic pain (don't know the cause). Many times I feel like I'm being stabbed repeatedly, especially after orgasm. It started after I got my coil changed last October. I got it removed last week and hope it will improve because it's awful. Or chronic migraine. I have had constant headaches plus frequent aura for 12 years with no successful meds except naproxen which reduces pain for a few hours some of the time.**♥ 1source record 3096 **Not an illness but: a doc doing a careless IUD insertion. I've previously had appendicitis that burst and needed immediate surgery, but that was nothing in comparison.**♥ 1source record 3201 **Pelvic inflammatory disease. I was hospitalized, almost septic, for five days in an ICU step down unit as an otherwise healthy 29yo. Didn’t know it then but I can thank my cheating ex. Wasn’t as “random” as he allowed my entire care team and I to believe🫠**♥ 1source record 3251 **Not really an illness, but IUD insertion gone wrong. Pro tip: have them do an internal ultrasound BEFORE insertion, to check if you have a retroverted uterus!**♥ 1source record 3362 **Lichen sclerosis. If you don't know what it is, be very grateful.**♥ 1source record 3366 **Womb infection. The pain was unreal.**♥ 1source record 3388 **Infertility 🥲**♥ 1source record 3396 **Endometrial biopsy (shame on any provider attempting this and downplaying the pain) Pancreatitis attacks, abscessed tooth, gallbladder attacks, stomache ulcer, severe menstral cramps, kidney stones....mononucleosis lymph glands and sore throat, valley fever body aches, shingles and migraines In this order.**♥ 1source record 3471 **Bartholin cyst 😭**♥ 1source record 3828 **Not a “disease” per se, and not traditional physical “pain”: Perimenopause And it lasts for years and worsens over time. A multitude of unpleasant symptoms, mental anguish, extreme fatigue and exhaustion, skin issues, hair loss, weight gain, irregular and painful menstrual cycles, brain fog, joint pain, insomnia, hot flashes…It’s no joke and we just learn to deal with it (yes, I’m on HRT which helps but is not a miracle fix). Each symptom on its own is not the end of the world but all piled on together and some of us honestly contemplate checking out. It’s brutal.**♥ 1source record 3931 **Cervical biopsy**♥ 1source record 3938 **Bartholin cyst. Getting it drained it’s basically medieval torture.**♥ 1source record 3984 **Bartholin’s gland infections and abscesses: chronic migraine; trigeminal neuralgia; and psychotic depression are all pretty much neck neck and neck for me.**♥ 1source record 4155 **I was going to say “infertility” as the most painful. So sorry you are going through this - there are many ways to start a family however, I wish I had been more open to it when I was younger. 38 is still young :) Wishing you the best**♥ 1source record 4259 **Thankfully it was short. The biopsy cut a plug out of my uterus. The only pain management I had was to take 4 ibuprofen 1 hour before. It wasn't enough to make I manageable. When I sat up, I almost passed out. I am so thankful that my spouse was with me.**♥ 2source record 4296 **My first two months were god awful. And it took months and months after to get anywhere close to normal. Now I’m scared of the day I have to get it removed and replaced. I should’ve done the hysterectomy.**♥ 1source record 4332 **Yeah I went through all the birth control options before I finally tapped and begged for a hysterectomy. But I also knew I was done having kids. But honestly I probably would’ve done it a lot sooner had I known just how bad my symptoms would end up getting.**♥ 3source record 4333 Archive: 62 index entries preserve 62 distinct source records · Every displayed synthesis count resolves to source-record IDs Bladder, kidney infections and the prostate74 index entriesUrinary answers, including the chronic bladder condition several writers rank above kidney stones. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Bladder, kidney infections and the prostate Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Bladder, kidney infections and the prostate 74 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1621 **Appears when:** Bladder, kidney infections and the prostate **What the pattern means:** Two very different sets of records under one heading. The infection accounts are acute and escalate fast — several writers describe a urinary infection reaching the kidneys and then the bloodstream within a day or two. The chronic accounts are the ones that redefine the group: writers with interstitial cystitis and chronic prostatitis describe pain that has no infection behind it, no end point, and no treatment that has worked, and several rank it above kidney stones. **What commenters described:** Interstitial cystitis, when in a bad flare every time I have to urinate it feels like I’m being stabbed in the guts with knives accompanied by intense burning pain. This is accompanied by constantly feeling like I need to urinate really bad, but every time I go the sensation just gets worse instead of better. These flares can last hours to days. **Limit:** Acute infections and chronic pain conditions are grouped together here because they involve the same organs, not because they are alike. Several records describe long-term opioid use and suicidal thinking; those are personal accounts, not guidance. If you are struggling, contact a local crisis line or emergency service. What the replies added2 second worse—unmedicated root canals a few months before on my two front teeth because I faceplanted and broke them in half. Dentist said he wasn’t comfortable using pain killer while I was pregnant (which now I know is a total lie and he totally could of it he cared to look it up) Reported failure♥ 1 Sudden onset kidney infection with concurrent stones in my appendix. Morphine barely touched the pain. Thought it was appendicitis, I was throwing up from the pain and nausea. Turns out, my appendix just had stones in it and was a liiiittle bit inflamed. My kidneys however, were inflamed too and I had a serious kidney infection. Turns out, I have kinked ureters, and get zero lower uti symptoms, just random kidney infections. Had to get IV antibiotics overnight and an IM injection of more antibiotics before discharge along with oral antibiotics to take home. They did nothing about the appendix because the inflammation was minor. But I still have to get ultrasounds every so often to keep an eye on the stones in case they become a problem 🙃 Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Sudden onset kidney infection with concurrent stones in my appendix. Morphine barely touched the pain. Thought it was appendicitis, I was throwing up from the pain and nausea. Turns out, my appendix just had stones in it and was a liiiittle bit inflamed. My kidneys however, were inflamed too and I had a serious kidney infection. Turns out, I have kinked ureters, and get zero lower uti symptoms, just random kidney infections. Had to get IV antibiotics overnight and an IM injection of more antibiotics before discharge along with oral antibiotics to take home. They did nothing about the appendix because the inflammation was minor. But I still have to get ultrasounds every so often to keep an eye on the stones in case they become a problem 🙃 source record 3797♥ 1 #### Source-record spotlights Most engaged source UTI (as a guy) felt like peeing acid, and the urethra is on fire. It's a weird burning sensation that hurts and makes you dread urinating. The pain doesn't go away once you finish peeing because your tip of your dick still has agitated skin inside. It's really bad and I was thinking it would be worth paying 2000 to just make it magically disappear, and not experience the pain any longer. I would constantly soak myself in a bathtub filled with warm water to try to relieve the pain, but it was temporary, and I would end up constantly walking back and forth between the bathtub and my toilet, even when I was dead tired and just wanted to sleep. Also, my pee was a reddish orange color. I went to the ER because I was seriously worried I would have some disease, got some pills (idk if they had any effect), and was okay the next couple days after. source record 400♥ 6 Later-arriving source Not to mention how awful it becomes to go anywhere. What if there’s not an easily accessible bathroom when I feel like I have to pee every 15 minutes? Movies, concerts, working, everything becomes stressful. And it can feel embarrassing! Thankfully I’m in remission too, but that was hell. posted about 3 days after the source♥ 2 Low-like source It’s a toss up between kidney infection and ulcer. The ulcer ended me up in hospital as I was doubled over in pain. I can remember sitting in reception then the next thing I was taken through as I’d collapsed unconscious in reception with the pain. posted about 3.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Shingles, and the nerve pain it leaves behindChange the sentence · 7 there](#rich-node-0-group-3-subgroup-0-shingles-and-the-nerve-pain-it-leaves-behind)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 74 source records, the most common observable tactic structure is “Change the sentence” (6 records). This is a wording pattern, not a measured outcome. 74index entries 74distinct source records 14.5%of parent category 2%of the complete index 63top-level comments 11replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 6asks a question 0says they intend to try it 67other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Change the sentence **6**Attach it to an existing routine **5**Swap instead of subtract **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments74 preserved records · 74 of 74 source records accounted for **UTI (as a guy) felt like peeing acid, and the urethra is on fire. It's a weird burning sensation that hurts and makes you dread urinating. The pain doesn't go away once you finish peeing because your tip of your dick still has agitated skin inside. It's really bad and I was thinking it would be worth paying 2000 to just make it magically disappear, and not experience the pain any longer. I would constantly soak myself in a bathtub filled with warm water to try to relieve the pain, but it was temporary, and I would end up constantly walking back and forth between the bathtub and my toilet, even when I was dead tired and just wanted to sleep. Also, my pee was a reddish orange color. I went to the ER because I was seriously worried I would have some disease, got some pills (idk if they had any effect), and was okay the next couple days after.**♥ 6source record 400 **Kidney infection**♥ 5source record 414 **Chronic prostatitis. Feels like getting kicked in the balls repeatedly. My life and will to live is destroyed due to this fucker.**♥ 3source record 454 **Septic kidney infection from a UTI that didn't respond to antibiotics.**♥ 3source record 474 **Acute kidney infection while I was pregnant**♥ 3source record 483 **Yep same here, couldn’t drink water so I ended up with a UTI at the same time! 0/10 experience**♥ 2source record 1201 **My kidney infection was similar. Food poisoning and kidney infections can kill and did used to kill humans. We live in a good time period!**♥ 1source record 1266 **UTIs can go from 0-100 in the span of a single night, like my last one did. The constant burning and need to piss is both physically and psychologically detrimental**♥ 2source record 1396 **Kidney infection**♥ 2source record 1424 **Not a stupid question. Yes it can be removed but I would imagine it causes a series of problems. But I could be willing to do that since I'm already on the verge of su1c1de. And they probably wouldn't do it if you haven't got like cancer. I have told about my bad thoughts to doctors and they just steered me to a psychiatrist. Like wtf the problem is in the wrong end. I have my balls hurting like hell and they direct me to a shrink.**♥ 2source record 1449 **Acutely: a bout of cystitis in my 20s that landed me in the ER. I was prone to UTIs and holy mother of bog, the pain on that one was like nothing else. Searing, burning, repeated bladder spasms, peeing little dribbles of blood, it was awful. Pain level was about an 11/10 during the spasms. Chronically: radiculopathy due to spondylolisthesis (i.e., a slipped vertebra in my lower back is pinching my sciatic nerve). Been living with this for nearly 2 years now and it is the single worst pain I've ever felt in my life. For an idea of what it feels like: if you've ever stuck your tongue on the end of a 9V battery, imagine that sensation: electric, cold, sharp, searing. Now multiply it a thousandfold and imagine it running from your low back down both legs, through your butt, hips, side of the thighs, down your calf and knee into both feet. It's unimaginably painful - and it \*never\* lets up unless I'm on some serious medication. 15/10 on the pain scale otherwise. I'm having surgery in a few weeks that I hope will fix the issue and relieve the pain. Wish me luck - this shit is awful.**♥ 2source record 1508 **UTI ...worst worst worst!!! I'm literally very afraid of it now**♥ 2source record 1512 **Interstitial cystitis, also known as “painful bladder disease”. It makes you feel like you have a UTI and it makes you piss razor blades. Even when you’re not using the bathroom it’s agonizing pain 😭 I know that’s weird but it’s the most painful illness I have.**♥ 2source record 1572 **Interstitial cystitis, when in a bad flare every time I have to urinate it feels like I’m being stabbed in the guts with knives accompanied by intense burning pain. This is accompanied by constantly feeling like I need to urinate really bad, but every time I go the sensation just gets worse instead of better. These flares can last hours to days.**♥ 1source record 1621 **My answer was also IC. I have multiple chronic illnesses that cause pain, and the worst pain I’ve experienced has still been from a really really bad flareup. I had just started a new job that required me to wake up at 3am (horrible idea), and I guess the stress and lack of sleep triggered it. Literally had to go home at 6am on my third day and just didn’t come back bc I was so embarrassed. I got home and was on the floor sobbing, 10/10 pain. It’s rough**♥ 2source record 1622 **Kidney infection.**♥ 1source record 1641 **Bladder infection - one night I was up and down to pee every ten minutes, and as soon as I lay down again I felt like I needed to go again. At first it’s annoying, but once there’s nothing left to drain out and you’re still trying to pee, it’s excruciatingly painful. I got antibiotics which worked really well but I was still in pain from all the pointless straining for several days after.**♥ 1source record 1648 **interstitial cystitis**♥ 1source record 1740 **Kidney infection**♥ 2source record 1758 **Kidney infection OR Serotonin Syndrome 😮‍💨😮‍💨SS made me feel like I was genuinely done for**♥ 1source record 1945 **Interstitial cystitis. Will always have. IYKYK**♥ 1source record 2002 **frequent/chronic UTIs :(**♥ 1source record 2033 **Mentally=depression Physically= UTI Both made me feel like dying.**♥ 1source record 2072 **Sometimes when I hold my bladder for too long I feel something in my bladder, ohhhh it hurts**♥ 1source record 2124 **Kidney infection**♥ 1source record 2130 **Chronic testicular and prostate pain for all of my twenties and half of my thirties.**♥ 1source record 2141 **Kidney infection**♥ 1source record 2146 **Blocked ureter, kidney infections are no joke.**♥ 1source record 2161 **Kidney infection**♥ 1source record 2232 **Kidney infection that almost went septic. WBC was about 35,000, IIRC. Fever of 103, and I couldn't even sit up in bed without help. My then husband had to help me to the bathroom.**♥ 1source record 2242 **At one time I had a kidney infection, chest infection and suffered a bout of severe migraines all in one week.. -1000/10 would not recommend**♥ 1source record 2328 **I had a kidney, bladder and urinary tract infection all at once. I was in so much pain I couldn’t stop writhing around. Also I had an extremely painful ear infection where I could not even touch the outside of my ear and it was leaking.. something.**♥ 1source record 2447 **It’s a toss up between kidney infection and ulcer. The ulcer ended me up in hospital as I was doubled over in pain. I can remember sitting in reception then the next thing I was taken through as I’d collapsed unconscious in reception with the pain.**♥ 1source record 2461 **Urine retention**♥ 1source record 2661 **Kidney infection from a uti I had for almost a month**♥ 1source record 2665 **i had a severe kidney infection at 10 years old because i had such bad anxiety that i would hold my pee for the entire school day. i had a 104 fever, could hardly think, and to this day have never had comparable symptoms/pain. according to my mom, the doctors were surprised i wasn’t septic yet.**♥ 1source record 2782 **Might be recency bias, but at the end of last year I had problems with urinary retention. Basically I couldn't pee, so imagine needing to pee but can't. And it just keeps building. Finally went to the ER and got a catheter, fun experience there too. Week later catheter comes out, next day back in the ER, over a liter of urine in my bladder, another catheter. Finally see a urologist turns out I had a 200 ml prostate, 40 is considered big. While waiting for surgery I had to self cath several times a day. Became far too comfortable with shoving things up my wiener and blood coming out of it.**♥ 1source record 2915 **UTI**♥ 1source record 3022 **Kindney infections or instestinal blockage it’s a toss up.**♥ 1source record 3051 **Kidney infection. I cannot explain the feeling of the back pain and the inability to get any sort of comfort despite Vicodin and Oxy, and I've had a 2 level front & back spinal fusion, so I absolutely understand back pain. I had also had my gallbladder out 8yrs prior and that was nothing compared to this. When I finally asked my husband to take me to the ER I could barely walk. When he wheeled me into the packed waiting room, they didn't even ask my name or what was wrong, they just pointed to the back & told him to keep going. They took me straight into a room & then finally asked me what was wrong. The doctor came in the room and from the doorway just said "Oooohhh....I'll come talk to you later, I'm gonna go order some pain meds". It was probably watching me cry and roll around in bed that got that response. Nurses tried to cath me and NOTHING came out. Not even a drop of pee. The 2 nurses had never had nothing come out. I was finally able to cough a couple times and some drops came out. I got an IV in my foot to get fluids and antibiotics going. Doc came back in and said "You've got a WICKED kidney infection. Want more pain meds?". After they admitted me they ordered a 1/2mg of Dilaudid every 30min. Ugh.**♥ 1source record 3102 **Kidney infection**♥ 1source record 3104 **Kidney and bladder infection while I was pregnant. Migraine headaches.**♥ 1source record 3135 **Interstitial Cystitis.**♥ 1source record 3146 **Pyelonephritis. Thought I would die of the pain. It was awful. 😢**♥ 1source record 3174 **pyelonephritis and an ovarian cyst**♥ 1source record 3264 **Painful illness?? Idk depends on what you mean. Bladder infection was hella painful. Scoliosis surgery fuckin agony, but not an illness. Worst I've ever been sick I'd say stomach flu for a month straight was horrible, but not painful. So was COVID. I seriously thought I was about to die**♥ 1source record 3272 **Kidney reflux. Basically, if I held my pee at all, my urine would go from my bladder back up into my kidneys. It would put me on the floor in pain and leave me sweating and weak for hours after. One of my kidneys atrophied into the size of a thumb I also dealt with chronic kidney infections and was on antibiotics for a full year. Thankfully it completely self-resolved when I was around 21.**♥ 1source record 3351 **Interstitial Cystitis**♥ 1source record 3376 **UTI.**♥ 1source record 3450 **I have a lot of chronic illnesses and pain… I think the worst I’ve ever experienced has been due to intersistial cystitis. 10/10 pain, literally on the ground sobbing. I almost went to the ER for pain medicine but I knew realistically they’d label me as drug-seeking and I’d just be stuck waiting, still in pain. Thankfully that’s the only IC flareup I’ve had that’s been THAT severe. I have had some very severe pain due to endometriosis as well.**♥ 1source record 3482 **UTIs since childhood…**♥ 1source record 3509 **Kidney infection or impacted wisdom tooth infection**♥ 1source record 3563 **Server Kidney infection ☠️☠️☠️**♥ 1source record 3633 **BPH - benign prostatic hyperplasia. Prostate enlarges and blocks the flow of urine from the bladder. Imagine trapping 2+ liters of urine in a "balloon" designed to hold .6 liters. Worst pain I've ever experienced. 😢**♥ 1source record 3704 **Not an illness, but an infection. I had a UTI when I was 8-9\. At the time, it was the worst pain I had experienced. Not only did I have to pee really bad, but the infection somehow made it so I couldn’t pee. It stung so bad down there. Thankfully, it was short-lived and I did manage to pre after some time, but I’ll never forget the feeling.**♥ 1source record 3787 **Sudden onset kidney infection with concurrent stones in my appendix. Morphine barely touched the pain. Thought it was appendicitis, I was throwing up from the pain and nausea. Turns out, my appendix just had stones in it and was a liiiittle bit inflamed. My kidneys however, were inflamed too and I had a serious kidney infection. Turns out, I have kinked ureters, and get zero lower uti symptoms, just random kidney infections. Had to get IV antibiotics overnight and an IM injection of more antibiotics before discharge along with oral antibiotics to take home. They did nothing about the appendix because the inflammation was minor. But I still have to get ultrasounds every so often to keep an eye on the stones in case they become a problem 🙃**♥ 1source record 3797 **Kidney infection. Wouldn’t wish that pain on my worst enemy.**♥ 1source record 3804 **Kidney infection. I thought I was going to die.**♥ 1source record 3810 **Double Kidney Infection after contracting bacterial stomach flu.**♥ 1source record 3826 **Enlarged kidney when I was pregnant (son was jammed on my ureter so it wouldn’t drain) It was my feeling like I was dying for 7 hours starting at 3am and eventually led to me being hospitalized 3 times to get IV pain drugs (super anxious the whole time I was hurting my kid, but in severe pain—and I had unmedicated birth a few months later which wasn’t as bad)**♥ 1source record 3903 **Gallbladder attacks and “Interstitial Cystitis” which I later found to have a real cause after 8-9 years of daily pain and suic!dal thoughts and was diagnosed and helped through it with pelvic floor therapy.**♥ 1source record 4037 **Kidney infection. Oof I still have nightmares**♥ 1source record 4052 **Pylonephrosis and kidney stones**♥ 1source record 4071 **Ruptured infected bladder cyst with bilateral kidney infection.**♥ 1source record 4102 **physical? definitely uti. mental? depression honourable mention: gastrovirus. a week of straight agony**♥ 1source record 4140 **Bacterial prostititis. Literally felt like someone was fisting me with a golf ball.**♥ 1source record 4148 **I knew the signs of a UTI, had never had one. Went to pee and I just felt…off. Nothing burned, nothing hurt, not even uncomfortable. Just a sense of the pee not being normal. Two hours later I was crying/shaking in the bottom of my shower not knowing if I was hot or cold. It was a UTI but it did a little speed run to my kidneys and damn near took me out, had I not went directly to the doc. Never had an issue before or since, but did learn that hardcore antibiotics/steroids will make me a wee bit moody. Edit: and learned afterwards to not take AZO on an empty stomach because I projectile vom’d bright orange puke, thankfully in a place I was able to clean up easily.**♥ 1source record 4178 **Non-bacterial. There's very little no one can do and everything is tried. Hefty amounts of opioids do very little when it flares up bad. Luckily last months have been a lot better but I fear the winter will be similar than the last one was. Winter is always the worst. It was so painful that I thought every day that I'm not going to make it. I still have a noose hanging in my shed which I didn't clearly use. It's nerve wrecking that society is pressuring me to get back to work when I barely manage my everyday life. I'm diagnosed with severe depression.**♥ 1source record 4347 **I have the bacterial version, it absolutely sucks . Did you run any tests to confirm it’s non bacterial? I think it’s pretty under diagnosed. I had to get my prostate fluid examined**♥ 1source record 4348 **It is so awful. Luckily I have been in remission for a while. I have macrobid on hand for when I go into a flare but it hurts so bad you can’t even walk right**♥ 1source record 4356 **Not to mention how awful it becomes to go anywhere. What if there’s not an easily accessible bathroom when I feel like I have to pee every 15 minutes? Movies, concerts, working, everything becomes stressful. And it can feel embarrassing! Thankfully I’m in remission too, but that was hell.**♥ 2source record 4357 **I have had every test imaginable except that. Even goddamn MRI. I've had many urine tests though. Also I have had many antibiotics used for prolonged periods. Which did help with the symptoms as long as I was taking them. Cystoscopy was painful as hell and the motherfucker of an urologist didn't believe. Only thing that has saved me is that I've been prescribed A LOT of opioids. I've had a 20ug/h buprenorphine patch on for years and have tramadol and codeine taken as needed. Yeah and I can believe you. It absolutely sucks and ruins your life in ways which many people don't believe. Do you have problems peeing? I have but minor problems atm. I can't go to cpps subreddits etc because I get major anxiety because there are people talking about having this shit for decades.**♥ 1source record 4388 **Only symptom is burning urethra for me . Which sucks a lot but probably could be worse . Doc is going to put me on fosfomycin soon . Hope that works . Also hope you feel better soon**♥ 1source record 4389 **I have already thought about many options of doing it. So I'm that far but not like I WILL do it. It's just fkin misery when the pain kicks in. I have already probably lost one online friend with the same issue. His Reddit account has gotten silent. Alpha-blockers have been tried with no help but side effects. I peed myself while sleeping for example. Almost every thing has been tried you can imagine. From jacking off constantly to expensive humbug treatments to celibacy. I've lost hundreds and hundreds of euros on useless shit. I've also gathered herbs in the wild to brew teas etc. I'm so desperate on getting back the life how it was years ago. I still can have sex but it's not the same anymore. You cannot imagine how much such a little shit of a gland effects on you. I have major anxiety about the society pressuring me to work. I quit my job of 14 years due to this. Like I have severe depression and I barely have the strenght to look after myself. I'm also tired of constantly being high on opioids. All hazy. And about the removal of the prostate. It may not even remove the pain. And because this isn't "always" lifetime as my doctor said they would keep that as an excuse to the foreseeable future on not doing it. Sorry about all the rant. It just helps when even someone listens. Edit: I just remembered that my urologist told me that "there are no surgical ways of dealing with this". So there goes that. I have so bad memory due to all of the medications.**♥ 1source record 4395 Archive: 74 index entries preserve 74 distinct source records · Every displayed synthesis count resolves to source-record IDs Testicular torsion and groin injury20 index entriesA short and unusually consistent set of answers. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Testicular torsion and groin injury Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Testicular torsion and groin injury 20 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2979 **Appears when:** Testicular torsion and groin injury **What the pattern means:** A short and unusually uniform group. The pain is described as travelling — up into the abdomen, into the spine — rather than staying where it started, and several writers say the examination and the ultrasound were worse than the injury. Most of these accounts are from childhood or adolescence, and several end in surgery the same day or the next. **What commenters described:** I had testicle torsion in 7th grade from a football. All I can say is I felt the pain literally running up my stomach to my spine. **Limit:** Twenty records, several of them a few words long, and most describe an injury rather than an illness. Nothing here identifies testicular torsion or indicates how quickly anyone should act. #### Source-record spotlights Most engaged source Testicular Torsion source record 4160♥ 1 Later-arriving source It's a toss-up between testicular torsion that doctors thought I made up but ended up needing surgery that split my little guy in two from tip to sack, and an inflamed appendix that, again, doctors thought was clearly just constipation - saw 3 doctors before one called an ambulance and I had it removed literally while it was bursting in the OR. posted about 4 days after the source♥ 1 Low-like source Testicular torsion. Only time a threw up from pain posted about 9.6 hours after the source♥ 1 #### What the counts show Within 20 source records, 1 ask a question and 0 explicitly say they intend to try the idea; neither signal is treated as an outcome. 20index entries 20distinct source records 3.9%of parent category 0.5%of the complete index 20top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 1asks a question 0says they intend to try it 19other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments20 preserved records · 20 of 20 source records accounted for **My offspring answer to this - testicular torsion**♥ 1source record 1616 **Something along the lines of testicular torsion. I remember being in 1st or 2nd grade and just dreading going to the bathroom because it was so incredibly painful when I would attempt to pee. Some of the worst pain I think i ever felt.**♥ 1source record 1649 **Playing basketball in highschool. Got hit in the groin area. One of my balls literally swelled up larger than a Softball! The next day I was in the OR. Hurt so bad, I couldn’t even stand up straight.**♥ 1source record 1787 **absessed testicle. It made a ruptured disk in my spine (jabbing the nerve) feel like a minor rash.**♥ 1source record 1878 **A bruised testicle from when a huge dog was running across the room and landed on my critch**♥ 1source record 1998 **Kicked Balls**♥ 1source record 2252 **twisted testicle**♥ 1source record 2448 **Mentally a major depression, physically it was testicular torsion lol (not illness but a condition I guess)**♥ 1source record 2522 **Testicular torsion**♥ 1source record 2594 **Testicular tortion**♥ 1source record 2841 **does testicular torsion count? well i had a few and epididymitis**♥ 1source record 2846 **I had testicle torsion in 7th grade from a football. All I can say is I felt the pain literally running up my stomach to my spine.**♥ 1source record 2979 **Intermittent (temporary) testicular torsion. Left me unable to do literally anything including move**♥ 1source record 3052 **It's a toss-up between testicular torsion that doctors thought I made up but ended up needing surgery that split my little guy in two from tip to sack, and an inflamed appendix that, again, doctors thought was clearly just constipation - saw 3 doctors before one called an ambulance and I had it removed literally while it was bursting in the OR.**♥ 1source record 3188 **Testicular torsion.**♥ 1source record 3524 **Testicular torsion, hit me randomly in my car at 22 in the army. I’ve never felt more pain then them feeling around and ultrasound 😭 I’m genuinely physically feeling awful just typing this out.**♥ 1source record 3808 **Testicular torsion.**♥ 1source record 3821 **I dont know what its called but this one time my left testicle swelled up the size of a grape fruit. If you sit there and looked at it its like there was something moving inside of it or like it had its own heatbeat.**♥ 1source record 3964 **Testicular torsion. Only time a threw up from pain**♥ 1source record 4021 **Testicular Torsion**♥ 1source record 4160 Archive: 20 index entries preserve 20 distinct source records · Every displayed synthesis count resolves to source-record IDs Bones, joints and muscles221 records · 5 sub-topicsAnswers about the frame rather than the organs, including the injuries commenters flagged as not being illnesses. 221 records. Arthritis, lupus and autoimmune disease72 index entriesJoint disease described as constant rather than acute, and often as invisible to everyone else. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Arthritis, lupus and autoimmune disease Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Arthritis, lupus and autoimmune disease 72 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 226 **Appears when:** Arthritis, lupus and autoimmune disease **What the pattern means:** These writers do not describe an episode; they describe a baseline. Lupus, rheumatoid arthritis and ankylosing spondylitis accounts converge on the same three things: pain every day rather than in attacks, exhaustion described as physically painful in its own right, and invisibility — the recurring line is that they look fine. A number describe years of being tested for the wrong thing, and several describe the anticipation of the next flare as its own burden. **What commenters described:** Lupus. It’s caused severe arthritis throughout my whole body, constant severe muscle tension, debilitating headaches, painful skin issues, gastric difficulties, and multiple organ failure on 3 separate occasions. Plus feeling so tired that it’s physically painful. Been in active disease (basically a nonstop long term flare) for 2 years. Wouldn’t wish this awful disease on anyone. **Limit:** Several unrelated autoimmune diagnoses are grouped here because their writers describe them the same way. Drug names, remission and treatment outcomes in these records are individual reports; nothing here identifies an autoimmune condition or indicates a treatment. What the replies added2 Costochondritis as an onset affect of lupus. My health had been going downhill, and I kept getting this strange sensation that my shirt was too tight in one spot, even if I wasn't wearing a shirt and nothing was touching that spot. Every morning, I woke up stiff and feeling hungover. I tried stretching every day and one day something felt like it shifted in my ribcage and I thought I broke a rib but it was costochondritis. At it's worst, it felt like my rib bones were made of sharp coral, scraping against the inside of my skin. After costochondritis, I started getting all sorts of other shit happening and within 3 years I was diagnosed with lupus and sjogrens. My mom, Grandma who lived to 96, and an uncle all also have lupus. Reported failure♥ 1 Rheumatoid arthritis. Bar none. I broke my finger a few weeks ago and was more annoyed than anything, no tears. Monday evening I began an RA flare-up and was wracked with sobs for a couple of hours, which clearly didn’t help anything. It did make it where I couldn’t breathe well though which did make everything just that much worse. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Lupus. It is with me Every. Single. Day. Pain relievers are of little help, and I am allergic to the “good drugs” that are prescribed for many lupus patients. My joints are in constant pain, I haven’t slept well in decades. There are no cures yet for lupus, and the current administration cut research funding for so many diseases, including lupus. I have an entire constellation of other symptoms in addition to my joint pain. I also have Ehlers-Danlos which adds a whole new level of complications. I wouldn’t wish these conditions on anyone. Unfortunately, I wasn’t diagnosed with either lupus or Ehlers-Danlos until after I had my son. Long story short, my son began transitioning when he turned 18; the hormone therapy exacerbated the underlying genetic anomalies, and now she has debilitating Ehlers-Danlos symptoms. I occasionally wear joint stabilizing devices and sometimes must use a cane, but she has to use them every day. I feel immense guilt for bringing a child into the world, not only for the current environmental state of things but for the disease punishment I inflicted upon her. source record 1816♥ 1 #### Source-record spotlights Most engaged source Lupus. It’s caused severe arthritis throughout my whole body, constant severe muscle tension, debilitating headaches, painful skin issues, gastric difficulties, and multiple organ failure on 3 separate occasions. Plus feeling so tired that it’s physically painful. Been in active disease (basically a nonstop long term flare) for 2 years. Wouldn’t wish this awful disease on anyone. source record 226♥ 105 Later-arriving source reactive arthritis & gastritis! i found out that i had reactive arthritis in april, i was completely unable to walk and had to take 2 ibuprofen every morning and night just to be able to function, i couldnt get down the stairs, to the bathroom, or even stand up, this lasted about 3 weeks and then gradually started improving, the worst part is that i know if i come down with another illness, it can set it off again. leading from the reactive arthritis, the amount of ibuprofen i took during those few weeks caused me to get gastritis from nsaid overuse, now i cant eat anything. i know it isnt as bad as the people in the comments too, but im only 17 and this all happened within the span of 2 months💔 posted about 7 days after the source♥ 1 Low-like source Lupus. Not just the overall constant level 4-5 pain level, but the anticipation of a flare is torture. I never feel safe in my body. posted about 3.6 hours after the source♥ 1 #### Related evidence elsewhere in the index [Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Lungs, pleura and clotsAttach it to an existing routine · 8 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots) #### What the counts show Across 72 source records, the most common observable tactic structure is “Attach it to an existing routine” (8 records). This is a wording pattern, not a measured outcome. 72index entries 72distinct source records 32.6%of parent category 1.9%of the complete index 58top-level comments 14replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 1asks a question 0says they intend to try it 70other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **8**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments72 preserved records · 72 of 72 source records accounted for **Lupus. It’s caused severe arthritis throughout my whole body, constant severe muscle tension, debilitating headaches, painful skin issues, gastric difficulties, and multiple organ failure on 3 separate occasions. Plus feeling so tired that it’s physically painful. Been in active disease (basically a nonstop long term flare) for 2 years. Wouldn’t wish this awful disease on anyone.**♥ 105source record 226 **Yep- Lupus for me, too. They thought it was seronegative RA for 2 1/2 years, and I've had fibromyalgia for 15 years now (since I was 17). Running theory with my rheum is that I may have had Lupus all along, because I never saw a rheum until I was 28\. My life was already based on limited energy and pacing, but in the last couple of years it's just become so much harder. And summer is the absolute worst, with the sun, heat, & humidity. Feels like having a severe case of the flu every single day. Sorry you're stuck with this awful disease, too. 🫂💜**♥ 15source record 227 **I’m so sorry. I’m a lupus patient, too. One of the hardest things is “looking fine” on the outside, but feeling like a culmination of every natural disaster on the inside…organs, joints, everything 😔**♥ 5source record 228 **Ankylosing Spondylitis. It’s an autoimmune inflammatory spinal condition. No cure but I’ve been in remission for 6 years with treatment.**♥ 13source record 357 **Advanced Osteoarthritis in my hip.**♥ 9source record 367 **I suffer from Ankylosing Spondylitis and it is a life of agony. Essentially my body decided that the cartilage between my spinal disks would be better off as bone. The process is long, painful, and the only medications to slow it down are ludicrously expensive biologics. I had to move to Europe just to have my medication costs not bankrupt me.**♥ 8source record 372 **Rheumatoid arthritis**♥ 7source record 379 **It's really difficult to tell, sometimes, which autoimmune disease is the culprit to a flare. I have 4 different ones in my party pack. Feel better, friend and get some rest.**♥ 6source record 420 **I have psoriatic arthritis and today is my first day of biologics. This pain and fatigue is awful! I would take labor any day over this.**♥ 3source record 465 **I came here to say lupus, but mine was antibiotic-induced and went away eventually. I was so tired I didn’t want to get out of bed and couldn’t sit up even because of the arthritis pain in my wrists. I am so sorry you’re going through this.**♥ 3source record 982 **Hello, I also have this! Plus bipolar! Nice to meet you! Bless everyone who is fighting this, true warriors.**♥ 3source record 987 **I am in the process of getting a diagnosis for what I am experiencing and Lupus is on the list of possibilities. The chronic joint and muscle pain is exhausting.**♥ 3source record 1039 **Same exact boat for me. Going through a diagnosis process, and Lupus is the strongest contender of possibilities so far. I can't believe how long I've been trying to push through the joint/muscle pains and the insane fatigue that's just ALWAYS there, and thinking everyone else was dealing with the same stuff and "was I just lazy???", etc etc All the best to you!**♥ 4source record 1044 **My strongest contender right now is Sjogrens disease with Lupus in second. I anticipate that at my first rheumatology appointment I will be getting a lip biopsy and a test for my dry eyes.**♥ 3source record 1045 **I we coming to look for this too. Glad it’s mentioned. I struggled for years and had consistent painful flares for 8 months that really fucked me up from pain. Stress triggered them which I’m glad because then k got a diagnosis but it was a rough 8 months.**♥ 1source record 1150 **I’ve read some theories that mental illness could be related to the inflammation of an autoimmune. I have bp2 thats well controlled for years and ankylosing spondy. My sister has MS and bp1\. A curious connection!**♥ 1source record 1172 **I was looking for this one cause hey, me too. Sometimes I feel like I'm exaggerating my pain, but then I think about how it is constant. There is no break from it. I am still trying to find medication that works. Every single day is just pain and in some ways I think that makes it harder.**♥ 2source record 1335 **\*\*\*Systemic Lupus Erythematosus with Sjögren's syndrome\*\*\* it attacks all of my major joints (imagine the feeling of your elbow or knee needing to crack but instead of cracking it just hurts like a mf but is still just as tight), skin, liver, and energy. and the Sjögren's attacks my eyes and mouth. my lacrimal and parotid glands don't produce enough mucus. so i constantly have cottonmouth and my eyes feel like they have sand in them 24/7\. i take heavy immunosuppressants, around 6 different eye drops a day and i have to put a gel on my eyelashes when i fall asleep. when i get sick i break out in chronic hives for a few months before it goes away. when i get flares, my gums become super swollen and bleed, and i constantly get cavities no matter how much i brush. and im constantly worried my liver is gonna fail. and if that doesn't happen, i have a higher chance of getting lymphoma due to the constant inflammation. i.e. \*\*Fuck Lupus\*\***♥ 2source record 1515 **Rheumatoid arthritis. I have lived over half my life with this disease and am currently fighting a flare. When it first struck, I had nights where I would start crying when I woke up because I was in so much pain, but knew that physically rolling over would send shrieking stabs of molten fire through my joints on top of the existing pain. I have had a total knee replacement. In an ankle brace now because my ankle is trying to collapse. Probably getting ankle surgery within 5 years or less. And my feet have developed osteoarthritis just to add to the fun.**♥ 2source record 1584 **PMR**♥ 1source record 1605 **Juvenile arthritis. I got it genetically speaking from my dad who also abused me enough for me to get it at 12\. As a woman it progresses much faster and almost my whole upper body is contaminated. I can't afford treatment or to get diagnosed. All I can do is work and save money to support myself for when I won't be able to, which is realistically my 30s or 40s.**♥ 1source record 1633 **Lupus, fibromyalgia, severe crohns**♥ 2source record 1685 **Sacroiliitis at the onset of COVID. Never had it so bad— was waiting in the doctor’s office rocking back and forth because it was too painful for me to sit, but it’s all I could do-all while febrile and snot nosed.**♥ 1source record 1807 **Lupus. It is with me Every. Single. Day. Pain relievers are of little help, and I am allergic to the “good drugs” that are prescribed for many lupus patients. My joints are in constant pain, I haven’t slept well in decades. There are no cures yet for lupus, and the current administration cut research funding for so many diseases, including lupus. I have an entire constellation of other symptoms in addition to my joint pain. I also have Ehlers-Danlos which adds a whole new level of complications. I wouldn’t wish these conditions on anyone. Unfortunately, I wasn’t diagnosed with either lupus or Ehlers-Danlos until after I had my son. Long story short, my son began transitioning when he turned 18; the hormone therapy exacerbated the underlying genetic anomalies, and now she has debilitating Ehlers-Danlos symptoms. I occasionally wear joint stabilizing devices and sometimes must use a cane, but she has to use them every day. I feel immense guilt for bringing a child into the world, not only for the current environmental state of things but for the disease punishment I inflicted upon her.**♥ 1source record 1816 **Lupus and endometriosis**♥ 1source record 1841 **I live with rheumatoid arthritis. It’s well controlled now, but when it first started up, the pain was indescribable. I once wet my pants because the thought of how much it would hurt to stand up kept me on the couch too long.**♥ 2source record 1852 **I have an autoimmune disease that causes the ligaments in my body to become covered in bone and my lumbar spine is 100% fused now constantly in pain no matter what**♥ 1source record 1987 **I've had Rheamatoid Arthritis since I was 4\. I'm 53\. I have days I wake up crying in pain more than I care to admit. Most of my joints and bones are affected, including my spine. I'm trying to reduce my narcotic. I don't want to take it at all. But they still insist I have it and I need it. But at least I'm ok the lowest dose and down to one a day. I mean I'm still on nerve pain meds and muscle pain meds but still.**♥ 1source record 2057 **Type one diabetes and arthritis**♥ 1source record 2099 **Lupus Joint Flare Up, Kidney Stones, Ruptured Ovarian Cyst**♥ 1source record 2102 **Costochondritis as an onset affect of lupus. My health had been going downhill, and I kept getting this strange sensation that my shirt was too tight in one spot, even if I wasn't wearing a shirt and nothing was touching that spot. Every morning, I woke up stiff and feeling hungover. I tried stretching every day and one day something felt like it shifted in my ribcage and I thought I broke a rib but it was costochondritis. At it's worst, it felt like my rib bones were made of sharp coral, scraping against the inside of my skin. After costochondritis, I started getting all sorts of other shit happening and within 3 years I was diagnosed with lupus and sjogrens. My mom, Grandma who lived to 96, and an uncle all also have lupus.**♥ 1source record 2106 **Ankylosing Spondylitis. Agony.**♥ 1source record 2143 **A variation of Arthritis and I had suffered from 4 to 5 years and cold weather was especially tough for me and in my native state there was no cure or doctor who has had diagnosed the condition only after going out of state did my condition got diagnosed and got proper treatment and even now I cannot do proper sit down**♥ 1source record 2258 **Polymyalgia Rheumatica**♥ 1source record 2374 **Rheumatoid arthritis. Bar none. I broke my finger a few weeks ago and was more annoyed than anything, no tears. Monday evening I began an RA flare-up and was wracked with sobs for a couple of hours, which clearly didn’t help anything. It did make it where I couldn’t breathe well though which did make everything just that much worse.**♥ 1source record 2396 **OA of the R hip prior to my total hip replacement. 1.5 yrs of pain with every step!**♥ 1source record 2404 **Behcets.**♥ 1source record 2409 **Right before I turned 30 I had sudden onset mixed connective tissue disease that was triggered by having Covid. It’s a rare autoimmune disease that has overlap symptoms of multiple autoimmune diseases (lupus, sjogrens, dermatomyositis, rheumatoid arthritis etc) and it attacked almost all the joints in my body in about 2-3 months to the point I was using a cane and wearing wrist braces. I was having so much joint pain in my fingers I couldn’t even hold open a book. Absolutely nuts that the body can just attack itself after 3 decades of laying dormant.**♥ 1source record 2492 **Rheumatoid arthritis**♥ 1source record 2643 **r/psoriaticarthritis in the house**♥ 1source record 2674 **Hip inflammation. It felt like someone was pouring lava on my hips**♥ 1source record 2718 **Undiagnosed rheumatoid arthritis. I felt like my body was turning into cement.**♥ 1source record 2724 **Rheumatoid arthritis. It just hurts everywhere all the time. The worst single incident of pain I ever had was dislocating my hip after a total hip replacement. My brother was with me at the ER. They were going to sedate me, but they told him he should leave the room because it might be hard to watch. They gave me the type of drug where I don’t remember a thing, but he said he sat outside and listened to me scream and beg them to stop for 15 minutes.**♥ 1source record 2801 **Wegener’s Granulomatosis. It’s a rare autoimmune disease with no cure and almost killed me. I’m still going through chemotherapy twice a year and have been on prednisone every day since 2007\. And I had to have a kidney transplant because of it. I’ve been in so much pain that I literally wanted to die.**♥ 1source record 2932 **PMR. No question about it.**♥ 1source record 2957 **Something the doctors were never able to identify and was likely my very first RA flare. I had a high fever and every joint in my body felt like there were hot knives being stabbed into them. I could barely move, needed help to go to the bathroom and dress, and the only thing that eased the pain at all was hot water (showers, baths). I was scheduled to see a rheumatologist but got better, but not before my primary care doc ran a million tests. It was all so weird. I see a lot of responses saying endometriosis. I had it very bad in my teens/twenties and had surgery. I had scar tissue everywhere in my pelvis, including the ligaments holding my thighs to my body. It still wasn’t as bad as whatever the hell this other thing was. Editing to say I’ve also had gallbladder attacks (removed it), appendicitis (removed that), ruptured ovarian cysts, and migraines. Still not as bad as the weird joint thing. I have bursitis and arthritis in my shoulders and some wonky bones in there…still not as bad. And yes, I have a lot of issues. 😆**♥ 1source record 2983 **Psoriatic arthritis…..**♥ 1source record 3092 **SJIA**♥ 1source record 3114 **Post strep reactive arthritis. I got strep, took antibiotics, 14 days after the start of the antibiotics, I was in full body pain. I could not roll over in bed on my own. It took 20 days for the doctor to check so many things. He comes back with polymyalgia or fibromyalgia and sends me to a rheumatologist. The doc disagrees, diagnosed Post Strep Reactive Arthritis and give me 3 months of prednisone. It solved the pain and it never came back, but I ended up with cataracts in my 40’s from the steroids, according to my ophthalmologist.**♥ 1source record 3147 **Lupus...daily**♥ 1source record 3155 **RA, and a triple compression fracture in my t12 vertebrae**♥ 1source record 3179 **Bone degeneration in both hips. Needed replacements before I was 60.**♥ 1source record 3202 **Ankylosing spondylitis**♥ 1source record 3257 **Lupus. Not just the overall constant level 4-5 pain level, but the anticipation of a flare is torture. I never feel safe in my body.**♥ 1source record 3293 **Sarcoidosis**♥ 1source record 3302 **My first lupus flare up**♥ 1source record 3421 **reactive arthritis & gastritis! i found out that i had reactive arthritis in april, i was completely unable to walk and had to take 2 ibuprofen every morning and night just to be able to function, i couldnt get down the stairs, to the bathroom, or even stand up, this lasted about 3 weeks and then gradually started improving, the worst part is that i know if i come down with another illness, it can set it off again. leading from the reactive arthritis, the amount of ibuprofen i took during those few weeks caused me to get gastritis from nsaid overuse, now i cant eat anything. i know it isnt as bad as the people in the comments too, but im only 17 and this all happened within the span of 2 months💔**♥ 1source record 3477 **Having a severe psoriatic arthritis flare-up. I was working security at a medical center. My.desk was right at the front door. It was dead winter, and was -15°F outside with a nasty cold wind. So it felt much colder.. I was fine before my shift. I sat down at the desk. The cold breeze was coming in through the doors every time they opened. Fifteen minutes later, an incredible pain went through my entire body. My joints were completely flared up. The aftermath of all this sucked. I was sick for 3 weeks afterward. I do not recommend this autoimmune disease for anyone.**♥ 1source record 3546 **I have a severe form of Rhumitoid Arthritis, and my major last flare, at its worse; felt like every single bone in both my feet were being smashed at any kind of pressure amd I couldnt stand for about a week. My boyfriend held me up while I hung off him and shuffle/dragged my feet along the floor when I had no choice but get up. Its been 3 years, but I still gringe about that specific flare, it was definitely the worse one Ive had in 20+ years of having this disease**♥ 1source record 3630 **I have systemic lupus. Have had multi-organ failure, pain in joints, torn rotator cuff. All related to the inflammation of my body.**♥ 1source record 3660 **Rheumatoid arthritis, with gout a close second.**♥ 1source record 3714 **Going through it now. Osteoarthritis with both knees bone on bone. Pure agony**♥ 1source record 3733 **Polymyalgia Rheumatica**♥ 1source record 3867 **Lupus**♥ 1source record 3895 **Lupus (SLE) it's providing me with a lifetime of joint pain that that makes osteoarthritis feel like a minor inconvenience**♥ 1source record 3898 **Polycystic Ovary Syndrome, Fibromyalgia and Rheumatoid Arthritis.**♥ 1source record 4032 **Osteoarthritis**♥ 0source record 4059 **Sjögren’s syndrome**♥ 1source record 4086 **Rheumatoid Arthritis and a burst ovarian cyst.**♥ 1source record 4170 **Nothing as severe here, but I have rheumatoid arthritis. It’s so bad I’ve been declared legally disabled. Not much has truly worked to dampen it. After many years I’m fighting to get back into the work field again, but the constant pain and fatigue will be a struggle forever.**♥ 1source record 4250 **I can’t believe I had to scroll this far down to find my peeps. AS is miserable and unrelenting. Suffered without a diagnosis for 14 years before finally finding relief with the correct treatment. That kind of constant pain for that long really takes a toll.**♥ 1source record 4252 **Yeah my bipolar is 100% related to my lupus and lupus medication side effects. I was absolutely normal before all this. I know my Lupus is at least 80-85% related to cptsd.**♥ 1source record 4322 Archive: 72 index entries preserve 72 distinct source records · Every displayed synthesis count resolves to source-record IDs Gout50 index entriesThe answer most often explained through the weight of a bedsheet or a moving current of air. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Gout Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Gout 50 source recordsDisputed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 202 **Appears when:** Gout **What the pattern means:** The group with the most distinctive single image in the corpus: writers do not describe pressure or movement but the weight of a bedsheet, a ceiling fan and moving air, and several say that is what made them cry. The joint is almost always the big toe, the onset is overnight, and crawling between rooms recurs. A second, quieter pattern is misrecognition — several writers spent weeks or months treating it as a sprain or a break before anyone named it. **What commenters described:** Soooo bad, especially if you don't catch it right away and it goes full-fledged. I've never cried from air touching my skin before. **Limit:** Medications, diet changes and injections are named constantly in this group; every one of them is what an individual writer says they were given or tried, and none of it is a recommendation. Nothing here identifies gout or indicates how to manage it. What replies pushed back on5 This, I spent most of yesterday in the hospital getting x-ray and blood tests, Dr's thought it was septic arthritis due to the size my ankle had swollen to and how much pain I was in. Nope it was a severe attack of gout. If someone had offered to chop my foot off with a blunted rusty axe with no pain relief I would have thanked them. Pushback♥ 51 Agree. 0/10 would not recommend. Pushback♥ 1 Dude same! Got my first flare last Christmas, thought I broke something so I threw that shit in a boot called it a day. Some of the worst two months of my life Just had my second flare last month and was diagnosed. Took meds for a week and cut my recovery in half Not even 30 yet wtf. Not unhealthy either, just bad genes ig Reported failure♥ 3 Yeah. Had a kidney stone once, broke my hand once, broke my ankle once. Nothing compares to a bad gout attack. Reported failure♥ 2 Gout. Once or twice a year I get flare ups and it’s always just in the knuckles of the big toe. It hurts, I limp around, try and hydrate as much as possible and take some tart cherry pills and it goes away after a few days. This spring I got a flare up that just kept spreading until it got to my ankle. I couldn’t move my foot let alone put any weight on it. Any little movement or pressure felt like my foot was being crushed. I’ve broken my hip, had a strep infection in the skin of my scrotum that almost killed me, and had a tooth pulled where the Novocain didn’t take and this was by far the most painful thing. I went to urgent care as soon as they opened and had to be wheeled in. The PA examined my foot and said he didn’t know what was wrong and listed all the things it could be. I told him I really thought it was bad gout and I’ve had gout before. He sent me to the hospital and 1 ultrasound, lots of morphine, some blood tests, and my insurance buying a walker 10 hours later I was sent home after being treated for gout. Thankfully by the end of the night the pain had gone down enough I could walk. The next day I felt as good as new. All it took was one tiny pill for gout. I never did use the walker and ended up donating it. Reported failure♥ 1 #### Source-record spotlights Most engaged source This, I spent most of yesterday in the hospital getting x-ray and blood tests, Dr's thought it was septic arthritis due to the size my ankle had swollen to and how much pain I was in. Nope it was a severe attack of gout. If someone had offered to chop my foot off with a blunted rusty axe with no pain relief I would have thanked them. source record 201♥ 51 Later-arriving source Fucking gout is painful and so uncomfortable… posted about 22.9 hours after the source♥ 1 Low-like source Gout. I didn't know air moving over skin could be that painful posted about 3.7 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 50 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 50index entries 50distinct source records 22.6%of parent category 1.3%of the complete index 30top-level comments 20replies #### What commenters explicitly report 1explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 49other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments50 preserved records · 50 of 50 source records accounted for **Gout**♥ 190source record 200 **This, I spent most of yesterday in the hospital getting x-ray and blood tests, Dr's thought it was septic arthritis due to the size my ankle had swollen to and how much pain I was in. Nope it was a severe attack of gout. If someone had offered to chop my foot off with a blunted rusty axe with no pain relief I would have thanked them.**♥ 51source record 201 **Soooo bad, especially if you don't catch it right away and it goes full-fledged. I've never cried from air touching my skin before.**♥ 44source record 202 **There was times I’d a took that toe off with loppers**♥ 29source record 203 **I agree, not much comes close to a full-fletched gout attack. Fortunately once you’ve had some you recognize the signs and can intervene. And intervention with a good anti-inflammatory works pretty well.**♥ 4source record 204 **Got it rn 😭**♥ 6source record 205 **I finally got on a daily medication because I was getting so many attacks. They would appear overnight and basically cripple me, force me to crawl from room to room.**♥ 9source record 208 **not me, but my dad. his gout is probably older than me (im 26). when the weather changes he's basically crippled if he doesn't take his pain meds**♥ 3source record 212 **I’ve only ever had one gout episode, I couldn’t sleep for two days because there was just no comfortable position for my foot. Got a walking boot and some meds, and it faded. Totally revamped my diet after that.**♥ 3source record 213 **Gout**♥ 24source record 352 **So far for me it’s gout in my big toe. It was incredibly painful for a day until I went to the dr for medicine. I updated my diet (removed shrimp and most meat) and haven’t had a recurrence. It felt like shards of glass in my toe.**♥ 5source record 415 **Yes.. and Gout!**♥ 1source record 713 **Yeah, I don't let that shit go anymore. Changing my diet and nearly eliminating alcohol really helped. I haven't had a flare up in about a year. ETA... worst pain of my life. First flare up, I thought I'd just tweaked my foot somehow. A day and a half later, I was in tears and air on my skin hurt.**♥ 3source record 995 **Yes, multiple times I thought I had some bum ligament in my ankle I kept aggravating. Finally had it diagnosed by a doctor and now it only ever really flares up if I'm not well-behaved on a vacation or something - even with Allopurinol for years.**♥ 3source record 996 **Dude same! Got my first flare last Christmas, thought I broke something so I threw that shit in a boot called it a day. Some of the worst two months of my life Just had my second flare last month and was diagnosed. Took meds for a week and cut my recovery in half Not even 30 yet wtf. Not unhealthy either, just bad genes ig**♥ 3source record 997 **Yeah. Had a kidney stone once, broke my hand once, broke my ankle once. Nothing compares to a bad gout attack.**♥ 2source record 1002 **It's absurd that the body can make that much pain. I get that it needs to signal "stop doing that," but a 10/10 pain even when you're doing nothing at all is unnecessary. It's relentless.**♥ 2source record 1013 **I wouldn't put it up there with the suicidal pain described with gallstones, kidney stones, etc., but it was shocking how painful one toe joint could be. 25 years on allopurinol and no attacks since knock on wood.**♥ 2source record 1014 **Not being able to sleep for days, air from the ceiling fan hurts to cause tears and reduced to crawling. Man, fuck gout. Been years since my last attack but there have been a few in my life I would have chosen at the time to be an amputee instead of going on.**♥ 2source record 1017 **Oh my god yes. I was in bed when it happened and just the air of the top sheet approaching my foot made me scream.**♥ 2source record 1029 **Yep - it’s unbelievably bad. Before I got it under control with Allo I would go to my podiatrist when having an unbearable flare. He’d shoot cortisone right into the knuckle of my big toe. You want to talk about pain. Literally almost passed out once. Last time I got one the flare was so bad you could see some of the uric acid crystals come out mixed with blood where he gave me the shot.**♥ 1source record 1175 **Gout—as if the devil is gnawing at your toes.**♥ 2source record 1582 **Gout, no question.**♥ 1source record 1619 **Gout. Worse than giving birth, unrelenting pain for abt 36 hrs. Like someone stabbing your tendon with an ice pick nonstop. No amount of ibuprofen will work for more than 30 minutes. No sleep to be had.**♥ 2source record 1678 **A fun lil stint in the hospital for seizures was the least pleasant. Most painful, however, hands-down, gout. I wouldn't wish it on my worst enemy.**♥ 1source record 1767 **Plantar fasciitis + gout. Both discovered at the same time, on the same foot.**♥ 1source record 1818 **Three way tie between gout, kidney stone and herniated disk in spine with muscle spasms**♥ 1source record 1864 **Gout**♥ 1source record 1877 **Gout (caused by a reaction to medication - messed up my electrolyte levels!) most painful experience of my life. Have flare ups now even though I no longer take the medication involved. Wouldn’t wish it on my worst enemy.**♥ 1source record 1953 **Gout. More painful than child birth imo.**♥ 1source record 1963 **Gout**♥ 1source record 2163 **Gout gout gout**♥ 1source record 2407 **Gout attack after attack for a year— and I couldn’t take any pain relievers because my kidneys and liver are failing. Finally put me on colchicine— it fixed it!!!**♥ 1source record 2589 **Not sure if it’s an illness but the pain of gout made me cry like a baby…**♥ 1source record 2627 **Gout. Wanted to amputate my leg off**♥ 1source record 2868 **Gout. Almost cut my foot off to end the agony. The number of painkillers I took made me pass out by which time the colchicine had kicked in and the pain had lessened.**♥ 1source record 2907 **Gout**♥ 1source record 2995 **Gout**♥ 1source record 3007 **Gout!**♥ 1source record 3381 **Gout. Actually couldn’t sleep even after taking NSAIDs.**♥ 1source record 3519 **Fucking gout is painful and so uncomfortable…**♥ 1source record 3659 **Gout. I didn't know air moving over skin could be that painful**♥ 1source record 3777 **Gout. I get attacks in my big toe, entire thing swells up and I can't bear any weight on it at all. This usually means I have to adjust how I walk, which in turn makes my entire leg ache after a few hours. The worst pain is if something even lightly brushes the top of the knuckle on my toe while I'm having a acute attack. Crippling, blinding pain out of nowhere that intensifies the whole ache of the foot, even on painkillers. I have to rotate paracetamol and ibuprofen every 2 hours for days and then it suddenly just disperses and back to normal. Very rare to get attacks now that I'm on medication, but change in diet will kick it back up.**♥ 1source record 3811 **Gout**♥ 1source record 3845 **Gout. Was always the typical right big toe until I injured me foot. It now makes it's appearances in my right knee. Would much rather have it there than the foot.**♥ 1source record 3946 **Gout**♥ 1source record 3965 **Gout. Much more painful than childbirth, ask any man.**♥ 1source record 3991 **Gout. Once or twice a year I get flare ups and it’s always just in the knuckles of the big toe. It hurts, I limp around, try and hydrate as much as possible and take some tart cherry pills and it goes away after a few days. This spring I got a flare up that just kept spreading until it got to my ankle. I couldn’t move my foot let alone put any weight on it. Any little movement or pressure felt like my foot was being crushed. I’ve broken my hip, had a strep infection in the skin of my scrotum that almost killed me, and had a tooth pulled where the Novocain didn’t take and this was by far the most painful thing. I went to urgent care as soon as they opened and had to be wheeled in. The PA examined my foot and said he didn’t know what was wrong and listed all the things it could be. I told him I really thought it was bad gout and I’ve had gout before. He sent me to the hospital and 1 ultrasound, lots of morphine, some blood tests, and my insurance buying a walker 10 hours later I was sent home after being treated for gout. Thankfully by the end of the night the pain had gone down enough I could walk. The next day I felt as good as new. All it took was one tiny pill for gout. I never did use the walker and ended up donating it.**♥ 1source record 4099 **My dad apparently had it too. Just got my first attack at 28\. If your dad has it, do yourself a favor now and just cut out the alcohol and red meat**♥ 1source record 4256 **I've had gout attacks bad enough that I made sure to unload my guns in case it took a turn for the worse. I can happily take a pill daily if it keeps that level of pain far away from me.**♥ 6source record 4305 Archive: 50 index entries preserve 50 distinct source records · Every displayed synthesis count resolves to source-record IDs Broken bones and crush injuries30 index entriesFractures offered with an explicit note that they are injuries rather than illnesses. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Broken bones and crush injuries Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Broken bones and crush injuries 30 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2113 **Appears when:** Broken bones and crush injuries **What the pattern means:** Offered with an explicit caveat — writers say up front that these are injuries, not illnesses — and interesting mainly for what surprised them. The small bones outrank the large ones in these accounts: a wrist bone beating a broken hip, a tailbone beating everything. The other recurring moment is not the break but the nerve block wearing off afterwards. **What commenters described:** Broken wrist bone. Not one of the arm bones NEAR the wrist, but one of the little bones in the wrist itself (scaphoid in my case). I've been through a major car accident in which I almost died, multiple surgeries for various things, broken hip in a biking accident. Nothing and I mean NOTHING came close to pain from the broken wrist bone. **Limit:** The writers themselves flag that these are injuries rather than illnesses, and most of the group states the injury without describing the pain. Nothing here is a guide to any fracture or its treatment. What the replies added3 Physically? Broken bone. Emotionally/Mentally? Grief. Reported failure♥ 2 Does a broken femur count? Reported failure♥ 1 Broken tailbone taught me how terrible nerve pain is Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint I had to get my gallbladder removed and I agree with everyone on this post. However, after breaking my ankle and having to get reconstructive surgery I would have to say the worst pain would be when the nerve block wore off. The pain meds they gave me didn’t you touch that pain at all! My mom was with me when it wore off… she was worried! She called emt and they came to check me out. They unfortunately couldn’t administer anything for the pain since I had already took my pain meds lol they said they would give me a ride to the emergency room where the hospital could give me more pain meds and watch me. Btw, during all of this I’m screaming and begging for god or whoever to just kill me. Once I got to the emergency room they put pain meds in me and that helped but what a horrible experience I’ll never forget source record 4049♥ 1 #### Source-record spotlights Most engaged source Dislocated shoulder with torn rotator cuff and detached labrum. Getting tobogganed down a mountain with said injuries. source record 468♥ 3 Later-arriving source I had to get my gallbladder removed and I agree with everyone on this post. However, after breaking my ankle and having to get reconstructive surgery I would have to say the worst pain would be when the nerve block wore off. The pain meds they gave me didn’t you touch that pain at all! My mom was with me when it wore off… she was worried! She called emt and they came to check me out. They unfortunately couldn’t administer anything for the pain since I had already took my pain meds lol they said they would give me a ride to the emergency room where the hospital could give me more pain meds and watch me. Btw, during all of this I’m screaming and begging for god or whoever to just kill me. Once I got to the emergency room they put pain meds in me and that helped but what a horrible experience I’ll never forget posted about 25.4 hours after the source♥ 1 Low-like source Broken hip and a fractured hip. Had a hip replacement on the left side and had to get the right hip pinned with 4 bolts or whatever they are. Thankfully, both sides heal great and I have full mobility. posted about 11.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Gallbladder attacks and gallstones“the worst pain” · 9 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Teeth, jaws and mouths“the worst pain” · 6 there](#rich-node-0-group-2-subgroup-4-teeth-jaws-and-mouths) #### What the counts show The exact phrase “when it wore off” recurs across 2 of the 30 source records in Broken bones and crush injuries; the complete archive stays available below. 30index entries 30distinct source records 13.6%of parent category 0.8%of the complete index 30top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 3asks a question 0says they intend to try it 26other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments30 preserved records · 30 of 30 source records accounted for **Dislocated shoulder with torn rotator cuff and detached labrum. Getting tobogganed down a mountain with said injuries.**♥ 3source record 468 **Physically? Broken bone. Emotionally/Mentally? Grief.**♥ 2source record 1389 **Hip fracture!**♥ 2source record 1403 **Does a broken femur count?**♥ 1source record 1617 **Broken tailbone taught me how terrible nerve pain is**♥ 1source record 1797 **Knee popped out of it’s joint (and back in) in a split second while I was running, causing me to fall to the ground. It hurt so bad I had no air. It felt like my knee exploded. I didn’t know what was going on.**♥ 1source record 1892 **Not really an illness, but injuries. Tore my Achilles which was surprisingly painless until surgery (first few post op days). Tore my patellar tendon which was dramatically more painful (hurt as much pre-op as it did post). Broken ribs hurt a lot for 2 weeks, annoying pain for another 4\. Shingles in same area hurt a lot for 3-4 weeks, thankfully no post herpetic neuralgia. Overall, have been pretty lucky.**♥ 1source record 1905 **Not quite a disease but motorbike crash leading to ligament damage. Adrenaline is one helluva drug, because when it wore off I was screaming in agony close to vomiting.**♥ 1source record 1954 **Broken wrist bone. Not one of the arm bones NEAR the wrist, but one of the little bones in the wrist itself (scaphoid in my case). I've been through a major car accident in which I almost died, multiple surgeries for various things, broken hip in a biking accident. Nothing and I mean NOTHING came close to pain from the broken wrist bone.**♥ 1source record 2113 **When I fell and fractured my coccyx bone**♥ 1source record 2221 **Broken ribs**♥ 1source record 2274 **Had a fall and broke my cervical spine. Literally I broke my neck. The pain was indescribably so bad. EMS tried to give me fentanyl- it dropped my blood pressure too bad. The ride to the ER, the wait there was the worst pain ever until I could get pain meds that finally worked.**♥ 1source record 2302 **Fracturing my left elbow. I can't straighten my left arm even after using a splint and going to physical therapy multiple times.**♥ 1source record 2418 **I know it's not an illness but I broke my arm at a trampoline park when I was I think 11\. Thought I was gonna die, thankfully no major trauma for me or anyone else (as there wasn't anyone else there)**♥ 1source record 2481 **Run over by a truck while walking to the store and broke both legs, ribs, spleen busted, and knee ligaments and such torn. That was in 2014\. I'm still chronically in pain**♥ 1source record 2572 **Broke two vertebrae. That kind of sucked.**♥ 1source record 2587 **Broken ribs (twice, once on the left, and once on the right several ribs each time) were 10 out of 10\. The second-degree burn was a 10 out of 10\. The kidney stone was a 10 out of 10\. The endometriosis was a 9 1/2 out of 10\. My life stinks, lol.**♥ 1source record 2688 **I broke my shoulder in 3 places and a rotary cuff tear. I tripped over a crack in the driveway.**♥ 1source record 2749 **Pale in comparison, but I broke my collar bone and the first 4 weeks were hell. The dr at the hospital wouldn't even give me naproxen, he said "it's not a compound fracture... but 4 weeks of incapacitating pain. Also had a few broken ribs.**♥ 1source record 2750 **Avulsion Fracture.**♥ 1source record 2909 **Going through it now. Open fracture of the tibia and fibula. On 3rd month in hospital and just had my 9th surgery a week ago.**♥ 1source record 2946 **Not an illness but I fell down the stairs at my friend's house, dislocated my talus, and broke my ankle in 17+ spots. My foot was at a right angle and it left me with permanent nerve damage because my ankle didn't get put back in place for almost 24 hours. Worst pain I've ever felt in my life and the hospital didn't prescribe pain meds when I got discharged 🙄**♥ 1source record 3067 **Spontaneous fracture L2/3**♥ 1source record 3343 **Dislocating my hip was the only thing that hurt more than endometriosis, though I honestly thought the dislocation was cramps for a while. Migraines are also really horrific. Dislocating your shoulder also sucks. As does getting bit by a black widow.**♥ 1source record 3561 **Not sure if this counts, but i fractured my tailbone while innertubing a few years back I have never been in that much lingering, lasting pain. My butt was thoroughly cracked. All crack, no cheek, boulder to the bone. I still cant sit for too long without there being soreness/stiffness.**♥ 1source record 3600 **Try sneezing with a broken rib and punctured lung.**♥ 1source record 3613 **Broken hip and a fractured hip. Had a hip replacement on the left side and had to get the right hip pinned with 4 bolts or whatever they are. Thankfully, both sides heal great and I have full mobility.**♥ 1source record 3836 **Two broken sgoulders**♥ 1source record 3951 **I had to get my gallbladder removed and I agree with everyone on this post. However, after breaking my ankle and having to get reconstructive surgery I would have to say the worst pain would be when the nerve block wore off. The pain meds they gave me didn’t you touch that pain at all! My mom was with me when it wore off… she was worried! She called emt and they came to check me out. They unfortunately couldn’t administer anything for the pain since I had already took my pain meds lol they said they would give me a ride to the emergency room where the hospital could give me more pain meds and watch me. Btw, during all of this I’m screaming and begging for god or whoever to just kill me. Once I got to the emergency room they put pain meds in me and that helped but what a horrible experience I’ll never forget**♥ 1source record 4049 **dislocated my hip when i was 13, and boy oh boy it was genuinely the worst thing i have ever experienced in my life. i was in physio for 2 years and have lasting back issues because of it**♥ 1source record 4093 Archive: 30 index entries preserve 30 distinct source records · Every displayed synthesis count resolves to source-record IDs Fibromyalgia29 index entriesWidespread pain described as permanent and, repeatedly, as disbelieved. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Fibromyalgia Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Fibromyalgia 29 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3644 **Appears when:** Fibromyalgia **What the pattern means:** The recurring subject is not the pain but the relationship with medicine around it. Writers describe having run out of treatment options, being told the condition is imaginary, and having stopped going to doctors at all. The pain itself is described as everywhere and as amplifying other things — several writers say fibromyalgia makes every other illness they have hurt more, and one says it has made her stop investigating new symptoms. **What commenters described:** I have fibromyalgia, have had for many years and am at a point where I don't have any medication to help with relief of it anymore. Most of the pains I can cope with as I have a high pain threshold but when the bone ache kicks in it completely takes over, the intense pain, like the worst toothache but in the bones, makes me feel sick, and I have no choice to cope until it stops which can be a few hours or days, it will start out of nowhere and leave the same. I hate it but I have no choice because it won't ever stop happening and that's alongside all the rest of the pains I deal with, also it makes breathing hurt some days too. **Limit:** Fibromyalgia appears alongside other diagnoses in most of these records, so which condition any writer is describing is not always separable. Medications and supplements named here are personal reports; nothing in this group identifies fibromyalgia or indicates a treatment. What the replies added2 Fibromyalgia is very painful. Believe it or not, there is starting to be some research into Glp1 medicine working to lower inflammation and lessen fibromyalgia pain. I only found this out because I started a glp1 for my PCOS and within 3 days after my very first dose, I woke up with a large reduction in my pain. Yes, you would lose some weight. No, it doesn't have to be a lot. It's possible to keep a low dose and get relief. I got relief starting at 2.5 mgs. I increased my dose because I also have insulin resistance and PCOS. So I'm on a higher dose. But, I been able to maintain that dose for multiple months now and stabilize my weight. I know that can be a concern for some people because the people that they know are on Glp1s are those that take it too far and become anorexic/unhealthy. From the replies♥ 23 In a flare for the last few months. Living the dreeeaaaammm From the replies♥ 9 #### Where commenters report limits Explicit limit or counterpoint I have Fibromyalgia and EDS, unfortunately they play off each other so…both? source record 419♥ 7 Explicit limit or counterpoint Fibromyalgia… it makes all the other pains/illnesses hurt more than they should. Unfortunately it also means that I end up thinking I’m having a heart attack when it’s just gas… or I think one of my organs is going to split open when I just ate something that didn’t agree with me. Now I assume every severe pain is just nothing, so I don’t bother to get it checked out. source record 2900♥ 1 #### Source-record spotlights Most engaged source In a flare for the last few months. Living the dreeeaaaammm source record 366♥ 9 Later-arriving source Fibromyalgia… it makes all the other pains/illnesses hurt more than they should. Unfortunately it also means that I end up thinking I’m having a heart attack when it’s just gas… or I think one of my organs is going to split open when I just ate something that didn’t agree with me. Now I assume every severe pain is just nothing, so I don’t bother to get it checked out. posted about 32.9 hours after the source♥ 1 Low-like source Fibromyalgia. Diagnosed at 21\. It’s a life sentence posted about 4.0 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 29 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 29index entries 29distinct source records 13.1%of parent category 0.8%of the complete index 27top-level comments 2replies #### What commenters explicitly report 0explicitly reports a benefit 3explicitly reports a limit or failure 0asks a question 0says they intend to try it 26other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments29 preserved records · 29 of 29 source records accounted for **fibromyalgia**♥ 43source record 364 **In a flare for the last few months. Living the dreeeaaaammm**♥ 9source record 366 **I have Fibromyalgia and EDS, unfortunately they play off each other so…both?**♥ 7source record 419 **Fibromyalgia before I got my meds figured out. Oh, and my appendix trying to off me.**♥ 6source record 433 **Fibromyalgia**♥ 2source record 436 **Depression and fibromyalgia**♥ 4source record 437 **Fibromyalgia**♥ 3source record 463 **Still trying to figure out what it is, but it's looking to be Fibromyalgia or maybe early onset Polymyalgia Rheumatica...**♥ 1source record 1559 **Severe fibromyalgia flare. Horrific full body pain from my scalp all the way to the bottom of my feet that lasted for weeks.**♥ 2source record 1588 **Fibromyalgia**♥ 1source record 1813 **Fibromyalgia pain**♥ 1source record 1845 **Juvenile Fibromyalgaia as a result of Hypermobile Ehler’s Danlos Syndrome. Basically a painful chronic condition made it so my nerves occasionally light on fire because I was in so much pain constantly that my body interpreted that as normal and so gives me pain without reason or cause. (I was diagnosed at 17 or 18 and post puberty so realistically I could have been diagnosed with regular fibro but I was diagnosed at a children’s hospital)**♥ 1source record 2786 **Living through it right now Fibromyalgia**♥ 1source record 2792 **Fibromyalgia… it makes all the other pains/illnesses hurt more than they should. Unfortunately it also means that I end up thinking I’m having a heart attack when it’s just gas… or I think one of my organs is going to split open when I just ate something that didn’t agree with me. Now I assume every severe pain is just nothing, so I don’t bother to get it checked out.**♥ 1source record 2900 **So far, fibro flare and migraine when they hit together. . And I've had minor endometriosis, my baby tried to come out vaginally when that wasn't possible, 4 miscarriages, and pulled the muscles on both sides of my lower spine which made it so I couldn't walk for a few days. Not that I recommend any of it, but fibro flare and migraine together have been the worst.**♥ 1source record 3056 **I was diagnosed with fibromyalgia a while back but I'm doing better now :)**♥ 1source record 3119 **Fibromyalgia. Diagnosed at 21\. It’s a life sentence**♥ 1source record 3211 **Fibromyalgia. Chronic. Pain. All day. Every day. I now have vestibular migraines as well. And when you have vertigo you cannot function. No one understands unless you’ve experienced it. But I guess that’s true for every pain.**♥ 1source record 3337 **Fibromyalgia and psoriatic arthritis**♥ 1source record 3429 **I have fibromyalgia, have had for many years and am at a point where I don't have any medication to help with relief of it anymore. Most of the pains I can cope with as I have a high pain threshold but when the bone ache kicks in it completely takes over, the intense pain, like the worst toothache but in the bones, makes me feel sick, and I have no choice to cope until it stops which can be a few hours or days, it will start out of nowhere and leave the same. I hate it but I have no choice because it won't ever stop happening and that's alongside all the rest of the pains I deal with, also it makes breathing hurt some days too.**♥ 1source record 3644 **I have fibromyalgia and I raw dog it most of the time cause my doctor is stupid. The bone aches make me wanna curl up and die**♥ 2source record 3645 **I have fibromyalgia, hypermobility, and PCOS (PMOS). I take birth control to maintain regular periods (b/c I go years between them otherwise). When that withdrawel bleed happens and that drop of hormones occurs, I don't want to move because everthing hurts.**♥ 1source record 3740 **Fibromyalgia and endometriosis in combination**♥ 1source record 3752 **Long term, Fibromyalgia, shorter ones, gallbladder and pain from a certain birth control device that has since been taken off the market (and litigated, hence the not naming it).**♥ 1source record 3899 **Fibromyalgia. I have debilitating widespread body pain every single day**♥ 1source record 3925 **Fibromyalgia, Rheumatoid Arthritis, Child birth (vaginally), mono in 7th grade- in that order**♥ 1source record 3939 **Fibromyalgia :(**♥ 1source record 3957 **Fibromyalgia**♥ 1source record 4010 **Fibromyalgia**♥ 1source record 4171 Archive: 29 index entries preserve 29 distinct source records · Every displayed synthesis count resolves to source-record IDs Tendons, joints and the bones that gave way40 index entriesFrozen shoulders, torn tendons, bursitis and bone that lost its blood supply. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Tendons, joints and the bones that gave way Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Tendons, joints and the bones that gave way 40 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2262 **Appears when:** Tendons, joints and the bones that gave way **What the pattern means:** The frozen-shoulder accounts dominate and share a single complaint: not intensity but length, measured in years, with sleep as the thing lost. Around them sit bursitis, tenosynovitis, torn tendons and bone that lost its blood supply. Two details recur across the group — a cortisone injection described as more painful than the condition, and writers who have given birth ranking a shoulder above it. **What commenters described:** Frozen shoulder syndrome. Worse than labor and dental pain combined and lasted months. **Limit:** Recovery in this group is described over years and with contradictory results from the same treatments, so no outcome here is the expected one. Injections, physiotherapy and hormone therapy are named as what individual writers tried, not as options being recommended. What the replies added1 I don’t know if this classifies as illness but frozen shoulder. And the scariest part once you have had it you are more likely to have it again. I have had 4 kids gall bladder attack broken ankle nothing will ever compare to this pain. Reported failure♥ 1 #### Source-record spotlights Most engaged source Bursitis in my hip & femur bones. Couldn't sleep, could barely walk to go to the bathroom. source record 1683♥ 2 Later-arriving source I remeber Synovitis (fluid under kneecap) was excruciating. I couldnt walk or hardly move. Definatley couldnt sleep cuz every time i tried to roll over it made me scream out from pain. posted about 29.0 hours after the source♥ 1 Low-like source Frozen shoulder syndrome. Worse than labor and dental pain combined and lasted months. posted about 3.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 40 source records, the most common observable tactic structure is “Attach it to an existing routine” (5 records). This is a wording pattern, not a measured outcome. 40index entries 40distinct source records 18.1%of parent category 1.1%of the complete index 37top-level comments 3replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 1asks a question 0says they intend to try it 39other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **5** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments40 preserved records · 40 of 40 source records accounted for **Bursitis in my tail bone. Had to get cortisone shots and it was awful.**♥ 2source record 1377 **i get muscle spasms in my back about twice a year on average. ill be stuck in bed in miserable pain for over a week. i get perscribed muscle relaxers when i have them now**♥ 2source record 1589 **Shoulder pain.**♥ 1source record 1608 **XLH - A rare bone disease that fractures any and many bones in my body along with early osteoarthritis. Already need a 3rd hip surgery for a total hip replacement in both legs at the ripe old age of 33 🫤**♥ 2source record 1665 **Bursitis in my hip & femur bones. Couldn't sleep, could barely walk to go to the bathroom.**♥ 2source record 1683 **Avascular necrosis but ngl depression is close**♥ 1source record 1724 **Currently recovering from torn ligaments. Whilst the physical pain isn’t great it’s more the mental pain. Can’t do anything I enjoy for a while - walking my pooch, football and running. Human body is truly frail.**♥ 1source record 1828 **I had a severe shoulder pain in 2023\. It started early in the year and lasted for several months. Doctors said it was due to age and diabetes. My shoulder labrum tissue had degraded. There was some days it was so painful I couldn't sleep.**♥ 1source record 1879 **I have two: 2\. Rheumatoid arthritis flare up in my neck and hands. Worse that that: Multiple torn tendons in my shoulder. Surgery to repair was excruciating. One month later, developed septic arthritis in my newly repaired rotator cuff which I'm still on PICC line antibiotic infusions for as I type this. I am in agony, but hopefully will see the light at the end of the tunnel soon.**♥ 1source record 1903 **Torn meniscus but not enough for surgery. Felt like my knee was on fire especially when I would lay down for the night which meant I couldn’t sleep. No painkiller worked and one doctor low key accused me of drug seeking. Went to another who gave me a cortisone shot and I got immediate relief.**♥ 1source record 1993 **Frozen Shoulder**♥ 1source record 2240 **Frozen shoulder syndrome. Worse than labor and dental pain combined and lasted months.**♥ 1source record 2262 **Yep. Got it because playing too much piano and it lasted almost 3 years. Impossible to sleep in bed, just crooked on my couch, weird unconscious posture with my hand and arm. It vanished once I stoped stomping the piano. No medicine or painkillers though; I rawdogged the pain.**♥ 2source record 2263 **Frozen shoulder was a beast. Lasted over 2 years and the long, sleepless nights were horrible. I practically lived with a heating pad attached and got burns from the combo of pad plus Icy Hot. Went through it twice but the second time damn near took me out.**♥ 1source record 2426 **gonna take illness as something that causes reoccurring pain, my seemingly “loose” tendons, muscles, and ligaments, i have carpal tunnel in both arms, and arthritis in all 10 fingers, i pulled a tendon in my shin when i was 13, now 21, it has yet to fully heal and i cannot run without excruciating pain in my leg.**♥ 1source record 2435 **Not really an illness per se...but pulled a muscle in my lower back....was so painful and layed up in bed for 10 days!**♥ 1source record 2588 **So true, I got it a few months after significant post operative complications which caused a very deep wound and treatment with a wound vac, and the frozen shoulder hurt multiple times worse than both my original surgery and wound care.**♥ 1source record 2611 **Chronic hip pain… got kicked and trampled by a horse when I was 6, never went to thr doctor because I never told anybody, and so when I grew.. I grew weird and now Im just in constant agony with each step**♥ 1source record 2747 **Frozen shoulder…as bad as childbirth, but lasted 2.5 yrs and no baby prize at the end.**♥ 1source record 2757 **Calf cramps fucked me up**♥ 1source record 2819 **Frozen shoulder. Completely horrible, painful, terrible, and debilitating.**♥ 1source record 2936 **cramps in my right leg, both upper and lower. Gets me every time.**♥ 1source record 2943 **Avascular necrosis. I have had kidney stones and chronic appendicitis and avascular necrosis beats all of that by miles. I am in excruciating pain to the point of passing out at times.**♥ 1source record 3024 **I have a condition that makes my tendons and ligaments all fucked up. Sometimes, when I wake up and involuntarily stretch in the morning, I pull my achilles in a way that results in literal screaming and being immobilized for a day or more. I once had surgery without anesthesia (an infected cyst about the size of a goose egg) and the leg pull thing was worse.**♥ 1source record 3082 **Pigmented villonodular synovitis. I got it senior year of highschool, and It ate away all my hip lining till it was bone on bone as my joint ground itself down. Imagine a bunch of jelly fingers waving around in inflamed synovial fluid and bone dust. It Would get so inflamed that I would have to drag my leg simply because I couldn’t use it. it took about few years to figure out what I had and another few for me to “ride it out” until it was truly to bad to function before I got my full hip replacement.god knows how many needles they put in me… had it finally removed in 2020, and the pain of healing was also a great challenge. shit happens I guess lol.**♥ 1source record 3153 **Plantar fasciitis**♥ 1source record 3227 **Avascular necrosis of both hips**♥ 1source record 3306 **Plantar fascitis for 5 years because of a misdiagnosis from a podiatrist 💫 fun**♥ 1source record 3480 **Torn tendons in my knee. I happened while I was in Germany. They don't give narcotics. I had to travel home with no real pain meds.**♥ 1source record 3625 **I had tenosynovitis. The first treatment was a cortisone shot. As the doctor extended my wrist and pushed the needle through the layers of whatever in my wrist, the nurse said, “Are you doing ok?” and I replied, “Can you tell by my face….” Next thing I remember is the same woman trying to hold me up from falling out of the chair and the doctor holding smelling salts under my nose. I didn’t know you could actually pass out from pain until that day.**♥ 1source record 3634 **I remeber Synovitis (fluid under kneecap) was excruciating. I couldnt walk or hardly move. Definatley couldnt sleep cuz every time i tried to roll over it made me scream out from pain.**♥ 1source record 3668 **I don’t know if this classifies as illness but frozen shoulder. And the scariest part once you have had it you are more likely to have it again. I have had 4 kids gall bladder attack broken ankle nothing will ever compare to this pain.**♥ 1source record 3709 **Right now I’m dealing with a hip that popped out of place after being on the cusp for \\\~3 weeks and then I popped it back in and it has been sore but then tripped and fell and I heard a crack and I have like grinding feeling in my hip bone. This is pretty crappy but still not as bad as a migraine.**♥ 1source record 3819 **Acl tear with bone bruises**♥ 1source record 3875 **Bone pain**♥ 1source record 3956 **Quite recently, a rotator cuff problem (inflammatory apparently, as it completely resolved within a few weeks) Trying to put on a shirt made me cry, as did turning around in bed. Thankfully, the worst of it was over within a couple of weeks and now I’m fine, knock on wood.**♥ 1source record 4044 **Not an illness but i tore my left lat at the spine and the muscle spasms that proceeded were the most painful thing i ever experienced.**♥ 1source record 4117 **Calcified tendinitis of my right shoulder. Holy hell.**♥ 1source record 4133 **Frozen shoulder at 40yo. Even if you break your scapula people keep your shoulder moving**♥ 1source record 4162 **I took oral and injected steroids with no meaningful relief. I didn’t take painkillers, either, but I did eventually go to physical therapy with minimal results. It took me about three years to get back to my full range of motion as well. I started HRT during that time because I wanted to minimize my chances of getting it again.**♥ 1source record 4353 Archive: 40 index entries preserve 40 distinct source records · Every displayed synthesis count resolves to source-record IDs Infections481 records · 10 sub-topicsIllnesses that came from outside — a childhood virus caught in adulthood, a tick bite that took years to name, a fever abroad. 481 records. Meningitis and encephalitis43 index entriesThe headache a number of writers place above everything else they have ever had. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Meningitis and encephalitis Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Meningitis and encephalitis 43 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1666 **Appears when:** Meningitis and encephalitis **What the pattern means:** The group most willing to rank itself first outright. Writers who have also had childbirth, kidney stones and a ruptured gallbladder put meningitis above all of them, and the description is unusually consistent: a headache that made standing upright impossible, a neck that could not be moved, and opioids that did nothing. Several describe wanting to die and saying so. The recurring aftermath is the lumbar puncture — repeated, sometimes botched, and in several accounts worse than the illness. **What commenters described:** Meningitis, no contest. Worst pain I have ever felt in my entire life, and I've given birth and had my gallbladder erupt. Get the vaccine if offered. You can die from it, but even if you don't, you want to. **Limit:** Bacterial, viral and recurrent cases are grouped together here although they differ in cause and outcome, and several writers say they were never formally diagnosed. Vaccination is raised repeatedly by commenters and is not endorsed or assessed here. Nothing in this group identifies meningitis. What the replies added1 Was going to say meningitis, but couldn't decide between that and when I broke my back. Needless to say, both sucked really badly. Reported failure♥ 1 #### Source-record spotlights Most engaged source Meningitis, spent 3 months in a hospital with the worst fever and headaches I've ever had. Kept relapsing, weekly spinal taps were horrible source record 300♥ 32 Later-arriving source Meningitis. I still remember screaming when my chin dipped even the most miniscule amount. posted about 2 days after the source♥ 1 Zero-like source Meningitis, shingles, migraine, kidney stones. In that order. posted about 8.2 hours after the source #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 43 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 43index entries 43distinct source records 8.9%of parent category 1.1%of the complete index 37top-level comments 6replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 43other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments43 preserved records · 43 of 43 source records accounted for **Meningitis, spent 3 months in a hospital with the worst fever and headaches I've ever had. Kept relapsing, weekly spinal taps were horrible**♥ 32source record 300 **I had meningitis while I was 7 months pregnant. All they could give me was Tylenol and an ice pack 😭. The rigors were the worst part —absolutely terrifying.**♥ 3source record 1184 **Was going to say meningitis, but couldn't decide between that and when I broke my back. Needless to say, both sucked really badly.**♥ 1source record 1252 **i had West Nile Meningitis in 2012, fever reached 105\. they could only give me IV pain meds which then i threw them up and could only put ice packs around my body to cool me off. i was in the hospital for several months. couldn’t walk lost about 20 lbs. horrible. horrible. horrible.**♥ 1source record 1261 **I don't have to imagine. I've had viral meningitis and two ruptured lumbar discs. Pain is pain is pain. Whatever your experience is, the worst is the worst.**♥ 1source record 1365 **Recurrent meningitis. Truly miserable. Although I’ve heard kidney stones are… something.**♥ 2source record 1497 **Snap! Two years nearly since my 5th and most recent episode. Only made worse by the ER deciding I was bullshitting and was just opioid seeking. Resulted in 36 hrs being offered just paracetamol and treated like shit on a shoe. Obviously it all changed when the lumber puncture proved them wrong.**♥ 1source record 1498 **Viral meningitis**♥ 1source record 1603 **Viral Menengitus**♥ 1source record 1642 **Meningitis, no contest. Worst pain I have ever felt in my entire life, and I've given birth and had my gallbladder erupt. Get the vaccine if offered. You can die from it, but even if you don't, you want to.**♥ 2source record 1666 **Meningitis. Went to the hospital weighing 170\. Came out 9 or 10 days later weighing 133\. They shot me up with morphine every 3 hrs for 9 days. I very very nearly died.**♥ 2source record 1675 **Meningitis**♥ 1source record 1899 **Viral meningitis. The headache was constant for days.**♥ 1source record 1992 **Viral Meningitis**♥ 1source record 2001 **Meningitis. I'm a lifelong migraine sufferer, migraines don't come close to the headache.**♥ 1source record 2116 **viral meningitis behaving like a bacterial. there was nothing they could do for me at the hospital other than load me up with meds and I was still in excruciating pain all over my body from my back.**♥ 1source record 2138 **Viral encephalitis. 0 stars**♥ 1source record 2158 **I’m pretty sure I had some sort of meningitis in high school (My parents didn’t take me to a doctor, so I’m not certain). It was the worst headache of my life, my neck was so stiff I couldn’t turn my head or breathe while lying down. It was the only time I have ever had fever-induced hallucinations.**♥ 1source record 2170 **Meningitis, however it’s spelled. Literally every step I took was pain and that fever was horrendous**♥ 1source record 2196 **Meningitis**♥ 1source record 2243 **Viral meningitis. I thought i was gonna die from my brain overheating. Definitely lost some brain cells after that.**♥ 1source record 2472 **Bacterial meningitis**♥ 1source record 2545 **In descending order- Meningitis Migraine Lyme disease COVID with headache**♥ 1source record 2606 **Bacterial spinal menengitis**♥ 1source record 2698 **Meningitis**♥ 1source record 2710 **Viral Meningitis, only saving grace was that it wasn't bacterial or I'd probably be dead**♥ 1source record 2722 **West Nile (viral meningitis). Lymes (also viral meningitis). Fun fun.**♥ 1source record 2745 **Meningitis. I was begging the doctors to put me in a coma.**♥ 1source record 2866 **Spinal meningitis is number 1, with severe sepsis at number 2\. I wound up with spinal meningitis at 19 while in college. Went to the doctor with a headache so bad I couldn’t stand up straight and a fever that spiked to 106°. Thought I had the flu—went to my family doctor who sent me straight to the ER, where they shipped me up to a room in ICU and quarantined me for 4 days. I thought I was literally going to be blind if I recovered, the pain in my head and eyes was so bad. Two years ago I got sick just before Thanksgiving. Thought it was just a respiratory infection, so I waited a couple of days before I contacted my doctor. He sent me straight to ER - I was in kidney failure, kidney stones blocking both kidneys and function at 22%. I wound up in Afib and had to be cardioverted to shock my heart back into rhythm. I spent a week in ICU. I have a history of kidney stones; no one told me they can literally kill you. The doctor told me later they weren’t sure they could save me when they started on me in the ER. I still think I may have experienced an out-of-body moment while in that ICU room. The kidney stones I have had over the years still didn’t match the pain of the spinal meningitis.**♥ 1source record 3077 **Viral Meningitis. Needed multiple spinal taps due to botched attempts. Felt like my head was exploding for 72 hours and screamed in agony in the ICU for the duration. Was being pumped full of dilauded and all the good stuff and nothing helped. Also had a Myocarditis which lead to 15 hour of heart attack and that paled in comparison. Actually probably less intense than passing kidney stones at home. None of anything I endured compared to meningitis in my brain.**♥ 1source record 3125 **Viral meningitis. I had mumps too but don’t remember the pain, only the doll my dad bought me :)!**♥ 1source record 3232 **Viral meningitis**♥ 1source record 3321 **Definitely Meningitis**♥ 1source record 3461 **Meningitis**♥ 1source record 3473 **The headaches that came with meningitis, was only 5 at the time but the pain was excruciating**♥ 1source record 3501 **Meningitis. I still remember screaming when my chin dipped even the most miniscule amount.**♥ 1source record 3571 **Bacterial meningitis. Worst headache of my life. It felt like someone was inside my head with a hammer using to get out. Spent three days in the hospital on morphine the entire time with the hospital staff dressed in hazard suits.**♥ 1source record 3580 **Viral meningitis hands down.**♥ 1source record 3779 **Menegitis**♥ 1source record 3784 **Meningitis**♥ 1source record 3868 **Meningitis**♥ 1source record 3935 **I had viral meningitis at age 19 before the vaccines were available for the bacterial version. It didn't make any difference. I wanted to die anyway. There is no pain medication made that will take away the agony from that. I was admitted to the hospital on the 41st anniversary of the day my grandmother died from meningitis.**♥ 1source record 4292 **Meningitis, shingles, migraine, kidney stones. In that order.**♥ 0source record 4422 Archive: 43 index entries preserve 43 distinct source records · Every displayed synthesis count resolves to source-record IDs Sepsis and septic shock31 index entriesAnswers where the illness turned systemic, often after something else on this page. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Sepsis and septic shock Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Sepsis and septic shock 31 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2748 **Appears when:** Sepsis and septic shock **What the pattern means:** Rarely the first illness in these accounts — sepsis is what happened next, after a kidney stone, a wound, a tooth, a gallbladder. The descriptions are whole-body rather than local: every joint, every muscle, and an inability to find any position. The recurring theme is how long the recovery took, with several writers describing relearning to walk, and how close they say they came without realising it. **What commenters described:** Sepsis. Ain’t nothing like it. I had to learn how to walk again while spending 15 days in the hospital. At 39 in good-ish shape, running 20-ish miles a week. Sepsis destroyed me. I was a few hours away from organ failure according to the docs, because I was too stubborn to go in to the ER. I’ve had gallbladder removal, pneumonia, broken bones, torn knee ligaments, dislocated hip, and sepsis was gnarly. **Limit:** These are the accounts of people who survived, written afterwards, and several say they did not know what was happening at the time. Nothing here is a way to recognise sepsis, and delay is described rather than advised against on any authority but the writers' own. What the replies added3 Hahahahaha It’s so funny looking down the comments for this topic because apparently I’m a collector. I’ve had: Gallbladder attack Kidney stone Shingles Not quite a cluster headache, but a really bad one (Don’t know what caused it, it only happened once, but I was sobbing for hours through the night unable to last more than a couple seconds at a time without sobbing because it hurt so much. I almost went to the ER but after 7 hours it reduced in pain enough for me to sleep) Sciatica Tooth infection Bowel blockage from Crohn’s Depression CPTSD Interestingly, I would judge my most painful as not any of those, though don’t get me wrong, all can hurt BRUTALLY in different ways. For me it’s weird but…sepsis? One of the times I was in the hospital with sepsis due to surgery going poorly, I had various drains in me and apparently one of them slipped or something. Whatever happened, I lost the ability to speak or act it was so painful. The doctors all rushed in and I got to experience going from a patient who is informed and part of the process to a broken object they are trying to figure out what’s going on and fix before my vitals crash further. Ended up going into one of the weirdest surgeries I can remember, where they basically had me in some sort of imaging machine and were taking constant updated images trying to figure out what was going on while also cutting me open a little to manipulate stuff, and I was given conscious sedation so I could feel everything plus or minus the massive amount of pain killers on board. Despite not experiencing the full pain of that surgery, it was still very unpleasant for me. It was as “simple” as finding which drain got dislodged and re-placing it? I think? My memories of that time are very hazy as you might imagine, and I never got an external perspective because my family wasn’t really paying much attention to me in the hospital. Reported failure♥ 1 Sepsis. Ain’t nothing like it. I had to learn how to walk again while spending 15 days in the hospital. At 39 in good-ish shape, running 20-ish miles a week. Sepsis destroyed me. I was a few hours away from organ failure according to the docs, because I was too stubborn to go in to the ER. I’ve had gallbladder removal, pneumonia, broken bones, torn knee ligaments, dislocated hip, and sepsis was gnarly. Reported failure♥ 1 Sepsis. Septic shock to be exact. No words. Ruined me permanently. I was 18\. I lost my life to it. Fuck sexual abuse. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint 1\. Severe sepsis-whole body was in so much pain I couldn't even move for 3 weeks. It had attacked my whole central nervous system, heart, lungs, everything. I had to learn how to walk again. Was in the hospital for a total of 5 weeks but was many months before I was back to normal, however, I am a former heroin addict who was actually off of the heroin when I got sepsis, but because the hospital put me on a button of Dilaudid that I could push every 4 hours for 5 weeks straight, no weening before they discharged me. I was dope sick when I left the hospital and immediately went to get heroin as soon as I got to my car, not totally blaming it on the hospital cuz I was grown but they were told I had this problem, I feel like I was kinda set up to relapse, which I did, big time. Which leads me to my next painful illness... 2\. Opiate withdrawal-even if it is self inflicted it doesn't mean it wasn't some of the worst hell I've ever been thru in life.... unfortunately on multiple occasions. I could share details but u would rather not know them. Glad, not proud, but glad to say that I haven't touched them in nearly 6 years now. If I had to go thru withdrawals again, I don't think I would live thru it. People like to say you can't die from opiate withdrawals....bullshit. absolute bullshit. When u can't keep one sip of water or even a lick of s Popsicle down for 6-7 days, and are throwing up stuff from ur body u didn't eat or know existed, turns out ur kidneys start to shutdown. I found out the hard way. And when kidneys shut down, ur done. 3\. DRY SOCKET-DONT GET UR WISDOM TEETH EXTRACTED IN POCATELLO, IDAHO. I CAME OUT THE SURGERY WITH DRY SOCKET AND IT WAS LIKE SOMEONE WAS STABBING ME THROUGH MY HEAD AND TOOK MONTHS TO HEAL THE HOLE IN MOUTH THST I HAD TO CONSTANTLY CLEAN SO IT WOULDN'T HEAL UP WITH FOOD INSIDE IT. 4\. Cracked Ribs, boyfriend chopped off finger tip when he slammed the front door on it, gout, getting my biceps cut open and half removed due to infection and the doctor giving me literally nothing for pain due to my drug history-6 inch incisions each, crazy ear infections.... What doesn't kill u makes u stronger is what they say but if that was the case, I would have changed genders and tried out for strongman competitions I think lol source record 3271♥ 1 #### Source-record spotlights Most engaged source I was a day away from developing sepsis that's the most painful illness I've had source record 431♥ 5 Later-arriving source Sepsis - felt like every joint in my body was going to explode. Followed closely by kidney stones. At least kidney stones were just pain, and not feeling like I was going to d!e while also being in pain lol posted about 3 days after the source♥ 1 Low-like source Sepsis. Felt like I was dying. Spoiler: I was dying. Once they stopped me from actively dying, I got all the fentanyl I wanted. The pain was so unbearable that I ended up with a significant amount of fentanyl until I put myself to sleep/unconscious. posted about 3.2 hours after the source♥ 1 #### What the counts show The exact phrase “sepsis felt like” recurs across 3 of the 31 source records in Sepsis and septic shock; the complete archive stays available below. 31index entries 31distinct source records 6.4%of parent category 0.8%of the complete index 31top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 1asks a question 0says they intend to try it 29other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments31 preserved records · 31 of 31 source records accounted for **I was a day away from developing sepsis that's the most painful illness I've had**♥ 5source record 431 **Sepsis**♥ 3source record 439 **Sepsis**♥ 2source record 1386 **Sepsis, can't recommend.**♥ 2source record 1402 **Sepsis. Nearly died.**♥ 2source record 1472 **Sepsis, 5 times and it’s always more painful than I remember.**♥ 2source record 1575 **Sepsis**♥ 2source record 1579 **Sepsis**♥ 2source record 1663 **Sepsis**♥ 1source record 1799 **Sepsis**♥ 1source record 1938 **Sepsis 🙃 Had a UTI that went unnoticed, turned into a kidney infection, that then entered my blood stream. By the time I went to the hospital my fever was almost 106 and I was passing in and out of consciousness in the waiting room. They got me back reallll fast after that.**♥ 1source record 1981 **Sepsis. Felt like I was dying. Spoiler: I was dying. Once they stopped me from actively dying, I got all the fentanyl I wanted. The pain was so unbearable that I ended up with a significant amount of fentanyl until I put myself to sleep/unconscious.**♥ 1source record 2172 **Hahahahaha It’s so funny looking down the comments for this topic because apparently I’m a collector. I’ve had: Gallbladder attack Kidney stone Shingles Not quite a cluster headache, but a really bad one (Don’t know what caused it, it only happened once, but I was sobbing for hours through the night unable to last more than a couple seconds at a time without sobbing because it hurt so much. I almost went to the ER but after 7 hours it reduced in pain enough for me to sleep) Sciatica Tooth infection Bowel blockage from Crohn’s Depression CPTSD Interestingly, I would judge my most painful as not any of those, though don’t get me wrong, all can hurt BRUTALLY in different ways. For me it’s weird but…sepsis? One of the times I was in the hospital with sepsis due to surgery going poorly, I had various drains in me and apparently one of them slipped or something. Whatever happened, I lost the ability to speak or act it was so painful. The doctors all rushed in and I got to experience going from a patient who is informed and part of the process to a broken object they are trying to figure out what’s going on and fix before my vitals crash further. Ended up going into one of the weirdest surgeries I can remember, where they basically had me in some sort of imaging machine and were taking constant updated images trying to figure out what was going on while also cutting me open a little to manipulate stuff, and I was given conscious sedation so I could feel everything plus or minus the massive amount of pain killers on board. Despite not experiencing the full pain of that surgery, it was still very unpleasant for me. It was as “simple” as finding which drain got dislodged and re-placing it? I think? My memories of that time are very hazy as you might imagine, and I never got an external perspective because my family wasn’t really paying much attention to me in the hospital.**♥ 1source record 2293 **Septic shock**♥ 1source record 2356 **Sepsis.**♥ 1source record 2417 **Sepsis. Ain’t nothing like it. I had to learn how to walk again while spending 15 days in the hospital. At 39 in good-ish shape, running 20-ish miles a week. Sepsis destroyed me. I was a few hours away from organ failure according to the docs, because I was too stubborn to go in to the ER. I’ve had gallbladder removal, pneumonia, broken bones, torn knee ligaments, dislocated hip, and sepsis was gnarly.**♥ 1source record 2748 **Sepsis**♥ 1source record 2820 **TSS and Sepis**♥ 1source record 2839 **Sepsis. A really bad one.**♥ 1source record 2901 **Sepsis-felt like I was dying.**♥ 1source record 3208 **Sepsis**♥ 1source record 3216 **Sepsis. Septic shock to be exact. No words. Ruined me permanently. I was 18\. I lost my life to it. Fuck sexual abuse.**♥ 1source record 3249 **1\. Severe sepsis-whole body was in so much pain I couldn't even move for 3 weeks. It had attacked my whole central nervous system, heart, lungs, everything. I had to learn how to walk again. Was in the hospital for a total of 5 weeks but was many months before I was back to normal, however, I am a former heroin addict who was actually off of the heroin when I got sepsis, but because the hospital put me on a button of Dilaudid that I could push every 4 hours for 5 weeks straight, no weening before they discharged me. I was dope sick when I left the hospital and immediately went to get heroin as soon as I got to my car, not totally blaming it on the hospital cuz I was grown but they were told I had this problem, I feel like I was kinda set up to relapse, which I did, big time. Which leads me to my next painful illness... 2\. Opiate withdrawal-even if it is self inflicted it doesn't mean it wasn't some of the worst hell I've ever been thru in life.... unfortunately on multiple occasions. I could share details but u would rather not know them. Glad, not proud, but glad to say that I haven't touched them in nearly 6 years now. If I had to go thru withdrawals again, I don't think I would live thru it. People like to say you can't die from opiate withdrawals....bullshit. absolute bullshit. When u can't keep one sip of water or even a lick of s Popsicle down for 6-7 days, and are throwing up stuff from ur body u didn't eat or know existed, turns out ur kidneys start to shutdown. I found out the hard way. And when kidneys shut down, ur done. 3\. DRY SOCKET-DONT GET UR WISDOM TEETH EXTRACTED IN POCATELLO, IDAHO. I CAME OUT THE SURGERY WITH DRY SOCKET AND IT WAS LIKE SOMEONE WAS STABBING ME THROUGH MY HEAD AND TOOK MONTHS TO HEAL THE HOLE IN MOUTH THST I HAD TO CONSTANTLY CLEAN SO IT WOULDN'T HEAL UP WITH FOOD INSIDE IT. 4\. Cracked Ribs, boyfriend chopped off finger tip when he slammed the front door on it, gout, getting my biceps cut open and half removed due to infection and the doctor giving me literally nothing for pain due to my drug history-6 inch incisions each, crazy ear infections.... What doesn't kill u makes u stronger is what they say but if that was the case, I would have changed genders and tried out for strongman competitions I think lol**♥ 1source record 3271 **Had sepsis start in a surgical wound site. It was like someone took a hot iron rod and put it on my chest and wouldn't let up. The doctor ended up having to cut the skin away around the wound site which left a patch of missing skin the size of a silver dollar. This all happened last month and if my doctor would not have saw me on Monday, he said I would have been dead by my Thursday appointment because the infection was right on top of my heart.**♥ 1source record 3314 **Sepsis**♥ 1source record 3370 **Septic shock - Every muscle was contracting hard and releasing every few seconds. I remember screaming at the top of my lungs as it felt like the muscles were either all going to rip themselves apart, or break all my bones.**♥ 1source record 3401 **Sepsis - felt like every joint in my body was going to explode. Followed closely by kidney stones. At least kidney stones were just pain, and not feeling like I was going to d!e while also being in pain lol**♥ 1source record 3673 **I ignored a kidney infection (my back always hurts and I have a physical job). I didn't get medical attention until my husband found me delirious with a 104°+ fever. He rushed me to the hospital and it was found that I had sepsis. I couldn't find any position Chincoteague even for a second and my head hurt so bad that I was crying. I was in the hospital for four days.**♥ 1source record 3676 **Sepsis. It is fast-moving and deadly.**♥ 1source record 3677 **Sepsis. And rupturing ovarian cysts**♥ 1source record 4007 **Septic shock.**♥ 1source record 4096 Archive: 31 index entries preserve 31 distinct source records · Every displayed synthesis count resolves to source-record IDs Flu, COVID and high fevers116 index entriesInfluenza and COVID, including the long tails writers say both left behind. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Flu, COVID and high fevers Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Flu, COVID and high fevers 116 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 4150 **Appears when:** Flu, COVID and high fevers **What the pattern means:** The largest infection group, and the one whose writers most often begin by apologising for the answer. Two descriptions recur that do not appear elsewhere: pain in the skin, so that clothing and washing become intolerable, and pain in the muscles described as being pulled off the bone. The influenza accounts add hallucinations and delirium; the COVID accounts add duration, with several writers describing symptoms that never fully resolved. A number who have had both rank them against each other, and they do not agree. **What commenters described:** Don’t laugh…COVID. In addition to the generic feeling like crap, my skin hurt. All of it…like it was raw and burning…clothing was so uncomfortable and bathing or cleaning myself after voiding was torture. Even eating and drinking hurt. I would sit very still holding myself so no part of me touched me and as little of me touched anything else as could be managed. If you’ve ever experienced the joy of hand, foot, and mouth disease, the pain was much like that, but everywhere, all the time…for almost 17 days. To make this story more fun, I caught COVID right after we moved to a brand new house in another state…so we had no furniture, no ability to clean clothing or bedding… and you recall, I mentioned that wearing clothing was extremely painful? Well, we also had no window coverings. So I sat in the very center of my house with no direct windows and did my best to touch as little as possible. It was awful. **Limit:** Different strains, different years and, in several cases, no test at all sit under the same heading here, and severity ranges from a bad week to intensive care. Vaccines are argued about throughout this group; none of that is checked or endorsed here. What the replies added3 I had a really bad flu! Turned into pneumonia and broke a rib coughing! I seriously thought I was going to die! I had a toddler I was trying to take care of and couldn’t walk from the couch to the kitchen in our tiny apartment 😢 that was about 35 years ago and I get a flu shot every year. I’ve only had a couple mild cases since 😀 Reported failure♥ 2 Yep, I just wanted it to end. I did get vaccines after they came out and then got covid again in 2023 and it wasn't as bad but the first thing I noticed was muscle & joint aches. That time I took paxlovid and I think it really helped. Let's hope never again!! Reported failure♥ 1 I broke my leg in 17 places, my gallbladder burst, I burned my groin & thigh with boiling water, and have regular migraines. However, the worst 2 years ago when I had Covid, first-time shingles, first-time facial eczema, and first-time seizures. It was awful. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Flu A in december, it ended up turning into bronchitis, and I ended up going to the ER twice. The first time they did nothing fr, no anti virals as it was too late. I went home tried to recover, they gave me a cough suppressant (which I was confused about because I needed to get the mucus out my chest, and you do that by coughing) but went back because I was struggling to breathe again and it was getting worse. My oxygen levels were reduced and I ended up on an IV drip and a breathing treatment. It ended up giving me asthma. So now I need an inhaler for the foreseeable future . All because someone came to my in laws house while sick with the flu. The nurse basically told me that if i didn’t come in, I could have asphyxiated in my sleep bc my oxygen was dropping, and I could have went into respiratory distress. source record 3464♥ 1 #### Source-record spotlights Most engaged source Flu so bad I was hallucinating most of the time. It’s hard to sleep when your brain is convinced there’s a man standing slightly behind the closet. source record 291♥ 40 Later-arriving source You have no idea. My mom was mad cause I wouldn’t sleep but I was convinced that guy behind the closet would come and attack me the moment I closed my eyes. I had to literally pass out from exhaustion in order to sleep. posted about 8 days after the source♥ 1 Zero-like source H1N1, had me destroyed. The physical pain of everything was fucking horrible. posted about 3.5 hours after the source #### Related evidence elsewhere in the index [Gallbladder attacks and gallstonesUse a sensory reset · 7 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Lungs, pleura and clotsUse a sensory reset · 15 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease) #### What the counts show Across 116 source records, the most common observable tactic structure is “Use a sensory reset” (5 records). This is a wording pattern, not a measured outcome. 116index entries 116distinct source records 24.1%of parent category 3.1%of the complete index 98top-level comments 18replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 8asks a question 0says they intend to try it 107other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Use a sensory reset **5**Attach it to an existing routine **4**Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments116 preserved records · 116 of 116 source records accounted for **Flu so bad I was hallucinating most of the time. It’s hard to sleep when your brain is convinced there’s a man standing slightly behind the closet.**♥ 40source record 291 **I had this one and my parents were watching Beverly hillbillies and I hallucinating the story line. When dad finally drove me to the hosptial I though that there was wildlife jumping in front of us the whole way.**♥ 3source record 294 **The flu**♥ 7source record 450 **influenza b i’m still messed up from having it 4 months ago**♥ 3source record 459 **COVID almost killed me at an age of 32**♥ 3source record 477 **Covid in early 2020.**♥ 3source record 481 **I had a really bad flu! Turned into pneumonia and broke a rib coughing! I seriously thought I was going to die! I had a toddler I was trying to take care of and couldn’t walk from the couch to the kitchen in our tiny apartment 😢 that was about 35 years ago and I get a flu shot every year. I’ve only had a couple mild cases since 😀**♥ 2source record 1194 **Same! That was me in 2018 and I’ve gotten a flu shot every single year since then because hell no I will never go through that again. I never understood how people would die from the flu until I had that experience and yeah.. I see it**♥ 2source record 1216 **I had influenza A last winter and I lived alone at the time. I was honestly scared. I was sooo sick.**♥ 2source record 1220 **I had influenza A in December 2019 and I'm STILL a lil' messed up from it. I had the vaccine, as well. Now I'll talk/move my arms in my sleep and hallucinate. The actual flu wasn't even that bad, but the side effects from it have only lessened a bit! And it wasn't covid because I tested positive for flu A at my doctor.**♥ 2source record 1434 **I had the vaccine as well but got so jacked up and sick for over a month. My dreams have also been absolutely insane and so vivid since having it. My side effects are getting better thankfully! The worst one I had was from coughing so hard it weakened my throat muscles and gave me terrible acid reflux until a couple weeks ago. I was on vacation when I got it and kept tossing around going to urgent care and did it a day too late. If i’d gone in the previous day they could have giving me some z-pack medication to help me improve faster. Not taking any chances in the future like that anymore 😂**♥ 2source record 1435 **Thank you for the well wishes! For me personally, it was worse than the 3 times I had covid.**♥ 2source record 1441 **Well, I was little overweight but really in the overall norm. And I just didn't care about the restrictions, I did not cared about vaccinations. I did not really respected any form of lockdown. After one of social events I felt unwell. I laughed that it might be covid or just a mild flu. Two day's later I had ambulance driving me to the ER, where i spent 2 weeks with different tube sticked to various holes in my body and full respiratory support of my breathing. Apparently, I had insanely bad case of COVID and only being relatively young and in okish shape saved my life. 10 years more, and I would just suffocate to death and nothing will help me.**♥ 2source record 1452 **Between Morton's Neuroma and COVID idk. Sciatica sucks too. As a straight up illness I'd say COVID. Longest, worst headache I've ever had and shooting cramp up my neck. And of course a brutal sore throat. But Morton's Neuroma has this feeling like "this is my life now, and it's awful" because it doesn't just go away so there's a big mental component.**♥ 2source record 1485 **Ocular migraines. Kidney stone. Honestly Covid was so painful for me I cried and I don’t cry from pain.**♥ 2source record 1530 **Swine flu. Or a different time I froze my lungs running around outside at -50F and had fluid filling my lungs pneumonia fever followed by a myriad of additional symptoms caused from cold exposure. Worse part was I didn’t get workman’s compensation**♥ 2source record 1533 **The flu (I'm a man)**♥ 2source record 1539 **Covid or flu a or b the worse one**♥ 1source record 1561 **I thought it was strep, but turned out to be Covid. Felt like swallowing glass for over a week**♥ 2source record 1595 **Covid was horribly painful. I had it in 2020 and ultimately hospitalized, but they really didn't do much to treat, just fluids. The pain was so bad I thought I was dying and didn't really care.**♥ 1source record 1660 **covid**♥ 2source record 1670 **Anybody said long covid yet?**♥ 2source record 1691 **Omg yes!!! I was like “I’m dying and I would like it to happen quickly!**♥ 2source record 1692 **Covid, pre vaccine. All Neuro and bone pain. Had fire migraines for 2 weeks straight. Felt like lightning was shooting out of my ribs and spine for 2 months.**♥ 1source record 1721 **Not many so probably covid. Felt like a rat dying on the side of the street for like a week or so**♥ 1source record 1728 **COVID before they knew it was COVID. My body hurt so bad and the most basic movement was excruciatingly painful.**♥ 2source record 1762 **I also had Covid before they knew what Covid was. It was not only excruciating, but I’m still living with what it did to me. It took 5 years before I was diagnosed with an autoimmune disease. I also acquired asthma, and whatever else they haven’t found yet.. Just being sick with that strain, I went from athlete, to spending all my time in bed.**♥ 2source record 1763 **Swine Flu, literally felt like i had been beaten with baseball bats**♥ 1source record 1791 **covid**♥ 1source record 1831 **The first round of covid, months before the pandemic was declared.**♥ 1source record 1866 **Covid… fuck, I was never so sick in my entire life. Still have Covid Long Haul… Heck I even had SARS back in college. That was child’s play compared to this.**♥ 1source record 1868 **Covid. Straight up. I was coughing so hard and for so long it felt like I tore a muscle in my stomach. Every cough felt like a knife jab in my body. I have never felt worse in my nearly 30 years of living. God awful.**♥ 1source record 1890 **Strangely enough, COVID. The entire right side of my body hurt so bad that it was nearly impossible to sleep. OTC meds didn’t touch it. I had no idea it was COVID, as I had none of the usual symptoms. It was awful.**♥ 1source record 1898 **COVID**♥ 1source record 2004 **COVID and PCOS. COVID make me feel like my lungs had glass and I was coughing blood everywhere. PCOS makes me wanna die once a month and bed bound.**♥ 1source record 2036 **Covid while I was on a plane (I didn’t know)**♥ 1source record 2095 **covid, I thought I was dying. ended up in cardiology but thank God I didn’t have anything serious.**♥ 1source record 2111 **Covid**♥ 1source record 2125 **COVID hurt worse than my appendix exploding, believe it or not.**♥ 1source record 2136 **Swine Flu. H1N1.**♥ 1source record 2150 **COVID-19\. That is the only time I’ve ever been sick enough to consider offing myself. Ironically, I got the vaccine on the day I was (unknowingly) infected. I remember the Covid unit from my county contacting me and incredulously saying “that one too?” when I said yes to every symptom they listed off. The pain in my body was so excruciating, it was like my limbs and joints were being twisted out of their sockets. I have never felt bodily pain like that. My sister also had Covid at the same time (same infection source too) and hers was like a very mild flu. I must’ve gotten symptoms for the both of us. I have very little memory of that week I was sick because it was so painful and traumatizing. Long Covid is real and crazy. My mom lost her voice for over a year. After I had Covid, tropical fruits have tasted like sweat to me. It’s only been in the last year, 5 years after having Covid for the first time, that I’m beginning to taste tropical fruits again.**♥ 1source record 2159 **Covid**♥ 1source record 2173 **Covid! It attacked my nervous system and every nerve in my body ached for 2 days. The gout sucks but it’s easy to fix, just double your water intake and it goes away. I really don’t want to experience shingles or a kidney stone. I cut my right thumb in half to the bone on a table saw and that hurt a lot. Went down on a motorcycle doing about 45 and that was extremely painful for a few weeks.**♥ 1source record 2175 **Covid**♥ 1source record 2198 **Covid was horrible**♥ 1source record 2220 **Long COVID. I’m in chronic pain all the time. Everything that touches me hurts. I’ve failed all pain meds. There are other sorts of pains I get as a result of long covid too, so it’s just a myriad of pain signals all the time. 😔**♥ 1source record 2257 **COVID that shit very nearly killed me. Massive lung damage took me many years to recover.**♥ 1source record 2281 **Covid…I had long covid, it gave me so many endless migraines and face pain, sore throat and it felt like my bones were breaking for a year.**♥ 1source record 2313 **the flu, i couldn’t walk the night of/before my fever breaking bc of the pain**♥ 1source record 2319 **Covid. I had it twice and it was no big deal. Felt like a minor cold. The third time was the sickest I’ve ever been. Every body movement hurt. Couldn’t stop shivering for days. Truly sucked!**♥ 1source record 2343 **Covid. I thought I was gonna die. That 102F fever for 2 days and not able to keep food down.**♥ 1source record 2349 **Honestly influenza A Christmas of 2024\. It was fucking BRUTAL.**♥ 1source record 2350 **I don’t know if it’s pain per se (especially because I don’t remember a lot of it - just remember it being hell) was getting COVID and c diff at the same time, then becoming septic due to them (understandably) not catching the c diff infection in time. Two weeks of utter misery, my blood pressure dropped to 50/40 at one point, and I obviously couldn’t see anyone except my medical staff who were basically in hazmat suits. I must’ve been their patient from hell.**♥ 1source record 2383 **First time with Covid or Costochondritis**♥ 1source record 2416 **H1N1 in 2008 every single cell in my whole body felt like it was on fire and being stabbed.**♥ 1source record 2424 **Birthing two babies and then Covid.**♥ 1source record 2454 **Probably when I likely had Covid (my home tests were all negative but I was so sick). Three weeks of my throat feeling like there were knives all down it. Couldn't talk. So tired. And I was taking care of my five month old at the time, while my husband had moved out because he did pop positive for Covid.**♥ 1source record 2459 **Well mentally painful? Had covid- lost sense of taste. The not knowing was torture. My family laughs at me but 3.5 days not knowing and not tasting was mentally bad.**♥ 1source record 2480 **Covid 19\. The coughing made my sides feel like I was being stabbed with knives over and over, and I couldnt stop.**♥ 1source record 2497 **COVID. Worst migraine I have ever had in my entire life**♥ 1source record 2555 **Covid. Could barely get out of bed for 3 days but couldn't sleep because of the coughing**♥ 1source record 2562 **I have fibromyalgia and at the end of 2019/beginning of 2020 I had C19 (only we didn’t know what it was then). I coughed so much that the cartilage in my chest became inflamed, I subluxed a rib and felt like I was having a heart attack. Could only breathe shallow for two weeks before it eased enough for me to breathe closer to normal. Was sick with C19 from October 2019 - April 2020 when we were in lockdown and everything made sense. No painkillers, including opioids, touched the pain. A straight 10/10 for four days and then it eased to an 8/10\. I’ve also had three kidney infections and kidney stones once. Do not recommend!! I also deal with those “gun shot migraines” where it sounds like a gunshot is going off in your head coupled with INTENSE pain? Luckily they don’t happen often but really do not recommend.**♥ 1source record 2634 **Covid and influenza a**♥ 1source record 2676 **Influenza A**♥ 1source record 2779 **Influenza A way I quickly developed pneumonia and sepsis from it was crazy 2 years later still struggling**♥ 1source record 2833 **Covid or E. Coli**♥ 1source record 2872 **Covid**♥ 1source record 2922 **I had the flu really badly while seven months pregnant with my youngest. I’d gotten a flu shot, but my eldest brought the flu home from daycare in July, so it didn’t help much by that point. Three days in the ICU, and the types of meds you can take while pregnant are limited so…it was a ball of fun.**♥ 1source record 2939 **Covid**♥ 1source record 3003 **I broke my leg in 17 places, my gallbladder burst, I burned my groin & thigh with boiling water, and have regular migraines. However, the worst 2 years ago when I had Covid, first-time shingles, first-time facial eczema, and first-time seizures. It was awful.**♥ 1source record 3018 **OG covid**♥ 1source record 3028 **granted im not very experienced in painful illnesses, i have a lot of health issues but they're minor. in terms of actual coughing, nauseous sickness, id have to say COVID by a long shot. sone people get it worse, sone get it better. ive had it twice and both times it was horrible. the first time it made me suffer terribke back pain and the second time i was bedridden for four days. the only thing id say ive experienced that is secobd to this is the mysterious stomach bug i got from a chinese buffet that made straight water come out of every possible hole on my body for several days**♥ 1source record 3050 **Covid! It wasn’t the covid itself so much as the crazy high fever and double ear infections I got. I wanted to put needles in my ears to relieve the pressure😖**♥ 1source record 3075 **Believe it or not The Flu. I had such a bad case, I felt like someone beat me up and threw me down a flight of stairs.**♥ 1source record 3099 **Covid. Left me disabled with a rare neurovascular disease that is the most painful thing ever.**♥ 1source record 3106 **Covid**♥ 1source record 3121 **OG Covid strain. It was horrendous, the full body cramps were as bad as my first period but just all over my body. God damn it**♥ 1source record 3171 **My nose hurt SO BAD the second time I had it back in 2024.**♥ 1source record 3189 **The flu while pregnant. Dry heaves plus Braxton hicks + dehydration was so incredibly painful.**♥ 1source record 3195 **Covid. My entire body was in such agonizing, bone deep pain that I had to drag myself across the floor when I had to relieve myself. I couldn't do anything except cough my brains out and pray for the pain medicine to hurry up and kick in.**♥ 1source record 3214 **Covid: early on, March of 2020, before it became wide-spread. I had no idea of what hit me, and seriously thought I was going to die. This was before they had testing for the general public, and there was no treatment other than a prescription to ward off a secondary bacterial infection, and bed rest. I was lucky that I didn’t have to go into an ICU like other people I know. Some of them actually died.**♥ 1source record 3246 **When I had the flu I passed out and shit myself at the same time**♥ 1source record 3284 **Flu. Proper, could actually kill you, makes you want to die, leaves you messed up for months flu.**♥ 1source record 3291 **I had the flu in the mid 2010s that was so severe I understood how it could kill a weakened person. Never had anything like it before or since. COVID was nowhere near as bad but I was well vaccinated by the time it found me.**♥ 1source record 3316 **Either influenza or first time with covid**♥ 1source record 3336 **I had H1N1 back in 2006ish? Made covid feel like a bad cold. That thing had levels to it like a contra game.**♥ 1source record 3385 **The flu**♥ 1source record 3431 **Flu A in december, it ended up turning into bronchitis, and I ended up going to the ER twice. The first time they did nothing fr, no anti virals as it was too late. I went home tried to recover, they gave me a cough suppressant (which I was confused about because I needed to get the mucus out my chest, and you do that by coughing) but went back because I was struggling to breathe again and it was getting worse. My oxygen levels were reduced and I ended up on an IV drip and a breathing treatment. It ended up giving me asthma. So now I need an inhaler for the foreseeable future . All because someone came to my in laws house while sick with the flu. The nurse basically told me that if i didn’t come in, I could have asphyxiated in my sleep bc my oxygen was dropping, and I could have went into respiratory distress.**♥ 1source record 3464 **Covid. It put me on my ass for two weeks of painful non rest.**♥ 0source record 3479 **About 2 years ago I’m pretty sure I caught one of the variants of Covid, dawg my body felt like I got ran over by a semi. Was just trying to go to sleep for work was just laying in bed and was hit by a sneezing spell and runny nose and within minutes the pain kicked in I mean from the tip of my head hairs to the bottoms of my feet EVERYWHERE (I work in a warehouse, 15mi days walking around in there on top of pushing, pulling and bending every which way including loose) yeah I didn’t go to work for about a week once the pain and symptoms improved**♥ 1source record 3489 **Long Covid. Most of the time its just the chronic fatigue where i have limited to no energy. But the damage and pain is psychological. I will never be the same and can't live the way I did before. I'll never get better and there is no cure, only managing symptoms to a degree. Getting infected with covid sucked for the two weeks I had it, but never recovering is far worse. And theres many who have it far worse than I do and are more disabled.**♥ 1source record 3526 **a really bad cold that made me have terrible hallucinations about scooby doo and turned me off of the entire netflix show. this isn't a joke, i laid in bed all night with a headache, trouble breathing, hallucinations, and physical pain. i was like 11.**♥ 1source record 3550 **Some god awful flu variant. I was having fever dreams and delirium, every single part of my body hurt if I lay on it too long so I was switching sides every few minutes, my whole body was cold but also sweating so much that my whole room smelled like sweat for the week I was sick and I lost a significant amount of weight. My lips and hands were also so dry they cracked, and off course I had terrible headaches and couldn't breath. This if course happened on Christmas and persisted past New Year's 🥲**♥ 1source record 3582 **COVID. My entire body felt like it was being sledgehammered.**♥ 1source record 3706 **thankfully it was the only illness or disease i had - covid 19 it was so annoying**♥ 1source record 3722 **Covid. I live alone. It was 1am. I was lying flat on my back on my sofa, caked in sweat, barely able to breathe because my throat was the sorest it had ever been, unable to talk, barely able to move, thinking that was the end because the pain in my chest was so bad. Then it stopped. It started so slow I didn't feel it until I couldn't call anyone for help, but it stopped so quickly. And I am thankful it stopped quickly.**♥ 1source record 3724 **Even though I’ve had and still have several medical conditions I’d say the most painful thing I’ve had was actually that strain of Covid that caused that terrible headache it was so bad that I went to the hospital and they thought it could be a tumor or stroke but turned out it was just Covid that’s the worst pain I’ve ever experienced.**♥ 1source record 3805 **so far, the third time i had covid. i think it was around when the “omnicron” variant or whatever was super rampant. 0/10 thought i was going to die or had meningitis on top of covid**♥ 1source record 3812 **It wasn't COVID. It wasn't strep. It was whatever the fuck I contracted from my father last Christmas. Bedridden for days. My body literally couldn't handle taking cold medicine for as long as it took me to recover. The cold medicine started making me \*high\*, and I hated that. The constant coughing lingered well into January, and probably damaged my chest muscles, judging by how much it hurt. My mother got sick, too, but since she's been around a hell of a lot longer than I have, her immune system had plenty of experience under its belt. It kicked the infection out far quicker.**♥ 1source record 3870 **Covid**♥ 1source record 3890 **Covid most painful illness most painful breaking cevical area of c1 c2.**♥ 1source record 3916 **The flu. Not exactly painful, but I thought I was gonna die.**♥ 1source record 3923 **Long covid**♥ 1source record 3950 **covid**♥ 1source record 3962 **Covid**♥ 1source record 4016 **Got swine flu back in 2009! Had the worst joint pain, fatigue and nausea ever! To this day, nothing compared to that.**♥ 1source record 4039 **The first time I had Covid.**♥ 1source record 4070 **Don’t laugh…COVID. In addition to the generic feeling like crap, my skin hurt. All of it…like it was raw and burning…clothing was so uncomfortable and bathing or cleaning myself after voiding was torture. Even eating and drinking hurt. I would sit very still holding myself so no part of me touched me and as little of me touched anything else as could be managed. If you’ve ever experienced the joy of hand, foot, and mouth disease, the pain was much like that, but everywhere, all the time…for almost 17 days. To make this story more fun, I caught COVID right after we moved to a brand new house in another state…so we had no furniture, no ability to clean clothing or bedding… and you recall, I mentioned that wearing clothing was extremely painful? Well, we also had no window coverings. So I sat in the very center of my house with no direct windows and did my best to touch as little as possible. It was awful.**♥ 1source record 4150 **Tbh covid. I hate hospitals never take shots besides once but everyone gets it in tdc. I was a heavy daily drinker. But its like a wave comes for 15 min and goes away for 30 min. But more like im completely normal at work walking around and boom ill be sweating short of breath dizzy vision blurry migraine attacks felt crazy nauseous id get close to a can but managed to confuse my mind into thinking " oh I just drank a bit more last night, im just hung over I can ride this out" lasted 4 full days but for some reason id be good for a good solid 5hrs at night and every morning.**♥ 1source record 4179 **You have no idea. My mom was mad cause I wouldn’t sleep but I was convinced that guy behind the closet would come and attack me the moment I closed my eyes. I had to literally pass out from exhaustion in order to sleep.**♥ 1source record 4298 **this. i was ok with dying.**♥ 1source record 4335 **Same! I laid in bed 2 weeks. Lost so much weight, when i had barely any to begin. I made peace i was gonna die. I was early 20s.**♥ 1source record 4336 **Yep, I just wanted it to end. I did get vaccines after they came out and then got covid again in 2023 and it wasn't as bad but the first thing I noticed was muscle & joint aches. That time I took paxlovid and I think it really helped. Let's hope never again!!**♥ 1source record 4373 **I have had it 5 times since. All bad, but none with the muscle pain that the first time had. It literally felt like my muscles wanted to rip off of the bones. I hope I never get it is bad again**♥ 1source record 4391 **Yes!! That's how it felt, like someone was ripping the muscle right off the bone. I swear I had PTSD after that. The pain was horrible. I'm glad all your other cases were milder, mine was too. I really didn't have any cough or chest congestion. Let's never go back, k?**♥ 1source record 4392 **H1N1, had me destroyed. The physical pain of everything was fucking horrible.**♥ 0source record 4412 Archive: 116 index entries preserve 116 distinct source records · Every displayed synthesis count resolves to source-record IDs Throats: strep, tonsillitis and abscesses61 index entriesSwallowing, described again and again through the same handful of images. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Throats: strep, tonsillitis and abscesses Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Throats: strep, tonsillitis and abscesses 61 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3230 **Appears when:** Throats: strep, tonsillitis and abscesses **What the pattern means:** Almost every record here reaches for the same two images — glass and razor blades — and then for the same detail: how many times a day a person swallows. The abscess accounts escalate from there into not swallowing at all, drooling into a cup, and drainage described as the worst part. Tonsillectomy recovery in adults appears repeatedly as a separate, equally bad answer, with several writers who have given birth ranking it above the birth. **What commenters described:** Tonsillitis. I was almost in tears swallowing my spit. Think about how many times a day you swallow spit. **Limit:** This group mixes ordinary sore throats with airway-threatening abscesses under one heading because its writers described them together. Nothing here distinguishes between them or indicates when a sore throat needs urgent care. What the replies added2 Kidney stones and tonsillitis. Tonsillitis was so bad my tonsils were blocking my airway and my lips started to turn blue. When they swabbed my throat that was hands down some of the worst pain I’ve ever had I sobbed and screamed. I’ve broken bones, had cancer…none of that was as bad as those events! Reported failure♥ 1 Tonsillitis followed by a throat abscess, couldn’t eat or drink. Had to be put on fluids and liquid pain killers. I’ve broken my wrist and this was worse! Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint I got admitted and they mercifully gave me a suction thing that I just kept in my mouth so I wasn't drooling everywhere 24/7\. Unfortunately nobody warned me that if you don't swallow anything including your own saliva for 2 weeks straight, your esophagus can start to ulcerate from drying out. So when I finally started trying to gently eat and swallow things, it was EXCRUCIATING. Everything stung and burned so bad, all I could do was just sit there with white knuckles sweating until it subsided. It took months before I could swallow anything without significant pain. source record 280♥ 5 #### Source-record spotlights Most engaged source Peritonsillar Abscess. I dont wish it on my enemies. Very rarely does one go to the hospital and rhe doctor actually does seem to feel very, very sympathetic for you when you have something non fatal. Holy goddamn hell on earth for days. source record 277♥ 50 Later-arriving source Oh my God one time I had strep throat and my fever was so high, I think I was in grade school or high school I don’t remember. But I remember I was fever dreaming I used to love the show scrubs on TV and I dreamt that I was at their hospital getting checked out because I was so sick. And then I kind of came too and I went to my mom and I said I need to go to the hospital something wrong and I’d like the highest Fever. posted about 4 days after the source♥ 2 Zero-like source Strep throat for me. Happened shortly after being hospitalized with a kidney infection. I didn’t take the pain meds they gave me at the hospital for the infection, but caved and took them just to be able to sleep when I had strep! posted about 3.6 hours after the source #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 61 source records, the most common observable tactic structure is “Attach it to an existing routine” (7 records). This is a wording pattern, not a measured outcome. 61index entries 61distinct source records 12.7%of parent category 1.6%of the complete index 53top-level comments 8replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 4asks a question 0says they intend to try it 56other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **7**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments61 preserved records · 61 of 61 source records accounted for **Peritonsillar Abscess. I dont wish it on my enemies. Very rarely does one go to the hospital and rhe doctor actually does seem to feel very, very sympathetic for you when you have something non fatal. Holy goddamn hell on earth for days.**♥ 50source record 277 **Exactly, you can’t even swallow so you’re just salivating at the mouth like you have rabies,**♥ 9source record 279 **I got admitted and they mercifully gave me a suction thing that I just kept in my mouth so I wasn't drooling everywhere 24/7\. Unfortunately nobody warned me that if you don't swallow anything including your own saliva for 2 weeks straight, your esophagus can start to ulcerate from drying out. So when I finally started trying to gently eat and swallow things, it was EXCRUCIATING. Everything stung and burned so bad, all I could do was just sit there with white knuckles sweating until it subsided. It took months before I could swallow anything without significant pain.**♥ 5source record 280 **Quinsy!**♥ 3source record 281 **For me it was strep throat, so I got off pretty easy here. (My periods are extremely painful sometimes, but that’s not an illness.)**♥ 3source record 479 **I had one too like 10 years ago. It was HORRIBLE. They gave me fentanyl at the ER for it.**♥ 2source record 1213 **What!? I wish they gave me fentanyl. I went to ER on day 5 of no sleep because it felt like my throat was closing up and it ruptured on the way there so she told me the issue was resolved and there was nothing more to do. Hurt for 3 more days though.**♥ 3source record 1214 **I went to urgent care after 3 days of worst pain ever (and I’ve given birth with no pain meds… this topped that). Urgent care diagnosed quickly but first tried just giving me an antibiotics shot. Was getting worse next day, so I went back, and the urgent care PA used a syringe to try to drain it. I got a tiny bit of relief, but when I got home, my whole throat started swelling up, so I went to ER. The first docs didn’t want to do anything because the urgent care PA had supposedly already drained it. But eventually they decided to do a CT scan and saw there were still two huge undrained abscesses. The on-call ENT came in, numbed me up, and then used a scalpel to drain it surgically while I lay there awake. Right after, a nurse showed up offering me fentanyl. It already felt way better, but I still accepted the fentanyl and then was all goofy playing with the suction tool they had given me for the draining pus, letting it get stuck on my lips and then pulling it off and stuff.**♥ 2source record 1215 **Oh my God one time I had strep throat and my fever was so high, I think I was in grade school or high school I don’t remember. But I remember I was fever dreaming I used to love the show scrubs on TV and I dreamt that I was at their hospital getting checked out because I was so sick. And then I kind of came too and I went to my mom and I said I need to go to the hospital something wrong and I’d like the highest Fever.**♥ 2source record 1224 **Tonsillitis from an infection. I've had gallstones, kidney stones, children, membrane sweep, lower back pain so bad I couldn't walk etc. All painful, but swallowing razorblades was definitely up there**♥ 2source record 1378 **Peritonsillar access 😵**♥ 2source record 1384 **Strep throat took me out for 2 weeks in high school.. every swallow felt like a thousand hot knives sliced through my esophagus. I couldn’t eat or drink anything and had a designated “spit cup” bc I couldn’t even tolerate the saliva in my mouth. Fully fainted every time I tried to stand up. All that on top of a double ear infection and a raging UTI (my first one ever)**♥ 2source record 1429 **I once got strep throat at the same time I got my first cold-sore. The strep and the cold sores made love in my mouth, so I had blisters on my lips, in my mouth, and my throat was coated in razor blades. It wasn't life threatening so I was at home, but it so so awfully I could barely eat, sleep, or drink water for a week.**♥ 1source record 1614 **Probably when the scabs fell off after tonsil removal**♥ 2source record 1667 **Quinsey. It's an abscess on your tonsils. Like I'd swallowed glass. Nearly took me out!**♥ 1source record 1710 **Abscessed tonsil. Absolutely horrific.**♥ 2source record 1760 **I think strep for actual pain but that’s because it went untreated too long, but for pain and length combined, it was Sibo.**♥ 1source record 1775 **Sore throat man**♥ 1source record 1785 **Oof. Like illness illness? Probably tonsillitis. I used to get it really bad. It has put me in hospital multiple times. Not with glandular or it going to quinsy etc... just really super awful tonsillitis needing IV antibiotics. That hurt like hell. I have experienced many more, much more painful medical things but as an illness. This is it.**♥ 1source record 1912 **Strep throat. I was vacationing in OC MD and developed it almost overnight the first day we got there. Had to go to urgent care because I couldn't eat or drink without coughing and/or feeling like my throat was tearing apart. Worst experience so far.**♥ 1source record 1913 **Tonsil infection that developed an abscess. Second worst was shingles.**♥ 1source record 1928 **Depression and tonsillitis**♥ 1source record 2005 **With strep at the same time.**♥ 1source record 2041 **When I was in college I had an infected lymph node in my neck. No idea how it happened. I couldn't swallow anything, even my own saliva due to how painful my throat was. I threw up anything i tried to swallow from the nausea caused by the pain. I had a raging fever also. My grandma finally took me to a dr and I had to take a suppository for pain before I could even think about swallowing antibiotics. I'd say childbirth was more painful but that's not an illness so.**♥ 1source record 2065 **Tonsils out at 22 years old. And a close second is a dry socket after oral surgery**♥ 1source record 2149 **Peritonsillar abscess (quinsy)**♥ 1source record 2254 **I don't know what kinda illness it was but I had very bad fever and it was genuinely painful to swallow. I could feel the liquid or food moving down in my esophagus. It was probably inflamed AF**♥ 1source record 2259 **Not exactly the illness but the remedy. I got my tonsils out when I was like 9 and MAN did it hurt like hell for about a week & a half.**♥ 1source record 2284 **Tonsillectomy at 33\. The pain especially radiating up to my ears was excruciating, two weeks of eating everything puréed, losing 20 pounds (I was 140 before the surgery). A friend of mine who had a baby and tonsillectomy at different times said she’d rather give birth.**♥ 1source record 2285 **Peritonsillar Abscess**♥ 1source record 2290 **This miserable virus I had for my family’s entire Utah National Parks trip. Throat felt like knives cutting it for every sip of water or bite of food (unless I constantly was drinking water). I cried so much and the dry air made it so bad. Genuinely only got through the trip with a steady combo of Tylenol and Advil and a sip of water every 5 seconds (but I did the easy hikes! Still proud of myself). I started feeling sick on the plane ride there so it wasn’t something I caught in Arizona/Utah. Antibiotics didn’t touch it (urgent care gave it to me even tho I was negative for strep). Also negative for COVID. Masked the whole time and none of my family members got sick! I had a lingering sore throat and cough for 3 weeks. I’ve had strep and COVID and this was worlds worse. Never been in so much pain 24/7.**♥ 1source record 2323 **An unknown infection deep in my throat.**♥ 1source record 2438 **had to swallow massive pills with tonsilitis.**♥ 1source record 2468 **Well, I’m not beating a lot of these, But there’s only three I can think of: \\- strep throat / scarlet fever as a child. Everything hurt and swallowing killed me. I got it constantly because I was a carrier \\- pneumonia which I also got as a kid \\- ulcer which I got recently**♥ 1source record 2505 **Abscess from tonsilitis. Had to go to an ER cause almost got sepsis from pus in there. Bscly doc takes a razor blade and cuts the inflamed pus filled tonsil in your throat. And does it every morning untill instead of pus just blood comes out. They sprayed some anestetic there but on the last day Main doc came amd told me it doesnt actually do nothing cause cut is deeper then that and that spray jusy numbs the throat and tongue not the place they cut. Have to remove my tonsils. Havent done it yet. But I always were a scarf now.**♥ 1source record 2552 **Tonsillectomy. Five full days of the worst pain in my life. It made childbirth feel like nothing.**♥ 1source record 2692 **Herpangina, worst sore throat I've ever had.**♥ 1source record 2774 **Quincy.**♥ 1source record 2821 **Strep throat. Felt like my throat was being shredded with glass every time I tried to swallow. Doc said your insurance only covers a horse pill for treatment. We have a shot but you'll have to pay out of pocket. Ive never pulled out a credit card so fast in my life. Honestly they xouls have charged me anything and i would havw paid it! 10x worse than childbirth. As a gen xer ive had chicken pox ao I ran to get my shingles shot as I know I could not take that pain.**♥ 1source record 2951 **A throat abscess. It required the removal of my tonsils, uvula, adenoids, and most of my soft palette.**♥ 1source record 2956 **Strep throat was a pain I didn't know was possible especially when your choking on the puss bubble once they burst**♥ 1source record 3100 **Strep throat that turned into an abscess in the roof of my mouth. I was turned away 3 times in the ER and being told “you just need to wait for the antibiotics to do their thing” finally went to a new ER and the doc did a CT scan said it was the biggest abscess he’d ever seen. Biiiiiiig needle to the throat to drain the abscess. Tonsils taken out a week later. Horrible experience. Dont recmmenend.**♥ 1source record 3177 **Adult tonsillectomy. It’s not for the faint of heart.**♥ 0source record 3192 **Strep throat for me. Happened shortly after being hospitalized with a kidney infection. I didn’t take the pain meds they gave me at the hospital for the infection, but caved and took them just to be able to sleep when I had strep!**♥ 0source record 3193 **Tonsillitis. I was almost in tears swallowing my spit. Think about how many times a day you swallow spit.**♥ 1source record 3230 **Tonsilitis.**♥ 1source record 3276 **Listen. I had tubes put in my ears when I was 3 and was supposed to also have my tonsils removed at the same time, but the doctor decided not to remove my tonsils instead. I got strep almost every. Single year. So when I tell you that I randomly got suuuuper sick in March a couple years ago, you best believe that my throat was on FIRE. I couldn't eat, barely drink anything, and forget about going to work. I also could barely keep my eyes open I was so weak and exhausted. I had white patches on my tonsils, throat, and roof of my mouth. I figured it was a really bad case of strep I finally managed to take myself to urgent care. I fell asleep in the waiting room and fell asleep again in the exam room while waiting on the test results. They tested strep, COVID, mono, the works. All came back negative. Wrote me a script for antibiotics to be filled at Walmart next door. I fell asleep in my car while waiting for the notification that it was ready. Had to open a bag of cough drops in the store before paying for them because my throat hurt so bad. Went out to my car and fell asleep again. Very seriously considered calling someone to come get me, but ultimately decided to drive myself back home It was never concluded as to what it was, and finally cleared up after a few days of antibiotics. Then it happened again almost a month later, but not quite as severe. once again got tested for everything common, all negative. Got another round of antibiotics. Never happened again. There was also the time I had such a bad sinus infection that I thought one of my eyes was going to pop out of socket from how much pressure there was behind and around it. Laid in my husband's lap and cried with a cold compress against my eye until I finally fell asleep. There was ALSO the time that I had such bad sharp, shooting pain in my lady bits that I was curled up in the floor, unable to move until it subsided. Doctor told me to stop consuming dairy and come back in a month. Definitely wasn't dairy. Pretty sure it was a kidney stone. I also get really bad tension headaches. Some of fairly mild, I can pop a rizatriptan and be fine in half an hour, or occasionally have to sleep it off for about an hour. But sometimes I'll get one where the meds won't touch it. With those, I get hot flashes and so much pressure in my head that it feels like my ears are going to bust. I use my "ice crown" (which icing your skull ALSO hurts) and sleeping for about 24 hours straight and taking several rizatriptans before it finally eases off.**♥ 1source record 3323 **Kidney stones and tonsillitis. Tonsillitis was so bad my tonsils were blocking my airway and my lips started to turn blue. When they swabbed my throat that was hands down some of the worst pain I’ve ever had I sobbed and screamed. I’ve broken bones, had cancer…none of that was as bad as those events!**♥ 1source record 3327 **Strep throat as a kid. Genuinely felt like swallowing glass every sip of water I took.**♥ 1source record 3392 **Strep throat. I literally had to brace myself before swallowing.**♥ 1source record 3520 **Quinsy. Worse than childbirth.**♥ 1source record 3692 **Tonsillitis People might laugh, but it's been a solid week of hell, got it two times in like 6 months Second time I had high fever, swollen tonsils, had to get antibiotics dosage upped from the dosage I used on the first one and had to get strong pain medications due to every swallowing feeling like a knife in the throat No sleeping, didn't eat nothing but ice cream and yogurt, drank at small sips, was made aware of how many times you swallow during the day, wouldn't wish it to anyone**♥ 1source record 3697 **Strep throat for me**♥ 1source record 3738 **Strep throat, on not my throat.**♥ 1source record 3739 **Tonsillitis with a tonsillar abscess. Not only was I sick to the point of throwing up blood and needing to be stabilized by a hospital, and every swallow for weeks at that point not only killed my throat but also felt like a screwdriver in the ear, but the treatment for the abscess was brutal. They pried my jaw open and stabbed me in the back of the throat with a needle 9 times in short succession in order to drain it. And then I still had more time to suffer in order to fully clear the infection before they could then schedule surgery to finally remove my tonsils after years of problems. The worst part? None of it had to happen. I only ended up there because they refused to remove them 6 years earlier after a nasty bout.**♥ 1source record 3751 **Strep throat in 1989\. I still remember it!**♥ 1source record 3759 **Tracheitis - infected wind pipe and the flap that covers the windpipe. breathing hurt and i lost like 15lbs. Id rather have appendicitis again than that.**♥ 1source record 3823 **I have NF1, fibromyalgia and hsd/hEDS. So I'm not counting those as they are painful every day. Going to have to say when I had really bad tonsillitis and one of my tonsils ruptured. The pain beforehand was tonsillitis pain x100, then the blood came. I had to go to A&E with a bucket to catch the blood. It was years ago now and that side looks weird and doesn't swell up anymore.**♥ 1source record 3837 **I got strep throat when I was 8\. I literally couldn't breathe and I refused to take medicine so it turned into a lifelong ear infection.**♥ 1source record 3924 **Tonsillitis followed by a throat abscess, couldn’t eat or drink. Had to be put on fluids and liquid pain killers. I’ve broken my wrist and this was worse!**♥ 1source record 4051 **Strep throat**♥ 1source record 4156 Archive: 61 index entries preserve 61 distinct source records · Every displayed synthesis count resolves to source-record IDs Cellulitis, abscesses and bone infections52 index entriesSkin, tissue and bone infections, and the drainage that followed them. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Cellulitis, abscesses and bone infections Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Cellulitis, abscesses and bone infections 52 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 262 **Appears when:** Cellulitis, abscesses and bone infections **What the pattern means:** The recurring shape is underestimation. Writers describe an ingrown hair, a bite, a spot, a sprain — and then a fever, a limb they cannot use, and a hospital. MRSA appears repeatedly, in the hand, the face, the leg. The descriptions are mechanical rather than sharp: a nail being twisted, pressure with nowhere to go. Several accounts end with drainage described as the relief, and several with how close the writer says it came to costing them a limb. **What commenters described:** I had a MRSA infection in an ingrown hair on my hand. It felt like, at all times, someone was twisting a rusted nail into my hand. It was swollen and left a hell of a scar after I finally got on the appropriate antibiotics. **Limit:** These writers are describing the cases that became serious; most skin infections do not. Nothing here identifies an infection or indicates when one needs attention, and the delays described are reported, not endorsed. What the replies added3 Mystery bump> boil> neurotic sore that ended up being a broken recluse bite. Reported failure♥ 3 Staph infection/abscess. Or an infected cracked tooth. Or maybe that cough I had for several months that made it feel like I broke a few ribs. Those are definitely the top 3\. They were each their own specific flavor of horrible. Reported failure♥ 1 Cervical osteomyelitis. I was asking for pain meds right on the 4hr mark every single time. Morphine did nothing for the pain. The only thing that worked in the beginning was Dilaudid. I’m actually still recovering and am in my 4th week of IV antibiotics. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Cervical osteomyelitis. I was asking for pain meds right on the 4hr mark every single time. Morphine did nothing for the pain. The only thing that worked in the beginning was Dilaudid. I’m actually still recovering and am in my 4th week of IV antibiotics. source record 2893♥ 1 #### Source-record spotlights Most engaged source I had a MRSA infection in an ingrown hair on my hand. It felt like, at all times, someone was twisting a rusted nail into my hand. It was swollen and left a hell of a scar after I finally got on the appropriate antibiotics. source record 262♥ 56 Later-arriving source Cellulitis & Osteomyelitis in my jaw. 20/10 for nerve pain. Would rather natural childbirth. Told my husband if he could guarantee a knockout I’d let him. posted about 3 days after the source♥ 1 Zero-like source Inflammation of a hair follicle in my armpit, ouch. Luckily it's something that clears within a day or so posted about 3.5 hours after the source #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 52 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 52index entries 52distinct source records 10.8%of parent category 1.4%of the complete index 51top-level comments 1replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 51other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments52 preserved records · 52 of 52 source records accounted for **I had a MRSA infection in an ingrown hair on my hand. It felt like, at all times, someone was twisting a rusted nail into my hand. It was swollen and left a hell of a scar after I finally got on the appropriate antibiotics.**♥ 56source record 262 **Osteomyelitis**♥ 4source record 403 **Mystery bump> boil> neurotic sore that ended up being a broken recluse bite.**♥ 3source record 476 **MRSA I let that shit get so bad because I had no idea it was an infection Almost lost my leg due to my negligence. Had a 103 fever and could barely walk when I finally got help at the ER**♥ 2source record 1477 **MRSA 6 times**♥ 1source record 1606 **MRSA infection**♥ 1source record 1612 **Had an internal infection with 25 lbs of infected fluid they pulled out of me. I was so sick and week for a month. Lost all my bangs from the fever.**♥ 1source record 1640 **I had a severe cellulitis infection that went septic. It was not only painful but i was sick and had a throbbing headache and body aches for 3 weeks straight and lost 18 lbs**♥ 1source record 1769 **Cellulitis 😖**♥ 1source record 1789 **It was over a couple months. One would go away and before I could do the decolonization, another one would pop up. Not fun. Do not wish it on anybody.**♥ 1source record 1851 **A massive bone infection in my ankle following surgery. Turns out you can get strep of the bone. I almost lost my foot from it, fortunately I just have life long severe arthritis in that ankle instead.**♥ 1source record 1901 **Spinal abscess. Do. Not. Recommend!**♥ 1source record 1902 **Cellulitis on my forehead.**♥ 1source record 2071 **MRSA as well as a migraine that got me hospitalized**♥ 1source record 2087 **I recently had a Deep Neck Space infection. I was ready to throw myself into traffic or off a tall building or something. The entire right side of my face felt like it was being slammed constantly. It’s gone now, but my face, jaw and neck are still tender. Not as awful as some, I know but pretty freakin awful.**♥ 1source record 2191 **Boils and skin abscesses, in early stages. Sometimes I could only deal with it by holding and pressing a cloth bundle of ice near the boil to numb the area. This has happened to me a bunch of times. I guess I'd also count some instances of lower abdominal cramps, that have made me actually yell out loud in public/hostel bathrooms. That's only happened twice and I think it was random.**♥ 1source record 2249 **A really bad infection in my leg that made it all red and swollen**♥ 1source record 2412 **Abscess on my stomach, like on the actual organ**♥ 1source record 2542 **Staph infection/abscess. Or an infected cracked tooth. Or maybe that cough I had for several months that made it feel like I broke a few ribs. Those are definitely the top 3\. They were each their own specific flavor of horrible.**♥ 1source record 2573 **not an illness but earlier this year, my hand started to hurt out of nowhere one morning at work. i didn’t injure it, there was no bug bite or any mark that i could see, etc - just started to ache and then throb out of nowhere. by 3 pm i could not stand it anymore and went to the ER. they gave me pain meds, ran some tests - they found a blood clot in my upper arm, but said it would not cause the kind of pain i described, in the area that was painful. went home, pain worsened again, back to the ER in the am. loaded me full of pain meds and sent me back home. once again, the pain returned with a fucking vengeance that afternoon, along with a fever and dizziness. this time, the ER kept me - my bloodwork had completely gone to shit and my kidneys were starting to shut down. long story short, i was in the OR at 1 am - it turned out the pain was from two abscesses. no idea how i got them. the surgeon said if i had waited a few hours longer, i would have lost my hand or worse. he left my hand open for almost two weeks, then i had a second surgery to close it. IV antibiotics for a month - i was supposed to get them longer than that, but i got another clot (a DVT this time) and they had to pull my midline. i should be able to stop the blood thinners in a few weeks, woohoo!**♥ 1source record 2593 **Strep in my legs**♥ 1source record 2614 **Necrotizing fasciitis in my face!**♥ 1source record 2736 **5cm colon abscess**♥ 1source record 2789 **Staph. Not MRSA. Unbelievable pain.**♥ 1source record 2814 **Erysipelas I probably could have prevented it from going full tomato on my foot if I'd listened to my physiotherapist 🫪 It gladly went away after a week on antibiotics but did some damage on my already damaged lymphatic system 🫠**♥ 1source record 2818 **Take a pick: - Multiple abscesses (groin, nostril, toe, upper arm) (not at the same time) - Gout from untreated diabetes - Pinched nerves - Damaged joints, but not quite arthritis Etc. On one hand, I've been quite unlucky for having to experience these, but on the other hand, I'm very lucky to not have experienced \*even worse\*.**♥ 1source record 2845 **Cervical osteomyelitis. I was asking for pain meds right on the 4hr mark every single time. Morphine did nothing for the pain. The only thing that worked in the beginning was Dilaudid. I’m actually still recovering and am in my 4th week of IV antibiotics.**♥ 1source record 2893 **An infection under my right breast every time you moved it hurt like hell the doctors took a year to figure out what it was many painful tests and many different specialist it was terrible**♥ 1source record 2899 **Septic arthritis at the hip. Pure hell because they thought I was seeking pain meds and was not treated for 6 days while it ate away my hip. Months of recovery. I still cannot believe I didn’t go septic. Trigeminal Neuralgia is the worst ongoing disease.**♥ 1source record 2937 **Sepsis and osteomyelitis. I had an infection in my left ankle that got out of hand (I thought it was a sprain). By the time I finally decided to go to the ER if I so much as touched my left foot down, I was sobbing in pain**♥ 1source record 3093 **Just went through a toe infection worst pain of my life it was my big toe any movement cause extreme pain and I always used to hit it couldn’t even wear shoes**♥ 1source record 3123 **MRSA and my abdomen almost burst. the hospital told me to call my family to say my goodbyes because they weren't sure id make it. they ended up doing surgery on the CT scan table**♥ 1source record 3141 **Skull-based osteomyelitis. Think brain-freeze level pain for over five months. In your head.**♥ 1source record 3203 **MRSA. 17 years old and genuinely thought I was on deaths door.**♥ 1source record 3234 **Abcess in my hip that went septic.**♥ 1source record 3317 **intra abdominal abscess 2 months post appendectomy**♥ 1source record 3345 **I had MRSA in the parotid gland of my face. 10/10 pain. I couldn’t speak, drink, eat, talk, or open my mouth and it was growing into my airway. I could not even sit back or up on the CT machine because of the pressure and pain. I was crying from the pain and of course the doctors didn’t believe me at first. Not until my face completely swelled up.**♥ 1source record 3374 **Submandibular space infection. The pain was far past a 10\. I thought the broken tooth that caused it was painful but this exceeded it. I was rolling on the ground, bed, couch in pure agony. Not to even mention how close I was to death. Spent five days in the hospital, had emergency surgery and was treated for sepsis. Now I have this sick scar in my neck I just say “bar fight” when people ask about it.**♥ 1source record 3424 **Staph. Contracted it freshman year in the dorms and it spread to my underarm and had to be cut open sans any anesthetic. The underarm is chock full of nerve endings and staph hurts all on its own. 0/10 experience.**♥ 1source record 3506 **MRSA....holy shit**♥ 1source record 3515 **Cellulitis just above my ankle from multiple cat bites. I didn't get it checked out until a day and a half after the incident and by then I couldn't even walk properly and it was super painful to limp around. Lesson learned- ALWAYS get a deep cat bite checked out immediately.**♥ 1source record 3551 **Cellulitis & Osteomyelitis in my jaw. 20/10 for nerve pain. Would rather natural childbirth. Told my husband if he could guarantee a knockout I’d let him.**♥ 1source record 3573 **I had a staph infection on the skin next to my butthole. Like a big angry painful zit. I thought it was an STI, had to get oral antibiotics for it to go away. It felt like I had a hot poker going in my butt. I got others in other spots, like one on my arm once. Felt the same but nothing was bad as that one on my butt!**♥ 1source record 3596 **Salivatory gland infection! Whole right side of my face was in immense pain, was the worst pain I have ever had and first time needing to go to the ER!**♥ 1source record 3605 **Physical: A very aggressive bacterial infection Mental: BPD**♥ 1source record 3658 **Osteomyelitis-bone infection Worse than gallbladder**♥ 1source record 3682 **MRSA septicemia, spent some time in a coma had both lungs collapse and spent over a month in hospital im lucky to be alive**♥ 1source record 3758 **Septic arthritis**♥ 1source record 3771 **Post-surgical infection in my back**♥ 1source record 3847 **Inflammation of a hair follicle in my armpit, ouch. Luckily it's something that clears within a day or so**♥ 0source record 4058 **Cellulitis. I wanted to die the pain was so bad.**♥ 1source record 4063 **Septic arthritis requiring three emergency surgeries had it in January, still relearning how to walk and use my shoulder on the opposite side. Pain is almost constant in my left ankle or right shoulder, it blows. I’m lucky to be alive and have all my limbs though, very few cases of sepsis end well…**♥ 1source record 4166 Archive: 52 index entries preserve 52 distinct source records · Every displayed synthesis count resolves to source-record IDs Dengue, chikungunya, malaria and typhoid27 index entriesMosquito- and water-borne fevers, named by writers who caught them abroad and at home. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Dengue, chikungunya, malaria and typhoid Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Dengue, chikungunya, malaria and typhoid 27 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2038 **Appears when:** Dengue, chikungunya, malaria and typhoid **What the pattern means:** The most specific vocabulary in the corpus, and it is about bone. Writers use the disease's own colloquial name, describe being beaten with golf clubs, and single out pain behind the eyes as the symptom they remember. The chikungunya accounts add a long tail — joint pain and fatigue continuing for a year or more afterwards. Several writers report being treated in countries where the disease is unfamiliar and say they were not believed. **What commenters described:** dengue fever. Standing, sitting down and laying down brought me pain deep into my bones, headache so bad I couldn't open my eyes for a week, retroorbital pain had me wishing I could just take my eyes out with a spoon. Luckily its limited and in 10 days I was completely fine **Limit:** Where these infections were caught, and how they were treated, varies enormously across the group. Nothing here identifies a tropical infection or constitutes travel-health advice. What the replies added2 I’ve had it twice. It’s really painful but I’ve had migraines that hurt more. Also, dengue felt less painful than when I got CoViD. From the replies♥ 3 Currently recovering from it.. most intense pain I’ve felt in my life. From the replies♥ 2 #### Source-record spotlights Most engaged source I’ve never had it myself, but dengue fever is colloquially called “break bone fever” because of how painful it is source record 1370♥ 7 Later-arriving source Dengue fever. They call it break bone fever for a reason. Putting on the tourniquet to draw blood literally made me cry, as did every needle prick to draw blood (which they did every 4 hours because I was in the ICU.) And while I was in the hospital getting blood transfusions with a near hepatic liver the doctors just gave me Ativan because they didn’t believe me that I was in pain. I’m in the US btw. I got dengue abroad and because it’s not endemic in the US the doctors had never treated a case of it. posted about 11.4 hours after the source♥ 1 Low-like source Toss up between dengue fever, which I healed from, and chronic akathisia, which I have not. Dengue was 105 fever, 220 heart rate, weeks in the hospital, agonizing pain in every square inch of my body, including deep inside my ears and eyes. Akathisia is never being able to sit still. Not to eat, not to sleep, not to watch TV, not in a car, not ever. Painful restlessness 24/7. posted about 3.6 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 27 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 27index entries 27distinct source records 5.6%of parent category 0.7%of the complete index 24top-level comments 3replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 27other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments27 preserved records · 27 of 27 source records accounted for **I’ve never had it myself, but dengue fever is colloquially called “break bone fever” because of how painful it is**♥ 7source record 1370 **I’ve had it twice. It’s really painful but I’ve had migraines that hurt more. Also, dengue felt less painful than when I got CoViD.**♥ 3source record 1371 **Malaria. Sleepless, delirious, and aching from being beaten all over my body with golf clubs. Or so it felt.**♥ 2source record 1525 **Probably dengue. You know the drill, the fever that develops into pneumonia, the delirium, blah blah blah. But what really got me was the messed up appetite. I was literally starving, but any time I ate, I just threw it up, and a lot of the times, the food tasted "gray", like it was just matter. Starving and not being able to do anything about it was absolutely excruciating for me.**♥ 1source record 1822 **Chikungunya, which is a mosquito borne virus. During the acute stage, every single joint in my body was in excruciating pain, and then I suffered from chronic pain and fatigue for about a year and a half after that. Now I get flare ups whenever I'm sick, or when my body feels like I need to suffer a bit, I guess.**♥ 1source record 1875 **Oh god, this. I had to look for this reply.. I’m currently recovering from it and it’s the most intense pain I’ve felt in my life. A few days ago I was crying and screaming from the pain…**♥ 1source record 1876 **Chikungunya. It took me over a year to get over the symptoms. I wouldn’t wish it on my worst enemy.**♥ 1source record 1957 **Currently recovering from it.. most intense pain I’ve felt in my life.**♥ 2source record 1958 **dengue fever. Standing, sitting down and laying down brought me pain deep into my bones, headache so bad I couldn't open my eyes for a week, retroorbital pain had me wishing I could just take my eyes out with a spoon. Luckily its limited and in 10 days I was completely fine**♥ 1source record 2038 **First time I got malaria**♥ 1source record 2115 **Malaria**♥ 1source record 2181 **Typhoid Fever.**♥ 1source record 2276 **Dengue**♥ 1source record 2566 **Chikungunya**♥ 1source record 2732 **Dengue**♥ 1source record 2817 **Dengue fever**♥ 1source record 2895 **Dengue, I tried to sleep off the headache but my head is still throbbing after I wake up**♥ 1source record 3049 **Malaria, full stop.**♥ 1source record 3103 **Dengue fever. They call it break bone fever for a reason. Putting on the tourniquet to draw blood literally made me cry, as did every needle prick to draw blood (which they did every 4 hours because I was in the ICU.) And while I was in the hospital getting blood transfusions with a near hepatic liver the doctors just gave me Ativan because they didn’t believe me that I was in pain. I’m in the US btw. I got dengue abroad and because it’s not endemic in the US the doctors had never treated a case of it.**♥ 1source record 3152 **Typhus. Not even joking**♥ 1source record 3340 **Malaria (I am from the USA)**♥ 1source record 3402 **I had dengue, it was pretty bad..**♥ 1source record 3500 **two types of malaria at the same time**♥ 1source record 3591 **dengue virus**♥ 1source record 3643 **Dengue fever. I couldn’t stop sweating, shaking and itching all over. Fuck mosquitoes, I don’t care, I call extinction on those motherfuckers.**♥ 1source record 3701 **Toss up between dengue fever, which I healed from, and chronic akathisia, which I have not. Dengue was 105 fever, 220 heart rate, weeks in the hospital, agonizing pain in every square inch of my body, including deep inside my ears and eyes. Akathisia is never being able to sit still. Not to eat, not to sleep, not to watch TV, not in a car, not ever. Painful restlessness 24/7.**♥ 1source record 4080 **Dengue, 7 days with fever and couldn’t get up the bed just for eating chicken legs soup and tomato juice for hydration**♥ 1source record 4165 Archive: 27 index entries preserve 27 distinct source records · Every displayed synthesis count resolves to source-record IDs Mono and glandular fever44 index entriesGlandular fever, described by its length rather than by its peak. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Mono and glandular fever Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Mono and glandular fever 44 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1500 **Appears when:** Mono and glandular fever **What the pattern means:** Ranked here by length rather than by peak. Writers describe a month or more of not being able to swallow their own saliva, an enlarged spleen or liver, and sleeping through most of it. Several report fatigue that continued for years afterwards. The other recurring element is disbelief — writers describe being suspected of malingering by parents and schools while acutely ill. **What commenters described:** Got Mononucleosis when I was seventeen. My throat was incredibly sore and I couldn't swallow without horrible pain, so I could also barely sleep (despite being extremely weak and exhausted) because swallowing my own spit was too painful. It happened over Thanksgiving and all I could eat was mashed potatoes and jellied cranberry sauce, and even then it hurt so badly to swallow that I could barely taste. Just days of lying on the couch, hoping my fever didn't go over 106 (because that meant hospital), my mom dragging me to doctors, and bracing my whole body (which was also sore as hell) whenever I had to swallow my own spit. Then I had a reaction to the drugs they put me on and I broke out in a horrifying rash all over my body that didn't fully go away for weeks. Pretty sure the mono was courtesy of an ex-boyfriend who had cheated on me with his ex-girlfriend, so that was just the cherry on top. I've had Covid twice and it wasn't as bad as that mono. **Limit:** Most of these accounts are of adolescents recalling an illness years later, and several were never formally tested. Nothing here identifies glandular fever or indicates what to do about it. What the replies added2 Got Mononucleosis when I was seventeen. My throat was incredibly sore and I couldn't swallow without horrible pain, so I could also barely sleep (despite being extremely weak and exhausted) because swallowing my own spit was too painful. It happened over Thanksgiving and all I could eat was mashed potatoes and jellied cranberry sauce, and even then it hurt so badly to swallow that I could barely taste. Just days of lying on the couch, hoping my fever didn't go over 106 (because that meant hospital), my mom dragging me to doctors, and bracing my whole body (which was also sore as hell) whenever I had to swallow my own spit. Then I had a reaction to the drugs they put me on and I broke out in a horrifying rash all over my body that didn't fully go away for weeks. Pretty sure the mono was courtesy of an ex-boyfriend who had cheated on me with his ex-girlfriend, so that was just the cherry on top. I've had Covid twice and it wasn't as bad as that mono. Reported failure♥ 2 Mono for me was insane. I was out of school for a month straight. Did nothing but sleep for a consecutive 30 days, didnt eat, lost weight and muscle. I swear half the time i was hallucinating i was so sick! I have a chronic illness called HS (Hidradenitis Suppurativa) and that is not for the faint of heart. Currently experiencing a flare up now and have been in and out of the doctor for about a week getting poked, proded, injected, drained, stitched back up, shit sucks so much. Currently wheeling around in a wheelchair bc i cant even walk the flare up is so bad on my groin. Not much of a cure for it either. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Mono for me was insane. I was out of school for a month straight. Did nothing but sleep for a consecutive 30 days, didnt eat, lost weight and muscle. I swear half the time i was hallucinating i was so sick! I have a chronic illness called HS (Hidradenitis Suppurativa) and that is not for the faint of heart. Currently experiencing a flare up now and have been in and out of the doctor for about a week getting poked, proded, injected, drained, stitched back up, shit sucks so much. Currently wheeling around in a wheelchair bc i cant even walk the flare up is so bad on my groin. Not much of a cure for it either. source record 1843♥ 1 #### Source-record spotlights Most engaged source Glandular fever , made the gout seem like a Christmas present and was left with a codeine addiction. Did loose over two stone and missed half a year of school tho! Whooo source record 368♥ 9 Later-arriving source Mono. My spleen was so enlarged and my tonsils were so swollen I couldn’t eat anything but milkshakes for 2 months. Otherwise, fracturing my spine hurt really bad but idk if that’s considered an illness I had my tonsils removed 2 years ago which absolutely sucked it was horrible. But the pain only last 2 weeks where as with mono my tonsils were swollen for months, and I couldn’t eat anything solid for 2 of those months. My tonsils never stopped being swollen in the 10 years after which is why I had them removed. Mono made me sleep 20 hours a day, I couldn’t barely move for a few weeks because of how bad my spleen hurt, and my god having a non-function food pipe is horrible. I’d rank mono symptoms 3rd on my list, with spinal fracture being #1 and contractions being #2. posted about 6 days after the source♥ 1 Low-like source Mononucleosis. Probably not as bad as others in the thread but I'm a relatively healthy person overall and this shit was vile. I was 14, it started as a normal sore throat, then escalated to a month in the hospital. Fevers of 39°C, total inability to eat solid food, every swallowing a challenge. As I was laying there I once went to make me some tea, I only had a thick walled glass to get hot water. It exploded in my hands and I got burns all over my stomack and fingers. What a fun summer it was. posted about 4.1 hours after the source♥ 1 #### Related evidence elsewhere in the index [Flu, COVID and high feversUse a sensory reset · 5 there](#rich-node-0-group-6-subgroup-2-flu-covid-and-high-fevers)[Gallbladder attacks and gallstonesUse a sensory reset · 7 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Lungs, pleura and clotsUse a sensory reset · 15 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots) #### What the counts show Across 44 source records, the most common observable tactic structure is “Use a sensory reset” (3 records). This is a wording pattern, not a measured outcome. 44index entries 44distinct source records 9.1%of parent category 1.2%of the complete index 42top-level comments 2replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 1asks a question 0says they intend to try it 42other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Use a sensory reset **3**Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments44 preserved records · 44 of 44 source records accounted for **Glandular fever , made the gout seem like a Christmas present and was left with a codeine addiction. Did loose over two stone and missed half a year of school tho! Whooo**♥ 9source record 368 **Mononucleitis was a bad time**♥ 7source record 383 **Epstein-Barr Virus (EBV), also known as “mono.” It’s like the common cold when you’re a kid, unless you’re me and get it as an adult. Then it’s much, much worse. I had it at 27, and legitimately thought I was going to die. My spleen was almost 20cm (enlarged) and my tonsils were so swollen that I was afraid to sleep because I thought they’d close up and I’d die. I had drenching night sweats. Oncology even consulted because they thought I had lymphoma, before Infectious Disease figured it out. Even drinking water felt like hot razor blades in my throat. I was admitted to the hospital for four days and suffered for a week after that at home. I couldn’t swallow solids so I had liquid oxy to barely keep the pain at bay.**♥ 2source record 1418 **When she was 17, mom had a bout of mono that knocked her on her ass for months. She had a badly swollen liver, jaundice, the works. The chronic fatigue didn’t fully go away for years afterward.**♥ 2source record 1460 **Got Mononucleosis when I was seventeen. My throat was incredibly sore and I couldn't swallow without horrible pain, so I could also barely sleep (despite being extremely weak and exhausted) because swallowing my own spit was too painful. It happened over Thanksgiving and all I could eat was mashed potatoes and jellied cranberry sauce, and even then it hurt so badly to swallow that I could barely taste. Just days of lying on the couch, hoping my fever didn't go over 106 (because that meant hospital), my mom dragging me to doctors, and bracing my whole body (which was also sore as hell) whenever I had to swallow my own spit. Then I had a reaction to the drugs they put me on and I broke out in a horrifying rash all over my body that didn't fully go away for weeks. Pretty sure the mono was courtesy of an ex-boyfriend who had cheated on me with his ex-girlfriend, so that was just the cherry on top. I've had Covid twice and it wasn't as bad as that mono.**♥ 2source record 1500 **Mononucleosis. Absolutely excruciating, and there’s nothing you can do except wait**♥ 1source record 1626 **Mononucleosis at 16, was as close to death as I ever want to experience again. Recurring strep throat that felt like I was swallowing glass. My liver enlarged due to the infection and I couldn't eat more than a bite of solid food before running to vomit because the nausea was so bad. Lost 40 pounds in about 6 months, couldn't go back to school for the rest of the year.**♥ 1source record 1746 **Glandular fever. Absolute horror**♥ 1source record 1765 **Mono at 18 - my 80 year old doctor said it was the worst case he ever saw/ admitted me to hospital for 2 weeks- 1978**♥ 1source record 1819 **Mono for me was insane. I was out of school for a month straight. Did nothing but sleep for a consecutive 30 days, didnt eat, lost weight and muscle. I swear half the time i was hallucinating i was so sick! I have a chronic illness called HS (Hidradenitis Suppurativa) and that is not for the faint of heart. Currently experiencing a flare up now and have been in and out of the doctor for about a week getting poked, proded, injected, drained, stitched back up, shit sucks so much. Currently wheeling around in a wheelchair bc i cant even walk the flare up is so bad on my groin. Not much of a cure for it either.**♥ 1source record 1843 **Mono**♥ 1source record 1894 **Mono! Part of it was just the emotional pain of my parents not believing me. My sister got it first, my symptoms didn’t start until a couple days after her. They didn’t know what was wrong with us and our local hospital couldn’t figure it out either. They initially suspected acid reflux so they made us drink a ton of this horrible chalky medicine, and even that failed the hospital shrugged and said maybe appendicitis, since that isn’t viral, obviously one of us was a LIAR. My sister got an ambulance into the city while I was brought home and sent to my room for making excuses to get out of school. The city hospital realized what was actually going on, thankfully before they removed her appendix. I got no apology either, but I did get medicine that actually worked, so a win is a win. Anyway, the actual pain was bad bad. It felt like someone grabbed my intestines and twisted any time I tried to move. Like a sharp, deep stab with every breath. It was truly horrible and lasted way longer than any illness I’d had to that point!**♥ 1source record 1997 **For acute pain it was mono at 45- I never knew my liver could hurt. For chronic pain it would be the brain tumor that went undiagnosed for 5 years and crashed my thyroid and endocrine hormone balance. Had a headache for years that nothing could touch.**♥ 1source record 2165 **Mono**♥ 1source record 2169 **Definitely mono. Horrible headache and fever for 10+ days.**♥ 2source record 2326 **I had mono and strep at the same time and I wanted to die. Even drinking water hurt. I got so dehydrated over the course of a week that my \*tongue\* was cramping. Looking at the comments, it looks like I've got much, much worse things to experience**♥ 1source record 2488 **Glandular fever by far. It makes extreme tonsillitis look like child’s play. Not even painkillers could take away the pain. You can’t eat, drink or even swallow your saliva - I was drooling into a towel for days on end.**♥ 1source record 2524 **Glandular fever. had lot of different pain for approx 6 months.**♥ 1source record 2540 **Mono for sure**♥ 1source record 2548 **EBV - it is the worst thing ever and manifests itself in EVERY SINGLE facet of your body. Your bones hurt, your teeth, head, stomach, breathing, moving, eating hurts so badly you want to end it all but it leaves you powerless so the only thing you CAN do is get up and just CONTINUE existing in PAIN.....and it goes on like this for six months with the only food you get is soup or porridge..... great times I tell you!**♥ 1source record 2737 **Glandular Fever. Thought I was going to never get better**♥ 1source record 2832 **Idk if it’s the worst but Mono surprised me with how bad it was. Worst sore throat I’ve ever had in my life. I couldn’t even swallow my own spit. It was awful. Not an illness but getting my wisdom teeth out was also a nightmare**♥ 1source record 2844 **Mono**♥ 1source record 2873 **Mononucleosis**♥ 1source record 2874 **Mono**♥ 1source record 2982 **Mono. Half of my throat arch closed up, I couldn't talk hardly eat, and had trouble breathing. Also how I found out my ex was cheating on me. That month sucked major ass**♥ 1source record 3166 **Mono**♥ 1source record 3243 **Mono**♥ 1source record 3260 **Mono**♥ 1source record 3438 **Mononucleosis. Probably not as bad as others in the thread but I'm a relatively healthy person overall and this shit was vile. I was 14, it started as a normal sore throat, then escalated to a month in the hospital. Fevers of 39°C, total inability to eat solid food, every swallowing a challenge. As I was laying there I once went to make me some tea, I only had a thick walled glass to get hot water. It exploded in my hands and I got burns all over my stomack and fingers. What a fun summer it was.**♥ 1source record 3494 **Mono was terrible, i couldn’t swallow for weeks**♥ 1source record 3516 **I had an Epstein-Barr virus flare-up where hives erupted from my scalp all the way down to the bottoms of my feet. Existing was constant, itchy misery. Large patches of my skin were raw from me failing at not scratching myself & a few spots even left scar tissue behind. It took about 4 weeks to resolve, a few rounds of steroids plus some injections to boot. 😵‍💫**♥ 1source record 3517 **mono**♥ 1source record 3565 **I had mono when I was in high school, but I don’t remember much about it. I slept a lot.**♥ 1source record 3566 **Mono was a nightmare for me, and kickstarted my rheumatoid arthritis.**♥ 1source record 3628 **In terms of pain it would have to have been when my appendix burst. Worst pain I’ve ever been in my life. But that was like a couple hours of pain. When I had mono the pain wasn’t as serious but because it lasted for a month it was definitely the worst ordeal I’ve been through. Serious body aches, throat so swollen I couldn’t even breath, constant coughing and wheezing, couldn’t keep food down so I was practically starving and dehydrated the entire time. I honestly would take a bursted appendix over having mono again.**♥ 1source record 3663 **mono**♥ 1source record 3669 **Mono for sure I felt like I was dying for a month.**♥ 1source record 3715 **Mono. My spleen was so enlarged and my tonsils were so swollen I couldn’t eat anything but milkshakes for 2 months. Otherwise, fracturing my spine hurt really bad but idk if that’s considered an illness I had my tonsils removed 2 years ago which absolutely sucked it was horrible. But the pain only last 2 weeks where as with mono my tonsils were swollen for months, and I couldn’t eat anything solid for 2 of those months. My tonsils never stopped being swollen in the 10 years after which is why I had them removed. Mono made me sleep 20 hours a day, I couldn’t barely move for a few weeks because of how bad my spleen hurt, and my god having a non-function food pipe is horrible. I’d rank mono symptoms 3rd on my list, with spinal fracture being #1 and contractions being #2.**♥ 1source record 3773 **Mono…TWICE**♥ 1source record 3929 **Glandular fever at the same time as a double ear infection + 7 hour car ride home. Every tiny rut in the road felt like a rod getting stabbed in each ear. Each cough or sneeze was unreal .**♥ 1source record 3989 **Mononucleosis. It was like the worst cold you've ever had but for 7 months straight.**♥ 1source record 4001 **Mononucleosis. Was down for the count for almost an entire month.**♥ 1source record 4015 **Mono. I rocked myself back and forth like a baby on my bed.**♥ 1source record 4098 Archive: 44 index entries preserve 44 distinct source records · Every displayed synthesis count resolves to source-record IDs The childhood illnesses, caught late63 index entriesChickenpox, mumps, measles, scarlet fever and whooping cough — mostly from writers who caught them as adults. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: The childhood illnesses, caught late Source-backed answers are shown before diagnostics; the complete source archive remains below. #### The childhood illnesses, caught late 63 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1974 **Appears when:** The childhood illnesses, caught late **What the pattern means:** The group's organising fact is age. Chickenpox, mumps, measles, scarlet fever, fifth disease and whooping cough are described almost entirely by adults who caught them late, and the recurring claim is that the adult version bears no relation to what they expected — blisters in the throat and eyes, joints too swollen to bend, ribs broken by coughing. Vaccination is raised unprompted in a large share of these records, usually by writers urging it on other people's children. **What commenters described:** Whooping cough. Imagine coughing enough to bruise or break ribs, then coughing more with a bruised or broken rib. You can’t hold it in, you can’t stop it, only coughing. For MONTHS. **Limit:** These accounts come from people who had a bad version of a common illness and chose to write about it; most cases are not like this. The vaccination views expressed throughout are commenters' own and are neither checked nor endorsed here. What the replies added2 Whooping cough. Imagine coughing enough to bruise or break ribs, then coughing more with a bruised or broken rib. You can’t hold it in, you can’t stop it, only coughing. For MONTHS. Reported failure♥ 1 Whooping cough. I coughed so hard I broke ribs. Then I coughed with broken ribs. I thought I was going to die. Reported failure♥ 1 #### Source-record spotlights Most engaged source My baby brother had chicken pox when he was still in diapers and I remember him screaming as mom changed him and I saw his little scrotum just covered in redness and sores. I also had the chicken pox but could hardly complain while he was that miserable. Kids today are lucky to have a vaccine for it. source record 75♥ 9 Later-arriving source Mumps... back when kids got mumps before there was a vaccine for it. posted about 25.4 hours after the source♥ 1 Zero-like source Chicken pox (this was before the vaccine was available) posted about 3.4 hours after the source #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 63 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 63index entries 63distinct source records 13.1%of parent category 1.7%of the complete index 57top-level comments 6replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 4asks a question 0says they intend to try it 59other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3**Change the sentence **2**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments63 preserved records · 63 of 63 source records accounted for **My baby brother had chicken pox when he was still in diapers and I remember him screaming as mom changed him and I saw his little scrotum just covered in redness and sores. I also had the chicken pox but could hardly complain while he was that miserable. Kids today are lucky to have a vaccine for it.**♥ 9source record 75 **Hand Foot and Mouth with Covid**♥ 6source record 393 **I had chicken pox outbreak there too😭😭😭 I dreaded showers**♥ 1source record 868 **HFM is no joke! If I could wish any non-fatal disease on my enemies it would be HFM. The feeling of a million needles stabbing into my hands and feet I had no idea that the skin on my feet could be so thick until it started sloughing off.**♥ 1source record 1358 **Rheumatic Fever, I remember being amazed at how incredibly painful it was to just move a finger. It is an autoimmune disease caused by a reaction the Strep throat. Your immune system freaks out and attacks all of the connective tissue in your body. To this day, I am afraid of being around anyone with a sore throat. Because if I get this again, it could kill me.**♥ 2source record 1479 **Same. Apparently I am a carrier for strep. I had rheumatic fever AND mumps simultaneously in kindergarten. I remember hallucinating from the fever, and being in pain everywhere, but I don't remember it acutely - I was told by my parents that I couldn't bear to even have a sheet covering me, and that my father had to carry me up/down the stairs. I got this lovely combination of illnesses after having had measles, which was no walk in the park either. Now we know that my immune system had been wiped out. My heart breaks for these kids with the anti-vax parents. My measles was pre-vaccine in the early 1960's. I also have a connective tissue disorder - hypermobility - is it hEDS or HSD? Who knows/cares - I don't have any kids. But my joints are all arthritic (osteo) and there is a lot of daily chronic pain.**♥ 2source record 1480 **Yup, all my joints are arthritic. Just making my bed in the morning and reaching for that bottle of meds is painful. But I can't let it stop me. I believe this is also why I have Celiac's. If I consume anything with even a trace of grains in it, I won't be able to walk, let alone sleep. I mean that the fact that I have Celiac's probably contributed to my getting Rheumatic Fever. But I didn't get the diagnosis until I was 50\. I'd rather starve than ever be in as much pain again as eating grains put me in.**♥ 2source record 1481 **Chickpox 32 years old 😖**♥ 2source record 1523 **Hand foot and mouth in my throat. Basically my throat covered in ulcers and there’s nothing they can do except tell you to rotate Tylenol/advil**♥ 1source record 1623 **Mumps. I was a little kid at the time, I don't remember how old. This was many decades ago. All I remember is being in lots of pain. It hurt to eat or drink anything. I remember laying on an ice pack crying from the pain. This was before the vaccine was available. If you even remotely like your kids, get them vaccinated.**♥ 1source record 1624 **I had Kawasaki syndrome as a kid around 7-8\. I remember for about 2 weeks I just had horrible chest pain. My heart was swollen and i ended up staying over a week in a hospital while they did some sort of filter to my blood.**♥ 1source record 1634 **Hand foot and mouth. It got me when my preschool classroom had a little epidemic (I was the teacher). Tonsillitis is a close second.**♥ 1source record 1637 **I got fifth disease at 36 while pregnant. It was terrible. I developed arthritis in all my joints. I could barely walk, even laying in bed and trying to pull up the blanket made me cry. It took a couple weeks to resolve, and made my pregnancy high risk because it can cause health issues for the baby.**♥ 1source record 1645 **Chickenpox, as an adult. I legitimately wanted to die. Adults are not meant to have fevers of 105+.**♥ 1source record 1646 **Whooping cough, as an adult. A full month of coughing so hard I thought I might break a rib, so hard I pissed myself a couple of times. It was atrocious.**♥ 2source record 1686 **Hand, foot and mouth disease. Thankfully mine avoided the mouth part, but having sores all across my hands so I couldn't touch anything, and sores all over the bottom of my feet so I couldn't walk**♥ 1source record 1707 **Hand, foot and mouth. Caught it from my 1 year old. I've been hit in the head with a shovel. Fallen off moving cars. Had a massive heart attack (in the moment, unexplained pain, so intense, it made me cry). And nothing compares to the shear unadulterated agony of trying to drink water when your throat is coated in razer blades.**♥ 1source record 1738 **Whooping cough. You end up literally suffocating yourself during coughing fits, which was a large portion of a period of about a week. I have some muscles and some ribs that are still messed up from it 30 years later.**♥ 1source record 1792 **Scarlet fever**♥ 1source record 1810 **i had hand foot and mouth and the flu id rather die than have it again**♥ 1source record 1873 **Parvovirus. It started in my ankles moving up to and infecting every joint. I couldn’t bend my knees to go to the loo. I couldn’t hold a knife and fork. When it reached my shoulders and neck a literally couldn’t move. It was very painful**♥ 1source record 1972 **Whooping cough. Imagine coughing enough to bruise or break ribs, then coughing more with a bruised or broken rib. You can’t hold it in, you can’t stop it, only coughing. For MONTHS.**♥ 1source record 1974 **Whooping cough was pretty miserable and painful lasted like a month.**♥ 1source record 1978 **Hand fucking foot and mouth**♥ 1source record 2100 **Whooping cough. I coughed so hard I broke ribs. Then I coughed with broken ribs. I thought I was going to die.**♥ 1source record 2213 **Mumps when I was a child. We didn't have a vaccine for it yet. Please parents, get your kids vaccinated!!**♥ 1source record 2295 **Fifth disease as an adult. Hands down the worst pain I've ever felt. I was hospitalized for four days and no type of pain medication even touched the pain**♥ 1source record 2296 **Hand foot and mouth disease when you’re an adult, Dental pain, stomach pain, menstrual cramps, migraines, severe acid reflux.**♥ 1source record 2298 **I think that would chicken pox, it really shattered my body while i was little and I was honestly so glad when i was able to get the treatment for it.**♥ 1source record 2414 **Physically…a severe adult case of hand foot and mouth**♥ 1source record 2521 **Chicken Pox as an adult. I don't know how I dodged this childhood illness as a kid, but my sister and I both did and she only caught it when she was exposed to newly vaccinated children - then of course she passed it to me. I always assumed this was an itchy illness, but that sensation was entirely eclipsed by the constant nerve pain and fevers. I imagine Shingles is much worse and will be vaccinated the moment I become eligible.**♥ 1source record 2633 **Scarlet fever as a young kid. I think I was in 1st grade? Literally lost a patch of hair on my head from how bad the fever was. Over 20 years later and I’m still upset I was in the hospital and missed my school field trip😂 Also ovarian cysts & sacral nerve pain**♥ 1source record 2678 **RSV. I'm not sure if it was actually "painful" but good god I thought I was going to die. It came on so quickly too. I woke up not feeling well the day before thanksgiving break, but I couldn't call out bc in my district, we don't get paid if we don't work the day before or after a break. When I left the house, I felt like I'd be able to make it through the day. About halfway through my homeroom class, I fall over on my desk and my kids had to go get my principal to get me out of there. I was laid out in bed for a week straight and everything hurt and I felt like I was dying. My lungs never recovered and I started to have persistent breathing issues even after I recovered. When I got back to work, a memo had been sent out that there was an RSV outbreak in the area so a lot of us were getting it. Even Covid didn't take me out the way RSV did. It makes me so sad to think that babies get RSV and have no way of understanding what's happening to them and why they feel that way. 0/10 do not recommend RSV**♥ 1source record 2859 **When I was a kid a had croup and the flu at the same time and the doctor told my mom that if I stop breathing rush to the er**♥ 1source record 2918 **Mumps**♥ 1source record 2970 **Mumps… or mastitis but I was in my newborn bubble and my baby was a great endorphin pain relief!**♥ 1source record 2986 **When I had scarlatina as a 7 year old it gave me canker sores over every inch of the inside of my mouth and part of the treatment was you had to gargle salt water do you know how painful it is to gargle salt water when you have one canker sore let alone canker sores over every inch of the inside of your fucking mouth I wouldn't wish it on my worst enemy.**♥ 1source record 3048 **Chicken pox (this was before the vaccine was available)**♥ 0source record 3191 **Hand foot and mouth disease. Gotta be the worst disease a kid can bring home from pre-school that I had never heard of.**♥ 1source record 3237 **Rheumatic fever. Horrible, intense pain that would migrate from one joint to another overnight. From feet (couldn't walk) to neck (couldn't move head) to wherever. It was hell until my mother finally took me to a doctor.**♥ 1source record 3240 **Chicken pox. I had chicken pox at 16 and because they look like pimples when they first appear on the skin, I had no idea that popping the big one on my arm would cause them to spread. I woke up one day with a large pimple on my arm so I popped it then the next day I had them everywhere, even in my mouth and I got super lucky that they didn't go down my throat cuz that's how they become lethal. 2 weeks of pain and itching like crazy. I still have scars all over my body and scalp 30 years later.**♥ 1source record 3328 **mumps as a child**♥ 1source record 3347 **Scarlet fever at five.**♥ 1source record 3440 **Scarlet fever, it was horrible! I was not surprised that it was fatal in Victorian times🫠**♥ 1source record 3462 **Hand Foot and Mouth is a close 2nd to shingles for me. The feeling of a million needles stabbing into my hands and feet, plus general malaise. I had no idea that the skin on my feet could be so thick until it started sloughing off. If I could wish any non-fatal disease on my enemies it would be HFM.**♥ 1source record 3540 **Mumps was pretty horrendous**♥ 1source record 3555 **Whooping cough.**♥ 1source record 3564 **Vasculitis and Rheumatic Fever equally**♥ 1source record 3583 **Adenovirus knocked me on my ass. I’m a nurse practitioner and I would never ever ever go to the ER for a virus but I actually thought I was going to die.**♥ 1source record 3599 **i had scarlet fever when i was 4 years old. my only memory is laying in my water bed believing i was going to die.**♥ 1source record 3612 **Chicken pox. In my throat, stomach, eyeballs. Almost hospitalized. Pure hell.**♥ 1source record 3614 **Hand Foot Mouth as an adult**♥ 1source record 3661 **Illness; Whooping cough. It got to the point where it felt like my ribs were breaking each time I coughed (which was constantly). Injury; Pulled lower back muscle. I had always assumed that folks were exaggerating back pain before it happened to me, and that shit humbled me to the core.**♥ 1source record 3690 **Kawasaki Disease**♥ 1source record 3737 **Whooping cough/pertussis**♥ 1source record 3791 **Chicken pox as an adult. Had blisters from the bottom of my feet to the top of my head and everywhere in between. EVERYWHERE. At the worst I was hobbling around naked, with a damp sheet draped over me like a ghost. For about 48hrs straight.**♥ 1source record 3817 **Measles in high school**♥ 1source record 3909 **Mumps.**♥ 1source record 3999 **Hand mouth foot disease. Normally it should take 10 days and done but I had it for a full 4 months and every 10 days the cycle would start again. Ive never wanted to cut off a limb in my life this badly, it was so painful that i was hurting myself to slightly get my mind off the limb that was hurting.**♥ 1source record 4000 **Mumps... back when kids got mumps before there was a vaccine for it.**♥ 1source record 4050 **Fifth’s Disease (slapcheek). I got it as a baby….. and then I got it again when I was 17 😐 lmao. All of my joints were so swollen that I couldn’t really move at all. I had a painful rash on my body and my cheeks. Also had a rough fever. That was the worst and also felt ridiculous because it’s usually something only babies get LOL. There’s nothing you can do but let it run its course lol.**♥ 1source record 4072 **Hand foot mouth, specifically the mouth sores that made it impossible to talk, eat, or drink. I have a job that requires me to talk a lot and holy fuck that week sucked. I’ve had appendicitis and probably 15 surgeries and HFM was terrible.**♥ 1source record 4144 **Also, whooping cough is brutal. I got it after I had Covid and I have asthma so I thought I was dying**♥ 1source record 4364 Archive: 63 index entries preserve 63 distinct source records · Every displayed synthesis count resolves to source-record IDs Lyme disease and the infections that took years to name31 index entriesInfections several writers say went undiagnosed for years. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Lyme disease and the infections that took years to name Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Lyme disease and the infections that took years to name 31 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2271 **Appears when:** Lyme disease and the infections that took years to name **What the pattern means:** What binds this group is diagnostic delay rather than a shared organism. Writers describe years of symptoms and a series of doctors before anyone named it, and several say the dismissal was worse than the illness. The pain is described as everywhere rather than anywhere — whole-body aches, joints that feel pulled apart, and, distinctively, pain in the eyeballs, which two separate writers raise independently. **What commenters described:** Lyme Disease, hands down. It felt like my skin was being scraped off with a wire brush if anything touched it, especially if that something was cold. There was only one blanket I could use “comfortably,” but it was too hot and made my fever worse which led to shivering. I was shivering and hard that I pulled some muscles, and threw up a few times too which didn’t help. My joints felt bruised and like they were being dislocated / pulled apart at the same time as someone smashing them with a hammer. I had blood drawn after finishing my two weeks of doxycycline and tested positive, but I get rechecked in a week to see if it was a false positive. Fingers crossed that it was, and that I never flare again. **Limit:** Chronic Lyme in particular is contested medical ground and this page takes no position on it; what is recorded is what these commenters say they experienced and were told. Nothing here identifies a tick-borne infection. What the replies added1 Lyme Disease, hands down. It felt like my skin was being scraped off with a wire brush if anything touched it, especially if that something was cold. There was only one blanket I could use “comfortably,” but it was too hot and made my fever worse which led to shivering. I was shivering and hard that I pulled some muscles, and threw up a few times too which didn’t help. My joints felt bruised and like they were being dislocated / pulled apart at the same time as someone smashing them with a hammer. I had blood drawn after finishing my two weeks of doxycycline and tested positive, but I get rechecked in a week to see if it was a false positive. Fingers crossed that it was, and that I never flare again. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint I had “tick fever” in South Africa, which is a close relative of Lyme disease. That eyeball pain was bizarre! The symptom I remember most is that my right leg just didn’t work right…I’d try to walk but I ended up half-dragging my leg for a few days. source record 1847♥ 1 #### Source-record spotlights Most engaged source Yeah the eyeball pain was weird lol. I would get numbness in my left leg that felt like it was asleep. source record 1848♥ 2 Later-arriving source I had “tick fever” in South Africa, which is a close relative of Lyme disease. That eyeball pain was bizarre! The symptom I remember most is that my right leg just didn’t work right…I’d try to walk but I ended up half-dragging my leg for a few days. posted about 10.3 hours after the source♥ 1 Low-like source LGV("tropical chlamydia ") in my rectum, open ulcers inside me and everytime I was shitting it felt like passing blades . posted about 3.3 hours after the source♥ 1 #### What the counts show The exact phrase “eyeball pain was” recurs across 2 of the 31 source records in Lyme disease and the infections that took years to name; the complete archive stays available below. 31index entries 31distinct source records 6.4%of parent category 0.8%of the complete index 28top-level comments 3replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 1asks a question 0says they intend to try it 29other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments31 preserved records · 31 of 31 source records accounted for **Lyme disease.**♥ 6source record 1372 **Yes. Absolutely debilitating and the dismissal of it makes it even more painful. Mine was undiagnosed and untreated for years and my doctor still said it couldn't cause chronic symptoms. That makes no logical sense at all. I hope you're feeling better, or have had some relief.**♥ 2source record 1373 **Mycoplasma and ureaplasma**♥ 2source record 1534 **Lyme disease. It wasn't intense pain (mostly) it's just that it was everywhere. My whole body hurt, from head to toe. Even my eyeballs.**♥ 2source record 1680 **Brucellosis**♥ 1source record 1693 **Tuberculosis**♥ 1source record 1806 **I had “tick fever” in South Africa, which is a close relative of Lyme disease. That eyeball pain was bizarre! The symptom I remember most is that my right leg just didn’t work right…I’d try to walk but I ended up half-dragging my leg for a few days.**♥ 1source record 1847 **Yeah the eyeball pain was weird lol. I would get numbness in my left leg that felt like it was asleep.**♥ 2source record 1848 **Lyme disease for three years**♥ 1source record 1888 **Lyme disease**♥ 1source record 1983 **Toxic Shock Syndrome. I could literally feel my body dying.**♥ 1source record 2093 **Bubonic Plague - the boils hurt so much**♥ 1source record 2153 **Lyme Disease, hands down. It felt like my skin was being scraped off with a wire brush if anything touched it, especially if that something was cold. There was only one blanket I could use “comfortably,” but it was too hot and made my fever worse which led to shivering. I was shivering and hard that I pulled some muscles, and threw up a few times too which didn’t help. My joints felt bruised and like they were being dislocated / pulled apart at the same time as someone smashing them with a hammer. I had blood drawn after finishing my two weeks of doxycycline and tested positive, but I get rechecked in a week to see if it was a false positive. Fingers crossed that it was, and that I never flare again.**♥ 1source record 2271 **Valley Fever. I live in California's Central Valley, and we have a spore-based illness here that's only going in a couple other places around the world. Before the Internet was a thing, people passing through could get out and never know until much later, but doctors outside of these specific areas didn't know what it was, and people would often die. Most people here get it so mildly that they never even realize it, but sometimes it'll hit you bad. Once you've had it, relapse is almost unheard of. Usually, Valley Fever hits your lungs and can cause scarring inside, but you'll be weak and tired with pneumonia as well. I got the added bonus of having large boils out pustules up and down my legs for a while, making it painful to walk. Luckily, it hit me hard, but fast, and I was past it in just over two weeks. I know people who missed a whole year because of it. FYI, Valley Fever cases rise after a long, hot, dry summer that's followed by a short heavy rain that pops the spores up into the air and high winds that carry them. Farmers around the area have largely agreed to not plow during windy days as a precaution. It's not something you have to worry about all the time if you visit.**♥ 1source record 2334 **Lyme disease**♥ 1source record 2365 **Lyme Disease**♥ 1source record 2527 **Gonorrhea when I was 8\. Special "gift" from the guy who molested me...**♥ 1source record 2739 **Undetected and missed diagnosis of Lyme Disease for 9+ years.**♥ 1source record 2758 **Lymes disease made it almost impossible for me to stand without really intense pain But if we count it as an illness, the migraines i got from my wisdom teeth growing in before I got them removed. Had to call out and sit in a dark room because any stimulation just made it so much worse**♥ 1source record 2910 **Physically? Rocky Mountain Spotted Fever, Lyme, and mentally same along w CPTSD**♥ 1source record 3032 **Lyme**♥ 1source record 3300 **Undiagnosed Lymes. For years**♥ 1source record 3326 **LGV("tropical chlamydia ") in my rectum, open ulcers inside me and everytime I was shitting it felt like passing blades .**♥ 1source record 3488 **Lyme disease. The headaches and bone aches made it impossible to stand for any amount of time.**♥ 1source record 3503 **Leptospirosis or Shingles. Nothing else comes close that I've had.**♥ 1source record 3592 **Rat lungworm, ACL surgery**♥ 1source record 3815 **Chronic Lyme. A year of nausea for 8 hours a day not to mention the number of foot, muscle aches, food sensitivity, and GERD symptoms. Got a nausea medication a week ago and god my life is so much better**♥ 1source record 3887 **Lyme Disease, pregnancy**♥ 1source record 3908 **idk if it counts but pinworms. it’s a parasite but it takes the cake for most painful reason I’ve been to the hospital**♥ 1source record 3910 **Hanta Virus**♥ 1source record 3913 **Valley fever**♥ 1source record 3932 Archive: 31 index entries preserve 31 distinct source records · Every displayed synthesis count resolves to source-record IDs Herpes, cold sores and mouth ulcers13 index entriesOutbreaks described mainly through what the writer could not do while they lasted. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Herpes, cold sores and mouth ulcers Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Herpes, cold sores and mouth ulcers 13 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 350 **Appears when:** Herpes, cold sores and mouth ulcers **What the pattern means:** Almost every record here is about a first outbreak, and the writers describe it as unrecognisably worse than what they had been led to expect of a common infection. The specifics are practical: not being able to urinate, sit or walk, and in one account using hiking poles to cross a flat. Several writers say the illness that followed the outbreak — fever, weight loss, weeks in bed — was as bad as the sores. **What commenters described:** I can't believe this is barely upvoted. My first genital herpes outbreak was the worst illness-related pain I've ever had, and only the second worst pain I've ever felt - first was labor contractions. It was worse than an infected pilonidal cyst or a broken bone. Peeing was agony, plus it was itchy. **Limit:** First outbreaks are the most severe and are not representative of the condition afterwards; several writers here say theirs is now controlled. One record in the group repeats a claim about transmission that another commenter disputes, and nothing here should be read as information about how the virus spreads. What the replies added1 I can't believe this is barely upvoted. My first genital herpes outbreak was the worst illness-related pain I've ever had, and only the second worst pain I've ever felt - first was labor contractions. It was worse than an infected pilonidal cyst or a broken bone. Peeing was agony, plus it was itchy. Reported failure♥ 4 #### Source-record spotlights Most engaged source Genital herpes outbreak! So common but I sure wish I had been without symptoms like most folks. Ouchy! source record 349♥ 13 Later-arriving source Very common. I had a gf who got herpes from a tractor seat. This should be talked about more. posted about 34.5 hours after the source♥ 1 Low-like source herpes - first breakout was during the pandemic after getting vaccinated. Didn’t know until happened. Had to go to the ER, couldn’t walk, sit or go potty. One of the worst pain i ever experienced as a women posted about 10.8 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 13 source records, the most common observable tactic structure is “Attach it to an existing routine” (3 records). This is a wording pattern, not a measured outcome. 13index entries 13distinct source records 2.7%of parent category 0.3%of the complete index 9top-level comments 4replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 13other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments13 preserved records · 13 of 13 source records accounted for **Genital herpes outbreak! So common but I sure wish I had been without symptoms like most folks. Ouchy!**♥ 13source record 349 **I can't believe this is barely upvoted. My first genital herpes outbreak was the worst illness-related pain I've ever had, and only the second worst pain I've ever felt - first was labor contractions. It was worse than an infected pilonidal cyst or a broken bone. Peeing was agony, plus it was itchy.**♥ 4source record 350 **My first outbreak also triggered a UTI at the same time and it was literal hell on earth. I remember screaming in agony for hours at one point. The only relief I could get was standing under a cold shower and every time I got out of it the pain would flare up again. 10/10 pain**♥ 4source record 351 **Yes!! When I had my first outbreak, I was crying every day because of the pain**♥ 2source record 1325 **Very common. I had a gf who got herpes from a tractor seat. This should be talked about more.**♥ 1source record 1366 **Hsv**♥ 1source record 2638 **Canker sores. If that counts. Absolutely debilitating shit**♥ 1source record 3247 **herpetic gingivostomatitis, aka herpes inside my mouth, existence was painful**♥ 1source record 3278 **herpes - first breakout was during the pandemic after getting vaccinated. Didn’t know until happened. Had to go to the ER, couldn’t walk, sit or go potty. One of the worst pain i ever experienced as a women**♥ 1source record 3623 **I know I’m 28 years old, so maybe I haven’t had quite as long a time to get anything painful… but my first herpes outbreak all around my anus. Couldn’t sit down or pee without letting out a yelp. Had to walk around my apartment with hiking poles before I finally got the antivirals**♥ 1source record 3642 **Idk if this world fall into illness but I did have my lower tongue covered with patches of canker sore with small sores and dots around it. Couldn’t do anything with my mouth, ridiculous painful.**♥ 1source record 3880 **My first herpes outbreak had me laid up in bed for 2-3 days with a high grade fever and barely able to eat or drink anything. Thankfully it’s well controlled with medication- but the first outbreak is horrible**♥ 1source record 4038 **Herpes attack. Boyfriend had cheated on me - I didn’t have an outbreak until I was in my 50’s. List 30 lbs ( I weigh 130) my mouth was so swollen I could not eat. Food, touching any part of my mouth sent me running for pain relief. It was excruciating. I went from Dr to Dr No one could make a diagnosis. Finally, I ended up back at the ER getting another morphine shot when an ER doc., who had served in #Vietnam, took some tests, came back to my room and said- “ you have a pretty good case of — herpes!” I wanted to slither out of there and GO BEAT THAT dudes ads! Grrrrrrr**♥ 1source record 4075 Archive: 13 index entries preserve 13 distinct source records · Every displayed synthesis count resolves to source-record IDs The chest, the lungs and the heart127 records · 2 sub-topicsThe answers where breathing is what triggers the pain. 127 records. Lungs, pleura and clots117 index entriesPleurisy, pneumonia, collapsed lungs and clots — the answers where every breath is the trigger. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Lungs, pleura and clots Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Lungs, pleura and clots 117 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3967 **Appears when:** Lungs, pleura and clots **What the pattern means:** The one group where the trigger is involuntary. Writers describe breathing, coughing, sneezing and laughing as the things that hurt, and several say the fear of the next breath was worse than the breath. The pleurisy accounts reach for sandpaper and stabbing; the pneumonia accounts are about the damage the coughing itself does, with cracked ribs and torn muscles recurring. The clot accounts add a different quality — sudden, and in several cases mistaken for something in the abdomen. **What commenters described:** Pleurisy. Every breath was like being stabbed in the chest. **Limit:** Pleurisy, pneumonia, collapsed lungs and clots are collected here because their writers describe the same trigger, not because they are related. Nothing here distinguishes chest pain of one kind from another, and chest pain is not something a comment thread can help anyone assess. What the replies added2 Oh wow. Yeah I had it back when I was in the 3rd grade i was out of school for most of the year, what made it worse was where I live alot of people catch Valley Feaver ( which is a fungus infection) so I had pneumonia and valley fever, I live in the central valley here in California and that shit is ALWAYS in the ground. 🙄 Pushback♥ 2 Bronchitis almost pneumonia. My muscles in my neck were so tight I couldn't lay down, sit, talk, turn or anything. My boyfriend forced me to go to the er and they told me if I waited ang longer I would've had pneumonia. Or bulemia. My heart is fucked now and I have heart palpitations. As well as digestive issues. Depended on laxatives just to get thru my days. Never again. 3 months clean though💪 Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Oh wow. Yeah I had it back when I was in the 3rd grade i was out of school for most of the year, what made it worse was where I live alot of people catch Valley Feaver ( which is a fungus infection) so I had pneumonia and valley fever, I live in the central valley here in California and that shit is ALWAYS in the ground. 🙄 source record 1362♥ 2 Explicit limit or counterpoint I too have given birth. Unfortunately for me I have post thrombotic syndrome in my leg, which was linked to my PE, and that is a fun thing to manage too 😜. Though an ovarian cyst bursting sounds horrific. source record 1465♥ 1 #### Source-record spotlights Most engaged source Pulmonary embolism source record 345♥ 16 Later-arriving source Bacterial pneumonia. The coughing alone does major harm to the muscles and tendons in the chest, shoulders and back. Add a cracked rib and coughing makes you cry posted about 4 days after the source♥ 1 Zero-like source Fucking severe bronchitis. Felt like every rib and muscle and inner organ was cracking and breaking apart and air moving through my lungs hurt so bad. Steroids are a lifesaver. posted about 3.6 hours after the source #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Endometriosis and adenomyosisAttach it to an existing routine · 8 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesAttach it to an existing routine · 21 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 117 source records, the most common observable tactic structure is “Use a sensory reset” (15 records). This is a wording pattern, not a measured outcome. 117index entries 117distinct source records 92.1%of parent category 3.1%of the complete index 100top-level comments 17replies #### What commenters explicitly report 0explicitly reports a benefit 2explicitly reports a limit or failure 3asks a question 0says they intend to try it 112other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Use a sensory reset **15**Attach it to an existing routine **8**Change the sentence **3**Swap instead of subtract **2**Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments117 preserved records · 117 of 117 source records accounted for **I had 7 fibroids on top of endometriosis (extremely painful periods) that lead to a myomectomy yet somehow pneumonia is still the worst for me lmao**♥ 3source record 186 **Pulmonary embolism**♥ 16source record 345 **Pleurisy**♥ 9source record 370 **Pneumonia Like I felt like I was gonna cough up my lungs..my ribs and stomach muscles were soar for a long time. Felt like a Victorian street urchin.**♥ 8source record 384 **Not necessarily painful but pneumonia is awful. You literally cannot breathe, every sentence feels like your dying words**♥ 5source record 406 **DVT**♥ 4source record 422 **VATS after two collapsed lungs.**♥ 3source record 455 **Had a Pulmonary Embolism that emulated a gallbladder attack. 10 on the pain scale. Scream-crying in the ER. Literally could not function. No joke, worst pain I’ve ever felt in my entire life and it’s not even close. My heart goes out.**♥ 1source record 685 **My husband had a bilateral PE. He was short of breath, said he wasn’t feeling good and went to lay down. The only time I’ve ever heard him scream. I was 7m pregnant at the time and thought he was going to die. Very very scary stuff.**♥ 3source record 1279 **Yes! It was horrible! Every time a doctor asks me my pain on a scale I say “well I had pleurisy” and they’re like ohhhh okay well a scale where you pretend that didn’t happen. Ugh!**♥ 2source record 1302 **Yea I had it at 17\. My dad is a pediatrician and within a couple hours in the middle of the night watching me cry and squirm he bet it was pleurisy. A few hours later in the ER, I was diagnosed with it. 3 days later of continual morphine drip, I went home haha. The discomfort lasted for another week or so and my mom had to hide the narcotics because I was asking for them every hour.**♥ 2source record 1303 **Well... I have had it... And I don't remember anything... Seriously anything. Later, when I woke up, I was like "why am i still in the hospital, I'm completely fineeee"... And called my husband, to ask if he knows where our dog is, because he was with me when I called emergency, because I felt weird.**♥ 2source record 1306 **I see... Well I went to the hospital because my GP thought I may have it and they didn't believe me. So they sent me home with three blood thinners syringes just in case before giving me a scan on the Monday. I couldn't sleep on Saturday night for pain and had to sit up the entire time. Should have gone back to the hospital then but thought I was wrong. Glad I didn't die though!**♥ 3source record 1307 **Well... I'm a woman and have chest pain every time I should get my period... And I thought it was all ok. And it wasn't.**♥ 2source record 1308 **I came to say this. I have passed kidney stones, given birth to 5 children, had migraines, and an ovarian cyst burst but the pain of your lungs dying is excruciating! Then comes the rejuvenation...omfg! I'd rather pass another kidney stone.**♥ 2source record 1317 **I sent this same reply elsewhere in the thread. I feel like I understand what it will be like when death comes for me.**♥ 2source record 1323 **I had a PE too put for me there was no pain until after I'd passed out and was in the ambulance on the way to the hospital. Every bump and movement was excruciating in my back and chest.**♥ 2source record 1327 **Dude I feel you so hard. In 2020 I caught some demon strain of pneumonia (not covid) that completely REFUSED to die. It's possible that at some point I simply reinfected myself while I was still weak but "technically" cured, but whatever the case was, this fucker plagued me not just for weeks, but for MONTHS! I caught it just before St. Patricks Day. Tests showed I was still officially diagnosed with it, and suffering from the symptoms in fucking AUGUST. Because of the pandemic, and the fact that so many of my symptoms were covid-adjacent it was difficult for me to get seen, which means when my first antibiotic prescription wasn't enough, it took like a month AFTER finishing it to get the second one, so it wasn't as effective as it could've been. When my new (I had only been assigned that month) PCP tested and confirmed I had either been reinfected or never shook it come August (I was so miserable all year it was impossible to tell) I still wasn't healed after completing that 3rd set FIVE months later. I was improved compared to March, but I still frequently had low fevers, coughed violently, and was suffocating, unable to breathe on a near daily basis. I didn't develop asthma, it was still the fucking pneumonia. However, that PCP was convinced that the one singular antibiotic she prescribed (the others were urgent care) killed it and that it was asthma, completely ignoring that I literally still had constant fevers among other obvious tells, and refused to do shit, utterly dismissing me. I can't even say definitively when I was cured because the sucker left me so weak and did so much general damage to my respiratory system that I didn't even feel like I was at 100% again until 2021\. I was properly tested for asthma early that year. I of course, didn't have it, because that's not what it fucking was. I no longer use that PCP or even that medical branch. That year was easily the most miserable of my life. And while that may be true of many people, it's different when you're the one sick, you're bedridden for months, you can't breathe and are constantly choking, depending on inhalers and nebulizer machines to have any mock-functionality at all, can't get seen by professionals, the ones that do fail you through willful ignorance, and three rounds of antibiotics, acupuncture, and other desperate remedies fail you, and you're fully convinced that you will die a slow and miserable death.**♥ 1source record 1361 **Oh wow. Yeah I had it back when I was in the 3rd grade i was out of school for most of the year, what made it worse was where I live alot of people catch Valley Feaver ( which is a fungus infection) so I had pneumonia and valley fever, I live in the central valley here in California and that shit is ALWAYS in the ground. 🙄**♥ 2source record 1362 **Collapsed lung**♥ 2source record 1392 **I too have given birth. Unfortunately for me I have post thrombotic syndrome in my leg, which was linked to my PE, and that is a fun thing to manage too 😜. Though an ovarian cyst bursting sounds horrific.**♥ 1source record 1465 **I forgot pluresy. That was probably the real worst.**♥ 2source record 1483 **Pneumonia. I coughed so hard that I bruised my ribs from the inside. Also, the coughing made my head hurt. Terrible headaches.**♥ 2source record 1526 **Pleurisy. Bar none. I still say that even after having three C-sections and the passing back and forth of thrush when breastfeeding. It literally felt like my ribs were cracking if I coughed, sneezed, laughed, moved too much/fast.**♥ 2source record 1528 **Well… Pneumonia really sucked when I was 12\. I was nearly hospitalized and I was so weak that I couldn’t walk… But my type of narcolepsy is a real Texas pickle. Everyone just thinks I’m lazy and I get to pretend that I’m OK when I’m not and try my best to cope with my symptoms. It’s trash. Zero stars**♥ 2source record 1553 **Pleurisy. I actually thought I was dying. My entire body hurt so bad and I wasn’t able to stay conscious.**♥ 2source record 1587 **Pneumonia. I felt like in was going to die.**♥ 2source record 1598 **Costochondritis, likened to that of a heart attack. Suffering for over a year now.**♥ 1source record 1607 **There's a mental pain I had with pneumonia that I wouldn't wish on anyone. Minute by minute feeling that you're about to die by drowning on your own lung juice is the scariest thing I've experienced.**♥ 1source record 1701 **Blood clot in my abdomen**♥ 1source record 1726 **Double pneumonia with pericarditis. I couldn’t breathe or wipe myself. I’ve never been in that much pain ever.**♥ 1source record 1727 **Pleurisy**♥ 1source record 1729 **Same. Got a chest x-ray to confirm it wasn’t something more serious. Pleurisy is an inflammation of the pleuritic lining between diaphragm and your lungs. Imagine that instead of a smooth glide, you replaced that glide with sandpaper. Every single breath. Got winded going up a flight of stairs just to avoid taking a stabbing breath. Gained an ppreciation for asthmatics.**♥ 1source record 1756 **Pleurisy. Getting a sharp, stabbing pain every time I breathed or moved for over a week was awful.**♥ 2source record 1759 **Depression makes everything worse. I've had a kidney stone that was pretty bad but last December I had a massive costochondritis attack that made that kidney stone look like I stubbed my toe.**♥ 1source record 1771 **Pneumonia honestly**♥ 1source record 1811 **When I had pleurisy… no reason why I got it… but not being able to breathe was so fucking painful… I had to get shots for the pain and hoped it worked… it didn’t always… it lasted about a month and I’ve had it twice with no other symptoms. I absolutely do not recommend it. No short breaths, no shallow breaths and especially no deep breathing. It started to affect my eating and swallowing as well… it’s been a put a year since I had it last and I hope it stays that way.**♥ 1source record 1826 **I had Pneumonia once and sometimes it felt like i would die and i have a chronic Intestinal disease... Which was acute at the time I had the pneumonia... Terrible time**♥ 1source record 1834 **Dvt**♥ 1source record 1885 **Pneumonia for sure**♥ 1source record 1933 **Pleural effusion caused by a combination of pneumonia, histoplasmosis, and epithelioid sarcoma metastasis to the lungs. Though the worst pain I've ever felt was falling on my residual limb two months after losing my lower leg (due to cancer). The nerve sensitivity had me thinking I'd ripped open my leg/shattered bones and all it actually did was bruise it lol. That hospital visit i felt very stupid.**♥ 1source record 1955 **Plurisy! Felt like my chest was being sat on by a rhino...hard to breathe and the pain was both on inhales and exhales. Sharp, stabbing pains that folded me over. Shit went on for 2 days.😳**♥ 1source record 1995 **March 2025 flu while on an intentional flight, turned to pneumonia nearly died**♥ 1source record 2008 **Either pleurisy as a kid, or gallstones**♥ 1source record 2060 **Hemothorax & pleural effusion**♥ 1source record 2097 **Bronchitis almost pneumonia. My muscles in my neck were so tight I couldn't lay down, sit, talk, turn or anything. My boyfriend forced me to go to the er and they told me if I waited ang longer I would've had pneumonia. Or bulemia. My heart is fucked now and I have heart palpitations. As well as digestive issues. Depended on laxatives just to get thru my days. Never again. 3 months clean though💪**♥ 1source record 2128 **pneumonia**♥ 1source record 2131 **Acute bronchitis... for 6 months. The coughing was so painful it brought me to my knees everytime. The cough attacks would also cause me to almost pass out several times due to lack of oxygen. As a college student, I only had access to the free health center on campus, and did not get proper treatment. I spent the whole semester in my dorm room because this was during COVID and I didn't want to freak people out with my coughing. The health center did not tell me how bad acute bronchitis is, and I should have 100% gone to the hospital. No one informed me how serious it was. I was lead to believe it was something that just had to work it's way out my system.**♥ 1source record 2152 **Collapsed lung**♥ 1source record 2184 **Pleurisy**♥ 1source record 2225 **I once had bronchitis and a mutated Influenza virus at the same time. Hydrocodone syrup didn’t help and I was sneezing blood and coughing it as well.**♥ 1source record 2238 **Pericarditis. It’s like a St. Bernard was sitting on my chest.**♥ 1source record 2248 **Bilateral pneumonia from Covid 💀**♥ 1source record 2267 **Pericarditis**♥ 1source record 2282 **Pericarditis, I hope that I never get that again.**♥ 1source record 2297 **Pleurisy**♥ 1source record 2433 **Pleurisy**♥ 1source record 2496 **Blood clots in my lungs**♥ 1source record 2585 **Pneumonia. Uti sepsis**♥ 1source record 2630 **Pleurisy**♥ 1source record 2716 **Pneumonia. It can be excruciatingly painful**♥ 1source record 2740 **Pneumonia. Not painful in the agony sense, but I think I was close to death.**♥ 1source record 2762 **Pleurisy/pleuritic chest pain. -1000/10, thought I was dying.**♥ 1source record 2767 **Pleurisy, nothing even came close since!**♥ 2source record 2808 **Pulmonary embolism with lung infarction. Every breath hurt, couldn’t laugh, could barely eat, laying any other way besides on my back hurt. I can still remember that pain so vividly. I was prescribed both Percocet & morphine lol**♥ 1source record 2824 **Pleurisy; 3+ times, I've got COPD & it's a regular complication if not caught in time.**♥ 1source record 2865 **Pleurisy**♥ 1source record 2930 **Costochondral separation, Trigeminal neuralgia, Shingles, Avascular necrosis**♥ 1source record 2948 **Blood clot in my leg.**♥ 1source record 2980 **Pneumonia with empyema, felt like I was having a heart attack (empyema was on the left). I actually ended up in a cardiologists office just to be sure it wasn't.**♥ 1source record 3005 **Pneumothorax with pleurodesis surgery. The pleurodesis is a REALLY REALLY painful surgery that involves blistering the entire lung.**♥ 1source record 3037 **Pleurisy**♥ 1source record 3043 **Double pneumonia and pericarditis at the same time. Felt like breathing nails**♥ 1source record 3062 **Pleurisy**♥ 1source record 3117 **Don't know if this is worst compared with what others posted here, but for me, it was the chest infection. Fought it for a month, off work for a month, slowly recovered weeks after. Never want to experience this again.**♥ 1source record 3186 **Deep Vein Thrombosis**♥ 1source record 3225 **Pneumonia, as a child. It felt like someone was stabbing my back**♥ 1source record 3254 **Pleurisy! From a virus my kids had that they were mildly ill from (called foot & hand" due 2 where there's a rash) that apparently can manifest as pleurisy in adults. Pleurisy is where the linings between the lungs get inflamed & the lubrication dries up between them and your diaphragm/breathing muscles so breathing is excruciating. It hurt so bad I passed out briefly at home when it first hit me, woke up on the floor drenched in sweat, shaking & in agony, my young sons looking at me perplexed. The ER doc listened to my lungs & said- oh it's pleurisy! High-dose NSAIDS for a few days cleared it up. Weirdest mysterious & sudden onset/ symptoms- thought I was dying.**♥ 1source record 3280 **Pericarditis, it took 24 hours to really 'kick in' and landed me in the hospital with suuuper high troponin levels. Felt like a lead weight was in my ribcage and it hurt to breathe, was easily winded and it lasted for MONTHS. Every time it got a little bit more noticeable, I would panic wondering if it was actually happening again, which would make the pain worse! The one actual time I decided "Ehh fuck it, Im feeling off-kilter. Im gonna actually use my sick hours." and I end up seeing three different cardiologists asking if I got into a major car crash- or perhaps went skydiving that I forgot about? Good times.**♥ 1source record 3310 **I had pneumonia and pleurisy about 8yrs ago and I can confirm that that sucked pretty bad. It did get me to quit smoking cigs. So I guess it was worth it, but damn, every single breath hurt.**♥ 1source record 3319 **I have costochondritis at the moment (inflammation of the intercostal cartilage in the ribcage). The pain and all the pressure can be mistaken for a heart attack. It’s been 5 days so far and I feel like I’m in a cement corset. It hurts to breathe or move.**♥ 1source record 3330 **A toss up between Costochondritis and a bad case of cockles food poisoning.**♥ 1source record 3338 **Acute myopericarditis**♥ 1source record 3353 **bronchitis hurt so bad to breathe. But cousins say kidney stones or endometriosis are much worse thankfully I won't experience either of those.**♥ 1source record 3355 **Pneumonia**♥ 1source record 3360 **Pulmonary embolisms**♥ 1source record 3408 **The horrible pleurisy I got when I had pneumonia. Every single breath felt like my lungs were being stabbed on all sides. And coughing made me want to die. I have chronic migraine, so I am no stranger to pain. But dreading every single breath was a new level of miserable.**♥ 1source record 3420 **One time what I thought was just a cold turned into having bronchitis for an entire month. The constant coughing caused so much pain in my throat and pretty much every muscle in my torso and I was coughing so hard that it was making me throw up. I'm also hypermobile so during my bout of bronchitis I was leaning on something while coughing really hard so I wouldn't fall over and that caused my shoulder to dislocate. I didn't realize that was what had happened I just felt immense pain in my shoulder and shooting down my arm and I could not move my arm at all, like idk if dislocating it blocked the nerves that control arm movement but my arm was just a very painful noodle. I only realized it was dislocated because I was like "well shit I can't move my arm but I need to" so I used my other arm to move the one that was dislocated and it popped back into place once I moved it a certain way. In hindsight I found out that if you dislocate something you shouldn't try to put it back in place yourself and should go to the ER because it can damage the joint itself as well as the muscles and nerves in that area if not done properly. I did end up with my shoulder being very inflamed and had to be put on muscle relaxers as well as a course of steroids because even after the bronchitis finally went away my shoulder was still pretty fucked up. I couldn't lift my arm higher than parallel to the floor for a good while and it was my dominant arm too.**♥ 1source record 3425 **portal vein blood clot**♥ 1source record 3474 **Pneumonia caused by the flu. But that wasn't the worst part, I coughed incessantly for weeks and only didn't cough if I was sleeping. I ended up tearing my intercostal muscle on week 3 of the persistent coughing and anytime i coughed after it tore I was in excruciating, horrible, everlasting, fire like pain. Week four I completely lost my voice. I couldn't even express that I was in pain. It took almost 6 months for my voice to return to normal and took roughly the same amount of time for the tear to heal. I would not wish that on anyone.**♥ 1source record 3496 **ARDS. Literally slowly suffocating.**♥ 1source record 3532 **Pneumonia.**♥ 1source record 3536 **Septic pneumonia. Felt like I was trying to breathe in literal flames while also having the lung capacity of a hamster**♥ 1source record 3557 **bilateral pneumothorax (double lung collapse)**♥ 1source record 3595 **Pleurisy. It hurt to breathe but coughing was the worst pain I have ever experienced.**♥ 1source record 3621 **Pericarditis. You want to breathe? Nope, that’s going to hurt. A LOT.**♥ 1source record 3641 **Bacterial pneumonia. The coughing alone does major harm to the muscles and tendons in the chest, shoulders and back. Add a cracked rib and coughing makes you cry**♥ 1source record 3674 **Pneumonia. I thought my back was out at first. That lasted months. Finally saw my doc, but by then I was heading south. About 3 weeks after seeing my doc. I ended up in the hospital. 3 days in ICU, 1,700 cc on the first drain of my lung. Got another 1,700cc’s out before they decided on surgery. Had a lateral thoracotomy, they took a rib. Spent 3 weeks in the hospital. Was home only a week when I ended right back in for C-diff. Spent another 7 days recovering from that.**♥ 1source record 3684 **That Coachella Cough 😩😓 I would wake up crying from pain in my chest. Way worse than covid imo**♥ 1source record 3687 **Asthama. Every fortnight**♥ 1source record 3768 **I had pneumonia a few years before COVID and I ended up with slipping rib syndrome along with normal costochondritus and ended up with horrible pain in my ribs and chest whenever I coughed laughed or moved my left arm.**♥ 1source record 3785 **Pericarditis**♥ 1source record 3822 **Costochondritis and endometriosis/uterine fibroids**♥ 1source record 3839 **Advanced pleural effusion with full open thoracotomy to fix .Made gall bladder stones seem like a walk in the park .**♥ 1source record 3842 **Chemical pneumonia**♥ 1source record 3893 **The between the first time i had pneumonia and the time i had a staph infection nearly all over my body.**♥ 1source record 3900 **In 2020 I caught some demon strain of pneumonia (not covid) that completely REFUSED to die. It's possible that at some point I simply reinfected myself while I was still weak but "technically" cured, but whatever the case was, this fucker plagued me not just for weeks, but for MONTHS! I caught it just before St. Patricks Day. Tests showed I was still officially diagnosed with it, and suffering from the symptoms in fucking AUGUST. Because of the pandemic, and the fact that so many of my symptoms were covid-adjacent it was difficult for me to get seen, which means when my first antibiotic prescription wasn't enough, it took like a month AFTER finishing it to get the second one, so it wasn't as effective as it could've been. When my new (I had only been assigned that month) PCP tested and confirmed I had either been reinfected or never shook it come August (I was so miserable all year it was impossible to tell) I still wasn't healed after completing that 3rd set FIVE months later. I was improved compared to March, but I still frequently had low fevers, coughed violently, and was suffocating, unable to breathe on a near daily basis. I didn't develop asthma, it was still the fucking pneumonia. However, that PCP was convinced that the one singular antibiotic she prescribed (the others were urgent care) killed it and that it was asthma, completely ignoring that I literally still had constant fevers among other obvious tells, and refused to do shit, utterly dismissing me. I can't even say definitively when I was cured because the sucker left me so weak and did so much general damage to my respiratory system that I didn't even feel like I was at 100% again until 2021\. I was properly tested for asthma early that year. I of course, didn't have it, because that's not what it fucking was. I no longer use that PCP or even that medical branch. That year was easily the most miserable of my life. And while that may be true of many people, it's different when you're the one sick, you're bedridden for months, you can't breathe and are constantly choking, depending on inhalers and nebulizer machines to have any mock-functionality at all, can't get seen by professionals, the ones that do fail you through willful ignorance, and three rounds of antibiotics, acupuncture, and other desperate remedies fail you, and you're fully convinced that you will die a slow and miserable death.**♥ 1source record 3937 **Pleurisy. Every breath was like being stabbed in the chest.**♥ 1source record 3967 **Pleurisy. Water in the lung sacks. Breathing hurt with every breath.**♥ 1source record 3970 **Pneumonia**♥ 1source record 4003 **A blood clot. Before it was diagnosed I was contemplating how long I could live with the pain. It was only a week but I didn’t think I could last another**♥ 1source record 4064 **Pleurisy, every breath was agonizing.**♥ 1source record 4101 **Pleurisy. I called an ambulance because I thought I was having a heart attack.**♥ 1source record 4120 **Blood clot in my lungs, feels like someone poking a broom handle in the ribs.**♥ 1source record 4159 **1\. Pleurisy 2\. Abdominal migraine 3\. Ocular migraine 4\. Migraine w/brainstem aura 5\. Kidney stones 6\. “Regular” migraine**♥ 1source record 4173 **It took me a few weeks to get diagnosed, I was 22 and everyone kept testing me for pulmonary embolisms and saying it was just asthma when none were found. Ugh it was torture! I think I had it for just under 3 months total which is pretty long for pleurisy, but I do have underlying lung and immune conditions. I then started having panic attacks because I kept being told it was a PE and then sent home. Even though it was over 20 years ago now I can go into a full panic attack if I even feel anything weird in my lungs! I also got no narcotics, they just told me to take ibuprofen over the counter. Oof!**♥ 1source record 4313 **Fucking severe bronchitis. Felt like every rib and muscle and inner organ was cracking and breaking apart and air moving through my lungs hurt so bad. Steroids are a lifesaver.**♥ 0source record 4414 Archive: 117 index entries preserve 117 distinct source records · Every displayed synthesis count resolves to source-record IDs Heart attacks and heart disease10 index entriesCardiac answers, several of them from writers who say they were sent home first. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Heart attacks and heart disease Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Heart attacks and heart disease 10 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1809 **Appears when:** Heart attacks and heart disease **What the pattern means:** Ten records, and the striking thing is how defensive several of them are: writers pre-empt the objection that a heart attack is not an illness. The descriptions are of pressure rather than sharpness, all-consuming and constant. Elsewhere in the corpus the same sensation appears as a misdiagnosis — the gallbladder and pleurisy groups are full of people who thought this was what they were having. **What commenters described:** The Widowmaker heart attack. And don't tell me it's not an illness because I was incredibly ill for a few days and am lucky that I survived. **Limit:** Ten records is a very thin base and most name the event without describing it. Nothing here distinguishes cardiac pain from anything else, and chest pain needs emergency assessment rather than a comment thread. #### Source-record spotlights Most engaged source Heart attack from extreme SVT. Followed by endometriosis and ovarian cysts bursting. source record 1574♥ 2 Later-arriving source Heart pain from a stenotic aortic valve. posted about 2 days after the source♥ 1 Low-like source Heart Disease... Had Triple Bypass a little over 3 weeks ago posted about 3.8 hours after the source♥ 1 #### What the counts show This report keeps all 10 source records for Heart attacks and heart disease together and surfaces traceable examples without converting anecdotes into proof. 10index entries 10distinct source records 7.9%of parent category 0.3%of the complete index 10top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 10other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments10 preserved records · 10 of 10 source records accounted for **Heart attack from extreme SVT. Followed by endometriosis and ovarian cysts bursting.**♥ 2source record 1574 **Heart attack**♥ 1source record 1658 **Cardiovascular disease resulting in a heart attack. That kind of hurts.**♥ 1source record 1731 **Angina due to the vacation for military service**♥ 1source record 1739 **The Widowmaker heart attack. And don't tell me it's not an illness because I was incredibly ill for a few days and am lucky that I survived.**♥ 1source record 1809 **Three massive STEMi heart attacks**♥ 1source record 1996 **Congestive heart failure. I really thought I was a goner. The chest pain and pressure was all consuming.**♥ 1source record 2620 **Heart pain from a stenotic aortic valve.**♥ 1source record 2996 **I had Endocarditis of the heart. I was on picc line IV to the main artery of my heart for 27 days. It was the most awful experience. I’m grateful to be alive everyday.**♥ 1source record 3770 **Heart Disease... Had Triple Bypass a little over 3 weeks ago**♥ 1source record 3872 Archive: 10 index entries preserve 10 distinct source records · Every displayed synthesis count resolves to source-record IDs Cancer, and its treatment72 records · 2 sub-topicsAnswers that separate the disease from what was done about it — and often rank the treatment higher. 72 records. Cancer54 index entriesThe disease itself, from the people who had it and the families who watched. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Cancer Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Cancer 54 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 290 **Appears when:** Cancer **What the pattern means:** Two kinds of record sit here. The first-person accounts are usually about where the cancer had spread rather than the tumour itself — a spine, a bone, a nerve — and several writers note that the disease was painless until it was not. The second kind is written by families, describing somebody else's constant pain and their own helplessness. The recurring structural complaint is the years of dismissal before diagnosis, particularly from writers who were young when the pain started. **What commenters described:** I was gonna say bone cancer—not leukemia, but the kind that causes tumors to grow on the bone. Mine was particularly bad around one knee. What made it especially awful was that it went largely ignored for the better part of a decade. Because I was young, I was repeatedly treated like a drug seeker/addict, and insurance made getting something as basic as an MRI an uphill battle. Eventually the pain became so debilitating that I couldn’t reliably work because I never knew when I’d suddenly collapse from it. I had to fight tooth and nail just to get doctors to take the pain seriously enough to figure out what was actually happening and even with a good job and insurance, years to pay for it. **Limit:** This group mixes people who had cancer with people who watched somebody else have it, and the diagnoses inside it have almost nothing in common. Nothing here is a way to recognise cancer or to interpret any symptom. What the replies added1 Lymphoma. It broke my sternum. Reported failure♥ 1 #### Source-record spotlights Most engaged source I hope you are doing well. My family member had this and I remember vividly how much pain he was in...constantly. Sweating profusely due to the pain. My genuine hugs to you. source record 150♥ 22 Later-arriving source Love that you survived that, but seeing that it was the most painful hurts my heart. My dad passed from pancreatic cancer and before we knew that’s what it was, he had been complaining about the pain. I knew it had to be bad because my dad never went to the doctor for anything and never complained about pain, he just always worked through it. posted about 27.6 hours after the source♥ 1 Low-like source Right frontal lobe brain cancer. Felt like someone was inflating a balloon inside your skull and you feel the pressure on the back of your eyes. Oh also constant agonizing pain. posted about 3.9 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisTurn it into a game · 2 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseUse a sensory reset · 2 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateChange the sentence · 6 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 54 source records, the most common observable tactic structure is “Use a sensory reset” (2 records). This is a wording pattern, not a measured outcome. 54index entries 54distinct source records 75%of parent category 1.4%of the complete index 45top-level comments 9replies #### What commenters explicitly report 1explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 53other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Change the sentence **2**Turn it into a game **2**Use a sensory reset **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments54 preserved records · 54 of 54 source records accounted for **My dad also survived it. He was a long time diabetic that wasn't great about controlling it. His pancreas was so knackered that as soon as a tumour started forming, he got pancreatitis and that put him in hospital, where they caught the tumour. Even though they caught it very early, he still had to have a Whipple procedure and was in intensive care. It's a truly awful cancer.**♥ 19source record 144 **I hope you are doing well. My family member had this and I remember vividly how much pain he was in...constantly. Sweating profusely due to the pain. My genuine hugs to you.**♥ 22source record 150 **Damn that sucks. My FIL is declining fast it seems. Spot on his liver and lungs too.**♥ 8source record 151 **I wish you the best thru this difficult journey 🙏🏽 going thru this currently with my mom. she is 3months post Whipple & just started chemo. watching and being her caregiver during this time has been really hard especially to see her in this pain. i wish i could take it all away 🥺**♥ 4source record 152 **Spine tumour.**♥ 38source record 289 **I was gonna say bone cancer—not leukemia, but the kind that causes tumors to grow on the bone. Mine was particularly bad around one knee. What made it especially awful was that it went largely ignored for the better part of a decade. Because I was young, I was repeatedly treated like a drug seeker/addict, and insurance made getting something as basic as an MRI an uphill battle. Eventually the pain became so debilitating that I couldn’t reliably work because I never knew when I’d suddenly collapse from it. I had to fight tooth and nail just to get doctors to take the pain seriously enough to figure out what was actually happening and even with a good job and insurance, years to pay for it.**♥ 4source record 290 **Brain tumor. Imagine the worst migrane you've ever had. Now imagine going through that nonstop with no relief at all.**♥ 21source record 337 **I had a tumor in my throat for twenty years that was misdiagnosed as nerve damage. Very painful. The tumor was finally discovered and removed. No more pain.**♥ 8source record 373 **Bowel cancer by a million miles. Some days just stuck in bed doubled up in pain. Recovering now but it was a long long 2 years.**♥ 6source record 417 **Leukemia and all the side effects that came with it were awful.**♥ 3source record 452 **Im so sorry. My grandpas was caught early. It happened to metastasize on a spot that ended up blocking his bile duct from opening, and therefore he jaundiced. They had to figure out why he was jaundiced and found the pancreatic cancer. If it had happened to metastasize anywhere else they wouldn’t have caught it.**♥ 2source record 941 **If it takes longer than 6 weeks to get over sciatica, personally I encourage approaching the physician again and asking for investigations to try to sort out the cause. If you are put off on that approach, try again a couple of weeks later. I write this, not to scare you, but to explain why I say the above. A family member was diagnosed with "sciatica", and, the person had it no doubt, but, nothing was done for 6 months other than confirming it and the doling out of paracetamol or encouragement to take paracetamol. The person said they were dying to the physician. The person was. I had to take the person to a chiropractor for the man to write to the physician saying the person was seriously ill with a bone disease and needed an X-ray investigation immediately. It was bone secondary tumours in the lumbar region from a primary renal cancer (ie stage 4) and a large chunk of the pelvis had gone, eroded by tumour(/s). The point was the person was in agony throughout, and deprived of appropriate pain relief. The person needed good palliative care (eg irradiation of tumours in spine) and opiate pain relief such as Oromorph.**♥ 3source record 1135 **What were you diagnosed with? I had a giant cell bone tumor in my first metatarsal. Bone tumor pain is unlike anything I’ve ever experienced. The best thing about being in labor is that my foot didn’t hurt 😂**♥ 2source record 1238 **I had a 40lb angiomiolypoma attached to my left kidney that I had recently gotten surgery for and they had to remove them both. I had consistent shivers (severe, fighting to breathe, sent to MICU) and fevers for almost 2 weeks straight. Before that I also had appetite issues, low hemoglobin, bad acid reflux, back pains, kept some weight on me and not to mention an elevated heart rate of 150 during these episodes of shivers I’d have. Muscles would tense up I couldn’t breathe. I would also puke and then proceed to get heat flashes. Fuck that entire month of my life holy hell…thanks to a genetic disorder called TSC (tuberous sclerosis complex).**♥ 2source record 1394 **Sounds innocuous but I had a Glomus tumour in my finger under my nail that grew for over a decade with me in agonising pain, temperature sensitivity to hot and cold that would have me screaming if I didn’t constantly wear a leather glove to keep any chill out. None of the drs believed me or really tried to figure it out they all thought I was exaggerating, until the tumour grew large enough that it split the nail and poked out. Eventually saw a hand surgeon who got really excited because he’d only seen one other in his career and mine was much bigger. he asked if he could keep it after he took it out. I’d by this point been begging for amputation and had even threatened to cut it off myself because I couldn’t bear the pain anymore. He did take it out and despite the fact I was recovering from surgery and my nail was gone the relief was immediate. I cried the first time I touched ice and it didn’t cripple me for hours and again when I washed my hands in hot water for the first time in years. Two years later and it’s growing back but is still manageable for now. I’m disabled and suffer severe chronic pain every second of every day but that was on another level.**♥ 2source record 1492 **Cancer on my right testicle that spread to my other organs. At the time, the oncologist said he was going to give me the highest chemo dose that is barely legal for a human my height. This was many years ago. It's gone now.**♥ 2source record 1519 **Adrenal tumors**♥ 1source record 1654 **Brain cancer. Level 10 on the pain scale headaches.**♥ 2source record 1761 **Cancer. Depression.**♥ 1source record 1889 **Stage 4 cancer.**♥ 1source record 1906 **Stage iv colon cancer symptoms and treatment were hell!**♥ 1source record 2021 **Synovial sarcoma of my spine and neck**♥ 1source record 2032 **Gotta say Lymphoma. The back pains it wakes you up to is wild, i cannot put it into words. But that’s mostly because mine had spread everywhere.**♥ 1source record 2061 **Cancer, ewing sarcoms with 3 open thorax operations. Two fucking times, with 15 years apart....**♥ 1source record 2074 **Cancer**♥ 1source record 2127 **Brain cancer. And then AVN - bones didn't get enough blood and die. Incredibly painful**♥ 1source record 2214 **Cancer. It presented as pneumonia for a long time which was really painful until they took out most of my lung.**♥ 1source record 2265 **Colon Cancer and Adrenal Cancer (two completely different types) at the same time.**♥ 1source record 2280 **Nerve cancer**♥ 1source record 2305 **Cancer**♥ 1source record 2318 **Desmoid Tumor, 24/7 pain.**♥ 1source record 2569 **Cancer**♥ 1source record 2635 **I was hours away from dying from a burst spleen because of Leukemia. Just this pain in my left side that literally had me crying and not moving. Parents took me to the ER. ER initially called it “Bruised Ribs” but I had a 100+ fever so my dad (who is definitely very under spoken and is the sidekick in a “matriarch”) forced them to draw blood. Blood test came back at 120 White Blood Cell count which is, 120,000 WBC per micro liter of blood. Normal count tops out around 12 or 12,000 per micro liter. Had my spleen exploded, I would have died. Which explains why I felt like I was dying.**♥ 2source record 2806 **Cancer**♥ 1source record 2858 **Gastric-type cervical adenocarcinoma**♥ 1source record 2861 **Cancer and chronic pain.**♥ 1source record 2863 **Cancer**♥ 1source record 2881 **cancer**♥ 1source record 2972 **Having my kidney removed due to cancer. I had dilaudid in my IV drip. What a relief!**♥ 1source record 3041 **Lymphoma. It broke my sternum.**♥ 1source record 3266 **Cancer that had spread to my lower back. The pain if I coughed or sneezed was unbelievable.**♥ 1source record 3298 **Cancer.**♥ 1source record 3417 **Cancer.**♥ 1source record 3449 **Cancer.**♥ 1source record 3632 **Tumor on my spleen and splenectomy. Now I have constant pain in my lower anterior ribs. Both sides. No one can figure out why. It’s like a vice grip. I’m getting used to it.**♥ 1source record 3637 **Cancer**♥ 1source record 3705 **HLRCC leios. Unbearable. Cut em out-they grow back.**♥ 1source record 3721 **2 brain tumors**♥ 1source record 3814 **Cancer. Before we knew exactly what it was, the pains I would get in my left arm was 10/10\. Spinal tumor. Ewing’s sarcoma. 31 rad txs, 14 rounds of chemo. Then it came back 6mo later in my brain/spine/CNS. I relearned how to walk, my left hand is paralyzed. Chemo forever but I honestly love and appreciate my life so much. I’ve found joy in art and friends/family, my birds, and smoking lots of pot in my garage**♥ 1source record 3831 **Cancer, Endometriosis, and kidney stones in that order.**♥ 1source record 3832 **Giant cell bone tumor**♥ 1source record 3944 **Right frontal lobe brain cancer. Felt like someone was inflating a balloon inside your skull and you feel the pressure on the back of your eyes. Oh also constant agonizing pain.**♥ 1source record 3979 **leukemia**♥ 1source record 4004 **Love that you survived that, but seeing that it was the most painful hurts my heart. My dad passed from pancreatic cancer and before we knew that’s what it was, he had been complaining about the pain. I knew it had to be bad because my dad never went to the doctor for anything and never complained about pain, he just always worked through it.**♥ 1source record 4213 Archive: 54 index entries preserve 54 distinct source records · Every displayed synthesis count resolves to source-record IDs What the cancer treatment felt like18 index entriesThe answers that separate the treatment from the cancer and put the treatment first. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: What the cancer treatment felt like Source-backed answers are shown before diagnostics; the complete source archive remains below. #### What the cancer treatment felt like 18 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2118 **Appears when:** What the cancer treatment felt like **What the pattern means:** A group that exists because its writers insist on the distinction: the cancer was not the painful part. What they name instead is specific — bone pain from chemotherapy, mouth sores, radiation burns to skin that has to be sat on, drains, a bone-marrow needle felt at every depth, lymph-node tubes removed without anaesthesia. One writer's summary is that the disease was painless and the cure nearly killed him. **What commenters described:** Kidney cancer — except the tumor never hurt at all, they found it by accident after a kidney stone. What hurt was everything after: surgery complications, internal bleeding, transfusions, a stent, 19 days in the hospital. The disease was painless. The cure nearly killed me. **Limit:** These are individual experiences of particular regimens, some of them from many years ago, and treatment has changed; nothing here predicts what any treatment will feel like for anyone else, and nothing here is a reason to decline one. What the replies added1 Not the illness, but the treatment. In 2009 I had leukemia. First the bone marrow test. It's done in a series of needles, each one going a little deeper with meds to numb you. I painfully felt each one. Then the first chemo I was on (for nearly 3 months) was in pill form (several each day). My body did not react nicely too it. Muscle spasms so severe morphine didn't touch the pain. Follow by a bowel blockage. I have had surgery and broken bones before that and since with needing little to no pain meds. But those muscles spasms were torture. At least they found a med to control the spasms that gave me relief. Reported failure♥ 1 #### Source-record spotlights Most engaged source Getting rectal cancer spots cut out. Crying in the bathroom while trying to poop for a week straight the first 2 times. Was all clear the third though! source record 346♥ 13 Later-arriving source Throat cancer, the cancer didn't hurt, but the surgery where they gutted my throat and slit my neck to remove 39 lymph nodes was absolutely brutal. And the recovery was horrible posted about 2 days after the source♥ 1 Low-like source Testicular cancer, getting my nut taken out and then my lymph nodes sucked. Sucked even more when they raw dogged taking out the tubes going to the points where my lymph nodes where. I’ve never cursed in front of old nurses out as much as I did when that happened. They had like 4 people holding me down by both arms (2 and 2) fuck that shit. 7 years good since then ❤️ posted about 3.8 hours after the source♥ 1 #### What the counts show The exact phrase “the cancer that caused” recurs across 2 of the 18 source records in What the cancer treatment felt like; the complete archive stays available below. 18index entries 18distinct source records 25%of parent category 0.5%of the complete index 18top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 18other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments18 preserved records · 18 of 18 source records accounted for **Getting rectal cancer spots cut out. Crying in the bathroom while trying to poop for a week straight the first 2 times. Was all clear the third though!**♥ 13source record 346 **Radiation burns from breast cancer treatment. Skin cracked, burnt, split open from blisters. It was unbearable.**♥ 2source record 1548 **Testicular cancer, getting my nut taken out and then my lymph nodes sucked. Sucked even more when they raw dogged taking out the tubes going to the points where my lymph nodes where. I’ve never cursed in front of old nurses out as much as I did when that happened. They had like 4 people holding me down by both arms (2 and 2) fuck that shit. 7 years good since then ❤️**♥ 1source record 1833 **Cancer (the treatment)**♥ 1source record 1980 **Kidney cancer — except the tumor never hurt at all, they found it by accident after a kidney stone. What hurt was everything after: surgery complications, internal bleeding, transfusions, a stent, 19 days in the hospital. The disease was painless. The cure nearly killed me.**♥ 1source record 2118 **Cancer I guess but it wasn’t so much the cancer that caused me lots of trouble (luckily, caught early), but the treatment.**♥ 1source record 2195 **Breast cancer. BUT....was a small lump and removed. The most painful part was the burns and underboob skin peeling off and open sores from radiation. Cry. Cry. Cry. All better now but i will remember that for a long time**♥ 1source record 2696 **Cancer pain. Specifically chemo side effects. Mucositis (mouth sores) and bone pain are really really bitches.**♥ 1source record 3019 **Not the illness itself but the treatment for it. Cancer sucks.**♥ 1source record 3030 **Chemotherapy probably most brutal in totality. In terms of acute pain - ruptured disc in my back. Followed closely by headache from meningitis.**♥ 1source record 3064 **Not cancer, but cancer treatment. Brutal.**♥ 1source record 3088 **Biopsy for cancer in my armpit. It was there.**♥ 1source record 3262 **Breast cancer. But it wasn’t the cancer itself - it was the chemo. Holy God.**♥ 1source record 3616 **Cancer. It wasn't the cancer that caused the pain, but rather the treatment. Everyone things chemo just makes you sick to your stomach. No one talks about the horrific bone pain from chemo.**♥ 1source record 3732 **Not the illness, but the treatment. In 2009 I had leukemia. First the bone marrow test. It's done in a series of needles, each one going a little deeper with meds to numb you. I painfully felt each one. Then the first chemo I was on (for nearly 3 months) was in pill form (several each day). My body did not react nicely too it. Muscle spasms so severe morphine didn't touch the pain. Follow by a bowel blockage. I have had surgery and broken bones before that and since with needing little to no pain meds. But those muscles spasms were torture. At least they found a med to control the spasms that gave me relief.**♥ 1source record 3902 **Squamous cell carcinoma in my tongue. Led to about a month of appointments of having a camera shoved up my nose and down my throat. Spent my 10th wedding anniversary having a feeding tube put in. The knockout gas didn't take right away, so I had to experience the camera for that going down my throat and into my stomach, which was the most scared I've been in my life because I couldn't breathe. 4 days later, I had a 90% glossectomy and spent 8 days in the hospital an hour from home. Was the loneliest, most miserable time of my life.**♥ 1source record 4020 **Not an illness but the treatment for it. Radiotherapy, 39 consecutive sessions, burning to the flesh every inch of body, front and back, that touches my chair as I sit. Had cold sweats before taking a pee because - well...imagine vinegar on a paper cut and multiply that pain more than a few times. Six kinds of painkillers daily for around 12 weeks. That was 2012\. But I went from 51% chance of survival for five years to 3% chance of recurrence. I win. :) Having said that, I also had severe depression around 2008, and I'd rather do the chemo and radiotherapy than that.**♥ 1source record 4068 **Throat cancer, the cancer didn't hurt, but the surgery where they gutted my throat and slit my neck to remove 39 lymph nodes was absolutely brutal. And the recovery was horrible**♥ 1source record 4180 Archive: 18 index entries preserve 18 distinct source records · Every displayed synthesis count resolves to source-record IDs Skin and soft tissue104 records · 3 sub-topicsThe surface, and the places on it people were least willing to name. 104 records. Fissures, abscesses and haemorrhoids53 index entriesThe answers most often prefaced with an apology for naming them. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Fissures, abscesses and haemorrhoids Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Fissures, abscesses and haemorrhoids 53 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1420 **Appears when:** Fissures, abscesses and haemorrhoids **What the pattern means:** The group most often prefaced with an apology, and the one whose writers are most insistent that it should not be. The fissure accounts describe a specific and unusual dynamic: the pain arrives with a routine bodily function, which produces dread of the bathroom, which several writers say was the worst part. The abscess and pilonidal accounts are about the aftermath rather than the event — months of wound packing, drainage done with anaesthetic that did not work, and repeat surgeries. **What commenters described:** Anal fissure. Feels like shitting knives and the only thing to heal it is time. The anxiety that bubbles up when you need to go to the bathroom...I hope it never happens again. **Limit:** These records describe severe and often repeatedly operated cases, which is not the usual course. Nothing here identifies any of these conditions or indicates a treatment, and several accounts describe delaying care out of embarrassment rather than recommending it. What the replies added3 I’ve also had a handful of surgeries and broken bones and they don’t even come close to the fissure I’m currently dealing with. I’m doubled over in pain for hours every day fighting the urge to pass out or vomit each time. Reported failure♥ 2 This might get a little gross. I had testicular torsion as a kid which was SO much worse than this issue, but this issue is a little more interesting so I'll mention it. Pilonidal Cyst for physical pain at least. Basically a cyst that forms in a sinus that you have from the top of your buttcrack up the small of your back that lies under your skin. The cyst forms when there is a blockage and buildup of stuff in the pilonidal sinus that then gets irritated, swells up, and turns into a Pilonidal Cyst. On the first day it was a little bit of pressure and wasn't concerning. Day 2 was more pressure and extremely slight discomfort. Day 3 was unbearable pain that was so bad that I was going into shock and having flashes of white in my vision. I had issues with Sciatica as well and this cyst felt like it was RIGHT on top of my sciatic nerve so that's probably where a lot of the pain was coming from. I almost crashed my car driving to the urgent care clinic. The doc sliced it open and pushed down so hard on my lower back/upper but that it almost broke the medical table and an ungodly amount of wet concrete looking stuff came followed by yellow pus and finally blood. It was miserable afterward but it was much better after that pressure got released. I had an open wound in my ass for two months that I had to treat, clean, and repack with gauze every three hours like clockwork. Eventually it healed just fine and I haven't had any issues since. Unfortunately sometimes without actual surgery to remove the pilonidal sinus entirely, pilonidal cysts can be a recurring issue. I haven't had any issues with it for three or four years so hopefully it stays that way. Reported failure♥ 1 Pilonoidal sinus. I didn't get it seen to, because I was depressed and had body image issues. So it grew to be the biggest the surgeon had seen. I was in pain walking, sitting, and lying on my back. Only lying on my front had no pain. It was a constant sharp pain that, looking back, I'm surprised never became a massive infection issue. Once it was cut out, the wound took over a year to fill up, and is just a mass of scar tissue now. Part of the healing process involved chemically burning the wound area to try and cauterise the new skin. Never again. Although the absolute relief I felt when I finally realised I could exist without pain almost made me cry. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Not for me, but I \*did\* have a pileonidal cyst that erupted about 4 years prior. Being me is really fun sometimes /s source record 1196♥ 2 Explicit limit or counterpoint This might get a little gross. I had testicular torsion as a kid which was SO much worse than this issue, but this issue is a little more interesting so I'll mention it. Pilonidal Cyst for physical pain at least. Basically a cyst that forms in a sinus that you have from the top of your buttcrack up the small of your back that lies under your skin. The cyst forms when there is a blockage and buildup of stuff in the pilonidal sinus that then gets irritated, swells up, and turns into a Pilonidal Cyst. On the first day it was a little bit of pressure and wasn't concerning. Day 2 was more pressure and extremely slight discomfort. Day 3 was unbearable pain that was so bad that I was going into shock and having flashes of white in my vision. I had issues with Sciatica as well and this cyst felt like it was RIGHT on top of my sciatic nerve so that's probably where a lot of the pain was coming from. I almost crashed my car driving to the urgent care clinic. The doc sliced it open and pushed down so hard on my lower back/upper but that it almost broke the medical table and an ungodly amount of wet concrete looking stuff came followed by yellow pus and finally blood. It was miserable afterward but it was much better after that pressure got released. I had an open wound in my ass for two months that I had to treat, clean, and repack with gauze every three hours like clockwork. Eventually it healed just fine and I haven't had any issues since. Unfortunately sometimes without actual surgery to remove the pilonidal sinus entirely, pilonidal cysts can be a recurring issue. I haven't had any issues with it for three or four years so hopefully it stays that way. source record 1837♥ 1 #### Source-record spotlights Most engaged source Ongoing: endometriosis Shorter term: perianal abscess w/fistula that required 4 surgeries and a year of wound care source record 296♥ 71 Later-arriving source Prolapsed piles of posted about 3 days after the source♥ 1 Zero-like source Haemorrhoids - a pain in the but (literally) Way worse than giving birth (without painkillers or anaesthesia). At least when you give birth the pain (mostly) stop after, but after haemorrhoid surgery the pain was still there for 3 weeks. posted about 0.5 hours after the source #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 53 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 53index entries 53distinct source records 51%of parent category 1.4%of the complete index 41top-level comments 12replies #### What commenters explicitly report 0explicitly reports a benefit 3explicitly reports a limit or failure 1asks a question 0says they intend to try it 49other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments53 preserved records · 53 of 53 source records accounted for **Oh fuck that sounds awful. I had an abscess near my butthole that got removed last month and while that was super uncomfortable, it was only painful if I sat a certain way. Removal and healing was pretty routine. No issues after it was removed. I can’t imagine that in my throat god damn**♥ 6source record 278 **Ongoing: endometriosis Shorter term: perianal abscess w/fistula that required 4 surgeries and a year of wound care**♥ 71source record 296 **I had fistula surgery and I think I'd rather just deal with the fistula.**♥ 7source record 297 **Oof, I had two of those back to back. The nurses packing the wound was the worst thing for me.**♥ 4source record 298 **I just had this. Thankfully 2 surgeries and I’m being discharged from packing wound care on Monday. Mine started as painful sciatica and they thought bulged lumbar- gave me steroids and BOOM- Sepsis**♥ 3source record 1185 **Not for me, but I \*did\* have a pileonidal cyst that erupted about 4 years prior. Being me is really fun sometimes /s**♥ 2source record 1196 **Horrible pain, Percocet could only do so much. My doc went out of town during that time and didn’t get me a refill before he left so I was left with Vicodin, which did almost nothing. I don’t remember a lot from summer.**♥ 2source record 1228 **Stabby pains in the butthole to start. I also had a fissure from bowel issues that was a little painful. Those seem to go hand in hand. Definitely get checked out and don’t let it get bad like it did. So much wound debridement. I couldn’t work for almost 3 months. Luckily I had good short term disability from my job at the time but it was a wake up call.**♥ 2source record 1259 **Anal fissures. Worst pain I’ve ever felt including hip replacements, abdominal surgery, kidney stones, etc**♥ 2source record 1414 **I’ve also had a handful of surgeries and broken bones and they don’t even come close to the fissure I’m currently dealing with. I’m doubled over in pain for hours every day fighting the urge to pass out or vomit each time.**♥ 2source record 1415 **Yup. Had one during during the pandemic and have lived in constant fear since. I am absolutely terrified of having to go through that pain again. At times I was in so much pain I couldn't speak. I too have had other horrific things, and the anal fissure is hands down the worst.**♥ 2source record 1416 **Anal fissure. Feels like shitting knives and the only thing to heal it is time. The anxiety that bubbles up when you need to go to the bathroom...I hope it never happens again.**♥ 2source record 1420 **A thrombosed hemorrhoid. It was fucking awful. Then they lanced it which involved being a shot of lidocaine into it. I about hit the ceiling. In all fairness, they warned me it was going to “really hurt”.**♥ 2source record 1493 **Proctalgia fugax**♥ 1source record 1835 **This might get a little gross. I had testicular torsion as a kid which was SO much worse than this issue, but this issue is a little more interesting so I'll mention it. Pilonidal Cyst for physical pain at least. Basically a cyst that forms in a sinus that you have from the top of your buttcrack up the small of your back that lies under your skin. The cyst forms when there is a blockage and buildup of stuff in the pilonidal sinus that then gets irritated, swells up, and turns into a Pilonidal Cyst. On the first day it was a little bit of pressure and wasn't concerning. Day 2 was more pressure and extremely slight discomfort. Day 3 was unbearable pain that was so bad that I was going into shock and having flashes of white in my vision. I had issues with Sciatica as well and this cyst felt like it was RIGHT on top of my sciatic nerve so that's probably where a lot of the pain was coming from. I almost crashed my car driving to the urgent care clinic. The doc sliced it open and pushed down so hard on my lower back/upper but that it almost broke the medical table and an ungodly amount of wet concrete looking stuff came followed by yellow pus and finally blood. It was miserable afterward but it was much better after that pressure got released. I had an open wound in my ass for two months that I had to treat, clean, and repack with gauze every three hours like clockwork. Eventually it healed just fine and I haven't had any issues since. Unfortunately sometimes without actual surgery to remove the pilonidal sinus entirely, pilonidal cysts can be a recurring issue. I haven't had any issues with it for three or four years so hopefully it stays that way.**♥ 1source record 1837 **Pilonidal cyst. Iykyk**♥ 1source record 1870 **ugh I had that as a teenager. No fun.**♥ 1source record 1871 **Pilonidal cyst**♥ 1source record 1881 **Anal Fissures Somewhat embarrassing to talk about but it shouldn't be. 3 different doctors put me on 3 different diuretics medicine during a hot summer. They didn't talk to each other before hand. Taking a number 2 became so painful I was scared to do it. I had to get drunk first and the pain lasted a whole day after taking one. I made the mistake of using the internet to fix the problem and started using an over the counter laxative that didn't add water to my feces. See that was the problem. Between the medicine and the sweating I had no extra water for the pooping. The worst one was a log that almost split me in half. I missed to days of work after and honestly wanted to end it all. Of all things a podcast (Behind the Bastards) mentioned anal fissures and I went down an internet and reddit rabbit hole that encouraged me to talk to my doctors. They took me off the diuretics. Point is make sure that your doctors talk to each other and know what else you are taking. Don't be afraid to ask questions. And drink lots of water. I aim for a gallon of water daily. I don't always get there but I try. By the way the minor discomfort and pain never goes away. It's no where near as bad but I still pause before going to the bathroom. It's like having a scar that sometimes gets torn open.**♥ 1source record 1986 **I had a pilonidal cyst. Couldn't sleep, walk, stand up or move properly without extreme pain.**♥ 1source record 2132 **Perirectal abscess**♥ 1source record 2180 **Hemerhoids, or however you spell it, passed out from pain**♥ 1source record 2231 **Intersphincteric abcess**♥ 1source record 2355 **Perianal abscess and fistula and the whole surgical process that came with it. Literal hell. Talked to someone who said their 3x natural births were fun in comparison.**♥ 1source record 2440 **Yup. I had a perianal fistula, anal fissure and stage 3 haemorrhoids. 6 months leading up to surgery were hell. Surgery and recovery has been a new hell. Been a year and almost recovered!**♥ 2source record 2441 **Pilonoidal sinus. I didn't get it seen to, because I was depressed and had body image issues. So it grew to be the biggest the surgeon had seen. I was in pain walking, sitting, and lying on my back. Only lying on my front had no pain. It was a constant sharp pain that, looking back, I'm surprised never became a massive infection issue. Once it was cut out, the wound took over a year to fill up, and is just a mass of scar tissue now. Part of the healing process involved chemically burning the wound area to try and cauterise the new skin. Never again. Although the absolute relief I felt when I finally realised I could exist without pain almost made me cry.**♥ 1source record 2512 **Pilonidal disease**♥ 1source record 2604 **Anal fissure. Don’t have anal sex.**♥ 1source record 2664 **Prolapsed piles of**♥ 1source record 2705 **When I had my first anal fissure omg I thought I was dying the pain was so bad luckily I never had one that painful since**♥ 1source record 2787 **Anal fissure lmao**♥ 1source record 2799 **Perianal abscess**♥ 1source record 2887 **It’s a toss up between a pilonidal cyst or a DVT. Both of those hurt way more than childbirth (but I had an epidural for that!)**♥ 1source record 2919 **An anal fistula caused by an infected perianal abscess. 10/10 would not recommend.**♥ 1source record 2960 **I currently have a hemorrhoid so bad I can’t walk or sit or move and I’m going to urgent care in the morning**♥ 1source record 2963 **Not sure if it’s considered an “illness” per se, but hemorrhoids 10000%. I have been through child birth, (unmedicated naturally and a c section) passed a kidney stone, and had appendicitis for reference. The kidney stone happened at 35 weeks pregnant. The worst part for me was the painful urination. My body would involuntarily lift off the toilet while I cried out in pain, but that was the only time I ever felt pain from the stone, because I simultaneously had a hemorrhoid that would quite literally wake me up crying in the middle of the night. Flash forward to about 1 week post c-section, I had another flare up. Let me tell you, I must hold the record for fastest c section recovery of all time, because once that hemorrhoid pain came, nothing else could bother me. I wouldn’t wish it on anyone. I actually worked 3 consecutive days with the kidney stone, but asked the Dr to take me out of work once the hemorrhoid flared up. She didn’t 🫠**♥ 1source record 2971 **Perianal abcess**♥ 1source record 3009 **Anal fissure. Felt like a knife up my butt. Couldn't sit, lie down, or stand up straight. The longest one I endured was 5 hours.**♥ 1source record 3038 **Perianal Abscess, every movement hurts and you can't sit without being in horrific pain. Getting it drain is worse, they give you topical anesthesia or injections that push the abscess against your skin which feels like you are going to pop from the inside out. Some cases let you go under general anesthesia which is a lot better but it's not often.**♥ 1source record 3127 **Peri rectal abscess**♥ 1source record 3149 **As a med student, I had an anal fissure last year. Its like someone burning a cig on your butthole. Ofc there are much more painful illnesses, but that's the worst I've personally experienced.**♥ 1source record 3165 **Pilonidal cyst- couldn’t sit pain free for weeks 🙈**♥ 1source record 3170 **Haemorrhoids - a pain in the but (literally) Way worse than giving birth (without painkillers or anaesthesia). At least when you give birth the pain (mostly) stop after, but after haemorrhoid surgery the pain was still there for 3 weeks.**♥ 0source record 3190 **Pilonidal Cyst**♥ 1source record 3292 **Anal abscess**♥ 1source record 3329 **Shingles Gastroenteritis twice Appendicitis X3 anal fissures - current I think the x3 fissures beats all the others and they just don’t heal, the others I got over eventually, fissures affect you daily forever!!**♥ 1source record 3514 **Pilonidal cyst. Twice. First time, I had to FLY home because I was 17 and in college about a 10 hour drive away. I needed my mother because I literally thought I was dying. When the doctor cut it open, all three of us gagged from the smell.**♥ 1source record 3521 **Pilonidal abscess. Feels like getting stabbed constantly. Indescribably painful. Could barely move and I was sobbing uncontrollably from the pain...and then when it was drained the local anesthetic didn't work. I could feel them cutting into it deep and fishing around to burst open the sac. I nearly passed out. I would do anything never to get this again, and this is from some of who had to get an ovary removed due to an ovarian torsion.**♥ 1source record 3588 **Perirectal abscess 😮‍💨**♥ 1source record 3665 **Perianal abscess :(**♥ 1source record 3799 **Chronic anal fissure**♥ 1source record 3861 **Anal fissures. Contemplated ending things but I couldn’t bring myself to do that to my baby.**♥ 1source record 4073 **Im 2 surgeries in since this started early July, going into my third on Friday. Cannot WAIT to be where you are right now! Hopefully it won't be a year.... I don't know how anyone could do this for a year!! Props to you!**♥ 1source record 4344 Archive: 53 index entries preserve 53 distinct source records · Every displayed synthesis count resolves to source-record IDs Hidradenitis suppurativa13 index entriesA chronic skin condition whose sufferers found each other in the thread. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Hidradenitis suppurativa Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Hidradenitis suppurativa 13 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3086 **Appears when:** Hidradenitis suppurativa **What the pattern means:** Thirteen records, and what is notable is that they found each other: several are replies to one another rather than separate answers. The condition is described as a baseline plus an event — a constant sunburn-like soreness wherever skin meets skin, punctuated by lesions and drainage. Writers name weight and biologic treatment as things they have tried, with contradictory results. **What commenters described:** hidradentis suppertativa - or however the hell its spelled lol. it causes a LOT of different symptoms, but in short my doc described it as "being allergic to your acne and ingrown hairs". my immune system overeacts to any foreign object under my skin and causes giant painful boils and deep tunneling scars once it heals. on a good day i feel like i have mild sunburn in every area of my body that rubs together (armpits, bikini line, behind my knees, etc), and on bad days i can't get out of bed from the pain. that's not even the worst of it though. the worst part is when its an ingrown hair and the hair follicule ruptures. #1 worst pain i ever felt was when my dermatologist lanced one of those ruptured follicles... i blacked out and kicked the poor guy 😭 **Limit:** Thirteen records from a self-identified group, several of them a single line, is a narrow base. The treatments named worked for some of these writers and not others; none of it is guidance, and nothing here identifies the condition. What the replies added2 Oof I feel this, hasn't been as bad since I've lost weight but it's still there nagging me from time to time From the replies♥ 2 also 2k comments nd you nd are the only survivors so far!! ive had our pain since i was 9yrs old nd i believe in you!! From the replies♥ 1 #### Source-record spotlights Most engaged source Oof I feel this, hasn't been as bad since I've lost weight but it's still there nagging me from time to time source record 2317♥ 2 Later-arriving source Hidradenitis suppurativa posted about 32.4 hours after the source♥ 1 Low-like source I’m currently in the process of losing weight and hoping it helps, I also take Humira on a weekly basis but it has done nothing posted about 9.7 hours after the source♥ 1 #### What the counts show This report keeps all 13 source records for Hidradenitis suppurativa together and surfaces traceable examples without converting anecdotes into proof. 13index entries 13distinct source records 12.5%of parent category 0.3%of the complete index 9top-level comments 4replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 13other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments13 preserved records · 13 of 13 source records accounted for **Hidradenitis suppurativa 😟**♥ 1source record 2316 **Oof I feel this, hasn't been as bad since I've lost weight but it's still there nagging me from time to time**♥ 2source record 2317 **Hidradenitis suppurativa (HS) I wouldn't wish it on my worst enemy...**♥ 2source record 2903 **hidradentis suppertativa - or however the hell its spelled lol. it causes a LOT of different symptoms, but in short my doc described it as "being allergic to your acne and ingrown hairs". my immune system overeacts to any foreign object under my skin and causes giant painful boils and deep tunneling scars once it heals. on a good day i feel like i have mild sunburn in every area of my body that rubs together (armpits, bikini line, behind my knees, etc), and on bad days i can't get out of bed from the pain. that's not even the worst of it though. the worst part is when its an ingrown hair and the hair follicule ruptures. #1 worst pain i ever felt was when my dermatologist lanced one of those ruptured follicles... i blacked out and kicked the poor guy 😭**♥ 1source record 3086 **Hidradenitis suppurativa.**♥ 1source record 3183 **Hidradenitis suppurativa**♥ 1source record 3378 **Hidradenitis suppurativa**♥ 1source record 3399 **HS cause this shii chronic asf**♥ 1source record 3760 **hidradenitis suppurativa**♥ 1source record 3990 **Hidradenitis suppurativa**♥ 1source record 4095 **same :(**♥ 1source record 4182 **also 2k comments nd you nd are the only survivors so far!! ive had our pain since i was 9yrs old nd i believe in you!!**♥ 1source record 4183 **I’m currently in the process of losing weight and hoping it helps, I also take Humira on a weekly basis but it has done nothing**♥ 1source record 4358 Archive: 13 index entries preserve 13 distinct source records · Every displayed synthesis count resolves to source-record IDs Skin, hives and the itch38 index entriesHives, psoriasis, burns and the itch several writers rank above any pain they have had. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Skin, hives and the itch Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Skin, hives and the itch 38 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3764 **Appears when:** Skin, hives and the itch **What the pattern means:** The group that argues itch belongs on a pain page, and makes the case through swelling, fever and skin that sloughs off. The urticaria accounts describe a whole body covered, clothing becoming unbearable, and standing outside in the snow for relief; several writers never learned what caused it. Alongside them sit anaphylaxis with no identifiable trigger, Stevens-Johnson syndrome, frostbite and severe sunburn — conditions with nothing in common except that the skin is where they happen. **What commenters described:** toss-up but I would have to say hives. these things were the most painful things I've ever dealt with. it caused my hands, feet and knees to swell. my feet would be so swollen . the bottom i couldn't walk. I had fevers, vomiting, diarrhea like it's the craziest shit. after a year a specialist put me on meds that work like a charm, but of course insurance denied it & I have to go thru more drug trials before they'll review. **Limit:** Several unrelated conditions are grouped by site rather than by cause, and many of these writers say their own was never explained. Nothing here identifies a skin condition or an allergy, and anaphylaxis in particular is an emergency rather than something to research in a thread. What the replies added2 Im a paramedic so I read this and was like..holy shit. What a debilitating fucking illness. How often are you having these episodes? From the replies♥ 6 WELL THAT FUCKING SUCKS. wth?!?! How scary & I'm sorry you have to deal with that. From the replies♥ 6 #### Source-record spotlights Most engaged source I'm seeing a specialist now, who has figured out that these episodes get worse during my period. So she has me on "maintenance meds" the week before and the week of my cycle. With this, I haven't gone into anaphylactic shock since January. But I still get hives often with throat closing, that happens every month. Sometimes twice a month. But it's slowly getting better. Last month I only got hives. The month before that, it was hives and facial swelling. source record 320♥ 4 Later-arriving source Pyroderma gangrenosum. An insanely painful skin condition posted about 3 days after the source♥ 1 Zero-like source Poison ivy that went systemic. posted about 8.1 hours after the source #### Related evidence elsewhere in the index [Depression and mental illnessTurn it into a game · 3 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness)[Endometriosis and adenomyosisTurn it into a game · 3 there](#rich-node-0-group-4-subgroup-0-endometriosis-and-adenomyosis)[Gallbladder attacks and gallstonesTurn it into a game · 6 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones) #### What the counts show Across 38 source records, the most common observable tactic structure is “Turn it into a game” (3 records). This is a wording pattern, not a measured outcome. 38index entries 38distinct source records 36.5%of parent category 1%of the complete index 34top-level comments 4replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 2asks a question 0says they intend to try it 36other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Turn it into a game **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments38 preserved records · 38 of 38 source records accounted for **With idiopathic anaphylaxis there is \*no\* trigger. Your body just...goes into anaphylaxis. I also have idiopathic hives - which often cause my face to swell to the point that my eyes no longer open. It goes sooooo much deeper than just epi-pens. True anaphylaxis is marked as a massive drop in the blood pressure. Last time I went into true anaphylaxis my blood.pressure was 69/37\. For reference, my normal is around 130/80\. I use an epi-pen at home (or out). That buys me 15 mins. We call 911\. If the ambulance doesn't arrive within 15 mins I do another epi-pen. At this point my throat has already begun to close again. At the hospital I get a mixture of drugs - mostly steroids, with a high dose of benedryl as well. They monitor me for about 6 hours (the tail end of another immediate reaction). From there, I am given a whole host of meds to take for the next 10 days. Because my body can randomly decide that it's going to do it again. I take Prednisone - typically 3x a day. Though sometimes they do a higher dose and 2x a day. Then benedryl every 6 hrs. This makes me feel like I wanna die. Pepcid AC (because I get hives in my mouth). And Allegra extra strength 4x a day.**♥ 10source record 318 **I'm seeing a specialist now, who has figured out that these episodes get worse during my period. So she has me on "maintenance meds" the week before and the week of my cycle. With this, I haven't gone into anaphylactic shock since January. But I still get hives often with throat closing, that happens every month. Sometimes twice a month. But it's slowly getting better. Last month I only got hives. The month before that, it was hives and facial swelling.**♥ 4source record 320 **Frostbite, the thawing was the worst pain I ever felt, even with all of the opiates I was on. Ended up losing both feet.**♥ 3source record 478 **Urticaria**♥ 2source record 1379 **Yes! I had dermatographic urticaria for several years. It turns out that I was allergic to an ingredient in a fat soluble supplement I had taken. It went a way after about 7 years, which is approximately how long it takes for all the cells in your body to turn over into new cells. It was awful.**♥ 1source record 1380 **I’m so sorry I cannot even imagine. I have no idea what caused mine to this day. I was about five weeks pregnant and woke up with itchy ankles. Then later that night I was on the couch and couldn’t stop scratching at my stomach. I went to the bathroom and pulled up my shirt and I was absolutely covered in it from my ankles to my chest. By the next day it has made its way all the way up to my head and covered my whole body. They gave me steroids and a taper of very strong antihistamines but it still took over a week to clear. It was genuinely unbearable. It was January so I’d find myself in the middle of the night standing outside in shorts and a tee shirt because the snow and cold was the ONLY thing that brought relief.**♥ 2source record 1381 **stevens-johnson syndrome. ICU for a month.**♥ 2source record 1470 **Inverse psoriasis. Literally, absolutely, no lie felt like my left armpit was ON FIRE for almost a month. Skin grew in, turned grey, then sloughed off over and over again, which felt about as great as it sounds like. Do not recommend. And this is coming from somebody who went through perimenopause early, which brought on (among MANY other things) severe joint pain, migraines, and vaginal atrophy. That last one feels like paper cuts all over a VERY sensitive area of one's anatomy. Bodies are a cruel joke.**♥ 1source record 1631 **Went through topical steroid withdrawal, would not recommend! lol**♥ 1source record 1744 **Anaphylaxis.**♥ 1source record 1969 **Had a mysterious reaction (I honestly don’t know what it was) one time where it started off as just being itchy. I was in my late teens and wearing a long sleeve shirt in church and couldn’t stop scratching. We get home and I notice red bumps (like mosquito bite sized welts) all down my arms and on my chest etc. It was horrifically itchy, and soon the bumps were blotchy patches of raised, red skin. Then it spread. Down my back, all over my legs, up my neck… everywhere but my face and genitals (thank God). It became super painful, to the point where even wearing clothes was excruciating. I remember laying on the tile floor in the kitchen in nothing but my boxers, absolutely miserable. Doctors had no clue what it was or what caused it. They gave me a steroid shot (and maybe an allergy shot?) and sent me home. It took about a week to clear.**♥ 1source record 2010 **So, the beginning of 2025 i was working in my woodshop with my wife, as we do. We had just picked up a load of lovely exotic woods and were working with some rosewood, purpleheart and padauk (not together mind, because that would be... an interesting piece). First time working with each species. Turna out we're both horribly allergic all three. Me somehwat more than my wife. That said, my fave swelled up, and my arms and much of my body turned purple and blistered and itched. I had to go to hospital for IV steroids, and a dull courae of steroid creme for home. It had me out of commission for nigh on 6 weeks, and was hands down the worst experience of my life. On a related note, anyone want some purpleheart or padauk?? I've got a couple board-feet I could part with??**♥ 1source record 2069 **Hells itch from a sunburn**♥ 1source record 2421 **The "Devil's itch" sunburn.**♥ 1source record 2535 **Ingrown toenails**♥ 1source record 2561 **Thrush**♥ 1source record 2641 **Ingrown toenail...**♥ 1source record 2869 **RIME. Autoimmune disease. Basically, my eyes, mouth, and genitals ate themselves alive to the point that I couldn’t eat, see, or drink water (because of the mouth pain and fear of using the bathroom). Took 3 ER visits and a dozen different doctors to figure it out.**♥ 1source record 2883 **General existence... "life"... But actually, an ingrown toenail because the >!doctor put two freezing needles under my toenail.!<**♥ 1source record 2931 **Autoimmune urticaria**♥ 1source record 3217 **Physical pain, Steven’s Johnson Syndrome.**♥ 1source record 3222 **Heat stroke**♥ 1source record 3318 **Dealing with a keloid on my neck for 3 years.**♥ 1source record 3333 **Hereditary Angioedema**♥ 1source record 3342 **Pineapple allergy. I knew I was allergic but could have it in small quantities, I’d just have to deal with a little bit of hives on my face. Well one day I had the juiciest, sweetest pineapple, I ended up eating nearly the whole thing. Cue me in the er later feeling like someone was slowing cutting into my intestines with a serrated butter knife. Internal pain is something else you can’t hold it or put something on it to make it stop. It just has to pass. Will never do something that stupid again.**♥ 1source record 3413 **Had=still have MCAS. Allergic to one thing one day, having an organ removed a few weeks later. Pain is never found, only moved around the body as different things. So many different medications with different side effects, painful /debilitating allergies one day to anaphylaxis hospital emergencies the next day.**♥ 1source record 3545 **I have had kidney stones, gall bladder attack, tooth abscess, but the worst was an allergic reaction that caused chest pain. OMG, I thought I was having a major heart attack.**♥ 1source record 3553 **Scabies. The psychological aspect of it was terrible as it takes forever for your body to relax that they are truly gone.**♥ 1source record 3556 **Ingrown & infected toenail. I was walking with my foot turned so the sole was facing my other foot for months to avoid putting pressure on it. Stubbing that toe was absolute agony**♥ 1source record 3579 **Burns all over**♥ 1source record 3635 **Pyroderma gangrenosum. An insanely painful skin condition**♥ 1source record 3672 **I’ve had cluster headaches, shingles, and three vaginal childbirths, but nothing was worse than the Devil’s Itch aka Suicide Itch I developed from a bad sunburn. I believe there’s a subreddit dedicated to the condition where people actively experiencing it desperately seek help to get through it.**♥ 1source record 3763 **toss-up but I would have to say hives. these things were the most painful things I've ever dealt with. it caused my hands, feet and knees to swell. my feet would be so swollen . the bottom i couldn't walk. I had fevers, vomiting, diarrhea like it's the craziest shit. after a year a specialist put me on meds that work like a charm, but of course insurance denied it & I have to go thru more drug trials before they'll review.**♥ 1source record 3764 **Not an illness but burns to my arm and foot.. like between my toes. 2nd degree hurt less than the 1st degree.. until the nerves grew back. Horrible horrible passion for weeks**♥ 1source record 3912 **Cholinergic urticaria kinda fucking sucks**♥ 1source record 4113 **External, 2nd degree sunburn on my shoulders when i was \~11 Internal, functional abdominal pain syndrome. Went through a crazy flare 14-17 yo and lwk still surprised i even made it out of that ETA: i forgot the og post said "illness" but im still leaving that sunburn on there bc holy shit it hurt 💀**♥ 1source record 4135 **Erythema Nodosum 😅**♥ 1source record 4152 **Poison ivy that went systemic.**♥ 0source record 4420 Archive: 38 index entries preserve 38 distinct source records · Every displayed synthesis count resolves to source-record IDs Surgery, procedures and recovery66 records · 2 sub-topicsAnswers where the operation or the procedure, rather than the illness, is the thing being described. 66 records. Surgery, and what came after49 index entriesOperations and recoveries, including the drains, the gas and the ones that went wrong. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Surgery, and what came after Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Surgery, and what came after 49 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 64 **Appears when:** Surgery, and what came after **What the pattern means:** The most matter-of-fact group in the corpus, and the one that most often reports pain being lower than expected — a run of writers say recovery was easier than the illness that led to it. The pain that does surprise them is incidental: the gas pumped in during laparoscopy travelling to the shoulders, drains being pulled out without anaesthesia, a nerve block wearing off at home. The other half of the group is complications — a clipped bile duct, a stent set crooked, a wound infection. **What commenters described:** I wouldn’t say it’s a breeze, it’s still major surgery. However, compared to the pain of a gallbladder attack it is MUCH more preferable! I think I was most unprepared for the pain from the gas they pump you with during the surgery, it traveled into my upper shoulders and freaked me out until my surgeon clarified what was happening. It’s been 2 years since I had mine out and life is great without a gallbladder. Good luck with your surgery! **Limit:** These records describe individual operations, techniques and eras, including several from decades ago. Nothing here predicts what any operation will feel like, and the recovery advice commenters exchange in this group is theirs, not this page's. What the replies added1 3\. Broken (kneecap) patella the second time; 2\. Broken patella the first time; and 1\. Recovery from open heart surgery for 3 way bypass. Breathing hurt, coughing was terribly painful, the healing with wires holding my sawed breastbone together was indescribable. I don’t suggest it. But if you need it, it’s worth it. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Not an illness, but I had a multi level fusion and they took bone for grafts from the crowns of my hips. It was anterior/ posterior surgery, so I was fileted like a trout front and back, and the only pain I remember was from my hips. I was in tears and begging for them to give me stronger medication. It turned out that I'm one of the 10% that morphine has no effect. Luckily they changed it to dilaudid. source record 4094♥ 1 #### Source-record spotlights Most engaged source It wasn’t great for sure but I also appreciated that the surgery happened so fast and the whole team worked so hard to make sure I could keep breastfeeding my daughter. At one point a different nurse let me sleep through meds and when my pain was uncontrollable later the surgeon came in to check on me several times. source record 50♥ 18 Later-arriving source Recovery from a lobectomy (removed sections of my lower left lung) due to lung cancer. I honestly wanted to die to just get the pain to stop. I was so dramatic thinking I was going to be like that forever and that was my life from that point on so there's no point in living. 3 months later I was much better and I'm so glad that I didn't do anything rash. posted about 2 days after the source♥ 1 Low-like source Post embolization syndrome paired with endometritis following uterine artery embolization for a fibroid. Had no idea it could happen, fever, chills, shits, pain worse than labour (had a home birth, unmedicated). posted about 3.3 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisTurn it into a game · 2 there](#rich-node-0-group-1-subgroup-0-appendicitis)[CancerTurn it into a game · 2 there](#rich-node-0-group-8-subgroup-0-cancer)[Depression and mental illnessTurn it into a game · 3 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness) #### What the counts show Across 49 source records, the most common observable tactic structure is “Turn it into a game” (2 records). This is a wording pattern, not a measured outcome. 49index entries 49distinct source records 74.2%of parent category 1.3%of the complete index 30top-level comments 19replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 5asks a question 0says they intend to try it 43other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments49 preserved records · 49 of 49 source records accounted for **Same! I think my surgeon was weirded out by how chipper I was when she asked about how my recovery was.**♥ 18source record 38 **And the day after surgery I felt SO MUCH better.**♥ 6source record 40 **It wasn’t great for sure but I also appreciated that the surgery happened so fast and the whole team worked so hard to make sure I could keep breastfeeding my daughter. At one point a different nurse let me sleep through meds and when my pain was uncontrollable later the surgeon came in to check on me several times.**♥ 18source record 50 **I wouldn’t say it’s a breeze, it’s still major surgery. However, compared to the pain of a gallbladder attack it is MUCH more preferable! I think I was most unprepared for the pain from the gas they pump you with during the surgery, it traveled into my upper shoulders and freaked me out until my surgeon clarified what was happening. It’s been 2 years since I had mine out and life is great without a gallbladder. Good luck with your surgery!**♥ 11source record 64 **Ooh, boy, post recovery tucked for me. I went back to the ER a week later because I was still in an insane amount of pain. Was v even Toradol and told to rotate it. Three weeks out today, and I have no regrets despite the stupid pain.**♥ 3source record 496 **I had to have a drainage tube left in for a couple weeks after surgery due to excess blood/fluid. The recovery was most just \_uncomfortable\_ because of that. I think without that I'd have probably been just fine after a few days.**♥ 3source record 594 **They evicted mine two years ago - yep, it is a breeze! I was sore for a day or two, but I was able to stand up (and the nurse forced me out of bed haha) in two hours. However, make sure to keep a low-fat diet for a while, I was a tad bit hasty returning to my normal diet \~two months later and either had a small stone stuck somewhere or dunno what happened but got one last attack, which sucked a lot. But everything is perfectly fine ever since!**♥ 3source record 595 **I remember being in extreme pain after mine was removed, too. The people I asked prior said it's not a bad recovery. I was so mad after when I was crying in pain. But, after like 3 days of constant crying I started to feel better.**♥ 2source record 619 **Mine was easy! I had mine done from laparoscopy, but was up and walking straight after (had a 4 hour car ride to stay with my mum for a few days). In the UK you go home the same day. The worst pain was that night when the gas had nowhere to go (like someone else said). You have to wait for it to just dissipate, it went up into my shoulders etc and felt like bad trapped gas. Heat helped but mainly a waiting game, although that was only painful for probably the first 2 nights and after that I was absolutely fine! I think I even went shopping and saw a friend on day 4? I will say, I vomited after drinking alcohol intermittently for the first few months as it probably takes 6-9 months to 100% adjust, but it was plain sailing after that :) Luckily I didn’t suffer too badly as I’m the 4th generation in a row to have them so my mum recognised my symptoms starting at 21\. Good luck!**♥ 2source record 623 **Compared to the attacks (or the fear of an attack) it really is a breeze. If you’re getting laparoscopic it’s not bad at all.**♥ 2source record 626 **I had it a few months ago and having it out was waaaay better than risking another attack. And the recovery was not bad at all. My hernia surgery a few weeks ago was way worse. But still ok.**♥ 2source record 627 **For me the acute pain after the surgery in the recovery room was the worst. Like i had been holding a crunch for 10 hours. They gave me all the pain meds they could and would have kept me overnight if there was a bed. A muscle relaxer was what finally calmed the pain down. The attack pain felt like the burn from indigestion concentrated right below my right ribs. Woke up to get ready for work and knew something was wrong. Kidney stones tie with gall bladder. It is a radiating, waving feeling of aching pain that is so intense. The sense of urgency to end the pain is like no other.**♥ 1source record 665 **Had mine out in 2017...all good. Now almost 10 yrs later. Bile acid malabsorbtion. BAM. Happens after sometimes. Think gallbladder attack with explosive poo 15 min after every meal. WTH.**♥ 1source record 719 **Facts. And they botched my removal (clipped the bile duct), that required reconstructive surgery. I now experience them 2 - 3 times a week, even on the most bland diet. Hellish.**♥ 1source record 735 **I just had a robotic partial nephrectomy to remove a tumor, and it was not too bad. The first few days you will be on some good drugs, then it's mostly just sore for a week or two. They found it when CT scanning an abscess. Having that removed hurt 1000x worse. The kidney stones will likely be the worst part! Good luck!**♥ 2source record 1295 **Peritonitis due to a moronic doctor who pierced my gallbladder during a liver biopsy. It basically means acid spreading inside your abdomen. Fun!**♥ 2source record 1673 **Healing from a c section and years later , a hysterectomy without pain meds bc I’m allergic to all of them 😭**♥ 1source record 1745 **Post embolization syndrome paired with endometritis following uterine artery embolization for a fibroid. Had no idea it could happen, fever, chills, shits, pain worse than labour (had a home birth, unmedicated).**♥ 1source record 1827 **I had an infected liver that put me in the hospital for 3 weeks, and home care for another 2 months. the infection itself was not painful. I just felt like death warmed over. super high fever, and by the time I was admitted to the hospital, i was starting to have seizures/convulsions. the treatment was very painful. the worst was having five abdominal suction drains inserted and having to maintain them for two months. and the gallbladder drain.**♥ 1source record 1840 **Well, I’ve had cancer, been shot, had joints replaced with titanium, but the worst pain was a full midline incision to my abdomen due to sepsis and needing an emergency surgery two years ago.**♥ 1source record 1930 **2 total knee replacements within 8 months**♥ 2source record 1947 **Recuperating from open-heart surgery. Then the wires that held my rib cage and sternum back together rubbed through the bones and opened my chest up, so my lungs and heart we’re sloshing around and having a dance party in my chest! On a scale of 1-10, easily 47! I would literally pass out from the pain.**♥ 1source record 2037 **When I ate peanut butter mixed into oatmeal days after a nissen fundoplication. It’s a surgery to wrap your stomach all the way around the bottom of your esophagus, so the entry to your stomach is tight and inflamed and I should NOT have been allowed peanut butter but I was starving and some CNA dug some up for me… it got stuck in the inflamed part. Dilaudid, on top of 20mg oxys, was useless, they gave me 2 doses for breakthrough pain, and I just had to wait for it to pass into my stomach. I didn’t know something could hurt that bad. I stuck to the post surgical diet strictly after that. I was so scared to start eating bread again.**♥ 1source record 2129 **Bile leak**♥ 1source record 2234 **Kidney stones were way worse than gallbladder for me. However my pacemaker implantation far, FAR, exceeded both of those and the ten pound baby.**♥ 1source record 2304 **I was in a car accident and had to have several skin grafts. The pain in the sites where skin was removed was probably the worst I’ve ever felt. Kidney stones were a close second.**♥ 1source record 2325 **Severely leaking Mitral Valve that led to open heart surgery, right after hemorrhaging and needing blood transfusions after the birth of my second kid. Also extremely painful was my OB trying to manually clear hemorrhaging after my first. It sounds as horrible as it was. I screamed so loud the whole time the whole floor heard me and I almost passed out.**♥ 1source record 2422 **Not necessarily an illness, but a procedure. For some context: When you have a bigger chest before having a double mastectomy, you will likely wake up from that surgery with drains. That's right. A bunch of tubing that sits under your skin near your incisions to catch any leaking fluid. Cleaning them out is a hassle. You have to pinch where the tube is INSIDE YOU, and then basically apply pressure to squeeze out all the fluid in the tubing into a plastic collection sack at the end of the tubing outside your body. But that's not the bad part. The bad part is when those drains come out after a week or two. You know what skin does around an open wound? IT FUCKING GROWS BACK. AND THAT MAKES IT DIFFICULT TO PULL THE TUBING OUT. WITH NO ANESTHESIA. WITH NO PAINKILLERS. WITH NO NUMBING SHOTS. IT HURT LIKE A BITCH. FOR BOTH SIDES.**♥ 1source record 2510 **Quadruple bypass**♥ 1source record 2563 **Those injections they put in your toes before a toenail removal surgery**♥ 1source record 2605 **3\. Broken (kneecap) patella the second time; 2\. Broken patella the first time; and 1\. Recovery from open heart surgery for 3 way bypass. Breathing hurt, coughing was terribly painful, the healing with wires holding my sawed breastbone together was indescribable. I don’t suggest it. But if you need it, it’s worth it.**♥ 1source record 2673 **Donating a healthy kidney**♥ 1source record 2877 **I don't know it counts as an illness, but when I had a hip surgery; it was just awful, Constipation for 14 days, back pain from the days in bed, wound pain after anesthesia, I was only 9.**♥ 1source record 3040 **Recovery from a lobectomy (removed sections of my lower left lung) due to lung cancer. I honestly wanted to die to just get the pain to stop. I was so dramatic thinking I was going to be like that forever and that was my life from that point on so there's no point in living. 3 months later I was much better and I'm so glad that I didn't do anything rash.**♥ 1source record 3094 **Getting a precancerous mole removed from the palm of my hand at 8yrs old. After the lidocaine wore off it was excruciating**♥ 1source record 3176 **Post-op for malignant brain tumor. It wasn’t the surgical area itself but rather hideous and debilitating muscle spasms in my neck, attributed to the position I was in for the almost eight hour surgery. I spent almost three months on 80mg OxyContin…I don’t remember much of what happened during that time period. I still occasionally get those muscle spasms many years later to a much lesser degree. Way too many kidney stones to count but the ones that stick out were the two I had at the end of each of my two pregnancies. With the first pregnancy, the stone was stuck in my urethra and my son had dropped…when he moved, it felt like he was hitting the stone. Extremely unpleasant…stupid doctor at the time didn’t give a crap. Military medicine at its finest. They were much more concerned the second time it happened though!**♥ 1source record 3184 **Reconstruction surgery from cancer, close 2nd is kidney stones, 3rd natural childbirth.**♥ 1source record 3313 **Trying to recover from a full ACL reconstruction of my knee and a Ton selectomy**♥ 1source record 3434 **Recovering from a full ACL reconstruction of my knee and a tonsillectomy as an adult.. Both were utter hell....**♥ 1source record 3435 **Illness? Cannot recall, but recovering from surgery after repair for a full rotator cuff tear was absolutely excruciating.**♥ 1source record 3478 **Infection after a c section and hysterectomy were brutal**♥ 1source record 3570 **They nicked my bile when removing mine 2 more surgeries, they told me, no you know what child birth feels like. It is not fun, but I learned how to get discharged; tell the resident her nurses suck, I was home the next day! 😇. Well they did.**♥ 1source record 3848 **Not illness but septoplasty**♥ 1source record 3858 **Not an illness, but I had a multi level fusion and they took bone for grafts from the crowns of my hips. It was anterior/ posterior surgery, so I was fileted like a trout front and back, and the only pain I remember was from my hips. I was in tears and begging for them to give me stronger medication. It turned out that I'm one of the 10% that morphine has no effect. Luckily they changed it to dilaudid.**♥ 1source record 4094 **bunion surgery had a toe joint fused and that was six months of pain 24/7 until the surgeon removed the plate and screws used to stabilize the fused bones.**♥ 1source record 4110 **Mine was laparoscopic. Honestly healing was breeze after the first week. I probably could’ve went back to work by 2-2.5 weeks. But I spent the first 2 days in bed then I started walking around as much as I could tolerate every day and going back to rest when I started to get sore. I stayed ontop of the pain at first too and didn’t try to “push through “ like I did with my c-section.**♥ 2source record 4269 **I was 35, I have 3 kids and already had my tubes tied after my 3rd because i was very very much done lol I haven’t had any side effects persay besides a cyst that formed on my scar and now I have a permanent little hole but it’s super tiny.**♥ 2source record 4282 **First, I'm so sorry you've been going through this for so long, and for the absolute insanity of a hypothetical future husband having anything whatsoever to do with you getting the help you need. Ugh. My recovery wasn't really bad at all, honestly. I was able to have the robotic assisted laparoscopic surgery, so I can't speak on recovery from an abdominal one (although I did have a c-section close to 24 years ago, and I feel like recovery from that was rougher than for my hysterectomy). I think I took one hardcore pain pill that had been prescribed, the evening of my surgery, and I really only took it to get ahead of any pain, not because I was in a lot of pain. The nurses were actually shocked at how I was up and moving around so well after surgery, and I freaked my son out (he drove me to and from) with how quickly I got out of the car when we got home. I do have stairs in my home and I was a little nervous about those, but really just taking them SUPER slow at first was fine. Oh and having one of those grabber things makes life a whole lot easier for little while! The one thing I did have that was a little annoying was granulation tissue on my vaginal cuff that took two rounds of silver nitrate to clear up, and that really was more annoying than anything. All the best wishes for you!**♥ 2source record 4315 **I wouldn’t say I really remember feeling anything moving around but I do remember a distinct hollow feeling at first? Could very well be psychological tho.**♥ 2source record 4381 Archive: 49 index entries preserve 49 distinct source records · Every displayed synthesis count resolves to source-record IDs Spinal taps, epidurals and spinal-fluid leaks17 index entriesThe procedure, and the headache that follows when it leaks. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Spinal taps, epidurals and spinal-fluid leaks Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Spinal taps, epidurals and spinal-fluid leaks 17 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3888 **Appears when:** Spinal taps, epidurals and spinal-fluid leaks **What the pattern means:** A group about a procedure and its sequel. The distinctive feature is positional: writers describe a headache that is unbearable upright and vanishes the moment they lie flat, which several found more disturbing than the pain. Durations run from days to, in two accounts, years spent horizontal. The treatment described — an autologous blood patch — is itself named by several writers as the most painful part. **What commenters described:** Spinal fluid leak headache after a spinal tap, then the subsequent blood patch. So in a 72 hour period, having a needle injected into my spine, 10/10 headache every time I stood up (That went away the moment I laid down. Trippy experience.), then having more needles injected into my spine to push my own blood over the hole to seal it. 0/10 would not recommend. **Limit:** Seventeen records covering deliberate procedures, complications and spontaneous leaks together. These are individual outcomes, not the usual one, and nothing here should discourage anybody from a procedure a clinician has recommended. What the replies added2 Probably the spinal fluid leak. Had a severe headache every day for like 5 months, then got a blood patch which was probably the most painful experience of my life. Wouldn’t wish it on my worst enemy. I’m past it now but I’ve had nightmares about it coming back, and having to redo the blood patch. Every time I get a headache in the back of my head I get freaked out bc I’m scared it’s leaking again. I’ve broken bones, sprained just about everything, dislocated things, and nothing left me as desperate for relief as the leak. Reported failure♥ 1 Post-dural Puncture Headache I had a cerebrospinal fluid leak from a misplaced epidural. For 10 days. Couldn't be upright or even sitting without excrutiating pain. Tylenol and advil didnt work. Wikipedia says it feels like searing hot metal. Unfortunately, pretty accurate... the pain was at the base of my skull and between my eyes. I always say it felt like my head was in a panini press. Add photophobia, severe nausea, a crying newborn, and establishing breastfeeding... and a trip to the hospital to get a second epidural where they inject blood into it to try to clot the hole... that failing... I was not ok. Luckily I have an incredible husband who was basically taking care of me and our newborn infant the whole time. Reported failure♥ 1 #### Where commenters report limits Explicit limit or counterpoint Post-dural Puncture Headache I had a cerebrospinal fluid leak from a misplaced epidural. For 10 days. Couldn't be upright or even sitting without excrutiating pain. Tylenol and advil didnt work. Wikipedia says it feels like searing hot metal. Unfortunately, pretty accurate... the pain was at the base of my skull and between my eyes. I always say it felt like my head was in a panini press. Add photophobia, severe nausea, a crying newborn, and establishing breastfeeding... and a trip to the hospital to get a second epidural where they inject blood into it to try to clot the hole... that failing... I was not ok. Luckily I have an incredible husband who was basically taking care of me and our newborn infant the whole time. source record 3016♥ 1 #### Source-record spotlights Most engaged source Not technically an illness, but the aftermath of a lumbar puncture/spinal tap. The doctors doing it were quite dismissive of me, so made me get up and walk back to my bed immediately after. After a few hours, worst headache I ever had in my life. Threw up overnight and was left covered in sick for a while. Nurses wouldn't give me pain relief because they thought I was faking the reason for being there in the first place. (Being a woman is great). Got my mum to take me home the next day. Could not sit up for two weeks without excruciating pain in my head, but was terrified to go back to the hospital and be dismissed again. It eventually resolved on its own, but every time I get a headache now I get a little tinge of fear. source record 2101♥ 1 Later-arriving source Blood patch a year ago. I was very very careful not to mess it up when I finally got treatment after years. posted about 5 days after the source♥ 1 Low-like source Poorly done spinal tap resulting in a CSF leak. Also adenomyosis. Also lupus/fibromyalgia. posted about 9.4 hours after the source♥ 1 #### Related evidence elsewhere in the index [Flu, COVID and high feversUse a sensory reset · 5 there](#rich-node-0-group-6-subgroup-2-flu-covid-and-high-fevers)[Gallbladder attacks and gallstonesUse a sensory reset · 7 there](#rich-node-0-group-0-subgroup-1-gallbladder-attacks-and-gallstones)[Lungs, pleura and clotsUse a sensory reset · 15 there](#rich-node-0-group-7-subgroup-0-lungs-pleura-and-clots) #### What the counts show Across 17 source records, the most common observable tactic structure is “Use a sensory reset” (4 records). This is a wording pattern, not a measured outcome. 17index entries 17distinct source records 25.8%of parent category 0.5%of the complete index 14top-level comments 3replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 16other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Use a sensory reset **4**Attach it to an existing routine **3** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments17 preserved records · 17 of 17 source records accounted for **They can never get it in when they tap me like it took over an hour last time so I feel this**♥ 1source record 1264 **Spinal headache for a week and a half straight**♥ 1source record 1820 **Adhesive Arachnoidits (epidural harm)**♥ 1source record 1975 **Unless a spinal headache counts. Then that.**♥ 1source record 2042 **Cerebral Spinal Fluid leak. Left me bedridden for a decade and the pain in my brain was worse than giving birth, which I have also done..without epidural, because it wore off before my son even had his shoulders through and they kept telling me "it's almost over, no need for another epidural"! But then it was another three hours of pushing. I did also have a migraine at the time, so that may be where most of the pain was sitting anyway. But yes, migraines and CSF leaks I find are way more painful than pushing a watermelon-sized human with a basketball for a head out of my body.**♥ 1source record 2086 **Not technically an illness, but the aftermath of a lumbar puncture/spinal tap. The doctors doing it were quite dismissive of me, so made me get up and walk back to my bed immediately after. After a few hours, worst headache I ever had in my life. Threw up overnight and was left covered in sick for a while. Nurses wouldn't give me pain relief because they thought I was faking the reason for being there in the first place. (Being a woman is great). Got my mum to take me home the next day. Could not sit up for two weeks without excruciating pain in my head, but was terrified to go back to the hospital and be dismissed again. It eventually resolved on its own, but every time I get a headache now I get a little tinge of fear.**♥ 1source record 2101 **Spinal CSF leak headaches - put me in hospital for a week**♥ 1source record 2205 **Probably the spinal fluid leak. Had a severe headache every day for like 5 months, then got a blood patch which was probably the most painful experience of my life. Wouldn’t wish it on my worst enemy. I’m past it now but I’ve had nightmares about it coming back, and having to redo the blood patch. Every time I get a headache in the back of my head I get freaked out bc I’m scared it’s leaking again. I’ve broken bones, sprained just about everything, dislocated things, and nothing left me as desperate for relief as the leak.**♥ 1source record 2888 **Post-dural Puncture Headache I had a cerebrospinal fluid leak from a misplaced epidural. For 10 days. Couldn't be upright or even sitting without excrutiating pain. Tylenol and advil didnt work. Wikipedia says it feels like searing hot metal. Unfortunately, pretty accurate... the pain was at the base of my skull and between my eyes. I always say it felt like my head was in a panini press. Add photophobia, severe nausea, a crying newborn, and establishing breastfeeding... and a trip to the hospital to get a second epidural where they inject blood into it to try to clot the hole... that failing... I was not ok. Luckily I have an incredible husband who was basically taking care of me and our newborn infant the whole time.**♥ 1source record 3016 **Spinal fluid leak**♥ 1source record 3453 **Viral meningitis- but after the spinal. I couldn’t sit or stand for 2 weeks.**♥ 1source record 3562 **Spinal fluid leak headache after a spinal tap, then the subsequent blood patch. So in a 72 hour period, having a needle injected into my spine, 10/10 headache every time I stood up (That went away the moment I laid down. Trippy experience.), then having more needles injected into my spine to push my own blood over the hole to seal it. 0/10 would not recommend.**♥ 1source record 3888 **A spinal fluid leak**♥ 1source record 3906 **Poorly done spinal tap resulting in a CSF leak. Also adenomyosis. Also lupus/fibromyalgia.**♥ 1source record 3914 **Csf leak. Stuck in bed for years and felt like I was dying. I finally got sealed and I'd rather birth 100 babies with no pain meds and raise them too than go through that again.**♥ 1source record 4046 **Blood patch a year ago. I was very very careful not to mess it up when I finally got treatment after years.**♥ 1source record 4048 **A dura tear complication following a spinal cord unteathering. I was leaking cerbreal spinal fluid that caused my root nerves to be pulled out from between my vertebrae spending shooting pain throughout my entire body. All I could do was scream. I had no awareness of what was going on around me. I couldn't think. Not I couldn't think straight, I mean I couldn't think at all. The only thing I remember was waiting to die. I couldn't remember I was in the hospital or that I was waking up from surgery. I was 12.**♥ 1source record 4141 Archive: 17 index entries preserve 17 distinct source records · Every displayed synthesis count resolves to source-record IDs The body's chemistry, its scaffolding, and the long tail64 records · 3 sub-topicsMetabolic and connective-tissue answers, plus the conditions only one or two people in the whole thread named. 64 records. Diabetes, hormones and organ failure25 index entriesMetabolic answers — sugar, thyroid, electrolytes, and organs that stopped. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Diabetes, hormones and organ failure Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Diabetes, hormones and organ failure 25 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 2850 **Appears when:** Diabetes, hormones and organ failure **What the pattern means:** The answers where the body's chemistry, rather than a site, is the subject. Electrolytes recur — potassium in particular, described by several writers as producing pain and paralysis they had no framework for. The diabetes accounts are mostly about mismanagement rather than the diagnosis, and several writers describe intravenous replacement as worse than the deficiency. The organ-failure records are the longest here, and describe cascades rather than events. **What commenters described:** I suppose not the disease itself, but everything that comes along with it's mismanagement - Type 1 Diabetes. It's a difficult disease to begin with, moreso if you already struggle with mental health. I could barely look after myself for simple everyday tasks, so managing it was incredibly difficult for me at one point. The muscle pain, the feeling of a thousand hot knives stabbing my legs, the weakness, chest pain, headaches, dehydration, the toothaches from the excess sugars rotting my teeth, and then there's the hospital treatment. Low potassium is no joke, and I will tell anyone who will listen that IV potassium could genuinely be used as a form of torture. **Limit:** These are rare and serious presentations described by the people who survived them; nothing here is typical of any of the conditions named. Nothing in this group identifies a metabolic problem or indicates a treatment. What the replies added2 Same happened to my mom... Nobody took her seriously, even when her eyes started twitching... From the replies♥ 2 If you have clinically significant and symptomatic low potassium, no amount of bananas will save you. You have to eat hundreds of bananas to get you back. That's a body equilibrium problem. Also, fun fact: per average serving, watermelon and potatoes both contain more potassium than bananas From the replies♥ 1 #### Where commenters report limits Explicit limit or counterpoint Diabetic ketoacidosis. At first it wasn’t that bad, then as it got worse my body flooded with endorphins which was great…then the endorphins wore off source record 2394♥ 1 #### Source-record spotlights Most engaged source Undiagnosed diabetes. Drank 8 liters of water a day and urinated 10 liters a day; went to the bathroom every 45 minutes. Knew I had it once symptoms started, but took 2-3 weeks for doctor appointment to go through. source record 375♥ 6 Later-arriving source Hypophosphatemia from iron infusion. I was gaslit by doctors and told it was anxiety, but infact I almost died from undetectable phosphate. I was on supps for 9 months. posted about 21.4 hours after the source♥ 1 Low-like source Diabetic (type 1) Ketoacidosis. Shingles is a close second. Frozen shoulder is up there too. posted about 4.2 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisTurn it into a game · 2 there](#rich-node-0-group-1-subgroup-0-appendicitis)[CancerTurn it into a game · 2 there](#rich-node-0-group-8-subgroup-0-cancer)[Depression and mental illnessTurn it into a game · 3 there](#rich-node-0-group-12-subgroup-0-depression-and-mental-illness) #### What the counts show Across 25 source records, the most common observable tactic structure is “Turn it into a game” (2 records). This is a wording pattern, not a measured outcome. 25index entries 25distinct source records 39.1%of parent category 0.7%of the complete index 25top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 1explicitly reports a limit or failure 0asks a question 0says they intend to try it 24other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments25 preserved records · 25 of 25 source records accounted for **Undiagnosed diabetes. Drank 8 liters of water a day and urinated 10 liters a day; went to the bathroom every 45 minutes. Knew I had it once symptoms started, but took 2-3 weeks for doctor appointment to go through.**♥ 6source record 375 **I had a potassium deficiency, I couldn’t hold down water or any kind of food. The hospital was really uncaring and left me suffering for about five hours on the table barely coming in to check on me. At the five hour mark they gave me opiate and I passed out. I remember not being able to hold down water, my arms and legs were really shaky and tingling where I couldn’t walk and could barely move, and my stomach felt like I had a huge dull drill just pressing it super slowly. It was awful, weird thing was I ate a banana hours before.**♥ 4source record 402 **Hypophosphatemia. A very rare metabolic disorder where your bones incur insufficiency fractures due to an abnormally high level of fibroblast factor 23 which results in a tumor that is generally not found when you have a PET CT Dotatate scan. Essentially your bones aren't absorbing phosphorus, phosphate, calcium, vitamin D and other minerals. This results in tremendous stiffness in knees, ankles, feet. It affected my entire ribcage as well. Any sudden movements such as a cough or sneeze were especially painful. Went untreated from 2018 to 2022\. Saw plenty of orthopedic doctors who were treating the symptons and not the cause. There were times I was unable to bend my left leg. Sitting down was next to impossible. Had to retire from a furniture sales job in 2018 at age 61\. The tumor was finally found in my C2 vertebrae in Feb 2022 and I had 3 rounds of radiation since surgery wasnt an option. My FGF23 levels went down to a normal range. I was then put on injections of Crysvita which is an extremely expensive medication that costs upwards of $58,000 per injection. Luckily my United Healthcare Medicare insurance covered approx 95% of it. The balance usually $3,000 or so i had to pay but I found a non-profit company that assists people with rare disorders, The Assistance Fund. We ultimately had to change our bathtub/shower to a full shower. I was using an upright walker from 2019 to 2022\. I still use a cane. The radiation side effects include numbness on the back of my head and limits my range of motion of my neck. I am unable to raise my head or even look straight ahead when walking. It's called kyphosis. Despite the side effects I am on a much better place now than I was 5 years ago. I'm still able to get around slowly with my cane and still go to sporting events and concerts. Using stairs especially walking down them are still tricky. I try to avoid crowds since I live in NYC and plenty of people have stepped on my cane. Currently I live with knee stiffness and well as moderate pain in my ankles and feet. Lastly in the past 8 years or so due to degenerative disc disorder I went from 6'1 to 5'7\. I'm 69 years old. A friend who's an orthopedic surgeon has heard of it but never met anyone with it. It's also called Tumor-induced Osteolamacia which means 'a softening of the bones."**♥ 2source record 1507 **Had Rhabdomylosis. God Damn that Pain was always a 10/10 and Only went down to a 7/10\. Even with 10 MG of Oxycodone AND 2MG of Morphine from a Drip every two Hours. CK levels were literally off The Charts! Above 20,000 and they should be at 0-250 to be Considered Normal. That week succccked Donkey Balls and Garbage Juice 😞. So Glad Jesus Christ took me Through There 🤩👏🏾😌**♥ 1source record 1655 **Kidney disease**♥ 1source record 1732 **Maybe not an illness but sensation : severe hypoglycemia as a diabetic , i felt that’s i’ll pass that afternoon 😢**♥ 1source record 1836 **Liver failure**♥ 2source record 1952 **Graves Disease. I was paralyzed from the neck down due to critically low potassium.**♥ 1source record 1982 **The sugar crash followed by adrenaline surge and then having to eat more sugar. I did that for years and my nervous system and adrenal glands burned out and I was a f-ing mess. I was shaking and felt like I would pass out at any moment. It really sucks and the worst part was I did it to myself.**♥ 1source record 2137 **Tossup between my teratoma tumor (the size of a dinner plate) that literally prevented me from bending over and squatting for years and my hypothyroidism before it got diagnosed. I genuinely thought I had some sort of terminal, lethal disease because of how severe my hypothyroidism was (to the point I was passing out)**♥ 1source record 2167 **Hep A**♥ 1source record 2176 **Dka**♥ 1source record 2371 **Diabetic ketoacidosis. At first it wasn’t that bad, then as it got worse my body flooded with endorphins which was great…then the endorphins wore off**♥ 1source record 2394 **Diabetic (type 1) Ketoacidosis. Shingles is a close second. Frozen shoulder is up there too.**♥ 1source record 2565 **I suppose not the disease itself, but everything that comes along with it's mismanagement - Type 1 Diabetes. It's a difficult disease to begin with, moreso if you already struggle with mental health. I could barely look after myself for simple everyday tasks, so managing it was incredibly difficult for me at one point. The muscle pain, the feeling of a thousand hot knives stabbing my legs, the weakness, chest pain, headaches, dehydration, the toothaches from the excess sugars rotting my teeth, and then there's the hospital treatment. Low potassium is no joke, and I will tell anyone who will listen that IV potassium could genuinely be used as a form of torture.**♥ 1source record 2850 **Acute onset liver failure and then gallbladder**♥ 1source record 3031 **Organ failure when I was 10\. I was asleep on a couch daily and couldn't even stand up to go shower**♥ 1source record 3196 **Hepatitis**♥ 1source record 3198 **I've been through a lot of painful things in life all thanks to my autoimmune disorder that attacks my endocrine and GI systems. The worse was when I had a life threatening flare up and it attacked my pancreas, gallbladder, and colon at the same time. I ended up losing my gallbladder, a third of my pancreas, and almost my life. I spent 15 days in ICU, 2 weeks in a private room, then got to ok to go home with a PICC line for 12 hours a day IV antibiotics, fluids, and TPN. I wasn't even able to eat or drink for 17 weeks. 6 months after I got the all clear, I got my thyroid cancer diagnosis stage 2\. Ended up losing my thyroid, all 4 para thyroids glands, 2 lymph nodes, and some of my vocal folds, then multiple rounds of radiation. Been cancer free 10 years now, but my GI system is bad. I'll probably need an ostomy bag and TPN again in the future as my body is slowly destroying its own digestive system.**♥ 1source record 3320 **Hypophosphatemia from iron infusion. I was gaslit by doctors and told it was anxiety, but infact I almost died from undetectable phosphate. I was on supps for 9 months.**♥ 1source record 3657 **Liver failure. I have an autoimmune disease that attacks my liver, and as my liver began to fail, it caused many other complications throughout my body, things I wouldn’t wish on anyone. I eventually received a liver transplant, but the recovery process took a full year and was also very difficult on my body.**♥ 1source record 3688 **Liver failure**♥ 1source record 3691 **Other than that electrolyte deficiency I couldn't even walk my boyfriend had to carry me to the fucking car I was crying in pain laying in the shower**♥ 1source record 3734 **Acute hepatitis in April this year. 10/10**♥ 1source record 4011 **Renal Failure**♥ 1source record 4121 Archive: 25 index entries preserve 25 distinct source records · Every displayed synthesis count resolves to source-record IDs Ehlers-Danlos and hypermobility14 index entriesConnective-tissue disorders described through repeated dislocations rather than one event. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Ehlers-Danlos and hypermobility Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Ehlers-Danlos and hypermobility 14 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3437 **Appears when:** Ehlers-Danlos and hypermobility **What the pattern means:** Described through repetition rather than an episode: joints that dislocate or sublux routinely, a body that feels unstable, and pain distributed across most of it. Writers give a baseline number rather than a peak, and several list the conditions that travel with it. The recurring frustration is that the individual events are unremarkable — a stretch on waking, getting out of a chair — while the accumulation is not. **What commenters described:** I have hEDS (Hypermobile Ehlers-Danlos Syndrome) A simple explanation is that my body doesn’t make connective tissue very well. This can affect my skin, digestive system, heart and more. I get a lot of dislocations and subluxations, especially in my ribs, fingers, shoulders, and hips. 90% of my joints hurt all the time, I constantly feel like my body is unstable. My head and neck feel like a bobble-head. The fatigue is crushing. I feel like I’m walking through rough waves most of the time. I live at a 6-8 on the pain scale. Pain management is a joke. Add on the ADHD, MCAS, and POTS and it’s been a real fun 50 years dealing with this. 😒 but I’m still here. **Limit:** Fourteen records, several from writers who say they are still trying to be taken seriously or formally diagnosed, so some of these are suspected rather than confirmed. Nothing here identifies a connective-tissue disorder or indicates how to manage one. #### Source-record spotlights Most engaged source My Ehlers-Danlos Syndrome Type hEDS, and all the extra Diagnoses caused by it. source record 2369♥ 1 Later-arriving source Hypermobile Ehlers-Danlos syndrome. posted about 5 days after the source♥ 1 Low-like source Ehlers Danlos syndrome and its comorbidities. posted about 3.4 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 14 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 14index entries 14distinct source records 21.9%of parent category 0.4%of the complete index 14top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 14other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments14 preserved records · 14 of 14 source records accounted for **Ehlers Danlos syndrome and its comorbidities.**♥ 1source record 2179 **Hypermobile Ehlers-Danlos Syndrome. A genetic connective tissue disorder. Originally, it started with spraining my ankles in middle school and being a great gymnast (hypermobile). By the time I turned 16, it became neurological. By 18, I would need to pop multiple joints into place every morning.**♥ 1source record 2247 **Hypermobile Ehlers-Danlos. I dislocate joints all the time and it absolutely sucks.**♥ 1source record 2291 **Hypermobile ehlers-danlos. Real life Gumby. So much stretchy, no supporty. Pain all over plus randoms dislocations.**♥ 1source record 2322 **My Ehlers-Danlos Syndrome Type hEDS, and all the extra Diagnoses caused by it.**♥ 1source record 2369 **Heds/HSD and G.A.V.E (watermelon stomach) and whatever the hell else is wrong with me currently...**♥ 1source record 2543 **Aside from my BPD and depression I would say my mystery chronic illness. Dislocations, subluxations and moving vertibrae/discs on the regular isnt fun. Today both my shoulders are subluxed and my meniscus hurts. I've got a strong suspicion for hEDS but doctors wont take me seriously.**♥ 1source record 2987 **hEDS if that counts. Kidney stone that took over a year to pass if not. Lol**♥ 1source record 3244 **I have hEDS (Hypermobile Ehlers-Danlos Syndrome) A simple explanation is that my body doesn’t make connective tissue very well. This can affect my skin, digestive system, heart and more. I get a lot of dislocations and subluxations, especially in my ribs, fingers, shoulders, and hips. 90% of my joints hurt all the time, I constantly feel like my body is unstable. My head and neck feel like a bobble-head. The fatigue is crushing. I feel like I’m walking through rough waves most of the time. I live at a 6-8 on the pain scale. Pain management is a joke. Add on the ADHD, MCAS, and POTS and it’s been a real fun 50 years dealing with this. 😒 but I’m still here.**♥ 1source record 3437 **EDS physically, MDD mentally**♥ 1source record 3788 **Chronic: hEDS, adenomyosis Temporary: ovarian cyst**♥ 1source record 3825 **ehlers danlos syndrome**♥ 1source record 4027 **hEDS. Things just randomly dislocate, ribs slip, my jaw is misaligned (TMJ), I have a constant pain which radiates around my body 24/7\. I manage it through exercise but it means having to exercise while in pain.. I go to the gym, walk or swim every day and it can be hell at times, I really struggled at the gym this morning :(**♥ 1source record 4076 **Hypermobile Ehlers-Danlos syndrome.**♥ 1source record 4181 Archive: 14 index entries preserve 14 distinct source records · Every displayed synthesis count resolves to source-record IDs The one-off answers25 index entriesConditions only one or two people in the entire thread named. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: The one-off answers Source-backed answers are shown before diagnostics; the complete source archive remains below. #### The one-off answers 25 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1832 **Appears when:** The one-off answers **What the pattern means:** Conditions named by only one or two people in the entire thread: sickle cell, ME/CFS, haemophilia, carbon monoxide poisoning, compartment syndrome, a terminal diagnosis, and several illnesses whose writers say no doctor ever named them. The group is kept intact deliberately — the long tail is where the thread stops being a list of famous painful conditions and becomes a record of what individual people actually live with. **What commenters described:** Physical pain, Hemophilia. Once you’ve had a good old fashioned joint bleed, you’ll never forget it. Emotionally draining kind of pain , idiopathic pulmonary fibrosis. It’s a hoot, my lungs are turning to stone and I’m slowly suffocating. I’m working on getting a gently used pair of lungs, but that’s a whole process in and of itself **Limit:** Each of these appears once or twice, so nothing can be generalised from any of them, and several writers say they are still undiagnosed. Nothing here identifies any condition. What the replies added1 Ooof I heard that one is a beast, hope you're doing good From the replies♥ 2 #### Source-record spotlights Most engaged source Sickle Cell Anemia. source record 325♥ 27 Later-arriving source The terminal illness I am dying from posted about 21.2 hours after the source♥ 2 Low-like source Lymphadema it is a forever thing, legs hurt all the time posted about 3.2 hours after the source♥ 1 #### What the counts show This report keeps all 25 source records for The one-off answers together and surfaces traceable examples without converting anecdotes into proof. 25index entries 25distinct source records 39.1%of parent category 0.7%of the complete index 25top-level comments 0replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 25other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments25 preserved records · 25 of 25 source records accounted for **Sickle Cell Anemia.**♥ 27source record 325 **ME/CFS.**♥ 10source record 398 **Carbon monoxide poisoning. My head hurt...so, so bad. But I didn't die, so that's good.**♥ 5source record 440 **Compartment syndrome!! Collapsed at home due to standing on a rusty drawing pin, didn't get a tetanus shot (which caused sepsis and I was unaware) kept blacking out with pain. Was in ICU for 7 weeks, woke up an amputee. Phantom pain is a wild one post op!**♥ 2source record 1495 **The terminal illness I am dying from**♥ 2source record 1600 **Never got an official diagnosis but the pain was so bad that I passed out from it any time I moved. It was in my tailbone area and first guess was pilonidal cyst. When that was ruled out it was inflammation pressing on the nerve endings in that area. When my bloodwork came back with an elevated WBC they thought maybe infection, but never actually found anything to support that on CT or MRI. So... to this day I have no clue other than the only thing that made the pain any better was taking a round of Cipro & Bactrim DS simultaneously. I had relief within 36hrs after starting that when even painkillers hadn't touched it & the pain was 10/10.**♥ 1source record 1650 **Lymphadema it is a forever thing, legs hurt all the time**♥ 1source record 1824 **Physical pain, Hemophilia. Once you’ve had a good old fashioned joint bleed, you’ll never forget it. Emotionally draining kind of pain , idiopathic pulmonary fibrosis. It’s a hoot, my lungs are turning to stone and I’m slowly suffocating. I’m working on getting a gently used pair of lungs, but that’s a whole process in and of itself**♥ 1source record 1832 **I guess it's a trauma/injury moreso than an illness, but multiple major organ failure from hypovolemic shock. I'm not even sure HOW to describe the pain, just an intense vortex of swirling, tearing hot pressure all across my midsection with the occasional punches down in my lower gut, while an elephant stands on it. They had me on the GOOD GOOD and it didn't touch it. I also distinctly remember looking up into one of those blind spot mirrors being wheeled around for scans and tests and being SHOOK at how I literally matched my sheets. I swear I stared back at my own corpse. 0/10 do not recommend.**♥ 1source record 1891 **Perforated bladder from the concussion wave of an explosion. Internal bleeding, flooding inside with waste. Couldn’t pee. Pressure just built and built. Spot bleeding out my dick. Pain got so bad I was shaking uncontrollably and vomiting. Thank god for catheters.**♥ 1source record 2110 **Cat bite**♥ 1source record 2209 **Stung on the top of the ear by a yellow jacket. I’ve had 2 knees replaced and cancer surgery but the bee beat them all.**♥ 1source record 2344 **Internal bleeding.**♥ 1source record 2469 **Chicken pox in my late 20s, it is god awful I thought I was not going to make it.**♥ 1source record 2514 **Black Widow spider bite.**♥ 1source record 2607 **Splenic torsion**♥ 1source record 2780 **ME/CFS.. kidney stone.. tooth pain**♥ 1source record 2913 **ME/CFS and a severe gallbladder infection**♥ 1source record 2950 **Back at the CLEAN start of 2020, i’n talking the night of new years I came down with something. I don’t know WHAT it was. I’m wondering if it was my body struggling with the hernia procedure a couple days before but oh. My. God. It hurt. There was this massive tight ball of pain in my chest that wouldn’t go away for 5 days. No matter what I couldn’t get rid of it. I threw up everything I ate for 5 days straight and dropped down to 105lbs during those days. I had left over anxiety with certain smells and feelings after that that I had to train out of my system**♥ 1source record 3045 **Tetanus, get your boosters on time people 😫**♥ 1source record 3598 **I had something that was nausea, a cold fever (was working in the scorching heat, but freezing to death) Shivering all day every day for weeks. Muscles felt like jelly. Wanted to puke constantly. Coughing constantly, eventually coughing up blood. It just went on Forever**♥ 1source record 3720 **The unknown. In 2023 I became ill, and ended up losing 70 pounds. I was overweight, but not that much. We had no idea what was wrong with me and ran every test we could. I was in and out of the hospital and miserable. I finally found an aggressive doctor who found several gallstones (with no pain) and pancreas issues. Three years later, I am doing better.**♥ 1source record 3753 **Mercury poisoning when I was 14\. Excruciating pain all over the body. That was a 10 on the pain scale for me. I compare every single pain I’ve experienced subsequently to that experience. The only thing that has held a candle to it is full-body carpopedal spasms, which feel very similar. Like you’re being electrocuted slowly.**♥ 1source record 3933 **I haven’t had any very painful illnesses, but the scariest was uvilitis. If you have a dry mouth and do too many things that irritate your uvula (the hangy thing in your throat) your uvula might swell. That’s uvulitis. 99% of the time, it’s totally harmless and just really annoying for 2 days. You just can’t do things that irritate your throat for a while, or else it gets worse. I was 16 and was drinking, vaping and smoking ganj with my friends, and I felt my uvula in my throat swell. I was terrified for about 6 hours that I would have to go to the hospital n shit for 6 hours until I looked it up and realized I was fine.**♥ 1source record 4123 **Insomnia**♥ 1source record 4154 Archive: 25 index entries preserve 25 distinct source records · Every displayed synthesis count resolves to source-record IDs The answers that were not a physical illness at all204 records · 3 sub-topicsRecords that answered the question with something other than a body part, and argued for it. 204 records. Depression and mental illness151 index entriesThe second-largest single answer in the thread, and the one that argues most directly with the word “painful”. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Depression and mental illness Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Depression and mental illness 151 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 1155 **Appears when:** Depression and mental illness **What the pattern means:** The second-largest single answer in the thread, and the one that argues most directly with the question. Writers do not claim depression hurts like a kidney stone; they make a different case — that the physical answers end and this does not. One commenter puts it as the difference between self-limiting and not. The accounts describe physical pain as a genuine symptom rather than a metaphor, and a large sub-thread beneath the top answer is not about pain at all but about how to stay in contact with somebody who has withdrawn. **What commenters described:** This was my first thought also. I've experienced many of the other things in this thread and I would trade major depressive disorder for most of them. At least kidney stones, gallbladder attacks, and shingles, are self-limiting. Depression is the gift that keeps on giving **Limit:** These are people describing their own mental illness, not clinicians describing a condition, and medications, therapies and side effects named here are individual experiences with contradictory outcomes. Nothing on this page is a substitute for care. If you are struggling, contact a local crisis line or emergency service. What the replies added3 This, layered with the heartbreak and betrayal from an avoidant ex discarding me. Completely lost myself. Oh, and broken ribs is up there too Reported failure♥ 2 Depression has made it so when I’ve actually gotten hurt be it broken bone, laceration etc, I feel more alive than on a normal day. The mental pain is different. Sometimes when I get a migraine and it goes away I miss it as well. Reported failure♥ 1 If I were to put physical pain it would be my crohns and all the surgeries I had to deal with before they discovered whats wrong. However my undiagnosed adhd and severe daily suicidal ideation were worse. My whole life I was told I was lazy, to emotional and stupid, I believed everyone cause thats how i felt and then when I was 28 I went to my dr and broke down crying cause I just couldn't do basic things without all this resistance. So she gets me an appointment to talk to someone, we go through all these questions and at the end I'm told I have adhd and my "laziness" was just because I had a severe problem with executive functioning. The amount of anger and grief I felt at learning that is something I can't even describe. Finally at 37 we found a medication that helps with my suicidal thoughts and I'm on adhd meds and life is still hard but it's far better then the hell hole that was my 20's. Reported failure♥ 1 #### Source-record spotlights Most engaged source a friend of mine, when I was going through the darkest of days, would come by and force me to go to shows with him. He'd drive, get tickets, beers... I really appreciate what he did. source record 235♥ 326 Later-arriving source Sadly it's up to that person, they also have to be willing to do so. I was forcing myself to eat, I was supported, I used my savings to get a therapist ASAP and got meds And still there it took me a year to get a good handle on it, but every day was slightly easier, even if sometimes there were lows. It's been a decade since I felt that low, I still get some lows but I also have the tools to push through, I have my meds to help regulate me, my view on life has become very, I'll deal with the issues of right now, and what comes later I will work through that then. I did some sort of meditative yoga at the time too and it was nice, a thing the teacher said stuck with me well. View your body like a guest house, all sorts of people (feelings) will come through, stay, be on their way, some will be good, some will be bad, but it's passing through. posted about 10 days after the source♥ 1 Low-like source Anxiety and panic attack, when it was really bad I have it 24/7 I wasn't feeling save even for take a shower and I will feel dizziness if I was outside my home posted about 3.7 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 151 source records, the most common observable tactic structure is “Change the sentence” (4 records). This is a wording pattern, not a measured outcome. 151index entries 151distinct source records 74%of parent category 4%of the complete index 98top-level comments 53replies #### What commenters explicitly report 1explicitly reports a benefit 0explicitly reports a limit or failure 6asks a question 0says they intend to try it 144other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **4**Change the sentence **4**Turn it into a game **3**Swap instead of subtract **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments151 preserved records · 151 of 151 source records accounted for **Depression**♥ 1,510source record 233 **a friend of mine, when I was going through the darkest of days, would come by and force me to go to shows with him. He'd drive, get tickets, beers... I really appreciate what he did.**♥ 326source record 235 **That friend is what I needed, I felt completely helpless, nothing was a conscious decision my body was just on auto pilot. All I was thinking was that I didn’t want to be here. My husband literally put me in the shower and washed my hair. He is amazing and he really did save my life. It’s taken 7 years but I actually look forward to the future. I don’t think anyone who hasn’t been utterly resentful for someone wanting them to be alive can know that feeling.**♥ 40source record 236 **I would do this for anyone but no one would for me and that’s what I need now more than ever right now.**♥ 6source record 240 **Jesus, I think I have hit a point where even people reaching out only makes my headspace worse. Wow.**♥ 8source record 247 **If you can visit with him, just sit with him. That's what I needed when I was in a dark time. I have chronic depression.**♥ 8source record 251 **Manic depression and bipolar run in my family, take a guess how many of my relatives have committed suicide. (It's rough)**♥ 54source record 252 **Depression and addiction**♥ 18source record 254 **Do not underestimate emotional pain... it can be worse than physical pain in many cases. We need to have better ways to make people aware of how mental health can affect you. Saying this as somone who is currently suffering from severe depression and slowly on the road to recovery, and as somone who has had friends that were dealing with it.**♥ 9source record 255 **Borderline personality disorder**♥ 124source record 342 **I was going to comment this, it's fucking awful. I can't trust myself, I never know if anything is the right thing to do & I never understand where anyone else is coming from. 20 months of MBT therapy later & I genuinely don't know what else could help anymore - fighting the way my brain is hardwired whilst not being able to trust any decision.. then add inattentive/impulsive ADHD on top. I may actually accept a lobotomy if I was offered one**♥ 36source record 343 **I have tried CBT, counselling & was told I wasn't able to have DBT. So they put me into Mentalisation Based Therapy (MBT). Now 20 months later & I'm back to square one. Nothing after, nothing else they can offer. Just take my pills & try to smile 🙃**♥ 9source record 344 **CPTSD**♥ 69source record 347 **Bipolar disorder. Idk the cycle is too exhausting for me.**♥ 25source record 386 **Post partum depression.**♥ 4source record 410 **Not physical pain so much, but pure mental, soul-crushing anguish from 35 years of depression. It's really and truly a nightmare to be alive and in my body and mind.**♥ 7source record 446 **PTSD from finding my husband dead. I feel like the PTSD branches out to so much more, like the umbrella for everything, depression, anxiety etc. It’s debilitating for long periods of time. And also grief.**♥ 7source record 447 **I'm so sorry you went though this! I have PTSD for different reasons, and can confirm everything you have said. It takes everything in me just to get out of bed some days. People don't understand or believe in pain that isn't physical or that they can't see. They act like it's not real. To me it's worse, because physical wounds are much easier to treat and heal in most cases. Emotional wounds take much longer and sometimes will never heal.**♥ 4source record 448 **Yes definitely… like the executive dysfunction it can cause is absolutely fucking horrible. People don’t understand how debilitating it can be. It can also amplify any other mental illnesses you have. It sucks. Hugs 💕**♥ 4source record 449 **Depression and grief**♥ 3source record 457 **I feel this deep in my heart. The other day I had a thought that my family would just be better off without me. My husband has BP1 and the rollercoaster has been challenging to say the least. I don’t think my heart can take it anymore and he wouldn’t make it easy for me to leave. The worst part is that when he is well he is an amazing partner and father. When he isn’t he is just irritable and mean and it feels like he hates me.**♥ 3source record 1078 **Co-signed & adding ( C)-PTDD . After that, it was shingles for me. I had then in HS. Talk about pain. I couldn't even sleep. When I'm old enough, I will be getting the vaccine.**♥ 3source record 1080 **One big thing for me was being able to say no to something and not receive any negative feedback about it. Knowing you’re sad I won’t be there just makes me more sad lol**♥ 3source record 1092 **No one can hate me more than me. Years on, I realize that I don't deserve that vitriol. I can give myself a little bit of grace and forgiveness; not a lot, mind you, but a little. :\\\~) It's hard to covey what goes through your mind when you spend an evening on the sofa tasting gun oil, trying to work up that moment's courage.**♥ 3source record 1093 **This, layered with the heartbreak and betrayal from an avoidant ex discarding me. Completely lost myself. Oh, and broken ribs is up there too**♥ 2source record 1096 **One of the most painful and, annoyingly, hardest to cure.**♥ 2source record 1099 **Treatment resistant MDD, it is truly hell on earth. It's going from having a few good days to a sudden pit of despair in a matter of hours that still throws me. Like entering a dark tunnel sealed at both ends and you have no idea when or if there's going to be light again. In solidarity ❤️**♥ 2source record 1100 **A hug from a friend helps. I have fought depression most of my life. There are days when I had to check to see if my heart was still beating because I felt nothing. I curled up in bed. That friend that called and showed up to check on me saved me from myself. Anytime I showed up at his place he greeted me with a glad you are here and the biggest hug. Just knowing there is a friend out there helps.**♥ 2source record 1107 **I’m in this boat. I’m avoidant of everyone and haven’t hung out with friends in years. Eventually they quit calling. The invites disappear. Everyone just accepts it.**♥ 2source record 1110 **For me it is sometimes hard to do anything, I cope by setting small goals and trying to get through them... do a load of laundry, or a few dishes that have been piling up even if its a week late etc. Small accomplishments help.**♥ 2source record 1113 **Amen! Depression can be very physically painful too, not just soul deep!**♥ 2source record 1118 **Depression and bipolar 2 sufferer here. There are times when suicide is on my mind non-stop. It’s a constant battle and it’s exhausting**♥ 2source record 1121 **Everyone is different, but when I was at my worst, I think the best thing someone could have done is to just stay in contact. I probably wouldn't have replied much, or at all, but knowing someone is still thinking about me, cares enough to keep sending messages, and is still being friendly, would have meant a lot. Also, give them space, but maybe occasionally force some interaction. Be a little annoying sometimes if that's what it takes. Depression is a complete lack of emotions and feelings, so even some (minor) negative feelings can help, as long as it's not excessive.**♥ 2source record 1122 **Honestly yeah, this one. It's just so fucking draining. I have seasonal affective disorder, and I remember going to a store in the dead dark of winter hoping for an ounce dopamine and thinking to myself, I don't want to die, I just don't want to be in pain anymore and if dying is how that happens, then I'm ok with that. I moved 3000 miles to the middle of the desert and sit in the sun when it's 120 degrees out because it's still better than that.**♥ 1source record 1140 **Goes well with your choice of a side we have. Addiction Ocd Bipolar No self esteem. And today we're also having a special you get the whole bundle forever and we include an order of what's probably mild turretts. Please pull up to the next window.**♥ 1source record 1141 **The worst part is getting on medication then getting PSSD from it making your depression go from coughing baby, to hydrogen bomb. PSSD is a hell I can't even explain to people how bad it is. The anhedonia and emotional blunting make you feel like you're drowning permanently and literally nothing can cure it.**♥ 1source record 1145 **☝️☝️True!!!☝️☝️ Depression hurts physically!!!!**♥ 1source record 1146 **I went through it, I cannot describe how it feels. At my worst I'd cry all day, it wouldn't stop, I had no appetite, I frlt sick, I'd wake up feeling like everyone I loved died, absolutely crushing grief.**♥ 1source record 1149 **the pain of a depressive episode where you genuinely feel entirely stuck in life and chronically alone no matter how much company you get.**♥ 1source record 1151 **This was my first thought also. I've experienced many of the other things in this thread and I would trade major depressive disorder for most of them. At least kidney stones, gallbladder attacks, and shingles, are self-limiting. Depression is the gift that keeps on giving**♥ 1source record 1155 **Depression has made it so when I’ve actually gotten hurt be it broken bone, laceration etc, I feel more alive than on a normal day. The mental pain is different. Sometimes when I get a migraine and it goes away I miss it as well.**♥ 1source record 1156 **Go pick him up, get lunch, go play some putt-putt, anything. I battled severe depression after a series of traumatic brain injuries and if it wasn't for certain people in my life who came to me and made me do things to get out of the house and try to improve my situation I probably wouldn't have made it**♥ 1source record 1160 **Be there, even when he pushes you away make sure he knows you’re still there when he needs you. Invite him to things with the caveat that you know he probably won’t want to go but that you still want him there when he’s ready. Maybe try smaller things like take some beers round and sit outside with him in silence if he needs to (I say outside because he might have let his house slip and be ashamed for you to go inside) Silly gifts you say made you think of him like a fridge magnet from somewhere you went together in the past, small treats like candy you know he likes. I lost every single friend and most of my family during my depression, I pushed them all away and they didn’t try to get back so now they’re all gone. I eventually came back around but they’re all still gone.**♥ 1source record 1161 **I’m in that phase too. Food helps, maybe just dropping things off at his porch and showing you’re still there would be nice.**♥ 1source record 1162 **Keep texting and letting them know you care. They may not respond but it will mean a lot. I isolate when my depression hits and am at times pretty suicidal. My friends and family keep texting and leaving voicemails and I swear it has saved my life at times.**♥ 1source record 1164 **For myself, I felt like a burden, but I went to stay at my mom's because it was dangerous if I was alone. My siblings took turns staying with me, a rotation. I would barely eat so they made me smoothies, popcorn, we just watched tv shows and movies, things that felt good. If you can, check in, bring comfort food or smoothies, find a show to watch together. Or music to sit and listen. If you're into video games, play shit together, video games were a huge help for me**♥ 1source record 1169 **I will make sure I note down the name for my own personal research after I have finished all of the course being offered. DBT is going to be one of my next steps that I would like to explore. Age is helping me, it doesn't help that I was diagnosed whilst pregnant, during COVID lockdowns & took 5 years after being told I had it to receive any help. Not everything we think or do is valid, but every feeling is & I will always take responsibility for my own thoughts, feelings & actions based with that. I'm 27, I don't want to hurt myself or die anymore. Id just like to not fight my own consciousness every second of everyday to be a functioning human.**♥ 3source record 1287 **Not all of them do. My mother has untreated BPD and refuses to acknowledge that she has a problem. She is incredibly abusive and makes life hell for everyone around her. But it’s always the other person’s fault, she is always innocent.**♥ 2source record 1290 **Bipolar 1 with psychotic features, here. The cycles fucking SUCK. But I was going to comment akathisia. Had that side effect for TWO meds I was prescribed. Both times, it was goddamn unbearable to the point I considered just ending it. I am not kidding. It was that bad. It felt like my skeleton was trying to hatch, is the best way I can describe it. I wanted to violently rip my own skin off and set my bones on fire with gasoline and a grenade. NOTHING felt right, I couldn’t sit, couldn’t stand, couldn’t lay down, couldn’t pace, couldn’t drive, couldn’t kick my legs, couldn’t stay still, ABSOLUTELY COULD NOT SLEEP. I NEEDED to move, but moving DIDN’T ALLEVIATE THE SENSATION.**♥ 2source record 1299 **This. I also have heart and stomach problems but the chaos and misery in my mind is relentless. Medication only does so much**♥ 2source record 1300 **It gets better... It doesn't hurt less in like, the amount of pain, but it hurt less in like the time lapses, every time the pain last less and less. One day you realize you don't feel that horrible pain all the time, just sometimes, that sometimes reduces to some days... And so on.**♥ 2source record 1305 **Fucking hate it. I’m trying so hard to live like a normal person. Trying to work a FT job, raise a 3-yr old son I never thought I’d have. Was told I couldn’t have kids. Thought that was a blessing considering my mental health issues. Then I got pregnant at 41\. Staying at home was not good for my mental health. Returned to work several months ago and I am struggling so bad. People don’t like me. I don’t like them. I struggle with lazy people and I don’t know how to let shit go. I’m a pretty emotional person too. Wear my feelings all on my face. I feel like I’m at a place where 75% or more of the employees are lazy af and really don’t care and I over care. I have a difficult time separating whether my struggles are just normal things that occur in a workplace or if they’re exasperated due to my BPD. If I didn’t have my son though, I’m not sure I’d be here at all.**♥ 2source record 1320 **Oof yes. I’ve “recovered” but still remember the agonizing pain of being in constant emotional turmoil. Very sorry you’re struggling.**♥ 1source record 1347 **Anyone who doesn't live with this won't be able to comprehend how difficult life is when there's a constant emptiness. And you know I don't mean depression or anything, you could have everything in life, but the emptiness that is there because you can't process emotions so well so they go into the void. And it's always eating at you. The constant internal battle. You don't want to be like this. When you're good everyone loves you but you're scared they'll leave you so you somehow fuck it up and then when you're bad you're a lowlife piece of shit who deserves nothing and wants to die.**♥ 1source record 1353 **OCD, I’ve never been closer to suicide than I was when my intrusive thoughts got out of control.**♥ 2source record 1393 **Yes. Survived a horrible, horrible, almost life ending bout this winter into spring. I remember telling my husband at one point that my brain literally hurt from just feeling so shitty about life when I have these two amazing kiddos.**♥ 2source record 1437 **Depression and anxiety. They took me down HARD for about 2 years. I would not wish that on my worst enemy!**♥ 2source record 1494 **OCD. It sucks butts. 😮‍💨**♥ 2source record 1511 **OCD**♥ 2source record 1540 **Post partum anxiety**♥ 2source record 1542 **Depression**♥ 1source record 1556 **For now, maybe anxiety. The emotions that fight you within yourself.**♥ 2source record 1590 **PTSD**♥ 1source record 1611 **A cocktail of depression, anxiety, and PCOS that constantly play dodgeball with my medications as to what can actually treat any one of them without exacerbating the others**♥ 1source record 1625 **OCD**♥ 1source record 1632 **Depression. The only illness I’ve almost died from**♥ 1source record 1643 **Chronic depression I spent months in mental rehabs trying to find something to soothe my mind. It started when I was around 11-12 and has been with me till now (24) but my partner of now nearly 4 years has made my mind at ease. He makes my thoughts quiet and is always there for me. If you know someone struggling with depression, reach out, come hang out with us. The biggest thing that took hold of me is I thought no one wanted to be around me. Especially as we all started to grow up and begin our own lives etc. I felt completely alone even in a room full of people**♥ 2source record 1672 **All symptoms that come with trauma and ptsd**♥ 1source record 1708 **Borderline personality disorder The ability to destroy everything you love, know you're doing it, but having no actual control of what you're doing.**♥ 1source record 1711 **BPD**♥ 1source record 1712 **•Depression •CPTSD •Fibromyalgia •Shingles •Nora Virus deserves an honorable mention**♥ 1source record 1776 **anorexia**♥ 1source record 1805 **Bipolar type 1**♥ 1source record 1815 **OCD**♥ 1source record 1859 **I was going to say gallstones, but bipolar disorder would be a better option.**♥ 1source record 1860 **Depression or kidney stones. It’s a toss up.**♥ 1source record 1872 **I’ve had kidney stones multiple times, and I’ve had one life-threatening episode of major depression. Give me the kidney stones any day. No question.**♥ 1source record 1874 **Bipolar with a sprinkle of ADHD just to keep things interesting 😵‍💫**♥ 1source record 1932 **Physically? Unsure. Mentally? Depression. I know I will always feel some degree of shitty until I die.**♥ 1source record 1935 **DID / PTSD.**♥ 1source record 1946 **Anorexia**♥ 1source record 1968 **Anxiety.**♥ 2source record 2045 **Depression. When you are thinking about ways to kill yourself in bed instead of dreaming like most people. Physically i think it's shingles. That shit was horrible**♥ 1source record 2079 **Mental health depression with EUPD/BPD recurrent crisis episodes with suicidal ideation and self harm. Constantly feel in a losing battle with your own head.**♥ 1source record 2092 **Depression**♥ 1source record 2096 **In different ways: depression, sludgy bile release, COVID+heat exhaustion at the same time (OMG everything HURT) and Typhoid-I just wanted to die.**♥ 1source record 2145 **Mental illness**♥ 1source record 2202 **Ptsd.**♥ 1source record 2215 **Panic attack**♥ 1source record 2278 **mental things but i have both BPD and health anxiety, and theyre both terrible**♥ 1source record 2286 **Without a doubt Bipolar. I have other mental illnesses and ADHD but bipolar takes the cake.**♥ 1source record 2288 **Obsessive Compulsive Disorder**♥ 1source record 2300 **CPTSD from child abuse that was never believed. I say this personally because it comes with a side of “mistrust for society” alongside the traumatic symptoms. The issue isn’t a singular traumatic event, it’s that there were so many traumatic events that my brain didnt develop properly. Now I have to navigate being an adult whilst having this horrific backstory that not everyone is capable of understanding. Not to mention learning how to control enough of my symptoms that I can function semi-normally in life**♥ 1source record 2357 **Schizophrenia**♥ 1source record 2392 **Treatment resistant depression. Since no one can touch it with medicine, go to therapy, they say. The first therapist I saw at age 16 told me the boy who raped me "didn't seem like the kind of kid to do this." My last one was convicted of having CSAM on his computer (WHILE HE WAS A CHILD THERAPIST!!!!) made him do some inpatient or little jail time, then set him loose on the adults who need to use Medicaid for health care. No one told me this, and I brought my then 2 year old to appointments when I needed to, the doctor offered to hold him every time while I got weighed. When I found out (via my DBT therapist making a very brave remark not to bring my son there, thank you lady 🙏🏻) I did freak out and stormed his office, basically just screaming how could no one tell me, how could the receptionist not tell me, my caseworker at the clinic?? Here's hoping the therapist I saw yesterday to help me deal with some huge life changes lately doesnt turn out to be some asshole or monster. Im still trying but I am just. So. Tired.**♥ 1source record 2458 **If I were to put physical pain it would be my crohns and all the surgeries I had to deal with before they discovered whats wrong. However my undiagnosed adhd and severe daily suicidal ideation were worse. My whole life I was told I was lazy, to emotional and stupid, I believed everyone cause thats how i felt and then when I was 28 I went to my dr and broke down crying cause I just couldn't do basic things without all this resistance. So she gets me an appointment to talk to someone, we go through all these questions and at the end I'm told I have adhd and my "laziness" was just because I had a severe problem with executive functioning. The amount of anger and grief I felt at learning that is something I can't even describe. Finally at 37 we found a medication that helps with my suicidal thoughts and I'm on adhd meds and life is still hard but it's far better then the hell hole that was my 20's.**♥ 1source record 2504 **Borderline personality disorder**♥ 1source record 2536 **Mental illness. Punching myself in the head hundreds of times, and cutting my arms deeper and deeper. Yeah that's pretty painful**♥ 1source record 2544 **Anorexia. Had it most of my life and it will probably kill me.**♥ 1source record 2646 **OCD. It is mentally and physically painful.**♥ 1source record 2650 **BPD**♥ 1source record 2700 **PTSD**♥ 1source record 2717 **Ich hab Schizophrenie schon seit 20 Jahren egal wie sehr man kämpft die Krankheit frisst langsam und unbemerkt dein Leben**♥ 1source record 2728 **PSSD 😔**♥ 1source record 2735 **Mental health**♥ 1source record 2788 **σχιζοφρένεια, ἣ μὲ τρομάζει κάθε μέρα καὶ καταστρέφει τὴν προσωπικότητά μου.**♥ 1source record 2790 **Akthesia**♥ 1source record 2826 **Bulimia.**♥ 1source record 2831 **depression with psychotic features scratched cornea pancreatitis in that order**♥ 1source record 2867 **1\. CPTSD 2\. Gall Bladder attacks 3\. Plantar fasciitis**♥ 1source record 2870 **Schizophrenia**♥ 1source record 2894 **Split between a cyst in the neck when I was a kid and depression. Both wouldn’t let me sleep at night.**♥ 1source record 2920 **Depression**♥ 1source record 2924 **Mental. Terrifying panic attacks**♥ 1source record 3042 **If emotional "pain" counts: OCD. Otherwise: weird toenails that required a grand total of 8 surgeries.**♥ 1source record 3207 **Depression and debilitating panic attacks and anxiety Physical illness? Destroyed lumbar disc in my spine**♥ 1source record 3209 **Depression and anxiety. I can manage all physical pain I've been faced with so far, but your own self, delivering a deplorable level of hatred, and telling you to kill yourself is the hardest battle I fight.**♥ 1source record 3220 **Psychosis. Mentally excruciating.**♥ 1source record 3303 **OCD**♥ 1source record 3379 **Depression and anxiety disorder, measured in accumulation of the timespan I suffered from it, which is … my whole life. And also as a little add-on, don‘t forget including all the lifelong daily restrictions, medication side effects (of almost 20 meds), all the money spent, lost friends, and missed chances and opportunities (not only education & work) I suffered from that. That all together, yes, makes it the very most painful illness I ever experienced.**♥ 1source record 3426 **Depression**♥ 1source record 3439 **CPTSD, at that time there wasn't an enf in sight. Physical heartache pain, super sensitive skin, muscles stuck in flight or fight so they wouldn't relax. That was just the physical stuff, wouldn't wish it on anyone. Take care of your mental health, it's more important than you think**♥ 1source record 3467 **Depression**♥ 1source record 3470 **borderline personality disorder + mold toxicity is a kind of emotional hell I'm not sure how to describe.**♥ 1source record 3483 **Depression**♥ 1source record 3497 **I had very severe anorexia and got down to a BMI of 9\. At that weight, it hurt to exist. Every second that I was conscious was physically painful. It wasn't so much that there was one specific agonising pain. It was more that \*everything\* hurt and it hurt in a way that was completely unrelenting. I felt like I was dying, because I suppose I was.**♥ 1source record 3617 **Hospital. Wish I could say yes to your other question, but not really. Cycled through binge eating disorder since then and ended up obese, trying to get myself properly healthy now. But I think the experience also caused physical damage to my brain because I started having really high levels of anxiety and obsessive thinking when I was very thin, along with erratic thinking and behaviour, that never improved. So now I just live my life as a bundle of anxiety and hysteria with occasional manic happiness and constant impulsive stupid decisions.**♥ 1source record 3619 **Anxiety**♥ 1source record 3702 **BPD**♥ 1source record 3741 **I'm stuck between depression or Quincke's edema**♥ 1source record 3748 **does ocd count**♥ 1source record 3820 **Bipolar disorder, specifically when I come out of a manic episode and straight into depression. I’ve lived through all different physical illnesses, but nothing will ever beat it**♥ 1source record 3834 **Severe depression**♥ 1source record 3884 **Negative thoughts**♥ 1source record 3894 **Major depression and CPTSD. Emotional pain is bad enough but it causes systemic illnesses like fibromyalgia and autoimmune diseases. For some of us the emotional pain is as bad as or worse than physical pain. Be kind to yourself. ❤️**♥ 1source record 3927 **PTSD**♥ 1source record 3930 **Mental health crisis**♥ 1source record 3952 **Anxiety and panic attack, when it was really bad I have it 24/7 I wasn't feeling save even for take a shower and I will feel dizziness if I was outside my home**♥ 1source record 3978 **Psychologically painful would be PSSD. Extreme emotional blunting and extreme anhedonia. Imagine living life like you're watching paint dry no matter what you do. And your emotional blunting makes you feel inhuman. I had peritonsillar abscess, also dry socket, which I would say is the physically most painful I experienced and I would rather have that than PSSD.**♥ 1source record 3987 **C-PTSD**♥ 1source record 4009 **CPTSD**♥ 1source record 4065 **CPTSD, abandonment trauma.**♥ 1source record 4100 **Bipolar disorder. Debilitating and relentless 😔**♥ 1source record 4111 **Schizophrenia.**♥ 1source record 4168 **Though honestly, the crimpling depression, PTSD, suicidality, and OCD I experienced later due to unrelated reasons was worse in my opinion. People really underestimate how intensely painful these experiences can be, not to mention other conditions like bipolar, schizophrenia, psychosis and other disorders I am lucky enough not experience. Someone I know with Borderline jumped from a 3 story building. Though she did survive, I imagine that was pretty damn painful. Someone else I know during a psychotic break jumped through a glass window. They cause emotional symptoms, yes, but the physical symptoms you also experience are very real. For me, it was constant and intense headaches and unrelenting fatigue. The way it went on for years, and still goes on to some extent, is/was worse than any acute pain I experienced during my operations. I have had endometriosis and gal bladder issues too. I know those will be common answers, and yes, they are painful. I couldn't walk and also thought I had appendix issues, but I could still understand the world around me. I didn't think I was dying, I just hurt. This is not meant to dismiss these disorders. It is worth noting that they are also fairly common. Many people don't know of other more rare conditions that simply are more painful, especially due to lack of treatments in many cases. All of that said, just because someone's condition is "worse" from a pain perspective does not mean you can compare of give one more sympathy than the other. Conditions like endometriosis often go untreated and under researched and pain is often underestimated, especially for chronic issues and issues that affect AFAB people. They deserve more respect, even if they are not the most physically painful. TLDR: don't underestimate the amount of pain that comes from any chronic issue or pain that originates from a phycological disorder. Studies show that those symptoms of pain are just as real. Don't compare people's pain, it's all valid. and lets do more research on all these conditions.**♥ 1source record 4184 **I can relate to this. I know it's getting bad because it now has physical manifestations. Adding more insult to injury, I'm always told that other illnesses always have it worse.**♥ 1source record 4274 **Definitely not fun, hearing your grandma shot herself (or countless others)**♥ 1source record 4303 **I didn't recognize my own thoughts or self. It's been 2 yrs, not 100% back to myself but alot better.**♥ 1source record 4366 **Sadly it's up to that person, they also have to be willing to do so. I was forcing myself to eat, I was supported, I used my savings to get a therapist ASAP and got meds And still there it took me a year to get a good handle on it, but every day was slightly easier, even if sometimes there were lows. It's been a decade since I felt that low, I still get some lows but I also have the tools to push through, I have my meds to help regulate me, my view on life has become very, I'll deal with the issues of right now, and what comes later I will work through that then. I did some sort of meditative yoga at the time too and it was nice, a thing the teacher said stuck with me well. View your body like a guest house, all sorts of people (feelings) will come through, stay, be on their way, some will be good, some will be bad, but it's passing through.**♥ 1source record 4398 **OCD**♥ 0source record 4415 **Complex PTSD**♥ 0source record 4421 Archive: 151 index entries preserve 151 distinct source records · Every displayed synthesis count resolves to source-record IDs Addiction and withdrawal21 index entriesAddiction and withdrawal, usually offered with the writer's own caveat about whether they count. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Addiction and withdrawal Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Addiction and withdrawal 21 source records **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 3699 **Appears when:** Addiction and withdrawal **What the pattern means:** Almost every record here opens with a caveat about whether it counts, and then describes something with a shape none of the physical groups have: an illness the writer attributes to their own actions, and a pain with a known cure they are refusing. Withdrawal is described in flu terms plus something the writers say has no physical equivalent. Several accounts include a recovery date, offered as the point of the comment. **What commenters described:** Opioid withdrawal. It's a hell I never want to go through again. **Limit:** These are personal accounts of addiction and withdrawal, including one writer's assertion about what withdrawal can do medically; none of it is verified here. Withdrawal from alcohol and some other drugs can be dangerous, and nothing on this page is a reason to attempt it without medical support. What the replies added1 i came here to say addiction but you beat me to it! Congrats on your recovery! i just hit 20 months yesterday. feels like just yesterday i went to rehab. From the replies♥ 1 #### Source-record spotlights Most engaged source Mental pain: borderline personality disorder Physical pain: drug addiction (IV user). I've been in recovery since 2019 though 💪🏻 source record 396♥ 18 Later-arriving source Alcohol withdrawal. Symptoms of the flu plus mental hell on earth. But it doesn’t stop there because it also affects your close family. posted about 3 days after the source♥ 1 Low-like source i came here to say addiction but you beat me to it! Congrats on your recovery! i just hit 20 months yesterday. feels like just yesterday i went to rehab. posted about 3.8 hours after the source♥ 1 #### What the counts show This report keeps all 21 source records for Addiction and withdrawal together and surfaces traceable examples without converting anecdotes into proof. 21index entries 21distinct source records 10.3%of parent category 0.6%of the complete index 20top-level comments 1replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 0asks a question 0says they intend to try it 21other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments21 preserved records · 21 of 21 source records accounted for **Mental pain: borderline personality disorder Physical pain: drug addiction (IV user). I've been in recovery since 2019 though 💪🏻**♥ 18source record 396 **Heroin withdrawals**♥ 4source record 418 **i came here to say addiction but you beat me to it! Congrats on your recovery! i just hit 20 months yesterday. feels like just yesterday i went to rehab.**♥ 1source record 1343 **withdrawal from opiates... Specifically Suboxone. It took a whole month for the withdrawal to finally stop. I felt like I was dying but let me tell you it was worth every minute**♥ 2source record 1586 **Alcoholism Just was in ICU then intermediate ward for 6 days. Had dual arm IV’s and phenobarbital for withdrawal. Couldn’t eat or drink for 4 of those days due to suspected GI bleed. Thiamine infusions every few hours to ward off wet brain. Blood pressure 156/287\. Yes you read that right. Almost stroked out.**♥ 2source record 1599 **If addiction is a illness, then SMOKING 😓**♥ 1source record 2222 **Withdrawal from opioids, Covid**♥ 1source record 2495 **Addiction and depression**♥ 1source record 2560 **Alcohol poisoning. Wished I was dead.**♥ 1source record 2656 **Alcoholism**♥ 1source record 2715 **Alcohol withdrawal. Symptoms of the flu plus mental hell on earth. But it doesn’t stop there because it also affects your close family.**♥ 1source record 3095 **Covid while in cold turkey fentanyl withdrawal. I came very close to dying, but I came out of it sober.**♥ 1source record 3126 **addiction**♥ 1source record 3309 **Addiction**♥ 1source record 3442 **Addiction. If that counts.**♥ 1source record 3512 **Addiction.**♥ 1source record 3620 **Opioid withdrawal. It's a hell I never want to go through again.**♥ 1source record 3699 **Opioid addiction fs**♥ 1source record 3844 **Heroin withdrawal but dunno if that counts The most painful ones are injuries But the most painful illness was probably mumps from what I remember**♥ 1source record 3954 **opioid withdrawal**♥ 1source record 4008 **Detoxing off opioids in county jail**♥ 1source record 4122 Archive: 21 index entries preserve 21 distinct source records · Every displayed synthesis count resolves to source-record IDs Grief and heartbreak32 index entriesBereavement and heartbreak, described by their writers in physical terms. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Grief and heartbreak Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Grief and heartbreak 32 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 271 **Appears when:** Grief and heartbreak **What the pattern means:** Records that answer a question about illness with bereavement, and defend the answer physically rather than emotionally. Writers describe chest pain at a vet's table, a heart rate matching post-surgical recovery, months of panic attacks, and getting physically sick. The recurring structure is the sudden episode — several writers describe something that arrives out of nowhere in the middle of an ordinary evening and lasts twenty minutes, and reply to each other looking for a name for it. **What commenters described:** My mom died a couple weeks ago and I keep having these... I don't know what to call them. They're like micro panic attacks that come on suddenly but don't last super long? It feels like I'm dying for 20 minutes, seemingly out of nowhere because I'm in the middle of reading or eating dinner or even having conversation where nothing really reminds me of her. **Limit:** This is a thread of strangers describing grief to each other, not bereavement support, and the reassurance commenters offer one another is theirs. If grief is affecting your health, that is worth taking to a clinician rather than to a comment section. What the replies added2 Not as painful as a broken knee or ankle though. Reported failure♥ 1 If a broken heart could kill I would be long dead. Reported failure♥ 1 #### Source-record spotlights Most engaged source My mom died a couple weeks ago and I keep having these... I don't know what to call them. They're like micro panic attacks that come on suddenly but don't last super long? It feels like I'm dying for 20 minutes, seemingly out of nowhere because I'm in the middle of reading or eating dinner or even having conversation where nothing really reminds me of her. source record 271♥ 170 Later-arriving source My uncle passed away from brain cancer earlier this year. He was in his 60s. He ignored his migraines for so long, turns out it was a tumor. I miss him so much. It doesn't feel real. Not to mention that I have so many stressful things going on in my life, I feel like I haven't had time to grieve at all posted about 30.8 hours after the source♥ 1 Low-like source it's so hard to heal when your life is still burning around you. i was getting better with therapy and medication, genuinely better, and then my grandmother passed last year. i haven't been okay since and had to estrange myself from both parents for my own health. and then last weekend my father was diagnosed with pancreatic cancer. he refused treatment. i hate him a little for being so content with the wasteland he's leaving behind. when i cut him off, all i wanted was peace of mind until he could do some reflection. maybe one day he could finally be the father i needed. now he has weeks at best and i have to make a decision. it's eating me alive. every door to closure slammed shut in an instant. he doesn't deserve forgiveness, but could i forgive myself if i didn't give him one last chance? fuck cancer. posted about 3.5 hours after the source♥ 1 #### What the counts show The exact phrase “a broken heart” recurs across 4 of the 32 source records in Grief and heartbreak; the complete archive stays available below. 32index entries 32distinct source records 15.7%of parent category 0.9%of the complete index 16top-level comments 16replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 2asks a question 0says they intend to try it 30other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments32 preserved records · 32 of 32 source records accounted for **Grief.**♥ 371source record 270 **My mom died a couple weeks ago and I keep having these... I don't know what to call them. They're like micro panic attacks that come on suddenly but don't last super long? It feels like I'm dying for 20 minutes, seemingly out of nowhere because I'm in the middle of reading or eating dinner or even having conversation where nothing really reminds me of her.**♥ 170source record 271 **I lost my mum 4 years ago and would get this every morning, it was anxiety causing it, speak to a doctor, I had medication for a short period of time and it really helped. You are right at the beginning, I can never say it gets better but you learn to live alongside it, you won’t feel this horrendous forever**♥ 67source record 272 **I’m so sorry for your loss. I’ve lost both my parents (dad 10 years ago and mom 5). The mornings after each had passed were the worst. I’d wake up then suddenly remember. It felt like learning they died all over again. Nothing makes it better, but it gets more bearable over time. Hugs to you and your family.**♥ 41source record 273 **After my mom died in 2018, I was having horrible pain in one side of my head and was convinced I was having a stroke or something. Got checked out and was (physically) fine. My heart raced for months and I had constant panic attacks. I would just lay in bed and my body felt like it was vibrating and my heart pounded so hard that I could feel it my back. My dad had to get his heart checked after my grandfather died because he was having horrible pain in his chest. He was also (physically) fine. Long story short, it's normal. I know it's really hard and painful now but it gets better. You'll still have your moments. I lost my mom, brother and grandfather in the span of 15 months and I still have breakdowns once in awhile. The pain will never go away but it will get easier to deal with. I'm sorry for your loss. Take care.**♥ 12source record 274 **A broken heart**♥ 43source record 380 **Been almost a year since I've lost my father. Still very hard to deal with. Especially since I have a lot of guilt of not being there when he passed (which, no one was and I know deep down that's what he would have wanted). But, I very thankfully have videos on YouTube of him performing (he was a musician) and watching those really help.**♥ 3source record 1088 **yes, i've had/still have these after suffering a loss almost three years ago. they are paralytic and strange. these days it's pretty occasional, maybe once a month or a little less, but it feels like i've plateaued as far as "getting better." idk if they'll stick for life. at its very pinpoint center the loss remains as acute as the moment it happened, but the radius of destruction has new growth, like a crater from a meteor overgrown such that you can't immediately tell it was once just a burning hole it's never occurred to me to call them panic attacks but there isn't really other vocabulary for it - a grief attack, maybe, some sort of adrenaline/cortisol/chemical rush after a dam breaks in my brain or my heart**♥ 3source record 1089 **Same. There's no cure for it**♥ 3source record 1176 **I second this. When I was putting my cat down at the vet, I was hit with the most indescribable pang of chest pain that I thought I was about to have a heart attack. This paired with the deepest mental sadness I’ve ever felt. It’s been one year since he died.**♥ 2source record 1206 **It's been almost 5 years and I still can't talk or think about how my Scottie died. The pain was crippling. I understand. 💙**♥ 2source record 1207 **Lost my grandmother in 2023, along with a neglectful ex of mine to top it off I literally got physically sick from the grief I had. Fevers and flus. Grief really takes a toll on the mind and body.**♥ 2source record 1217 **Oh wow, my dad died in March of this year and about a week later, I began having panic attacks. Like you they were terrifying. They would wake me up at night and last for about half hour. They finally went away in July. But grief can do that to you. I’m sorry about your mom❤️**♥ 2source record 1227 **it's so hard to heal when your life is still burning around you. i was getting better with therapy and medication, genuinely better, and then my grandmother passed last year. i haven't been okay since and had to estrange myself from both parents for my own health. and then last weekend my father was diagnosed with pancreatic cancer. he refused treatment. i hate him a little for being so content with the wasteland he's leaving behind. when i cut him off, all i wanted was peace of mind until he could do some reflection. maybe one day he could finally be the father i needed. now he has weeks at best and i have to make a decision. it's eating me alive. every door to closure slammed shut in an instant. he doesn't deserve forgiveness, but could i forgive myself if i didn't give him one last chance? fuck cancer.**♥ 1source record 1462 **Broken heart**♥ 2source record 1567 **Grief**♥ 2source record 1583 **Grief**♥ 2source record 1585 **Believing someone loved me who didn't.**♥ 2source record 1596 **Broken heart 😢**♥ 1source record 2216 **the emotional pain of loss :(**♥ 2source record 2423 **Broken heart 💔**♥ 1source record 2534 **Broken heart 😢**♥ 1source record 2668 **A broken heart**♥ 1source record 2892 **being dumped.**♥ 1source record 3294 **A broken heart**♥ 1source record 3369 **Broken heart 💔**♥ 1source record 3631 **M'y first love was one side and i was thinking he were lovee too...**♥ 1source record 3767 **Heartbreak**♥ 1source record 4024 **Yes this happened to me when my mom died too. Would happen in public sometimes even or when trying to socialize. I think it’s actually a less talked about but totally normal grief experience, especially losing a parent. I’m sorry you lost your mom too.**♥ 1source record 4273 **My heart rate following my mother’s death was the same as when I was recovering from surgery. Fun apple watch data. Grief is pure stress.**♥ 1source record 4277 **My uncle passed away from brain cancer earlier this year. He was in his 60s. He ignored his migraines for so long, turns out it was a tumor. I miss him so much. It doesn't feel real. Not to mention that I have so many stressful things going on in my life, I feel like I haven't had time to grieve at all**♥ 1source record 4291 **If a broken heart could kill I would be long dead.**♥ 1source record 4340 Archive: 32 index entries preserve 32 distinct source records · Every displayed synthesis count resolves to source-record IDs What the pain did, and what happened when they asked for help55 records · 2 sub-topicsAnswers about duration rather than intensity, and answers whose subject is the encounter with a clinician. 55 records. Chronic pain, and the illnesses nobody could name19 index entriesAnswers about duration rather than intensity, including illnesses that were never given a name. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Chronic pain, and the illnesses nobody could name Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Chronic pain, and the illnesses nobody could name 19 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 377 **Appears when:** Chronic pain, and the illnesses nobody could name **What the pattern means:** The answers that decline the premise: the question asks for the most painful, and these writers answer with the longest. Several say explicitly that their pain is not excruciating and that this is the point. The second half of the group is about diagnosis rather than duration — writers on their twelfth doctor, told it is their existing condition, told it is nothing, describing the absence of an answer as the worst part. **What commenters described:** i have chronic pain. its not quite excruciating but the fact its 25/7/365 days a year. injurywise iys either ear infection or whem i scraped up my lung/inner chest well while coughing during covid. **Limit:** By definition many of these writers do not know what they have, so this group cannot describe any condition. Nothing here identifies a cause of chronic pain or indicates what anybody should do next. What the replies added2 Ugh! I can’t even count the number of times people say, “Well, you look great!” It’s SOOOO frustrating. If my outer appearance matched how I felt on the inside, people would probably weep with sadness at seeing me 💔 And the comments about parking in a handicapped spot WITH appropriate parking permits…so many Karens have complaints about that. I said I wouldn’t wish lupus on anyone, but maybe if they could feel what it’s like for a day? Heck, even a few hours. From the replies♥ 4 Couldn’t agree more and I’m so sorry that you’re experiencing this too. Lots of love 🫶🏼 From the replies♥ 3 #### Where commenters report limits Explicit limit or counterpoint What ever I have that doctors 12 different ones can’t tell me what I have and everything they say to do does nothing source record 3023♥ 1 #### Source-record spotlights Most engaged source Yeah it’s really shown me how the world at large feels about invisible disabilities. “Well you don’t look sick!” Thanks Karen, and you don’t look like a nosy bitch but here we are source record 229♥ 10 Later-arriving source I understand completely. Chronic pain starts to affect you mentally. Years untreated changed my personality and made me a more negative person. But don’t give up hope! It took a long time to find what works for me but I did and I got my life back. I wish the best for you. posted about 28.0 hours after the source♥ 1 Low-like source Living 3 years with an undiagnosed chronic autoimmune disease, fatigue and brain fog like none other posted about 4.1 hours after the source♥ 1 #### Related evidence elsewhere in the index [AppendicitisAttach it to an existing routine · 3 there](#rich-node-0-group-1-subgroup-0-appendicitis)[Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate) #### What the counts show Across 19 source records, the most common observable tactic structure is “Attach it to an existing routine” (2 records). This is a wording pattern, not a measured outcome. 19index entries 19distinct source records 34.5%of parent category 0.5%of the complete index 13top-level comments 6replies #### What commenters explicitly report 1explicitly reports a benefit 1explicitly reports a limit or failure 1asks a question 0says they intend to try it 16other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments19 preserved records · 19 of 19 source records accounted for **Yeah it’s really shown me how the world at large feels about invisible disabilities. “Well you don’t look sick!” Thanks Karen, and you don’t look like a nosy bitch but here we are**♥ 10source record 229 **Ugh! I can’t even count the number of times people say, “Well, you look great!” It’s SOOOO frustrating. If my outer appearance matched how I felt on the inside, people would probably weep with sadness at seeing me 💔 And the comments about parking in a handicapped spot WITH appropriate parking permits…so many Karens have complaints about that. I said I wouldn’t wish lupus on anyone, but maybe if they could feel what it’s like for a day? Heck, even a few hours.**♥ 4source record 230 **i have chronic pain. its not quite excruciating but the fact its 25/7/365 days a year. injurywise iys either ear infection or whem i scraped up my lung/inner chest well while coughing during covid.**♥ 8source record 377 **Depression and chronic stress from chronic pain**♥ 5source record 412 **I thought that's what I had 2 years ago. Pain so bad I couldn't even breathe properly in the right side of my abdomen under the ribs. Well, cut to now and after multiple hospital stays the doctors still don't know what it is. Have regular pain now that is just my daily life and then there are the flare ups again every few months where I wish someone would just take me out. Absolutely not putting down how bad gallbladder attacks are, but worse than the pain is just now knowing what the fuck is even going on orz**♥ 1source record 729 **“Hey, you look good, like you lost weight” “Yep it was the six month flare and now I weigh 100 pounds and am miserable.”**♥ 2source record 1038 **I have spine arthritis basically and have a cyst pressing on my L5, causing sciatica. I had TMJD since I was 15\. Just woke up one day unable to open my jaw. Full on trismus, couldn't fit a spoon in my mouth. My dad thought I had tetanus lol Anyway, it was just a really unfortunate case of an uneven jaw development. I was using a straw for a week until the muscle cramping stopped and had a TENS unit to relax my face every morning and night (which doesn't even touch the pain these days, it's like a tickle lol) My jaw asymmetry is barely noticeable but the toll it has had on my psyche is indescribable, having to live with chronic pain for this long. The pain is both on the muscles and ligaments on my face and jaw. At times, there are random shocks through my teeth and gums. Fun. I have tried every treatment available in 3 different countries, except surgery, which I am not willing to do. Because of TMJD, I also have intense migraines, which was finally controlled by Emgality shots. I also now have cervical dystonia, managed with baclofen. It is hard to turn my neck, so I must pivot and twist my spine instead when doing something as simple as using the car's side mirror. Of course, that makes my spine arthritis worse, worsening the sciatica. 😑 I have botox shots on my face and neck every 2 months to relax them. Then I have steroid shots for my spine every 3 or 4 months to ma age the stiffness and nerve pain. Opioids are worthless to me. I am entering my 40s with a body of a 70 year old woman. It's frustrating because everytime I feel like my body is finally at a stable condition, one condition flares up and I am back to establishing a new normal while needing time off work. I love my job as a peds nurse, working with transplant kids, but I had to give that up this year to save whatever my body has for my 6 year old son!**♥ 3source record 1082 **Multiple Chronic illeness**♥ 2source record 1478 **Whatever the fuck’s going on that no doctor can figure out and help me with and keeps blaming on my Crohn’s disease, but all the symptoms are unresponsive to treatment and my Crohn’s is now in remission. I’m suspecting that I have MCAS, hEDS and endometriosis going on that’s undiagnosed and really trying my best to see every professional I can. It’s just a long waiting game meanwhile I’ve been completely homebound for almost a year because it’s my whole body. It’s systemic it’s everything. and I feel hopeless about it because I can’t get any relief. I’m in constant discomfort 24 seven and nobody can figure out how to help me. That’s the worst pain when there’s no end to it and no relief in between.**♥ 1source record 2014 **Let me start by saying that I've had chronic pain issues since I fell down a flight of stairs, in 7th grade. When this happened, I was 45 and had developed scoliosis, psoriatic arthritis, fibromyalgia, PCOS, degenerative disc disease and a lot of other crap. I was seeing a pain management doctor because I hated what my rheumatologist deemed "my only option" which was 2 kinds of opiods. Since this I've switched to Suboxone to treat my pain. Anyway, I started having intense pain in my stomach. Five out of six of my immediate family had to have their gall bladder removed. I figure it was that. I was able to manage for 3 days until my husband got home. I couldn't keep anything down so my pain meds were not helping. I went to a clinic to see if they could help. When my WBC came back at over 30K, they sent me to the hospital. I was there for 9 days before I could have surgery and go home. They were giving me Dilaudid every 4 hours but as a ginger, I was burning through it in an hour and would cry and shake for the next three. I begged them to just give me my usual pain meds instead. I thought about suicide because it was that bad. On Day 4, I called my pain doctor and they called my hospital doctor to confirm what I had said. I was given a total of 2 Norco 10's in 18 hours and I was able to get up and walk around again. I even asked for them to lower the Dilaudid a bit and all this was before surgery. I thought the gall bladder/pancreatitis was my worse pain ever. I then realized my worst pain ever was actual my chronic every day pain but untreated.**♥ 1source record 2677 **being in chronic pain every single day for the past 13 years 😭😭😭**♥ 1source record 2726 **I still have it. Every fucking day**♥ 1source record 2953 **What ever I have that doctors 12 different ones can’t tell me what I have and everything they say to do does nothing**♥ 1source record 3023 **Chronic pain. High levels of pain every single day. 0/10 would not recommend.**♥ 1source record 3036 **Living 3 years with an undiagnosed chronic autoimmune disease, fatigue and brain fog like none other**♥ 1source record 3107 **Whatever the hell I’m sick with currently**♥ 1source record 3527 **Chronic illness. It doesn’t stop**♥ 1source record 3554 **Chronic pain from hyper mobility. I tend to downplay it but somedays its so bad I cannot move at all**♥ 1source record 3728 **I understand completely. Chronic pain starts to affect you mentally. Years untreated changed my personality and made me a more negative person. But don’t give up hope! It took a long time to find what works for me but I did and I got my life back. I wish the best for you.**♥ 1source record 4290 Archive: 19 index entries preserve 19 distinct source records · Every displayed synthesis count resolves to source-record IDs Not being believed36 index entriesRecords whose subject is the encounter rather than the sensation: being sent home, being told it was anxiety, being read as a drug seeker. Source-backed index report #### Condition card naming the illness, what commenters reported the pain was like, and the limits on reading it as anything more: Not being believed Source-backed answers are shown before diagnostics; the complete source archive remains below. #### Not being believed 36 source recordsDiscussed **Evidence Status:** Reported by commenters about their own illness; not diagnosed, verified or ranked here**Representative Source Record Id:** 44 **Appears when:** Not being believed **What the pattern means:** The only group here whose subject is not a sensation. These records are about the encounter: being told it was anxiety, heartburn, stress or period pain; being read as a drug seeker; being called too young for the condition that was eventually found. Two mechanisms come up repeatedly. Writers who cope quietly say composure was used as evidence against them — the recurring phrase is being too cheerful to be in that much pain. And women in particular describe their pain being reframed as emotional, in accounts that end in gangrene, sepsis and emergency surgery. **What commenters described:** It's a pretty common issue that people who deal with chronic pain get really good at blocking it out, then create confusion in the ER when it turns out they have an internal issue that \*should\* have them on the ground screeching but they're just used to it. The triage team is left guessing and then take the blame when the quiet one finally goes back and their appendix bursts. This happened to BOTH of my parents who are very "suck it up, buttercup" types and I've learned that when I walk into the hospital I am to turn into an absolute pussy without shame. The nurses don't know who's a crybaby and who's a monk, you have to meet them in the middle. **Limit:** Every record here is one side of an interaction, told afterwards by the person who was dismissed; no clinician's account is available and none of these cases has been verified. It is a record of how these commenters experienced their care, not a finding about medicine. What the replies added3 You're a woman! Have you tried not being so hysterical? Maybe finally try losing that baby weight?? Meditation??? I was the opposite, sitting in the lobby with two broken arms, calm but dirty after a fall. The male doctor told me I'd \*possibly\* sprained them because obviously I wasn't screaming in pain. Hey guess what? Two broken arms! I'm just super calm in an emergency but somehow react like I'm being hunted for sport if I have to make a phone call. Reported failure♥ 256 I recently learned that my ability to not scream while in insane amounts of pain is the WORST superpower when it comes to being in an ER. I have now had two instances of things happen to me where I was just sent home and told to take Advil. The first was a gallbladder attack and the second was a ruptured ovarian cyst. Both were more painful than when I broke my leg, but I was told “you’re too cheerful to be in THAT much pain!” Ahahahaah. It sucked a lot for the gallbladder thing because I had to go back, and finally they did a scan and were like ohhh oops, you need surgery right now because this is super bad. Why didn’t you say anything? 🙃🙃🙃 Reported failure♥ 29 You said "two broken arms" and no one made a joke? Reddit is losing the classics. Reported failure♥ 8 #### Source-record spotlights Most engaged source You're a woman! Have you tried not being so hysterical? Maybe finally try losing that baby weight?? Meditation??? I was the opposite, sitting in the lobby with two broken arms, calm but dirty after a fall. The male doctor told me I'd \*possibly\* sprained them because obviously I wasn't screaming in pain. Hey guess what? Two broken arms! I'm just super calm in an emergency but somehow react like I'm being hunted for sport if I have to make a phone call. source record 42♥ 256 Later-arriving source "Just take more Tylenol and Ibuprofen." From three different GYNs when complaining of new onset of pelvic pain. As if I'm not living on the max clinical dosage around the clock, eating them gel caps like m&ms as is. I didn't want pain relief recommendations, I wanted an answer for what was wrong. Known history of stage IV endo, and when they actually looked at my remaining ovary, it now consists of five endometriomas and zero normal tissue. I should probably just lose some weight and practice mindfulness. posted about 19.2 hours after the source♥ 2 Low-like source I was 22\. Everyone kept telling me I was too young to get shingles until I finally found a doctor that believed me and gave me medication. I was in so much pain. posted about 4.0 hours after the source♥ 1 #### Related evidence elsewhere in the index [Arthritis, lupus and autoimmune diseaseAttach it to an existing routine · 8 there](#rich-node-0-group-5-subgroup-0-arthritis-lupus-and-autoimmune-disease)[Bladder, kidney infections and the prostateAttach it to an existing routine · 5 there](#rich-node-0-group-4-subgroup-6-bladder-kidney-infections-and-the-prostate)[Childbirth, caesareans and what came afterAttach it to an existing routine · 6 there](#rich-node-0-group-4-subgroup-3-childbirth-caesareans-and-what-came-after) #### What the counts show Across 36 source records, the most common observable tactic structure is “Attach it to an existing routine” (5 records). This is a wording pattern, not a measured outcome. 36index entries 36distinct source records 65.5%of parent category 1%of the complete index 3top-level comments 33replies #### What commenters explicitly report 0explicitly reports a benefit 0explicitly reports a limit or failure 4asks a question 0says they intend to try it 32other source context These buckets are a deterministic partition based on explicit phrasing in the source text; they are not sentiment scores or effectiveness findings. #### Observable tactic structures Attach it to an existing routine **5**Create a default **3**Turn it into a game **2** Counts show source records whose wording matches the tactic structure; biological explanations remain commenter claims unless separately checked below. **Reading limit:** Counts show source-record support for this index node. Explicit language and exact-phrase rules do not establish uniqueness, semantic exhaustiveness, or effectiveness. Browse the original comments36 preserved records · 36 of 36 source records accounted for **You're a woman! Have you tried not being so hysterical? Maybe finally try losing that baby weight?? Meditation??? I was the opposite, sitting in the lobby with two broken arms, calm but dirty after a fall. The male doctor told me I'd \*possibly\* sprained them because obviously I wasn't screaming in pain. Hey guess what? Two broken arms! I'm just super calm in an emergency but somehow react like I'm being hunted for sport if I have to make a phone call.**♥ 256source record 42 **I recently learned that my ability to not scream while in insane amounts of pain is the WORST superpower when it comes to being in an ER. I have now had two instances of things happen to me where I was just sent home and told to take Advil. The first was a gallbladder attack and the second was a ruptured ovarian cyst. Both were more painful than when I broke my leg, but I was told “you’re too cheerful to be in THAT much pain!” Ahahahaah. It sucked a lot for the gallbladder thing because I had to go back, and finally they did a scan and were like ohhh oops, you need surgery right now because this is super bad. Why didn’t you say anything? 🙃🙃🙃**♥ 29source record 43 **It's a pretty common issue that people who deal with chronic pain get really good at blocking it out, then create confusion in the ER when it turns out they have an internal issue that \*should\* have them on the ground screeching but they're just used to it. The triage team is left guessing and then take the blame when the quiet one finally goes back and their appendix bursts. This happened to BOTH of my parents who are very "suck it up, buttercup" types and I've learned that when I walk into the hospital I am to turn into an absolute pussy without shame. The nurses don't know who's a crybaby and who's a monk, you have to meet them in the middle.**♥ 24source record 44 **This. I have EDS/LDS and have had LOTS of dislocations. Even if my arm is hanging out of the socket or my knee is totally to the side, the ER nurses and doctors always think it is just a sprain at first because I'm used to it. The fact I'm in the ER instead of popping the joint back in right away myself means I'm already reacting much more than normal. I hate giving a number on the pain scale too. I live at a 5 all the time WITH pain meds. And gave birth twice very quickly and without pain relief (not by choice but nurses didn't believe me even when I warned them my labor was short and hard.)**♥ 4source record 45 **Same here. And what’s worse is unless you are septic the ER won’t do much.**♥ 43source record 59 **Sometimes they don't even realize you ARE septic which is SO fun**♥ 3source record 60 **I will continue to be grateful that my second opinion gynecologist took me serious, diagnosed me through surgery and admitted she would not be comfortable doing my hysterectomy. She sent in a referral to a regional hospital. Forever grateful she didn't attempt it herself. So glad you are ok!!**♥ 4source record 183 **He thought it was depression (which I most definitely had/have). Like, you need someone to vent to or talk to. Yah, no...boyfriend not gonna help with mah stumbling and barfing. 🫠😁**♥ 5source record 218 **Dang I wish I had the option. The ER basically said it could be anxiety and to go to my GI. Like, the rare panic attacks I have weren’t painful.**♥ 1source record 618 **Ha same, I had a broken collarbone and was clearly put in the 'it can wait' queue. Then I went into shock and a nurse saw the colour drain from my face. My hearing and vision went so I stopped responding too. Oh boy did I get bumped up fast!**♥ 2source record 620 **Ugh as a woman in the ER right now with an infection in one of my recent surgery incisions I make it a point to say I AM IN A LOT OF PAIN IM JUST NOT SHOWING IT Jesus the red streaks coming from the incision quickly growing across my belly like guys**♥ 2source record 622 **My dr told me I was having heartburn. For a year, she treated me for heartburn. Gall bladder attacks for a year. She was leaving town for the week and set me up an apt with the in house GI, said we would do and endoscopy Monday. Went to the ER with the worst attack I ever had on Saturday. Got it removed Sunday.**♥ 1source record 645 **Yes, fun story, the doctor that saw me told me it was all in my head and threatened to have me comitted. I suffered one year of constant attacks before a nurse accidentally diagnosed me and sent me straight to a surgeont.**♥ 1source record 650 **YES. I was misdiagnosed for two years because I was 22\. Finally my roommates found me passed out in the house and took me to the hospital. It was infected by then so I had to spend a few days in the hospital on antibiotics and a dilaudid drip before they could operate. I have barely any memory of it beyond the intense pain.**♥ 1source record 653 **Just like that, eh? I had regular gallbladder attacks for 18 months before I could convince my 4th gi doctor to take it out.**♥ 1source record 663 **My gallbladder was chalked up to anxiety/backpain and I was smiled and mocked at by a Dr. I told them the pain was severe. It took them over 6 months to diagnose it and it was due to almost bursting. I had an attack during physical therapy and my PT called in my Dr to explain the severity. All my Dr (female) cared about was reminding him that I was HER patient. After I got my ultrasound, I was taken for immediate surgery. I switched doctors after that. It was the new one that took me seriously.**♥ 1source record 706 **Yup, showed up to the ER 4x in 2 weeks screaming in pain. The first time I got sent home with a laugh and rolled eyes, telling me they won’t see me until the next day, but it was cramps so stop being dramatic. Same the second time. The third time they cared just enough to give me an ekg and an ultrasound, found the gallstones and sent me home to schedule it out, the next available appt was over a month away. Fourth time the surgery team took one look at me and tore into the dr that sent me home after diagnosis a new one. Got it out later that day.**♥ 1source record 707 **The last one I had while I was sitting in the ER waiting for the surgeon to arrive was so goddamned brutal. The nurses thought I was faking it for pain meds.**♥ 1source record 712 **Came here to say the same thing. I didn’t realize it was a physical ailment and not just some insane panic attack symptoms (thanks to the fine doctors at my college health center). Can’t believe I suffered that badly, multiple attacks a week for many months. Literally in so much pain I was crying and ripping my clothes off and curling on the floor in a ball. It took until I landed in the ER because I legitimately thought I was dying that I got it properly diagnosed. Life has been better without the gallbladder for the last 9 years 🙏**♥ 1source record 714 **I had at least 20 attacks and 4 trips to the hospital before they finally took mine out. They didn't believe me at first because I was like 19 and 'too young' for it, despite the fact my mom and sister both had it at the same age and both got theirs removed, guess it's a weird genetic thing. They knew immediately from my first attack what it was. They finally relentled when I got pancreatitis and couldn't pee for over a day (despite being at the hospital waiting around for a scan machine to be available, despite a giant bladder and stomach because of it). Although, I didn't know at the time but the doctor who spoke to my mom said that I must be on drugs and that caused the pancreatitis because tok young I guess 🙃 I cannot tell you the sweet sweet relief after the surgery, morphine didn't touch the pain, I was so happy to finally have the bastard out of me.**♥ 1source record 715 **I always doubt the severity of my pain and assume I’m overreacting, so I called Telehealth to see if I should go to urgent care. The doctor told me I was experiencing an anxiety-induced stomachache and to see my GP on Monday. Turns out it was a gallbladder attack and I need to be taking my pain more seriously because I have an \*extremely\* high pain tolerance.**♥ 1source record 716 **L1 fracture that dr said was a UTI, even though I explained the pain followed a fall at a medical facility days prior.**♥ 1source record 724 **fr i was in the ER multiple times before they even scheduled surgery**♥ 1source record 726 **Same. I had gallstones off and on in my teen years, I would be doubled over in agony for hours and had no idea what was wrong. I thought it was a heart attack or I was dying or something. Parents took me to several ERs, but the stone usually passed before I could see a doctor and they basically shrugged and told us it must have been ACID REFLUX. At the time I hadn’t had acid reflux before, but I was very certain it didn’t feel like dying. But of course, why listen to a teenage girl about her own body?? It was not, in fact, acid reflux, and eventually I needed emergency surgery to have my infected gallbladder out. Good times.**♥ 1source record 734 **I had my gallbladder removed, and a stent put in. When I woke up from surgery, I was in worse pain than before surgery. My surgeon insisted that I wasn't in any pain, that I was just fine, and I must have been lying. I was in tears and gasping in pain for the next ten days until they took out the stent. It had been set crooked, which was why I basically had to live on hydromorphone and codeine for over a week.**♥ 1source record 736 **I’ve had 3 and my pain has been shrugged off every time. I’m begging for it out, these are the worst**♥ 1source record 742 **Afff i remember those. For me, for some reason, it was like my ribs were being set on literal fire. At some point it clicked that what was causing the attacks was the acid in tomatoes, so I completely avoided those until surgery and could almost live normally. Called the emergency home cause I literally could not breathe from the pain and (according to my parents, who were there helping out) the motherfuckers would check my arms for track marks and ask my parents if I did drugs, thinking I was overreacting (wasn’t diagnosed at the time with gallbladder stones). That went on for months. Fun times.**♥ 1source record 757 **I think it was just being on the edge of unconsciousness from the shock. Hard to describe but my vision tunneled and went green-tinted and I couldn't really focus on anything, and my hearing at first sounded underwater and then the volume kept getting turned down. The pain was bad but not terrible, my brain just decided to opt out of the situation 😂 even then I just sat there calmly and apparently informed them 'I need to lie down'**♥ 2source record 775 **"Just take more Tylenol and Ibuprofen." From three different GYNs when complaining of new onset of pelvic pain. As if I'm not living on the max clinical dosage around the clock, eating them gel caps like m&ms as is. I didn't want pain relief recommendations, I wanted an answer for what was wrong. Known history of stage IV endo, and when they actually looked at my remaining ovary, it now consists of five endometriomas and zero normal tissue. I should probably just lose some weight and practice mindfulness.**♥ 2source record 1030 **A combo of blood work and symptoms. But it doesn’t show up in a standard blood test / CBC, and no matter how hard I fought, for over a decade, I couldn’t convince doctors to order the more extensive bloodwork. They kept trying to tell me I was just stressed, or not getting enough sleep, or eating poorly, or not exercising, or about to start my period. Despite the fact that I had verifiable proof that none of those things were the case. The level of condescension was ridiculous. Being a small, thin, “healthy looking” young woman in America is damn near a death sentence. The thing that got me diagnosed was a trip to the ER that revealed I was in severe multiple organ failure. The negligence of these doctors, the fact that they didn’t listen for all those years, literally could have killed me.**♥ 3source record 1042 **I had a herniated disc in high school and my parents and doctors did not believe me, I had to attended school and GYM CLASS through the pain. I cried so hard one day my mom finally “let” me get an MRI and the doctor said he’s never seen a more severely pinched sciatic nerve 🙃 really traumatizing, and I still don’t really forgive my parents for not believing me.**♥ 3source record 1083 **Same happened to my mom... Nobody took her seriously, even when her eyes started twitching...**♥ 2source record 1309 **I have severe RA. Until I was diagnosed and treated, being told my inability to care for myself, sleep, walk without pain, and do basic tasks was all in my head or because I should just lose some weight was some of the worst pain ever. Not only was I severely sick and in pain, but being told it wasn't real amplified it so much more.**♥ 2source record 1677 **I've had so many painful illnesses, from adenomyosis to gastroparesis to diabetic neuropathy that let to a toe infection so bad it led to amputation (twice!). The worst was a pinched nerve in my trap, solely because it was the only pain I've ever had that the doctors didn't give half a shit about. It's possible one of the other issues was actually more painful (though maybe not; I've only screamed from pain twice and the other one was from a nurse who insisted on trying to flush an occluded line), but the way everyone (except my pcp, who could only refer me to pt) looked at me like I was a drug seeker was genuinely the worst. I ended up finding a placement guide online for TENS patches and wore it 24/7 for over a month before it released and I could stop. It cost a fortune in D batteries and was incredibly unsafe, but it saved my life. Even the time my diaphragm began to spasm and cramp after vomiting for four hours straight (I had coffee ground emesis and the cramps were visible through my skin), just knowing that everyone was doing the best they could to help made it feel better.**♥ 1source record 1801 **I went to ER in an ambulance because I would have sworn I was having a heart attack. The a hole emt decided I Was “drug seeking” despite me not taking so much as a Tylenol even though labor. So they did no tests except an EKG and labs for heart and sent me home in agony. Two days later i went to a different hospital. They did ultrasound and CT scan and admitted me for emergency surgery. It was becoming gangrenous and I could have died. The ambulance sent me a bill. I sent a letter back explaining what happened and why they were going to write off the $860 fee or I was going to get an attorney.**♥ 1source record 3410 **I was 22\. Everyone kept telling me I was too young to get shingles until I finally found a doctor that believed me and gave me medication. I was in so much pain.**♥ 1source record 4198 Archive: 36 index entries preserve 36 distinct source records · Every displayed synthesis count resolves to source-record IDs How this catalog was built **How this guide is organized** The complete source archive holds all 4,423 captured comments. 3,752 of them name a painful illness, injury or condition and are cited by 63 condition cards across 14 themes. The remaining 671 are reactions, agreements, sympathy, questions, advice, jokes, medication discussion, thread commentary and fragments; they stay in the labelled source archive and are not credited as answers. Card size counts comments, never severity. Source: Reddit comments — 1 thread, 4,423 comments (2,862 top-level, 1,561 replies) ## Selected comments from the discussion This export carries real like counts and timestamps. The first 18 are the most resonant on-topic top-level comment from each stage of the discussion, ranked by resonance within their arrival-time cohort so later arrivals are not penalised for having had less time to accumulate likes. The last 6 received no likes at all and were chosen for the specificity of what they describe. Cluster headaches. It feels like someone is driving a railway spike through your head with a sledgehammer and no anaesthetic. most resonant in its arrival cohort♥ 589 Mental pain: borderline personality disorder Physical pain: drug addiction (IV user). I've been in recovery since 2019 though 💪🏻 most resonant in its arrival cohort♥ 18 Ovarian torsion. And I’ve had 2 kids, this was worse. most resonant in its arrival cohort♥ 33 A headache. Couldn't eat, Couldn't think. Never really had headaches. Took a CT scan to diagnose a sinus infection. Thought that was bad until I woke up at 3am one morning with both ears screaming in pain. Went to the ER, double ear infection and nothing they could give me beyond antibiotics bc I was pregnant. Drove home wailing and applied hot cloths until they burst, sweet, momentary relief. But they kept healing and breaking over the next few weeks. Doc said I had a head full of concrete. Every move sent shooting pain through my skull. Took percoset around the clock until it all drained finally. Worst weeks ever, still went to work etc. Just kept up the pain killers. Pregnancy can cause some strange sinus stuff. Read more most resonant in its arrival cohort♥ 2 COVID almost killed me at an age of 32 most resonant in its arrival cohort♥ 3 Frostbite, the thawing was the worst pain I ever felt, even with all of the opiates I was on. Ended up losing both feet. most resonant in its arrival cohort♥ 3 Kidney stones. Not fun waking up at 3 AM, already doubled over in pain. most resonant in its arrival cohort♥ 2 Cyclical Vomiting Syndrome. I had HG while pregnant, and CVS is literally that, but for the rest of my life. Constant migraines, struggling to not become dehydrated and end up at the hospital for fluids \*again.\* Vomiting several times a day, so you avoid eating but then you're just painfully dry heaving... Any given episode is painful and deteriorates my mental health, but even good days are tinged with the fear of knowing good days are few and far between when I'll have this illness until I die. most resonant in its arrival cohort♥ 5 Cannabinoid hyperemesis syndrome so much pain i didnt sleep for 11 days most resonant in its arrival cohort♥ 2 Covid in early 2020. most resonant in its arrival cohort♥ 3 Acute kidney infection while I was pregnant most resonant in its arrival cohort♥ 3 Mycoplasma and ureaplasma most resonant in its arrival cohort♥ 2 A six month long migraine it just never went away. I was getting maybe 2 hours of sleep a day had black eyes looked like death. Finally found a neurologist that could help me. It was hell. I have survived to many thing but what comes close was my breaking my trochanter area of my femur soon after my hip revision surgery. most resonant in its arrival cohort♥ 3 Lyme disease. It wasn't intense pain (mostly) it's just that it was everywhere. My whole body hurt, from head to toe. Even my eyeballs. most resonant in its arrival cohort♥ 2 Severe fibromyalgia flare. Horrific full body pain from my scalp all the way to the bottom of my feet that lasted for weeks. most resonant in its arrival cohort♥ 2 For now, maybe anxiety. The emotions that fight you within yourself. most resonant in its arrival cohort♥ 2 I had a bout of transgeminal neuragala- and I thank god we were quickly able to discover what was setting it off because people live with that and i dont know how. most resonant in its arrival cohort♥ 3 Endometriosis and Migraine headaches most resonant in its arrival cohort♥ 2 Cluster Headaches, COVID-19, Kicked In The Balls, GERD, Pleurisy Pains, Cavity With Exposed Nerve Endings, 2nd Degree Burns From Coil In Oven And Glue Gun, Ear Infection, Once Had A PlayStation Fall Onto My Head As A Baby And Sprayed Blood Everywhere Like A Saw Movie, Stubbing My Pinkie Toe, Dropping A Heavy Glass Lid Onto My Big Toe, And The Nail Turning Black/Purple, Migraine, UTI, And that's just a few of them. no likes — selected for specificity I had an ear infection that developed over months and got so bad my ear canal was too swollen for fluid to get out and the pressure eventually built up so much it ruptured my eustachian tube and broke the bone at the top of my jaw too. My jaw is still off centre to this day. The earache, broken jaw, ruptured tube combo was not an experience I’d ever recommend. no likes — selected for specificity Ovarian "torsion". That's in inverted commas because I actually pulled my own ovary off through a combination of an inability to fold collagen properly (EDS), an already attached blood supply, a blood-filled cyst, an abdominal adhesion, and getting up awkwardly from wrapping Xmas presents. no likes — selected for specificity Haemorrhoids - a pain in the but (literally) Way worse than giving birth (without painkillers or anaesthesia). At least when you give birth the pain (mostly) stop after, but after haemorrhoid surgery the pain was still there for 3 weeks. no likes — selected for specificity Strep throat for me. Happened shortly after being hospitalized with a kidney infection. I didn’t take the pain meds they gave me at the hospital for the infection, but caved and took them just to be able to sleep when I had strep! no likes — selected for specificity Fucking severe bronchitis. Felt like every rib and muscle and inner organ was cracking and breaking apart and air moving through my lungs hurt so bad. Steroids are a lifesaver. no likes — selected for specificity ## How the discussion breaks down Relative volume of distinct source-backed records across every reviewed category in this corpus. ### Stones, and the organs that make them 604 distinct coded comment records 3 normalized answers ### The reproductive and urinary tract 509 distinct coded comment records 8 normalized answers ### Nerves, the spine and the back 486 distinct coded comment records 5 normalized answers ### Infections 481 distinct coded comment records 10 normalized answers ### The gut 398 distinct coded comment records 9 normalized answers ### The head, the face and the mouth 361 distinct coded comment records 6 normalized answers ### Bones, joints and muscles 221 distinct coded comment records 5 normalized answers ### The answers that were not a physical illness at all 204 distinct coded comment records 3 normalized answers ### The chest, the lungs and the heart 127 distinct coded comment records 2 normalized answers ### Skin and soft tissue 104 distinct coded comment records 3 normalized answers ### Cancer, and its treatment 72 distinct coded comment records 2 normalized answers ### Surgery, procedures and recovery 66 distinct coded comment records 2 normalized answers ### The body's chemistry, its scaffolding, and the long tail 64 distinct coded comment records 3 normalized answers ### What the pain did, and what happened when they asked for help 55 distinct coded comment records 2 normalized answers ## What the thread argues about, in its own words This thread does not agree with itself, and the disagreement is the most useful thing in it. Two answers dominate the count — kidney stones (273 records) and gallbladder attacks (250) — and the people who have had both do not settle which is worse. One is unequivocal: *“I've had both and gallbladder was astonishingly, blindingly so much worse than my kidney stones.”* Another, in the same thread, has it the other way round: *“I’ve had both gallbladder attacks and kidney stones. Both were incredibly painful but kidney stones slightly more. It actually made me vomit and I couldn’t walk. Gallbladder was removed so I don’t have to worry about that anymore but I’m keeping my fingers crossed kidney stones never find me again.”* **The comparison the thread keeps reaching for is childbirth.** The most-liked record under kidney stones makes it directly: *“I have had an unmedicated c section (had to happen fast, couldn’t get me to numb), and my kidney stones are still 10x more painful than the birth of my child.”* One reply explains what the writer thinks the difference actually is: *“I passed it on my own - it was 6-7mm. I think the biggest difference is that labour pain comes in waves, and you can generally find some sort of relief by changing positions/walking around (I’m currently 39 weeks pregnant with baby #3). With kidney stones, there was NOTHING I could do to get any kind of relief whatsoever. Every position I tried to move into came with the same level of pain, if not more, and it’s completely relentless until your body randomly decides to pass it. I laboured up to 9cm with my first before any sort of pain relief and I was still joking through contractions. With the kidney stones, I had full body shivering and vomiting just from the pain.”* **And the comparison is disputed inside the thread too.** A commenter under the gallbladder answer declines to rank it high at all: *“Interesting. I wouldn't rank my pain from the gallbladder situation very high compared to other things I've dealt with. They kept offering me drugs and I turned them down most of the time. By then my pain tolerance had increased greatly from prior experiences. Like it was crampy for sure but I've had menstrual cramps worse.”* Another rejects the ranking exercise outright: *“I don't have to imagine. I've had viral meningitis and two ruptured lumbar discs. Pain is pain is pain. Whatever your experience is, the worst is the worst.”* **The other recurring subject is not a disease.** 36 records are about the encounter rather than the sensation — being sent home, being told it was anxiety, being read as a drug seeker. The most-liked of them is sarcastic: *“You're a woman! Have you tried not being so hysterical? Maybe finally try losing that baby weight?? Meditation??? I was the opposite, sitting in the lobby with two broken arms, calm but dirty after a fall. The male doctor told me I'd \*possibly\* sprained them because obviously I wasn't screaming in pain. Hey guess what? Two broken arms! I'm just super calm in an emergency but somehow react like I'm being hunted for sport if I have to make a phone call.”* Another reports what a doctor said to her: *“Prescribed laxatives when I had a bowel blockage on my cecum. I thought I was going to die naked on my floor. And I’ve had kidney stones. This didn’t compare. The ER doctor had the audacity to accuse me of seeking pain meds because “women don’t get 10/10 pain worse than childbirth”. It was later found out I had a blockage after I bled for 2 weeks straight.”* None of that is settled here, and this page does not settle it. What follows is a record of what people said they had and what they said it was like — grouped by condition, with every claim attached to the comment that made it. It is not a severity ranking, it is not diagnostic, and it is not advice. Browse the original comments4,423 audited comments and replies PreviousNext Dataset, coverage, and methodology 4,423 comments read and classified 3,752 records naming a condition 63 condition groups 36 records about not being believed ## How this was counted The working unit is a comment record, not a person and not a distinct condition. All 4,423 canonical comments from this one thread (2,862 top-level, 1,561 replies) were read in eighteen passes in thread order — depth-first from each root comment, so every reply was read beneath the comment it answers — and each was assigned to exactly one condition group or one exclusion bucket. 3,752 records name a painful illness, injury or condition, and all 3,752 appear in the complete index above. The other 671 break down as reactions to somebody else's account (127), bare agreements and one-line endorsements (99), records about a drug, dose or vaccine rather than an illness (91), sympathy and well-wishes (89), questions put to another commenter (82), jokes and one-line gags (74), advice offered to another commenter (61), off-topic tangents (16), comments about how patients in general are treated, naming no illness of the writer's own (11), commentary about the thread itself (10), fragments and unreadable text (7), and records about insurance and hospital logistics (4). A condition named with no description still counts: the name is the answer. A record that names several conditions is filed under the one its writer calls their own worst; where no ranking is given it is filed under the condition it describes most substantively, and its full text is preserved on that row, so a record counted under one condition may also mention two others. 3,752 counts classified comment records, not distinct conditions and not people. Repeats were deliberately kept: 273 records name kidney stones and 154 name endometriosis, and each stays its own row rather than being merged into one. Group size is not severity. A large group means many people had that condition and chose to write about it; it says nothing about how much it hurts relative to anything else. The thread itself contains repeated, unresolved arguments about which pain is worst, and about whether pain can be ranked at all. Heart counts are the raw numbers as captured. The first hour of this thread holds 57.1% of all its hearts, so a ranking by raw hearts would mostly rank arrival time; the themes and groups are ordered by how many records they hold, not by popularity. Nothing here is verified beyond what people typed. Every condition, symptom, duration and outcome is the commenter's own report, unchecked against any medical record. Drugs, doses, procedures, diets and home remedies named in these records are reported as what that person says was done in their case; none of it is a recommendation, and none of it should be used to identify or treat anything. Read this as a record of what a crowd said it had been through.